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1.
J Health Care Chaplain ; : 1-13, 2019 Oct 04.
Artigo em Inglês | MEDLINE | ID: mdl-31583968

RESUMO

New medical technology has extended children's lives, creating challenges for parental decision-making. Many parents utilize religion or spirituality (R/S). This study examined the semi-structured interviews of 24 parents who made significant medical decisions. Major domains included drawing on guidance from an internal or personal R/S source; some described making decisions by surrendering decision-making agency to the Divine; being guided by beliefs in the afterlife, including that their child's suffering would be alleviated in death, and/or making their decision in a partnership with the Divine. Participants also describe being guided by external R/S sources. Participants spoke about receiving counsel from spiritual communities, that God worked through the medical team, and/or seeking guidance through prayer or spiritual writings. Parents use R/S to make medical decisions for their children, and many consider the chaplain to be part of the medical team. Chaplains have a role to play in helping to facilitate the use of religion/spirituality in medical decision-making for those parents who identify as religious/spiritual as well as those who are not currently utilizing their beliefs.

2.
J Relig Health ; 2019 Oct 04.
Artigo em Inglês | MEDLINE | ID: mdl-31584149

RESUMO

Spiritual struggles (SSs) are distressing spiritual thoughts associated with poorer health outcomes. This study's purpose was to test feasibility, acceptability, and fidelity of an intervention to decrease SS of parents of children with CF. Parents screening positive for SS were enrolled and were randomized to intervention or attention-control condition. Intervention focused on intra-, inter-, and divine SS. Mixed linear modeling examined between-group differences. We present analyses of N = 23, and participants all showed decreased levels of SS. Acceptability was high; feasibility was higher in the intervention arm. GuideSS_CF is acceptable and feasible and warrants development as a potentially efficacious intervention.

3.
Palliat Med ; : 269216319870641, 2019 Aug 21.
Artigo em Inglês | MEDLINE | ID: mdl-31431157

RESUMO

BACKGROUND: Palliative transport is transport home of patients requiring critical care transport support with expectation of imminent death. Many parents prefer their child's death at home; evidence suggests death in the preferred location improves bereavement outcomes. Little is known about the clinical and demographic diversity of patients receiving palliative transport or the perspectives of participating staff. AIM: The objectives of the present study were to (1) characterize demographic and clinical factors involved in palliative transport, (2) identify challenges encountered, and and (3) ascertain staff perspectives. DESIGN: Ten-year retrospective chart review and cross-sectional staff survey using study-specific questionnaire. SETTING/PARTICIPANTS: Twenty-three patients had palliative transport from a tertiary pediatric hospital from 2004 to 2013, of which 12 met inclusion criteria. Survey responses from 22 participating staff were received. RESULTS: The cohort of 12 patients was 58% female, with a mean (range) age of 5.5 (0.01-22) years; racial composition was not significantly different than the palliative care clinical census over the same time period. Distances under 30 miles accounted for 50% of palliative transports. The majority of patients (75%) died within 2 days of palliative transport. Six unanticipated events are described. Staff reported palliative transport as a positive experience, regarding it as an important job component. However, 63% were dissatisfied or undecided about the plan should the patient die enroute, and 48% experienced some level of dissatisfaction with communication. CONCLUSION: Palliative transport is a feasible option for some patients. Staff experienced palliative transport as valuable, although process concerns were noted. This study underscores the importance of preparedness, training, and education for palliative transports.

4.
J Am Dent Assoc ; 150(9): 748-754, 2019 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-31229254

RESUMO

BACKGROUND: Transgender and gender nonconforming (TGNC) people continue to experience health care disparities despite increasing visibility and acceptance. As far as is known, no information exists regarding their experiences with oral health care providers. In this study, the authors intended to understand how TGNC adolescents and young adults interface with their oral health care providers. METHODS: A total of 36 participants, including patients 14 through 24 years of age and their caregivers, were recruited from the Transgender Health Clinic at the Cincinnati Children's Hospital, Cincinnati, Ohio. Interviews were conducted using a semistructured interview guide. All interviews were transcribed verbatim, coded, and analyzed for major themes using grounded theory methodology. RESULTS: Overall, participants reported positive experiences with their oral health care providers. Those with negative experiences reported that the problems were corrected rapidly. Some participants reported issues processing insurance. Several indicated that stress and anxiety related to gender identity could be reduced via use of certain strategies. CONCLUSIONS: TGNC adolescents and young adults have minimal difficulty receiving oral health care. Oral health care providers can make minor modifications to intake forms and office design to improve patient experience and reduce stress and anxiety related to gender identity in the health care setting. PRACTICAL IMPLICATIONS: Although TGNC adolescents and young adults may not need oral health care specific to their identity, taking steps to provide a safe and comfortable treatment setting can improve patient experience for this vulnerable population.

5.
Qual Life Res ; 27(8): 2107-2115, 2018 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-29564711

RESUMO

PURPOSE: To quantify HRQOL of TGN patients using the PedsQL 4.0 generic core scales, and to compare reported HRQOL of TGN adolescents with published data from comparison populations. METHODS: Transgender children and adolescents (N = 142; 68% natal females) ages 6-23 years (M = 15.9, SD = 3.7) attending an outpatient clinic for TGN care at an academic pediatric hospital and caregivers of children and adolescents (N = 95) completed the PedsQL 4.0 generic core scales. Scores were compared with published scores for healthy adolescents and adolescents with 10 chronic diseases. RESULTS: TGN youth reported significantly lower overall HRQOL (more than twice the clinically meaningful difference) compared to youth without chronic disease. Total self-reported TGN HRQOL (M(SD), 65.72(17.40)) was lower than all chronic disease comparison groups except for rheumatology and cerebral palsy. TGN youth reported physical functioning (M(SD), 75.33(22.87)) lower than or similar to chronically ill comparisons, but higher than rheumatology and cerebral palsy groups. Psychosocial functioning (M(SD), 59.87(17.83)) was lower than all comparison samples and similar to youth with cerebral palsy. Results were similar for parent proxy-reports of TGN youth HRQOL (LS means: 68.75; 95% CI 65.87-71.61 vs 66.16; 95% CI 62.87-69.45; p = 0.12). CONCLUSIONS: TGN youth reported low HRQOL across all domains; most were significantly lower than healthy peers or peers with chronic diseases. Clinicians should understand the magnitude of TGN youth's low HRQOL and offer them and their caregivers resources to maximize their ability to achieve their full potential for healthy and productive lives.

6.
Depress Res Treat ; 2017: 5670651, 2017.
Artigo em Inglês | MEDLINE | ID: mdl-28831310

RESUMO

OBJECTIVE: Spiritual struggle (SS) is associated with poorer health outcomes including depression. The study's main objectives were to characterize change in depression over time, examine longitudinal associations between SS and depression, and determine the extent to which experiencing SS at baseline was predictive of developing depression at follow-up. METHODS: A two-site study collected questionnaire responses of parents (N = 112; 72% female) of children with cystic fibrosis followed longitudinally. Generalized linear mixed effects modeling examined the association between depression and SS over time and assessed potential mediators, moderators, and confounders. RESULTS: Prevalence of depression increased from baseline to follow-up (OR: 3.6, P < 0.0001), regardless of degree of SS. Parents with Moderate/Severe SS were more likely to have depressive symptoms, compared to parents without SS (OR: 15.2, P = 0.0003) and parents who had Mild SS (OR: 10.2, P = 0.0001). Being female and feeling less "at peace" also significantly predicted increased depression (OR: 2.5, P = 0.0397, and OR: 1.15, P = 0.0419, resp.). Experiencing SS at baseline was not predictive of having depression subsequently at follow-up. CONCLUSIONS: Parents experiencing SS were significantly more likely to report depressive symptoms. Interventions to reduce SS have shown efficacy and may be considered.

7.
J Relig Health ; 56(5): 1837-1845, 2017 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-28516396

RESUMO

Imbuing one's body with divine significance is associated with health-protective behaviors. The purpose of this study was to determine whether adolescents with a life-shortening, chronic disease (cystic fibrosis) who sanctified their bodies also received adequate sleep. Data from Daily Phone Diaries and questionnaire replies from 45 adolescents with cystic fibrosis (ages 11-19 years) were analyzed. A significant relationship between body sanctification and sleep was found, with between-gender differences. Body sanctification is an understudied construct which is associated with healthy behaviors.


Assuntos
Fibrose Cística/psicologia , Comportamentos Relacionados com a Saúde , Sono , Espiritualidade , Adolescente , Adulto , Criança , Feminino , Humanos , Masculino , Projetos Piloto , Fatores Sexuais , Inquéritos e Questionários , Adulto Jovem
8.
Biomed Inform Insights ; 9: 1178222616686067, 2017.
Artigo em Inglês | MEDLINE | ID: mdl-28469429

RESUMO

Religious or spiritual struggles are clinically important to health care chaplains because they are related to poorer health outcomes, involving both mental and physical health problems. Identifying persons experiencing religious struggle poses a challenge for chaplains. One potentially underappreciated means of triaging chaplaincy effort are prayers written in chapel notebooks. We show that religious struggle can be identified in these notebooks through instances of negative religious coping, such as feeling anger or abandonment toward God. We built a data set of entries in chapel notebooks and classified them as showing religious struggle, or not. We show that natural language processing techniques can be used to automatically classify the entries with respect to whether or not they reflect religious struggle with as much accuracy as humans. The work has potential applications to triaging chapel notebook entries for further attention from pastoral care staff.

9.
J Health Care Chaplain ; 23(2): 67-85, 2017 Apr-Jun.
Artigo em Inglês | MEDLINE | ID: mdl-27869567

RESUMO

Studies of religious/spiritual behavior frequently rely on self-reported questionnaire data, which is susceptible to bias. The Daily Phone Diary (DPD) was developed to minimize bias in reporting activities and behavior across a 24-hour period. A cross-sectional study of 126 parents of children with cystic fibrosis was used to establish the validity of the DPD to study religious/spiritual behaviors. Longitudinal models were used to determine the odds of improved mood during religious/spiritual activities. Convergent validity was found. Participants had increased odds of improved mood during religious/spiritual activities compared to nonreligious/spiritual activities. Associations with gender and religious affiliations were found. The DPD is a valid tool for studying religious/spiritual activities and opens novel avenues for chaplaincy research and the development of chaplaincy interventions incorporating these findings.


Assuntos
Afeto , Coleta de Dados/métodos , Pais/psicologia , Religião e Psicologia , Adaptação Psicológica , Adulto , Criança , Estudos Transversais , Fibrose Cística/psicologia , Feminino , Humanos , Masculino , Reprodutibilidade dos Testes , Telefone
10.
J Health Care Chaplain ; 23(1): 34-43, 2017 Jan-Mar.
Artigo em Inglês | MEDLINE | ID: mdl-27869574

RESUMO

An online survey was conducted by twelve professional chaplain organizations to assess chaplains' attitudes about and involvement in research. A total of 2,092 chaplains from 23 countries responded to the survey. Over 80% thought research was definitely important and nearly 70% thought chaplains should definitely be research literate. Just over 40% said they regularly read research articles and almost 60% said they occasionally did. The respondents rated their own research literacy as 6.5 on a 0-10 scale. Significant positive inter-correlations were found among all four measures: importance of (a) research and (b) research literacy; (c) frequency of reading articles; and (d) research literacy rating. Approximately 35% were never involved, 37% had been involved, 17% were currently involved, and 11% expected to be involved in research. The last three groups were significantly more likely to think research and research literacy were important and to read research articles than chaplains who were never involved in research. Given chaplains' interest in research, actions should be undertaken to facilitate further research engagement.


Assuntos
Atitude , Clero/psicologia , Pesquisa , Adulto , Idoso , Idoso de 80 Anos ou mais , Clero/estatística & dados numéricos , Feminino , Humanos , Internacionalidade , Masculino , Pessoa de Meia-Idade , Inquéritos e Questionários , Adulto Jovem
11.
J Pediatr Psychol ; 41(9): 1022-32, 2016 10.
Artigo em Inglês | MEDLINE | ID: mdl-27037417

RESUMO

OBJECTIVE: Adolescent cystic fibrosis (CF) treatment adherence is a significant multidimensional issue. Using the Theory of Reasoned Action (TRA), this study examined the role of spiritual factors in adherence. METHODS: Forty-five 11-19-year-olds diagnosed with CF completed questionnaires concerning psychosocial, spiritual, and adherence-related constructs and Daily Phone Diaries to calculate treatment adherence. Exploratory Factor Analysis identified two spiritual factors used in subsequent analyses. The mediating roles of attitude toward the treatment's value (utility), subjective behavioral norms (the product of perceived behavioral norms and one's motivation to comply with them), self-efficacy for completing the treatments and treatment intentions in the relationship between spiritual factors and treatment adherence were tested with path analysis. RESULTS: Lower 'spiritual struggle' and greater 'engaged spirituality' predicted treatment attitude (utility) and subjective behavioral norms, which, together with self-efficacy, predicted treatment intentions. Finally, treatment intentions predicted airway clearance adherence. CONCLUSIONS: Findings were consistent with the TRA. Engaged spirituality supports pro-adherence determinants and behavior. Spiritual struggle's negative associations with outcomes warrant screening and intervention.


Assuntos
Comportamento do Adolescente/psicologia , Fibrose Cística/psicologia , Fibrose Cística/terapia , Cooperação do Paciente/psicologia , Espiritualidade , Adolescente , Atitude , Criança , Estudos Transversais , Análise Fatorial , Feminino , Humanos , Masculino , Motivação , Cooperação do Paciente/estatística & dados numéricos , Psicologia do Adolescente , Autoeficácia , Inquéritos e Questionários , Adulto Jovem
12.
J Health Care Chaplain ; 22(2): 54-66, 2016.
Artigo em Inglês | MEDLINE | ID: mdl-26901280

RESUMO

Spiritual struggles are associated with poorer health outcomes, including depression, which has higher prevalence among transgender individuals than the general population. This study's objective was to improve the quality of care in an outpatient transgender clinic by screening patients and caregivers for spiritual struggle and future intervention. The quality improvement questions addressed were whether screening for spiritual struggle was feasible and acceptable; and whether the sensitivity and specificity of the Rush Protocol were acceptable. Revision of the screening was based on cognitive interviews with the 115 adolescents and caregivers who were screened. Prevalence of spiritual struggle was 38-47%. Compared to the Negative R-COPE, the Rush Protocol screener had sensitivities of 44-80% and specificities of 60-74%. The Rush Protocol was acceptable to adolescents seen in a transgender clinic, caregivers, and clinic staff; was feasible to deliver during outpatient clinic visits, and offers a straightforward means of identifying transgender persons and caregivers experiencing spiritual struggle.


Assuntos
Conflito (Psicologia) , Programas de Rastreamento , Pais/psicologia , Espiritualidade , Pessoas Transgênero/psicologia , Adolescente , Instituições de Assistência Ambulatorial , Atitude do Pessoal de Saúde , Estudos de Viabilidade , Feminino , Humanos , Masculino , Corpo Clínico/psicologia , Aceitação pelo Paciente de Cuidados de Saúde/psicologia , Sensibilidade e Especificidade , Pessoas Transgênero/estatística & dados numéricos
13.
Ann Am Thorac Soc ; 12(6): 838-46, 2015 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-25803407

RESUMO

RATIONALE: Cystic fibrosis is a progressive disease requiring a complex, time-consuming treatment regimen. Nonadherence may contribute to an acceleration of the disease process. Spirituality influences some parental healthcare behaviors and medical decision-making. OBJECTIVES: We hypothesized that parents of children with cystic fibrosis, when classified into groups based on adherence rates, would share certain psychosocial and religious and/or spiritual variables distinguishing them from other adherence groups. METHODS: We conducted a multisite, prospective, observational study focused on parents of children younger than 13 years old at two cystic fibrosis center sites (Site 1, n= 83; Site 2, n = 59). Religious and/or spiritual constructs, depression, and marital adjustment were measured by using previously validated questionnaires. Determinants of adherence included parental attitude toward treatment, perceived behavioral norms, motivation, and self-efficacy. Adherence patterns were measured with the Daily Phone Diary, a validated instrument used to collect adherence data. Cluster analysis identified discrete adherence patterns, including parents' completion of more treatments than prescribed. MEASUREMENTS AND MAIN RESULTS: For airway clearance therapy, four adherence groups were identified: median adherence rates of 23%, 52%, 77%, and 120%. These four groups differed significantly for parental depression, sanctification of their child's body, and self-efficacy. Three adherence groups were identified for nebulized medications: median adherence rates of 35%, 82%, and 130%. These three groups differed significantly for sanctification of their child's body and self-efficacy. CONCLUSIONS: Our results indicated that parents in each group shared psychosocial and religious and/or spiritual factors that differentiated them. Therefore, conversations about adherence likely should be tailored to baseline adherence patterns. Development of efficacious religious and/or spiritual interventions that promote adherence by caregivers of children with cystic fibrosis may be useful.


Assuntos
Comportamento Cooperativo , Fibrose Cística , Depressão , Pais/psicologia , Cooperação do Paciente , Espiritualidade , Adulto , Alabama , Atitude Frente a Saúde , Criança , Pré-Escolar , Análise por Conglomerados , Estudos Transversais , Fibrose Cística/psicologia , Fibrose Cística/terapia , Depressão/epidemiologia , Depressão/etiologia , Saúde da Família , Feminino , Humanos , Masculino , Cooperação do Paciente/etnologia , Cooperação do Paciente/psicologia , Cooperação do Paciente/estatística & dados numéricos , Psicologia , Autoeficácia
14.
J Health Care Chaplain ; 21(2): 76-90, 2015.
Artigo em Inglês | MEDLINE | ID: mdl-25793423

RESUMO

Religious factors are known to contribute to treatment adherence in different patient populations, and religious coping has been found to be particularly important to adolescents dealing with chronic diseases. Adherence to prescribed treatments slows disease progression and contributes to desirable outcomes in most patients, and, therefore, adherence-promoting interventions provided by chaplains could be beneficial to various patient populations. The current article describes a pilot study to test the feasibility of a theoretically and empirically based chaplain intervention to promote treatment adherence for adolescents with CF. Cognitive interviews were conducted 24 with adolescents with CF, and content analysis was used to identify themes, which informed revision of the intervention protocol. The authors thought that presenting the methods and results of this pilot study would be helpful for chaplains who want to conduct intervention research. The results indicated that the proposed intervention was acceptable and feasible to deliver in hard copy or an electronic platform.


Assuntos
Serviço Religioso no Hospital , Fibrose Cística/psicologia , Cooperação do Paciente/psicologia , Autoeficácia , Adaptação Psicológica , Adolescente , Criança , Fibrose Cística/terapia , Estudos de Viabilidade , Feminino , Humanos , Masculino , Projetos Piloto , Religião e Psicologia , Adulto Jovem
15.
J Health Care Chaplain ; 21(1): 25-38, 2015.
Artigo em Inglês | MEDLINE | ID: mdl-25569780

RESUMO

A child's chronic illness can lead parents to utilize different types of coping, including religious beliefs and practices. Previous studies have generally focused on life-shortening diagnoses. The present study explored parental use of faith when the diagnosis was not life-shortening, using grounded-theory qualitative methodology. Data were collected using semi-structured telephone interviews with N = 12 parents of children diagnosed with Neuroendocrine Hyperplasia of Infancy (NEHI); approximately 50% of the diagnosed population in the United States at the time of the interview. Participants used faith to cope and make meaning in five ways: parents believed NEHI happened for a reason; beliefs provided resilience; parents were sustained by faith communities; beliefs affected parents' behavior; and beliefs developed over time. The results suggest that chaplains develop means for universal screening for spiritual struggle; educating congregational clergy how to support families in which a child has a chronic illness; and assisting parents construct meaning of their experience.


Assuntos
Adaptação Psicológica , Doenças Pulmonares Intersticiais/psicologia , Relações Pais-Filho , Pais/psicologia , Doenças Raras/psicologia , Religião , Serviço Religioso no Hospital , Doença Crônica , Feminino , Humanos , Hiperplasia , Lactente , Pulmão/patologia , Doenças Pulmonares Intersticiais/diagnóstico , Masculino , Células Neuroendócrinas/patologia , Pesquisa Qualitativa , Doenças Raras/diagnóstico , Apoio Social
16.
J Relig Health ; 54(2): 664-75, 2015 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-25119628

RESUMO

Positive health outcomes are related to adults' religious congregational participation. For parents of children with chronic disease, structured daily care routines and/or strict infection control precautions may limit participation. For this exploratory study, we examined the relationship between congregational support and religious coping by parents of children with cystic fibrosis (CF) compared to parents for whom child health issues were not significant stressors. CF parents reported higher levels of emotional support from congregation members and use of religious coping. Within-group differences were found for CF parents by denominational affiliation. Congregational support for parents dealing with child chronic disease is important.


Assuntos
Adaptação Psicológica , Atitude Frente a Saúde , Fibrose Cística/psicologia , Pais/psicologia , Religião e Psicologia , Apoio Social , Adolescente , Criança , Pré-Escolar , Feminino , Humanos , Lactente , Masculino
17.
J Health Care Chaplain ; 20(3): 109-22, 2014.
Artigo em Inglês | MEDLINE | ID: mdl-24926897

RESUMO

Qualitative research methods are a robust tool for chaplaincy research questions. Similar to much of chaplaincy clinical care, qualitative research generally works with written texts, often transcriptions of individual interviews or focus group conversations and seeks to understand the meaning of experience in a study sample. This article describes three common methodologies: ethnography, grounded theory, and phenomenology. Issues to consider relating to the study sample, design, and analysis are discussed. Enhancing the validity of the data, as well reliability and ethical issues in qualitative research are described. Qualitative research is an accessible way for chaplains to contribute new knowledge about the sacred dimension of people's lived experience.


Assuntos
Serviço Religioso no Hospital , Pesquisa Qualitativa , Projetos de Pesquisa , Antropologia Cultural , Humanos , Modelos Teóricos , Filosofia , Reprodutibilidade dos Testes
18.
J Clin Psychol Med Settings ; 21(2): 125-35, 2014 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-24838648

RESUMO

Management of cystic fibrosis (CF) is burdensome and adherence is often suboptimal. Family routines are associated with adherence and health outcomes in other disease populations. Few studies have examined routines in CF. The study's aim was to describe parent experiences developing and utilizing CF care routines. Semi-structured interviews with a convenience sample of 25 parents of children under 13 years of age with CF were analyzed using phenomenological analysis. Three domains emerged: parent experiences developing a routine, support systems facilitating maintenance of routines, and challenges with maintaining care routines. Parents found routines difficult to establish, used trial and error, encountered barriers, and found support helpful to manage care demands. Some parents chose to deviate from their routine. Providing anticipatory guidance to promote the use of care routines and strategies to manage potential challenges may facilitate use of routines and improve CF management.


Assuntos
Atitude Frente a Saúde , Fibrose Cística/psicologia , Fibrose Cística/terapia , Pais/psicologia , Adolescente , Adulto , Criança , Pré-Escolar , Feminino , Humanos , Lactente , Entrevistas como Assunto/métodos , Masculino , Cooperação do Paciente/psicologia , Cooperação do Paciente/estatística & dados numéricos
19.
Religions (Basel) ; 5(2): 385-401, 2014 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-26900486

RESUMO

Children's diseases can negatively impact marital adjustment and contribute to poorer child health outcomes. To cope with increased marital stress and childhood diseases severity, many people turn to spirituality. While most studies show a positive relationship between spirituality and marital adjustment, spirituality has typically been measured only in terms of individual behaviors. Using the Dyadic Adjustment Scale (DAS) and Daily Phone Diary data from a sample of 126 parents of children with cystic fibrosis as a context for increased marital stress, spiritual behavior of mother-father dyads and of whole families were used as predictors of marital adjustment. Frequency and duration of individual, dyadic and familial spiritual activities correlated positively with dyadic adjustment. Significant differences in spiritual activities existed between couples with marital adjustment scores above and below the cutoff for distress. The only significant factors in regressions of spiritual activities on marital adjustment scores were number of pulmonary exacerbations and parent age. Higher odds of maintaining a marital adjustment score greater than 100 were significantly associated with spending approximately twelve minutes per day in individual, but not conjugal or familial, spiritual activities. The Daily Phone Diary is a feasible tool to study conjugal and familial activities and their relationships with beliefs and attitudes, including spirituality.

20.
J Relig Health ; 53(2): 604-13, 2014 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-24173602

RESUMO

This qualitative study examined the preferences of urban adolescents with asthma for including religious/spiritual (R/S) inquiry in a variety of hypothetical clinical encounters. Twenty-one urban adolescents (M(age) = 15.6 years, 52 % female, 81 % African American) with asthma participated in a semi-structured interview. Interviews were transcribed and underwent a thematic analysis. R/S preferences were contextual rather than personal, driven by: (1) acuity of the hypothetical clinical context; (2) nature of the patient-provider relationship; and (3) level of R/S intervention/inquiry. Most adolescents welcomed prayer if near death, but did not see the relevance of R/S in a routine office visit.


Assuntos
Comportamento do Adolescente/psicologia , Asma/psicologia , Relações Médico-Paciente , Religião e Medicina , Espiritualidade , População Urbana/estatística & dados numéricos , Adolescente , Feminino , Humanos , Entrevistas como Assunto/métodos , Masculino , Meio-Oeste dos Estados Unidos , Preferência do Paciente/psicologia , Preferência do Paciente/estatística & dados numéricos , Pesquisa Qualitativa , Religião , Religião e Psicologia , Inquéritos e Questionários
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