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1.
Artigo em Inglês | MEDLINE | ID: mdl-32320303

RESUMO

Purpose: Adolescent and young adult patients of the Milan's Youth Project developed a new communication project aimed at young people with cancer: in a series of video tutorials called Tumorial, they talk about their day-to-day experiences, offering "survival tricks" to their peers. Methods: The project was developed during group meetings taking place every week in a dedicated room near the ward. Each meeting focused on a single topic and was led by the patients themselves, who talked about their experiences; staff members moderated the discussion and took notes, which was used as script for a video, recorded by one patient as a spokesperson. All the videos had English subtitles. Results: The project was implemented between March 2018 and June 2019 and involved 53 teenagers and young adults (15-27 years), 33 receiving treatment and 20 in follow-up when the project began. There were 23 video tutorials produced in all, with various topics, for example, school, sex, hair, privacy, social networks, fuck-ups to avoid, scars, ward companions. The videos are published on the Youth Project's YouTube channel (https://www.youtube.com/channel/UCR0EVeYMAjgJlN95tSc_iPA). Conclusion: This innovative approach to communication in the world of oncological disease in the young can be a useful tool as part of their course of care. It appears of great importance considering that social networks-and YouTube in particular-frequently provide unreliable or useless information. In making the project, patients told their innermost feelings, promoting cohesion among them. Patients and caregivers developed the project together in a significant example of cooperation.

2.
Pediatr Blood Cancer ; : e28318, 2020 Apr 02.
Artigo em Inglês | MEDLINE | ID: mdl-32240567

RESUMO

The rapid spread of coronavirus disease 2019 epidemic in Italy, in particular in the Milan focal point, required drastic measures and led to panic in the population. While in our center we did not change our approach to the treatment of our young patients with cancer, we developed a qualitative survey to assess their perception of the risk and level of stress. The survey showed that a relatively large proportion of young patients felt personally at risk of severe complications. We believe that we need to adequately inform our patients, focusing on hygienic measures and personal protection and prompt reporting of any suspicious symptoms.

3.
Tumori ; : 300891620912022, 2020 Mar 17.
Artigo em Inglês | MEDLINE | ID: mdl-32178596

RESUMO

OBJECTIVE: To present an investigation into the intake of cannabinoids in a population of adolescents and young adults with cancer. METHODS: Sixty-six patients took part in the research: 27 reported having used cannabinoids, 21 before diagnosis; among the latter, 10 increased use during treatment. RESULTS: Benefits were reported by 19% of responders regarding anxiety control, 24% for nausea, 29% for pain control and improvement of sleep, and 48% for appetite improvement. CONCLUSIONS: Cannabis use by patients may often be unknown to caregivers. Studying this subject may help to better define important therapeutic aspects of these substances.

4.
Recenti Prog Med ; 111(2): 102-107, 2020 02.
Artigo em Italiano | MEDLINE | ID: mdl-32089559

RESUMO

In the training of the doctors, even specialists, training courses are generally not available for communication and for the relationship with patients in developmental age. Some techniques such as illusionistic techniques are increasingly described in the scientific literature as tools that can be used in the areas of care and rehabilitation. In this work, clinical experiences are presented on the use of illusionism techniques in clinical consultation with patients suffering from organic pathologies, based on a review of the scientific literature.

5.
Pediatr Hematol Oncol ; 37(3): 223-234, 2020 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-32022619

RESUMO

Objective. The aim of the present study is to understand which areas of sexuality were regarded as most important and/or problematic among adolescents with cancer.Methods. A questionnaire was administered to adolescent and young adult patients who had been receiving treatments at the Pediatric Oncology Unit of our Institution, for at least 2 months, and those in follow-up who had completed their treatments no more than two years previously. The questionnaire was devised to investigate patients' experiences in various areas, i.e. personal relations, sexual relations; functional aspects, body image, and communication.Results. Questionnaires were given to 70 patients and completed by 66. As main results, the survey showed that disease and treatment might negatively affect patients' way of relating with others (53% of cases) and their body image (56%), though their sexual desire remains unchanged (69.7%). Most patients (67%) reported not having the chance to talk to someone about having sex while receiving their treatments; 79% of patients felt this topic deserved more attention.Conclusion. This study promotes the discussion of an important topic for young people with cancer, which is inadequately addressed today. When establishing an age-specific model of care, aspects related to sexuality should be considered and managed.

6.
J Adolesc Young Adult Oncol ; 9(1): 36-40, 2020 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-31539288

RESUMO

Purpose: The trauma of the diagnosis of cancer during adolescence may affect the young people's spiritual sphere. Projects aiming to the global care of adolescents with cancer should consider also their spiritual needs: at our center, the dedicated multidisciplinary team of professionals includes a chaplain with a specific training. This article describes, throughout the patients' dialogs, how a chaplain can help patients to give voice to their emotions and thoughts about their sense of life and illness. Methods: From January 2016 to December 2017, 33 adolescent patients with solid tumors had from 2 to 12 one-to-one talks with the chaplain. We selected six specific clinical cases in which some important topics were discussed between the chaplain and the patients. Results: Patients' own voices were reported to describe some specific spiritual issues, particularly as regards how spirituality could sustain them in their need to continue to hope. Examples of specific questions during talks were as follows: "Why doesn't God do something?"; "What is the point of all this pain?"; "Why have I become ill? Why me?"; "What do you think will happen to me after I die?" Conclusions: This experience underlines the importance of the inclusion of the spiritual assistant within the multidisciplinary team dedicated to young people with cancer. The daily and constantly available presence of the chaplain in the ward, from the beginning of any treatment, can permit a good relationship with patients and help them to keep hope and move forward.

7.
Tumori ; 105(6): NP75-NP78, 2019 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-31600120

RESUMO

This study reports a case series of patients with upper limb neuromotor deficits following pediatric central nervous system tumor and treated with rehabilitative therapy according to action observation therapy (AOT). AOT is based on the "mirror neurons" system and had positive results in various non-oncologic neurologic pathologies. This study is the first experience in the oncology field, and included 6 patients, 4 of whom were fully evaluated at 6-month follow-up. In all patients, therapy showed improvement in all assessment tests. These promising results lead to further studies to confirm their effectiveness.


Assuntos
Neoplasias do Sistema Nervoso Central/complicações , Reabilitação Neurológica , Doenças Neuromusculares/etiologia , Doenças Neuromusculares/reabilitação , Extremidade Superior/fisiopatologia , Adolescente , Adulto , Feminino , Humanos , Masculino , Reabilitação Neurológica/métodos , Doenças Neuromusculares/diagnóstico , Doenças Neuromusculares/terapia , Resultado do Tratamento , Adulto Jovem
8.
Artigo em Inglês | MEDLINE | ID: mdl-31449499

RESUMO

This pilot study aimed to investigate dietary changes introduced after being diagnosed with cancer in a sample of 60 consecutive children and adolescents on the basis of a self-report questionnaire. The study showed that 53% of patients changed their diet, usually "to combat the tumor" (in 47% of cases). In 1 in 2 of these cases, the health care staff were not informed about any changes. This study underscores the fact that many patients and families chose to impose dietary changes that are not always discussed with their health care staff and that may risk interfering with the continuity of a patient's treatment. It is essential to have more opportunities to speak with patients and families about this issue.

9.
J Med Humanit ; 40(4): 505-511, 2019 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-31165370

RESUMO

The present paper describes the story of the development of a graphic novel-a story about superheroes-written by adolescent cancer patients on the Youth Project at the Istituto Nazionale Tumori in Milan (Italy). Nineteen patients from fifteen to twenty-five years old (fifteen receiving treatment for their cancer, four who had recently completed their treatments) participated in a four month creative writing laboratory managed by a professional teacher. The output from the writing laboratory was a written text that was used as the script for a graphic novel drawn by professional cartoonists and working together with the patients. Through their story, adolescent patients succeeded in voicing their dreams and fears. It was the adolescent patients themselves who explained how they had each tried to bring out the superhero inside them. This project describes the amazing powers of adolescents with cancer and opens a precious window on their inner world, enabling us to gain a better understanding of what they are really thinking and feeling through their own words.

11.
Recenti Prog Med ; 110(3): 131-137, 2019 Mar.
Artigo em Italiano | MEDLINE | ID: mdl-30968853

RESUMO

Dealing with a serious illness always implies, and particularly for a child, important physical and psychological stresses. If on the one hand, the adult could have adaption's resources which allow him to deal with the illness's implications, on the other hand, for a child, the interference of the disease with growing steps may cause serious problems. For this reason, the clinicians and the family have to support the educational and social continuity of the child's interactions. The school experience, in fact, helps and supports the psychological and social development of the patient. This article has the aim of describing the experiences of the authors considering the Italian legislation, discussing the scientific literature and the approaches and resources which can be used in order to maintain the children within their school career. The experiences of the authors have been collected in the Paediatric Unit of an oncology's hospital. However, these experiences may be useful also in other contexts where children are being treated for different diseases.


Assuntos
Neoplasias/psicologia , Instituições Acadêmicas , Estudantes/psicologia , Criança , Humanos , Itália , Neoplasias/patologia , Apoio Social , Estresse Fisiológico , Estresse Psicológico/psicologia
12.
Pediatr Blood Cancer ; 66(5): e27630, 2019 05.
Artigo em Inglês | MEDLINE | ID: mdl-30677216

RESUMO

Creative spirit and art are used as part of the Youth Project in Milan, a program dedicated to adolescents and young adults (AYA) with cancer. The "Summer is you" music project involved 45 patients (15-26 years old): with professional help, the patients wrote music and lyrics, sang their song, and recorded a video clip, sharing with us not only their hopes and fears, but also their romantic encounters and their urge to travel (https://youtu.be/Q5FSCMUVg0E). This project exploited the power of music to bring young people with cancer together in a novel form of support that can complement the more conventional psychological approaches.


Assuntos
Esperança , Musicoterapia/métodos , Música/psicologia , Neoplasias/psicologia , Adolescente , Adulto , Feminino , Humanos , Masculino , Adulto Jovem
13.
Tumori ; 105(3): 193-198, 2019 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-30117377

RESUMO

INTRODUCTION: Adolescents diagnosed with cancer have to temporarily stop pursuing several vital needs and making plans for the future. The Youth Project in Milan, Italy, focuses on such issues in young cancer patients' personal lives. Uncertainty about the future had already emerged in several artistic projects designed to help these patients voice their emotions. METHODS: We describe a project revolving around the question "What shall I do when I grow up?" Twenty-seven 15- to 26-year-old patients wrote a brief account of what they hoped to do as adults. Using theatrical costumes, they then dressed up in their chosen role for a photo shoot with a well-known professional photographer. The results were published in one of Italy's main national dailies. RESULTS: Participants reacted differently: some lightheartedly, others more seriously. They often expressed the wish to help others, desiring to return the support and protection they had received as patients. Another common theme concerned their need for normality. CONCLUSIONS: By writing about their dreams, these patients gave their doctors a glimpse of their inner world. The project proved an important complement to more conventional forms of psychosocial support and interaction with young patients.


Assuntos
Arte , Neoplasias/psicologia , Pacientes/psicologia , Adolescente , Adulto , Feminino , Humanos , Imaginação , Itália/epidemiologia , Masculino , Neoplasias/epidemiologia , Fotografação , Adulto Jovem
15.
Recenti Prog Med ; 109(6): 342-349, 2018 Jun.
Artigo em Italiano | MEDLINE | ID: mdl-29968864

RESUMO

Divorces and separations have become more frequent over the last 20 years and for this reason they are issues of great importance with possible effects on medical treatments. Conflicts between the adults frequently affect the children involved in the separation of their parents. If, on the one hand, the parental conflict is a hard and distressing experience for the whole family, on the other hand this situation gets even more complicated if a child is affected by a serious illness. Since there is a lack of studies about the management arrangements of these situations, this article aims to illustrate the experiences gained in a pediatric ward of a big oncology hospital and the appropriate multidisciplinary management arrangements. These experiences, however, can be applied also in other contexts where children are being treated and where the conflict between parents can either produce different difficulties in the performance of the therapy or prejudice the child's serenity.


Assuntos
Divórcio/psicologia , Conflito Familiar/psicologia , Neoplasias/terapia , Pais/psicologia , Adolescente , Criança , Pré-Escolar , Feminino , Humanos , Comunicação Interdisciplinar , Masculino , Neoplasias/psicologia
16.
J Neurooncol ; 138(3): 679-680, 2018 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-29767306

RESUMO

The therapeutic experience reported in the paper was conceived after the use of nimotuzumab and radiotherapy (BSCPED-05 international multicentric trial, EUDRACT 2005-003100-11) in 2009 when we decided to explore the activity of the same combination plus vinorelbine (see the paper for the rationale).

17.
Recenti Prog Med ; 109(3): 166-173, 2018 Mar.
Artigo em Italiano | MEDLINE | ID: mdl-29565050

RESUMO

The issue of quality of life, particularly of patients affected by cancer, is very controversial, especially with adolescent patients who have no prospects of recovery. This article aims to describe the psychological mechanisms, which affect teenage patients with terminal cancer, in order to allow the best quality of life possible. The adaptation of teenager patients suffering from terminal illnesses is also related to other non-medical issues such as psychological, legal and ethical considerations. A correct and balanced communication with such patients is needed, in order of maintaining a positive mental approach ("hope") so that the teens are able to come to terms with the hard reality. Several case studies are presented, that according to the authors show the importance of developing an area of illusion, which allows patients to face up to the extreme distress and anxiety of their reality, without completely denying the reality itself. These hypotheses at the moment need more empirical evidences but they demonstrate the complex mental process involved with terminally ill adolescent patients coming to terms with their situations and show the importance of considering such process in all aspects of clinical care and treatment, in order to best address their physical and psychological well-being.


Assuntos
Ilusões , Neoplasias/psicologia , Relações Profissional-Paciente , Qualidade de Vida , Adolescente , Ansiedade/epidemiologia , Comunicação , Medo/psicologia , Feminino , Humanos , Masculino , Neoplasias/patologia , Assistência Terminal/psicologia
18.
Pediatr Blood Cancer ; 65(5): e26958, 2018 05.
Artigo em Inglês | MEDLINE | ID: mdl-29316150

RESUMO

Social media are powerful means of communication that can also have an important role in the healthcare sector. They are sometimes seen with diffidence in the healthcare setting, partly because they risk blurring professional boundaries. This issue is particularly relevant to relations between caregivers and adolescent patients. The Italian Pediatric Hematology and Oncology Association created a multidisciplinary working group to develop some shared recommendations on this issue. After reviewing the literature, the working group prepared a consensus statement in an effort to suggest an analytical approach rather than restrictive rules.


Assuntos
Assistência à Saúde/normas , Pessoal de Saúde , Hematologia , Oncologia , Neoplasias/prevenção & controle , Mídias Sociais/normas , Criança , Consenso , Humanos
19.
J Med Biogr ; 26(4): 220-227, 2018 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-26968510

RESUMO

Agostino Gemelli (1878-1959) is known as the founder of the Catholic University in Italy. Franciscan monk and doctor he had a central role in promoting studies on human behavior, thanks to his solid scientific training as a student of Camillo Golgi at the University of Pavia. His research activities during the years of the First World War involved studying the motivation, courage and psychological adaptation of the soldiers, engaged in trench warfare, laying the foundations of modern studies of behavior and trauma.


Assuntos
Adaptação Psicológica , Coragem , Motivação , Guerra/história , História do Século XX , Humanos , Itália , I Guerra Mundial
20.
Tumori ; 104(4): 243-251, 2018 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-28885676

RESUMO

The meaning that patients with cancer attribute to life influences their expectations and their attitudes to the disease and its treatment. Over the centuries, religion has commonly been the answer encoded by the social setting when it came to matters of life and death. The present article analyzes the historical grounds for forms of cooperation between the scientific disciplines that focus on mental health and the approach of religion, centered on the Italian situation. Such cooperation was hard to imagine in the past, but the situation has changed considerably and cooperation is not only possible but extremely desirable. Acknowledgment of their spiritual needs helps patients to battle with their disease. The care of patients should include catering for their spiritual needs by ensuring the constant presence of a chaplain on hospital wards.


Assuntos
Assistência Religiosa , Religião e Psicologia , Assistência Terminal/psicologia , Serviço Religioso no Hospital , Clero/psicologia , Hospitais , Humanos , Relações Interpessoais , Neoplasias/psicologia , Espiritualidade
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