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1.
J Fam Nurs ; 26(1): 26-37, 2020 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-31874588

RESUMO

The family social environment is the first environment that a child experiences and has implications for children's health. However, the majority of family social environment measures do not account for its complexity. There is a need for novel approaches for assessing the family social environment that transcends the traditional way of measuring family composition and interaction. The purpose of this secondary data analysis research was to identify distinct family social environment typologies that consider both family composition and interaction and to describe the characteristics of the identified family social environment typologies. A series of latent class analysis results indicated three distinct typologies of family social environment with significant differences in family composition, family problem-solving skills, and demographic characteristics. The process used to identify the typologies and significant differences between the typologies showcases how the field could advance family-focused research by considering family composition and interaction.

2.
J Pediatr Psychol ; 44(10): 1224-1233, 2019 11 01.
Artigo em Inglês | MEDLINE | ID: mdl-31386155

RESUMO

OBJECTIVE: Medical factors that put adolescents and young adults (AYA) with epilepsy at risk for poor health-related quality of life (HRQOL) are well-established. Less known is whether medical risk is associated with decreases in global psychological well-being and how self-management self-efficacy might contribute to resilience. The current study seeks to (a) examine the relationship between medical risk and both HRQOL and psychological well-being in AYA with epilepsy and (b) investigate the potential moderating role of self-management self-efficacy. METHODS: A sample of 180 AYA with epilepsy, aged 13-24 years, was recruited from clinic and community settings and completed questionnaires. A medical risk gradient composed of seizure frequency, antiepileptic drugs, and other health problems was created. HRQOL, psychological well-being, and self-management self-efficacy were assessed. RESULTS: Medical risk was negatively associated with HRQOL, such that youth with greater risk scores reported lower HRQOL (r = -0.35, p < .01). However, there was no significant relationship between medical risk and psychological well-being (r = -0.08, p = .31). Self-efficacy was positively correlated with HRQOL and well-being (r = 0.50, p < .01; r = 0.48, p < .01). A moderation effect was detected, such that the positive effect of self-efficacy on HRQOL differed across medical risk levels. IMPLICATIONS: Cultivating psychological strengths, as opposed to solely addressing medical problems, may be a promising intervention target when treating AYA with epilepsy, including those navigating healthcare transitions. Self-efficacy predicted HRQOL at most levels of risk, suggesting an important modifiable intrinsic factor that may promote resilience.


Assuntos
Epilepsia/psicologia , Qualidade de Vida/psicologia , Resiliência Psicológica , Autoeficácia , Autogestão , Adolescente , Epilepsia/terapia , Feminino , Humanos , Masculino , Inquéritos e Questionários , Transição para Assistência do Adulto , Adulto Jovem
3.
J Sch Nurs ; 35(2): 96-106, 2019 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-29161978

RESUMO

The purpose of this study was to explore school nurse perceptions of the nurse-family relationship in the care of elementary students with asthma and attention-deficit hyperactivity disorder (ADHD). A cross-sectional survey design was used to collect data from 97 school nurses in Minnesota. The Family Nursing Practice Scale measured nurses' perceptions of their family nursing practice. Bivariate analyses were conducted to compare scores by factors at the community, school, nurse, and child levels. Results suggest that school nurses have positive appraisals of their family nursing practice, though scores were generally lower in the context of ADHD compared to asthma. Participants with a graduate degree reported greater skill in working with families, whereas novice nurses reported less confidence working with families and less comfort initiating family involvement in care. Results suggest that interventions at the nurse and school levels may support enhanced family nursing practice by nurses caring for students with chronic conditions.


Assuntos
Asma/enfermagem , Transtorno do Deficit de Atenção com Hiperatividade/enfermagem , Atitude do Pessoal de Saúde , Enfermeiras e Enfermeiros/psicologia , Relações Profissional-Família , Serviços de Enfermagem Escolar , Adulto , Criança , Doença Crônica , Estudos Transversais , Feminino , Humanos , Pessoa de Meia-Idade , Minnesota , Competência Profissional/estatística & dados numéricos , Adulto Jovem
4.
J Pediatr Health Care ; 29(4): 352-63, 2015.
Artigo em Inglês | MEDLINE | ID: mdl-25747391

RESUMO

INTRODUCTION: The purpose of this study was to evaluate the effect of advanced practice registered nurse (APRN) telehealth care coordination for children with medical complexity (CMC) on family caregiver perceptions of health care. METHOD: Families with CMC ages 2 to 15 years (N = 148) were enrolled in a three-armed, 30-month randomized controlled trial to test the effects of adding an APRN telehealth care coordination intervention to an existing specialized medical home for CMC. Satisfaction with health care was measured using items from the Consumer Assessment of Healthcare Providers and Systems survey at baseline and after 1 and 2 years. RESULTS: The intervention was associated with higher ratings on measures of the child's provider, provider communication, overall health care, and care coordination adequacy, compared with control subjects. Higher levels of condition complexity were associated with higher ratings of overall health care in some analyses. DISCUSSION: APRN telehealth care coordination for CMC was effective in improving ratings of caregiver experiences with health care and providers. Additional research with CMC is needed to determine which children benefit most from high-intensity care coordination.


Assuntos
Prática Avançada de Enfermagem , Cuidadores , Doença Crônica/psicologia , Continuidade da Assistência ao Paciente/organização & administração , Acesso aos Serviços de Saúde/organização & administração , Satisfação do Paciente/estatística & dados numéricos , Enfermagem Pediátrica/tendências , Percepção Social , Telemedicina , Adolescente , Cuidadores/psicologia , Cuidadores/estatística & dados numéricos , Criança , Pré-Escolar , Serviços de Saúde Comunitária , Comportamento Cooperativo , Feminino , Pesquisas sobre Serviços de Saúde , Humanos , Masculino , Avaliação de Programas e Projetos de Saúde , Qualidade da Assistência à Saúde , Qualidade de Vida
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