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1.
Orv Hetil ; 162(7): 269-279, 2021 02 14.
Artículo en Húngaro | MEDLINE | ID: mdl-33582650

RESUMEN

Összefoglaló. Bevezetés: A kutatócsoport 99 fo, cerebralis paresisben (CP) szenvedo gyermek (8-18 éves) önállóan közölt életminoségét értékelte, és az eredményeket összehasonlította egy 237 fos kontrollcsoport adataival, amelyek hasonló életkorú, egészséges általános populációhoz tartozó gyermekektol származtak. Célkituzés: A kutatás célja annak megismerése volt, hogy a CP-ben szenvedo gyermekek hogyan vélekednek egészségi állapotukról és társadalmi helyzetükrol. Módszer: Életminoség-kérdoív alkalmazása. Betegségspecifikus és társadalmi-demográfiai mutatók mérése, kiértékelése. Eredmények: Az CP-ben szenvedo gyermekek és szüleik az egészséggel kapcsolatos életminoséget rosszabbnak ítélték meg, mint társaik. Eredményeink azt mutatják, hogy a noi nem, a rosszabb motoros funkció és a komorbiditások (epilepszia, incontinentia és intellektuális károsodás) negatív hatású. A szüloi vélemény alkalmas volt proxyjelentésként a korreláció mért erossége miatt. Figyelemre méltó, hogy az agyi bénulás típusai közül az egyoldali spasticus CP-ben szenvedo gyermekek életminoség-értéke a legalacsonyabb. A válaszadók valószínuleg a test két oldala között lévo funkcionális különbséget érezték. A szellemi fogyatékosság a betegpopuláció több mint felénél fordult elo. Testvéreik között a mentális betegség 5,7-szer gyakoribb. A CP-s gyerekek családi környezete sokkal hátrányosabb volt, mint az egészséges gyermekeké. A kutatás eredményei alapján megállapítható, hogy a szülo alacsonyabb iskolai végzettsége és munkaeropiaci inaktivitása, valamint az egyszülos család a CP-s gyerekeknél szignifikánsan magasabb arányban fordult elo, és ezek a tényezok negatív hatást gyakoroltak az életminoségre. Következtetés: A fogyatékkal élo gyermekek életminoségét a betegség és a szociodemográfiai környezet egyaránt befolyásolja. Orv Hetil. 2021; 162(7): 269-279. INTRODUCTION: Self-reported health-related quality of life (HRQoL) of 99 children (8-18 years) with cerebral palsy (CP) was assessed and compared with 237, age-matched healthy control children from the general population. OBJECTIVE: The aim was to find out the opinions of children with CP about their health status and social condition. METHOD: Assessment of quality of life questionnaire was carried out. Measurements of disease-specific and sociodemographic variables were done. RESULTS: Children with CP and their parents rated HRQoL poorer than their counterparts. Our results show that female sex, worse gross motor function and comorbidities (epilepsy, incontinence and intellectual impairment) had negative impact. The parental opinion was suitable as proxy report because of the measured strength of the correlation. Among the types of CP, interestingly, children with unilateral spastic CP had the poorest HRQoL. They were likely to feel a functional difference between the two sides of the body. Intellectual disability occurred in more than half of our patient population. Among their siblings, mental illness is 5.7 times more common. The family environment was much more disadvantageous than in the case of healthy children. As our study shows, lower education, inactive status in the labour market and single-parent family occurred at a much higher rate and worsened the quality of life. CONCLUSION: Quality of life of children with disability was influenced by both the sociodemographic background and the disease. Orv Hetil. 2021; 162(7): 269-279.


Asunto(s)
Parálisis Cerebral/psicología , Costo de Enfermedad , Calidad de Vida/psicología , Factores Socioeconómicos , Niño , Femenino , Humanos , Masculino , Perfil de Impacto de Enfermedad , Encuestas y Cuestionarios
2.
Medicine (Baltimore) ; 100(2): e24069, 2021 Jan 15.
Artículo en Inglés | MEDLINE | ID: mdl-33466164

RESUMEN

ABSTRACT: To investigate the impact of different types of binocular integrated visual field defects on the quality of life in glaucoma.Ninety-six patients with primary glaucoma were divided into 5 groups with 25, 24, 11, 15, and 21 patients according to types of the binocular integrated visual field (BVF) defects. The criteria for BVF grouping included mild visual field defect in binocular eyes, mild visual field defect in 1 eye and moderate or advanced defect in the other, moderate and non-overlapping visual field defect in both eyes, overlapping and moderate visual field defect in binocular eyes, and severe defect in both eyes, respectively. The visual field (VF) evaluation was based on H-P-A visual field grading system. Visual acuity, visual field tests and Glaucoma Quality of Life-15 Questionnaire (GQL-15) were performed for enrolled patients, and binocular visual field results were integrated. The changes and correlations of the Visual field index values and quality of life scores were compared among the 5 groups. The main factors affecting the quality of life in glaucoma were analyzed by multiple regression analysis.The best binocular integrated visual field index (BVFI) and optimal quality of life were observed in group A. The BVFI of group B was better than that of group C or group D, but the peripheral vision glare and dark adaptation were worse. No significant difference was noted between group C and group D in terms of BVFI. However, the glare and dark adaptation in group C were better than that in group D. The BVFI was the lowest and the quality of life was the worst in group E. In all, BVFI and decibels (dB) values were negatively correlated with GQL-15 scores and positively correlated with patients' quality of life.Binocular integrated visual field accurately reflects the visual function in glaucoma. Higher binocular integrated visual field indices represent a better quality of life for patients with glaucoma. Mild to moderate synchronous or complementary binocular VF defects had a slight effect on the quality of life, while severe and non-compensated VF loss significantly impacts on quality of life in glaucoma patients.


Asunto(s)
Glaucoma/fisiopatología , Calidad de Vida/psicología , Perfil de Impacto de Enfermedad , Trastornos de la Visión/psicología , Visión Binocular , Anciano , Femenino , Glaucoma/complicaciones , Humanos , Masculino , Persona de Mediana Edad , Encuestas y Cuestionarios , Trastornos de la Visión/etiología , Agudeza Visual , Pruebas del Campo Visual , Campos Visuales
3.
Lancet Psychiatry ; 8(1): 76-86, 2021 01.
Artículo en Inglés | MEDLINE | ID: mdl-33341172

RESUMEN

A major barrier to improving care effectiveness for mental health is a lack of consensus on outcomes measurement. The International Consortium for Health Outcomes Measurement (ICHOM) has already developed a consensus-based standard set of outcomes for anxiety and depression in adults (including the Patient Health Questionnaire-9, the Generalised Anxiety Disorder 7-item Scale, and the WHO Disability Schedule). This Position Paper reports on recommendations specifically for anxiety, depression, obsessive-compulsive disorder, and post-traumatic stress disorder in children and young people aged between 6 and 24 years. An international ICHOM working group of 27 clinical, research, and lived experience experts formed a consensus through teleconferences, an exercise using an adapted Delphi technique (a method for reaching group consensus), and iterative anonymous voting, supported by sequential research inputs. A systematic scoping review identified 70 possible outcomes and 107 relevant measurement instruments. Measures were appraised for their feasibility in routine practice (ie, brevity, free availability, validation in children and young people, and language translation) and psychometric performance (ie, validity, reliability, and sensitivity to change). The final standard set recommends tracking symptoms, suicidal thoughts and behaviour, and functioning as a minimum through seven primarily patient-reported outcome measures: the Revised Children's Anxiety and Depression Scale, the Obsessive Compulsive Inventory for Children, the Children's Revised Impact of Events Scale, the Columbia Suicide Severity Rating Scale, the KIDSCREEN-10, the Children's Global Assessment Scale, and the Child Anxiety Life Interference Scale. The set's recommendations were validated through a feedback survey involving 487 participants across 45 countries. The set should be used alongside the anxiety and depression standard set for adults with clinicians selecting age-appropriate measures.


Asunto(s)
Ansiedad/diagnóstico , Depresión/diagnóstico , Trastorno Obsesivo Compulsivo/diagnóstico , Psicometría/métodos , Trastornos por Estrés Postraumático/diagnóstico , Adolescente , Niño , Consenso , Humanos , Internacionalidad , Perfil de Impacto de Enfermedad , Resultado del Tratamiento , Adulto Joven
4.
Artículo en Inglés, Portugués | LILACS, BDENF - Enfermería | ID: biblio-1146912

RESUMEN

Objetivo: analisar a real conjuntura de clientes colostomizados quanto ao conhecimento sobre importância da colostomia, as mudanças ocorridas na sua vida e as dificuldades enfrentadas frente à qualidade de vida. Método: trata-se de uma pesquisa exploratória, descritiva com abordagem qualitativa realizada no Centro Integrado de Saúde referência no estado do Piauí, com 17 clientes que utilizavam bolsa de colostomia. Os dados foram coletados nos meses de março e abril de 2015. Para a análise dos dados, utilizou-se o Discurso do Sujeito Coletivo. Resultados: as pessoas que utilizavam a bolsa de colostomia desenvolveram formas de enfrentamento, dentre essas se destacaram a reflexão, o conhecimento sobre o problema de saúde, o isolamento social e a adaptação. Conclusão: é necessário orientar e fortalecer as estratégias de enfrentamento, pois as mesmas contribuem para diminuir as complicações relacionadas às mudanças físicas e psicológicas do paciente


Objective: to analyze the real situation of colostomized clients in terms of knowledge about the importance of the colostomy, the changes that occurred in their life and the difficulties faced in the quality of life. Method: this is an exploratory, descriptive study with a qualitative approach performed at the Integrated Health Center in the state of Piauí, with 17 clients using a colostomy bag. The data were collected in the months of March and April of 2015. For the analysis of the data, the Discourse of the Collective Subject was used. Results: people who used the colostomy bag developed forms of coping, such as reflection, knowledge about the health problem, social isolation and adaptation. Conclusion: it is necessary to orient and strengthen coping strategies, since they contribute to reduce the complications related to the physical and psychological changes of the patient


Objetivo: analizar la real coyuntura de clientes colostomizados en cuanto al conocimiento sobre la importancia de la colostomía, los cambios ocurridos en su vida y las dificultades enfrentadas frente a la calidad de vida. Método: trata de una investigación exploratoria, descriptiva con abordaje cualitativo realizada en el Centro Integrado de Salud referencia en el estado de Piauí, con 17 clientes que utilizaban bolsa de colostomía. Los datos fueron recolectados en los meses de marzo y abril de 2015. Para el análisis de los datos, se utilizó el Discurso del Sujeto Colectivo. Resultados: las personas que utilizaban la bolsa de colostomía desarrollaron formas de enfrentamiento, entre ellas se destacaron la reflexión, el conocimiento sobre el problema de salud, el aislamiento social y la adaptación. Conclusión: es necesario orientar y fortalecer las estrategias de enfrentamiento, pues las mismas contribuyen a disminuir las complicaciones relacionadas con los cambios físicos y psicológicos del paciente


Asunto(s)
Humanos , Masculino , Femenino , Adulto , Persona de Mediana Edad , Adaptación Psicológica , Colostomía , Reservorios Cólicos , Calidad de Vida , Perfil de Impacto de Enfermedad
6.
Allergol. immunopatol ; 48(6): 603-611, nov.-dic. 2020. tab, graf
Artículo en Inglés | IBECS | ID: ibc-199249

RESUMEN

OBJECTIVE: To assess the Quality of Life (QoL) of children with Atopic Dermatitis (AD) and their families and the impact of the mothers' illness perceptions on the family QoL. MATERIALS AND METHODS: Seventy-five children with AD (54 infants and 21 children) and their mothers participated in the study. The following questionnaires were administrated: 1. Brief Illness Perception Questionnaire (Brief IPQ); 2. Infant's Dermatitis Quality of Life Index (IDQOL); 3. Children's Dermatology Life Quality Index (CDLQI); 4. Dermatitis Family Impact Questionnaire (DFIQ) and 5. The Severity Scoring of Atopic Dermatitis (SCORAD). RESULTS: Atopic dermatitis had a moderate impact on the QoL of the infants (6.67 ± 5.30), children (7.86 ± 7.19) and their families (9.42 ± 7.03). The DFIQ was associated with certain dimensions of the Brief IPQ, specifically, with Illness Identity (greater symptom burden) (r = 0.615, p = 0.000), beliefs about the Consequences of the illness (r = 0.542, p = 0.000), the Concerns (r = 0.421, p = 0.000) and the Emotional Representations (r= 0.510, p = 0.000). Correlation was demonstrated between IDQOL and DFIQ (r = 0.662, p = 0.000) and between CDLQI and DFIQ (r = 0.832, p = 0.000), and a weaker correlation between SCORAD and DFIQ (r = 0.255, p = 0.035). The chronicity of the AD showed negative association with DFIQ (p < 0.001). CONCLUSIONS: The QoL of families with a child with AD is associated with the mother's illness perceptions about AD, the children's QoL and with both the severity and the chronicity of the disease. Therefore, clinicians should pay attention not only to the clinical characteristics of the children, but also to the parents' beliefs and emotions, to improve the family QoL


No disponible


Asunto(s)
Humanos , Masculino , Femenino , Lactante , Preescolar , Dermatitis Atópica/psicología , Familia/psicología , Calidad de Vida/psicología , Percepción , Encuestas y Cuestionarios , Índice de Severidad de la Enfermedad , Estudios Transversales , Estadísticas no Paramétricas , Factores Socioeconómicos , Perfil de Impacto de Enfermedad
7.
Rev. med. cine ; 16(4): 289-296, dic. 2020. ilus
Artículo en Español | IBECS | ID: ibc-199494

RESUMEN

El filme dirigido por Scott Hicks narra la historia del pianista australiano David Helfgott, a partir de su niñez y juventud jalonada por notables éxitos musicales, luego truncados a raíz de una enfermedad mental, en cuya génesis subyace una infancia impregnada de conflictos familiares. Tras un prolongado período de institucionalización, David comienza a reinsertarse en sociedad, y su situación se recompone ostensiblemente al conocer a Gillian quien posteriormente se convertirá en su segunda esposa y lo ayudará a reconciliarse con su existencia como para encarar un proyecto de vida en plenitud


The film directed by Scott Hicks uncovers the story of the Australian pianist David Helfgott, from his early years and youth denoted by prominent musical achievements, further curtailed because of a mental illness preceded by a childhood full of familial conflicts. After a prolonged period of psychiatric institutionalization, David starts to reintegrate into the society. His situation clearly improves upon meeting Gillian who will later become his second wife helping him to accomplish an existential reconciliation as well as facing up to a «fullness of life» project


Asunto(s)
Humanos , Masculino , Películas Cinematográficas , Música/psicología , Psicología del Esquizofrénico , Existencialismo/psicología , Perfil de Impacto de Enfermedad
8.
Med. oral patol. oral cir. bucal (Internet) ; 25(6): e739-e744, nov. 2020. tab
Artículo en Inglés | IBECS | ID: ibc-197181

RESUMEN

BACKGROUND: The Oral Health Impact Profile-14 (OHIP-14) was designed to assess patients' perception of the impact of oral disorders on their quality of life (QoL). Although the OHIP-14 is now frequently used in patients with head and neck cancer, data related to its measurement properties in this population are scarce. The aim of the present study was to evaluate the reliability and validity of the OHIP-14 in a sample of Serbian patients with head and neck cancer. MATERIAL AND METHODS: Data were available for 345 patients (257 [74.5%] males; aged 30-92 years), with head and neck cancer. All patients completed the OHIP-14 and the European Organization for Research and Treatment of Cancer (EORTC) QLQ-C30 and QLQ-H&N35. Factor analyses, internal consistency reliability (i.e., Cronbach’s α coefficient), and construct validity were analyzed. RESULTS: The factor analyses confirmed that 14 OHIP items were measuring a single underlying factor. Cronbach's Alpha coefficient was 0.98 and corrected item-total correlations ranged 0.77-0.93. Lower OHIP-14 scores (i.e., lower impacts on oral health) were more frequently present among patients who had only surgery as a therapeutic procedure compared to those who had surgery accompanied with radio- and chemotherapy (p < 0.01). Patients with a tumor stage 0-II also had lower OHIP-14 scores compared to those who had a tumor stage III-IV (p < 0.01). The OHIP-14 correlated significantly with the QLQ-C30 and QLQ-H&N35 scales. CONCLUSIONS: As a unidimensional instrument, the OHIP-14 provides oral QoL assessments with sound internal consistency reliability and construct validity among patients with head and neck cancer


No disponible


Asunto(s)
Humanos , Masculino , Femenino , Adulto , Persona de Mediana Edad , Anciano , Anciano de 80 o más Años , Perfil de Impacto de Enfermedad , Salud Bucal , Neoplasias de Cabeza y Cuello/fisiopatología , Neoplasias de Cabeza y Cuello/psicología , Calidad de Vida , Encuestas y Cuestionarios/normas , Estudios Transversales , Análisis Factorial , Factores Socioeconómicos , Análisis de Varianza , Reproducibilidad de los Resultados , Serbia
9.
PLoS One ; 15(10): e0239210, 2020.
Artículo en Inglés | MEDLINE | ID: mdl-33017403

RESUMEN

To evaluate the impact of Birdshot-Retinochoroidopathy (BSRC) and Serpiginous Choroiditis (SC) on depression, anxiety, and vision-related quality of life. 72 individuals (BSRC: n = 28, SC: n = 8; healthy control group (HC): n = 36) completed the Patient Health Questionnaire-9 (PHQ-9), Generalized Anxiety Disorder-7 (GAD-7), and the Visual Function Questionnaire (VFQ-25). Multivariate linear regression models were used to analyze different subscales of the PHQ-9, the GAD-7 and the VFQ-25. The results showed that the mean of PHQ-9 was significantly higher while the mean of the VFQ-25 and its´ subscales were consistently lower in the disease group compared to HC. The mean of GAD-7 was not significantly lower in the disease group compared to HC. Stratification for different disease severity stages and duration of disease did not reveal any differences in sum scores of PHQ-9, GAD-7, and VFQ-25, whereas there were significant differences in some subscales of the VFQ-25. We conclude that BSRC and SC patients show higher levels of depression and a reduced visual quality of life due to imminent loss of vision. Because depression and quality of life are adversely affected by lack of social contacts and functioning, psychological treatment should enable patients to maintain their independence and ability to social interaction. Psychosomatic care should be taken in account for the treatment of BSRC and SC.


Asunto(s)
Trastornos de Ansiedad/etiología , Retinocoroidopatía en Perdigonada/patología , Depresión/etiología , Calidad de Vida , Trastornos de la Visión/psicología , Síndromes de Puntos Blancos/patología , Adulto , Anciano , Anciano de 80 o más Años , Trastornos de Ansiedad/diagnóstico , Retinocoroidopatía en Perdigonada/complicaciones , Estudios de Casos y Controles , Estudios Transversales , Depresión/diagnóstico , Femenino , Humanos , Modelos Lineales , Masculino , Persona de Mediana Edad , Índice de Severidad de la Enfermedad , Perfil de Impacto de Enfermedad , Estadísticas no Paramétricas , Trastornos de la Visión/etiología , Agudeza Visual , Síndromes de Puntos Blancos/complicaciones
10.
Niger J Clin Pract ; 23(9): 1295-1304, 2020 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-32913171

RESUMEN

Aims: The present study aimed to evaluate the incidence of LBP and related factors in over 18-year-olds. Materials and Methods: This research was a cross-sectional study involving individuals over 18 years of age with any complaints in the period from May 2015-June 2016 at different hospitals. The research data were evaluated by the SPSS 15.0 statistical package program. Descriptive statistics were presented as mean (±) standard deviation, median (min, max), frequency distribution, and percentage. Pearson's Chi-square test, Yates corrected Chi-square test, and Fisher's test were used as statistical methods. Statistical significance was accepted as P < 0.05. Results: A total of 5,989 people admitted during that period and 50% unknown frequency were taken to reach 1715 subject persons with 2% deviation and 95% confidence interval which reached 1720. The sociodemographic status, occupational conditions, the frequency of low back pain, and risk factors have been evaluated. Around 92.9% of individuals of 65 years of age and older have lifelong LPB while 57.1% have present LBP. The difference was statistically significant for "the satisfaction of working people" and "individuals working more than 41 h a week." (P < 0.001). Conclusion: Low back pain is still a serious problem that can be avoided by ensuring optimal working conditions and a healthier life.


Asunto(s)
Dolor de la Región Lumbar/diagnóstico , Dolor de la Región Lumbar/psicología , Enfermedades Profesionales/epidemiología , Exposición Profesional/efectos adversos , Calidad de Vida , Adolescente , Adulto , Distribución por Edad , Anciano , Estudios Transversales , Femenino , Humanos , Dolor de la Región Lumbar/epidemiología , Dolor de la Región Lumbar/etiología , Imagen por Resonancia Magnética/métodos , Masculino , Persona de Mediana Edad , Enfermedades Profesionales/etiología , Exposición Profesional/prevención & control , Exposición Profesional/estadística & datos numéricos , Satisfacción Personal , Prevalencia , Factores de Riesgo , Distribución por Sexo , Perfil de Impacto de Enfermedad , Factores Socioeconómicos , Turquia/epidemiología
11.
Arch. esp. urol. (Ed. impr.) ; 73(7): 582-592, sept. 2020. tab
Artículo en Español | IBECS | ID: ibc-195956

RESUMEN

OBJETIVO: Determinar la prevalencia de IU (Incontinencia Urinaria) en una unidad de hospitalización, identificar el tipo más prevalente, la severidad de los síntomas asociados y su impacto en la calidad de vida de los pacientes afectados, así como la identificación de los factores asociados a la misma. MÉTODOS: Estudio descriptivo de corte transversal, con pacientes en una unidad de hospitalización en Ferrol. Se estimó la prevalencia, el tipo de IU, la valoración de IU y el impacto de la IU en la vida diaria con los cuestionarios: IU-4 (por sexo), la herramienta de severidad ICIQ-SF y el IIQ. RESULTADOS: Participaron 302 pacientes, cuya prevalencia de IU es 41,4%; un 35% padecen IU de esfuerzo, un 27% IU de Urgencia, un 14,6% IU Mixta, un 8,8% IU Funcional y un 2,2% IU Refleja. Al 41,6% las pérdidas de orina le afecta a su salud emocional (nerviosismo, depresión, etc.). Podemos afirmar que ser mujer, es un factor de riesgo para padecer IU [p < 0,001; OR 5,0 - 95% IC (2,8-8,9)]. Por otro lado, la actividad física se objetiva como un factor protector para padecer IU (p = 0,003). CONCLUSIÓN: El impacto en la calidad de vida de la IU es alto, por lo que se debe reforzar la necesidad del manejo de la IU como una prioridad para las enfermeras, durante los ingresos hospitalarios, desde el ámbito comunitario o en situaciones de urgencias, debido a la alta prevalencia descrita


OBJECTIVE: To determine the prevalence of Urinary Incontinence (UI) in a hospitalization unit. METHODS: Descriptive cross-sectional study, with patients in a hospitalization unit in Ferrol. The prevalence, the type of UI, the UI assessment and the impact of UI on daily life were estimated with the questionnaires: IU-4 (by sex), the severity tool ICIQ-SF and the IIQ. RESULTS: 302 patients participated in the study. The prevalence of UI was 41.4%. Regarding the type of incontinence, 35% suffer stress UI, 27% urge UI, 14.6% mixed UI, 8.8% functional UI and 2.2% Reflex UI. We can affirm that being a woman is a risk factor for UI [p < 0.001; OR 5.0-95% CI (2.8-8.9)]. On the other hand, medium physical activity is objectified as a protective factor to suffer UI (p = 0.003). CONCLUSION: The impact on the quality of life of the UI is high. Establishing more real data of predictive factors may help to identify patients. Using standardized methods of study such as validated questionnaires when assessing our patients is also of interest. The need to manage UI should be reinforced as a priority for nursing professionals, not only during hospital admissions, but also at the community level or in emergencies, due to the high prevalence described


Asunto(s)
Humanos , Masculino , Femenino , Persona de Mediana Edad , Anciano , Anciano de 80 o más Años , Incontinencia Urinaria/epidemiología , Incontinencia Urinaria/fisiopatología , Calidad de Vida , Estudios Transversales , Prevalencia , Índice de Severidad de la Enfermedad , Modelos Logísticos , Encuestas y Cuestionarios , Perfil de Impacto de Enfermedad , España/epidemiología
13.
Artículo en Inglés | MEDLINE | ID: mdl-32784771

RESUMEN

Diabetes causes significant disabilities, reduced quality of life and mortality that imposes huge economic burden on societies and governments worldwide. Malaysia suffers a high diabetes burden in Asia, but the magnitude of healthcare expenditures documented to aid national health policy decision-making is limited. This systematic review aimed to document the economic burden of diabetes in Malaysia, and identify the factors associated with cost burden and the methods used to evaluate costs. Studies conducted between 2000 and 2019 were retrieved using three international databases (PubMed, Scopus, EMBASE) and one local database (MyCite), as well as manual searches. Peer reviewed research articles in English and Malay on economic evaluations of adult type 2 diabetes conducted in Malaysia were included. The review was registered with PROSPERO (CRD42020151857), reported according to PRISMA and used a quality checklist adapted for cost of illness studies. Data were extracted using a data extraction sheet that included study characteristics, total costs, different costing methods and a scoring system to assess the quality of studies reviewed. The review identified twelve eligible studies that conducted cost evaluations of type 2 diabetes in Malaysia. Variation exists in the costs and methods used in these studies. For direct costs, four studies evaluated costs related to complications and drugs, and two studies were related to outpatient and inpatient costs each. Indirect and intangible costs were estimated in one study. Four studies estimated capital and recurrent costs. The estimated total annual cost of diabetes in Malaysia was approximately USD 600 million. Age, type of hospitals or health provider, length of inpatient stay and frequency of outpatient visits were significantly associated with costs. The most frequent epidemiological approach employed was prevalence-based (n = 10), while cost analysis was the most common costing approach used. The current review offers the first documented evidence on cost estimates of diabetes in Malaysia.


Asunto(s)
Costo de Enfermedad , Diabetes Mellitus Tipo 2/economía , Costos de la Atención en Salud/estadística & datos numéricos , Gastos en Salud/estadística & datos numéricos , Adulto , Complicaciones de la Diabetes/economía , Diabetes Mellitus Tipo 2/psicología , Humanos , Malasia , Calidad de Vida , Perfil de Impacto de Enfermedad
14.
Int J Eat Disord ; 53(11): 1791-1800, 2020 11.
Artículo en Inglés | MEDLINE | ID: mdl-32841413

RESUMEN

OBJECTIVE: The COVID-19 pandemic and the resulting public restrictions pose a psychological burden for humans worldwide and may be particularly detrimental for individuals with mental disorders. Therefore, the current study explored effects of the COVID-19 pandemic on eating disorder (ED) symptoms and other psychological aspects in former inpatients with anorexia nervosa (AN). METHOD: One-hundred and fifty-nine patients with AN-discharged from inpatient treatment in 2019-completed an online survey on contact history with COVID-19, changes in ED symptoms and other psychological aspects, health care utilization, and strategies patients employed to cope during the pandemic. RESULTS: Approximately 70% of patients reported that eating, shape and weight concerns, drive for physical activity, loneliness, sadness, and inner restlessness increased during the pandemic. Access to in-person psychotherapies and visits at the general practitioner (including weight checks) decreased by 37% and 46%, respectively. Videoconference therapy was used by 26% and telephone contacts by 35% of patients. Patients experienced daily routines, day planning and enjoyable activities as the most helpful among the most used coping strategies. DISCUSSION: The COVID-19 pandemic poses great challenges to patients with AN. ED-related thoughts and behaviors may be used as dysfunctional coping mechanisms to regain control over the current circumstances. E-mental health interventions appear to be promising for supporting AN patients during these hard times. Furthermore, interventions addressing symptoms of depression and anxiety, as well as intolerance of uncertainty might help them manage their ED symptoms.


Asunto(s)
Anorexia Nerviosa/psicología , Infecciones por Coronavirus , Pandemias , Neumonía Viral , Adaptación Psicológica , Adolescente , Adulto , Anorexia Nerviosa/terapia , Ansiedad/etiología , Estudios Transversales , Depresión/etiología , Ejercicio Físico/psicología , Femenino , Alemania , Conductas Relacionadas con la Salud , Accesibilidad a los Servicios de Salud , Encuestas Epidemiológicas , Humanos , Salud Mental , Persona de Mediana Edad , Aceptación de la Atención de Salud , Índice de Severidad de la Enfermedad , Perfil de Impacto de Enfermedad , Adulto Joven
15.
Rev. Soc. Esp. Dolor ; 27(4): 252-256, jul.-ago. 2020.
Artículo en Español | IBECS | ID: ibc-196841

RESUMEN

El siglo XX ha sido testigo de excepción de los grandes avances y hallazgos en la comprensión neurofisiológica y el tratamiento multidisciplicar del dolor crónico. No obstante, el interés por la forma diferente de expresión en la percepción dolorosa entre hombres y mujeres y los determinantes psicológicos y sociales específicos asociados a los roles de género es relativamente reciente. En este artículo se realiza una revisión no sistemática de los determinantes diferenciales psicológicos y sociales siguiendo el modelo de la neuromatriz. Por último, el conocimiento de aquellos sesgos que de forma involuntaria tenemos los profesionales es crucial para abordar las desigualdades evitables en tratamiento y la recuperación de la salud de hombres y mujeres. Finalmente se ofrecen recomendaciones desde el ámbito de la Psicología Clínica


The 20th century has been an exceptional witness to the great advances and findings in the neurophysiological understanding and the multidisciplinary treatment of chronic pain. However, interest in the different form of expression in the painful perception between men and women and the specific psychological and social determinants associated with gender roles are relatively recent. In this article, an unsystematic review of the psychological and social differential determinants is carried out following the Neuromatrix model. Finally, the knowledge of those biases that we professionals have involuntarily is crucial to address the avoidable inequalities in treatment and the recovery of the health of men and women. Finally, recommendations are offered from the field of Clinical Psychology


Asunto(s)
Humanos , Dolor Crónico/epidemiología , Manejo del Dolor/métodos , Individualidad , Dimensión del Dolor/estadística & datos numéricos , Análisis de Género en Salud , Distribución por Sexo , Factores Epidemiológicos , Determinantes Sociales de la Salud , Perfil de Impacto de Enfermedad
16.
Am J Ophthalmol ; 218: 268-278, 2020 10.
Artículo en Inglés | MEDLINE | ID: mdl-32621897

RESUMEN

PURPOSE: Despite well-known ocular complications of HIV-related immune suppression, few studies have examined the prevalence and consequences of visual impairment among aging long-term survivors of HIV. DESIGN: Retrospective cohort study. METHODS: Aging HIV-infected (HIV+) men who have sex with men (MSM) and HIV-uninfected (HIV-) MSM controls reported their difficulty performing 6 vision-dependent tasks (difficulty defined as: no, a little, moderate, and extreme difficulty). Relationships were examined using logistic regression, regressing each outcome separately on categorical visual function responses, with missing data multiply imputed. RESULTS: There were 634 age-matched pairs for a total sample of 1,268 MSM of 1,700 MSM with available data. The median age was 60 years old (interquartile range [IQR], 54, 66), and 23% were African American. Among HIV+ men, 95% were virally suppressed (viral load <400 copies/mL). HIV+ men were more likely to report moderate or extreme difficulty performing at least 1 task (21% for HIV+ compared to 13% for HIV-; P < .01). Participants reporting extreme vision-related difficulty performing at least 1 task had 11.2 times the odds of frailty (95% confidence interval [CI], 5.2-23.9), 2.6 times the odds of a slow gait speed (95% CI, 1.4-4.8), and 3.2 times the odds of impaired instrumental activities of daily living (95% CI: 1.6-6.3) compared to those reporting no vision-related difficulty on any task. CONCLUSIONS: Perceived vision difficulty was more common among older HIV+ MSM than age-matched HIV- MSM controls and was associated with higher risk of depression and physical function loss among MSM.


Asunto(s)
Envejecimiento/fisiología , Infecciones por VIH/epidemiología , Sobrevivientes/estadística & datos numéricos , Trastornos de la Visión/epidemiología , Personas con Daño Visual/estadística & datos numéricos , Anciano , Estudios Transversales , VIH/genética , Infecciones por VIH/diagnóstico , Humanos , Masculino , Persona de Mediana Edad , Estudios Multicéntricos como Asunto , Prevalencia , ARN Viral/sangre , Estudios Retrospectivos , Perfil de Impacto de Enfermedad , Encuestas y Cuestionarios , Carga Viral , Trastornos de la Visión/diagnóstico
17.
J Epidemiol Community Health ; 74(9): 683-688, 2020 09.
Artículo en Inglés | MEDLINE | ID: mdl-32503892

RESUMEN

BACKGROUND: Despite media claims that coronavirus disease 2019 (COVID-19) is uniting societies and countries in shared experience, there has been concern that the pandemic is in fact exposing and widening existing inequalities within societies. Data have shown these differences for cases and fatalities, but data on other types of adversities are lacking. Therefore, this study explored the changing patterns of adversity relating to the COVID-19 pandemic by socioeconomic position (SEP) during the early weeks of lockdown in the UK. METHODS: Data were from 12 527 UK adults in the University College London COVID-19 Social Study (a panel study that involves online weekly data collection from participants during the COVID-19 pandemic). We analysed data collected from 25 March to 14 April 2020. The sample was well-stratified and weighted to population proportions of gender, age, ethnicity, education and country of living. We used Poisson and logit models to assess 10 different types of adverse experiences depending on an index of SEP over time. RESULTS: There was a clear gradient across the number of adverse events experienced each week by SEP. This was most clearly seen for adversities relating to finances (including loss of employment and cut in income) and basic needs (including access to food and medications) but less for experiences directly relating to the virus. Inequalities were maintained with no reductions in discrepancies between socioeconomic groups over time. CONCLUSIONS: There were clear inequalities in adverse experiences during the COVID-19 pandemic in the early weeks of lockdown in the UK. Results suggest that measures taken to try to reduce such adverse events did not go far enough in tackling inequality.


Asunto(s)
Infecciones por Coronavirus , Costo de Enfermedad , Renta/estadística & datos numéricos , Pandemias/economía , Neumonía Viral , Calidad de Vida/psicología , Cuarentena/economía , Factores Socioeconómicos , Adolescente , Adulto , Anciano , Anciano de 80 o más Años , Betacoronavirus , Infecciones por Coronavirus/economía , Infecciones por Coronavirus/epidemiología , Recesión Económica , Femenino , Humanos , Masculino , Persona de Mediana Edad , Pandemias/prevención & control , Neumonía Viral/economía , Neumonía Viral/epidemiología , Cuarentena/psicología , Perfil de Impacto de Enfermedad , Condiciones Sociales , Reino Unido/epidemiología , Adulto Joven
18.
Am J Ophthalmol ; 218: 173-181, 2020 10.
Artículo en Inglés | MEDLINE | ID: mdl-32511967

RESUMEN

PURPOSE: To evaluate the effect of residual amblyopia on functional vision and eye-related quality of life (ER-QOL) in children and their families using the Pediatric Eye Questionnaire (PedEyeQ). DESIGN: Prospective cross-sectional study. METHODS: Seventeen children with residual amblyopia (no current treatment except glasses), 48 visually normal controls without glasses, and 19 controls wearing glasses (aged 8-11 years) completed the Child 5-11 year PedEyeQ. One parent for each child completed the Proxy 5-11 PedEyeQ, Parent PedEyeQ. Rasch-calibrated domain scores were calculated for each questionnaire domain and compared between amblyopic children and controls. RESULTS: PedEyeQ scores were significantly lower (worse) for children with residual amblyopia than for controls without glasses across all domains: Child PedEyeQ greatest mean difference 18 points worse on Functional vision domain (95% confidence interval [CI] -29 to -7; P < .001); Proxy PedEyeQ greatest mean difference 31 points worse on Functional vision domain (95% CI -39 to -24; P < .001); Parent PedEyeQ greatest mean difference 34 points worse on the Worry about child's eye condition domain (95% CI -46 to -22; P < .001). Compared with controls wearing glasses, PedEyeQ scores were lower for residual amblyopia on the Child Frustration/worry domain (P = .03), on 4 of 5 Proxy domains (P ≤ .05), and on 3 of 4 Parent domains (P ≤ .05). CONCLUSIONS: Residual amblyopia affects functional vision and ER-QOL in children. Parents of amblyopic children also experience lower quality of life. These data help broaden our understanding of the everyday-life impact of childhood residual amblyopia.


Asunto(s)
Ambliopía/fisiopatología , Visión Ocular/fisiología , Agudeza Visual/fisiología , Ambliopía/psicología , Niño , Estudios Transversales , Femenino , Humanos , Masculino , Estudios Prospectivos , Calidad de Vida/psicología , Perfil de Impacto de Enfermedad , Encuestas y Cuestionarios
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