ABSTRACT
The privacy of the dead is an interesting area of concern for bioethicists. There is a legal doctrine that the dead can't have privacy rights, but also a body of contrary law ascribing privacy rights to the deceased and kin in relation to the deceased. As women's abortion privacy is under assault by American courts and legislatures, the implications of ascribing privacy rights to embryos and fetuses is more important than ever. Caution is called for in this domain.
Subject(s)
Abortion, Induced , Privacy , Humans , Female , United States , Abortion, Induced/legislation & jurisprudence , Abortion, Induced/ethics , Privacy/legislation & jurisprudence , Pregnancy , Abortion, Legal/legislation & jurisprudence , Abortion, Legal/ethicsABSTRACT
It has become increasingly difficult for individuals to exercise meaningful control over the personal data they disclose to companies or to understand and track the ways in which that data is exchanged and used. These developments have led to an emerging consensus that existing privacy and data protection laws offer individuals insufficient protections against harms stemming from current data practices. However, an effective and ethically justified way forward remains elusive. To inform policy in this area, we propose the Ethical Data Practices framework. The framework outlines six principles relevant to the collection and use of personal data-minimizing harm, fairly distributing benefits and burdens, respecting autonomy, transparency, accountability, and inclusion-and translates these principles into action-guiding practical imperatives for companies that process personal data. In addition to informing policy, the practical imperatives can be voluntarily adopted by companies to promote ethical data practices.
Subject(s)
Confidentiality , Privacy , HumansABSTRACT
To improve health outcomes, the science and practice of medicine must move quickly in response to new information. Yet, in other important ways, health professionals must operate slowly and in a mode of intentional stillness to center empathy and light a path from empathy to solidarity. Solidarity, or standing with, prompts efforts to create circumstances in which disadvantaged communities can achieve health equity. This article argues for intentional stillness and solidarity to inspire ethical conduct and structural change. In the case presented, inaction and delay, which are neither virtuous nor antiracist forms of stillness in this context, would leave intact the status quo of disparity and inequity in cardiac medicine.
Subject(s)
Health Equity , Humans , Vulnerable Populations , Health InequitiesSubject(s)
Confidentiality/legislation & jurisprudence , Health Insurance Portability and Accountability Act/history , Confidentiality/history , Genetic Privacy/legislation & jurisprudence , Government Regulation/history , Health Insurance Portability and Accountability Act/legislation & jurisprudence , History, 20th Century , History, 21st Century , Information Dissemination/legislation & jurisprudence , United States , United States Dept. of Health and Human ServicesABSTRACT
Media outlets are reporting that cognitive enhancement is reaching epidemic levels, but evidence is lacking and ethical questions remain. The US Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) has examined the issue, and we lay out the commission's findings and their relevance for the scientific community.