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1.
Med Care ; 62(8): 503-510, 2024 Aug 01.
Article de Anglais | MEDLINE | ID: mdl-38967994

RÉSUMÉ

BACKGROUND: We developed the Hospital-to-Home-Health Transition Quality (H3TQ) Index for skilled home healthcare (HH) agencies to identify threats to safe, high-quality care transitions in real time. OBJECTIVE: Assess the validity of H3TQ in a large sample across diverse communities. RESEARCH DESIGN: A survey of recently hospitalized older adults referred for skilled HH services and their HH provider at two large HH agencies in Baltimore, MD, and New York, NY. SUBJECTS: There were five hundred eighty-seven participants (309 older adults, 141 informal caregivers, and 137 HH providers). Older adults, caregivers, and HH providers rated 747 unique transitions. Of these, 403 were rated by both the older adult/caregiver and their HH provider, whereas the remaining transitions were rated by either party. MEASURES: Construct, concurrent, and predictive validity were assessed via the overall H3TQ rating, correlation with the care transition measure (CTM), and the Medicare Outcome and Assessment Information Set (OASIS). RESULTS: Proportion of transitions with quality issues as identified by HH providers and older adults/caregivers, respectively; Baltimore 55%, 35%; NYC 43%, 32%. Older adults/caregivers across sites rated their transitions as higher quality than did providers (P<0.05). H3TQ summed scores showed construct validity with the CTM-3 and concurrent validity with OASIS measures. Summed H3TQ scores were not significantly correlated with 30-day ED visits or rehospitalization. CONCLUSIONS: The H3TQ identifies care transition quality issues in real-time and demonstrated construct and concurrent validity, but not predictive validity. Findings demonstrate value in collecting multiple perspectives to evaluate care transition quality. Implementing the H3TQ could help identify transition-quality intervention opportunities for HH patients.


Sujet(s)
Services de soins à domicile , Humains , Mâle , Femelle , Sujet âgé , Sujet âgé de 80 ans ou plus , Services de soins à domicile/normes , Reproductibilité des résultats , Aidants , Baltimore , Qualité des soins de santé/normes , Adulte d'âge moyen , Indicateurs qualité santé , Continuité des soins/normes
2.
JMIR Ment Health ; 11: e56886, 2024 Jul 09.
Article de Anglais | MEDLINE | ID: mdl-38989849

RÉSUMÉ

Background: Telehealth implementation can be challenging for persons with serious mental illness (SMI), which may impact their quality of care and health outcomes. The literature on telehealth's impacts on SMI care outcomes is mixed, necessitating further investigation. Objective: We examined the impacts of facility-level telehealth adoption on quality of care metrics over time among patients with SMI. Methods: We analyzed Veterans Affairs (VA) administrative data across 138 facilities from January 2021 to December 2022. We performed longitudinal mixed-effects regressions to identify the relationships between the proportion of facility-level telehealth visits and SMI specialty care quality metrics: engagement with primary care; access and continuity of care across a range of mental health services including psychotherapy or psychosocial rehabilitation, SMI-specific intensive outpatient programs, and intensive case management; and continuity of mental health care after a high-risk event (eg, suicide attempt). Results: Facilities with a higher proportion of telehealth visits had reduced access and continuity of physical and mental health care for patients with SMI (P<.05). Higher telehealth adoption was associated with reduced primary care engagement (z=-4.04; P<.001), reduced access to and continuity in SMI-specific intensive case management (z=-4.49; P<.001; z=-3.15; P<.002), reductions in the continuity of care within psychotherapy and psychosocial rehabilitation (z=-3.74; P<.001), and continuity of care after a high-risk event (z=-2.46; P<.01). Telehealth uptake initially increased access to intensive outpatient but did not improve its continuity over time (z=-4.47; P<.001). Except for continuity within SMI-specific intensive case management (z=2.62; P<.009), continuity did not improve over time as telehealth became routinized. Conclusions: Although telehealth helped preserve health care access during the pandemic, telehealth may have tradeoffs with regard to quality of care for some individuals with SMI. These data suggest that engagement strategies used by SMI-specific intensive case management may have preserved quality and could benefit other settings. Strategies that enhance telehealth implementation-selected through a health equity lens-may improve quality of care among patients with SMI.


Sujet(s)
Troubles mentaux , Qualité des soins de santé , Télémédecine , Department of Veterans Affairs (USA) , Humains , Télémédecine/statistiques et données numériques , États-Unis , Études rétrospectives , Troubles mentaux/thérapie , Troubles mentaux/rééducation et réadaptation , Troubles mentaux/épidémiologie , Mâle , Femelle , Anciens combattants/statistiques et données numériques , Anciens combattants/psychologie , Services de santé mentale/normes , Adulte d'âge moyen , Continuité des soins/statistiques et données numériques , Continuité des soins/normes , Accessibilité des services de santé/statistiques et données numériques , Adulte
3.
Women Birth ; 37(4): 101628, 2024 Jul.
Article de Anglais | MEDLINE | ID: mdl-38833842

RÉSUMÉ

BACKGROUND: Continuity of midwifery care has been proven to show an improvement in clinical outcomes for women and greater maternal satisfaction with maternity care. Several questionnaires have been developed to measure satisfaction with maternity services although few are suitable for continuity of midwifery maternity care models, and many have not been validated. AIMS: The purpose of this study was to test the reliability and validity of the newly developed Continuity of Midwifery Care Satisfaction Survey (COMcareSS) with a cohort of women who have recently experienced continuity of midwifery care. METHODS: The COMcareSS was distributed to women in Australia who had experienced a live birth within a continuity model of midwifery care and were up to two months postpartum. Factor analysis was conducted, and Cronbach's alpha coefficient calculated for the 34-item scale. FINDINGS: In total 272 completed responses were recorded. Cronbach's alpha coefficient for the scale was 0.96 suggesting some redundancy in items. There was a lack of variation in responses. In factor analysis, only one factor could feasibly be attempted. This accounted for 76 % of variation in responses. CONCLUSION: The COMcareSS scale is the first to be developed to measure maternal satisfaction with continuity of midwifery led care. The 34-item scale has good internal consistency. The scale may be unidimensional though the lack of variation in responses means that other possible latent constructs, were not able to be detected. Use of a standardised scale such as the COMcareSS will facilitate benchmarking between services and, comparison and meta-analysis in research studies.


Sujet(s)
Continuité des soins , Services de santé maternelle , Profession de sage-femme , Satisfaction des patients , Humains , Femelle , Profession de sage-femme/normes , Enquêtes et questionnaires , Satisfaction des patients/statistiques et données numériques , Grossesse , Reproductibilité des résultats , Continuité des soins/normes , Adulte , Australie , Services de santé maternelle/normes , Analyse statistique factorielle , Psychométrie , Enquêtes sur les soins de santé
4.
BMC Palliat Care ; 23(1): 156, 2024 Jun 20.
Article de Anglais | MEDLINE | ID: mdl-38902635

RÉSUMÉ

BACKGROUND: Patients who have benefited from specialist intervention during periods of acute/complex palliative care needs often transition from specialist-to-primary care once such needs have been controlled. Effective communication between services is central to co-ordination of care to avoid the potential consequences of unmet needs, fragmented care, and poor patient and family experience. Discharge communications are a key component of care transitions. However, little is known about the experiences of those primarily receiving these communications, to include patients', carers' and primary care healthcare professionals. This study aims to have a better understanding of how the discharge communications from specialist palliative care services to primary care are experienced by patients, carers, and healthcare professionals, and how these communications might be improved to support effective patient-centred care. METHODS: This is a 15-month qualitative study. We will interview 30 adult patients and carers and 15 healthcare professionals (n = 45). We will seek a range of experiences of discharge communication by using a maximum variation approach to sampling, including purposively recruiting people from a range of demographic backgrounds from 4-6 specialist palliative care services (hospitals and hospices) as well as 5-7 general practices. Interview data will be analysed using a reflexive thematic approach and will involve input from the research and advisory team. Working with clinicians, commissioners, and PPI representatives we will co-produce a list of recommendations for discharge communication from specialist palliative care. DISCUSSION: Data collection may be limited by the need to be sensitive to participants' wellbeing needs. Study findings will be shared through academic publications and presentations. We will draft principles for how specialist palliative care clinicians can best communicate discharge with patients, carers, and primary care clinicians. These will be shared with clinicians, policy makers, commissioners, and PPI representatives and key stakeholders and organisations (e.g. Hospice UK) and on social media. Key outputs will be recommendations for a specialist palliative care discharge proforma. TRIAL REGISTRATION: Registered in ISRCTN Registry on 29.12.2023 ref: ISRCTN18098027.


Sujet(s)
Aidants , Communication , Soins palliatifs , Sortie du patient , Recherche qualitative , Humains , Soins palliatifs/méthodes , Soins palliatifs/normes , Sortie du patient/normes , Aidants/psychologie , Personnel de santé/psychologie , Soins de santé primaires/normes , Mâle , Femelle , Adulte , Entretiens comme sujet/méthodes , Patients/psychologie , Continuité des soins/normes
5.
AACN Adv Crit Care ; 35(2): 97-108, 2024 Jun 15.
Article de Anglais | MEDLINE | ID: mdl-38848572

RÉSUMÉ

Patients in the intensive care unit (ICU) increasingly are expected to eventually return home after acute hospital care. Yet transitional care for ICU patients and their families is often delayed until the patient is about to be transferred to another location or level of care. Transitions theory is a middle-range nursing theory that aims to provide guidance for safe and effective nursing care and research while an individual experiences a transition. Intensive care unit nurses are well positioned to provide ICU transitional care planning early. This article applies the transitions theory as a theoretical model to guide the study of the transition to home after acute hospital care for ICU patients and their families. This theory application can help ICU nurses provide holistic patient- and family-centered transitional care to achieve optimal outcomes by addressing the predischarge and postdischarge needs of patients and families.


Sujet(s)
Famille , Unités de soins intensifs , Sortie du patient , Soins de transition , Humains , Mâle , Femelle , Sortie du patient/normes , Soins de transition/normes , Adulte d'âge moyen , Famille/psychologie , Adulte , Sujet âgé , Soins infirmiers intensifs/normes , Sujet âgé de 80 ans ou plus , Continuité des soins/normes , Soins de réanimation , Transfert de patient/normes
6.
Ann Surg Oncol ; 31(7): 4470-4476, 2024 Jul.
Article de Anglais | MEDLINE | ID: mdl-38734863

RÉSUMÉ

With new investigations and clinical trials in breast oncology reported every year, it is critical that surgeons be aware of advances and insights into the evolving care paradigms and treatments available to their patients. This article highlights five publications found to be particularly impactful this past year. These articles report on efforts to select the minimal effective dose of tamoxifen for prevention, to challenge the existing age-based screening guidelines as they relate to race and ethnicity, to refine axillary management treatment standards, to optimize systemic therapy in multidisciplinary care settings, and to reduce the burden of breast cancer-related lymphedema after treatment. Taken together, these efforts have an impact on all facets of the continuum of care from prevention and screening through treatment and survivorship.


Sujet(s)
Tumeurs du sein , Continuité des soins , Humains , Tumeurs du sein/thérapie , Femelle , Continuité des soins/normes , Lymphoedème/thérapie , Lymphoedème/étiologie , Lymphoedème/prévention et contrôle , Tamoxifène/usage thérapeutique
7.
BMJ Open Qual ; 13(2)2024 May 24.
Article de Anglais | MEDLINE | ID: mdl-38789279

RÉSUMÉ

Discharge from hospitals to postacute care settings is a vulnerable time for many older adults, when they may be at increased risk for errors occurring in their care. We developed the Extension for Community Healthcare Outcomes-Care Transitions (ECHO-CT) programme in an effort to mitigate these risks through a mulitdisciplinary, educational, case-based teleconference between hospital and skilled nursing facility providers. The programme was implemented in both academic and community hospitals. Through weekly sessions, patients discharged from the hospital were discussed, clinical concerns addressed, errors in care identified and plans were made for remediation. A total of 1432 discussions occurred for 1326 patients. The aim of this study was to identify errors occurring in the postdischarge period and factors that predict an increased risk of experiencing an error. In 435 discussions, an issue was identified that required further discussion (known as a transition of care event), and the majority of these were related to medications. In 14.7% of all discussions, a medical error, defined as 'any preventable event that may cause or lead to inappropriate medical care or patient harm', was identified. We found that errors were more likely to occur for patients discharged from surgical services or the emergency department (as compared with medical services) and were less likely to occur for patients who were discharged in the morning. This study shows that a number of errors may be detected in the postdischarge period, and the ECHO-CT programme provides a mechanism for identifying and mitigating these events. Furthermore, it suggests that discharging service and time of day may be associated with risk of error in the discharge period, thereby suggesting potential areas of focus for future interventions.


Sujet(s)
Sortie du patient , Soins de suite , Communication par vidéoconférence , Humains , Sortie du patient/statistiques et données numériques , Sortie du patient/normes , Femelle , Soins de suite/méthodes , Soins de suite/statistiques et données numériques , Soins de suite/normes , Mâle , Sujet âgé , Communication par vidéoconférence/statistiques et données numériques , Sujet âgé de 80 ans ou plus , Continuité des soins/statistiques et données numériques , Continuité des soins/normes , Établissements de soins qualifiés/statistiques et données numériques , Établissements de soins qualifiés/organisation et administration , Erreurs médicales/statistiques et données numériques , Erreurs médicales/prévention et contrôle , Transfert de patient/méthodes , Transfert de patient/statistiques et données numériques , Transfert de patient/normes
8.
Int Emerg Nurs ; 74: 101446, 2024 Jun.
Article de Anglais | MEDLINE | ID: mdl-38677057

RÉSUMÉ

BACKGROUND: Transfer of patients from the prehospital to the in-hospital environment is a frequent occurrence requiring a handover process. Habitually, emergency care practitioners and healthcare professionals focus on patient care activities, not prioritising person-centred handover practices and not initiating person-centred care. AIM: The aim of this concept analysis was to define the concept person centred handover practices. METHODS: The eight steps for Walker and Avant's method of concept analysis. RESULTS: Thirty-one articles were included for final review including qualitative and quantitative studies, literature reviews and audits. This concept analysis guided the development of an concept definition of person-centred handover practices between emergency care practitioners and healthcare professionals in the emergency department as person- centred handover practices are those handovers being performed while including all identified defining attributes such as structure, verbal, and written information transfer, interprofessional process, inclusion of the patient and/ or family, occurs at the bedside, without interruption. CONCLUSIONS: Results suggested that person-centred handover practices involve verbal and non- verbal interprofessional communication within a specific location in the emergency department. It requires mutual respect from all professionals involved, experience and training, and the participation of the patient and / or family to improve patient outcomes and quality patient care. A definition for the concept may encourage the implementation of person-centred handover practices in emergency departments.


Sujet(s)
Service hospitalier d'urgences , Transfert de la prise en charge du patient , Soins centrés sur le patient , Humains , Transfert de la prise en charge du patient/normes , Service hospitalier d'urgences/organisation et administration , Formation de concepts , Communication , Continuité des soins/normes
9.
Midwifery ; 133: 103998, 2024 Jun.
Article de Anglais | MEDLINE | ID: mdl-38615374

RÉSUMÉ

OBJECTIVE: To quantify the economic impact of upscaling access to continuity of midwifery carer, compared with current standard maternity care, from the perspective of the public health care system. METHODS: We created a static microsimulation model based on a whole-of-population linked administrative data set containing all public hospital births in one Australian state (Queensland) between July 2017 to June 2018 (n = 37,701). This model was weighted to represent projected State-level births between July 2023 and June 2031. Woman and infant health service costs (inpatient, outpatient and emergency department) during pregnancy and birth were summed. The base model represented current standard maternity care and a counterfactual model represented two hypothetical scenarios where 50 % or 65 % of women giving birth would access continuity of midwifery carer. Costs were reported in 2021/22 AUD. RESULTS: The estimated cost savings to Queensland public hospital funders per pregnancy were $336 in 2023/24 and $546 with 50 % access. With 65 % access, the cost savings were estimated to be $534 per pregnancy in 2023/24 and $839 in 2030/31. A total State-level annual cost saving of $12 million in 2023/24 and $19 million in 2030/31 was estimated with 50 % access. With 65 % access, total State-level annual cost savings were estimated to be $19 million in 2023/24 and $30 million in 2030/31. CONCLUSION: Enabling most childbearing women in Australia to access continuity of midwifery carer would realise significant cost savings for the public health care system by reducing the rate of operative birth.


Sujet(s)
Continuité des soins , Accessibilité des services de santé , Humains , Queensland , Femelle , Grossesse , Continuité des soins/économie , Continuité des soins/statistiques et données numériques , Continuité des soins/normes , Accessibilité des services de santé/statistiques et données numériques , Accessibilité des services de santé/économie , Accessibilité des services de santé/normes , Adulte , Coûts et analyse des coûts , Profession de sage-femme/économie , Profession de sage-femme/statistiques et données numériques , Services de santé maternelle/économie , Services de santé maternelle/statistiques et données numériques , Simulation numérique
10.
Melbourne; Stroke Foundation; July 27, 2023. 44 p. tab.
Non conventionel de Anglais | BIGG - guides GRADE | ID: biblio-1532771

RÉSUMÉ

The Stroke Foundation is a national charity that partners with the community to prevent, treat and beat stroke. We stand alongside stroke survivors and their families, healthcare professionals and researchers. We build community awareness and foster new thinking and innovative treatments. We support survivors on their journey to live the best possible life after stroke. We are the voice of stroke in Australia and we work to: • Raise awareness of the risk factors, signs of stroke and promote healthy lifestyles. • Improve treatment for stroke to save lives and reduce disability. • Improve life after stroke for survivors. • Encourage and facilitate stroke research. • Advocate for initiatives to prevent, treat and beat stroke. • Raise funds from the community, corporate sector and government to continue our mission. The Stroke Foundation has been developing stroke guidelines since 2002 and in 2017 released the fourth edition. In order for the Australian Government to ensure up-to-date, best-practice clinical advice is provided and maintained to healthcare professionals, the NHMRC requires clinical guidelines be kept current and relevant by reviewing and updating them at least every five years. As a result, the Stroke Foundation, in partnership with Cochrane Australia, have moved to a model of living guidelines, in which recommendations are continually reviewed and updated in response to new evidence. This approach was piloted in a three year project (July 2018 -June 2021) funded by the Australian Government via the Medical Research Future Fund. This online version of the Clinical Guidelines for Stroke Management updates and supersedes the Clinical Guidelines for Stroke Management 2017. The Clinical Guidelines have been updated in accordance with the 2011 NHMRC Standard for clinical practice guidelines and therefore recommendations are based on the best evidence available. The Clinical Guidelines cover the whole continuum of stroke care, across 8 chapters. Review of the Clinical Guidelines used an internationally recognised guideline development approach, known as GRADE (Grading of Recommendations Assessment, Development and Evaluation), and an innovative guideline development and publishing platform, known as MAGICapp (Making Grade the Irresistible Choice). GRADE ensures a systematic process is used to develop recommendations that are based on the balance of benefits and harms, patient values, and resource considerations. MAGICapp enables transparent display of this process and access to additional practical information useful for guideline recommendation implementation.


Sujet(s)
Humains , Soins centrés sur le patient , Continuité des soins/normes , Accident vasculaire cérébral/thérapie , Réadaptation après un accident vasculaire cérébral
12.
J Surg Oncol ; 125(4): 678-691, 2022 Mar.
Article de Anglais | MEDLINE | ID: mdl-34894361

RÉSUMÉ

BACKGROUND: Survivorship care plans (SCP) should outline pertinent information about cancer treatment and follow-up. METHODS: We descriptively analyzed the content of 74 colorectal cancer SCPs completed as part of a randomized, controlled trial of SCPs at an academic and community cancer center. Surveillance recommendations were compared with American Cancer Society, American Society of Clinical Oncology and National Comprehensive Cancer Network guidelines. RESULTS: SCP information provided in >80% of the plans included participant age, cancer diagnosis, details, and side-effects of treatment (surgery, chemotherapy, radiation) and health promotion recommendations. SCP content documented less frequently included predisposing conditions, genetic counseling/testing information and staging. Posttreatment surveillance recommendations were documented in >90% SCPs. For stage 2-3 cancer, rates of guideline concordant recommendations were 100% for colonoscopy surveillance (Year 1 only), 87% for imaging surveillance, 65% for carcinoembryonic antigen surveillance, and 33% for follow-up visits. Excluding colonoscopy, >15 unique recommendations were listed for each modality across stages and sites, with more variation at the academic site. CONCLUSIONS: SCPs consistently recorded information about cancer diagnosis and treatment but omitted critical information about cancer-specific details denoting risk. Surveillance recommendations varied considerably between cancer centers. Future work to improve the consistency of surveillance recommendations documented in SCPs may be needed.


Sujet(s)
Survivants du cancer/statistiques et données numériques , Continuité des soins/normes , Documentation/statistiques et données numériques , Tumeurs/thérapie , Planification des soins du patient/normes , Types de pratiques des médecins/normes , Sujet âgé , Femelle , Études de suivi , Humains , Mâle , Adulte d'âge moyen , Pronostic , Taux de survie , Survie (démographie)
13.
J Cyst Fibros ; 20 Suppl 3: 16-20, 2021 12.
Article de Anglais | MEDLINE | ID: mdl-34930535

RÉSUMÉ

BACKGROUND: Chronic care delivery models faced unprecedented financial pressures, with a reduction of in-person visits and adoption of telehealth during the COVID-19 pandemic. We sought to understand the reported financial impact of pandemic-related changes to the cystic fibrosis (CF) care model. METHODS: The U.S. CF Foundation State of Care surveys fielded in Summer 2020 (SoC1) and Spring 2021 (SoC2) included questions for CF programs on the impact of pandemic-related restrictions on overall finances, staffing, licensure, and reimbursement of telehealth services. Descriptive analyses were conducted based on program type. RESULTS: Among the 286 respondents (128 pediatric, 118 adult, 40 affiliate), the majority (62%) reported a detrimental financial impact to their CF care program in SoC1, though fewer (42%) reported detrimental impacts in SoC2. The most common reported impacts in SoC1 were redeployment of clinical staff (68%), furloughs (52%), hiring freezes (51%), decreases in salaries (34%), or layoffs (10%). Reports of lower reimbursement for telehealth increased from 30% to 40% from SoC1 to SoC2. Projecting towards the future, only a minority (17%) of program directors in SoC2 felt that financial support would remain below pre-pandemic levels. CONCLUSIONS: The COVID-19 pandemic resulted in financial strain on the CF care model, including challenges with reimbursement for telehealth services and reductions in staffing due to institutional changes. Planning for the future of CF care model needs to address these short-term impacts, particularly to ensure a lack of interruption in high-quality multi-disciplinary care.


Sujet(s)
COVID-19 , Continuité des soins , Mucoviscidose , Accessibilité des services de santé , Modèles d'organisation , Télémédecine , Adulte , COVID-19/épidémiologie , COVID-19/prévention et contrôle , Enfant , Continuité des soins/organisation et administration , Continuité des soins/normes , Coûts et analyse des coûts , Mucoviscidose/économie , Mucoviscidose/épidémiologie , Mucoviscidose/thérapie , Accessibilité des services de santé/organisation et administration , Accessibilité des services de santé/tendances , Besoins et demandes de services de santé , Humains , Innovation organisationnelle , Affectation du personnel et organisation du temps de travail/organisation et administration , Mécanismes de remboursement/tendances , SARS-CoV-2 , Télémédecine/économie , Télémédecine/méthodes , États-Unis/épidémiologie
14.
BMC Pregnancy Childbirth ; 21(1): 840, 2021 Dec 22.
Article de Anglais | MEDLINE | ID: mdl-34937548

RÉSUMÉ

BACKGROUND: The COVID-19 pandemic poses an unprecedented risk to the global population. Maternity care in the UK was subject to many iterations of guidance on how best to reconfigure services to keep women, their families and babies, and healthcare professionals safe. Parents who experience a pregnancy loss or perinatal death require particular care and support. PUDDLES is an international collaboration investigating the experiences of recently bereaved parents who suffered a late miscarriage, stillbirth, or neonatal death during the global COVID-19 pandemic, in seven countries. In this study, we aim to present early findings from qualitative work undertaken with recently bereaved parents in the United Kingdom about how access to healthcare and support services was negotiated during the pandemic. METHODS: In-depth semi-structured interviews were undertaken with parents (N = 24) who had suffered a late miscarriage (n = 5; all mothers), stillbirth (n = 16; 13 mothers, 1 father, 1 joint interview involving both parents), or neonatal death (n = 3; all mothers). Data were analysed using a template analysis with the aim of investigating bereaved parents' access to services, care, and networks of support, during the pandemic after their bereavement. RESULTS: All parents had experience of utilising reconfigured maternity and/or neonatal, and bereavement care services during the pandemic. The themes utilised in the template analysis were: 1) The Shock & Confusion Associated with Necessary Restrictions to Daily Life; 2) Fragmented Care and Far Away Families; 3) Keeping Safe by Staying Away; and 4) Impersonal Care and Support Through a Screen. Results suggest access to maternity, neonatal, and bereavement care services were all significantly reduced, and parents' experiences were notably affected by service reconfigurations. CONCLUSIONS: Our findings, whilst preliminary, are important to document now, to help inform care and service provision as the pandemic continues and to provide learning for ongoing and future health system shocks. We draw conclusions on how to enable development of safe and appropriate services during this pandemic and any future health crises, to best support parents who experience a pregnancy loss or whose babies die.


Sujet(s)
Avortement spontané/psychologie , Deuil (perte) , COVID-19/psychologie , Chagrin , Parents/psychologie , Mort périnatale , Mortinatalité/psychologie , Continuité des soins/normes , Femelle , Accessibilité des services de santé/normes , Humains , Nouveau-né , Mâle , Grossesse , Données préliminaires , Systèmes de soutien psychosocial , Recherche qualitative , Quarantaine/psychologie , SARS-CoV-2 , Royaume-Uni/épidémiologie
15.
Radiat Oncol ; 16(1): 227, 2021 Nov 24.
Article de Anglais | MEDLINE | ID: mdl-34819112

RÉSUMÉ

INTRODUCTION AND BACKGROUND: As cancer is developing into a chronic disease due to longer survival, continuity and coordination of oncological care are becoming more important for patients. As radiation oncology departments are an integral part of cancer care and as repeat irradiation becomes more commonplace, the relevance of continuity and coordination of care in operating procedures is increasing. This study aims to perform a single-institution analysis of cancer patients in which continuity and coordination of care matters most, namely the highly selected group with multiple repeat course radiotherapy throughout their chronic disease. MATERIALS AND METHODS: All patients who received at least five courses of radiotherapy at the Department of Radiation Oncology at the University Hospital Zurich from 2011 to 2019 and who were alive at the time of the initiation of this project were included into this study. Patient and treatment characteristics were extracted from the hospital information and treatment planning systems. All patients completed two questionnaires on continuity of care, one of which was designed in-house and one of which was taken from the literature. RESULTS: Of the 33 patients identified at baseline, 20 (60.6%) participated in this study. A median of 6 years (range 3-13) elapsed between the first and the last visit at the cancer center. The median number of involved primary oncologists at the radiation oncology department was two (range 1-5). Fifty-seven percent of radiation therapy courses were preceded by a tumor board discussion. Both questionnaires showed high levels of experienced continuity of care. No statistically significant differences in experienced continuity of care between groups with more or less than two primary oncologists was found. DISCUSSION AND CONCLUSION: Patients treated with multiple repeat radiation therapy at our department over the past decade experienced high levels of continuity of care, yet further efforts should be undertaken to coordinate care among oncological disciplines in large cancer centers through better and increased use of interdisciplinary tumor boards.


Sujet(s)
Continuité des soins/normes , Prestations des soins de santé/normes , Tumeurs/radiothérapie , Radiothérapie conformationnelle avec modulation d'intensité/méthodes , Reprise du traitement/statistiques et données numériques , Adulte , Sujet âgé , Femelle , Humains , Mâle , Adulte d'âge moyen , Pronostic , Dosimétrie en radiothérapie , Études rétrospectives
16.
PLoS One ; 16(8): e0256164, 2021.
Article de Anglais | MEDLINE | ID: mdl-34383853

RÉSUMÉ

INTRODUCTION: Direct-acting antiviral drugs (DAAs) have changed the paradigm of hepatitis C therapy for both HCV/HIV co-infected and HCV mono-infected patients. We aimed to describe the HCV continuum of care of HIV-infected patients treated in an HIV clinic after a free DAA program in Indonesia and identify factors correlated with sofosbuvir-daclatasvir (SOF-DCV) treatment failure. METHODS: We did a retrospective cohort study of adult HIV/HCV co-infected patients under routine HIV-care from November 2019 to April 2020 in the HIV integrated clinic of Cipto Mangunkusumo Hospital, Jakarta, Indonesia. We evaluated some factors correlated with sofosbuvir-daclatasvir treatment failure: gender, diabetes mellitus, previous IFN failure, cirrhosis, concomitant ribavirin use, high baseline HCV-RNA, and low CD4 cell count. RESULTS AND DISCUSSION: Overall, 640 anti-HCV positive patients were included in the study. Most of them were male (88.3%) and former intravenous drug users (76.6%) with a mean age of 40.95 (SD 4.60) years old. Numbers and percentages for the stages of the HCV continuum of care were as follows: HCV-RNA tested (411; 64.2%), pre-therapeutic evaluation done (271; 42.3%), HCV treatment initiated (210; 32.8%), HCV treatment completed (207; 32.2%), but only 178 of these patients had follow-up HCV-RNA tests to allow SVR assessment; and finally SVR12 achieved (178; 27.8%). For the 184 who completed SOF-DCV treatment, SVR12 was achieved by 95.7%. In multivariate analysis, diabetes mellitus remained a significant factor correlated with SOF-DCV treatment failure (adjusted RR 17.0, 95%CI: 3.28-88.23, p = 0.001). CONCLUSIONS: This study found that in the HCV continuum of care for HIV/HCV co-infected patients, gaps still exist at all stages. As the most commonly used DAA combination, sofosbuvir daclatasvir treatment proved to be effective and well-tolerated in HIV/HCV co-infected patients. Diabetes mellitus was significant factor correlated with not achieving SVR12 in this population.


Sujet(s)
Antiviraux/usage thérapeutique , Co-infection/traitement médicamenteux , Continuité des soins/normes , Infections à VIH/traitement médicamenteux , VIH (Virus de l'Immunodéficience Humaine)/effets des médicaments et des substances chimiques , Hepacivirus/effets des médicaments et des substances chimiques , Hépatite C/traitement médicamenteux , Adulte , Co-infection/épidémiologie , Co-infection/virologie , Femelle , Infections à VIH/épidémiologie , Infections à VIH/virologie , Hépatite C/épidémiologie , Hépatite C/virologie , Humains , Indonésie/épidémiologie , Mâle , Études rétrospectives
17.
Drug Ther Bull ; 59(8): 118, 2021 Aug.
Article de Anglais | MEDLINE | ID: mdl-34210660

RÉSUMÉ

Overview of: Tomlinson J, Cheong VL, Fylan B, et al Successful care transitions for older people: a systematic review and meta-analysis of the effects of interventions that support medication continuity. Age and Ageing 2020;49:558-69.


Sujet(s)
Continuité des soins/organisation et administration , Réadmission du patient/statistiques et données numériques , Qualité de vie , Sujet âgé , Sujet âgé de 80 ans ou plus , Continuité des soins/normes , Humains , Adhésion au traitement médicamenteux , Bilan comparatif des médicaments/organisation et administration , Sortie du patient , Éducation du patient comme sujet/organisation et administration , Gestion de soi , Médecine d'État , Royaume-Uni
18.
N Z Med J ; 134(1539): 9-20, 2021 07 30.
Article de Anglais | MEDLINE | ID: mdl-34320611

RÉSUMÉ

AIM: Any transition of patient care is a high-risk time for communication error. This paper explores whether the presence of a pharmacist as part of an interprofessional group provides additional benefit and safety in transitions of care. METHOD: Six pharmacy interns and newly qualified pharmacists joined participants from seven other health professional training programmes to take part in an interprofessional education activity. Participants were assigned to 24 mixed-professional groups. Each group was required to craft a discharge summary for the same simulated patient. Groups without a pharmacist were given additional written documentation, including medication reconciliation, discharge prescription and discharge recommendations. The 24 discharge summaries were assessed for any medication-related information, both positive and negative. Groups with a pharmacist (6) were compared with groups who did not have a pharmacist (18) for completeness and accuracy of medication management. RESULTS: An in-person pharmacist provided more thorough, comprehensive, accessible and accurate information for the community team (p=0.003). Although there was no difference in the absolute number of medication errors between the groups (p=0.057), the groups with a pharmacist showed a significant reduction in the severity of the errors (p=0.009). This result happened despite the groups without a pharmacist being provided with all the required medication information for safe transition of care. CONCLUSION: These findings support the case for greater involvement from a pharmacist in a patient's healthcare team, particularly for any transition of care. Healthcare teams that include a pharmacist are more likely to exceed minimum safety expectations and make less severe errors.


Sujet(s)
Continuité des soins/normes , Hospitalisation , Erreurs de médication/prévention et contrôle , Bilan comparatif des médicaments/normes , Équipe soignante/normes , Pharmacie d'hôpital/normes , Modes d'exercice des pharmaciens/normes , Humains , Nouvelle-Zélande
19.
J Am Heart Assoc ; 10(15): e020425, 2021 08 03.
Article de Anglais | MEDLINE | ID: mdl-34320844

RÉSUMÉ

Background Readmissions in patients with congestive heart failure are common and often preventable. Limited data suggest that patients discharged to a less intensive postacute care setting than recommended are likely to readmit. We examined whether postacute setting discordance (discharge to a less intensive postacute setting than recommended by a physical and occupational therapist) was associated with hospital readmission in patients with congestive heart failure. We also assessed sociodemographic and clinical predictors of setting discordance. Methods and Results Retrospective analysis of administrative claims and electronic health record data was conducted on 25 500 adults with a discharge diagnosis of congestive heart failure from 12 acute care hospitals in Western Pennsylvania. Generalized linear mixed models were estimated to examine the association between postacute setting discordance and 30-day hospital readmission and to identify predictors of setting discordance. The 30-day readmission and postacute setting discordance rates were high (23.7%, 20.6%). While controlling for demographic and clinical covariates, patients in discordant postacute settings were more likely to be readmitted within 30 days (adjusted odds ratio [OR], 1.12; 95% CI, 1.04-1.20). The effect was also seen in the subgroup of patients with low mobility scores (adjusted OR, 1.20; 95% CI, 1.08-1.33). Factors associated with setting discordance were lower-income, higher comorbidity burden, therapist recommendation disagreement, and midrange mobility limitations. Conclusions Postacute setting discordance was associated with an increased readmission risk in patients hospitalized with congestive heart failure. Maximizing concordance between therapist recommended and actual postacute discharge setting may decrease readmissions. Understanding factors associated with post-acute setting discordance can inform strategies to improve the quality of the discharge process.


Sujet(s)
Post-cure , Continuité des soins/normes , Défaillance cardiaque , Réadmission du patient/statistiques et données numériques , Soins de suite , Adhésion et observance thérapeutiques , Post-cure/méthodes , Post-cure/normes , Sujet âgé , Causalité , Comorbidité , Dossiers médicaux électroniques/statistiques et données numériques , Femelle , Besoins et demandes de services de santé , Défaillance cardiaque/épidémiologie , Défaillance cardiaque/thérapie , Humains , Mâle , Mobilité réduite , Sortie du patient , Pennsylvanie/épidémiologie , Soins de suite/méthodes , Soins de suite/statistiques et données numériques
20.
J Pediatr Orthop ; 41(Suppl 1): S87-S89, 2021 Jul 01.
Article de Anglais | MEDLINE | ID: mdl-34096544

RÉSUMÉ

BACKGROUND: Children with neuromuscular disorders regularly seek care from pediatric orthopaedic surgeons. These conditions can have a significant impact on the growth and development of children and their function and well-being as adults. Questions exist about the long-term outcomes of musculoskeletal interventions performed during childhood. METHODS: A search of recent literature pertaining to the musculoskeletal and functional consequences of cerebral palsy, spina bifida, Duchenne muscular dystrophy, and spinal muscle atrophy was performed. Information from those articles was combined with the experience of the authors and their institutions. RESULTS: Neuromuscular conditions can result in limb and spine deformities that lead to impaired physical function. Orthopaedic interventions during childhood can improve function and well-being and can be durable into adulthood. Unfortunately, many individuals with these conditions transition to adult health care that lacks the informed, collaborative multidisciplinary care they received as children. This can lead to unmet health care needs and a shortage of long-term natural history and outcome studies that would inform the care of children today. CONCLUSIONS: Adults with childhood-onset neuromuscular conditions need, and deserve, dedicated health care systems that include the best aspects of the care they received as children. Pediatric orthopaedic surgeons have a role in promoting the development of such systems and a responsibility to learn from their adult patients. LEVEL OF EVIDENCE: Expert Opinion.


Sujet(s)
Continuité des soins , Effets indésirables à long terme , Maladies neuromusculaires/chirurgie , Procédures orthopédiques , Adulte , Enfant , Développement de l'enfant , Continuité des soins/organisation et administration , Continuité des soins/normes , Besoins et demandes de services de santé , Humains , Effets indésirables à long terme/diagnostic , Effets indésirables à long terme/thérapie , Maladies neuromusculaires/diagnostic , Procédures orthopédiques/effets indésirables , Procédures orthopédiques/méthodes , Performance fonctionnelle physique
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