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1.
BMC Cancer ; 18(1): 55, 2018 01 08.
Article de Anglais | MEDLINE | ID: mdl-29310605

RÉSUMÉ

BACKGROUND: Systemic treatment for advanced cancer offers uncertain and sometimes little benefit while the burden can be high. Hence, treatment decisions require Shared Decision Making (SDM). The CHOICE trial examines the separate and combined effect of oncologist training and a patient communication aid on SDM in consultations about palliative systemic treatment. METHODS: A RCT design with four parallel arms will be adopted. Patients with metastatic or irresectable cancer with a median life expectancy <12 months who meet with a medical oncologist to discuss the start or continuation of palliative systemic treatment are eligible. A total of 24 oncologists (in training) and 192 patients will be recruited. The oncologist training consists of a reader, two group sessions (3.5 h; including modelling videos and role play), a booster feedback session (1 h) and a consultation room tool. The patient communication aid consists of a home-sent question prompt list and a value clarification exercise to prepare patients for SDM in the consultation. The control condition consists of care as usual. The primary outcome is observed SDM in audio-recorded consultations. Secondary outcomes include patient and oncologist evaluation of communication and decision-making, the decision made, quality of life, potential adverse outcomes such as anxiety and hopelessness, and consultation duration. Patients fill out questionnaires at baseline (T0), before (T1) and after the consultation (T2) and at 3 and 6 months (T3 and T4). All oncologists participate in two standardized patient assessments (before-after training) prior to the start of patient inclusion. They will fill out a questionnaire before and after these assessments, as well as after each of the recorded consultations in clinical practice. DISCUSSION: The CHOICE trial will enable evidence-based choices regarding the investment in SDM interventions targeting either oncologists, patients or both in the advanced cancer setting. The trial takes into account the immediate effect of the interventions on observed communication, but also on more distal and potential adverse patient outcomes. Also, the trial provides evidence regarding the assumption that SDM about palliative cancer treatment results in less aggressive treatment and more quality of life in the final period of life. TRIAL REGISTRATION: Netherlands Trial Registry number NTR5489 (prospective; 15 Sep 2015).


Sujet(s)
Prise de décision , Tumeurs/épidémiologie , Oncologues/enseignement et éducation , Soins palliatifs/psychologie , Adulte , Comportement de choix , Femelle , Humains , Mâle , Adulte d'âge moyen , Tumeurs/psychologie , Pays-Bas/épidémiologie , Oncologues/psychologie , Participation des patients/psychologie , Relations médecin-patient , Qualité de vie , Enquêtes et questionnaires
2.
Patient Educ Couns ; 100(7): 1338-1344, 2017 Jul.
Article de Anglais | MEDLINE | ID: mdl-28233585

RÉSUMÉ

OBJECTIVE: Cancer patients need information provision to cope with their disease. However, only 20-60% of information provided during consultations is remembered. This study aimed to investigate whether oncologists' use of trust-conveying communication, characterized by communicating competence, honesty and caring, enhances patients' memory. Moreover, we aimed to investigate if this hypothetical relationship is mediated by a reduction in psychophysiological arousal during the consultation. METHODS: An experimental design was used, allowing for conclusion about causality. Two versions of a scripted video-taped consultation were used in which the oncologist adopted either a standard or a trust-conveying communication style. 97 cancer-naive individuals acted as analogue patients and were randomly assigned to watch one of the consultations. RESULTS: Free recall, assessed 24-28h after viewing, was higher (p=0.039) in the trust-conveying condition (65.3% versus 59.5%). Recognition did not differ (p=0.502). Psychophysiological assessment during watching showed a smaller heart rate response in the trust-conveying condition (p=0.037). No mediation effect nor an effect on electrodermal activity was found. CONCLUSION: These results suggest that oncologists' use of trust-conveying communication could increase patients' free recall of information and diminish their cardiovascular response. PRACTICE IMPLICATIONS: The underlying mechanisms by which oncologists' communication influences information recall warrants further investigation.


Sujet(s)
Communication , Rappel mnésique/physiologie , Oncologues/psychologie , Relations médecin-patient , Femelle , Humains , Mâle , Adulte d'âge moyen , Tumeurs , Orientation vers un spécialiste , Confiance
3.
Psychooncology ; 26(4): 452-460, 2017 04.
Article de Anglais | MEDLINE | ID: mdl-27246192

RÉSUMÉ

OBJECTIVE: This study aims to identify patients with oesophageal cancer's level of distress, type of problems, and wish for referral prior to treatment. To identify the clinical relevance of patients with oesophageal cancer's level of distress and type of problems, we build models to predict elevated distress, wish for referral, and overall survival. METHODS: We implemented the Distress Thermometer and Problem List in daily clinical practice. A score of ≥5 on the Distress Thermometer reflected elevated distress. We first created an initial model including predictors based on the literature. We then added predictors to the initial model to create an extended model based on the sample data. We used the 'least absolute shrinkage and selection operator' to define our final model. RESULTS: We obtained data from 187 patients (47.9%, of 390 eligible patients with oesophageal cancer) which were similar to non-respondents in their demographic and clinical characteristics. One-hundred thirteen (60%) patients reported elevated distress. The five most frequently reported problems were as follows: eating, tension, weight change, fatigue, and pain. Most patients did not have a wish for referral. Predictors for elevated distress were as follows: being female, total number of practical, emotional, and physical problems, pain, and fatigue. For referral, we identified age, the total number of emotional problems, the level of distress, and fear. The level of distress added prognostic information in a model to predict overall survival. CONCLUSIONS: Patients with oesophageal cancer report elevated distress and a myriad of problems yet do not have an explicit wish for referral prior to receiving their medical treatment plan. Copyright © 2016 John Wiley & Sons, Ltd.


Sujet(s)
Tumeurs de l'oesophage/psychologie , Fatigue/psychologie , Qualité de vie/psychologie , Orientation vers un spécialiste , Soutien social , Stress psychologique/psychologie , Adulte , Sujet âgé , Études transversales , Tumeurs de l'oesophage/complications , Fatigue/étiologie , Femelle , Humains , Mâle , Adulte d'âge moyen , Évaluation des besoins , Pays-Bas , Stress psychologique/étiologie , Enquêtes et questionnaires
4.
Patient Educ Couns ; 98(10): 1172-9, 2015 Oct.
Article de Anglais | MEDLINE | ID: mdl-26215573

RÉSUMÉ

OBJECTIVE: Shared decision-making (SDM) is advocated as the model for decision-making in preference-sensitive decisions. In this paper we sketch the history of the concept of SDM, evidence on the occurrence of the steps in daily practice, and provide a clinical audience with communication strategies to support the steps involved. Finally, we discuss ways to improve the implementation of SDM. RESULTS: The plea for SDM originated almost simultaneously in medical ethics and health services research. Four steps can be distinguished: (1) the professional informs the patient that a decision is to be made and that the patient's opinion is important; (2) the professional explains the options and their pros and cons; (3) the professional and the patient discuss the patient's preferences and the professional supports the patient in deliberation; (4) the professional and patient discuss the patient's wish to make the decision, they make or defer the decision, and discuss follow-up. In practice these steps are seen to occur to a limited extent. DISCUSSION: Knowledge and awareness among both professionals and patients as well as tools and skills training are needed for SDM to become widely implemented. PRACTICE IMPLICATIONS: Professionals may use the steps and accompanying communication strategies to implement SDM.


Sujet(s)
Communication , Prise de décision , Participation des patients , Relations médecin-patient , Techniques d'aide à la décision , Prestations des soins de santé , Recherche sur les services de santé , Humains , Préférence des patients
5.
Eur J Cancer Care (Engl) ; 24(2): 213-23, 2015 Mar.
Article de Anglais | MEDLINE | ID: mdl-25615269

RÉSUMÉ

This study aims to investigate the effects of illustrations in online cancer information on older cancer patients' website satisfaction (i.e. satisfaction with the attractiveness, comprehensibility and emotional support from the website) and recall of information. In an online experiment, 174 younger (<65 years) and older (≥65 years) colorectal cancer patients were randomly exposed to a webpage about transanal endoscopic microsurgery consisting of either text-only information, text with two cognitive illustrations or text with two affective illustrations. In general, adding cognitive illustrations compared with text-only information improved the satisfaction with the attractiveness of the website in both younger and older patients. For older patients in particular, cognitive illustrations facilitated recall of cancer information: whereas older patients recalled less information overall compared with younger patients (39% vs. 50%), no statistically significant differences in age on recall were observed when cognitive illustrations were added to text. Furthermore, older patients were more satisfied with the emotional support from the website than younger patients, especially when affective illustrations were present. Our results suggest that effective online cancer communication for ageing populations involves considering both cognitive and affective illustrations to enhance website satisfaction and recall of cancer information.


Sujet(s)
Tumeurs colorectales/chirurgie , Internet , Illustration médicale , Rappel mnésique , Éducation du patient comme sujet/méthodes , Microchirurgie endoscopique transanale , Adulte , Sujet âgé , Compréhension , Femelle , Humains , Mâle , Adulte d'âge moyen , Satisfaction des patients
6.
Br J Surg ; 101(13): 1692-701, 2014 Dec.
Article de Anglais | MEDLINE | ID: mdl-25319127

RÉSUMÉ

BACKGROUND: There is no consensus among patients and healthcare professionals (HCPs) on the topics that need to be addressed after oesophageal cancer surgery. The aim of this study was to identify these topics, using a two-round Delphi survey. METHODS: In round 1, patients and HCPs (surgeons, dieticians, nurses) were invited to rate the importance of 49 topics. The proportion of panellists that considered a topic to be of low, moderate or high importance was then calculated for each of these two groups. Based on these proportions and the i.q.r., topics were categorized as: 'consensus to be included', 'consensus to be excluded' and 'no consensus'. Only topics in the first category were included in the second round. In round 2, panellists were provided with individual and group feedback. To be included in the final list, topics had to meet criteria for consensus and stability. RESULTS: There were 108 patients and 77 HCPs in the round 2 analyses. In general, patients and HCPs considered the same topics important. The final list included 23 topics and revealed that it was most important to address: cancer removed/lymph nodes, the new oesophagus, eating and drinking, surgery, alarming new complaints and the recovery period. CONCLUSION: The study provides surgeons with a list of topics selected by patients and HCPs that may be addressed systematically at the initial follow-up consultation after oesophageal cancer surgery.


Sujet(s)
Tumeurs de l'oesophage/chirurgie , Adulte , Sujet âgé , Consensus , Méthode Delphi , Femelle , Études de suivi , Humains , Mâle , Adulte d'âge moyen , Satisfaction des patients , Qualité de vie , Jeune adulte
7.
Eur J Vasc Endovasc Surg ; 48(3): 276-83, 2014 Sep.
Article de Anglais | MEDLINE | ID: mdl-24913683

RÉSUMÉ

OBJECTIVE: Abdominal aortic aneurysm patients tend to be informed inconsistently and incompletely about their disorder and the treatment options open to them. The objective of this trial was to evaluate whether these patients are better informed and experience less decisional conflict regarding their treatment options after viewing a decision aid. DESIGN: A six-centre, randomised clinical trial comparing a decision aid plus regular information versus regular information from the surgeon. METHODS: Included patients had recently been diagnosed with an asymptomatic abdominal aortic aneurysm at least 4 cm in diameter. The decision aid consisted of a one-time viewing of an interactive CD-ROM elaborating on elective surgery versus watchful waiting. Generally, the decision aid advised patients with aneurysms less than 5.5 cm to agree to watchful waiting, for larger aneurysms the decision aid provided insight into the balance of benefit and harm of surgical and conservative approaches, taking into account age, co-morbidity and size of the aneurysm. The primary outcome was patient decisional conflict measured at 1 month follow-up (Decisional Conflict Scale). Secondary outcomes were patient knowledge, anxiety and satisfaction. RESULTS: In 178 aneurysm patients, decisional conflict scores did not differ significantly between the decision aid and the regular information groups (22 vs. 24 on the 0-100 Decisional Conflict Scale; p = .33). Patients in the decision aid group had significantly better knowledge (10.0 vs. 9.4 out of 13 points; p = .04), whereas anxiety levels (4.4 and 5.0 on a 0-21 scale; p = .73) and satisfaction scores (74 and 73 on a 0-100 scale; p = .81) were similar in both groups. CONCLUSION: In addition to regular patient-surgeon communication, a decision aid helps to share treatment decisions with abdominal aortic aneurysm patients by increasing their knowledge about the disorder and available treatment options without raising anxiety levels; however, it does not reduce decisional conflict, nor does it improve satisfaction.


Sujet(s)
Anévrysme de l'aorte abdominale/thérapie , Techniques d'aide à la décision , Éducation du patient comme sujet , Sujet âgé , Anévrysme de l'aorte abdominale/mortalité , Anévrysme de l'aorte abdominale/anatomopathologie , CD-rom , Interventions chirurgicales non urgentes , Femelle , Humains , Mâle , Participation des patients , Satisfaction des patients , Qualité de vie , Enquêtes et questionnaires , Observation (surveillance clinique)
9.
J Clin Oncol ; 32(3): 238-50, 2014 Jan 20.
Article de Anglais | MEDLINE | ID: mdl-24344212

RÉSUMÉ

BACKGROUND: It is a challenge for oncologists to distinguish patients with breast cancer who can forego adjuvant systemic treatment without negatively affecting survival from those who cannot. Risk prediction models (RPMs) have been developed for this purpose. Oncologists seem to have embraced RPMs (particularly Adjuvant!) in clinical practice and often use them to communicate prognosis to patients. We performed a systematic review of published RPMs and provide an overview of the prognosticators incorporated and reported clinical validity. Subsequently, we selected the RPMs that are currently used in the clinic for a more in-depth assessment of clinical validity. Finally, we assessed lay comprehensibility of the reports generated by RPMs. METHODS: Pubmed, EMBASE, and Web of Science were searched. Two reviewers independently selected relevant articles and extracted data. Agreement on article selection and data extraction was achieved in consensus meetings. RESULTS: We identified RPMs based on clinical prognosticators (N = 6) and biomolecular features (N = 14). Generally predictions from RPMs seem to be accurate, except for patients ≤ 50 years or ≥ 75 years at diagnosis, in addition to Asian populations. RPM reports contain much medical jargon or technical details, which are seldom explained in lay terms. CONCLUSION: The accuracy of RPMs' prognostic estimates is suboptimal in some patient subgroups. This urgently needs to be addressed. In their current format, RPM reports are not conducive to patient comprehension. Communicating survival probabilities using RPM might seem straightforward, but it is fraught with difficulties. If not done properly, it can backfire and confuse patients. Evidence to guide best communication practice is needed.


Sujet(s)
Antinéoplasiques/usage thérapeutique , Tumeurs du sein/mortalité , Tumeurs du sein/anatomopathologie , Récidive tumorale locale/mortalité , Récidive tumorale locale/prévention et contrôle , Révélation de la vérité , Tumeurs du sein/traitement médicamenteux , Traitement médicamenteux adjuvant , Femelle , Politique de santé , Mésusage des services de santé/prévention et contrôle , Humains , Modèles statistiques , Stadification tumorale , Valeur prédictive des tests , Pronostic , Qualité de vie , Appréciation des risques , Facteurs de risque , Incertitude
10.
Qual Life Res ; 23(4): 1097-115, 2014 May.
Article de Anglais | MEDLINE | ID: mdl-24129668

RÉSUMÉ

PURPOSE: The purpose of the study is to (1) estimate the direction, clinical relevance, and duration of health-related quality of life (HRQL) change in the first year following esophageal cancer surgery and (2) to assess the robustness of the estimates by subgroup and sensitivity analyses, and an exploration of publication bias. METHODS: A systematic literature search in MEDLINE, EMBASE, CINAHL, PsychINFO, and CENTRAL to identify randomized and non-randomized studies was performed. We compared the baseline HRQL data with 3-, 6-, 9-, or 12-month follow-ups to estimate the magnitude and duration of HRQL change. These estimates were then classified as trivial, small, medium, or large. Primary outcomes were role functioning, eating, and fatigue. Secondary outcomes were physical and social functioning, dysphagia, pain, and coughing problems. We conducted subgroup analysis for open surgery, open surgery preceded by neo-adjuvant therapy, and minimally invasive surgery. Sensitivity analyses assessed the influence of study design, transformation/imputation of the data, and HRQL questionnaire used. RESULTS: We included data from 15 studies to estimate the change in 28 HRQL outcomes after esophageal cancer surgery. The main analysis showed that patients' social functioning deteriorated. Symptoms of fatigue, pain, and coughing problems increased. These changes lasted for 9-12 months, although some symptoms persisted beyond the first year after surgery. For many other HRQL outcomes, estimates were only robust after subgroup or sensitivity analyses (e.g., role and physical functioning), or remained too heterogeneous to interpret (e.g., eating and dysphagia). CONCLUSIONS: Patients will experience a clinically relevant and long-lasting deterioration in HRQL after esophageal cancer surgery. However, for many HRQL outcomes, more and better quality evidence is needed.


Sujet(s)
Tumeurs de l'oesophage/psychologie , Tumeurs de l'oesophage/chirurgie , État de santé , Qualité de vie/psychologie , Survivants/psychologie , Association thérapeutique , Oesophagectomie , Fatigue/étiologie , Fatigue/psychologie , Humains , Évaluation des résultats des patients , Enquêtes et questionnaires , Facteurs temps
11.
Qual Life Res ; 23(4): 1155-76, 2014 May.
Article de Anglais | MEDLINE | ID: mdl-24293086

RÉSUMÉ

PURPOSE: The purpose of the study is to (1) estimate the direction, clinical relevance, and duration of health-related quality-of-life (HRQL) change in the first year following esophageal cancer surgery and (2) to assess the robustness of the estimates by subgroup and sensitivity analyses, and an exploration of publication bias. METHODS: A systematic literature search in MEDLINE, EMBASE, CINAHL, PsychINFO, and CENTRAL to identify randomized and non-randomized studies was performed. We compared the baseline HRQL data with 3-, 6-, 9-, or 12-month follow-ups to estimate the magnitude and duration of HRQL change. These estimates were then classified as trivial, small, medium, or large. Primary outcomes were role functioning, eating, and fatigue. Secondary outcomes were physical and social functioning, dysphagia, pain, and coughing problems. We conducted subgroup analysis for open surgery, open surgery preceded by neoadjuvant therapy, and minimally invasive surgery. Sensitivity analyses assessed the influence of study design, transformation/imputation of the data, and HRQL questionnaire used. RESULTS: We included the data from 15 studies to estimate the change in 28 HRQL outcomes after esophageal cancer surgery. The main analysis showed that patients' social functioning deteriorated. Symptoms of fatigue, pain, and coughing problems increased. These changes lasted for 9-12 months, although some symptoms persisted beyond the first year after surgery. For many other HRQL outcomes, estimates were only robust after subgroup or sensitivity analyses (e.g., role and physical functioning), or remained too heterogeneous to interpret (e.g., eating and dysphagia). CONCLUSIONS: Patients will experience a clinically relevant and long-lasting deterioration in HRQL after esophageal cancer surgery. However, for many HRQL outcomes, more and better quality evidence is needed.


Sujet(s)
Tumeurs de l'oesophage/psychologie , Tumeurs de l'oesophage/chirurgie , État de santé , Qualité de vie/psychologie , Survivants/psychologie , Association thérapeutique , Oesophagectomie , Fatigue/étiologie , Fatigue/psychologie , Humains , Évaluation des résultats des patients , Enquêtes et questionnaires , Facteurs temps
12.
Neth J Med ; 70(5): 242-8, 2012 Jun.
Article de Anglais | MEDLINE | ID: mdl-22744929

RÉSUMÉ

BACKGROUND: The release of the report 'To err is human' put medical safety and the disclosure of errors to the forefront of the health care agenda. Disclosure of medical errors by physicians is vital in this process. We studied the role of background and social psychological factors in internists' willingness to report medical errors. METHODS: Survey among a random sample of internists from five teaching hospitals in the Netherlands, all internists and internists in training at the Departments of Internal Medicine of the participating hospitals. RESULTS: Questionnaires were received from 115 participants (response 51%). The willingness to disclose was related to the severity of the error, with the majority of near misses not reported to the head of department or the hospital error committees. Errors were more often reported to colleagues. Positive factors in favour of disclosing were reported more often than negative ones prohibiting disclosure. Motivation, behavioural control and social barriers were related to the disclosure of errors. CONCLUSION: Personal and social issues contributing to the will and addressed properly to stimulate disclosure. The creation of an atmosphere where disclosing errors is routine seems vital. In addition, it is essential to create a departmental culture where medical errors are discussed in a non-judgmental, safe environment. In order to improve reporting of medical errors, more emphasis should be placed on the individual barriers that preclude adequate reporting.


Sujet(s)
Attitude du personnel soignant , Médecine interne/normes , Erreurs médicales/statistiques et données numériques , Types de pratiques des médecins/statistiques et données numériques , Révélation de la vérité , Adulte , Femelle , Humains , Mâle , Erreurs médicales/éthique , Personnel médical hospitalier/éthique , Personnel médical hospitalier/statistiques et données numériques , Pays-Bas , Types de pratiques des médecins/éthique , Assurance de la qualité des soins de santé/statistiques et données numériques , Enquêtes et questionnaires
13.
Breast Cancer Res Treat ; 134(1): 267-76, 2012 Jul.
Article de Anglais | MEDLINE | ID: mdl-22453754

RÉSUMÉ

Tamoxifen and aromatase inhibitors are associated with side effects which can significantly impact quality of life (QoL). We assessed QoL in the Tamoxifen Exemestane Adjuvant Multinational (TEAM) Trial and compared these data with reported adverse events in the main database. 2,754 Dutch postmenopausal early breast cancer patients were randomized between 5 years of exemestane, or tamoxifen (2.5-3 years) followed by exemestane (2.5-2 years). 742 patients were invited to participate in the QoL side study and complete questionnaires at 1 (T1) and 2 (T2) years after start of endocrine treatment. Questionnaires comprised the EORTC QLQ-C30 and BR23 questionnaires, supplemented with FACT-ES questions. 543 patients completed questionnaires at T1 and 454 patients (84%) at T2. Overall QoL and most functioning scales improved over time. The only clinically relevant and statistically significant difference between treatment types concerned insomnia; exemestane-treated patients reported more insomnia than tamoxifen-treated patients. Discrepancy was observed between QoL issue scores reported by the patients and adverse events reported by physicians. Certain QoL issues are treatment- and/or time-specific and deserve attention by health care providers. There is a need for careful inquiry into QoL issues by those prescribing endocrine treatment to optimize QoL and treatment adherence.


Sujet(s)
Protocoles de polychimiothérapie antinéoplasique/effets indésirables , Tumeurs du sein/traitement médicamenteux , Carcinome canalaire du sein/traitement médicamenteux , Post-ménopause , Sujet âgé , Androstadiènes/administration et posologie , Protocoles de polychimiothérapie antinéoplasique/usage thérapeutique , Traitement médicamenteux adjuvant , Femelle , Humains , Adulte d'âge moyen , Qualité de vie , Enquêtes et questionnaires , Tamoxifène/administration et posologie
14.
Support Care Cancer ; 20(8): 1787-95, 2012 Aug.
Article de Anglais | MEDLINE | ID: mdl-21947560

RÉSUMÉ

PURPOSE: The aim of this study was to develop and validate the Trust in Oncologist Scale (TiOS), which aims to measure cancer patients' trust in their oncologist. Structure, reliability and validity were examined. METHODS: Construction of the TiOS was based on a multidimensional theoretical framework. Cancer patients were surveyed within a week after their consultation. Trust, satisfaction, trust in health care, self-reported health and background variables were assessed. Dimensionality, internal consistency, test-retest reliability and construct validity were investigated. RESULTS: Data of 423 patients were included (response rate = 65%). After item reduction, the TiOS included 18 items. Trust scores were high. Exploratory factor analysis suggested one-dimensionality. Confirmatory factor analysis nevertheless indicated a reasonable fit of our four-dimensional theoretical model, distinguishing competence, fidelity, honesty and caring. Internal consistency and test-retest reliabilities were high. Good construct validity was indicated by moderate correlations of trust (TiOS) with satisfaction, trust in health care, willingness to recommend and number of consultations with the oncologist. Exploratory analyses suggested significant correlations of trust with ethnicity and age. CONCLUSIONS: The TiOS reliably and validly assesses cancer patients' trust in their oncologist. The questionnaire can be employed in both clinical practice and future research of cancer patients' trust.


Sujet(s)
Oncologie médicale , Relations médecin-patient , Enquêtes et questionnaires , Confiance , Adulte , Sujet âgé , Sujet âgé de 80 ans ou plus , Loi du khi-deux , Femelle , Humains , Mâle , Adulte d'âge moyen , Pays-Bas , Satisfaction des patients , Psychométrie , Reproductibilité des résultats
15.
Qual Saf Health Care ; 19(5): e24, 2010 Oct.
Article de Anglais | MEDLINE | ID: mdl-20577001

RÉSUMÉ

BACKGROUND: Patient satisfaction is one of the relevant indicators of quality of care; however, measuring patient satisfaction had been criticised. A major criticism is that many instruments are not reliable and/or valid. The instruments should have enough discriminative power for benchmarking of the results. OBJECTIVE: To develop a "core questionnaire for the assessment of patient satisfaction in academic hospitals" (COPS) that is reliable and appropriate for benchmarking patient satisfaction results. RESEARCH DESIGN: The development of COPS, the testing of its psychometric quality and its use in eight Dutch academic hospitals in three national comparative studies in 2003, 2005 and 2007 are described in this study. Results were reported only if they were significant (p<0.05) and relevant (also Cohen d>0.2). RESULTS: The questionnaire was returned in 2003 by 40,678 patients (77,450 sent, 53%) and by 40,248 patients (75,423 sent, 53%) in 2005. In 2007, the questionnaire was returned by 45,834 patients (87,137, 53%). The six dimensions have good Cronbach α's, varying from 0.79 to 0.88.The results of every item were reported to the individual hospital. A benchmark overview showed the overall comparison of all specialties of the eight hospitals for the clinic and outpatient departments. The 2007 measurement showed relevant differences in satisfaction on two dimensions in the clinical setting. CONCLUSIONS: COPS is shown to be a feasible and reliable instrument to measure the satisfaction of patients in Dutch academic hospitals. It allows comparison of hospitals and gives benchmark information on a hospital as well as data on specialty levels and previous measurements, including best practices.


Sujet(s)
Centres hospitaliers universitaires , Satisfaction des patients , Enquêtes et questionnaires , Femelle , Humains , Mâle , Adulte d'âge moyen , Pays-Bas , Psychométrie/instrumentation
16.
Ann Oncol ; 21(10): 2094-2101, 2010 Oct.
Article de Anglais | MEDLINE | ID: mdl-20357033

RÉSUMÉ

BACKGROUND: We prospectively examined the association between physical activity, body weight and quality of life in Dutch postmenopausal early breast cancer patients treated with adjuvant endocrine therapy. PATIENTS AND METHODS: In this side study of a large clinical trial, lifestyle and quality-of-life questionnaires were filled out 1 and 2 years after the start of endocrine therapy (T1 and T2, respectively) and included a pre-diagnosis lifestyle assessment (T0). A total of 435 breast cancer patients returned both questionnaires. RESULTS: Individuals with a physical activity level above the median who maintained this level from T0 to T1 reported the best global quality of life and physical functioning and the least fatigue at T2, as compared with individuals with low levels of physical activity which further decreased after diagnosis (difference of +16, +14, and -22 points on a 0-100 quality-of-life scale, respectively; P < 0.01). Overweight or obese women who gained body weight after diagnosis reported worst quality of life and most fatigue as compared with women who maintained a stable body weight (difference of -8, -10 and +2 points, respectively; P < 0.01). CONCLUSION: Maintaining high pre-diagnosis physical activity levels and a healthy body weight is associated with better quality of life after breast cancer.


Sujet(s)
Poids , Tumeurs du sein/physiopathologie , Exercice physique/physiologie , Post-ménopause , Qualité de vie , Activités de la vie quotidienne , Sujet âgé , Tumeurs du sein/thérapie , Fatigue , Femelle , Humains , Agences internationales , Mode de vie , Adulte d'âge moyen , Stadification tumorale , Surpoids , Pronostic , Études prospectives , Facteurs de risque , Taux de survie
17.
Eur J Vasc Endovasc Surg ; 39(6): 708-13, 2010 Jun.
Article de Anglais | MEDLINE | ID: mdl-20347601

RÉSUMÉ

OBJECTIVES: To explore what kind of information surgeons communicate with patients diagnosed with an abdominal aortic aneurysm, and if the information provided regarding the disorder and treatment options available complies with legal requirements. METHODS: Dutch vascular surgeons sound-recorded consultations with their patients. Recordings were scored using a checklist based on ethical considerations and five statutory categories of information on: (1) the disorder, (2) procedure and aim of surgery, (3) consequences and risks of surgery, (4) watchful observation and (5) individual prognosis regarding state of health. Each category was represented by several information items, which were scored dichotomously ('not mentioned' or 'mentioned'). A category was considered sufficiently addressed if at least one of its items was mentioned. RESULTS: Thirty-five consultations were recorded (13 patients with aneurysmal diameter <5.5 cm and 22 with diameter >or=5.5 cm). In a minority of recordings, all five categories were addressed: 1/13 (8%) and 9/22 (41%), respectively. None of the information items was discussed consistently in every recording. Although most patients were informed about the proposed treatment option (11/13; 85% and 19/22; 86%), the alternative treatment option was mentioned only occasionally (4/13; 31% and 14/22; 64%). CONCLUSIONS: Patients with an abdominal aneurysm are informed inconsistently about their disorder and treatment options. Information is often less than that legally required. This may hinder shared decision making.


Sujet(s)
Anévrysme de l'aorte abdominale/chirurgie , Communication , Prise de décision , Consentement libre et éclairé , Participation des patients , Relations médecin-patient , Orientation vers un spécialiste , Sujet âgé , Anévrysme de l'aorte abdominale/diagnostic , Techniques d'aide à la décision , Femelle , Connaissances, attitudes et pratiques en santé , Humains , Mâle , Pays-Bas , Études prospectives
18.
Ned Tijdschr Geneeskd ; 153: B344, 2009.
Article de Néerlandais | MEDLINE | ID: mdl-19785821

RÉSUMÉ

Evidence-based medicine promotes the use of best available evidence to improve the transparency and quality of health care. The physician's clinical expertise and patient preferences are also important. Clear communication with the patient, based on available evidence from scientific research, is pivotal to making a balanced treatment choice, particularly when several equivalent treatment options are available. Although cure is obviously the aim of any medical intervention a certain risk of damage is always involved. Several verbal, numerical and graphical methods are available to inform the patient, with the aim of enabling the patient to make an informed choice when taking part in decisions on available treatment options. The aim should be to explain both beneficial and harmful effects of medical interventions in a straightforward manner. However, the amount and content of this information should be tailored to the patient's wishes.


Sujet(s)
Communication , Médecine factuelle , Participation des patients , Relations médecin-patient , Qualité des soins de santé , Prise de décision , Humains , Éducation du patient comme sujet , Satisfaction des patients
19.
Med Teach ; 30(7): e194-201, 2008.
Article de Anglais | MEDLINE | ID: mdl-18777419

RÉSUMÉ

BACKGROUND: Curricula are accommodated to the interests of new groups after pressure from social movements outside institutions. A Dutch national project to integrate gender-gender mainstreaming (GM)-in all medical curricula started in 2002 and finished in 2005. GM is a long-term strategy which aims at eliminating gender bias in existing routines for which involvement of regular actors within the organization is required. AIMS: In this paper, the challenges of GM in medical education are discussed. Three case studies of medical schools are presented to identify key issues in the change process. METHOD: Steps taken in the national project included the evaluation of a local project, establishing a digital knowledge centre with education material, involving stakeholders and building political support within the schools and national bodies, screening education material and negotiating recommendations with course organizers, and evaluating the project with education directors and change agents. Data are gathered from interviews and document analysis. RESULTS: Factors playing a role are distinguished at three levels: (1) policy level, such as political support and widespread communication of this support; (2) organizational level such as a problem-based curricula and procedures for curriculum development and evaluation; and (3) faculty's openness towards change in general and towards feminist influences in particular, and change agents' position as well as personal and communicative skills. CONCLUSIONS: Successful GM in medical education is both a matter of strategy as well as how such strategy is received in medical schools. A time-consuming strategy could overcome resistance as well as dilemmas inherent in GM. More female teachers than male teachers were openly accepting. However, women were situated in less visible and less powerful positions. Hence, GM is accelerated by alliances between women aiming for change and senior (male) faculty leadership.


Sujet(s)
Enseignement médical/organisation et administration , Prejugé , Programme d'études , Femelle , Humains , Entretiens comme sujet , Mâle , Pays-Bas , Études de cas sur les organisations de santé , Facteurs sexuels
20.
Br J Anaesth ; 100(3): 322-6, 2008 Mar.
Article de Anglais | MEDLINE | ID: mdl-18238838

RÉSUMÉ

BACKGROUND: The quality of the preoperative assessment clinic (PAC) is determined by many factors. Patients' experiences are important indicators, but often overlooked. We prepare to set priorities to improve the PAC by obtaining detailed patients' feedback on the quality of the PAC, and establishing the value patients and professionals attach to different care aspects, using the Patient Experiences with the Preoperative Assessment Clinic questionnaire. METHODS: The PAC's standard of service was determined for five care aspects (dimensions), using patients' feedback. The importance of a dimension to patients was determined by calculating the effects of the dimensions on patients' overall appraisal. In addition, professionals were asked to rate the importance of the different care aspects. RESULTS: Patients had the most positive experiences with the nurse, and the least positive experiences with waiting. However, waiting was least important to patients. When combining the PAC's standard of service with the value given to the dimensions by patients and professionals separately, we found in both instances that waiting was in greatest need of improvement. This was followed by reception, the anaesthetist, remaining experiences, and finally the nurse. CONCLUSIONS: Quality improvement of the PAC can be achieved by obtaining patients' feedback on the quality, determine a PAC's standard of service, recognize service areas that require improvement, and identify actions appropriate to bring about improvement. The value patients and professionals attach to different aspects of care can then be used to prioritize improvements.


Sujet(s)
Anesthésiologie/normes , Services de consultations externes des hôpitaux/normes , Satisfaction des patients , Soins préopératoires/normes , Qualité des soins de santé , Adolescent , Adulte , Sujet âgé , Sujet âgé de 80 ans ou plus , Attitude du personnel soignant , Femelle , Priorités en santé , Recherche sur les services de santé , Humains , Mâle , Adulte d'âge moyen , Pays-Bas , Enquêtes et questionnaires
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