["Nothing about us without us": deafness in history teaching and historiography, 2015-2022]. / "Nada sobre nós, sem nós": a surdez no ensino de história e na produção historiográfica, 2015-2022.

This text presents the partial results of ongoing research into deafness in history teaching and historiography between 2015 and 2022. The study problematizes the place of disabled people in top-ranking periodicals (the top two categories in Brazil) and in pedagogical projects on degree courses in history (with and without teacher-training certification) at the University of São Paulo and the State University of Campinas. These universities were chosen because they topped the ranking in a survey conducted by Folha de S.Paulo newspaper. The study observes how the Brazilian Inclusion Law (law 13.146, of July 6, 2015) is incorporated into the initial training of these professionals.

O texto aponta resultados parciais de uma pesquisa em andamento sobre a surdez no ensino de história e na produção historiográfica entre 2015 e 2022. O trabalho problematiza o lugar da pessoa com deficiência nos periódicos A1 e A2 e nos projetos pedagógicos de cursos de graduação em história (formação de professores e pesquisadores) da Universidade de São Paulo e da Universidade Estadual de Campinas, por conta de serem indicadas como as mais bem posicionadas no ranking de uma pesquisa realizada pela Folha de S.Paulo, levando-se em conta os critérios de articulação entre a Lei Brasileira de Inclusão, lei 13.146, de 6 de julho de 2015, e a formação inicial desses profissionais.

Clinical Teaching and Consent: An Analysis of New Zealand's Legal Requirements for Obtaining Consent to Clinical Teaching Involving Consumers of Health and Disability Services.

Student involvement in patient care without consent has attracted recent attention in New Zealand. New Zealand's Code of Health and Disability Services Consumers' Rights (Code) gives patients the right to give or refuse consent to participate in clinical teaching, but its practical application to clinical teaching, particularly postgraduate, is unclear. This article explores the history and precedent of the Code and ethical considerations, to inform where amendment to the Code is desirable in the interests of clarity, pragmatism, and to reflect better the legislature's intent.

What some physicians say about caring for patients with disability: Responses to open-ended question to nationwide physician survey.

BACKGROUND: For over 50 years, federal disability civil rights laws have mandated that patients with disability receive equitable health care. However, disabled patients continue to experience health care disparities. OBJECTIVE: To explore physicians' views, in their own words, about caring for patients with disability. METHODS: Review of responses to open-ended question at the end of a nationally representative survey of 714 outpatient physicians about their experiences caring for adult disabled patients. The open-ended question asked for additional comments participants wanted to share. Only 108 (15.1 %) survey participants provided responses suitable for analysis (e.g., legible, complete thought). All issues reported here reflect comments from ≥5 participants. RESULTS: Common concerns involved high costs, too little time, insufficient space, inadequate training, and lack of adequate mental health services to care for disabled patients. Many physicians appeared frustrated by legal requirements that they cover accommodation costs. Multiple physicians described as "unfair" having to pay for sign language interpreters, especially since interpreter costs generally exceed reimbursements for patients' visits. Physicians also commented on high costs and space demands of accessible exam tables, especially for small practices, and on challenges accommodating patients with severe obesity, including concerns that patients with severe obesity could damage their exam tables. Some participants suggested that disabled patients require advocates to get good quality care. CONCLUSIONS: Albeit limited by the small number of responses, these open-ended comments from our nationwide survey of physicians suggest some doctors view certain accessibility requirements as unfair to them or infeasible in their practice environments.

The CRPD and mental health law reform in Scotland.

Scotland's mental health and capacity legislation and its implementation is underpinned by European Convention on Human Rights (ECHR) informed principles, and such legislation and its implementation has remained largely ECHR compliant. It is designed to protect individuals' autonomy from inappropriate and disproportionate nonconsensual intrusions but its scope is largely limited to this. However, since the legislation was enacted at the start of the twenty first century the UK subsequently ratified the UN Convention on the Rights of Persons with Disabilities (CRPD) which requires the law and related practice to focus on giving effect to all the rights of persons with mental disabilities (people living with psychosocial, cognitive and intellectual disabilities) on an equal basis with others and to actively support such equality in rights enjoyment. The Terms of Reference of the independent Scottish Mental Health Law Review (2019-2022) included considering and making recommendations to align Scotland's mental health and capacity legislation with the CRPD. After engaging widely with stakeholders its recommendations sought to strengthen the voice of persons who use services and of those who care for them, reduce the need for non-consensual measures and secure rights to the help and support necessary to live a good life. In order to achieve this, it recommended, amongst other things, a refocusing on mental health and capacity law together with a Human Rights Enablement, Supported Decision Making and Autonomous Decision Making framework.

Disability Degree Assessment: A Comprehensive Approach According to Royal Decree 888/2022. / Evaluación del grado de discapacidad: un enfoque integral según el Real Decreto 888/2022.

BACKGORUND AND OBJECTIVE: Royal Decree 888/2022 establishes that the evaluation of disability situations is carried out by multiprofessional teams responsible for assessing and recognizing the degree of disability. The participation of professionals in the healthcare and social fields can be valuable in providing reports from which the necessary data for the proper assessment of disability can be obtained, with the ultimate goal of providing comprehensive assistance to people with disabilities. MATERIALS AND METHODS: An analysis and summary of Royal Decree 888/2022, which has recently come into effect, is performed, focusing on the most relevant aspects for professionals in the healthcare and social fields. RESULTS: The recognition and classification of the degree of disability are the responsibility of the autonomous communities, and the assessments are issued by multiprofessional teams. To do this, four components are evaluated using the criteria outlined in the annexes of the Royal Decree itself. Each criterion generates a score that is combined to obtain a single score, the Final Disability Degree of the Person. CONCLUSIONS: The pathology that causes the disability must have been previously diagnosed by the Healthcare System and considered permanent. Its evaluation is based on the evidence of objective clinical findings that are documented and supported by clinical reports. For this reason, it is important to maintain an accurate medical history, document reviews, and provide all relevant evidence.

The influence of the convention on the rights of persons with disabilities on the European court of human rights in the area of mental health law: Divergence and unexplored potential.

This article explores how the European Court of Human Rights has applied the norms of the UN Convention on the Rights of Persons with Disabilities (CRPD) in the area of mental health law. The European Court was initially receptive to the CRPD, including the UN Committee on the Rights of Persons with Disabilities' call for a repeal of legislation permitting involuntary psychiatric hospitalisation, but later distanced itself from it. The CRPD has nevertheless influenced how the European Court approached (a) involuntary hospitalisation, (b) separating detention from treatment, (c) restraints and other forms of ill-treatment in institutions, and (d) disability-neutral detention based on disability. Despite the two treaty bodies' different jurisprudential methodology and their different assumptions about the role of medical and legal professionals, the CRPD can continue to influence the European Court in areas such as less restrictive alternatives to coercive treatment, the relevance of capacity, and the importance of personal integrity for mental health treatment.

Endometriosis and Disability: Analysis of Federal Court Appeals of Social Security Disability Insurance and Supplemental Security Income Claims by Individuals Suffering From Endometriosis.

BACKGROUND: Endometriosis, a chronic noncancerous gynecologic condition commonly characterized by disruptive physical and psychosocial symptoms, can be disabling. Individuals in the United States with endometriosis who are unable to work before retirement age can apply for Social Security Disability Insurance (SSDI) and/or Supplemental Security Income (SSI). Given the multi-step process of disability review, it is important to better understand how disability decisions are made. This study aimed to examine approaches and rationales of U.S. federal appeals courts reviewing SSDI and/or SSI claims involving endometriosis-related issues of appeal. METHODS: We searched Westlaw and Nexis Uni records, available as of January 2021, for federal appeals of SSDI and SSI claims including endometriosis as an impairment. Two independent reviewers screened full-text cases and extracted data. Framework Analysis was applied to courts' rationales regarding endometriosis-related issues of appeal. RESULTS: Eighty-seven appeals addressed an endometriosis-related issue. Three themes-evidence, treatment, and time-were identified across the decisions. The courts' discussions across themes exposed rationales and evidentiary requirements that posed challenges for claimants with endometriosis. The courts found subjective reports of symptoms insufficient evidence of impairment and positive responses to treatments to indicate cures or prevent claimants from demonstrating the necessary continuous 12 months of impairment. Some courts expected claimants to use treatments such as contraception or hysterectomy without addressing the risks of such treatments or the fact that they might have been counter to claimants' needs and preferences. CONCLUSIONS: Individuals with endometriosis face evidentiary obstacles and common misconceptions about disease, diagnosis, and treatment in disability claims. SSDI and SSI endometriosis claims are systematically disadvantaged, particularly among those without access to care. The health care, policy, and legal systems can leverage the findings in this study to create a more equitable disability application and review system for those with chronic pain conditions such as endometriosis.

Widening the net: Use of social media data in personal injury and disability evaluations.

A central tenet of forensic mental health assessment is the use of multiple sources of data. Traditionally, these sources have included clinical interviews with and observations of the examinee, written records review, psychological test data, and interviews with collateral sources. Data from social media and social networking sites (SNS) is now widely used in civil litigation. However, existing professional practice standards and guidelines do not specifically address the use of SNS data. This leaves forensic mental health evaluators with little guidance as to why, when and how to incorporate SNS data into their evaluations. We review the extant literature on the use of SNS and other social media data in personal injury and disability cases, including legal, ethical, and practical considerations, with the goal of providing forensic mental health practitioners with a framework for making decisions about when and how to incorporate these data into their evaluations and opinions. We advocate caution in conducting independent searches of social media and the Internet, and in making inferences about internal states based on SNS postings. To illustrate these points, we include a case study.

Brain injury, medical progress, and the disability paradox: Towards an Americans with Abilities Act.

It is helpful to think about the needs of patients with moderate to severe brain injury through the lens of disability law. However, there are limitations to current disability law that contribute to ongoing segregation and marginalization of individuals with severe brain injury. Indeed, one of the paradoxes of American jurisprudence is that more clear constitutional protections accrue to those who have definitively immutable conditions. Thus, as neuroscience brings new therapies to those with brain injury, they may become less protected by the constitutional elements of disability law because their conditions have changed and become mutable. This is the clinical progress that brain injury professionals all seek to achieve, but ironically these advances could potentially degrade the legal protections of patients who benefit from emerging treatments. In this paper, we will critically examine this paradox at the interface of medicine and the law and suggest that the Americans with Disabilities Act (ADA) could be nicely complemented by legislation we have named the Americans with Abilities Act (AWAA). Instead of focusing on disabilities that need protection, the AWAA seeks to sustain and foster newfound abilities made possible by the fruits of medicine and neuroscience.

La figura de facilitación de acceso a la justicia. Comparación internacional de un reto formativo / Intermediaries in Access to Justice. International Comparison of a Training Challenge

El facilitador es un profesional que posibilita el ejercicio del derecho de acceso a la justicia a las personas con discapacidad intelectual y del desarrollo, favoreciendo los principios de equidad, participación, accesibilidad y autodeterminación. En el presente estudio, se realiza una revisión bibliográfica para determinar la presencia de esta figura en el panorama internacional y su perfil formativo. En el derecho internacional, actualmente, podemos encontrarla en algunos países nórdicos, Reino Unido, Israel, Azerbaiyán, Taiwán, Sudáfrica, Kenia, Canadá, varios estados de EE. UU., México y Chile, así como en parte del territorio australiano y Nueva Zelanda. En España, la figura aparece en la última reforma de la legislación civil y procesal (Ley 8/2021, de 2 de junio). En su perfil formativo encontramos tanto la educación formal como no formal de estos profesionales. El perfil del facilitador habrá de ajustarse a las necesidades de las personas con discapacidad intelectual y del desarrollo y del contexto que requiera la facilitación. (AU)

Intermediaries are professionals who enable the effective right of access to justice for people with intellectual and developmental disabilities, ensuring principles of equity, participation, accessibility and self-determination for them. This paper analyzes the presence and formative background of this figure from an international comparative perspective. Nowadays, we can find these professionals in the international law across different countries: some Nordic countries, United Kingdom, Israel, Azerbaijan, Taiwan, South Africa, Kenya, Canada, part of the USA, Mexico and Chile, Australia and New Zealand. In Spain, intermediaries are considered in the latest reform of the civil and procedural legislation (Law 8/2021, June the 2nd). This paper analyzes the formative background of this figure from an international comparative perspective. We find both formal and non-formal education in the background of these professionals. There is no doubt their profile must adjust to the needs of people with intellectual and developmental disabilities and the contexts that require the facilitation. (AU)

El trabajo social y sus intervenciones de apoyo a la capacidad jurídica de las personas, tras la Ley 8/2021 / Social Work and its Interventions to Support the Legal Capacity of People, after Law 8/2021

La relación del trabajo social con la Administración de Justicia adquiere una nueva dimensión en el campo de la discapacidad. La Ley 8/2021, por la que se reforma la legislación civil y procesal para el apoyo a las personas con discapacidad en el ejercicio de su capacidad jurídica, reconoce la importancia de esta profesión y la sitúa junto a la profesión médica en cuánto a la información pericial y la intervención a realizar con personas con discapacidad. La cuestión de los apoyos para mejorar la capacidad jurídica es una variable fundamental para que la valoración sociofamiliar sea necesaria. La aportación de este estudio es descriptiva y propositiva, sitúa la ley en relación con la situación social y con la profesión del trabajo social. Posteriormente, detalla las disciplinas o especialidades del trabajo social que pueden participar en estos procedimientos judiciales, con ejemplos de relaciones previas entre la regulación de la discapacidad y el trabajo social. Finalmente, realiza una propuesta de trabajo, un inicio de protocolo de actuación entre disciplinas para buscar la colaboración en forma de mesa redonda que recoge la ley. (AU)

The relationship between social work and the administration of justice acquires a new dimension in the field of disability. Law 8/2021, which reforms civil and procedural legislation to support people with disabilities in the exercise of their legal capacity, recognizes the importance of this profession and places it on a par with the medical profession in terms of expert information and intervention to be carried out with people with disabilities. The question of support to improve legal capacity is a fundamental variable for the socio-family assessment to be necessary. The contribution of this study is descriptive and propositional; it places the law concerning the social situation and the profession of social work. Subsequently, it details the disciplines or specialties of social work that can participate in these judicial proceedings, with examples of previous relationships between the regulation of disability and social work. Finally, it makes a work proposal, a beginning of the protocol of action between disciplines to seek collaboration in the form of a round table that includes the law. (AU)

Adicciones y discapacidad: medidas adoptadas por la legislación para la protección en el ámbito personal y patrimonial / Addictions and disability: measures adopted by legislation for protection in the personal and property sphere

La adicción a medicamentos, alcohol o drogas puede provocar en la persona una discapacidad. En la actualidad, la legislación se ha orientado a adoptar una serie de medidas de apoyo para proteger a las personas con discapacidad, sea cual sea el motivo que les haya llevado a dicha situación, tanto en el ámbito personal como patrimonial. Ya no se habla de la incapacitación en la norma, y sí de diversas medidas a adoptar tanto en la Ley 41/2003, de 18 de noviembre, de protección patrimonial de las personas con discapacidad y de modificación del Código Civil, de la Ley de Enjuiciamiento Civil y de la Normativa Tributaria con esta finalidad, como en la Ley 8/2021, de 2 de junio, por la que se reforma la legislación civil y procesal para el apoyo a las personas con discapacidad en el ejercicio de su capacidad jurídica. Dentro de estas medidas hay que diferenciar a la persona menor y al mayor de edad. El propósito de este estudio es analizar dichas medidas en relación con la discapacidad y la adicción, bien cuando la adicción determina una situación de discapacidad, como cuando la persona discapacitada tiene una adicción posterior con la finalidad de proteger tanto a la persona como a los bienes. (AU)

Addiction to medication, alcohol or drugs can cause a person to become disabled. Currently, legislation has been aimed at adopting a series of support measures to protect people with disabilities, whatever the reason that has led them to this situation, both in the personal and property spheres. The law no longer talks about incapacitation, but rather about various measures to be adopted both in Law 41/2003, of November 18, on the property protection of people with disabilities and on the modification of the Civil Code, the Law of Civil Prosecution and Tax Regulations for this purpose. as in Law 8/2021, of June 2, which reforms civil and procedural legislation to support people with disabilities in the exercise of their legal capacity. Within these measures, it is necessary to differentiate between the minor and the adult. The purpose of this study is to analyze these measures in relation to disability and addiction, either when the addiction determines a situation of disability, or when the disabled person has a subsequent addiction in order to protect both the person and the property. (AU)

Aprendiz com deficiência

Cartilha sobre questões de pessoas com necessidades especiais.

De la modificación de la capacidad a la provisión de apoyos en personas con discapacidad / From capacity modification to support measures in people with disabilities

No disponible

Brazilian law of inclusion: an applied analysis of the correlation of bioethical principles / Ley brasileña de inclusión: un análisis aplicado de la correlación de los principios de la bioética / Lei brasileira de inclusão: uma análise aplicada da correlação dos princípios de bioética

Abstract: Objective: The present study aims to analyse whether bioethical principles are present in the Brazilian Law of Inclusion of the Disabled Person. Methods: The study is based on a textual analysis of Law No. 13.146, of July 6, 2015 (Brazilian Law of Inclusion) using a content analysis technique regarding the bioethical principles of beneficence, nonmaleficence, justice and autonomy. A qualitative analysis was conducted based on the concepts of these bioethical principles and their expression in the articles laid down in the Statute of the Disabled Person. Results: The obtained results demonstrate that the primary articles of the Brazilian Law of Inclusion correlate with the aforementioned bioethical principles according to the conceptualisation of each principle. Conclusion: The articles of the Brazilian Law of Inclusion, published on July 6, 2015, under the provisions of the Federal Constitution of 1988 and the Convention on the Rights of Persons with Disabilities, demonstrate a correlation with the stated bioethical principles.

Resumen: Objetivo: El presente estudio pretende analizar si los principios bioéticos están presentes en la Ley brasileña de inclusión de personas con discapacidad. Métodos: El estudio se basa en un análisis textual de la Ley nº 13.146 de 6 de julio de 2015 (Ley brasileña de inclusión) mediante una técnica de análisis de contenido sobre los principios bioéticos de beneficencia, no maleficencia, justicia y autonomía. Se realizó un análisis cualitativo basado en los conceptos de estos principios bioéticos y su expresión en los artículos establecidos en el Estatuto del Discapacitado. Resultados: Los resultados obtenidos muestran que los artículos primarios de la Ley de Inclusión brasileña se correlacionan con los principios bioéticos mencionados, según la conceptualización de cada principio. Conclusión: Los artículos de la Ley de Inclusión brasileña, publicada el 6 de julio de 2015, en virtud de las disposiciones de la Constitución Federal de 1988 y de la Convención sobre los Derechos de las Personas con Discapacidad, demuestran una correlación con los principios bioéticos enunciados.

Resumo: Objetivo: O presente estudo tem por objetivo analisar se os princípios bioéticos estão presentes na Lei Brasileira de Inclusão da Pessoa com Deficiência. Métodos: O estudo é baseado em uma análise textual da Lei nº 13.146, de 6 de julho de 2015 (Lei Brasileira de Inclusão) utilizando uma técnica de análise de conteúdo relativa aos princípios bioéticos de beneficência, não maleficência, justiça e autonomia. Uma análise qualitativa foi realizada com base nos conceitos destes princípios bioéticos e sua expressão nos artigos estabelecidos no Estatuto da Pessoa Deficiente. Resultados: Os resultados obtidos demonstram que os artigos primários da Lei de Inclusão brasileira se correlacionam com os princípios bioéticos acima mencionados, de acordo com a conceituação de cada princípio. Conclusão: Os artigos da Lei Brasileira de Inclusão, publicados em 6 de julho de 2015, sob as disposições da Constituição Federal de 1988 e da Convenção sobre os Direitos das Pessoas com Deficiência, demonstram uma correlação com os princípios bioéticos declarados.