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Artigo em Inglês | MEDLINE | ID: mdl-33270265


BACKGROUND: In Spain, as in other countries, there has been a deep and intense process of change towards the adoption and use of Family-Centred Practices on Early Intervention. Despite several international organizations have recommended Family-Centred Practices be embedded in Early Intervention services, researchers on this field have highlighted a recommendation-implementation gap, as well as the need to point investigation on practitioners and intervention variables involved. Consequently, our goals were to describe and compare the practitioners' appraisals on actual and desired practices in Spain, and to explore the relationships between practitioners and intervention characteristics and the use of recommended practices. METHODS: A survey including practitioner and intervention characteristics measures was used to obtain data needed. The actual and desired practices were explored through the Family Orientation of Community and Agency Services scale. The participants were 119 EI Spanish practitioners whose programs were in the first stages of different FCP implementation projects. RESULTS: Practitioners reported actual practices to be less family-centred than they would like, moderately in line with FCP. They reported desired practices as quite close to recommended practices. Intervention characteristics were related to actual practices, whereas practitioner characteristics were not. CONCLUSIONS: The results suggest that the recommendation-implementation gap still exist in our context, as well as in other countries. Intervention characteristics seem to be one of the key elements significantly influencing actual practices, though additional research is needed. A comprehensive framework for implementation is needed to bridge the gap between recommendation practices and the use of these practices.

Artigo em Inglês | MEDLINE | ID: mdl-33113820


BACKGROUND: Family quality of life (FQoL), just like individual quality of life, has become a priority outcome in the policies and services received by persons with intellectual and developmental disabilities (IDD) and their families. Conceptualizing, measuring, and theorizing FQoL has been the object of investigation in recent decades. The goal of this paper is to present a revision of the Spanish Family Quality of Life Scales, the CdVF-E < 18 and the CdVF-E >18, and describe the FQoL of Spanish families with a member with IDD. METHODS: The sample included a total of 548 families with a member under 18 years old and 657 families with a member over 18. Based on an Exploratory Factor Analysis (EFA) firstly and a Confirmatory Factor Analysis (CFA) secondly, the two scales' psychometric properties were explored. RESULTS: The CdVF-ER < 18 and the CdVF-ER > 18 comprise 5 dimensions, containing 35 and 32 items, respectively, and they show good validity and reliability. The families obtained a high FQoL score, although some differences exist between the dimensions on which families with children under and over 18 score highest and lowest. CONCLUSION: The characteristics of the revised scales facilitate their use by professionals, administrations, and services.

Res Dev Disabil ; 94: 103495, 2019 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-31499380


BACKGROUND: Research evidence from studies in North America on the relationships between family-centered practices, parents' self-efficacy beliefs, parenting confidence and competence beliefs, and parents' psychological well-being was used to confirm or disconfirm the same relationships in two studies in Spain. AIMS: The aim of Study 1 was to determine if results from studies in North America could be replicated in Spain and the aim of Study 2 was to determine if results from Study 1 could be replicated with a second sample of families in Spain. METHODS AND PROCEDURES: A survey including the study measures was used to obtain data needed to evaluate the relationships among the variables of interest. The participants were 105 family members in Study 1 and 310 family members in Study 2 recruited from nine early childhood intervention programs. Structural equation modeling was used to test the direct and indirect effects of the study variables on parents' well-being. OUTCOMES AND RESULTS: Results showed that family-centered practices were directly related to both self-efficacy beliefs and parenting beliefs, and indirectly related to parents' psychological well-being mediated by belief appraisals. CONCLUSION AND IMPLICATIONS: The pattern of results was similar to those reported in other studies of family-centered practices. Results indicated that the use of family-centered practices can have positive effects on parent well-being beyond that associated with different types of belief appraisals.

Deficiências do Desenvolvimento , Crianças com Deficiência , Saúde da Família , Saúde Mental , Pais/psicologia , Reabilitação Psiquiátrica , Adulto , Pré-Escolar , Deficiências do Desenvolvimento/epidemiologia , Deficiências do Desenvolvimento/psicologia , Crianças com Deficiência/psicologia , Crianças com Deficiência/reabilitação , Feminino , Humanos , Masculino , Poder Familiar/psicologia , Reabilitação Psiquiátrica/métodos , Reabilitação Psiquiátrica/psicologia , Sistemas de Apoio Psicossocial , Autoeficácia , Espanha/epidemiologia