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1.
Int. j. clin. health psychol. (Internet) ; 21(1): 198-198, ene.-abr. 2021. tab, graf
Artículo en Inglés | IBECS | ID: ibc-194909

RESUMEN

BACKGROUND/OBJECTIVE: The objective of the study was to elucidate the underlying mechanism through which basic personality dimensions predict indicators of psychological functioning during the COVID-19 pandemic, including subjective well-being and perceived stress. As a personality characteristic highly contextualized in stressful circumstances, resilience was expected to have a mediating role in this relationship. METHOD: A sample of 2,722 Slovene adults, aged from 18 to 82 years filled in the Big Five Inventory, the Connor-Davidson Resilience Scale, the Perceived Stress Scale, and the Mental Health Continuum. A path analysis with the Bootstrap estimation procedure was performed to evaluate the mediating effect of resilience in the relationship between personality and psychological functioning. RESULTS: Resilience fully or partially mediated the relationships between all the Big Five but extraversion with subjective well-being and stress experienced at the beginning of the COVID-19 outburst. Neuroticism was the strongest predictor of less adaptive psychological functioning both directly and through diminished resilience. CONCLUSIONS: Resilience may be a major protective factor required for an adaptive response of an individual in stressful situations such as pandemic and the associated lockdown


ANTECEDENTES/OBJETIVO: El objetivo fue dilucidar el mecanismo subyacente a través del cual las dimensiones básicas de la personalidad predicen indicadores del funcionamiento psicológico durante la pandemia de COVID-19, incluido el bienestar subjetivo y el estrés percibido. Como característica de la personalidad altamente contextualizada en circunstancias estresantes, se esperaba que la resiliencia tuviera un papel mediador en esta relación. MÉTODO: Una muestra de 2.722 adultos eslovenos (18-82 años), completó el Big Five Inventory, la Connor-Davidson Resilience Scale, la Perceived Stress Scale y el Mental Health Continuum. Se realizó un análisis de ruta con el procedimiento de estimación Bootstrap para evaluar el efecto mediador de la resiliencia en la relación entre la personalidad y el funcionamiento psicológico. RESULTADOS: La resiliencia medió total o parcialmente las relaciones entre los Cinco Grandes, y la extraversión con bienestar subjetivo y el estrés experimentado, al comienzo del estallido de COVID-19. El neuroticismo fue el predictor más fuerte de un funcionamiento psicológico menos adaptativo, tanto directamente como a través de la disminución de la capacidad de resiliencia. CONCLUSIONES: La resiliencia puede ser un factor de protección importante y requerido para una respuesta adaptativa de un individuo en situaciones estresantes como la pandemia y el confinamiento asociado


Asunto(s)
Humanos , Masculino , Femenino , Adolescente , Adulto Joven , Adulto , Persona de Mediana Edad , Anciano , Anciano de 80 o más Años , Resiliencia Psicológica , Personalidad/fisiología , Infecciones por Coronavirus/psicología , Neumonía Viral/psicología , Pandemias , Inventario de Personalidad/normas , Psicometría/métodos , Neuroticismo/fisiología
2.
Medicine (Baltimore) ; 100(9): e24926, 2021 Mar 05.
Artículo en Inglés | MEDLINE | ID: mdl-33655956

RESUMEN

ABSTRACT: In patients with ischemic stroke, activities of daily living were used as an outcome indicator, and correct assessment is very important. We sought to examine the reliability and validity of the modified Barthel Index as an evaluation tool of activities of daily living in ischemic stroke patients by applying the Rasch analysis.We used a prospectively collected cohort of ischemic stroke patients in the department of neurology. Rasch analysis was used for evaluating the reliability and validity of the modified Barthel Index.A total of 231 patients were included in the analysis. The average of modified Barthel Index was 36.2 ±â€Š17.8. The modified Barthel Index had high reliability of 0.88. There were no extremely mismatched items, and considered unidimensional, but the Point-Measure of bowels and bladder were 0.27, extremely lower than other items. The scale was stable in different sex and age, but had notable differential item functioning in muscle strength of the limbs. Rating categories were not functioning adequately in items. The item difficulty and patient ability were not matched, with a difference of 1.17 logics. 29.4% patients, no easy items could match their ability.The modified Barthel Index had high reliability but a relatively bad matching degree between item difficulty and patient ability. It still needs further improvement to reflect the activities of daily living in ischemic stroke patients.


Asunto(s)
Actividades Cotidianas , Evaluación de la Discapacidad , Psicometría/métodos , Femenino , Humanos , /rehabilitación , Masculino , Persona de Mediana Edad , Estudios Prospectivos , Reproducibilidad de los Resultados , Encuestas y Cuestionarios
3.
Nurs Outlook ; 69(2): 127-135, 2021.
Artículo en Inglés | MEDLINE | ID: mdl-33583605

RESUMEN

BACKGROUND: There is a lack of formal guidelines and decision support tools to prevent community-acquired pressure injuries (CAPrIs) in Veterans with spinal cord injury (SCI). PURPOSE: In this article we present our research protocol that describes our plans to create and test a decision support tool to prevent CAPrIs in SCI. METHODS: In Aim 1, we identified mental-models of CAPrI prevention from the perspectives of Veterans (using photovoice, guided tours), and Veterans Health Administration SCI providers (using interviews), and triangulation to compare the two mental-models. This led to a decision support tool developed and validated using Delphi approaches in Aim 2 and will be followed by tool automation and system redesign for pilot implementation in Aim 3. FINDINGS: The nurse-led research protocol provides a map to systematically explore, address and translate research into evidence-based practice. DISCUSSION: Refinement of the protocol will guide future research and implementation.


Asunto(s)
Atención Ambulatoria/métodos , Protocolos Clínicos , Técnicas de Apoyo para la Decisión , Úlcera por Presión/prevención & control , Traumatismos de la Médula Espinal/complicaciones , Atención Ambulatoria/tendencias , Técnica Delfos , Humanos , Desarrollo de Programa/métodos , Psicometría/instrumentación , Psicometría/métodos
4.
Allergol. immunopatol ; 49(1): 50-57, ene.-feb. 2021. tab
Artículo en Inglés | IBECS | ID: ibc-199225

RESUMEN

INTRODUCTION AND OBJECTIVES: To determine the quality of life (QoL) in Caucasian children with atopic dermatitis (AD) and their families and possible factors that might impact their QoL. MATERIALS AND METHODS: In this cross-sectional study, 83 children aged 2-7 with AD and their families were enrolled as the study group, and 83 age-matched healthy children were included as controls. All patients in the AD and control groups were sorted into two age-based groups: (1) 2-4 and (2) 5-7 years of age. The parents of all children completed the Turkish version of the Pediatric Quality of Life Inventory (PedsQL). The Family Impact Scale for Dermatological Diseases (FIS-DD) was administered to the study group. Disease severity was evaluated with the Patient-Oriented Scoring Atopic Dermatitis (PO-SCORAD) scale. RESULTS: In both age groups, a negative correlation between the PedsQL and the FIS-DD scores (p < 0.001) was found. A positive correlation was found between the PO-SCORAD and FIS- DD scores among the second age group (p = 0.011). In the first age group, AD patients with comor­bid allergic diseases had higher FIS-DD scores than those without any other allergic problems (p = 0.007). CONCLUSIONS: We suggest that considering family QoL may positively contribute to the treat­ment of pre-school age AD children


No disponible


Asunto(s)
Humanos , Masculino , Femenino , Preescolar , Niño , Dermatitis Atópica/epidemiología , Dermatitis Atópica/prevención & control , Calidad de Vida , Psicometría/métodos , Turquia/epidemiología , Estudios Transversales , Inventario de Personalidad/estadística & datos numéricos , Encuestas y Cuestionarios , Índice de Severidad de la Enfermedad , Dermatitis Atópica/inmunología
5.
BMC Pregnancy Childbirth ; 21(1): 112, 2021 Feb 08.
Artículo en Inglés | MEDLINE | ID: mdl-33557764

RESUMEN

BACKGROUND: Global crises inevitably increase levels of anxiety in postpartum populations. Effective and efficient measurement is therefore essential. This study aimed to create a 12-item research short form of the 51-item Postpartum Specific Anxiety Scale [PSAS] and validate it for use in rapid response research at a time of global crises [PSAS-RSF-C]. We also present the same 12-items, in five other languages (Italian, French, Chinese, Spanish, Dutch) to increase global accessibility of a psychometric tool to assess maternal mental health. METHODS: Twelve items from the PSAS were selected on the basis of a review of their factor loadings. An on-line sample of UK mothers (N = 710) of infants up to 12 weeks old completed the PSAS-RSF-C during COVID-19 'lockdown'. RESULTS: Principal component analyses on a randomly split sample (n = 344) revealed four factors, identical in nature to the original PSAS, which in combination explained 75% of the total variance. Confirmatory factor analyses (n = 366) demonstrated the four-factor model fit the data well. Reliability of the overall scale and of the underlying factors in both samples proved excellent. CONCLUSIONS: Findings suggest the PSAS-RSF-C may prove useful as a clinical screening tool and is the first postpartum-specific psychometric scale to be validated during the COVID-19 pandemic. This offers psychometrically sound assessment of postpartum anxiety. By increasing the accessibility of the PSAS, we aim to enable researchers the opportunity to measure maternal anxiety, rapidly, at times of global crisis.


Asunto(s)
Ansiedad/epidemiología , /psicología , Salud Materna , Pandemias , Periodo Posparto/psicología , Escalas de Valoración Psiquiátrica , Psicometría/métodos , Adolescente , Adulto , Ansiedad/psicología , /virología , Análisis Factorial , Femenino , Humanos , Lactante , Recién Nacido , Salud Mental , Persona de Mediana Edad , Pandemias/prevención & control , Embarazo , Cuarentena/psicología , Reproducibilidad de los Resultados , Encuestas y Cuestionarios , Traducciones , Reino Unido/epidemiología , Adulto Joven
6.
Medicine (Baltimore) ; 100(3): e24335, 2021 Jan 22.
Artículo en Inglés | MEDLINE | ID: mdl-33546066

RESUMEN

ABSTRACT: Phaeochromocytomas are catecholamine-producing neuroendocrine tumors that may manifest in many ways, specifically as sustained or paroxysmal hypertension. Data, including data from mental status screening, were prospectively collected from suspected patients. The Hospital Anxiety and Depression Scale was used as a screening tool to identify abnormal mental status. Results showed phaeochromocytoma patients were more likely to experience anxiety and depression. For future phaeochromocytoma treatment, early screening for anxiety and depression should be recommended.


Asunto(s)
Neoplasias de las Glándulas Suprarrenales/psicología , Ansiedad/etiología , Depresión/etiología , Feocromocitoma/complicaciones , Neoplasias de las Glándulas Suprarrenales/complicaciones , Adulto , Anciano , Ansiedad/clasificación , Ansiedad/epidemiología , Estudios de Casos y Controles , China/epidemiología , Depresión/clasificación , Depresión/epidemiología , Humanos , Modelos Logísticos , Persona de Mediana Edad , Feocromocitoma/epidemiología , Feocromocitoma/fisiopatología , Psicometría/instrumentación , Psicometría/métodos , Traducción
7.
Medicine (Baltimore) ; 100(1): e24168, 2021 Jan 08.
Artículo en Inglés | MEDLINE | ID: mdl-33429800

RESUMEN

ABSTRACT: Psoriasis (Pso) and psoriatic arthritis (PsA) frequently have a negative impact on patients' sexual health. We have developed a specific questionnaire assessing the impact of Pso and PsA on patient perception of sexuality: the QualipsoSex Questionnaire (QSQ). The aim of the present study was to further validate this questionnaire by checking its psychometric properties including validity, reliability, and responsiveness.A cross sectional observational study with a longitudinal component for responsiveness and test-retest reliability was performed in 12 centers in France including 7 dermatologists and 5 rheumatologists. Psychometric properties were examined according to the COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) check-list.At baseline, 114 patients had Pso and 35 patients had PsA including 17 peripheral arthritis, 4 axial disease, 13 patients with both axial disease and peripheral arthritis and one patient with an undifferentiated phenotype. The mean Pso Area and Severity Index score was 12.5. Genital organs were involved in 44.7% of Pso cases. Internal consistency, construct validity, and reliability were good with Cronbach's α coefficient, measure of sampling adequacy and intraclass correlation coefficient respectively at 0.87, 0.84, and 0.93. The QSQ also demonstrated acceptable sensitivity to change.The QSQ has demonstrated good psychometric properties fulfilling the validation process relative to the recommendations of the COSMIN check list. The QSQ is simple to score and may hopefully be valuable in clinical practice and in clinical trials.


Asunto(s)
Medición de Resultados Informados por el Paciente , Percepción , Psicometría/normas , Sexualidad/psicología , Adulto , Artritis Psoriásica/complicaciones , Artritis Psoriásica/psicología , Estudios Transversales , Femenino , Francia , Humanos , Masculino , Persona de Mediana Edad , Psoriasis/complicaciones , Psoriasis/psicología , Psicometría/instrumentación , Psicometría/métodos , Reproducibilidad de los Resultados , Encuestas y Cuestionarios
8.
Thorax ; 76(3): 228-238, 2021 03.
Artículo en Inglés | MEDLINE | ID: mdl-33479044

RESUMEN

BACKGROUND: The Daily-PROactive and Clinical visit-PROactive Physical Activity (D-PPAC and C-PPAC) instruments in chronic obstructive pulmonary disease (COPD) combines questionnaire with activity monitor data to measure patients' experience of physical activity. Their amount, difficulty and total scores range from 0 (worst) to 100 (best) but require further psychometric evaluation. OBJECTIVE: To test reliability, validity and responsiveness, and to define minimal important difference (MID), of the D-PPAC and C-PPAC instruments, in a large population of patients with stable COPD from diverse severities, settings and countries. METHODS: We used data from seven randomised controlled trials to evaluate D-PPAC and C-PPAC internal consistency and construct validity by sex, age groups, COPD severity, country and language as well as responsiveness to interventions, ability to detect change and MID. RESULTS: We included 1324 patients (mean (SD) age 66 (8) years, forced expiratory volume in 1 s 55 (17)% predicted). Scores covered almost the full range from 0 to 100, showed strong internal consistency after stratification and correlated as a priori hypothesised with dyspnoea, health-related quality of life and exercise capacity. Difficulty scores improved after pharmacological treatment and pulmonary rehabilitation, while amount scores improved after behavioural physical activity interventions. All scores were responsive to changes in self-reported physical activity experience (both worsening and improvement) and to the occurrence of COPD exacerbations during follow-up. The MID was estimated to 6 for amount and difficulty scores and 4 for total score. CONCLUSIONS: The D-PPAC and C-PPAC instruments are reliable and valid across diverse COPD populations and responsive to pharmacological and non-pharmacological interventions and changes in clinically relevant variables.


Asunto(s)
Terapia por Ejercicio/métodos , Tolerancia al Ejercicio/fisiología , Ejercicio Físico/fisiología , Psicometría/métodos , Enfermedad Pulmonar Obstructiva Crónica/fisiopatología , Calidad de Vida , Estudios de Seguimiento , Volumen Espiratorio Forzado , Humanos , Estudios Prospectivos , Enfermedad Pulmonar Obstructiva Crónica/rehabilitación , Encuestas y Cuestionarios
10.
Metas enferm ; 23(10): 7-16, dic.-ene. 2021. tab
Artículo en Español | IBECS | ID: ibc-197941

RESUMEN

OBJETIVO: describir el proceso de validación psicométrica del instrumento COPE-Index en población española. MÉTODO: estudio de validación del cuestionario COPE-Index, que cuenta con 15 ítems divididos en tres subescalas: valoración del impacto negativo, valoración del impacto positivo y calidad del apoyo. Los sujetos de estudio fueron 165 figuras cuidadoras de personas mayores, pertenecientes a la Asociación de Familiares de Alzheimer de la Comunidad de Madrid. Mediciones principales: factibilidad del instrumento COPE, consistencia interna, efecto techo y suelo, análisis factorial exploratorio, validez convergente y divergente (para ello se usaron los cuestionarios PACS, Duke-Unc y SF-12). RESULTADOS: la muestra de estudio estuvo formaba por 150 sujetos (tasa de respuesta del 90,9%). El 65,33% (n= 98) era mujer; la edad media (DE) fue de 64 (12,23). Los resultados se mostraron fiables en cuanto a su homogeneidad interna en relación con la subescala negativa y la subescala de calidad (alfas de Cronbach > 0,7) y menor en la subescala positiva (alfa de Cronbach: 0,61). No se apreció efecto techo ni suelo. La validez de constructo confirmó tres dimensiones del cuestionario COPE, que explicaban el 52% de la varianza total. En las pruebas de validez convergente/divergente se correlacionaron las puntuaciones de la subescala positiva del cuestionario COPE con los ítems del cuestionario PACS, la subescala negativa del cuestionario COPE se relacionó con las preguntas del cuestionario Duke-Unc y, finalmente, la subescala de calidad del cuestionario COPE se correlacionó con los ítems del instrumento SF-12 versión dos. CONCLUSIÓN: la versión española del cuestionario COPE-Index fue válida y confiable para identificar los aspectos positivos, negativos y de calidad del cuidado en cuidadoras de personas mayores


OBJECTIVE: to describe the psychometric validation process of the COPE-Index instrument for the Spanish population. METHOD: a validation study of the COPE-Index questionnaire, which consists of 15 items classified into three sub-scales: assessment of negative impact, assessment of positive impact, and quality of support. The study subjects were 165 carers for older people, from the Madrid Association of Relatives of Alzheimer's Patients. The main measurements were: the feasibility of the COPE instrument, internal consistency, ceiling and floor effect, exploratory factor analysis, convergent and divergent validity (the PACS, Duke-Unc and SF-12 questionnaires were used for this). RESULTS: the study sample was formed by 150 subjects (90.9% response rate). Of these, 65.33% (n= 98) were female, and their mean age (SD) was 64 (12.23). Results appeared reliable in terms of internal homogeneity regarding the negative sub-scale and the quality sub-scale (Cronbach's alphas > 0.7), and lower in the positive sub-scale (Cronbach's alpha: 0,61). Neither ceiling nor floor effect were observed. The construct validity confirmed three dimensions of the COPE questionnaire, which explained 52% of the total variance. In the convergent / divergent validity tests, the scores from the positive sub-scale of the COPE questionnaire were correlated with the PACS questionnaire items, the negative sub-scale of the COPE questionnaire was associated with the questions from the Duke-Unc questionnaire, and finally, the quality sub-scale of the COPE questionnaire was correlated with the items from the second version of the SF-12 instrument. CONCLUSION: the Spanish version of the COPE-Index questionnaire was valid and reliable to identify the positive, negative and quality aspects of care in caregivers for elderly persons


Asunto(s)
Humanos , Masculino , Femenino , Adulto , Persona de Mediana Edad , Anciano , Anciano de 80 o más Años , Encuestas y Cuestionarios , Psicometría/métodos , Cuidadores/estadística & datos numéricos , Anciano/psicología , Psicometría/estadística & datos numéricos , Anciano Frágil/psicología
11.
Interv. psicosoc. (Internet) ; 30(1): 27-34, ene. 2021. tab
Artículo en Inglés | IBECS | ID: ibc-197950

RESUMEN

The Parenting Stress Index-Short Form (PSI-SF) is one of the most commonly used measures of parenting stress both in clinical and research contexts. The PSI-SF is a 36-item, self-report measure with three subscales: Parental Distress (PD), Parent-Child Dysfunctional Interaction (PCDI), and Difficult Child (DC). The objective of this study was to analyse the factor structure and psychometric properties of the Spanish version of PSI-SF. Two different samples (N = 309) of mothers with children under 8 years old participated in the study. The first sample comprised 203 mothers with difficulties managing their children's behaviour. The second sample comprised 106 mothers from the general population. Factor structure of the PSI-SF, convergent validity, and differences between groups were analysed. The expected three-factor structure was confirmed for both samples. Findings suggested that the total PSI-SF scale and the three subscales had adequate internal consistency and convergent validity. Differences between both samples, and between age and economic subgroups in the first sample were tested. The Spanish version of the PSI-SF can be considered an adequate measure of parenting stress in mothers of children under 8 years old with difficulties to manage their children's behaviour. Further studies with extended samples from the general population are needed


El Parenting Stress Index-Short Form (PSI-SF) es uno de los instrumentos más utilizados para evaluar el estrés parental tanto en el contexto clínico como en el de investigación. El PSI-SF es un autoinforme de 36 ítems con tres subescalas: malestar parental (PD), interacción disfuncional padre/madre-hijo (PCDI) y niño difícil (DC). El objetivo del estudio fue analizar la estructura factorial y las propiedades psicométricas de la versión española del PSI-SF. Dos muestras diferentes (N = 309) de madres con hijos o hijas menores de 8 años participaron en el estudio: la primera muestra estuvo compuesta por 203 madres con dificultades para gestionar la conducta de sus hijos o hijas y la segunda por 106 madres de la población general. Se analizó la estructura factorial del PSI-SF, la validez convergente y la diferencia entre grupos de madres, confirmándose la estructura de tres factores para las dos muestras. Los resultados sugieren que la escala completa del PSI-SF y las 3 subescalas presentaban una adecuada consistencia interna y validez convergente. Se analizaron las diferencias en todas las puntuaciones del PSI-SF entre ambas muestras y entre subgrupos (edad y situación económica) de la primera muestra. La versión española del PSI-SF puede considerarse un instrumento adecuado para medir el estrés parental en madres con niños o niñas menores de 8 años con dificultades para manejar su comportamiento. Se necesitan estudios con muestras más representativas de la población general


Asunto(s)
Humanos , Masculino , Femenino , Recién Nacido , Lactante , Preescolar , Niño , Escalas de Valoración Psiquiátrica , Madres/psicología , Psicometría/métodos , Estrés Psicológico/psicología , Conducta Infantil/psicología , Padres/psicología , Autoinforme , Relaciones Madre-Hijo/psicología , Análisis Factorial , Encuestas y Cuestionarios
12.
Health Qual Life Outcomes ; 19(1): 6, 2021 Jan 06.
Artículo en Inglés | MEDLINE | ID: mdl-33407538

RESUMEN

BACKGROUND: Disability is an increasingly important health-related outcome to consider as more individuals are now aging with Human Immunodeficiency Virus (HIV) and multimorbidity. The HIV Disability Questionnaire (HDQ) is a patient-reported outcome measure (PROM), developed to measure the presence, severity and episodic nature of disability among adults living with HIV. The 69-item HDQ includes six domains: physical, cognitive, mental-emotional symptoms and impairments, uncertainty and worrying about the future, difficulties with day-to-day activities, and challenges to social inclusion. Our aim was to develop a short-form version of the HIV Disability Questionnaire (SF-HDQ) to facilitate use in clinical and community-based practice among adults living with HIV. METHODS: We used Rasch analysis to inform item reduction using an existing dataset of adults living with HIV in Canada (n = 941) and Ireland (n = 96) who completed the HDQ (n = 1037). We evaluated overall model fit with Cronbach's alpha and Person Separation Indices (PSIs) (≥ 0.70 acceptable). Individual items were evaluated for item threshold ordering, fit residuals, differential item functioning (DIF) and unidimensionality. For item threshold ordering, we examined item characteristic curves and threshold maps merging response options of items with disordered thresholds to obtain order. Items with fit residuals > 2.5 or less than - 2.5 and statistically significant after Bonferroni-adjustment were considered for removal. For DIF, we considered removing items with response patterns that varied according to country, age group (≥ 50 years versus < 50 years), and gender. Subscales were considered unidimensional if ≤ 5% of t-tests comparing possible patterns in residuals were significant. RESULTS: We removed 34 items, resulting in a 35-item SF-HDQ with domain structure: physical (10 items); cognitive (3 items); mental-emotional (5 items); uncertainty (5 items); difficulties with day-to-day activities (5 items) and challenges to social inclusion (7 items). Overall models' fit: Cronbach's alphas ranged from 0.78 (cognitive) to 0.85 (physical and mental-emotional) and PSIs from 0.69 (day-to-day activities) to 0.79 (physical and mental-emotional). Three items were rescored to achieve ordered thresholds. All domains demonstrated unidimensionality. Three items with DIF were retained because of their clinical importance. CONCLUSION: The 35-item SF-HDQ offers a brief, comprehensive disability PROM for use in clinical and community-based practice with adults living with HIV.


Asunto(s)
Evaluación de la Discapacidad , Infecciones por VIH/psicología , Medición de Resultados Informados por el Paciente , Psicometría/métodos , Encuestas y Cuestionarios , Adulto , Canadá , Personas con Discapacidad/psicología , Femenino , Humanos , Irlanda , Masculino , Persona de Mediana Edad
13.
Lancet Psychiatry ; 8(1): 76-86, 2021 01.
Artículo en Inglés | MEDLINE | ID: mdl-33341172

RESUMEN

A major barrier to improving care effectiveness for mental health is a lack of consensus on outcomes measurement. The International Consortium for Health Outcomes Measurement (ICHOM) has already developed a consensus-based standard set of outcomes for anxiety and depression in adults (including the Patient Health Questionnaire-9, the Generalised Anxiety Disorder 7-item Scale, and the WHO Disability Schedule). This Position Paper reports on recommendations specifically for anxiety, depression, obsessive-compulsive disorder, and post-traumatic stress disorder in children and young people aged between 6 and 24 years. An international ICHOM working group of 27 clinical, research, and lived experience experts formed a consensus through teleconferences, an exercise using an adapted Delphi technique (a method for reaching group consensus), and iterative anonymous voting, supported by sequential research inputs. A systematic scoping review identified 70 possible outcomes and 107 relevant measurement instruments. Measures were appraised for their feasibility in routine practice (ie, brevity, free availability, validation in children and young people, and language translation) and psychometric performance (ie, validity, reliability, and sensitivity to change). The final standard set recommends tracking symptoms, suicidal thoughts and behaviour, and functioning as a minimum through seven primarily patient-reported outcome measures: the Revised Children's Anxiety and Depression Scale, the Obsessive Compulsive Inventory for Children, the Children's Revised Impact of Events Scale, the Columbia Suicide Severity Rating Scale, the KIDSCREEN-10, the Children's Global Assessment Scale, and the Child Anxiety Life Interference Scale. The set's recommendations were validated through a feedback survey involving 487 participants across 45 countries. The set should be used alongside the anxiety and depression standard set for adults with clinicians selecting age-appropriate measures.


Asunto(s)
Ansiedad/diagnóstico , Depresión/diagnóstico , Trastorno Obsesivo Compulsivo/diagnóstico , Psicometría/métodos , Trastornos por Estrés Postraumático/diagnóstico , Adolescente , Niño , Consenso , Humanos , Internacionalidad , Perfil de Impacto de Enfermedad , Resultado del Tratamiento , Adulto Joven
14.
Support Care Cancer ; 29(1): 239-246, 2021 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-32346797

RESUMEN

PURPOSE: Breast cancer (BC) patients report complex negative emotions, including symptoms of anxiety, depression, and posttraumatic stress disorder (PTSD). What's more, being diagnosed with cancer also has a negative impact on the patient's family such as additional financial burden and care needs, leading to higher levels of caregiver burden. This study aimed to explore whether dispositional mindfulness could alleviate multiple negative emotions of BC patients and to investigate the mediating effect of caregiver burden on the relationship between the patients' dispositional mindfulness and negative emotions. METHODS: A sample of 230 Chinese BC patients receiving chemotherapy and their caregivers voluntarily participated in the study by completing a set of questionnaires including the Mindfulness Attention Awareness Scale, the Caregiver Self-assessment Questionnaires, the General Anxiety Symptoms Scale, the Patient Health Questionnaire, and the PTSD Symptom Scale. Structural equation modeling was used to test the relationship between dispositional mindfulness, negative emotions, and caregiver burden. RESULTS: Dispositional mindfulness was significantly and negatively correlated with negative emotions, including anxiety, depression, and PTSD among the BC patients. Structural equation modeling showed that caregiver burden mediated the relation between patients' dispositional mindfulness and negative emotions. CONCLUSION: BC patients with higher levels of dispositional mindfulness showed less negative emotions. The results of the mediation analysis suggested that higher levels of dispositional mindfulness of breast cancer patients could decrease the caregivers' perceived burden and, in turn, relieve patients' negative emotions. Dispositional mindfulness was beneficial to breast cancer patients as well as their caregivers, indicating that mindfulness-based interventions targeting distress in patient-caregiver dyads would be more effective than what interventions for patients alone.


Asunto(s)
Neoplasias de la Mama/psicología , Cuidadores/psicología , Atención Plena/métodos , Pacientes/psicología , Adulto , Anciano , Ansiedad/psicología , Atención , Neoplasias de la Mama/tratamiento farmacológico , China , Depresión/psicología , Femenino , Humanos , Masculino , Persona de Mediana Edad , Personalidad , Psicometría/métodos , Rol , Trastornos por Estrés Postraumático/psicología , Encuestas y Cuestionarios
15.
Support Care Cancer ; 29(1): 247-254, 2021 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-32346799

RESUMEN

PURPOSE: Hematopoietic stem cell transplant (HSCT) recipients are at risk for cognitive decline. Cross-sectional studies show patients' complaints of cognitive decline do not correlate well with concurrently measured objective neuropsychological performance, but rather with emotional variables and health-related quality of life. This longitudinal study investigated whether patient self-report of cognitive status would be concordant with objectively measured neuropsychological performance after accounting for change from their own pre-transplant objective baseline. METHODS: Pre-HSCT and at 30 and 100 days post-HSCT, 46 patients underwent computerized neuropsychological testing (CogState) and completed surveys assessing patient-reported cognitive complaints, emotional symptoms (depression, anxiety), sleep quality, daytime sleepiness, and physical and functional well-being. Correlations were calculated between cognitive complaints and neuropsychological performance (at each time-point and across time-points), as well as all other patient-reported variables. RESULTS: Patient-reported cognitive complaints were largely independent of concurrently assessed objective neuropsychological performance. Uniquely, our longitudinal data demonstrated significant medium to large effect size associations between subjective cognitive complaints post-HSCT with objectively measured change from pre-HSCT in attention, visual learning, and working memory (p < .05-.01). Subjective cognitive complaints post-HSCT were also associated with depression, anxiety, daytime sleepiness and physical well-being (p < .05-.001). CONCLUSIONS: Patients appear better able to assess their cognitive functioning relative to their own baseline and changes across time rather than relative to community norms. Thus, patient complaints of cognitive compromise justify further in-depth neuropsychological, emotional, and functional assessment. Future research into relationships between cognitive complaints and neuropsychological performance should account for changes in performance over time.


Asunto(s)
Disfunción Cognitiva/psicología , Trasplante de Células Madre Hematopoyéticas/psicología , Pruebas Neuropsicológicas , Calidad de Vida/psicología , Autoevaluación , Receptores de Trasplantes/psicología , Adulto , Ansiedad/psicología , Atención , Cognición/fisiología , Estudios Transversales , Femenino , Humanos , Estudios Longitudinales , Masculino , Memoria a Corto Plazo/fisiología , Persona de Mediana Edad , Psicometría/métodos , Autoinforme , Encuestas y Cuestionarios
16.
J Psychosom Res ; 141: 110329, 2021 02.
Artículo en Inglés | MEDLINE | ID: mdl-33316631

RESUMEN

OBJECTIVE: The alexithymia personality construct encompasses difficulties identifying and describing feelings, restricted imaginal processes, and an externally oriented cognitive style. The construct was derived initially from observations of patients with classic psychosomatic diseases. The self-report 20-item Toronto Alexithymia Scale (TAS-20) is the most frequently used measure to assess alexithymia. A concern associated with the TAS-20 is whether individuals can accurately self-report difficulties identifying and describing feelings if they are deficient in those abilities. To address this issue, we sought to develop and validate an informant form (version) of the TAS-20, the 20-item Toronto Alexithymia Scale - Informant Form (TAS-20-IF). METHOD: We employed a three-phase methodological strategy. In the first phase, items from the TAS-20 were re-written into a third person version by a team of experts. In the second phase, the "traditional" three-factor structure was tested in the TAS-20-IF using confirmatory factor analysis in a large sample of young adults (N = 857). The third phase was conducted with another sample (N = 430) composed of "informants" (n = 215), who completed the TAS-20-IF, and "targets" (n = 215), who completed the TAS-20 (informants were nominated by the targets). RESULTS: The psychometric properties (items and scales) of both versions were adequate and the three-factor structure of the TAS-20-IF was supported; the correlation between the two versions was statistically significant and the factor structures were similar. CONCLUSION: Although further research is needed to replicate these findings, especially in clinical samples, the results support the reliability and validity of the TAS-20-IF.


Asunto(s)
Síntomas Afectivos/psicología , Psicometría/métodos , Adolescente , Adulto , Disacáridos , Femenino , Humanos , Masculino , Reproducibilidad de los Resultados , Encuestas y Cuestionarios , Adulto Joven
17.
Diabetes Res Clin Pract ; 172: 108629, 2021 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-33347898

RESUMEN

AIMS: The aim of this study was to develop a Diabetes Mellitus Treatment Adherence Scale (DMTAS) to fill the gap in the internationally accepted comprehensive scale. METHODS: An initial item pool for the Diabetes Mellitus Treatment Adherence Scale (DMTAS) was generated based on a review of the literature and an open-ended interview. An expert group screened this initial item pool using an item-level content validity index. Then, pilot testing with 116 participants was conducted. After removing redundant and cross-loading items by exploratory factor analysis, 630 subjects were recruited to evaluate the reliability and validity of DMTAS. Analyses included internal consistency, test-retest reliability, split-half reliability, construct validity, convergent validity, and discriminant validity analysis. RESULTS: The final DMTAS consisted of 19 items and six dimensions. The results of the exploratory factor analysis indicated that the variances of each factor explained were 23.07%, 12.28%, 9.50%, 8.25%, 7.85%, and 5.80%, and all six factors explained 66.75% of the variance in the 19 items. The items' factor loadings were all above 0.6. The results of the confirmatory factor analysis indicated that adequate fit indices (χ2 value to degrees of freedom = 3.62; root mean square error of approximation = 0.06; goodness-of-fit index = 0.92) were achieved. The Cronbach's alpha coefficient was 0.79, test-retest reliability was 0.73, and split-half reliability was 0.75. CONCLUSIONS: The DMTAS showed good validity and reliability to measure the out-of-hospital treatment adherence in patients with diabetes mellitus.


Asunto(s)
Diabetes Mellitus/terapia , Psicometría/métodos , Cumplimiento y Adherencia al Tratamiento/estadística & datos numéricos , Femenino , Humanos , Masculino , Reproducibilidad de los Resultados , Encuestas y Cuestionarios , Estudios de Validación como Asunto
18.
Support Care Cancer ; 29(1): 499-507, 2021 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-32405964

RESUMEN

OBJECTIVE: To evaluate the implementation of a cervix cancer-specific patient-reported outcome measure, the European Organization for Research and Treatment of Cancer Quality of Life Cervical Cancer module (EORTC QLQ-CX24), into gynecologic oncology clinics. METHODS: This was a prospective, multi-institutional, cross-sectional study involving cervix cancer patients previously treated with curative intent radiotherapy who were attending routine follow-up appointments. Between January 2017 and August 2018, eligible patients were approached to complete the EORTC QLQ-CX24 prior to their clinical encounter and then review it with their oncologist. Patient and oncologist experience was evaluated using Feedback Questionnaires following the encounter. Descriptive statistics were used to summarize the results of the EORTC QLQ-CX24 and Feedback Questionnaires. Open-ended questions within the Feedback Questionnaires were analyzed to identify themes. RESULTS: Eighty-four patients consented to participate in the study. Of these, 80 (95.2%) completed the EORTC QLQ-CX24 and 76 (90.4%) completed both the EORTC QLQ-CX24 and the Feedback Questionnaires. There were high rates of completion for most items within the EORTC QLQ-CX24 (93-98%), except for items pertaining to vaginal symptoms and sexual health (34-35%). All eligible oncologists participated (n = 9). Overall, patients and oncologists positively endorsed use of the questionnaire during clinical encounters. The majority of patients (80%) and oncologists (89%) reported use of the questionnaire improved communication, including discussion of sensitive topics. Interestingly, only a minority of patients and oncologists stated a perceived preference for electronic completion (18% and 44%, respectively). CONCLUSION: Implementation of the EORTC QLQ-CX24 in gynecologic oncology clinics was feasible and acceptable according to patients and oncologists.


Asunto(s)
Instituciones de Atención Ambulatoria/normas , Medición de Resultados Informados por el Paciente , Psicometría/métodos , Calidad de Vida/psicología , Neoplasias del Cuello Uterino/terapia , Adulto , Anciano , Anciano de 80 o más Años , Estudios Transversales , Estudios de Factibilidad , Femenino , Humanos , Masculino , Persona de Mediana Edad , Proyectos Piloto , Estudios Prospectivos , Encuestas y Cuestionarios
19.
PLoS One ; 15(12): e0243057, 2020.
Artículo en Inglés | MEDLINE | ID: mdl-33326436

RESUMEN

BACKGROUND: RDoC conceptualises psychopathology as neurobiologically-rooted behavioural psychological "constructs" that span dimensionally from normality to pathology, but its clinical utility remains controversial. AIM: To explore RDoC's potential clinical utility by examining antidepressant effectiveness through Negative Valence Systems (NVS) domain constructs. METHOD: A systematic review was conducted on Web of Science, MEDLINE, EMBASE and PsycINFO for antidepressant trials that included psychometric instruments assessed by Watson, Stanton & Clark (2017) to represent NVS constructs of Acute Threat, Potential Threat and Loss. RESULTS: 221 citations were identified; 13 were included in qualitative synthesis, none for quantitative analysis. All suffered from significant bias risks. 9 antidepressants were investigated, most within 1 construct, and most were found to be effective. Paroxetine, citalopram and fluvoxamine were found to be effective for Acute Threat, fluoxetine, desvenlafaxine and sertraline for Potential Threat, and sertraline, fluvoxamine, fluoxetine and desvenlafaxine effective for Loss. Nefazodone was found to be ineffective for acute fear. CONCLUSION: Preliminary evidence supports RDoC NVS constructs' clinical utility in assessing antidepressant effectiveness, but lack of discriminant validity between Potential Threat and Loss supports their recombination into a single Distress construct. Finding of effectiveness within "normal" construct levels support the utility of a dimensional approach. Testable hypotheses were generated that can further test RDoC's clinical utility.


Asunto(s)
Antidepresivos/uso terapéutico , Trastorno Depresivo/tratamiento farmacológico , Psicometría/métodos , Algoritmos , Citalopram/uso terapéutico , Ensayos Clínicos como Asunto , Trastorno Depresivo/clasificación , Succinato de Desvenlafaxina/uso terapéutico , Fluoxetina/uso terapéutico , Fluvoxamina/uso terapéutico , Humanos , Paroxetina/uso terapéutico , Sertralina/uso terapéutico , Resultado del Tratamiento
20.
Medicine (Baltimore) ; 99(52): e23897, 2020 Dec 24.
Artículo en Inglés | MEDLINE | ID: mdl-33350786

RESUMEN

BACKGROUND: Breast-cancer related lymphedema (BCRL) is a common condition among breast cancer survivors that could impact the quality of life (QoL) of patients. Exploring the QoL of the patients with BCRL using valid and reliable QoL is crucial to capture the status of this important aspect hence appropriate intervention could be implement to patient. However, so far no scientific review is available, which reports the psychometric properties of the QoL questionnaires used in BCRL. The purpose of this systematic review is to comprehensively assess the psychometric properties of QoL questionnaires in patients with BCRL. METHODS: We will perform comprehensive searches of published studies in electronic databases such as Medline (via Ovid), EBSCOhost, PubMed, Scopus, and Web of Science by using the following search terms: "quality of life"; "breast cancer"; "upper limb"; "lymphedema"; "questionnaire"; and "measurement properties." Only full-text articles in English language are included. Two reviewers will independently conduct the article selection, data extraction, and quality assessment. Any possible conflict between the 2 reviewers is going to be solved with the help of a third reviewer. The Consensus-based Standards for the Selection of Health Measurement Instrument (COSMIN) checklist and manual will be used to assess the selected study quality. RESULTS: This review will provide an updated overview of available lymphedema-specific questionnaires used in BCRL population and then recommend the most valid and reliable QoL questionnaire for clinical and research use in patients with BCRL. CONCLUSION: This review may help the clinician and researcher to find an updated overview of various questionnaires used to assess BCRL patients' QoL. ETHICS AND DISSEMINATION: This review will use data from published studies. Therefore, ethical approval is not required prior to this review. The results of this review will be published in a peer-reviewed journal or presented at conferences. STUDY REGISTRATION: OSF osf.io/8xwym.


Asunto(s)
Linfedema del Cáncer de Mama/psicología , Psicometría/métodos , Calidad de Vida , Femenino , Humanos , Proyectos de Investigación , Encuestas y Cuestionarios , Revisiones Sistemáticas como Asunto
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