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1.
Aging Ment Health ; 26(3): 586-594, 2022 03.
Artigo em Inglês | MEDLINE | ID: mdl-33222510

RESUMO

BACKGROUND: Similarities exist in behavioral expression of autism spectrum disorder (ASD) and Alzheimer's disease and related dementias (ADRD). The purpose of this study was to assess presence of behavioral and psychiatric symptoms of dementia (BPSD) and ASD-like behaviors in adults with ADRD. METHODS: Using a cross-sectional design, data from University of Kentucky Alzheimer's Disease Center participant cohort were used. Hierarchical linear regression was used to assess (1) the relationship between ASD-like behaviors (measured by the Gilliam Autism Rating Scale-Second Edition, GARS-2) and BPSD measured by the Neuropsychiatric Inventory (NPI), and (2) the relationship between ASD-like behaviors and dementia severity (measured by the Clinical Dementia Rating [CDR] sum of boxes), when controlling for BPSD. RESULTS: Complete data were available for 142 participants. Using α of 0.05, analyses identified ASD behaviors were significantly associated with BPSD severity ratings (r = 0.47; p < 0.001) and dementia severity (r = 0.46; p < 0.001). GARS-2 explained 6.1% (p < 0.001) of variance in CDR sum of boxes when controlling for NPI and other covariates. DISCUSSION: There is significant overlap in behaviors characteristic of ASD and BPSD as assessed by the NPI and GARS-2, despite the use of these instruments in disparate developmental vs. aging settings. ASD behaviors appear to not be solely present in early childhood as a manifestation of ASD but are also present in older adults with neurodegenerative cognitive impairment. Such associations warrant additional research into causation, assessment, and behavioral interventions to further enable new therapeutic approaches targeting ASD behaviors across the lifespan.


Assuntos
Doença de Alzheimer , Transtorno do Espectro Autista , Demência , Idoso , Doença de Alzheimer/psicologia , Transtorno do Espectro Autista/complicações , Transtorno do Espectro Autista/epidemiologia , Sintomas Comportamentais , Pré-Escolar , Estudos Transversais , Demência/psicologia , Humanos , Escalas de Graduação Psiquiátrica
2.
Disaster Med Public Health Prep ; : 1-5, 2021 Oct 21.
Artigo em Inglês | MEDLINE | ID: mdl-34672250

RESUMO

OBJECTIVE: This study aims for a greater understanding of how older adults (age 65 and older) in Jackson County, Florida, are prepared for and cope with the effects of a natural disaster. METHODS: A multidisciplinary, international research team developed a survey examining: (1) resources available to individuals aged 65+ in rural communities for preparing for a disaster; (2) challenges they face when experiencing a disaster; and (3) their physical, social, emotional, and financial needs when it strikes. The survey was administered with older adults (65+) in Jackson County, Florida, following Hurricane Michael in 2018. The descriptive, multivariate logistic, and linear regression analyses were performed to examine the relationship between respondents' demographic information and needs, concerns, and consequences of disaster. RESULTS: Results indicated (n = 139) rural community-dwelling older adults rely on social support, community organizations, and trusted disaster relief agencies to prepare for and recover from disaster-related events. CONCLUSIONS: Such findings can be used to inform the development of new interventions, programs, policies, practices, and tools for emergency management and social service agencies to improve disaster preparedness and resiliency among older populations in rural communities.

3.
Omega (Westport) ; : 302228211043694, 2021 Sep 07.
Artigo em Inglês | MEDLINE | ID: mdl-34490818

RESUMO

This study examines the goals of medical aid-in-dying (MAID) legislation introduced to the US Congress from 1994-2020 using a policy mapping analysis approach. Using congress.gov, we identified 98 bills, 23 bills were analyzed in this study. Most of the bills aimed to restrict the use of federal funds, to regulate the drugs commonly used for MAID, to prohibit the development of policies or practices supporting MAID, and to regulate practitioners' roles in MAID. In practice, these bills would limit patient access to MAID by restricting drugs, funds, health care services, legal assistance, policy, and research. These findings suggest there lacks congressional support for MAID, even though polls of the public are divided yet favorable. Policymakers who support MAID should consider affirmative policies that 1) prevent MAID policies from discriminating against vulnerable groups, 2) support funding to study the use of MAID, and 3) build avenues to allow all qualified people to access MAID in places where it is legal.

4.
J Adv Nurs ; 77(10): 4254-4267, 2021 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-34288013

RESUMO

AIMS: We aim to establish the feasibility and acceptability of the Tele-STELLA (Support via Telehealth: Living and Learning with Advancing Alzheimer's Disease and Related Dementias) intervention. We will also assess the efficacy of the intervention in reducing the frequency of behavioural symptoms of dementia as well as family Care Partner reactivity to the symptoms. DESIGN: This is a multi-component, quasi-experimental study that focuses on facilitating effective management of behavioural symptoms that occur in the later stages of dementia. METHODS: Family Care Partners (n = 124) for persons with Alzheimer's disease will participate in two 8-week videoconferencing components that address behavioural symptoms-in both the persons with Alzheimer's disease and their Care Partners. In the first component ('Nova'), Care Partners work with one nurse for an hour/week for 4 weeks, then they join a small group for another 4 weeks. In the second component ('Constellation'), Care Partners work in a larger group to hone skills and knit supportive relationships. Behavioural symptom frequency and Care Partner reactivity to the behaviours will be measured prior to, during and after the intervention. The study is funded by the United States National Institute on Aging (R01AG067546); funding was initiated as on February, 2021. DISCUSSION: Tele-STELLA fills a gap in current videoconference-based psychoeducational interventions in that it offers real-time interaction with nurses and peers. The intervention was designed with feedback by pilot participants. This study will assess Tele-STELLA in its current, novel format; thus, preparing it for a larger, future randomized controlled trial. IMPACT: Tele-STELLA addresses symptoms that occur in the later stages of dementia, providing families with tools to facilitate effective behavioural management. Because Tele-STELLA is implemented via videoconferencing, it targets Care Partners who face barriers to support, such as cost and transportation. TRIAL REGISTRATION: This trial is registered with ClinicalTrials.gov (#NCT04627662).


Assuntos
Doença de Alzheimer , Telemedicina , Doença de Alzheimer/terapia , Terapia Comportamental , Aconselhamento , Humanos
5.
J Gerontol Soc Work ; 64(7): 775-790, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-34060986

RESUMO

Nursing home residents are an at-risk population during disaster situations, and nursing homes face unique challenges in managing disasters. Nursing home social service departments can support their nursing homes in meeting the needs of residents during disasters, yet there is little research exploring their involvement. To address this gap, we use secondary data from the 2019 National Nursing Home Social Service Directors' study to explore social service directors' and their departments' involvement in disaster preparedness and response, and personal- and nursing home-level characteristics that predict involvement. Results show that nursing home social service directors and their staffs are predominantly involved; 61.9% (n = 562) of respondents stated always participating, and an additional 20.3% (n = 184) usually participating in disaster planning. The age of the director significantly predicted involvement, with older directors being most likely to always be involved. Further research is needed to understand why some nursing homes involve their social service directors in disaster planning and others do not, what roles those directors play, and to identify strategies to increase involvement within this role.


Assuntos
Planejamento em Desastres , Desastres , Humanos , Casas de Saúde , Serviço Social
6.
J Appl Gerontol ; 40(8): 814-817, 2021 08.
Artigo em Inglês | MEDLINE | ID: mdl-33648357

RESUMO

Social distancing guidelines during COVID can be isolating, especially for older adults, with potential for poor health outcomes. Technology offers opportunities for remote connection, yet, older adults' use of and perspectives on technology during this time remain largely unknown. The purpose of this study was to gain insight into older adults' technology use and preferences to inform the development of a technology training intervention to support older adult well-being. Semi-structured interviews were conducted with 30 older adults. Interviews were analyzed using an iterative, constant comparison approach. Findings were consistent with Socioemotional Selectivity Theory; respondents were primarily interested in technology to support emotionally meaningful goals. Participants indicated limited interest in technology training, referencing diminished future time perspectives to explain disinterest. Findings suggest that efforts to encourage older adults' expanded technology adoption should highlight how use supports emotionally meaningful goals and provide low-effort, timely training, tied to specific and clear applications.


Assuntos
COVID-19 , Distanciamento Físico , Idoso , Humanos , SARS-CoV-2
7.
J Rural Health ; 37(2): 406-411, 2021 03.
Artigo em Inglês | MEDLINE | ID: mdl-32246530

RESUMO

OBJECTIVES: The prevalence of Alzheimer's disease and associated disorders is increasing. Rural residents in the United States have less access to memory care specialists and educational and community resources than in other areas of the country. Over a decade ago, we initiated an interdisciplinary rural caregiving telemedicine program to reach Kentucky residents in areas of the state where resources for supporting individuals with dementia are limited. Telemedicine programs involve a short informational presentation followed by a question and answer session; programs are offered 4 times a year. The purpose of this study was to explore questions asked over 1 year of the rural caregiving telemedicine program-encompassing 5 programs-to identify the scope of dementia-related knowledge gaps among attendees. METHODS: Questions from the 5 programs were recorded and content analyzed to identify areas of frequent informational requests. RESULTS: There were a total of 69 questions over the 5 sessions. For each program, questions ended due to time constraints rather than exhausting all inquiries. The most common topical areas of questions related to risk factors, behavioral management, diagnosis, and medications. DISCUSSION AND IMPLICATIONS: This study highlights that rural caregivers in Kentucky have diverse dementia educational needs. Rural communities may benefit from additional, targeted resources addressing these common areas of unmet informational needs.


Assuntos
Doença de Alzheimer , Telemedicina , Doença de Alzheimer/diagnóstico , Doença de Alzheimer/epidemiologia , Doença de Alzheimer/terapia , Cuidadores , Humanos , Kentucky , População Rural , Estados Unidos
8.
Alzheimers Dement ; 17 Suppl 7: e052397, 2021 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-35109453

RESUMO

BACKGROUND: Previous research has shown that up to one-third of patients diagnosed with mild cognitive impairment (MCI) demonstrate resistance to acceptance of the diagnosis, which may contribute to reduced engagement in clinical research activities including interventional trials. METHOD: This study explored researchers' experiences to recruit 18 dyads from a U.S. Alzheimer's Research Center to participate in a nine-month duration, pilot, platform trial of biopsychosocial interventions for persons with MCI and their study partner. Thirty-nine individuals with MCI met the inclusion criteria for the study. The MCI-study partner dyads were contacted by mail and phone solicitation for recruitment. Thematic analysis of recruitment case notes was used to track the number of telephone contacts, reasons for interest/disinterest in participation, and questions about the study. RESULT: Whereas many participants with MCI were interested and willing to enroll (92.3%), frequently study partners were not willing to enroll (53.8%). Study partners primarily consisted of male spouses with a mean age of 67. Study partners reported reasons for disinterest including being unavailable to participate in research sessions (due to availability or geographical distance) and lack of knowledge on MCI or the benefit of research involvement. Further data on the characteristics of study partners in regards to their willingness to engage in research will be presented. CONCLUSION: Recruiting persons with MCI and their study partners for clinical trials research may require specialized communication messaging and strategies for dyad engagement. Strategies should target study partners by promoting the opportunities and potential benefits of MCI clinical trials while considering challenges to involvement due to availability (e.g., weekend meetings, remote offerings, and attempting to lessen the burden of research engagement), rather than focusing recruitment efforts solely on the participant. Further studies exploring strategies to educate and engage study partners to enhance recruitment into MCI research is warranted.

9.
Alzheimers Dement ; 17 Suppl 7: e054696, 2021 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-35109455

RESUMO

BACKGROUND: Older adults are at greater risk for morbidity and mortality associated with COVID-19. Spatial distancing and sequestering practices are recommended to limit viral exposure. Older adults adopting these practices are at increased risk of social isolation and adverse health outcomes. Remote technologies offer various platforms for satisfying socialization and healthcare needs while sequestering. Understanding how older adults are using technology has implications for wellbeing during a pandemic. METHOD: Researchers attempted to contact all participants enrolled in the University of Kentucky Alzheimer's Disease Research Center longitudinal study via telephone to survey technology use (n = 706). Participants were contacted directly, except for demented participants, whose primary caregivers were contacted to respond on their behalf, when possible. Participants and caregivers gave their assent verbally to complete the voluntary survey, the procedures of which were approved by the IRB. The surveys consisted of validated instruments to gauge the extent of use of and comfort with technology. Spearman correlations, chi-square tests, and t-tests were used to explore data. RESULT: Ultimately, 384 participants were reached and 332 consented to participate. Most reported reliable home internet access (91.5%) and some internet use (90.6%). Recent feelings of loneliness were not related to any technology-related variables (all ps > 0.29) other than decreasing with greater willingness to use telehealth (Rho = -0.11, p = 0.06). Those who reported a lack of comfort with technology (n = 76) were less likely to text messaging (67% vs 78%) and social media (56% vs 69%), ps ≤ 0.06, but felt socially connected using technology at similar levels (82% vs 75%), p = 0.22. Nearly 70% of this group reported they would use technology more with training. Across all participants, willingness to use telehealth was not related to frequency of frustration with tech (Rho = 0, p = 0.99). CONCLUSION: The results suggest that some older adults' use of technology is limited by familiarity. Lack of familiarity does not appear to create a barrier to using telehealth nor does frustration with technology appear to limit telehealth use. The findings have implications for supporting older adults sequestered during a pandemic but potentially more broadly.

10.
Alzheimers Dement ; 17 Suppl 7: e053263, 2021 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-35109459

RESUMO

BACKGROUND: Recognition of the impact of primary sensory impairment on cognitive status and decline in the aging population has spurred research in this area. Most prior studies have focused on primary sensory function, with few studying the potential impact of central nervous system sensory processing and modulation in relation to cognitive status. METHOD: This study sought to evaluate sensory processing abnormalities rather than primary sensory deficits in community-residing older adults through administration of the Adult Sensory Profile (ASP), a 60-item, norm-referenced assessment evaluating central nervous system sensory processing. The ASP items assess six sensory modalities: taste/smell, movement, visual, touch, auditory, and activity level. Participants ranked items based on their likelihood to engage in activities within each group. Responses were tabulated into four processing categories (sensation avoiding, sensory sensitivity, sensation seeking, and low registration) and compared with age-cohort normative data. Identification of more than one category outside of normative results was indicative of sensory processing abnormalities compared to same-aged peers. Participants were categorized based on the ASP as normal (<2 categories outside of normal range) or abnormal (2-4 categories outside of normal range). Chi-square tests compared cognitively normal participants to those with cognitive impairment. RESULT: Seventeen participants completed the ASP. Eight were cognitively normal at the time of completion and nine were diagnosed with cognitive impairment. Of those with normal cognition, two were considered to have abnormal sensory processing (25%). Of those with cognitive impairment, seven were considered abnormal (78%), indicating a significant difference in global sensory processing between groups (x2 =4.73, p=0.029). CONCLUSION: Global sensory processing abnormalities were more frequent in those diagnosed with cognitive impairment compared to those that remained cognitively intact. It is likely that cortical neurodegeneration in sensory association areas is responsible for the increased prevalence of sensory processing abnormalities seen in the older adults with cognitive impairment in this study. Abnormal sensory processing abilities could contribute to increased behavioral and psychiatric symptoms, similar to that seen in children with severe sensory processing disorders. Larger studies are needed to confirm these results and investigate the relationship between impaired sensory processing and behavioral symptoms in dementia.

11.
Alzheimers Dement ; 17 Suppl 7: e052225, 2021 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-35109618

RESUMO

BACKGROUND: Receiving a diagnosis of mild cognitive impairment (MCI) may lead to experiences of emotional turmoil stemming from a perceived lack of clarity around diagnosis and prognosis. Previous research has identified several maladaptive behaviors resulting from the diagnosis of MCI that may be targeted for intervention in order to help those with a new diagnosis of MCI best adapt behaviors to maintain functional abilities. METHOD: A platform-based MCI trial cohort of individuals, newly diagnosed with MCI from a U.S. Alzheimer's Disease Research Center, was used to pilot a multicomponent interdisciplinary intervention targeting adaptive behavioral responses to the diagnosis of MCI. Thematic analysis was employed with fifteen focus groups across three study groups of 14 participants. After engaging with each of the platform-based MCI trial components, participants' and their study partner's perceptions of each intervention's acceptability, satisfaction, and compliance across the multicomponent interdisciplinary intervention were assessed. RESULTS: Themes that emerged from the data included a preference towards education, learning new information, and skill development. Both persons with MCI and study partners favored intervention components that were novel to them. They also reported higher satisfaction with activities facilitated by a professional (e.g., social worker, physical therapist, or pharmacist) as opposed to intervention activities that were self-directed. Participants with MCI and their study partners reported those with impairment's challenges utilizing technology independently, requiring assistance in setting up online medical portals, using wearable exercise trackers and automated pillboxes that represented technology-dependent components of the intervention. CONCLUSION: These data suggest that persons, newly diagnosed with MCI, are interested in adaptive, biopsychosocial interventions for persons with MCI. Acceptability, satisfaction, and compliance may be increased when individuals are engaging in learning novel information and skills that are led and supported by professionals. Assistance with and or training in the use of technology-based interventions may be needed to maximize the impact of such approaches. Further studies exploring the impact on the cognitive and functional decline that may be mediated by adaptive behavioral interventions in persons newly diagnosed with MCI are warranted.

13.
Alzheimers Dement (N Y) ; 6(1): e12045, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-32775600

RESUMO

Coronavirus disease 19 (COVID-19) has dramatically altered everyday life, including the field of Alzheimer's disease (AD) research. This perspective article explores some of the ways in which COVID-19 has already impacted the field, anticipates some of the long-lasting effects, and explores strategies for addressing current and future needs. Areas of impact include study integrity, regulatory and industry issues, and participant engagement. Proposed strategies for addressing these challenges include analytic methods to deal with large degrees of missing data and development of patient-centered, user-friendly, remote data collection tools and assessments. We also highlight the importance of maintaining participant well-being as a first and constant priority.

15.
Artigo em Inglês | MEDLINE | ID: mdl-32545651

RESUMO

Nature prescription programs have emerged to address the high burden of chronic disease and increasingly sedentary and screen-based lifestyles. This study examines the base of evidence regarding such programs. We conducted a narrative review of published literature using four electronic databases. We included case studies, research design articles, and empirical studies that discussed any type of outdoor exposure or activities initiated by a health-care provider from an outpatient clinic. We examined articles for information on target populations, health outcomes, and structural and procedural elements. We also summarized evidence of the effectiveness of nature prescription programs, and discussed needs and challenges for both practice and research. Eleven studies, including eight empirical studies, have evaluated nature prescription programs with either structured or unstructured formats, referring patients either to nearby parks or to formal outdoor activity programs. Empirical studies evaluate a wide variety of health behaviors and outcomes among the most at-risk children and families. Research is too sparse to draw patterns in health outcome responses. Studies largely tested program structures to increase adherence, or patient follow-through, however findings were mixed. Three published studies explore providers' perspectives. More research is necessary to understand how to measure and increase patient adherence, short and long-term health outcomes for patients and their families, and determinants of provider participation and participation impacts on providers' own health.


Assuntos
Pessoal de Saúde , Doença Crônica , Atenção à Saúde , Humanos , Projetos Piloto , Estudos Prospectivos
16.
J Pain Symptom Manage ; 60(1): e70-e76, 2020 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-32298748

RESUMO

The COVID-19 pandemic is anticipated to continue spreading widely across the globe throughout 2020. To mitigate the devastating impact of COVID-19, social distancing and visitor restrictions in health care facilities have been widely implemented. Such policies and practices, along with the direct impact of the spread of COVID-19, complicate issues of grief that are relevant to medical providers. We describe the relationship of the COVID-19 pandemic to anticipatory grief, disenfranchised grief, and complicated grief for individuals, families, and their providers. Furthermore, we provide discussion regarding countering this grief through communication, advance care planning, and self-care practices. We provide resources for health care providers, in addition to calling on palliative care providers to consider their own role as a resource to other specialties during this public health emergency.


Assuntos
Infecções por Coronavirus/epidemiologia , Pesar , Pandemias , Pneumonia Viral/epidemiologia , Planejamento Antecipado de Cuidados , COVID-19 , Comunicação , Infecções por Coronavirus/prevenção & controle , Humanos , Cuidados Paliativos/métodos , Pandemias/prevenção & controle , Pneumonia Viral/prevenção & controle , Autocuidado
17.
J Soc Work End Life Palliat Care ; 16(2): 99-115, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-32223368

RESUMO

The loss of a family member or friend can have profound psychological and physical implications, particularly for individuals without bereavement support services. Online support groups can be an effective means of extending services beyond the traditional modes of delivery. This is especially true for populations that include isolated individuals and those with limited support networks, limited transportation, challenging time commitments, or reside in communities with limited services available. The literature over the last 10 years was reviewed to discern the potential opportunities and challenges of providing online bereavement support group services. Discussed are challenges for recruitment of participants, availability of technology resources, addressing privacy and confidentiality issues, participants' knowledge of technical equipment, legal considerations, ethical considerations, accessibility, and other best practices. Diverse populations such as adolescents, older adults, and rural communities must be uniquely considered when using online support groups.


Assuntos
Luto , Internet , Grupos de Autoajuda/organização & administração , Assistência Terminal/organização & administração , Confidencialidade , Cultura , Acesso aos Serviços de Saúde/organização & administração , Humanos , Qualidade da Assistência à Saúde/normas , Apoio Social
18.
J Soc Work End Life Palliat Care ; 16(2): 133-150, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-32223695

RESUMO

Patients with dementia may be discharged from hospice if their condition stabilizes. The loss of professional support and an already complex grief process needs careful attention. A live discharge presents a unique experience for each hospice patient, caregiver, and hospice team, which varies from traditional bereavement theories used to describe the grieving process. This article explores live discharge from hospice for caregivers of adults with dementia through a theoretical lens of Symbolic Interactionism (SI) and Attachment Theory (AT). The theories of SI and AT support and assist in understanding the experience of caregivers who lose hospice support due to ineligibility. In addition, caregivers watch the gradual deterioration and psychological loss of someone with dementia while they remain alive described as an ambiguous loss. Ambiguous loss as a subset of traditional bereavement theories provides a framework for this exploration and provides a relevant illustration of the complex needs. This article will conclude with implications for social work practice. It is important for hospice clinicians to be aware of current termination practices necessary to manage appropriate attachments, support the symbolic meaning of the hospice experience, validate the ambiguous losses, and maintain a sense of hope through a live discharge from hospice.


Assuntos
Cuidadores/psicologia , Demência/epidemiologia , Pesar , Cuidados Paliativos na Terminalidade da Vida/psicologia , Alta do Paciente , Idoso , Feminino , Humanos , Masculino , Pessoa de Meia-Idade
19.
Alzheimer Dis Assoc Disord ; 34(3): 262-266, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-32218064

RESUMO

INTRODUCTION: Individual reactions to a diagnosis of mild cognitive impairment (MCI) can vary in a wide range of both adaptive and maladaptive responses. Understanding such reactions to diagnosis is important to maximize adaptive responses that can promote continued independence. METHODS: In this pilot study, the Aging and Memory Quality of Life survey was developed to facilitate an understanding of adaptive and maladaptive behaviors results from a diagnosis of MCI. The Aging and Memory Quality of Life was administered to 45 individuals diagnosed with MCI and 45 cognitively normal participants serving as control subjects matched for age, sex, and education. Study partners were surveyed to collect corroborating and or discrepant observer responses. RESULTS: Inconsistent with study partners' reporting, MCI subjects may be underreporting physical limitations, and overreporting medication compliance. MCI subjects identified challenges to managing financial affairs. DISCUSSION: Developing strategies to circumvent the development of maladaptive behaviors could significantly reduce morbidity and mortality in MCI patients.


Assuntos
Adaptação Psicológica , Disfunção Cognitiva/diagnóstico , Qualidade de Vida/psicologia , Sujeitos da Pesquisa/estatística & dados numéricos , Idoso de 80 Anos ou mais , Envelhecimento/psicologia , Feminino , Humanos , Masculino , Testes Neuropsicológicos/estatística & dados numéricos , Projetos Piloto , Inquéritos e Questionários
20.
Artigo em Inglês | MEDLINE | ID: mdl-32009573

RESUMO

Technology is changing many aspects of our daily lives including how we share our experiences. While there have been many advances in technology to sustain life, it has also led to changes in how we die. This study utilized publicly available online narratives (vlog postings) written by individuals diagnosed with a terminal illness to explore themes on what dying individuals wished to say about their experiences (n = 39). While the content of the messages varied, universally all postings provided advice for living a good life. The implications of these narratives are still unknown. Questions remain about the role online peer support plays in the dying process and the extent to which sharing one's digital story can affect others online. The act of being introspective at the end of life and the desire for social connection is similar to other forms of social work intervention such as dignity therapy suggesting an opportunity for further exploration. Additionally, these end-of-life narratives could also serve as a tool for educating future social work professionals about the experiences of those diagnosed with a terminal illness.


Assuntos
Morte , Narração , Apoio Social , Estresse Psicológico/psicologia , Doente Terminal/psicologia , Redação , Atitude Frente a Morte , Humanos , Relações Interpessoais , Serviço Social
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