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1.
Artículo en Ruso | MEDLINE | ID: mdl-32119212

RESUMEN

The article considers domestic violence as a factor of derangement of social and mental health of family members. There is no open access to statistical indices of cases of domestic violence. The data of population mental health is rather conditional. There is no aggregated information on social health of citizens at all. The sociological study of families of the Belgorod region was carried out in January-March 2019. The collection of primary sociological data was done using the questionnaire survey. The respondents consisted of two groups: minors and adult family members. The study established that in children-victims of violent actions, recollections remain that negatively impact their social and mental health in the present and future. Most often there is not one type of violence but whole complex. The effect of domestic violence is deterioration not only of mental and social health of victims, but physical (psychosomatic) health too. There is co-dependency of social and mental health conditions of all family members involved into violence actions. In case of domestic violence related to the elderly and disabled ones their social and mental health is deteriorating much faster than in case of similar alterations of age-related or medical causes.


Asunto(s)
Personas con Discapacidad , Violencia Doméstica , Salud Mental , Adulto , Anciano , Niño , Personas con Discapacidad/psicología , Violencia Doméstica/psicología , Humanos , Encuestas y Cuestionarios
2.
Rev Med Suisse ; 16(681): 310-313, 2020 Feb 12.
Artículo en Francés | MEDLINE | ID: mdl-32049452

RESUMEN

For the purpose of improving the management of somatic disorders among patients suffering from severe intellectual development and autism spectrum disorders, a specific admissions mechanism has been implemented at Geneva University Hospitals (HUG). The Adult Psychiatric Hospital Unit (UPHA), a complex intervention unit, collaborates with HUG's Disability Program. From May 2018 to May 2019, 29 requests for hospitalizations were accepted. These requests primarily originated from private practice physicians (42 %). In some cases, immediate admissions were urgently organized, and in others a 13-day waiting period was imposed. Hospitalizations were adapted to the patient: more often than not, these were short (48 %), with 6 hospitalizations extended for an average 103-day period. A clinical case illustrates the healthcare management provided.


Asunto(s)
Trastorno del Espectro Autista/psicología , Trastorno del Espectro Autista/terapia , Discapacidad Intelectual/psicología , Discapacidad Intelectual/terapia , Adulto , Personas con Discapacidad/psicología , Hospitalización , Humanos , Suiza
3.
J Ment Health Policy Econ ; 22(3): 95-108, 2019 Sep 01.
Artículo en Inglés | MEDLINE | ID: mdl-31811753

RESUMEN

BACKGROUND: Psychosis onset commonly occurs at ages 16-30 when individuals are typically developing their education, employment and career trajectories. Coordinated specialty care (CSC) programs provide access to team-based early invention services for psychosis, including supported education and employment (SEE) services. AIMS OF STUDY: We examine factors associated with the use of SEE services and whether use of SEE services (for supported education, supported employment, or both) is associated with education and employment participation within New York's CSC program, OnTrackNY. METHODS: Participants (n=779) enrolled in OnTrackNY from October 2013-September 2017. Assessments were collected by clinical staff at admission, quarterly, and at discharge. Logistic regression models were specified to identify factors associated with the probability of use of SEE specialist services during the first year of program participation, using generalized estimating equations with an autoregressive covariance structure to account for within-subject correlations over time. Logistic models were also used to predict whether use of SEE services in the prior quarter predict the probability of work and school participation in the subsequent quarter, respectively; these were analyzed cross-sectionally for each time period. Models controlled for other factors associated with work/school outcomes for young people with early psychosis. RESULTS: Participants who were younger, and who had lower rates of work/school participation had greater odds of SEE service use. Use of SEE services for education support in the first quarter among clients under age 23 is significantly associated with school enrollment in the second quarter and this continued through the first year. Use of SEE services for employment support in the first quarter is significantly associated with employment in the second quarter, but significant associations for employment were not found at later periods of participation. Use of SEE services for both education and employment support was inconsistently associated with subsequent school enrollment or employment in the subsequent quarter. Results were upheld when limiting the sample to those not receiving other SEE services. DISCUSSION: Rates of school and work participation increased over the duration of OnTrackNY participation. Clients with lower work/school participation were more likely to use SEE services. Supported education services are associated with greater school participation during the first year for clients under age 23. However, this association is only significant in the first quarter for supported employment services, and is inconsistent when examining those who used both simultaneously. It is possible that we may find significant associations for employment as the program continues. It is also possible that clients may end supported employment services after obtaining employment, while those in school may require ongoing services (e.g. to renew educational accommodations). Additionally, it is possible that OnTrackNY's supported education model, designed to adhere to Individual Placenment and Support (IPS) principles, may be helping clients stay in school. However, as this is an observational study with no control condition, we cannot say that OnTrackNY, or SEE services participation, caused the observed outcomes. IMPLICATIONS FOR FURTHER RESEARCH: Future research should continue to develop the evidence base for supported education services.


Asunto(s)
Personas con Discapacidad/psicología , Intervención Médica Temprana/métodos , Educación Especial/métodos , Empleos Subvencionados/métodos , Trastornos Psicóticos/rehabilitación , Adolescente , Adulto , Servicios Comunitarios de Salud Mental , Empleos Subvencionados/estadística & datos numéricos , Hospitalización , Humanos , New York , Desarrollo de Programa , Trastornos Psicóticos/complicaciones , Trastornos Psicóticos/psicología , Trastornos Psicóticos/terapia , Adulto Joven
4.
Artículo en Inglés | MEDLINE | ID: mdl-31683536

RESUMEN

Mobile health and mobile rehabilitation (mHealth and mRehab) services and technologies have attracted considerable interest from healthcare providers, technology vendors, rehabilitation engineers, investors and policy makers in recent years. Successful adoption and use of mHealth/mRehab requires clinician support and engagement, including the ability to identify appropriate use cases and possible barriers to use for themselves and their patients, and acquire adequate knowledge and confidence using mHealth/mRehab interventions. This article reports results from a survey of rehabilitation clinicians in the United States on their attitudes, experience, expectations and concerns regarding mHealth/mRehab interventions and technologies. Over 500 clinicians in physical, occupational, speech, recreation and psychological therapy professions, among others, participated in the survey. Respondents reported that an overwhelming majority of their patients need additional therapy after discharge from inpatient environments, and over half of outpatients need additional therapy between visits. A large majority reported prescribing specific exercises and interventions for patients to work on outside of the clinic. However, only 51% reported being comfortable integrating mRehab technology into their practice; and only 23% feel knowledgeable about rehabilitation technology currently available. Technologies to support mRehab are maturing rapidly. Clinicians recognize the need for mRehab, but their knowledge and confidence prescribing mRehab represents a significant barrier to adoption.


Asunto(s)
Personas con Discapacidad/psicología , Personas con Discapacidad/rehabilitación , Conocimientos, Actitudes y Práctica en Salud , Dispositivos de Autoayuda , Telemedicina , Instituciones de Atención Ambulatoria , Humanos , Encuestas y Cuestionarios , Estados Unidos
5.
Zhonghua Shao Shang Za Zhi ; 35(11): 804-810, 2019 Nov 20.
Artículo en Chino | MEDLINE | ID: mdl-31775469

RESUMEN

Objective: To explore the development trajectories of quality of life and acceptance of disability of burn patients in the rehabilitation treatment stage and the influencing factors. Methods: Totally 207 burn patients, including 157 males and 50 females, aged (40±13) years, who were in the rehabilitation treatment stage were selected by convenient sampling method from October 2016 to July 2017 in the Department of Burns of Fujian Medical University Union Hospital for this longitudinal study. At discharge and 1, 3, and 6 months after discharge, the patient's quality of life and acceptance of disability were scored using the Burn Specific Health Scale-Brief and Chinese Version of Acceptance of Disability Scale-Revised respectively. Taking the intercept, the slope, and the curve slope as latent variables, the latent second growth curve model was constructed for the quality of life and the acceptance of disability. The robust maximum likelihood estimation (MLR) method was used to estimate the mean, the variance, and the covariance, so as to analyze the discharge level, the growth rate, the acceleration, and the correlation among them. Taking the acceptance of disability, the gender, the cause of burn, the severity of burn, the existence of complications, the payment way, and the education level as covariates, the latent second growth curve model was constructed for the quality of life. The MLR method was used to estimate the influence of covariates on the discharge level, the growth rate, and the acceleration of the quality of life. Results: At discharge and 1, 3, and 6 months after discharge, the quality of life scores of patients were (102±36), (111±36), (118±37), and (122±37) points respectively, and the acceptance of disability scores were (73±17), (75±17), (77±17), and (78±18) points respectively. The estimated mean intercept of the quality of life and the acceptance of disability were 101.680 and 72.993 respectively at discharge, both of which showed a curve increasing trend in 1, 3, and 6 months after discharge (estimated mean slope=11.024, 3.086, t=15.376, 7.476, P<0.01), and the increasing rate (acceleration) gradually slowed down (estimated mean curve slope=-1.393, -0.426, t=-13.339, -4.776, P<0.01). There were significant individual differences in the discharge level and the acceleration of quality of life of patients (estimated intercept variance=1 174.527, t=9.332; estimated curve slope variance=2.379, t=6.402; P<0.01). There were significant individual differences in the discharge level, the growth rate, and the acceleration of patients' acceptance of disability (estimated intercept variance=267.017, t=9.262; estimated slope variance=32.264, t=2.356; estimated curve slope variance=0.882, t=2.939; P<0.05 or P<0.01). There was no significant correlation among the discharge level, the growth rate, and the acceleration of the quality of life and those of the acceptance of disability of patients (estimated intercept and slope=37.273, -1.457, t=0.859, -0.131; estimated intercept and curve slope=-6.712, -0.573, t=-1.089, -0.248; estimated slope and curve slope=-5.494, -5.988, t=-0.930, -2.512; P>0.05). Among the time-constant covariates, only the severity of burn and the presence of complications had a significant impact on the quality of life of patients at discharge (estimated intercept=-10.721, 5.522, t=-6.229, 1.977, P<0.05 or P<0.01). At discharge and 1, 3, and 6 months after discharge, the level of acceptance of disability had a positive impact on the quality of life of patients (standardized regression coefficient=0.616, 0.669, 0.681, 0.678, t=18.874, 21.660, 22.824, 22.123, P<0.01). Conclusions: The initial levels of quality of life and acceptance of disability of burn patients in the rehabilitation treatment stage are relatively low, both with a curve increasing trend over time, and the increasing rate gradually slows down. Patients with complications and serious burns have poor quality of life at discharge, while the acceptance of disability has a positive impact on the quality of life.


Asunto(s)
Quemaduras/psicología , Quemaduras/rehabilitación , Calidad de Vida , Adaptación Psicológica , Adulto , Quemaduras/fisiopatología , Personas con Discapacidad/psicología , Femenino , Humanos , Estudios Longitudinales , Masculino , Persona de Mediana Edad
6.
J Surg Oncol ; 120(8): 1497-1504, 2019 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-31705571

RESUMEN

BACKGROUND AND OBJECTIVES: Few reports have investigated patient experiences following total en bloc sacrectomy. The aims of this study were to obtain a deeper understanding of patients' personal experiences, needs, and satisfaction with the treatment to reveal areas in which perioperative and long-term patient care can be improved. METHODS: A qualitative design was applied to examine patient experiences and supportive care needs. Patients treated between 2007 and 2017 were identified from our institutional database. RESULTS: A total of 28 survivors were interviewed (13 females, age 13-75 years). Eight themes were identified: the effect of surgery on patients' (a) daily lives, (b) social activities, (c) work or school activities, (d) and family lives; (e) acceptance of ostomy surgery; (f) need for guidance regarding long-term rehabilitation; (g) satisfaction with the medical services provided in the hospital; and (h) satisfaction with the treatment outcomes. CONCLUSION: Total en bloc sacrectomy can yield satisfactory oncological outcomes; however, the procedure is a life-changing event for patients and their families. Physicians must provide long-term support and guidance after surgery to enable patients to fully understand and cope with the changes in their lives.


Asunto(s)
Neoplasias Óseas/terapia , Supervivientes de Cáncer/psicología , Personas con Discapacidad/psicología , Calidad de Vida , Sacro/cirugía , Actividades Cotidianas , Adolescente , Adulto , Anciano , Femenino , Humanos , Acontecimientos que Cambian la Vida , Masculino , Persona de Mediana Edad , Estomía/psicología , Satisfacción del Paciente , Adulto Joven
7.
Wiad Lek ; 72(9 cz 1): 1633-1640, 2019.
Artículo en Polaco | MEDLINE | ID: mdl-31586975

RESUMEN

OBJECTIVE: Introduction: Autonomy is a valuable asset in the lives of societies and individuals. It means self - reliance and independence in deciding about yourself. It is the right to follow the norms of your own conscience in life. Maintaining autonomy involves with respect for personal rights. At present loneliness is a problem that concerns people regardless of their age, education, profession, financial situation or social status. Therefore it is compared to epidemics. Health state is considered to be an import ant factor in the etiology of loneliness and loneliness is designated as a determinant of human physical and mental condition. The aim: Characteristics of psychological mechanisms accompanying the experience of loneliness by people with mobility disabilities. PATIENTS AND METHODS: Material and methods: The studiem group included 80 people with physical disability. They had rehabilitation treatment In the hospital ward. In the study psychological tests were applied. RESULTS: Results: The least and the most lonely persons differ due to the personality structure. Differences between groups are also found in socio-demographic factors. CONCLUSION: Conclusions: Personality traits that facilitate autonomous behavior protect against the difficult experience of loneliness.


Asunto(s)
Personas con Discapacidad/psicología , Soledad , Autonomía Personal , Personalidad , Humanos
8.
Sante Publique ; Vol. 31(3): 417-426, 2019.
Artículo en Francés | MEDLINE | ID: mdl-31640329

RESUMEN

INTRODUCTION: The French social system offers many kinds of allowances and support (in work, everyday life and social life fields) to persons with disabilities. People with severe mental disorders are often considered as having less access than other disabled persons to the various forms of compensation offered by the national solidarity system. Purpose of research : Our objective was to study, for people with diverse kinds of mental disorders, those who are frequent users of support devoted to disability. METHODS: By proceeding to an ascending hierarchical classification from the data of the Disability and Health National survey of 2008-2009 and by studying the characteristics of these groups with regards to the available resources of the disability field we wished to clarify the determinants of recourse. RESULTS: Two groups who very frequently have both various kinds of mental disorders (including mental retardation) and physical disorders have a very high rate of using solidarity support linked to disability. A third group, whose recourse to the field of the disability system is less high without being negligible includes people with different medical and social profiles, having signs of social difficulties and physical troubles which may precede or follow their mental problems instead of belonging to a same complex pattern. CONCLUSIONS: This self-reported data survey inevitably comprises approximate data as regards to diagnoses and impairments, but no other survey brings such diversified information and it usefully highlights that people with mental disorders should not be considered has having only mental disorders as long as they use the French disability system.


Asunto(s)
Personas con Discapacidad/psicología , Trastornos Mentales/epidemiología , Programas Nacionales de Salud/estadística & datos numéricos , Francia/epidemiología , Encuestas Epidemiológicas , Humanos
9.
Rev Esp Salud Publica ; 932019 10 10.
Artículo en Español | MEDLINE | ID: mdl-31597911

RESUMEN

OBJECTIVE: Neurotic disorders are one of the main health problems of Western societies. Its impact on labor productivity grows exponentially with an increase in its incidence and the duration of temporary disability (TD) processes. To know the characteristics of the patients belonging to a mutual of work accidents who had transient disability due to neurotic disorders, their temporal and geographic distribution, their comorbidities and those variables that affected their duration. METHODS: Retrospective descriptive study of the workers protected from a mutual of work accidents, national scope, who studied a disability period between 2006-2016 with diagnoses included between codes 300 and 300.9 of the CIE-9-CM, corresponding to Neurotic Disorders. We analyze clinical-demographic variables of patients, comorbidities during studied period and distributions by year and province, by Bayesian inference. We performed a logistic regression for the dependent variable duration of the TD adjusted for age, sex, toxic consumption, consultations, year, regulatory base and payment type. RESULTS: We registered 56,619 processes in Spain, which corresponded to 1.5% of the total TD processes served in the period. The highest percentage of cases was grouped between 2007 and 2009, when 11% of the population were registered annually. The variables associated with an increase in this duration were: older age, male sex, psychiatric and psychological consultations, diagnostic year, regulatory base (whose average was 50.5 euros) and type of payment (delegate in 78.2% of cases and direct in 21.8%). The prevalence by provinces was more marked in the north and the islands (Barcelona, Lleida, Las Palmas, Islas Baleares, Coruña, Cantabria, Girona, Álava, Tarragona, Pontevedra y Asturias they have more than 6%).The durations of the disability were greater in the east of the country. The most prevalent comorbidities during the study period were low back pain (with an average of 65.1 days of IT anxiety), cervical pain (with an average of 67 days) and digestive disorders (with an average of 59.4 days). CONCLUSIONS: There are comorbidities and variables associated with the temporary disability derived from neurotic disorders, with geographical differences. Deepening their knowledge and impact could promote better preventive and therapeutic approaches that allow an earlier functional recovery.


Asunto(s)
Accidentes de Trabajo/psicología , Trastornos de Ansiedad/terapia , Personas con Discapacidad/psicología , Ausencia por Enfermedad , Adulto , Trastornos de Ansiedad/complicaciones , Trastornos de Ansiedad/epidemiología , Teorema de Bayes , Comorbilidad , Femenino , Geografía , Humanos , Incidencia , Modelos Logísticos , Dolor de la Región Lumbar/complicaciones , Masculino , Prevalencia , Estudios Retrospectivos , España/epidemiología
10.
Prof Inferm ; 72(2): 135-142, 2019.
Artículo en Inglés | MEDLINE | ID: mdl-31550430

RESUMEN

BACKGROUND: There is a limited tradition of using films in healthcare education, although it is constantly developing. Further, to understand complex concepts, such as vulnerability and resilience, is fundamental to improving nursing education. OBJECTIVE: This study aims to explore how a combined approach, using films and expert patients, could influence nursing education on the topics of vulnerability and resilience. METHODS: A qualitative descriptive study was carried out. Reflective writings of eight bache- lor's degree students during the first semester of the second year were analysed through a con- tent analysis methodology. RESULTS: Two main themes emerged: 1) To face up to vulnerability through resilience expe- riences, with three sub-themes: active behaviours to cope with disability; carrying the heavy load of vulnerability; using resilience as a new beginning; 2) Students' difficulties and perspectives on caring vulnerable people, with two sub-themes: awkwardness of facing vulnerability; and walk together to overcome disability CONCLUSIONS: The use of films, enhanced by the lived experiences of expert patients, would improve the learning in the new generation of nursing students that are actually more involved in the use of innovative learning strategies. The adoption of new ways to teach complex con- cepts to bachelor degree nursing students is pivotal to simplify theories and to establish a posi- tive connection between nursing students and educators. The education system should consider that, only through emotionally strong educational strategies, is possible to foster an endu- ring emotional knowledge in students.


Asunto(s)
Bachillerato en Enfermería/métodos , Películas Cinematográficas , Estudiantes de Enfermería/psicología , Adaptación Psicológica , Personas con Discapacidad/psicología , Femenino , Humanos , Masculino , Investigación Cualitativa , Resiliencia Psicológica , Poblaciones Vulnerables/psicología , Adulto Joven
11.
Behav Neurol ; 2019: 9216931, 2019.
Artículo en Inglés | MEDLINE | ID: mdl-31534558

RESUMEN

Aim: To assess the clinical course of disability, cognitive, and emotional impairments in patients with severe TBI (s-TBI) from 3 months to up to 7 years post trauma. Methods: A prospective cohort study of s-TBI in northern Sweden was conducted. Patients aged 18-65 years with acute Glasgow Coma Scale 3-8 were assessed with the Glasgow Outcome Scale Extended (GOSE), the Hospital Anxiety and Depression Scale (HADS), and the Barrow Neurological Institute Screen for Higher Cerebral Functions (BNIS) at 3 months, 1 year, and 7 years after the injury. Results: The scores on both GOSE and BNIS improved significantly from 3 months (GOSE mean: 4.4 ± 2.3, BNIS mean: 31.5 ± 7.0) to 1 year (GOSE mean: 5.5 ± 2.7, p = 0.003, BNIS mean: 33.2 ± 6.3, p = 0.04), but no significant improvement was found from 1 year to 7 years (GOSE mean: 4.7 ± 2.8, p = 0.13, BNIS mean: 33.5 ± 3.9, p = 0.424) after the injury. The BNIS subscale "speech/language" at 1 year was significantly associated with favourable outcomes on the GOSE at 7 years (OR = 2.115, CI: 1.004-4.456, p = 0.049). Conclusions: These findings indicate that disability and cognition seem to improve over time after s-TBI and appear to be relatively stable from 1 year to 7 years. Since cognitive function on some of the BNIS subscales was associated with outcome on the GOSE, these results indicate that both screening and follow-up of cognitive function could be of importance for the rehabilitation of persons with s-TBI.


Asunto(s)
Lesiones Traumáticas del Encéfalo/psicología , Lesiones Traumáticas del Encéfalo/rehabilitación , Lesiones Traumáticas del Encéfalo/terapia , Adulto , Lesiones Encefálicas/complicaciones , Cognición , Personas con Discapacidad/psicología , Emociones , Femenino , Estudios de Seguimiento , Escala de Coma de Glasgow , Escala de Consecuencias de Glasgow , Humanos , Estudios Longitudinales , Masculino , Persona de Mediana Edad , Estudios Prospectivos , Suecia , Factores de Tiempo , Resultado del Tratamiento
12.
Res Dev Disabil ; 94: 103477, 2019 Nov.
Artículo en Inglés | MEDLINE | ID: mdl-31494354

RESUMEN

BACKGROUND: Disability support organisations have embraced Active Support, but it has proved difficult to embed in services. AIMS: This study aimed to identify the factors associated with increases over time in the quality of Active Support. METHOD: Data were collected on the predicted variable of the quality of Active Support, and predictor variables of service user, staff and service characteristics, including practice leadership, and composition and size of services from 51 services in 8 organisations over 2-7 time points. Data were analysed using multi-level modelling. RESULTS: There was significant linear change in Active Support scores (group mean centered at the organisational level) over time. Individuals with lower support needs received better Active Support and those with higher support needs experienced greater increases over time. Stronger practice leadership and more staff with training in Active Support were significant predictors of the quality of Active Support. Larger services with seven or more individuals and where there was a very heterogeneous mix of individuals were associated with lower quality of support. CONCLUSIONS: Ensuring strong practice leadership, and staff training in Active Support that emphasises the principle of adapting support to each individual's level of ability and preferences are key to delivering high levels of Active Support.


Asunto(s)
Discapacidad Intelectual , Participación en las Decisiones/normas , Rehabilitación Psiquiátrica , Sistemas de Apoyo Psicosocial , Mejoramiento de la Calidad/organización & administración , Servicio Social , Desarrollo de Personal/normas , Compromiso Laboral , Adulto , Australia , Participación de la Comunidad/métodos , Personas con Discapacidad/psicología , Femenino , Humanos , Discapacidad Intelectual/psicología , Discapacidad Intelectual/rehabilitación , Estudios Longitudinales , Masculino , Persona de Mediana Edad , Rehabilitación Psiquiátrica/métodos , Rehabilitación Psiquiátrica/organización & administración , Rehabilitación Psiquiátrica/normas , Calidad de la Atención de Salud , Servicio Social/métodos , Servicio Social/organización & administración , Servicio Social/normas
13.
PLoS Negl Trop Dis ; 13(9): e0007710, 2019 09.
Artículo en Inglés | MEDLINE | ID: mdl-31490931

RESUMEN

BACKGROUND: Integrated disease management, disability and inclusion (DMDI) for NTDs is increasingly prioritised. There is limited evidence on the effectiveness of integrated DMDI from the perspective of affected individuals and how this varies by differing axes of inequality such as age, gender, and disability. We used narrative methods to consider how individuals' unique positions of power and privilege shaped their illness experience, to elucidate what practical and feasible steps could support integrated DMDI in Liberia and beyond. METHODS: We purposively selected 27 participants affected by the clinical manifestations of lymphatic filariasis, leprosy, Buruli Ulcer, and onchocerciasis from three counties in Liberia to take part in illness narrative interviews. Participants were selected to ensure maximum variation in age, gender and clinical manifestation. Narrative analysis was grounded within feminist intersectional theory. FINDINGS: For all participants, chronic illness, morbidity and disability associated with NTDs represented a key moment of 'biographical disruption' triggering the commencement of a restitution narrative. Complex health seeking pathways, aetiologies and medical syncretism meant that adoption of the 'sick role' was initially acceptable, but when the reality of permanency of condition was identified, a transition to periods of chaos and significant psycho-social difficulty occurred. An intersectional lens emphasises how biographical disruption is mediated by intersecting social processes. Gender, generation, and disability were all dominant axes of social inequity shaping experience. SIGNIFICANCE: This is one of the first studies to use narrative approaches to interrogate experience of chronic disabling conditions within LMICs and is the only study to apply such an analysis to NTDs. The emotive power of narrative should be utilised to influence the value base of policy makers to ensure that DMDI strategies respond holistically to the needs of the most marginalised, thus contributing to more equitable people-centred care.


Asunto(s)
Enfermedad Crónica/psicología , Enfermedades Desatendidas/psicología , Adaptación Psicológica , Adolescente , Adulto , Úlcera de Buruli/psicología , Personas con Discapacidad/psicología , Filariasis Linfática/psicología , Femenino , Humanos , Lepra/psicología , Liberia , Acontecimientos que Cambian la Vida , Masculino , Persona de Mediana Edad , Oncocercosis/psicología
14.
Artículo en Inglés | MEDLINE | ID: mdl-31487949

RESUMEN

INTRODUCTION: There is strong evidence that people with disabilities suffer from a significant digital divide. However, there are reports indicating that Internet use may result in many benefits for those with disabilities. The aim of the study was to assess the impact that the use of the Internet has on the wellbeing and health behaviours of persons with disabilities. METHODS: An analysis was carried out using the dataset obtained from Social Diagnosis, a panel study undertaken on a nationally representative sample. The records of persons with disabilities were retrieved from the dataset which was established in 2015. An analysis of the association between Internet use and the wellbeing, mental health and health behaviours of the respondents was undertaken. The variables reflecting the self-assessment of their own life and experience of loneliness were treated as being indicators of their wellbeing and the prevalence of suicidal thoughts or making use of psychological help as indicators of mental health. The health behaviours analysed in the study included smoking, excessive consumption of alcohol and undertaking physical activity. For all these variables, multivariate logistic regression models were developed. The effect of Internet use was adjusted for sociodemographic variables and the degree of disability. An analysis was performed after applying post-stratification weights available from the Social Diagnosis study. RESULTS: The weighted study group consisted of 2529 people having a mean age of 59.33 ± 16.89 years. The group included 20.71% (N = 524) respondents with a mild, 41.58% (N = 1052) with a moderate, and 26.54% (N = 671) with a severe disability. The proportion of Internet users was 37.07% (N = 937). In all the regression models, Internet use had a significant impact on the dependent variables. After adjustment for sociodemographic variables and the degree of disability, the Internet users more frequently assessed their lives as happy (odds ratio, 95% confidence interval: 1.86, 1.47-2.37) and less frequently experienced loneliness (0.63, 0.49-0.81) or suicidal thoughts (0.47, 0.35-0.65). In addition, they needed psychological help less frequently (0.50, 0.35-0.72). Interestingly, Internet users undertook some form of physical activity or sport more often (2.41, 1.87-3.13) and fewer smoked cigarettes (0.70, 0.54-0.91) or consumed alcohol excessively (0.32, 0.19-0.56). CONCLUSIONS: The use of the Internet by people with disabilities was associated with improved wellbeing, better mental health and more beneficial health behaviours. These findings support the development of intensive actions to reduce the digital divide for the population of people with disabilities.


Asunto(s)
Personas con Discapacidad/psicología , Conductas Relacionadas con la Salud , Internet , Salud Mental , Adulto , Anciano , Consumo de Bebidas Alcohólicas , Ejercicio , Femenino , Humanos , Soledad , Masculino , Persona de Mediana Edad , Oportunidad Relativa , Ideación Suicida
15.
Br J Nurs ; 28(17): 1130-1134, 2019 Sep 26.
Artículo en Inglés | MEDLINE | ID: mdl-31556734

RESUMEN

BACKGROUND: student nurses who attend preregistration nursing programmes in the UK are assessed on their academic work and their performance in clinical placement. Some of them require reasonable adjustments to be made in order to support their learning. Although there is national guidance on making reasonable adjustments for academic work, information on this associated with clinical placement is limited. The nursing literature reports varying levels of success in facilitating reasonable adjustments in clinical placement. AIM: to explore the experiences of student nurses who require reasonable adjustments and their link lecturers associated with the facilitation of this support in clinical placement. METHOD: a descriptive phenomenological methodology was adopted. Data were collected using semistructured interviews with seven student nurses and three link lecturers from three fields of nursing (adult, child and mental health). Audiorecorded interview data were transcribed, coded and thematically analysed. Phenomena were identified and discussed, viewed through relevant educational theoretical lenses and in conjunction with nursing research literature. FINDINGS: three main themes emerged: defining reasonable adjustments, supporting students, and being professional. CONCLUSION: all study participants could define reasonable adjustments and described a variety of experiences of these being facilitated in clinical placement. The process could be complex and depended on many factors that could promote or hinder the provision of support.


Asunto(s)
Personas con Discapacidad/psicología , Bachillerato en Enfermería/organización & administración , Docentes de Enfermería/psicología , Estudiantes de Enfermería/psicología , Evaluación Educacional , Humanos , Relaciones Interprofesionales , Aprendizaje , Investigación en Educación de Enfermería , Investigación en Evaluación de Enfermería , Investigación Cualitativa , Reino Unido
16.
Artículo en Inglés | MEDLINE | ID: mdl-31510071

RESUMEN

Migraine headache is the cause of an estimated 250,000,000 lost days from work or school every year and is often associated with decreased work productivity. The aim of this cross-sectional study was to assess the relationship between perceived disability, job satisfaction and work productivity in patients affected by chronic migraineurs. Participants were 98 consecutive adult outpatients admitted to the Regional Referral Headache Centre of the Sant'Andrea Hospital in Rome, Italy. Patients were administered the Italian Perceived Disability Scale, The Quality of Life Enjoyment and Satisfaction Questionnaire-Work Subscale and The Endicott Work Productivity Scale. Perceived disability is significantly associated with job satisfaction and work productivity. Job satisfaction is significantly related to work productivity and mediates the association between perceived disability and work productivity in patients affected by chronic migraineurs. Our results confirm that patients suffering from migraine headaches who have negative perceptions of their disability are less satisfied with their job, which in turn, decreases their work productivity.


Asunto(s)
Personas con Discapacidad/psicología , Eficiencia , Satisfacción en el Trabajo , Trastornos Migrañosos/psicología , Adulto , Estudios Transversales , Evaluación de la Discapacidad , Femenino , Humanos , Masculino , Persona de Mediana Edad , Satisfacción Personal , Calidad de Vida , Roma
17.
Psico USF ; 24(3): 463-474, jul.-set. 2019. tab, il
Artículo en Inglés | LILACS | ID: biblio-1040773

RESUMEN

This study evaluated indicators of needs and processes in a social skills program for unemployed people with physical disabilities. The needs assessment - measured via self-reporting instruments - indicated the importance of preparing participants for job interviews and improving some social skills related to work, which would serve as a basis for the definition of the program's objectives. The skills developed in the program were as follows: civility, feedback, communication, empathy, offering help, citizenship, assertiveness, dealing with criticism, problem solving, job interview performance, and expressing positive feelings. For the process evaluation, the program's sessions were filmed and analyzed using indicators such as task performance. This study showed the importance of planning a program that considers the characteristics of the participants and of continuously monitoring its application to ensure the suitability of the intervention and the achievement of its objectives. (AU)


Este estudo avaliou indicadores de necessidades e de processo em um programa de habilidades sociais para pessoas com deficiência física, desempregadas. A avaliação de necessidades, mensurada por meio de instrumentos de autorrelato, indicou a importância de preparar os participantes para entrevistas de emprego e de aprimorar algumas habilidades sociais relacionadas ao trabalho, servindo como base para a definição dos objetivos do programa. As habilidades desenvolvidas no programa foram: civilidade, feedback, comunicação, empatia, oferecer ajuda, cidadania, assertividade, lidar com críticas, resolução de problemas, desempenho em entrevista de emprego e expressão de sentimento positivo. Para a avaliação de processo, as sessões do programa foram filmadas e analisadas por meio de um registro que continha indicadores como desempenhos nas tarefas. Este estudo mostrou a importância de planejar um programa considerando as características dos participantes e monitorar continuamente sua aplicação para garantir a adequação da intervenção e o alcance de seus objetivos. (AU)


El presente estudio evaluó indicadores de necesidades y proceso en un programa de habilidades sociales para personas con discapacidad física y desempleadas. La evaluación de necesidades, medida por instrumentos de autoinforme, señaló la importancia de preparar los participantes para entrevistas de empleo y mejorar algunas habilidades sociales relacionadas con el trabajo, sirviendo como base para la definición de los objetivos del programa. Las habilidades desarrolladas en el programa fueron: civilidad, feedback, comunicación, empatía, ofrecer ayuda, ciudadanía, asertividad, lidiar con críticas, solución de problemas, desempeño en entrevistas de empleo y expresión de sentimiento positivo. Para evaluación de proceso, las sesiones del programa fueron filmadas y analizadas mediante un registro que contenía indicadores como el desempeño en las tareas. Este estudio mostró la importancia de planear un programa considerando las características de los participantes y controlando su aplicación para garantizar la adecuación de la intervención y el alcance de sus objetivos. (AU)


Asunto(s)
Humanos , Femenino , Adulto , Personas con Discapacidad/psicología , Empleo/psicología , Habilidades Sociales , Autoinforme
18.
Artículo en Inglés | MEDLINE | ID: mdl-31370296

RESUMEN

Purpose: This study aimed to analyze the differences in physical activity, mental health, and quality of life between the elderly without activity-limiting disabilities and in elderly with activity-limiting disabilities, stratified by medical category. Methods: A total of 1504 elders aged 65-80 who responded to the 2016 Korea National Health and Nutrition Examination Survey were the participants in this study. They were divided into two groups, 303 elders with disabilities who responded to the survey saying they have active limiting disabilities, and 1201 elders without disabilities. The questionnaire reflected the criteria of a survey developed by the American College of Sports Medicine (ACSM) to measure the physical activity of elders. Patient Health Questionnaire-9 (PHQ-9) and EuroQol-5 Dimension (EQ-5D) were used to measure participants' mental health and quality of life, respectively. Analysis of covariance (ANCOVA) adjusted for age, sex, marital status, notional basic livelihood, recipient status, and personal income was conducted for data analysis after the normal distribution was confirmed. Results: Significant differences between elders with disabilities and those without disabilities were seen in terms of physical activity levels (p < 0.01), stress, and depression (p < 0.001), and in all five domains measuring the quality of life (p < 0.05). The ANCOVA revealed significant differences in motor ability (p < 0.01) and pain/discomfort (p < 0.05) relating to the quality of life among the elders with activity-limiting disability depending on the medical category. Conclusions: The results could provide basic data regarding the degree of physical activity, mental health, and quality of life according to activity-limitation disability status and medical category. From the findings, elders with disabilities are clearly more exposed to risk in the areas of physical activity, mental health, and quality of life. Differences in quality of life among elderly with disabilities were also seen based on medical category. Our findings suggest that research into elders with disabilities should consider the implications of these results.


Asunto(s)
Personas con Discapacidad/psicología , Ejercicio/psicología , Salud Mental , Calidad de Vida/psicología , Anciano , Anciano de 80 o más Años , Estudios de Casos y Controles , Estudios Transversales , Depresión/etiología , Femenino , Estado de Salud , Encuestas Epidemiológicas , Humanos , Masculino , República de Corea
19.
Health Qual Life Outcomes ; 17(1): 135, 2019 Aug 02.
Artículo en Inglés | MEDLINE | ID: mdl-31375110

RESUMEN

BACKGROUND: Quality of life (QoL) and health-related quality of life (HRQoL) measurement in low and middle-income countries of people with cerebral palsy (CP), the major cause of childhood physical disability, is essential to assess the impact of interventions and inform policies that best improve people's lives. The purpose of this study was to cross-culturally translate and psychometrically validate the Cerebral Palsy Quality of Life-Teens (CPQoL-Teens) self- and proxy-report questionnaires for application with adolescents with CP in Bangladesh. METHOD: The CPQoL-Teens questionnaires were translated to Bengali using forward and backwards cross-cultural translation protocols. The questionnaires were interviewer administered to adolescents and their primary caregivers, identified through the Bangladesh Cerebral Palsy Register. Feasibility, sensitivity, internal consistency, content, concurrent and construct validity were assessed. RESULTS: One hundred fifty four adolescents with CP (10 to 18y; mean 15y 1mo SD 1y 8mo; 31.2% female) participated. Feasibility, sensitivity and internal consistency of both self- and proxy-report questionnaires was excellent; nil missing scores except 'school wellbeing' which was associated with non-school attendance (48.4 to 74.7%); floor and ceiling effect ≤13.6%; Cronbach's alpha 0.77 to 0.94. Instrument validity was good; confirmatory factor analysis reflected five of the seven original instrument dimensions. CPQoL-Teens correlated to Kidscreen-27 on most dimensions (r = 0.176 to 0.693, p < 0.05); minimal difference in known groups was observed by mental health status (p < 0.05) although could be accounted for by homogeneity of mental health problems in the sample. CONCLUSION: The CPQoL-Teens self- and proxy report questionnaires successfully translated to Bengali and showed excellent feasibility and strong psychometric properties confirming suitability to assess indicators of HRQoL among adolescents with CP in Bangladesh.


Asunto(s)
Parálisis Cerebral/psicología , Calidad de Vida , Encuestas y Cuestionarios/normas , Adolescente , Bangladesh , Cuidadores/psicología , Niño , Personas con Discapacidad/psicología , Análisis Factorial , Femenino , Humanos , Masculino , Reproducibilidad de los Resultados , Traducciones
20.
Afr J Reprod Health ; 23(2): 101-109, 2019 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-31433598

RESUMEN

Attention to the sexual reproductive health needs of persons with disabilities is important to ensure the protection and promotion of their human rights, to move forward the international development agenda, and to build a truly inclusive society. The objective of this study was to assess modern contraceptive use and associated factors among women with disabilities in Gondar city, Ethiopia. A community-based cross- sectional study was employed, from 25 June to 05 August 2013. All 280 reproductive age women with disabilities who were found in the town during study period were included. Data were coded, entered and cleaned using EPI INFO statistical software version 3.5.2, and analysed by Software Statistical Packages for Social Sciences version 16. About 18% of participants had ever used modern contraceptive and the contraceptive prevalence rate among study participants and currently married women were 13.1% and 20.2% respectively. One fourth of respondents believed that existing family planning service delivery points were not accessible. The proportion of modern contraceptive use among participants was low. Age, marital status, education, income, and type of disability were significant predictors of modern contraceptive use. Therefore, social behavioural change communication interventions should be designed to improve the awareness of people living with disabilities on modern contraceptives based on the needs and type of disabilities.


Asunto(s)
Conducta Anticonceptiva/estadística & datos numéricos , Personas con Discapacidad/psicología , Personas con Discapacidad/estadística & datos numéricos , Servicios de Planificación Familiar/estadística & datos numéricos , Conocimientos, Actitudes y Práctica en Salud , Accesibilidad a los Servicios de Salud , Servicios de Salud Reproductiva/estadística & datos numéricos , Conducta Sexual/etnología , Adolescente , Adulto , Actitud del Personal de Salud , Anticonceptivos Femeninos/uso terapéutico , Dispositivos Anticonceptivos , Etiopía/epidemiología , Femenino , Educación en Salud/estadística & datos numéricos , Humanos , Salud Reproductiva , Factores Socioeconómicos , Encuestas y Cuestionarios , Adulto Joven
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