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1.
Aust J Prim Health ; 302024 Sep.
Article de Anglais | MEDLINE | ID: mdl-39298657

RÉSUMÉ

Background This study aimed to identify the potential roles for Community Health Navigators (CHNs) in addressing problems faced by patients on discharge from hospital to the community, and attitudes and factors which may influence their adoption. Methods Twenty-six qualitative interviews and an online codesign workshop were conducted with patients, nurses, general practice staff, health service managers, community health workers, general practitioners, medical specialists, and pharmacists in the Sydney Local Health District. Qualitative themes from the interviews and workshop transcripts were analysed inductively and subsequently grouped according to a socio-ecological model. Results CHNs could assist patients to navigate non-clinical problems experienced by patients on discharge through assessing needs, establishing trust, providing social and emotional support that is culturally and linguistically appropriate, engaging family and carers, supporting medication adherence, and helping to arrange and attend follow up health and other appointments. Important factors for the success of the CHNs in the performance and sustainability of their roles were the need to establish effective communication and trust with other healthcare team members, be accepted by patients, have access to information about referral and support services, receive formal recognition of their training and experience, and be supported by appropriate supervision. Conclusions This study was unique in exploring the potential role of CHNs in addressing problems faced by patients on discharge from Australian hospitals and the factors influencing their adoption. It informed training and supervision needs and further research to evaluate CHNs' effectiveness and the acceptance of their role within the healthcare team.


Sujet(s)
Sortie du patient , Intervention-pivot , Recherche qualitative , Humains , Femelle , Mâle , Entretiens comme sujet , Adulte d'âge moyen , Adulte , Australie , Rôle professionnel , Nouvelle-Galles du Sud , Agents de santé communautaire/psychologie , Continuité des soins
2.
Kidney Int ; 106(4): 568-570, 2024 Oct.
Article de Anglais | MEDLINE | ID: mdl-39304272

RÉSUMÉ

Patient navigator programs may improve outcomes among individuals with chronic kidney disease by reducing barriers to evidence-based care. The NAVKIDS2 trial evaluated a patient navigation program among 162 children with chronic kidney disease from marginalized populations. The intervention was not associated with quantitative changes in self-reported health, but qualitative data indicated substantial benefit in alleviating caregiver strain and facilitating care coordination. Future studies should identify quantitative measures that capture the benefits experienced by patients in care coordination, empowerment, and self-management.


Sujet(s)
Intervention-pivot , Insuffisance rénale chronique , Humains , Insuffisance rénale chronique/thérapie , Insuffisance rénale chronique/diagnostic , Enfant , Femelle , Mâle , Adolescent , Aidants/psychologie , Aidants/statistiques et données numériques , Résultat thérapeutique
3.
Am J Manag Care ; 30(Spec No. 10): SP745-SP750, 2024 Sep.
Article de Anglais | MEDLINE | ID: mdl-39287995

RÉSUMÉ

The US faces a maternal health crisis as overall maternal mortality rates continue to worsen. HHS, in its Healthy People 2030 report, indicates that women in the US are more likely to die from childbirth than are women in other developed countries. The cost of the maternal health crisis and its associated morbidities is estimated to be $32.3 billion from conception to 5 years postpartum, with $18.7 billion in medical costs and $13.6 billion in nonmedical costs. Under the current health care reimbursement system, health care providers alone have little short-term incentive to bear the cost for solutions or prevention strategies that could change the social and cultural factors affecting maternal outcomes. This article provides an overview of the crisis, along with its economic and societal costs, and the role of prenatal care and premature birth in this escalating problem. The article then proposes maternal navigation for pregnant patients who chronically miss prenatal care appointments as one way to reduce premature births and associated health care costs. Through intentional and focused investment in maternal navigation by payers and providers together, health outcomes can be improved and disparities can be reduced. As a result, payer and provider costs are reduced and the interests of all parties are advanced. A connected system of support that improves health outcomes and reduces health care costs for the most at-risk patients is an essential response to a crisis that affects not only the individual but also society.


Sujet(s)
Prise en charge prénatale , Humains , Femelle , Grossesse , Prise en charge prénatale/économie , États-Unis , Naissance prématurée , Intervention-pivot/organisation et administration , Mortalité maternelle/tendances , Accessibilité des services de santé , Services de santé maternelle/économie , Coûts des soins de santé
4.
Implement Sci ; 19(1): 62, 2024 Sep 04.
Article de Anglais | MEDLINE | ID: mdl-39232820

RÉSUMÉ

BACKGROUND: A dramatic decline in mental health of people worldwide in the early COVID-19 pandemic years has not recovered. In rural and remote Australia, access to appropriate and timely mental health services has been identified as a major barrier to people seeking help for mental ill-health. From 2020 to 2021 a care navigation model, Navicare, was co-designed with rural and remote communities in the Greater Whitsunday Region of Central Queensland in Australia. The Exploration, Preparation, Implementation and Sustainment (EPIS) framework was used to design and guide multiple aspects of a multisite study, The Bridging Study, to evaluate the implementation of Navicare in Australia. METHODS: A community-engaged hybrid effectiveness-implementation study design will focus on the tailored implementation of Navicare at three new sites as well as monitoring implementation at an existing site established since 2021. Study outcomes assessed will include sustained access as the co-primary outcome (measured using access to Navicare mental health referral services) and Proctor's Implementation Outcomes of feasibility, acceptability, appropriateness, adoption, fidelity, implementation cost, and sustainability. Data collection for the implementation evaluation will include service usage data, community consultations, interviews, and workshops; analysed using mixed methods and guided by EPIS and other implementation frameworks. Pre-post effectiveness and cost-consequence study components are embedded in the implementation and sustainment phases, with comparison to pre-implementation data and value assessed for each EPIS phase using hospital, service, and resource allocation data. A scaling up strategy will be co-developed using a national roundtable forum in the final year of the study. Qualitative exploration of other aspects of the study (e.g., mechanisms of action and stakeholder engagement) will be conducted. DISCUSSION: Our study will use tailoring to local sites and a community-engaged approach to drive implementation of a mental health care navigation service in rural and remote Australia, with expected benefits to mental healthcare access. This approach is consistent with policy recommendations nationally and internationally as building blocks for rural health including the World Health Organization Framework for Action on Strengthening Health Systems to Improve Health Outcomes. TRIAL REGISTRATION: Prospectively registered on April 2, 2024, on the Australian New Zealand Clinical Trials Registry, no. ACTRN12624000382572. https://anzctr.org.au/Trial/Registration/TrialReview.aspx?id=386665&isReview=true .


Sujet(s)
COVID-19 , Services de santé mentale , Humains , COVID-19/épidémiologie , Services de santé mentale/organisation et administration , Intervention-pivot/organisation et administration , Australie , Accessibilité des services de santé/organisation et administration , Population rurale , Services de santé ruraux/organisation et administration , SARS-CoV-2 , Troubles mentaux/thérapie , Science de la mise en oeuvre , Queensland
5.
BMJ Open ; 14(9): e090084, 2024 Sep 03.
Article de Anglais | MEDLINE | ID: mdl-39231549

RÉSUMÉ

INTRODUCTION: Genetic testing is used across medical disciplines leading to unprecedented demand for genetic services. This has resulted in excessive waitlists and unsustainable pressure on the standard model of genetic healthcare. Alternative models are needed; e-health tools represent scalable and evidence-based solution. We aim to evaluate the effectiveness of the Genetics Navigator, an interactive patient-centred digital platform that supports the collection of medical and family history, provision of pregenetic and postgenetic counselling and return of genetic testing results across paediatric and adult settings. METHODS AND ANALYSIS: We will evaluate the effectiveness of the Genetics Navigator combined with usual care by a genetics clinician (physician or counsellor) to usual care alone in a randomised controlled trial. One hundred and thirty participants (adults patients or parents of paediatric patients) eligible for genetic testing through standard of care will be recruited across Ontario genetics clinics. Participants randomised into the intervention arm will use the Genetics Navigator for pretest and post-test genetic counselling and results disclosure in conjunction with their clinician. Participants randomised into the control arm will receive usual care, that is, clinician-delivered pretest and post-test genetic counselling, and results disclosure. The primary outcome is participant distress 2 weeks after test results disclosure. Secondary outcomes include knowledge, decisional conflict, anxiety, empowerment, quality of life, satisfaction, acceptability, digital health literacy and health resource use. Quantitative data will be analysed using statistical hypothesis tests and regression models. A subset of participants will be interviewed to explore user experience; data will be analysed using interpretive description. A cost-effectiveness analysis will examine the incremental cost of the Navigator compared with usual care per unit reduction in distress or unit improvement in quality of life from public payer and societal perspectives. ETHICS AND DISSEMINATION: This study was approved by Clinical Trials Ontario. Results will be shared through stakeholder workshops, national and international conferences and peer-reviewed journals. TRIAL REGISTRATION NUMBER: NCT06455384.


Sujet(s)
Conseil génétique , Humains , Conseil génétique/méthodes , Adulte , Enfant , Dépistage génétique/méthodes , Essais contrôlés randomisés comme sujet , Qualité de vie , Ontario , Canada , Intervention-pivot
6.
J Public Health Manag Pract ; 30(6): E344-E352, 2024.
Article de Anglais | MEDLINE | ID: mdl-39311889

RÉSUMÉ

OBJECTIVE: The purpose of this study was to examine the implementation and effectiveness of a novel pediatric food navigation program through a structured, comprehensive evaluation using the RE-AIM framework. DESIGN AND PARTICIPANTS: Data were collected from October 2021 through August 2022 for 166 pediatric patients and their families who were screened as food insecure or high-risk for food insecurity and were referred to this pilot food resource navigation program (FRNP). A total of 88 patients' guardians consented to participate in this FRNP, receiving initial service connection. Participants were contacted via telephone by trained navigators within this health system to assess food security status across three time points (baseline, follow-up 1 [1- <3 months], and follow-up 2 [3-6 months]) and facilitate connection to appropriate community-based resources related to food assistance. RESULTS: In this sample, we had an overrepresentation of Hispanic patients and an underrepresentation of Non-Hispanic Black and White patients relative to the available clinic population. Patients participating in the navigation program showed incremental shifts toward food security from baseline to two follow-up points. Integration within primary care was supported by physician champions across participating clinics and alignment with systemwide, updated universal screening guidelines to support projected increases in families requiring connecting to assistance programs. Through this evaluation, a comprehensive list of community-based food resource programs related to food assistance was integrated into electronic documentation for navigators to alleviate navigator burden and sustain the effect of this FRNP's implementation. CONCLUSIONS: These findings may be used to inform expansion of current programming efforts within this FRNP and to clarify process evaluations of broader health system-based programming. Further research, building on the findings of this pilot study, is needed to examine the longitudinal, causal effect of FRNPs in pediatric food security and long-term health outcomes for replication across health systems nationwide.


Sujet(s)
Insécurité alimentaire , Soins de santé primaires , Humains , Projets pilotes , Soins de santé primaires/statistiques et données numériques , Mâle , Femelle , Enfant , Enfant d'âge préscolaire , Évaluation de programme/méthodes , Pédiatrie/méthodes , Pédiatrie/statistiques et données numériques , Adolescent , Intervention-pivot/statistiques et données numériques , Nourrisson , Approvisionnement en nourriture/statistiques et données numériques , Approvisionnement en nourriture/méthodes , Assistance alimentaire/statistiques et données numériques
7.
JMIR Form Res ; 8: e53224, 2024 Sep 25.
Article de Anglais | MEDLINE | ID: mdl-39321451

RÉSUMÉ

BACKGROUND: Federally Qualified Health Centers (FQHCs) are an essential place for historically underserved patients to access health care, including screening for colorectal cancer (CRC), one of the leading causes of cancer death in the United States. Novel interventions aimed at increasing CRC screening completion rates at FQHCs are crucial. OBJECTIVE: This study conducts user testing of a digital patient navigation tool, called eNav, designed to support FQHC patients in preparing for, requesting, and completing CRC screening tests. METHODS: We recruited English- and Spanish-speaking patients (N=20) at an FQHC in New York City to user-test the eNav website (2 user tests; n=10 participants per user test). In each user test, participants engaged in a "think aloud" exercise and a qualitative interview to summarize and review their feedback. They also completed a baseline questionnaire gathering data about demographics, technology and internet use, medical history, and health literacy, and completed surveys to assess the website's acceptability and usability. Based on participant feedback from the first user test, we modified the eNav website for a second round of testing. Then, feedback from the second user test was used to modify and finalize the eNav website. RESULTS: Survey results supported the overall usability and acceptability of the website. The average System Usability Scale score for our first user test was 75.25; for the second, it was 75.28. The average Acceptability E-scale score for our first user test was 28.3; for the second, it was 29.2. These scores meet suggested benchmarks for usability and acceptability. During qualitative think-aloud exercises, in both user tests, many participants favorably perceived the website as motivating, interesting, informative, and user-friendly. Respondents also gave suggestions on how to improve the website's content, usability, accessibility, and appeal. We found that some participants did not have the digital devices or internet access needed to interact with the eNav website at home. CONCLUSIONS: Based on participant feedback on the eNav website and reported limitations to digital access across both user tests, we made modifications to the content and design of the website. We also designed alternative methods of engagement with eNav to increase the tool's usability, accessibility, and impact for patients with diverse needs, including those with limited access to devices or the internet at home. Next, we will test the eNav intervention in a randomized controlled trial to evaluate the efficacy of the eNav website for improving CRC screening uptake among patients treated at FQHCs.


Sujet(s)
Tumeurs colorectales , Dépistage précoce du cancer , Intervention-pivot , Humains , Tumeurs colorectales/diagnostic , Mâle , Dépistage précoce du cancer/méthodes , Femelle , Adulte d'âge moyen , Sujet âgé , New York (ville) , Enquêtes et questionnaires , Acceptation des soins par les patients/statistiques et données numériques , Adulte , Recherche qualitative
8.
BMJ Open ; 14(8): e082666, 2024 Aug 03.
Article de Anglais | MEDLINE | ID: mdl-39097302

RÉSUMÉ

INTRODUCTION: Patient navigation, a complex health intervention meant to address widespread fragmentation across the healthcare landscape, has been widely adopted internationally. This rapid uptake in patient navigation has led to a broadening of the service's reach to include those of different social positions and different health conditions. Despite the popularity and prevalence of patient navigation programmes, the extent of patient involvement and/or partnership in their construction has yet to be articulated. This scoping review will explore and describe the extent to which patients have been engaged in the development and/or implementation of patient navigation programmes to date. METHODS AND ANALYSIS: This scoping review will adhere to the Arksey and O'Malley framework for conducting scoping reviews. The electronic databases MEDLINE, CINAHL, EMBASE, PsycINFO, SocINDEX and Scopus were searched in September 2023 using terms related to patient navigation and programme implementation. Inclusion criteria stipulate that the studies must: (1) include an intervention labelled as 'navigation' in a healthcare setting and (2) describe patient engagement in the design, development and/or implementation process of said patient navigation programme. To assess study eligibility, two reviewers will independently read through the titles and abstracts, followed by the full texts, of each study identified from the search strategy to determine whether they meet inclusion criteria. Reviewers will then extract data from the included studies, present descriptive study characteristics in tables, and perform qualitative content analysis. ETHICS AND DISSEMINATION: This review does not require ethics approval as data will be collated exclusively from peer-reviewed articles and thesis dissertations. A manuscript summarising the results of the review will be written and submitted to a peer-reviewed journal for publication. The review will map aspects of programme development that have repeatedly utilised patient perspectives and areas where engagement has lagged. This review will also depict how patient engagement varies across programme characteristics.


Sujet(s)
Intervention-pivot , Participation des patients , Humains , Intervention-pivot/organisation et administration , Plan de recherche , Littérature de revue comme sujet
9.
South Med J ; 117(8): 478-482, 2024 Aug.
Article de Anglais | MEDLINE | ID: mdl-39094797

RÉSUMÉ

OBJECTIVES: Medical student-run patient navigation (PN) programs enhance healthcare access in underserved communities. This study examines the relationship between patient demographics and PN outcomes in a student-led PN program. METHODS: Patients with moderate or high-risk health concerns were paired with medical students at health fairs. Statistical analysis evaluates program success and demographic influences. RESULTS: Of 444 patients, 66.4% were female, 47.1% Hispanic White, 49.1% spoke English, and 63.7% earned <300% of the federal poverty level. More than half were uninsured and 52.5% achieved navigation goals. Insurance status and risk level significantly predicted PN outcomes, with "other insurance" and high-risk patients being 1.9 and 1.7 times more likely to complete navigation. CONCLUSIONS: The program achieved high completion rates, emphasizing the need for resources such as translators and financial assistance. Risk stratification successfully linked acute cases to resources. Navigation success was consistent, demonstrating the effectiveness of the program across diverse patient groups.


Sujet(s)
Intervention-pivot , Humains , Femelle , Mâle , Floride , Intervention-pivot/organisation et administration , Adulte , Adulte d'âge moyen , Étudiant médecine/statistiques et données numériques , Accessibilité des services de santé/statistiques et données numériques , Écoles de médecine/organisation et administration , Personnes sans assurance médicale/statistiques et données numériques , Jeune adulte , Évaluation de programme , Démographie
10.
Cancer Control ; 31: 10732748241264711, 2024.
Article de Anglais | MEDLINE | ID: mdl-39095960

RÉSUMÉ

BACKGROUND: Breast cancer remains a leading cause of cancer morbidity and mortality worldwide. In the United States, Black women face significant disparities in screening mammograms, experience higher rates of breast cancer at advanced stages, and are more likely to die from the disease. AIMS: This study aimed to develop and beta-test a virtual health navigation program to enhance breast cancer care within the Black community. We identified barriers to utilizing virtual patient navigators and factors impacting the adoption of virtual navigation for breast cancer information among Black women. METHODS: The vCONET (Virtual Community Oncology Navigation and Engagement) intervention was delivered through the Second Life virtual platform. The informational content was collaboratively developed with community members. Participants engaged in an informational session on risk factors, mammography information, and preventive behaviors. Surveys (n = 18) and focus groups (n = 9) assessed knowledge and insights into perceptions. RESULTS: Findings revealed a positive impact of the intervention, with participants expressing increased knowledge and willingness to seek further information about breast cancer prevention, and highlighted the engaging nature of the virtual environment, while acknowledging potential technological challenges. CONCLUSION: Virtual health navigation shows promise in addressing breast cancer disparities by promoting awareness among Black women. Future efforts should optimize virtual navigation approaches through collaborative engagement for lasting impact, enhancing breast cancer care and equity in communities of color.


Sujet(s)
, Tumeurs du sein , Intervention-pivot , Humains , Femelle , Tumeurs du sein/prévention et contrôle , Intervention-pivot/organisation et administration , Adulte d'âge moyen , Adulte , États-Unis , Sujet âgé , Mammographie/méthodes , Disparités d'accès aux soins , Groupes de discussion
11.
Cancer Med ; 13(15): e70040, 2024 Aug.
Article de Anglais | MEDLINE | ID: mdl-39118261

RÉSUMÉ

INTRODUCTION: At-home colorectal cancer (CRC) screening is an effective way to reduce CRC mortality, but screening rates in medically underserved groups are low. To plan the implementation of a pragmatic randomized trial comparing two population-based outreach approaches, we conducted qualitative research on current processes and barriers to at-home CRC screening in 10 community health centers (CHCs) that serve medically underserved groups, four each in Massachusetts and California, and two tribal facilities in South Dakota. METHODS: We conducted 53 semi-structured interviews with clinical and administrative staff at the participating CHCs. Participants were asked about CRC screening processes, categorized into eight domains: patient identification, outreach, risk assessment, fecal immunochemical test (FIT) workflows, FIT-DNA (i.e., Cologuard) workflows, referral for a follow-up colonoscopy, patient navigation, and educational materials. Transcripts were analyzed using a Rapid Qualitative Analysis approach. A matrix was used to organize and summarize the data into four sub-themes: current process, barriers, facilitators, and solutions to adapt materials for the intervention. RESULTS: Each site's process for stool-based CRC screening varied slightly. Interviewees identified the importance of offering educational materials in English and Spanish, using text messages to remind patients to return kits, adapting materials to address health literacy needs so patients can access instructions in writing, pictures, or video, creating mailed workflows integrated with a tracking system, and offering patient navigation to colonoscopy for patients with an abnormal result. CONCLUSION: Proposed solutions across the three regions will inform a multilevel intervention in a pragmatic trial to increase CRC screening uptake in CHCs.


Sujet(s)
Tumeurs colorectales , Centres de santé communautaires , Dépistage précoce du cancer , Zone médicalement sous-équipée , Humains , Tumeurs colorectales/diagnostic , Dépistage précoce du cancer/méthodes , Femelle , Mâle , Coloscopie , Massachusetts , Sang occulte , Adulte d'âge moyen , Californie , Dakota du Sud , Recherche qualitative , Sujet âgé , Dépistage de masse/méthodes , Intervention-pivot
12.
J Dev Behav Pediatr ; 45(4): e309-e316, 2024.
Article de Anglais | MEDLINE | ID: mdl-39146229

RÉSUMÉ

OBJECTIVE: Care navigation support is designed to help connect families with health care resources. Given that children with autism have more unmet needs than their peers, such a service may be especially valuable to families who have recently received a diagnosis. This study sought to examine engagement in care navigation support after an autism telehealth evaluation. Specifically, we report on what demographic and diagnostic factors predicted engagement in care navigation support and satisfaction with this service. METHODS: Care navigation was offered to 220 families receiving autism telehealth evaluations between April 2020 and April 2022. Survey data from initial evaluation appointments and 2 follow-up care navigation meetings (approximately 1-3 months and approximately 9-12 months after evaluation), along with data from medical records, were collected and analyzed to determine whether any traits predicted engagement in care navigation. Satisfaction with care navigation was also analyzed. RESULTS: Of 220 families, 48.2% (n = 106) participated in a care navigation meeting within 1 to 3 months after an evaluation and 59.5% (n = 131) participated in at least 1 meeting across 2 time periods. The findings did not support the hypothesis that a diagnosis of autism would predict engagement. Analyses found that child sex (female compared with male) and child race and ethnicity (children of color compared with White children) predicted engagement. For those who engaged in care navigation, high satisfaction was reported. CONCLUSION: Participants' engagement rates and satisfaction levels suggest care navigation is a valuable service for families after a telehealth autism evaluation.


Sujet(s)
Trouble autistique , Intervention-pivot , Satisfaction des patients , Télémédecine , Humains , Mâle , Femelle , Télémédecine/statistiques et données numériques , Enfant , Trouble autistique/thérapie , Satisfaction des patients/statistiques et données numériques , Adulte , Enfant d'âge préscolaire , Adolescent , Trouble du spectre autistique/thérapie
13.
BMJ Open Qual ; 13(3)2024 Aug 28.
Article de Anglais | MEDLINE | ID: mdl-39209342

RÉSUMÉ

BACKGROUND: Regular screening reduces mortality from colorectal cancer (CRC). The Canton of Vaud, Switzerland, has a regional screening programme offering faecal immunochemical tests (FITs) or colonoscopy. Participation in the screening programme has been low, particularly among complex patients. Patient navigation has strong evidence for increasing the CRC screening rate. DESIGN AND OBJECTIVE: This feasibility study tested patient navigation performed by medical assistants for complex patients at an academic primary care practice. BASELINE MEASUREMENTS: A review of 328 patients' medical charts revealed that 51% were up-to-date with screening (16% within the programme), 24% were ineligible, 5% had a documented refusal and 20% were not up-to-date, of whom 58 (18%) were complex patients. INTERVENTION FEBRUARY 2023 TO MAY 2023: We tried to help complex patients participate in the screening programme using either in-person or telephone patient navigation. Each intervention was piloted by a physician-researcher and then performed by a medical assistant. Based on the reach, effectiveness, adoption, implementation, maintenance framework, we collected: Intervention participation and refusal, screening acceptance and completion and both patients and medical assistant acceptability (ie, qualitative interviews). RESULTS: Only 4/58 (7%) patients participated in the in-person patient navigation test phase due to scheduling problems. All four patients accepted a prescription and 2/4 (50%) completed their test. We piloted a telephone intervention to bypass scheduling issues but all patients refused a telephone discussion with the medical assistant. At two months after the last intervention, the proportion of patients up-to-date increased from 51% to 56%. CONCLUSION: Our overall approach was resource-intensive and had little impact on the overall participation rate. It was likely not sustainable. New approaches and reimbursement for a specific patient navigator role are needed to increase CRC screening of complex patients.


Sujet(s)
Tumeurs colorectales , Dépistage précoce du cancer , Études de faisabilité , Soins de santé primaires , Humains , Tumeurs colorectales/diagnostic , Mâle , Soins de santé primaires/statistiques et données numériques , Femelle , Dépistage précoce du cancer/méthodes , Dépistage précoce du cancer/statistiques et données numériques , Adulte d'âge moyen , Sujet âgé , Suisse , Dépistage de masse/méthodes , Dépistage de masse/statistiques et données numériques , Intervention-pivot/statistiques et données numériques , Acceptation des soins par les patients/statistiques et données numériques , Acceptation des soins par les patients/psychologie
14.
BMC Health Serv Res ; 24(1): 978, 2024 Aug 24.
Article de Anglais | MEDLINE | ID: mdl-39180037

RÉSUMÉ

BACKGROUND: Children and families from priority populations experienced significant psychosocial and mental health issues to the COVID-19 pandemic. Yet they also faced significant barriers to service access, particularly families from culturally and linguistically diverse (CALD) backgrounds. With most child and family health nurse clinics ceasing in-person consultations due to the pandemic, many children missed out on health and developmental checks. The aim of this study was to investigate the perspectives and experiences of family members and service providers from an urban, CALD community regarding the implementation of a digital, developmental surveillance, Watch Me Grow-Electronic (WMG-E) program. METHODS: Semi-structured interviews were conducted with 17 family members, service navigators, and service providers in a multicultural community in South Western Sydney, Australia. This qualitative study is an implementation evaluation which formed as part of a larger, two-site, randomised controlled trial of the WMG-E program. A reflexive thematic analysis approach, using inductive coding, was adopted to analyse the data. RESULTS: Participants highlighted the comprehensive and personalised support offered by existing child and family health services. The WMG-E was deemed beneficial because the weblink was easy and quick to use and it enabled access to a service navigator who support family access to relevant services. However, the WMG-E was problematic because of technology or language barriers, and it did not facilitate immediate clinician involvement when families completed the weblink. CONCLUSIONS: Families and service providers in this qualitative study found that using WMG-E empowered parents and caregivers to access developmental screening and learn more about their child's development and engage with relevant services. This beds down a new and innovative solution to the current service delivery gap and create mechanisms that can engage families currently not accessing services, and increases knowledge around navigating the health and social care services. Notwithstanding the issues that were raised by families and service providers, which include accessibility challenges for CALD communities, absence of clinical oversight during screening, and narrow scope of engagement with available services being offered, it is worth noting that improvements regarding these implementation factors must be considered and addressed in order to have longevity and sustainability of the program. TRIAL REGISTRATION: The study is part of a large randomised controlled trial (Protocol No. 1.0, Version 3.1) was registered with ANZCTR (registration number: ACTRN12621000766819) on July 21st, 2021 and reporting of the trial results will be according to recommendations in the CONSORT Statement.


Sujet(s)
COVID-19 , Diversité culturelle , Recherche qualitative , Humains , Femelle , Mâle , Enfant , Famille/psychologie , Accessibilité des services de santé , Adulte , SARS-CoV-2 , Australie , Services de santé pour enfants/organisation et administration , Intervention-pivot/organisation et administration , Entretiens comme sujet , Adulte d'âge moyen
15.
Rev Peru Med Exp Salud Publica ; 41(2): 105-113, 2024 Aug 19.
Article de Espagnol, Anglais | MEDLINE | ID: mdl-39166632

RÉSUMÉ

OBJECTIVE.: To analyze the elements of a navigation program in Lima that facilitated the linkage of men who have sex with men (MSM) and transgender women (TW) with HIV care. MATERIAL AND METHODS.: We conducted interviews with 20 users receiving navigation services and 4 peer navigators living with HIV. RESULTS.: The work of the navigators contributed to filling a gap in HIV services, providing personalized accompaniment to navigate the health care system and facilitating the process of engaging with care. CONCLUSIONS.: Patient navigation based on the development of users' strengths can be a useful and feasible strategy to improve linkage to medical care for MSM and TW in Peru, incorporating peer navigators to health teams, horizontality in treatment and public health strategies with greater community participation.Motivation for the study. In Peru, men who have sex with men (MSM) and transgender women (TW) present low levels of linkage to HIV medical care, which is crucial to consider it a chronic disease, guarantee a healthy life and prevent transmission. Main findings. We implemented a program with specialized personnel called peer navigators, which helped MSM and TW to identify personal strengths and become autonomous within a fragmented and unfriendly health system. Implications. Incorporating peer navigators is a useful and feasible strategy that contributed to filling a gap in HIV care services, providing accompaniment, education and horizontal treatment to improve linkage to medical care for MSM and TW.


Sujet(s)
Infections à VIH , Homosexualité masculine , Intervention-pivot , Groupe de pairs , Personnes transgenres , Humains , Mâle , Pérou , Infections à VIH/thérapie , Femelle , Intervention-pivot/organisation et administration , Adulte , Jeune adulte
16.
Gynecol Oncol ; 189: 119-124, 2024 Oct.
Article de Anglais | MEDLINE | ID: mdl-39096589

RÉSUMÉ

BACKGROUND: "Financial Toxicity" (FT) is the financial burden imposed on patients due to disease and its treatment. Approximately 50% of gynecologic oncology patients experience FT. This study describes the implementation and outcomes of a novel financial navigation program (FNP) in gynecologic oncology. METHODS: Patients presenting for initial consultation with a gynecologic oncologist from July 2022 to September 2023 were included. A FNP was launched inclusive of hiring a financial navigator (FN) in July 2022, and implementing FT screening in October 2022. We prospectively captured patient referrals to the FN, collecting clinical, demographic, financial and social needs information, along with FN interventions and institutional support service referrals. Referrals to the FN and support services were quantified before and after screening implementation. RESULTS: There were 1029 patients with 21.6% seen before and 78.4% after screening initiation. Median age was 58 (IQR 46-68). The majority were non-Hispanic white (60%) with private insurance (61%). A total of 10.5% patients were referred to the FN. Transportation (32%), financial assistance (20.5%) and emotional support (15.4%) were the most common needs identified. A higher proportion of patients referred to the FN identified as Black, had government-funded insurance or diagnoses of uterine or cervical cancers (p < 0.05). Post-screening referrals to FN increased (5% vs. 12.9%, p < 0.001), while referrals to other support services decreased (9.5% vs. 2.9%, p < 0.001). CONCLUSIONS: Implementation of the FNP was feasible, though presence of both a FN and FT screening maximized its effectiveness. Further investigation is needed to understand screening barriers and evaluate longer-term impact.


Sujet(s)
Tumeurs de l'appareil génital féminin , Humains , Femelle , Tumeurs de l'appareil génital féminin/économie , Tumeurs de l'appareil génital féminin/thérapie , Tumeurs de l'appareil génital féminin/diagnostic , Adulte d'âge moyen , Sujet âgé , Orientation vers un spécialiste/économie , Intervention-pivot/économie , Intervention-pivot/organisation et administration , Études prospectives , Coûts indirects de la maladie
17.
Kidney Int ; 106(4): 736-748, 2024 Oct.
Article de Anglais | MEDLINE | ID: mdl-38959996

RÉSUMÉ

Patient navigators enable adult patients to circumnavigate complex health systems, improving access to health care and outcomes. Here, we aimed to evaluate the effects of a patient navigation program in children with chronic kidney disease (CKD). In this multi-center, randomized controlled trial, we randomly assigned children (aged 0-16 years) with CKD stages 1-5 (including children on dialysis or with kidney transplants), from low socioeconomic status backgrounds, and/or residing in remote areas, to receive patient navigation at randomization (immediate) or at six months (waitlist). The primary outcome was self-rated health (SRH) of participating children at six months, using intention to treat analysis. Secondary outcomes included caregivers' SRH and satisfaction with health care, children's quality of life, hospitalizations, and missed school days. Repeated measures of the primary outcome from baseline to six months were analyzed using cumulative logit mixed effects models. Semi-structured interviews were thematically evaluated. Of 398 screened children, 162 were randomized (80 immediate and 82 waitlist); mean age (standard deviation) of 8.8 (4.8) years with 64.8% male. SRH was not significantly different between the immediate and wait-listed groups at six months. There were also no differences across all secondary outcomes between the two groups. Caregivers' perspectives were reflected in seven themes: easing mental strain, facilitating care coordination, strengthening capacity to provide care, reinforcing care collaborations, alleviating family tensions, inability to build rapport and unnecessary support. Thus, in children with CKD, self-rated health may not improve in response to a navigator program, but caregivers gained skills related to providing and accessing care.


Sujet(s)
Intervention-pivot , Qualité de vie , Insuffisance rénale chronique , Humains , Mâle , Femelle , Enfant , Intervention-pivot/organisation et administration , Insuffisance rénale chronique/thérapie , Insuffisance rénale chronique/psychologie , Adolescent , Enfant d'âge préscolaire , Nourrisson , Aidants/psychologie , Accessibilité des services de santé/organisation et administration , Satisfaction des patients , Nouveau-né , Dialyse rénale , Transplantation rénale
18.
J Ambul Care Manage ; 47(4): 228-238, 2024.
Article de Anglais | MEDLINE | ID: mdl-39028275

RÉSUMÉ

Navigating cancer care is complex and is exacerbated by pre-existing comorbidities managed by multiple providers. In this quality improvement study, we evaluated changes in perceived care coordination, navigation, and chronic illness care with community health worker (CHW) and mHealth support among Black breast cancer and prostate cancer patients with hypertension and/or diabetes. We collected patient and provider surveys on chronic illness care coordination at baseline and six months and found improvements in multiple domains. These findings support engaging CHWs to improve care coordination among cancer patients with comorbidities and demonstrate a use case of importance with emerging navigation reimbursement policies.


Sujet(s)
, Tumeurs du sein , Survivants du cancer , Tumeurs de la prostate , Amélioration de la qualité , Humains , Tumeurs de la prostate/thérapie , Mâle , Tumeurs du sein/thérapie , Femelle , Adulte d'âge moyen , Maladie chronique/thérapie , Sujet âgé , Agents de santé communautaire , Télémédecine , Continuité des soins , Intervention-pivot , Hypertension artérielle/thérapie
19.
Orthop Nurs ; 43(4): 195-201, 2024.
Article de Anglais | MEDLINE | ID: mdl-39047269

RÉSUMÉ

This article is the sixth in the Movement is Life series and focuses on insurance coverage and medication management in the perioperative period, 2 tangentially related variables that affect patient outcomes. Our aim is to use current practices and literature to develop recommendations for nurse navigators' execution of preoperative optimization protocols related to payer status and medication management. Discussions with nurse navigators and a literature search were used to gather information and develop recommendations specific to optimizing payer status and medication management. Nurse navigators connected patients to resources and provided education regarding financial concerns and medications, and findings from the literature discussed insurance status among TJA patients. Nurse navigators can contribute to payer status and medication management optimization by providing patient education and resource referrals. In addition, we recommend conducting repeated medication reconciliation and developing awareness of financial resources and perioperative medication management guidelines.


Sujet(s)
Intervention-pivot , Humains , Soins infirmiers en orthopédie , Arthroplastie prothétique , Soins préopératoires/méthodes , Couverture d'assurance , Gestion de la pharmacothérapie/normes
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