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1.
Psicol. conduct ; 25(1): 99-109, ene.-abr. 2020. mapas, tab, ilus
Artículo en Inglés | IBECS | ID: ibc-162156

RESUMEN

Youth social withdrawal has raised clinical concerns, and prevention of withdrawal behavior is important yet difficult. While human evaluation of withdrawal behavior can be subjective, technology provides objective measurement for withdrawal behavior. This study aims to examine the association between withdrawal behaviors (home-stay and non-communication) and mental health status (stress, depression and loneliness). The open-access StudentLife dataset, including the location and conversation information derived from the sensor data, stress levels, and pre- and post-questionnaires of depression (PHQ-9) and loneliness (RULS) of 47 college students over 10 weeks was used. Multilevel modeling and functional regression were employed for data analysis. Daily duration of home-stay was negatively associated with daily stress levels, and the interaction effect of daily duration of home-stay and non-communication were positively associated with daily stress levels and changes in PHQ-9 and RULS scores. Smartphone data is useful to provide adjunct information to the professional clinical judgement and early detection on withdrawal behavior


El aislamiento social de los jóvenes ha generado preocupaciones clínicas y prevenir estos comportamientos es importante pero difícil. Aunque la evaluación del aislamiento puede ser subjetiva, la tecnología proporciona medidas objetivas de este comportamiento. El objetivo de este estudio es examinar la asociación entre los comportamientos de aislamiento (permanecer en casa y no comunicarse) y el estado de la salud mental (estrés, depresión y soledad). Se utilizó la base de datos de libre acceso StudentLife, incluyendo información sobre la ubicación y la conversación registrada por un sensor de datos, los niveles de estrés y medidas de autoinforme pre y pos sobre depresión (PHQ-9) y soledad (RULS) de 47 estudiantes universitarios durante 10 semanas. Para el análisis de datos se utilizaron modelos multinivel y la regresión funcional. La duración diaria de la permanencia en casa estaba negativamente asociada con los niveles diarios de estrés y el efecto de interacción de la duración diaria de la permanencia en casa y la falta de comunicación estaban positivamente relacionados con los niveles diarios de estrés y los cambios en las puntuaciones en PHQ-9 y RULS. Los datos del teléfono inteligente son útiles para obtener información complementaria al juicio clínico profesional y para la detección temprana de los comportamientos de aislamiento


Asunto(s)
Humanos , Aislamiento Social/psicología , Soledad/psicología , Depresión/psicología , Psicometría/instrumentación , Estrés Psicológico/psicología , Diagnóstico Precoz , Medios de Comunicación Sociales , Factores de Riesgo , Tecnología de la Información , Comunicación
2.
Medicine (Baltimore) ; 99(9): e19294, 2020 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-32118742

RESUMEN

The aim of the present study was to reveal the physical symptom changes and their correlations with mental health status in deep underground miners.A total of 286 deep underground miners completed a cross-sectional questionnaire study at China Pingmei Shenma mine complex. The questionnaire included sociodemographics, self-reported physical symptoms, underground adverse environmental factors, and the Symptom Checklist-90-Revised (SCL-90-R). Five environmental parameters of 1 deep mine were also measured.Data from 266 valid questionnaires were analyzed. The 3 most frequent complaints about underground adverse conditions were moisture [62.03% (165/266)], dim light [45.86% (122/266)], and high temperature [42.11% (112/266)]. Fatigue [40.22% (107/266)], hearing loss [34.96% (93/266)], and tinnitus [31.58% (84/266)] were reported to be the three most common physical symptoms. Insomnia was reported in 204 participants (76.69%) mainly due to the difficulty of falling asleep [42.35% (84/204)] and dreams [39.70% (81/204)]. Mean scores of SCL-90-R subscales including somatization, anxiety, phobic anxiety, psychoticism, and paranoid ideation were elevated compared to Chinese norms, while there was diminished interpersonal sensitivity. Univariate analyses indicated that the 3 most common physical symptoms were associated with poorer SCL-90-R scores. With increasing depth below ground, air pressure, relative humidity, CO2 concentration and temperature rose, while total gamma radiation dose-rate decreased.The physical and mental health status of deep underground miners was poorer than the general Chinese male population. Some adverse environmental factors were identified that may have influenced health status. Measures are suggested to improve the deep underground working environment.


Asunto(s)
Salud Mental/normas , Síndrome , Lugar de Trabajo/psicología , Adulto , China , Correlación de Datos , Estudios Transversales , Humanos , Masculino , Salud Mental/estadística & datos numéricos , Persona de Mediana Edad , Mineros , Psicometría/instrumentación , Psicometría/métodos , Encuestas y Cuestionarios , Factores de Tiempo , Lugar de Trabajo/normas
3.
Medicine (Baltimore) ; 99(9): e19302, 2020 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-32118748

RESUMEN

Perioperative anxiety could negatively affect surgery outcomes, and cardiac diseases have long been known to be an independent risk factor for anxiety development. However, little is known about preoperative anxiety in Nepalese adult cardiac patients waiting for surgery. The primary objectives of this study were to: (1) clarify the levels of preoperative anxiety in Nepalese adult cardiac patients waiting for open heart surgery; (2) identify factors associated with preoperative anxiety; and (3) evaluate any possible factors associated with patients' desire to obtain information related to their heart surgery.This is a prospective observational study for patients already scheduled for cardiac surgery at a core medical institution in Kathmandu, Nepal. We collected sociodemographic and clinical characteristics of the patients from their medical charts, and assessed their preoperative anxiety using the Amsterdam Preoperative Anxiety and Information Scale. We performed descriptive analyses of the collected data. Further, we employed regression models to assess to the objectives of the study.In total, 140 patients participated, and data of 123 (87.9%) were used for analysis. 58.5% of the participants had preoperative anxiety. Female gender (OR 0.31, 95% CI 0.15-0.65, P < .001) and past anesthesia exposure (OR 2.38, 95% CI 1.01-5.62, P < .05) were identified as risk factors for developing anxiety before cardiac surgery. Further, female gender (IRR 0.80, 95% CI 0.67-0.94, P < .001), higher education levels (IRR 1.18, 95% CI 1.01-1.40, P < .05), and higher preoperative anxiety (IRR 1.44, 95% CI 1.21-1.73, P < .001) could lead to higher levels of desire to acquire information related to the procedure.The study concluded that more than a half of the cardiac surgery patients experiences preoperative anxiety; female gender and having past anesthesia exposure are the risk factors. Anxious patients have more desire to acquire knowledge about the procedure. Thus, the evaluation and adequate management of preoperative anxiety should be proposed in high-risk groups.


Asunto(s)
Ansiedad/diagnóstico , Procedimientos Quirúrgicos Cardíacos/psicología , Adulto , Ansiedad/clasificación , Ansiedad/psicología , Procedimientos Quirúrgicos Cardíacos/métodos , Procedimientos Quirúrgicos Cardíacos/estadística & datos numéricos , Femenino , Humanos , Masculino , Persona de Mediana Edad , Nepal , Estudios Prospectivos , Psicometría/instrumentación , Psicometría/métodos , Factores de Riesgo , Encuestas y Cuestionarios
4.
Health Qual Life Outcomes ; 18(1): 2, 2020 Jan 02.
Artículo en Inglés | MEDLINE | ID: mdl-31898541

RESUMEN

OBJECTIVES: To develop separate item banks for three health domains of health-related quality of life (HRQOL) ranked as important by Singaporeans - physical functioning, social relationships, and positive mindset. METHODS: We adapted the Patient Reported Outcomes Measurement Information System Qualitative Item Review protocol, with input and endorsement from laymen and experts from various relevant fields. Items were generated from 3 sources: 1) thematic analysis of focus groups and in-depth interviews for framework (n = 134 participants) and item(n = 52 participants) development, 2) instruments identified from a literature search (PubMed) of studies that developed or validated a HRQOL instrument among adults in Singapore, 3) a priori identified instruments of particular relevance. Items from these three sources were "binned" and "winnowed" by two independent reviewers, blinded to the source of the items, who harmonized their selections to generate a list of candidate items (each item representing a subdomain). Panels with lay and expert representation, convened separately for each domain, reviewed the face and content validity of these candidate items and provided inputs for item revision. The revised items were further refined in cognitive interviews. RESULTS: Items from our qualitative studies (51 physical functioning, 44 social relationships, and 38 positive mindset), the literature review (36 instruments from 161 citations), and three a priori identified instruments, underwent binning, winnowing, expert panel review, and cognitive interview. This resulted in 160 candidate items (61 physical functioning, 51 social relationships, and 48 positive mindset). CONCLUSIONS: We developed item banks for three important health domains in Singapore using inputs from potential end-users and the published literature. The next steps are to calibrate the item banks, develop computerized adaptive tests (CATs) using the calibrated items, and evaluate the validity of test scores when these item banks are administered adaptively.


Asunto(s)
Calidad de Vida , Encuestas y Cuestionarios/normas , Adulto , Femenino , Grupos Focales , Humanos , Masculino , Persona de Mediana Edad , Medición de Resultados Informados por el Paciente , Psicometría/instrumentación , Investigación Cualitativa , Singapur
5.
J Clin Nurs ; 29(1-2): 107-118, 2020 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-31531995

RESUMEN

AIMS AND OBJECTIVES: To develop and evaluate the psychometric properties of a self-report instrument measuring 6- to 12-year-old children's own experiences of participation in health care. BACKGROUND: Validated measures to evaluate children's participation in health care can play a critical role in strategic work towards supporting children's participation at an individual level and in working towards quality improvements at an organisational level. There are, however, no available instruments to achieve this. METHODS: An instrument development design was used, together with the TRIPOD checklist. Item construction was based on research about children's perspectives on participation in health care and Shier's model for participation. The face and content validity was evaluated by 14 healthy children, 9 paediatric nurses and 8 children with different diseases. The construct validity, internal consistency and stability reliability were evaluated based on data from 138 children visiting a paediatric clinic. RESULTS: The testing of the face and content validity resulted in an instrument with child-friendly language, additional instructions and visual attractive presentation. The principle component analysis resulted in the four-factor solution: "To be included," "To trust professionals," "To take control," and "To understand information." Internal consistency and intraclass correlation coefficients were acceptable. CONCLUSION: We conclude that the child participation in health care (ChiPaC) instrument has adequate reliability and validity when used to evaluate children's participation in health care. The involvement of children in the development of ChiPaC resulted in a brief, colourful and user-friendly instrument for use in paediatric health care. RELEVANCE TO CLINICAL PRACTICE: This new questionnaire, ChiPaC, is adapted for children between 6-12 years measuring participation in health care from a child perspective. ChiPaC can be used in the practical work of supporting individual children's participation in health care as well as in the strategical work towards quality improvements on an organisational level.


Asunto(s)
Participación del Paciente , Autoinforme/normas , Adolescente , Niño , Femenino , Humanos , Masculino , Enfermería Pediátrica/métodos , Psicometría/instrumentación , Reproducibilidad de los Resultados , Encuestas y Cuestionarios
6.
BMC Neurol ; 19(1): 334, 2019 Dec 21.
Artículo en Inglés | MEDLINE | ID: mdl-31864300

RESUMEN

BACKGROUND: The narcolepsy severity scale (NSS) was developed to measure the severity and consequences of symptoms in patients with narcolepsy. The scale has been validated in France, though no other studies have further validated this instrument. The current study aimed to present psychometric properties and describe the score distribution of the Chinese-NSS. METHODS: One hundred twenty-two patients with narcolepsy (41 females and 81 males; mean age 26.14 ± 15.40 years) participated in the study. All patients completed the Chinese-NSS. Cronbach's α, item-total score correlations, exploratory factor analysis (EFA), and correlations between NSS total scores and clinical or sleep parameters were then calculated. RESULTS: EFA yielded a three-factor model. Internal consistency was acceptable (Cronbach'sα = 0.799). The NSS total score had significant correlations with the Epworth sleepiness score (0.447), pediatric daytime sleepiness scale (0.318), the insomnia severity index (0.592), Beck depression inventory (0.593), EurQol five dimensions-utility (0.457), EurQol five dimensions -VAS (- 0.323), the sleep disturbance scale for children (0.440), the children depression inventory (0.553), and the pediatric quality of life inventory (0.555) total scores, demonstrating acceptable convergence as predicted. CONCLUSIONS: The current study is the first validation study of the narcolepsy severity scale in an Asian population. The findings validated the Chinese-narcolepsy severity scale in a Chinese population with acceptable psychometric properties. There are minor differences between our results and those of the original study due to cultural differences.


Asunto(s)
Lenguaje , Narcolepsia , Psicometría/instrumentación , Índice de Severidad de la Enfermedad , Traducción , Adulto , Grupo de Ascendencia Continental Asiática , Análisis Factorial , Femenino , Humanos , Masculino , Persona de Mediana Edad , Reproducibilidad de los Resultados , Encuestas y Cuestionarios , Adulto Joven
7.
Occup Ther Int ; 2019: 8796042, 2019.
Artículo en Inglés | MEDLINE | ID: mdl-31866802

RESUMEN

Background: Some children may encounter difficulties in processing sensory stimuli, which may affect their ability to participate in activities of daily living. Self-regulation abilities may also affect children on how to process different sensory experiences. The Sensory Processing and Self-Regulation Checklist (SPSRC) was developed as a single, parent-reported instrument for the examination of sensory processing and self-regulation difficulties in children. Aims: This study is aimed at evaluating the psychometric properties of the SPSRC and examine the patterns of self-regulation and sensory processing in children with and without autism spectrum disorder (ASD). Methods and Procedures: The contents of the SPSRC were validated by a group of experts, and a field test was subsequently conducted to examine the reliability and validity of this instrument in a sample of 997 typically developing children and 78 children with ASD. Outcomes and Results: The results of the validation and field test analyses suggest that the SPSRC exhibits high internal consistency, good intrarater reliability, and a valid ability to measure and discriminate sensory processing and self-regulation in children aged 3-8 years with and without ASD. Conclusions and Implications: The current results supported the reliability and validity of SPSRC to assess a child's sensory processing and self-regulation performance in activities of daily living. The study findings warrant further investigation to compare the performance of the SPSRC with laboratory-based tests, as this would better elucidate sensory responsivity in children with sensory modulation disorders from both clinical and research perspectives.


Asunto(s)
Trastorno del Espectro Autista/diagnóstico , Lista de Verificación , Psicometría/instrumentación , Trastornos de la Sensación/diagnóstico , Actividades Cotidianas , Estudios de Casos y Controles , Niño , Preescolar , Femenino , Humanos , Masculino , Reproducibilidad de los Resultados
8.
Allergol. immunopatol ; 47(6): 558-563, nov.-dic. 2019. graf, tab
Artículo en Inglés | IBECS | ID: ibc-186548

RESUMEN

Introduction and objectives: Food allergy in school children ranges between 5.7 and 6.4% in Turkey. Studies emphasize the importance of improving school personnel's self-efficacy in managing food allergy and anaphylaxis. However, a brief and valid measurement tool for school personnel is not available in Turkey. The aim of this study was to determine the validity and reliability of the Turkish version of the School Personnel's Self-efficacy in Managing Food Allergy and Anaphylaxis (SPSMFAA-T) scale with teachers. Patients or materials and methods: This methodological study was conducted by 282 primary school teachers. Data were collected with a demographic characteristics form and SPSMFAA-T. The psychometric properties of the SPSMFAA-T were evaluated by content, discriminant, construct validity and internal consistency. Results: Cronbach's alpha for the scale was 0.91 and item-total correlations were between 0.50 and 0.82 (p < 0.001). The discriminant validity suggested that the scale successfully discriminated the teachers who had training on food allergy and anaphylaxis from the teachers who did not. The model fit indices of scale were determined to be the root mean square error of approximation (RMSEA) at 0.08, goodness of fit index (GFI) at 0.96, comparative fit index (CFI) at 0.99. Conclusions: The results supported that the SPSMFAA-T was a valid and reliable measurement tool to assess Turkish teachers’ self-efficacy levels to manage food allergy and anaphylaxis in school setting. The scale can be used in education programs to improve school personnel's skills to manage food allergy and anaphylaxis


No disponible


Asunto(s)
Humanos , Femenino , Adulto , Persona de Mediana Edad , Autoeficacia , Hipersensibilidad a los Alimentos/diagnóstico , Anafilaxia/terapia , Psicometría/métodos , Docentes/estadística & datos numéricos , Hipersensibilidad a los Alimentos/terapia , Psicometría/instrumentación , Turquia , Análisis Factorial , Análisis de Regresión
9.
Ophthalmic Epidemiol ; 26(6): 448-458, 2019 12.
Artículo en Inglés | MEDLINE | ID: mdl-31615298

RESUMEN

Purpose: We are developing item banks assessing the impact of retinal and vitreoretinal diseases (excluding age-related macular degeneration, diabetic retinopathy, and retinal detachment, covered elsewhere) on quality of life (QoL) for adults. This study outlines the first two phases of the multi-stage process: content development and item evaluation.Methods: We grouped retinal and vitreoretinal diseases into hereditary and acquired. Development of the item banks involved two phases: item identification and item evaluation. The items were extracted from three sources: (1) 17 pre-existing PRO instruments, (2) 4 qualitative studies and (3) 79 semi-structured interviews. Item evaluation involved three stages namely, binning (grouping) and winnowing (reduction), expert panel opinion and cognitive interviews.Results: The item identification phase yielded 1,217 items. After three sessions of binning and winnowing, items were reduced to a minimally representative set (n = 411) across nine QoL domains namely, activity limitation, emotional, social, health concerns, symptoms, economic, mobility, convenience, and coping. The hereditary group had a total of 345 items and the acquired group had a total of 257 items. After 23 cognitive interviews items were amended for hereditary diseases resulting in a final set of 345 items and 3 items were amended for acquired diseases, resulting in a final set of 254 items. Overall across nine domains 189 items were common to hereditary and acquired retinal and vitreoretinal diseases.Conclusion: As most of the items were unique to hereditary versus acquired retinal and vitreoretinal disease groups separate item banks are required to capture the QoL impacts for hereditary and acquired retinal and vitreoretinal diseases.


Asunto(s)
Psicometría/instrumentación , Calidad de Vida , Enfermedades de la Retina/psicología , Adaptación Psicológica , Adulto , Anciano , Retinopatía Diabética/psicología , Femenino , Humanos , Masculino , Persona de Mediana Edad
10.
Cyberpsychol Behav Soc Netw ; 22(11): 714-723, 2019 Nov.
Artículo en Inglés | MEDLINE | ID: mdl-31621411

RESUMEN

Nearly all children and teens in Hong Kong own a smartphone. There is currently no validated instrument that measures whether they use their phone too much. This study tested the psychometric properties of a translated Chinese version of the Smartphone Addiction Scale-Short Version (SAS-SV) and examined the demographic correlates of smartphone addiction among Hong Kong children and adolescents. A total of 1,901 primary school children and secondary school pupils were recruited from 15 Hong Kong schools. Furthermore, 1,797 primary caregivers were asked to complete a self-administered questionnaire on their socioeconomic status and educational attainment. The study used exploratory factor analysis (EFA) to identify the factor structure of SAS-SV for half the participants (n = 951), while confirmatory factor analysis (CFA) was used to assess the goodness-of-fit of EFA models for the remaining half (n = 951). Spearman correlations were used to assess the convergent validity of the SAS-SV, taking account of time spent by subjects on phones per day, the Smart Device Addiction Screening Tool (SDAST), the Pittsburgh Sleep Quality Index (PSQI), the Multidimensional Scale of Perceived Social Support (MSPSS), and the Center for Epidemiological Studies Depression Scale for Children (CES-DC). EFA generated a three-factor model (with factors labeled "dependency," the incidence of a "problem," and "time spent"). CFA confirmed this model yielded an acceptable goodness-of-fit (Comparative Fit Index = 0.96, Tucker Lewis Index = 0.95, and root-mean-square error of approximation = 0.06). SAS-SV was positively correlated with SDAST (ρ = 0.59), PSQI (ρ = 0.29), and CES-D (ρ = 0.35), and negatively correlated with MSPSS (ρ = -0.10). A linear regression model showed that female adolescents, those with highly educated caregivers and those who spent more time using smartphones on their holidays, had on average higher SAS-SV scores, meaning they showed greater vulnerability to becoming addicted. The study found that SAS-SV is a valid scale for estimating excessive smartphone use among Hong Kong children and adolescents.


Asunto(s)
Conducta Adictiva/epidemiología , Teléfono Inteligente , Adolescente , Niño , Femenino , Hong Kong/epidemiología , Humanos , Incidencia , Masculino , Escalas de Valoración Psiquiátrica , Psicometría/instrumentación , Instituciones Académicas , Factores Sexuales , Apoyo Social , Factores Socioeconómicos , Encuestas y Cuestionarios
11.
Ann Agric Environ Med ; 26(3): 420-424, 2019 Sep 19.
Artículo en Inglés | MEDLINE | ID: mdl-31559797

RESUMEN

INTRODUCTION: Depressive disorders are one of the most common psychiatric disorders. Recognition of signs of mental health disorders is not always easy, hence the availability of simple and accurate tools for assessing them is very important in the practice of primary care. OBJECTIVE: The aim of the study is to assess the theoretical accuracy and reliability of the Patient Health Questionnaire-9 (PHQ-9) in Polish conditions, when applied to general population studies for adults aged between 35-64. MATERIAL AND METHODS: The study comprised a population of 4,040 people. Women constituted 59% of the research population and people living in the countryside 65%. The average age of participants was 53.45 ± 7.05 years. According to PHQ-9, 727 people (18.0%) had moderate, moderate to severe or severe depression. PHQ-9 showed a significant positive internal cohesion (Cronbach's alpha = 0.77), and factor charges oscillated between 0.43-0.63, and the R2 coefficients of determination were in the range of 0.21-0.40. CONCLUSIONS: The Polish version of PHQ-9 is a valid tool for diagnosing depression in the general population aged 35-64. Good psychometric properties and compactness make the PHQ-9 a useful clinical and research tool.


Asunto(s)
Depresión/psicología , Cuestionario de Salud del Paciente/estadística & datos numéricos , Psicometría/métodos , Adulto , Depresión/diagnóstico , Femenino , Humanos , Lenguaje , Masculino , Persona de Mediana Edad , Polonia , Psicometría/instrumentación
12.
Niger J Clin Pract ; 22(9): 1281-1285, 2019 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-31489867

RESUMEN

Background: The Medication Adherence Rating Scale (MARS) is a 10-item self-report measure of medication adherence in psychosis which is a vital predictor of illness course and outcome in patient with schizophrenia. The initial and subsequent studies have shown that MARS has good reliability and validity scores after correction for the small sample size in the index study. Aim: This study aimed to determine the psychometric properties of MARS among outpatients with schizophrenia at the outpatient clinic of the Neuropsychiatric Hospital Aro Abeokuta Ogun State Nigeria. Methods: Intra-class correlation coefficient (ICC) was used to determine the internal consistency, item-total correlations, and reliability of the instrument. Factor analysis was done using principal component analysis with varimax rotation. Results: The intra-class correlation coefficient (ICC) for these 10 items (at time T1) was 0.6 with a P value of <0.001 while for the test--retest analysis was 0.7 with a P value of 0.04. A principal components factor analysis with varimax rotation produced a four-factor solution and factor 4 was found to be the most internally consistent, with Cronbach's alpha of 0.63. Conclusion: This study supports the internal consistency, test--retest reliability, and constructs validity of the MARS.


Asunto(s)
Cumplimiento de la Medicación/psicología , Cumplimiento de la Medicación/estadística & datos numéricos , Psicometría/instrumentación , Esquizofrenia/tratamiento farmacológico , Encuestas y Cuestionarios/normas , Adulto , Análisis Factorial , Femenino , Humanos , Masculino , Persona de Mediana Edad , Nigeria , Pacientes Ambulatorios , Trastornos Psicóticos , Reproducibilidad de los Resultados , Esquizofrenia/diagnóstico , Autoinforme
13.
Actas dermo-sifiliogr. (Ed. impr.) ; 110(7): 554-560, sept. 2019. tab, graf
Artículo en Español | IBECS | ID: ibc-185527

RESUMEN

Introducción y objetivos: La hidradenitis supurativa (HS) es una enfermedad inflamatoria crónica de la piel que influencia negativamente la calidad de vida. En la actualidad no existen escalas en español que la evalúen. El objetivo del presente estudio fue desarrollar y validar un cuestionario específico para evaluar la calidad de vida en pacientes con HS. Material y métodos: Se desarrolló un estudio multicéntrico en España entre 2016 y 2017 para elaborar un cuestionario. Para ello se consideró tanto el marco conceptual como el conocimiento de la situación del paciente mediante la revisión de la bibliografía, reuniones de profesionales de diferentes áreas y entrevistas con pacientes. El cuestionario resultante se pasó a un grupo de 30 pacientes con 30 ± 10 días de intervalo entre uno y otro. Resultados: El análisis de fiabilidad muestra una buena consistencia interna y reproductibilidad con puntuación alfa de Cronbach de 0,920 (test) y 0,917 (retest) y coeficiente de correlación intraclase con DLQI y Skindex-29 de 0,698 IC 95% (0,456-0,844) y 0,900 IC 95% (0,801-0,951) respectivamente. Se establecieron puntos de corte para su uso y se comprobó que el instrumento es sensible al cambio. Conclusiones: El cuestionario HSQoL-24 es la primera prueba autoadministrada específica para evaluar la calidad de vida en HS en español. Sencillo de usar y puntuar por los profesionales. Este estudio demuestra que el instrumento es fiable, válido y sensible al cambio, pendiente de realizar estudio confirmatorio con una muestra mayor con 100 pacientes con HS


Introduction and objectives: Hidradenitis suppurativa (HS) is a chronic inflammatory disease of the skin with a negative impact on quality of life. Up to now, there are no disease specific instruments in Spanish to assess quality of life in HS. The objective of this study was to develop and validate a questionnaire to evaluate the quality of life in patients with HS. Material and methods: A multicentre study was carried out in Spain between 2016 and 2017 to develop the questionnaire. Both the conceptual framework and understanding of the patient's situation were considered through a review of the literature, consensus of professionals from different related health areas, and in-depth interviews with patients. The resulting questionnaire was passed to a group of 30 patients with 30±10 days of interval between both assessments. Results: The reliability analysis shows a good internal consistency and reproducibility with Cronbach's alpha score of 0.920 (test) and 0.917 (retest) and intraclass correlation coefficient with DLQI and Skindex-29 of 0.698 IC 95% (0.456-0.844) and 0.900 IC 95% (0.801-0.951) respectively. Cut-off points were established for its use and the instrument was found to be sensitive to change. Conclusions: The HSQoL-24 is the first disease-specific self-administered instrument to assess quality of life in patients with HS in Spanish. It is user friendly, and easy to score. This study shows that the instrument is reliable, valid and sensitive to change, pending confirmatory study with a larger sample of 100 patients with HS


Asunto(s)
Humanos , Masculino , Femenino , Adolescente , Adulto Joven , Adulto , Persona de Mediana Edad , Hidradenitis Supurativa/diagnóstico , Calidad de Vida , Estudios de Validación como Asunto , Psicometría/instrumentación , Reproducibilidad de los Resultados , Encuestas y Cuestionarios , Correlación de Datos
14.
Rev. logop. foniatr. audiol. (Ed. impr.) ; 39(3): 105-114, jul.-sept. 2019. tab
Artículo en Inglés | IBECS | ID: ibc-185829

RESUMEN

Background: pragmatics is an area of language that may be impaired in a wide variety of disorders. However, there is a dearth of instruments for the assessment of pragmatic abilities. The Children's Communication Checklist (CCC-2) is the most widespread test, although more adaptations of this instrument to other languages are necessary. Aims: in this paper we (1) develop a pilot study to adapt the CCC-2 to the Galician language, (2) check the capacity of this version to assess communicative difficulties in Galician speakers from 4 to 16 years of age, and (3) we also check its capacity to discriminate the linguistic profiles of different disorders. Method: the reference profile of the Galician CCC-2 was established with a sample of 48 schoolchildren. Comparisons of the scores obtained by children with ASD (n=11), ADHD (n=10), Down Syndrome (DS) (n=9) and Typical Development (n=10) were carried out. Results: the Galician CCC-2 (1) accurately identified children with and without communicative impairments, (2) distinguished between profiles with predominance of pragmatic (ASD and ADHD) and structural disorders (DS), and (3) distinguished between different profiles with predominance of pragmatic impairment. Conclusions: the Galician CCC-2 seems to be a useful instrument to assess pragmatic disorders and to differentiate among different clinical groups


Introducción: la pragmática es un área del lenguaje que puede verse afectada en una amplia variedad de trastornos. Sin embargo, hay una escasez de instrumentos para la evaluación de las habilidades pragmáticas. El Children's Communication Checklist (CCC-2) es la prueba más utilizada, aunque se necesitan más adaptaciones de este instrumento a otros idiomas. Objetivos: en este documento 1)desarrollamos un estudio piloto para adaptar el CCC-2 al gallego; 2)comprobamos la capacidad de esta versión para evaluar las dificultades comunicativas en hablantes de gallego de 4 a 16años, y 3)también comprobamos su capacidad para discriminar perfiles lingüísticos de diferentes trastornos. Método: el perfil de referencia del CCC-2 gallego se estableció con una muestra de 48 escolares. Se realizaron comparaciones de las puntuaciones obtenidas por los niños con TEA (n=11), TDAH (n=10), síndrome de Down (SD; n=9) y desarrollo normal (n=10). Resultados: el CCC-2 gallego 1)identificó con precisión a los niños con trastornos comunicativos y sin ellos; 2)distinguió entre los perfiles con predominio de trastornos pragmáticos (TEA y TDAH) y estructurales (SD), y 3)distinguió entre los diferentes perfiles con predominio del deterioro pragmático. Conclusiones: parece que el CCC-2 gallego es un instrumento útil para evaluar trastornos pragmáticos y para diferenciar entre diferentes grupos clínicos


Asunto(s)
Humanos , Masculino , Femenino , Preescolar , Niño , Adolescente , Desarrollo del Lenguaje , Pruebas del Lenguaje , Trastornos de la Comunicación , Psicometría/instrumentación , Trastorno del Espectro Autista , Síndrome de Down , Comparación Transcultural , Trastorno por Déficit de Atención con Hiperactividad
15.
Crit Care ; 23(1): 276, 2019 08 07.
Artículo en Inglés | MEDLINE | ID: mdl-31391069

RESUMEN

BACKGROUND: Posttraumatic stress disorder (PTSD) symptoms are common in acute respiratory distress syndrome (ARDS) survivors. Brief screening instruments are needed for clinical and research purposes. We evaluated internal consistency, external construct, and criterion validity of the Impact of Event Scale-6 (IES-6; 6 items) compared to the original Impact of Event Scale-Revised (IES-R; 22 items) and to the Clinician Administered PTSD Scale (CAPS) reference standard evaluation in ARDS survivors. METHODS: This study is a secondary analysis from two independent multi-site, prospective studies of ARDS survivors. Measures of internal consistency, and external construct and criterion validity were evaluated. RESULTS: A total of 1001 ARDS survivors (51% female, 76% white, mean (SD) age 49 (14) years) were evaluated. The IES-6 demonstrated internal consistency over multiple time points up to 5 years after ARDS (Cronbach's alpha = 0.86 to 0.91) and high correlation with the IES-R (0.96; 95% confidence interval (CI): 0.94 to 0.97). The IES-6 demonstrated stronger correlations with related constructs (e.g., anxiety and depression; |r| = 0.32 to 0.52) and weaker correlations with unrelated constructs (e.g., physical function and healthcare utilization measures (|r| = 0.02 to 0.27). Criterion validity evaluation with the CAPS diagnosis of PTSD in a subsample of 60 participants yielded an area under receiver operating characteristic curve (95% CI) of 0.93 (0.86, 1.00), with an IES-6 cutoff score of 1.75 yielding 0.88 sensitivity and 0.85 specificity. CONCLUSIONS: The IES-6 is reliable and valid for screening for PTSD in ARDS survivors and may be useful in clinical and research settings.


Asunto(s)
Tamizaje Masivo/instrumentación , Síndrome de Dificultad Respiratoria del Adulto/complicaciones , Trastornos por Estrés Postraumático/diagnóstico , Sobrevivientes/psicología , Adulto , Anciano , Femenino , Humanos , Masculino , Tamizaje Masivo/métodos , Tamizaje Masivo/tendencias , Persona de Mediana Edad , Estudios Prospectivos , Escalas de Valoración Psiquiátrica , Psicometría/instrumentación , Psicometría/métodos , Calidad de Vida/psicología , Síndrome de Dificultad Respiratoria del Adulto/psicología , Trastornos por Estrés Postraumático/etiología , Trastornos por Estrés Postraumático/psicología , Encuestas y Cuestionarios
16.
BMC Palliat Care ; 18(1): 68, 2019 Aug 06.
Artículo en Inglés | MEDLINE | ID: mdl-31387575

RESUMEN

BACKGROUND: To determine the validity, reliability and acceptability of the Mandarin Chinese version of the Problems and Needs in Palliative Care questionnaire-short version (PNPC-sv) for measuring problems and palliative care needs among patients with advanced cancer. METHODS: This was a validation study using a forward- and backward- translation procedure, a panel of experts and a cross-sectional study design. The Mandarin Chinese version of the PNPC-sv was translated by four independent translators. The translated Chinese version was further reviewed by an expert panel to identify its content validity. A pilot test was conducted in 10 advanced cancer patients to preliminarily assess the face validity, readability and clarity of the pre-final version of the PNPC-sv. 178 patients with advanced cancer, regardless of their gender and types of cancer diagnosis, were further recruited through a convenience sampling from three tertiary hospitals in China to assess the psychometric properties of the PNPC-sv Mandarin Chinese version. Content validity was measured using the content validity index (CVI). Construct validity was estimated via confirmatory factor analysis and the contrasted groups approach. Concurrent validity was identified by analysing the correlations between the EORTC Quality-of-Life Questionnaire-Core 30 (EORTC QLQ-C30) and the PNPC-sv. Reliability of the PNPC-sv was examined with the internal consistency reliability and item-to-total correlations. Several closed-ended and open-ended questions were designed to explore its acceptability. RESULTS: 174 patients completed the questionnaires. High content and face validity were determined after the two rounds of assessment with the expert panel and the patients. An excellent CVI of 1.0 was achieved and patients rated the PNPC-sv as a useful instrument for assessing their problems and needs (mean score = 7.99, 0-10 scale) and reported the items were not particularly sensitive and easy to understand. The majority of the fit indexes meet the critical criteria, with the Chi-square divided by degrees of freedom (x2/df) being 1.58 and 2.05, and the root mean squared error of approximation (RMSEA) being 0.06 and 0.07 for the problem part and need-for-care part, respectively. In relation to the contrasted groups analysis, it clearly discriminated the differences on the sub-scores of Activities of Daily Life (ADL), spiritual and psychological problems and needs between male and female patients; ADL, physical, social and financial problems and needs between age groups; and autonomic problems and needs between patients with different cancer stages. Statistically significant correlations (p < 0.05) were detected between the PNPC-sv and the EORTC QLQ-C30 in the majority of the sub-scores (positive correlations) and total scores (negative correlations). The Cronbach's alpha of the total scale was 0.88 and 0.91 for the problem part and need-for-care part, respectively. The Cronbach's alpha of the subscales were generally above 0.70. Item-to-total correlations were generally acceptable, with the majority of the values being above 0.40. The PNPC-sv questionnaire was reported to be convenient and easy to understand, and the average time for completing was 11 min. CONCLUSIONS: The Mandarin Chinese version of the PNPC-sv is a valid, reliable and user-friendly instrument for measuring problems and palliative care needs among patients with advanced cancer. Further research is needed to further examine its psychometric properties particular internal structure in a larger patient sample.


Asunto(s)
Cuidados Paliativos/normas , Psicometría/normas , Adulto , Anciano , China , Estudios Transversales , Femenino , Humanos , Masculino , Persona de Mediana Edad , Cuidados Paliativos/métodos , Psicometría/instrumentación , Psicometría/métodos , Reproducibilidad de los Resultados , Encuestas y Cuestionarios , Traducción , Estudios de Validación como Asunto
17.
Intellect Dev Disabil ; 57(4): 274-288, 2019 08.
Artículo en Inglés | MEDLINE | ID: mdl-31373543

RESUMEN

The purpose of this study was to explore the cross-cultural validity of the Self-Determination Inventory: Student Report, a newly developed measure of self-determination grounded in Causal Agency Theory. The tool was translated to Spanish and administered to American and Spanish adolescents. The sample was structured to include adolescents with and without intellectual disability in both cultural contexts. More than 3,000 students in the U.S. and Spain aged 13 to 22 completed the assessment. Findings suggest that the same set of items can be used across cultural contexts and in youth with and without intellectual disability, although there are some specific differences in item functioning across students with and without intellectual disability in Spain that must be further researched. There were specific patterns of differences in latent self-determination means, with students with intellectual disability scoring lower in the U.S. and Spain. Implications for assessment research and practice in diverse cultural contexts are explored.


Asunto(s)
Discapacidad Intelectual/psicología , Autonomía Personal , Psicometría/normas , Autoinforme , Estudiantes , Adolescente , Comparación Transcultural , Femenino , Humanos , Masculino , Psicometría/instrumentación , Reproducibilidad de los Resultados , España , Estados Unidos , Adulto Joven
18.
Ophthalmic Physiol Opt ; 39(5): 378-391, 2019 09.
Artículo en Inglés | MEDLINE | ID: mdl-31468574

RESUMEN

PURPOSE: The Participation and Activity Inventory for Children and Youth 3-6 years (PAI-CY 3-6) was recently developed to assess the participation needs of children with visual impairment (VI) by means of parent-proxy report. This study reports on its psychometric properties. METHODS: Parents of children aged 3-6 years registered at two low vision rehabilitation centers in the Netherlands were invited to participate and completed the 52-item PAI-CY. Satisfaction with the PAI-CY 3-6 was determined using an evaluation form. Basic item analyses was conducted, after which an item response theory (IRT) model (i.e. the graded response model, GRM) was fitted. Deletion of items was informed by results of item analyses, fulfillment of IRT assumptions, differential item functioning, fit to the GRM and item information content. Face and content validity were considered; professionals from low vision rehabilitation centers were asked for their opinion in the item deletion process. After obtaining a satisfactory set of items, known-group validity, concurrent validity and test-retest reliability were also investigated. RESULTS: Data of 237 parents were included in the analyses. Various aspects of the PAI-CY 3-6 were perceived as neutral to positive by over 85% of the respondents. After removing 17 items, the remaining 35 items reflected satisfactory fit to the GRM. Known-group validity was supported, since participants with more severe VI and comorbidity scored significantly worse than those with less severe VI and without comorbidity after correcting for potential confounders. Test-retest reliability was adequate, and the PAI-CY showed to have good concurrent validity. Feedback from professionals motivated the maintenance of 3 of the 17 deleted items, although not included in the scoring. Furthermore, two new items were added, resulting in a 40-item instrument. CONCLUSIONS: The PAI-CY 3-6 has sound psychometric properties and can now be used to assess the participation needs of children aged 3-6 years with VI by means of proxy. Implementation in routine low vision rehabilitation care enables further optimization and investigation of its acceptability and feasibility.


Asunto(s)
Técnicas de Diagnóstico Oftalmológico/normas , Psicometría/instrumentación , Trastornos de la Visión/diagnóstico , Niño , Preescolar , Femenino , Humanos , Masculino , Satisfacción del Paciente , Reproducibilidad de los Resultados
19.
J Sport Exerc Psychol ; 41(4): 215-229, 2019 Aug 01.
Artículo en Inglés | MEDLINE | ID: mdl-31461243

RESUMEN

Research suggests 5 forms of social support: companionship, emotional, informational, instrumental, and validation. Despite this, existing measures of social support for physical activity are limited to emotional, companionship, and instrumental support. The purpose was to develop the Physical Activity and Social Support Scale (PASSS) with subscales that reflected all 5 forms. Participants (N = 506, mean age = 34.3 yr) who were active at least twice per week completed a 235-item questionnaire assessing physical activity behaviors, social support for physical activity, general social support, and other psychosocial questions. Exploratory and confirmatory factor analyses were used to develop and validate the PASSS. Exploratory factor analysis supported a 5-factor, 20-item model, χ2(100) = 146.22, p < .05, root mean square error of approximation = .05. Confirmatory factor analysis indicated good fit, Satorra­Bentler χ2(143) = 199.57, p < .001, root mean square error of approximation = .04, comparative-fit index = .97, standardized root mean square residual = .06. Findings support the PASSS to measure all 5 forms for physical activity.


Asunto(s)
Ejercicio/psicología , Psicometría/instrumentación , Apoyo Social , Adulto , Análisis Factorial , Femenino , Humanos , Masculino , Persona de Mediana Edad , Reproducibilidad de los Resultados , Encuestas y Cuestionarios , Adulto Joven
20.
Medicina (Kaunas) ; 55(9)2019 Aug 25.
Artículo en Inglés | MEDLINE | ID: mdl-31450718

RESUMEN

BACKGROUND AND OBJECTIVES: The attentional bias and information processing model explained that individuals who interpret pain stimuli as threatening may increase their attention toward pain-related information. Previous eye tracking studies found pain attentional bias among individuals with chronic pain; however, those studies investigated this phenomenon by using only one stimulus modality. Therefore, the present study investigated attentional engagement to pain-related information and the role of pain catastrophizing on pain attentional engagement to pain-related stimuli among chronic pain patients by utilizing both linguistic and visual stimulus. MATERIALS AND METHODS: Forty chronic pain patients were recruited from the rehabilitation center, the back pain clinic, and the rheumatology department of Chung-Ang University Hospital in Seoul, Korea. Patients observed pictures of faces and words displaying pain, presented simultaneously with neutral expressions, while their eye movements were measured using the eye tracking system. A t-test and ANOVA were conducted to compare stimulus pairs for the total gaze duration. Results revealed that chronic pain patients demonstrated attentional preference toward pain words but not for pain faces. An ANOVA with bias scores was conducted to investigate the role of pain catastrophizing on attentional patterns. Results indicated that chronic pain patients with high pain catastrophizing scores gazed significantly longer at pain- and anger-related words than neutral words compared to those with low pain catastrophizing scores. The same patterns were not observed for the facial expression stimulus pairs. CONCLUSIONS: The results of the present study revealed attentional preference toward pain-related words and the significant role of pain catastrophizing on pain attentional engagement to pain-related words. However, different patterns were observed between linguistic and visual stimuli. Clinical implications related to use in pain treatment and future research suggestions are discussed.


Asunto(s)
Sesgo Atencional , Catastrofización/psicología , Dolor Crónico/complicaciones , Fijación Ocular , Dimensión del Dolor/instrumentación , Adulto , Anciano , Análisis de Varianza , Catastrofización/etiología , Dolor Crónico/psicología , Movimientos Oculares , Femenino , Humanos , Masculino , Persona de Mediana Edad , Dimensión del Dolor/métodos , Psicometría/instrumentación , Psicometría/métodos , República de Corea , Encuestas y Cuestionarios
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