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1.
Epidemiol Psychiatr Sci ; 29: e89, 2020 Jan 09.
Artículo en Inglés | MEDLINE | ID: mdl-31915101

RESUMEN

Because of the increasing global cancer burden and the WHO epidemiological estimation in terms of number of new cases, deaths and long-survivors worldwide, an interdisciplinary approach, including psychiatric and psychoncology care is mandatory in oncology. About 50% of cancer patients have in fact been shown to have psychiatric disorders, including clinically significant emotional distress and/or unrecognised or untreated psychosocial conditions as a consequence of cancer at some point during the cancer trajectory. These problems are associated with the patient's reduction of quality of life, impairment in social relationships, longer rehabilitation time, poor adherence to treatment and abnormal illness behaviour. Because of these reasons, the internationally recognised IPOS Standards of Quality Cancer Care underline that psychosocial cancer care should be recognised as a universal human right; that quality cancer care must integrate the psychosocial domain into routine care and that distress should be measured as the sixth vital sign after temperature, blood pressure, pulse, respiratory rate and pain. In spite of social inequalities still existing between countries in the organisation and implementation of psychosocial oncology, recommendations and guidelines are available regarding screening, assessment and intervention to psychiatric and psychosocial disorders across the trajectory of cancer. The clinical and political agenda of psychoncology as a mandatory component of a whole comprehensive person-centred approach to cancer should therefore be acknowledged in psychiatry.


Asunto(s)
Trastornos Mentales/etiología , Neoplasias/psicología , Calidad de Vida , Humanos , Oncología Médica , Trastornos Mentales/psicología , Neoplasias/complicaciones , Psicooncología , Derivación y Consulta
2.
Epidemiol Psychiatr Sci ; 29: e86, 2020 Jan 09.
Artículo en Inglés | MEDLINE | ID: mdl-31915100

RESUMEN

With cancer incidence increasing over time worldwide, attention to the burden of psychiatric and psychosocial consequences of the disease is now mandatory for both cancer and mental health care professionals. Psychiatric disorders have been shown to affect at least 30-35% of cancer patients during all phases of the disease trajectory, and differ in nature according to stage and type of cancer. Other clinically relevant distressing psychosocial and existential conditions (e.g. demoralisation, health anxiety, loss of meaning and existential distress) not included as 'disorders' in the usual diagnostic and nosological systems (i.e. meta-diagnostic conditions) have also been shown to be present in another 15-20% of cancer patients. In this editorial, we will present a summary of the extensive literature regarding the epidemiology of the several psychosocial disorders affecting cancer patients as a cause of distress and burden to be taken into consideration and addressed in cancer care through evidence-based intervention.


Asunto(s)
Trastornos Mentales/complicaciones , Salud Mental , Neoplasias/psicología , Estrés Psicológico/psicología , Ansiedad/etiología , Disfunción Cognitiva/etiología , Costo de Enfermedad , Depresión/etiología , Humanos , Trastornos Mentales/psicología , Neoplasias/complicaciones , Neoplasias/diagnóstico , Psicooncología , Calidad de Vida , Estrés Psicológico/diagnóstico , Estrés Psicológico/etiología
3.
Pathologe ; 40(Suppl 3): 347-349, 2019 Dec.
Artículo en Alemán | MEDLINE | ID: mdl-31705241

RESUMEN

The label cancer in itself leads to complex psychological reactions in patients that are closely related to previous experiences and self-image. A cancer diagnosis can lead to increased distress and subsequent mental comorbidity such as depression or anxiety disorders. The responsibility of the pathologist, as the person who first uses the label cancer, is high. The pathologist must be conscious and focus not only on the accuracy of the anatomical pathology, but also on the potential influences the wording may have on the mental health of the patient. The word "carcinoma" should only be used in the case of tumors with the respective biological behavior. The example of non-invasive follicular thyroid neoplasm with papillary-like nuclear features shows that changing a label can lead to an improvement in distress and quality of life.


Asunto(s)
Adaptación Psicológica , Salud Mental , Neoplasias/psicología , Estrés Psicológico , Humanos , Patólogos/psicología , Relaciones Profesional-Paciente , Psicooncología/métodos , Calidad de Vida
4.
Ther Umsch ; 76(4): 219-224, 2019 Sep.
Artículo en Alemán | MEDLINE | ID: mdl-31498042

RESUMEN

Standardized distress screening programs do not replace discussing distress and psychosocial care needs with patients Abstract. Recommendations regarding the communication with the patient on the basis of the distress thermometer. In accordance with international standards, one of the high priority objectives is to introduce routine distress screening during cancer care in order to accurately identify those patients who are most in need of psycho-oncological treatment and to ensure that patients have access to appropriate supportive care services. The practice has been shown to increase the effectiveness of identifying comorbidities such as depression and anxiety, and to increase the number of referrals to psycho-oncological care. However, only a moderate proportion of the distressed patients also accepts referral to or utilizes psycho-oncological support. To optimize distress screening programs, patients' supportive care needs should be addressed and discussed in routine clinical practice. The present manuscript offers recommendations regarding the actual communication with the patient on the basis of a screening tool such as the distress thermometer.


Asunto(s)
Neoplasias , Psicooncología , Humanos , Tamizaje Masivo , Neoplasias/psicología , Derivación y Consulta , Estrés Psicológico
5.
Pediatr Blood Cancer ; 66(10): e27889, 2019 10.
Artículo en Inglés | MEDLINE | ID: mdl-31276304

RESUMEN

OBJECTIVE: Currently, no evidence-based psychosocial clinical care pathways (PCCP) exist to triage psychosocial risk levels and guide delivery of psychosocial care to youth receiving a hematopoietic stem cell transplantation (HCT) and their families. The purpose of this paper is to describe the use of qualitative research methodologies to develop PCCP in pediatric HCT consistent with the Standards for Psychosocial Care developed for children with cancer. METHODS: We previously used qualitative methodologies to interview parents to identify four principles to inform the development of PCCPs. Then in this study a focus group with parents and multidisciplinary clinicians was conducted to assess the acceptability of the PCCP, suggest modifications, and provide input on its use. RESULTS: The PCCP is six-step pathway, starting with a standardized screening assessment with the Psychosocial Assessment Tool (PAT-HCT) that identifies the family's specific care needs. The focus group data support overall assessment with the PAT-HCT and the care principles underlying this approach. CONCLUSIONS: This PCCP is a systemic multidisciplinary model for providing psychosocial care that is ready for the next stage of development and evaluation in clinical care.


Asunto(s)
Vías Clínicas , Trasplante de Células Madre Hematopoyéticas/psicología , Neoplasias/terapia , Psicooncología/métodos , Adolescente , Adulto , Niño , Preescolar , Femenino , Grupos Focales , Humanos , Lactante , Masculino , Neoplasias/psicología , Psicometría/métodos , Adulto Joven
6.
PLoS One ; 14(6): e0218439, 2019.
Artículo en Inglés | MEDLINE | ID: mdl-31220129

RESUMEN

PURPOSE: To learn whether reported associations between major psychosocial stressors and lung cancer are independent of smoking history. METHODS: Subjects were at least 25 years old and without lung cancer at enrollment in the United States Census Bureau's National Longitudinal Mortality Survey in 1995-2008. Follow-up via Surveillance Epidemiology and End Results and National Death Index continued until lung cancer diagnosis, death, or December 2011. Involuntary unemployment, widowhood, and divorce, stratified by sex, were tested for association with subsequent lung cancer using proportional hazards regression for competing risks. Smoking status, years smoked, cigarettes per day, and years since quitting were imputed when missing. RESULTS: At enrollment, subjects (n = 100,733, 47.4% male, age 49.1(±15.8) years) included 17.6% current smokers, 23.5% former smokers. Of men and women, respectively, 11.3% and 15.0% were divorced/separated, 2.9% and 11.8% were widowed, and 2.9% and 2.3% were involuntarily unemployed. Ultimately, 667 subjects developed lung cancer; another 10,071 died without lung cancer. Adjusted for age, education, and ancestry, lung cancer was associated with unemployment, widowhood, and divorce/separation in men but not women. Further adjusted for years smoked, cigarettes per day, and years since quitting, none of these associations was significant in either sex. CONCLUSIONS: Once smoking is accounted for, psychosocial stressors in adulthood do not independently promote lung cancer. Given their increased smoking behavior, persons experiencing stressors should be referred to effective alternatives to smoking and to support for smoking cessation.


Asunto(s)
Neoplasias Pulmonares/epidemiología , Psicooncología/tendencias , Percepción Social , Fumar Tabaco/epidemiología , Adulto , Anciano , Femenino , Humanos , Neoplasias Pulmonares/psicología , Masculino , Persona de Mediana Edad , Análisis Multivariante , Estudios Prospectivos , Factores de Riesgo , Cese del Hábito de Fumar , Fumar Tabaco/efectos adversos , Estados Unidos/epidemiología
7.
Eur J Cancer Care (Engl) ; 28(5): e13127, 2019 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-31245886

RESUMEN

OBJECTIVE: To compare patients' experiences with a systematic, integrated psycho-oncological care (IC) model to experiences with "care as usual" (CAU). METHODS: To improve patients' knowledge about psychosocial support options and to facilitate use, an IC model was developed by psycho-oncologists and a health insurance company and implemented in one German cancer care facility. Using a parallel, non-randomised design, these patients' experiences were compared to CAU patients. In 2015, both patient groups received questionnaires 6-12 months post-inpatient treatment. Main outcomes were awareness, use and opinion of psycho-oncological care (PC) and anxiety level (Generalized Anxiety Disorder Scale (GAD-7)). RESULTS: 228 patients (IC = 90; CAU = 138) participated (response rate 24%). More IC patients felt adequately informed about PC (63% vs. 46%, ORadj : 2.5 (CI: 1.3-4.8); p = 0.008). More IC patients recalled being offered various support options and had had at least one PC discussion (44% vs. 33%, ORadj of IC patient saying "yes" instead of "No, didn't want to" compared to a CAU patient: 0.4 (CI: 0.2-0.8); p = 0.01). More IC patients rated their care as good/excellent (49% vs. 38%, ORadj : 1.8 (CI: 0.7-4.1; p = 0.2)). Anxiety levels were similar (GAD-7 score>=10: IC 34% vs. CAU 28%; p = 0.4). CONCLUSION: Structured psycho-oncological care had some positive results on the outcomes, but anxiety levels did not differ.


Asunto(s)
Prestación de Atención de Salud/organización & administración , Conocimientos, Actitudes y Práctica en Salud , Neoplasias/terapia , Aceptación de la Atención de Salud , Psicooncología/organización & administración , Adulto , Anciano , Anciano de 80 o más Años , Ansiedad/psicología , Femenino , Alemania , Humanos , Masculino , Persona de Mediana Edad , Neoplasias/psicología , Encuestas y Cuestionarios , Adulto Joven
8.
Notas enferm. (Córdoba) ; 19(33): 18-28, jun.2019.
Artículo en Español | LILACS | ID: biblio-1008056

RESUMEN

De igual importancia como es el cuidado de la enfermera en el entorno clínico de la enfermedad lo es el abordaje de cuidar de las necesidades emocionales de los pacientes, esta realidad a la que debe hacer frente la enfermera evidencia lo difícil de la situación en el manejo del paciente oncológico en recidiva. Objetivo: Interpretar las experiencias y los modos de afrontamiento de las enfermeras oncológicas frente al paciente en recidiva. Para la realización de este estudio se utilizó un diseño de investigación cualitativa de tipo fenomenológico, una entrevista dialógica a 17 enfermeros del servicio de Onco hematología. Resultados: Después de analizar las entrevistas, se identifcaron dos temas principales: Emociones y Actitudes, con categorías, entre ellas: Impotencia, Frustración, Ira, Angustia, Tristeza, Compasión y Lástima Represión- Silencio, Aceptación-Escucha activa, Humor, Negación e Indiferencia. Conclusión: Al fnalizar el análisis de todos los hallazgos se puede concluir que: las Emociones y Sentimientos de las Enfermeras ante la realidad de cuidar un paciente en recidiva fueron: Impotencia y Frustración - Ira e Insatisfacción ­ Angustia y Tristeza - Lastima y Compasión. Las Actitudes y Modos de Afrontamientos identifcados en las mayorías de las profesionaless son: Represión y Silencio, Aceptación - Escucha y humor y Negación e Indiferencia(AU)


Equally important is the care of the nurse in the clinical environment of the disease is the approach of taking care of the emotional needs of patients, this reality a the one that the nurse must face reveals the diffcult situation in the management of the patient oncology in relapse. Objective: To interpret the experiences and coping methods of oncological nurses with respect to relapsing patients. Methodology: to carry out this study we used a qualitative research design of phenomenological type in which a colloquial or dialogical interview was used to 17 nurses from the Onco hematology service. Results: After analyzing the interviews, two main themes were identifed: emotions and attitudes each with categories, among them: impotence, frustration, anger, anguish, sadness, compassion and hurts, repression-silence, active acceptanceListening, Humor, Negation and indifference. Conclusion: At the end of the analysis of all the fndings, it can be concluded that: the emotions and feelings of the nurses, before the reality of taking care of a patient in relapse were: impotence and frustration - anger and dissatisfaction - anguish and sadness - hurt and compassion. Attitudes and modes of confrontations identifed in the majorities of proffesion are: repression and silence, acceptance - listening and humor and negation and indifference(AU)


Igualmente importante é o cuidado do enfermeiro no ambiente clínico da doença ser a abordagem de cuidar das necessidades emocionais dos pacientes, essa realidade a que o enfermeiro deve enfrentar revela a difícil situação no manejo do paciente. oncologia na recaída. Objetivo: Interpretar as experiências e modos de enfrentamento dos enfermeiros oncológicos em relação aos pacientes recidivantes. Metodologia: para realizar este estudo utilizou-se um delineamento de pesquisa qualitativa do tipo fenomenológico em que foi utilizada uma entrevista coloquial ou dialógica para 17 enfermeiros do serviço de hematologia Onco. Resultados: Após a análise das entrevistas, foram identifcados dois temas principais: emoções e atitudes cada uma com categorias, entre elas: impotência, frustração, raiva, angústia, tristeza, compaixão e mágoa, repressão-silêncio, aceitação ativa-Escuta, Humor, Negação e Conclusão: Ao fnal da análise de todos os achados, pode-se concluir que: as emoções e sentimentos das enfermeiras diante da realidade de cuidar de um paciente em recaída foram: impotência e frustração - raiva e insatisfação - angústia e tristeza - mágoa e compaixão. As atitudes e os modos de confrontos identifcados nas maiorias da profssão são: repressão e silêncio, aceitação - escuta e humor e negação e indiferença(AU)


Asunto(s)
Humanos , Enfermería Oncológica , Recurrencia , Conocimientos, Actitudes y Práctica en Salud , Psicooncología , Atención al Paciente
9.
Rev Med Suisse ; 15(651): 1007-1009, 2019 May 15.
Artículo en Francés | MEDLINE | ID: mdl-31091033

RESUMEN

After a cancer diagnosis, emotional distress is common. We currently have many conventional treatments such as radiotherapy, surgery, chemotherapy, targeted therapies and immunotherapy to fight cancer. However, these treatments are associated with significant adverse effects, which may themselves be the cause of psychic suffering. Hypnosis has been shown to be effective in relieving some of these symptoms, but its practice is still limited in oncology. This is as much related to ignorance about the discipline as to a lack of large randomized prospective studies. This article provides an overview of hypnotherapy and its benefits in the field of psycho-oncology and discusses the prospects for the future.


Asunto(s)
Hipnosis , Neoplasias , Psicooncología , Humanos , Inmunoterapia , Neoplasias/psicología , Neoplasias/terapia , Estudios Prospectivos
10.
Pediatr Blood Cancer ; 66(8): e27789, 2019 08.
Artículo en Inglés | MEDLINE | ID: mdl-31058418

RESUMEN

The first decade of adolescent and young adult (AYA) oncology psychosocial care and research (2005-2015) was driven by a normative, developmental framework that assumed a generalizable life experience for AYAs that is distinct from both younger children and older adults. As we proceed through a second decade, new considerations emerge regarding diversity of life experiences as occurring within and influenced by a complex global context. The purpose of this paper is to review and provide commentary on the impact of global and contextual conditions on AYAs. We expound upon the effects of precarious labor conditions, changing timetables and priorities for developmental tasks, sexual and gender plurality, and expanding cultural diversity. We discuss the implications of social genomics and technology and social media for enhancing precision psychosocial medicine. To build a forward-looking approach, this paper calls for tailored, multilevel treatments that consider variability of AYAs within the social and global contexts in which they live.


Asunto(s)
Adaptación Psicológica , Neoplasias/psicología , Neoplasias/terapia , Psicooncología/métodos , Calidad de Vida , Apoyo Social , Estrés Psicológico , Adolescente , Adulto , Humanos , Adulto Joven
11.
Support Care Cancer ; 27(9): 3175-3178, 2019 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-31062108

RESUMEN

PURPOSE: As survival after cancer diagnosis increases, patients are increasingly turning toward integrative therapies (e.g., yoga, acupuncture, massage) to manage acute and chronic concerns related to cancer treatment and survivorship. As such, integrative medicine programs devoted to combining conventional Western cancer care with complementary treatments such as yoga, acupuncture, botanicals, and homeopathy are increasingly common in cancer communities around the world. However, few integrative medicine programs have included psycho-oncology providers in order to systematically evaluate and treat psychological and behavioral health factors affecting adjustment to cancer. METHODS: A pilot program was initiated at a large academic medical center to explore benefits of a collaborative clinic visit conducted with psycho-oncology and integrative medicine within an existing supportive oncology clinic. Collaborative medical and psychological interventions were provided to enhance patient quality of life and reduce symptom burden. RESULTS: Forty-nine patients were seen via the dyadic consultation model. Sixty-eight percent of patients rated their emotional distress at or above clinical cutoffs, indicating unmet supportive care needs. The majority of patients seen were White, non-Hispanic, and female. CONCLUSIONS: Many cancer patients and survivors report persistent emotional distress and chronic physical problems associated with their diagnosis and treatment. The types of patients seen in this pilot program raise concern about ongoing inequalities in access to integrative medicine and psycho-oncology services, which may contribute to downstream health disparities and poorer clinical outcomes. Future directions will explore billing practices, financial sustainability, and methods to increase access to this type of program for demographically diverse individuals across cancer populations.


Asunto(s)
Supervivientes de Cáncer/psicología , Medicina Integral/métodos , Neoplasias/psicología , Psicooncología/métodos , Calidad de Vida/psicología , Apoyo Social , Acupuntura , Femenino , Humanos , Masculino , Masaje , Oncología Médica/métodos , Persona de Mediana Edad , Derivación y Consulta , Investigación , Yoga
12.
BMC Cancer ; 19(1): 344, 2019 Apr 11.
Artículo en Inglés | MEDLINE | ID: mdl-30975116

RESUMEN

BACKGROUND: This study protocol describes the clinical trial of the Fex-Can intervention, a web-based self-help program targeting sexual dysfunction and fertility-related distress. The psycho-educational intervention has been developed in collaboration with young patients with cancer and shown to be feasible. The primary objective is to determine whether the Fex-Can intervention, provided in addition to standard care, is superior to standard care in terms of reduction of sexual dysfunction and fertility-related distress directly after end of the 12-week program. The trial also aims to determine whether the intervention has an effect on the secondary outcomes including health-related quality of life, anxiety, depression, body image, fertility knowledge, and self-efficacy related to sexuality and fertility. METHODS: The trial has an randomized clinical trial (RCT) design with two parallel arms. The active groups receive either the version of the Fex-Can intervention targeting sexual problems or the version targeting fertility-related distress. Control groups receive standard care. Primary outcomes will be sexual function assessed with the Patient-Reported Outcomes Measurement Information System® Sexual Function and Satisfaction measure version 2.0 (SexFS) and fertility-related distress assessed with the Reproductive Concerns After Cancer scale (RCAC). The effect of the intervention will be evaluated directly after end of the program. Primary and secondary outcomes will also be assessed at the short- (12 weeks after end of program) and long-term (20 and 44 months after end of program) follow-up. At least 64 completers will be needed in each arm (total n = 256) to achieve adequate statistical power in the analyses. In order to increase the understanding of how the intervention brings about a possible change, semi-structured interviews will additionally be conducted with a purposeful sample shortly after completion of the intervention. DISCUSSION: If the Fex-Can intervention proves to be efficacious the necessary steps will be taken to implement it in routine care for young adults diagnosed with cancer. Healthcare could thereby be provided with an easily accessible, cost-effective intervention to offer to young adults suffering from fertility-related distress or sexual problems. TRIAL REGISTRATION: ISRCTN36621459 . Registered 25 January 2016.


Asunto(s)
Fertilidad , Neoplasias/psicología , Educación del Paciente como Asunto/métodos , Psicoterapia/métodos , Automanejo/métodos , Disfunciones Sexuales Psicológicas/rehabilitación , Adulto , Ansiedad/psicología , Ansiedad/rehabilitación , Imagen Corporal/psicología , Supervivientes de Cáncer/psicología , Depresión/psicología , Depresión/rehabilitación , Femenino , Humanos , Internet , Masculino , Neoplasias/terapia , Psicooncología/métodos , Calidad de Vida , Ensayos Clínicos Controlados Aleatorios como Asunto , Autoeficacia , Disfunciones Sexuales Psicológicas/psicología , Sexualidad/psicología , Estrés Psicológico/psicología , Estrés Psicológico/rehabilitación , Adulto Joven
13.
Pediatr Blood Cancer ; 66(8): e27762, 2019 08.
Artículo en Inglés | MEDLINE | ID: mdl-31006986

RESUMEN

BACKGROUND: Genetic testing in children for hereditary cancer predisposition syndromes (CPSs) involves unique psychosocial and family-systems considerations. This retrospective study explored the perspectives and emotional reactions of parents and young adults about cancer-related genetic counseling and testing offered to children in the family. METHODS: Families were eligible if they had considered genetic testing for a child (≤18 years) within the family. Parents and young adults ≥16 years participated in semistructured interviews that we coded and identified key themes. We also quantitively assessed emotional distress, quality of life, impact of receiving genetic cancer risk information, and service-related satisfaction. RESULTS: From 35 interviews (26 parents, nine young adults), we identified themes spanning families' experiences from referral to genetic services to the longer term impact of receiving information about family cancer risk from testing of children. Supported by quantitative data, families generally described positive experiences of genetic services and reported benefits to genetic testing. Nevertheless, families faced unique emotional and relational challenges that changed over the family lifecycle. Those challenges differed according to whether the child was asymptomatic or had a cancer diagnosis at testing. Parents of children with cancer described genetic consultations as a secondary concern to the immediate stressors of their child's treatment. CONCLUSIONS: We conclude that the successful integration of cancer genetics into pediatric cancer care requires specialist pediatric genetic counseling and psychosocial support services that are able to respond to families' changing needs.


Asunto(s)
Asesoramiento Genético , Pruebas Genéticas/métodos , Neoplasias/diagnóstico , Neoplasias/psicología , Padres/psicología , Apoyo Social , Estrés Psicológico , Adaptación Psicológica , Adulto , Anciano , Toma de Decisiones , Emociones , Femenino , Estudios de Seguimiento , Predisposición Genética a la Enfermedad , Humanos , Masculino , Persona de Mediana Edad , Neoplasias/genética , Psicooncología , Estudios Retrospectivos , Medición de Riesgo , Adulto Joven
14.
Pap. psicol ; 40(1): 39-45, ene.-abr. 2019.
Artículo en Español | IBECS | ID: ibc-181997

RESUMEN

Los avances en la detección temprana y en el tratamiento del cáncer han conllevado un incremento de las personas que han superado esta enfermedad, llegando a constituir en la actualidad el 5% de la población en nuestro país. Tal y como señala la Sociedad Española de Oncología Médica, esta situación plantea nuevos desafíos que requieren, entre otros, la identificación y atención a la calidad de vida y las necesidades psicosociales de esta creciente población. El objetivo de este artículo es reflexionar sobre la importancia de una atención integral, especializada y multidisciplinar y en la que el superviviente tenga una participación más activa; no obstante, previamente, se recoge el debate existente sobre el concepto de superviviente y se describe el impacto físico, psicológico y social del cáncer y su tratamiento


Advances in the early detection and treatment of cancer have led to an increase in the number of people who have overcome the disease, reaching 5% of the current population in our country. As indicated by the Sociedad Española de Oncología Médica [Spanish Society of Medical Oncology], this situation poses new challenges that require, among other things, the identification of and attention to the quality of life and the psychosocial needs of this growing population. The objective of this article is to reflect on the importance of comprehensive, specialized, and multidisciplinary care, in which the survivor has a more active participation; however, prior to this, the debate on the concept of the survivor, and a description of the physical, psychological, and social impact of cancer and its treatment are described


Asunto(s)
Humanos , Supervivencia , Neoplasias/psicología , Calidad de Vida/psicología , Rol Profesional/psicología , Atención Integral de Salud , Impactos en la Salud , Impacto Psicosocial , Psicooncología , Automanejo/psicología
15.
Support Care Cancer ; 27(6): 1997-2006, 2019 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-30891626

RESUMEN

PURPOSE: Patients are a critical source of information about the quality of the components of cancer care that contributes to optimal psychosocial outcomes. Recently published research was examined to determine the: (1) proportion of studies that examined at least one of 14 components of cancer care, (2) the proportion of studies that included multiple components of care, and (3) the phase of the cancer care pathway in which data collection occurred (i.e. pre-, during and post-treatment). METHODS: MEDLINE was searched to retrieve all data-based publications indexed for two international psychosocial cancer care journals (Supportive Care in Cancer and Psycho-Oncology) over a 2-year period. A total of 333 publications yielded 214 eligible publications that were assessed against the 14 components of care for which measurement by healthcare providers at multiple phases during cancer care is recommended. Publications were coded based on the: (1) specific component/s of care focused upon in the research, (2) number of components examined and (3) timing of data collection. RESULTS: The most frequently assessed component of care was physical and psychosocial screening (n = 198, 93%). Most studies (n = 187, 87%) examined a single component of care. No studies assessed all 14 components. Only seven studies (2.1%) examined components of care across multiple phases of the care pathway. CONCLUSIONS: Recently published studies have examined limited segments of patients' experiences of cancer care. To improve psychosocial outcomes among people living with and beyond cancer, there should be a greater focus on patients' experiences across multiple components and the whole care pathway.


Asunto(s)
Neoplasias/terapia , Psicooncología/métodos , Calidad de la Atención de Salud/normas , Humanos , Neoplasias/psicología , Publicaciones
16.
Psychother Psychosom Med Psychol ; 69(3-04): 141-156, 2019 Mar.
Artículo en Alemán | MEDLINE | ID: mdl-30909315

RESUMEN

Cancer is one of the most common diseases in adults. Despite an increasing incidence worldwide, many people survive the disease today. The multimodal therapies that prolong life affect patients' quality of life. For many patients, survival therefore also means a life with physical and psychosocial problems. Psycho-oncology offers evidence-based care for patients and their relatives.


Asunto(s)
Oncología Médica/tendencias , Psicooncología/tendencias , Familia , Humanos , Psicoterapia
17.
Psychother Psychosom Med Psychol ; 69(9-10): 407-412, 2019 Oct.
Artículo en Alemán | MEDLINE | ID: mdl-30731509

RESUMEN

In rural areas, breast cancer-affected patients still do not receive sufficient psycho-oncological care that addresses their specific needs. As a partial solution, telemedicine and web-based applications (eHealth) can add value to their psycho-oncological care as part of self-management regardless of personnel resources, geographical distance from providers, and time constraints. Thus far, however, those supportive aspects of psycho-oncological care are lacking in German-speaking rural areas. For this reason a web-based intervention was developed. Based on the results of a representative cross-sectional and the current literature, we developed a manual and program called Make It Training (Mindfulness and skills based distress reduction in oncology) which was programmed for the websetting. The interactive web-based intervention with 8 sessions integrates different media, including tutorial videos, audio, personal skills box and individual exercises to enhance knowledge about specific disease-related themes. The intervention derives from mindfulness and conveys psychoeducational elements and cognitive behavioural skills with the themes of emotion management, resources, stress management, and self-compassion. The acceptance testing (N=35) showed considerable acceptance and satisfaction. 87% of the patients would recommend the Make it Training to other patient. Prospectively, this training could convey effective strategies for coping with disease-related burden. The Make It Training is an innovative self-management program that can be used for the stepped-care approach and be implemented in rural areas and thereby enhance current outpatient care.


Asunto(s)
Neoplasias de la Mama/psicología , Internet , Atención Plena , Psicooncología/métodos , Estrés Psicológico/prevención & control , Adulto , Neoplasias de la Mama/terapia , Estudios Transversales , Femenino , Humanos , Oncología Médica , Población Rural , Telemedicina
18.
Support Care Cancer ; 27(5): 1591-1600, 2019 May.
Artículo en Inglés | MEDLINE | ID: mdl-30788625

RESUMEN

PURPOSE: Within psycho-oncology clinical trials, usual care (UC) represents a common and important control condition. Yet recent shifts in oncology, coupled with insufficient description of such conditions, threaten to render UC increasingly difficult to define and interpret. This paper offers evidence of these shifts and recommendations for addressing them. METHODS: The broader literature on usual care as a control condition in psychosocial/behavioral intervention trials was assessed, and usual care-controlled trials in psycho-oncology were selectively reviewed, toward to goal of conceptual synthesis. RESULTS: We offer evidence that (1) UC control conditions are often insufficiently defined and assessed; and (2) the context of supportive care in oncology has shifted in a manner that contributes to this problem, with implications for interpreting and comparing findings across clinical trials. Three converging findings support these conclusions. First, the scientific literature increasingly documents the diversity in how "usual care" conditions are defined across psychosocial and behavioral trials, with important considerations for trial interpretation. Second, evidence suggests that the availability of psychosocial oncology care has increased over the past few decades. The increasing availability and variety of psychosocial care introduces potential confounds for UC conditions. Third, mental health care trends in the general population affect the supportive interventions available to oncology patients in UC conditions today versus in the past. CONCLUSIONS: Shifts in psychosocial oncology and broader mental health care underscore the importance of carefully defining and assessing UC in psycho-oncology trials. Recommendations are offered for improving the design, evaluation, and interpretation of UC conditions, toward the ultimate goal of improving the quality of the evidence in psycho-oncology.


Asunto(s)
Neoplasias/psicología , Neoplasias/terapia , Psicooncología/métodos , Terapia Conductista/métodos , Humanos , Psicooncología/normas , Ensayos Clínicos Controlados Aleatorios como Asunto
19.
Int Health ; 11(6): 472-479, 2019 11 13.
Artículo en Inglés | MEDLINE | ID: mdl-30805602

RESUMEN

BACKGROUND: Past studies show relationships between disaster-related displacement and adverse psychosocial health outcomes. The development of psychosocial interventions following displacement is thus increasingly prioritized. However, data from low- and middle-income countries (LMICs) are lacking. In October 2017, the population of Ambae Island in Vanuatu, a lower-middle income country, was temporarily displaced due to volcanic activity. We analyzed distress among adults displaced due to the event and differences based on the psychosocial support they received. METHODS: Data on experiences during displacement, distress and psychosocial support were collected from 443 adults 2-3 wk after repatriation to Ambae Island. Four support categories were identified: Healthcare professional, Traditional/community, Not available and Not wanted. We analyzed differences in distress by sex and group using one-way ANOVA and generalized linear models. RESULTS: Mean distress scores were higher among women (1.90, SD=0.97) than men (1.64, SD=0.98) (p<0.004). In multivariate models, psychosocial support group was associated with distress among women (p=0.033), with higher scores among women who reported no available support compared with every other group. Both healthcare professional and traditional support networks were widely used. CONCLUSIONS: Women might be particularly vulnerable to distress during disaster-related displacement in LMICs, and those who report a lack of support might be at greater risk. Both healthcare professional and traditional networks provide important sources of support that are widely used and might help to ameliorate symptoms.


Asunto(s)
Desastres Naturales , Calidad de Vida , Estrés Psicológico/epidemiología , Adaptación Psicológica , Adulto , Desastres/estadística & datos numéricos , Femenino , Servicios de Salud , Humanos , Masculino , Persona de Mediana Edad , Pobreza/psicología , Psicooncología , Adulto Joven
20.
Aktuelle Urol ; 50(2): 172-178, 2019 Apr.
Artículo en Alemán | MEDLINE | ID: mdl-30630197

RESUMEN

Tumour diseases are accompanied by complex fears and psychological stress, with which the urologist is confronted. This article examines facets of doctor-patient interaction from a psycho-oncological perspective. These include risk perception, lay theories, lifestyle changes, sexuality and, most importantly, dealing with anxiety. Based on recent research results, suggestions are given for the communication with patients. However, the article also shows the limits of physician-patient conversations. Professional psychological patient support is required if the cancer causes a psychological crisis or if deeper problems are reactivated, or if some problems simply require more time and rest than is available in everyday practice. Therefore, this article provides an overview of further psycho-oncological interventions and support services for cancer patients.


Asunto(s)
Comunicación , Pacientes/psicología , Relaciones Médico-Paciente , Psicooncología , Estrés Psicológico/psicología , Humanos , Psicoterapia , Estrés Psicológico/prevención & control
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