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1.
Cuad. bioét ; 30(98): 35-42, ene.-abr. 2019. tab
Artigo em Espanhol | IBECS | ID: ibc-180693

RESUMO

El final de la vida va acompañado de sufrimiento y penalidades que pueden ser aliviados en las unidades de Cuidados Paliativos (CP) con una atención compasiva. El objetivo de este trabajo consiste en describir el concepto de “anticipación compasiva” como una forma de cuidar al paciente y a su familia al final de la vida desde la perspectiva tanto de los profesionales, profesores y estudiantes de las ciencias de la salud, como de las personas con enfermedad avanzada y sus familiares. Se ha empleado para ello una metodología cualitativa. Los datos se recogieron a través de entrevistas en profundidad y de grupos focales, siendo analizados y codificados usando la técnica de la teoría fundamentada. Se obtuvo la aprobación de un Comité de Ética. La muestra intencionada fue de 29 participantes: pacientes y familiares de pacientes con enfermedad avanzada, profesionales asistenciales de CP y expertos en bioética, profesores universitarios y estudiantes de Ciencias de la Salud. Los datos se recogieron en un Hospital de CP en Madrid, España. Los participantes valoran positivamente la anticipación compasiva de los profesionales que supone estudiar y reflexionar sobre las posibles complicaciones que pueden derivarse de la situación de enfermedad avanzada que padece el enfermo y dialogar con él acerca de las posibles actuaciones al respecto. El artículo concluye que la compasión es una virtud que implica adelantarse a las necesidades de los pacientes para que el enfermo pueda tomar decisiones compartidas acertadas. Es lo que se denomina anticipación compasiva. Son necesarios ulteriores estudios que profundicen en las características de la anticipación compasiva y cómo desarrollarla de forma óptima en los pacientes al final de la vida


End of life is frequently accompanied by suffering and hardships that can be alleviated in the Palliative Care (PC) units by applying compassionate advance care. It is the aim of this paper to describe the concept of "compassionate advance care" as a way of caring for the patient and his family at the end of life from the perspective of both professionals, teachers and students of the health sciences, and persons with advanced disease and their families. A qualitative methodology was used. Data were collected through in-depth interviews and focus groups, and analysed and coded using the theory of Grounded Theory. Approval of an Ethics Committee was obtained. The intentional sample consisted of 29 participants, who were patients and relatives of patients with advanced disease, PC professionals and experts in bioethics, university professors and Health Sciences students. Data were collected in a PC Hospital in Madrid, Spain. The participants positively valued the compassionate advance care provided by professionals: analysing and reflecting on possible complications that may arise from the advanced disease situation suffered by the patient and establishing a dialogue with him about possible actions in this regard. The paper concludes that compassion is a virtue that implies anticipating the needs of patients, thus allowing the patient to make the right shared decisions. This is what the term Compassionate Advance Care Planning entails. Further studies are needed to delve into the characteristics of compassionate Advance Care Planning and how to optimally implement it in patients at the end of life. To admit the opposite is to enter a spiral where the dignity of the human being would become an object of weighting with respect to another value, which, in a hypothetical conflict could be postponed by another. However, Palliative Care takes into account the social dimension of the end of life of the human being. They take care of the sick human being in its entirety. That is why they are the option most in line with the dignity of the human being at the end of his life


Assuntos
Humanos , Cuidados Paliativos na Terminalidade da Vida/ética , Conforto do Paciente/ética , Empatia/ética , Pesquisa Qualitativa
2.
Cuad Bioet ; 30(98): 35-42, 2019.
Artigo em Espanhol | MEDLINE | ID: mdl-30742452

RESUMO

End of life is frequently accompanied by suffering and hardships that can be alleviated in the Palliative Care (PC) units by applying compassionate advance care. It is the aim of this paper to describe the concept of "compassionate advance care" as a way of caring for the patient and his family at the end of life from the perspective of both professionals, teachers and students of the health sciences, and persons with advanced disease and their families. A qualitative methodology was used. Data were collected through in-depth interviews and focus groups, and analysed and coded using the theory of Grounded Theory. Approval of an Ethics Committee was obtained. The intentional sample consisted of 29 participants, who were patients and relatives of patients with advanced disease, PC professionals and experts in bioethics, university professors and Health Sciences students. Data were collected in a PC Hospital in Madrid, Spain. The participants positively valued the compassionate advance care provided by professionals: analysing and reflecting on possible complications that may arise from the advanced disease situation suffered by the patient and establishing a dialogue with him about possible actions in this regard. The paper concludes that compassion is a virtue that implies anticipating the needs of patients, thus allowing the patient to make the right shared decisions. This is what the term Compassionate Advance Care Planning entails. Further studies are needed to delve into the characteristics of compassionate Advance Care Planning and how to optimally implement it in patients at the end of life. To admit the opposite is to enter a spiral where the dignity of the human being would become an object of weighting with respect to another value, which, in a hypothetical conflict could be postponed by another. However, Palliative Care takes into account the social dimension of the end of life of the human being. They take care of the sick human being in its entirety. That is why they are the option most in line with the dignity of the human being at the end of his life.

3.
Aquichan ; 14(1): 20-31, ene.-abr. 2014.
Artigo em Espanhol | LILACS-Express | ID: lil-705587

RESUMO

Objetivo: develar las experiencias de mujeres chilenas con cáncer en tratamiento con quimioterapia. Materiales y método: estudio de investigación cualitativa fenomenológica según el pensamiento filosófico de Martín Heidegger. Se entrevistaron en profundidad a 10 mujeres entre 45 y 64 años, con diferentes diagnósticos de cáncer en tratamiento con quimioterapia. El análisis se realizó basado en el método de Streubert y Carpenter, triangulando con un investigador experto. Resultados: la experiencia de vivir con cáncer y con quimioterapia significa estar "viviendo con un tratamiento que provoca cambios profundos en la vida de las mujeres", siendo esta una categoría comprensiva esencial del estudio que contiene cuatro unidades de significados: 1) cambios en todas las dimensiones del "ser" de las mujeres tanto a nivel corporal como emocional y espiritual; 2) cambios en el "ser-sí-misma": antes y durante la quimioterapia; 3) cambios de "ser" en el mundo; 4) cambios en la familia. Conclusiones: la comprensión en profundidad de lo vivido por las mujeres de este estudio confirma lo publicado en la literatura, y se constituye en un saber comprensivo que puede servir de guía para realizar cuidados de enfermería oncológicos humanos y personalizados basados en las necesidades de cada persona.


Objective: To show the experiences of Chilean women with cancer who are undergoing chemotherapy. Materials and methods: This is a phenomenological qualitative study developed pursuant to the philosophical thinking of Martin Heidegger. In-depth interviews were conducted with 10 women between 45 and 64 years of age who have been diagnosed with different types of cancer and are undergoing chemotherapy. The analysis was based on the Streubert-Carpenter method and triangulated by a practiced researcher. Results: The experience of living with cancer and chemotherapy means "living with a treatment that causes profound changes in women's lives," this being an essential, comprehensive category of the study that contains four units of meaning: 1) changes in all the dimensions of "being" a woman; that is, at the corporal, emotional and spiritual level, 2) changes in "being oneself" before and during chemotherapy, 3) changes to "being" in the world, and 4) changes in the family. Conclusions: An in-depth understanding of the experiences of the women in this study confirms the reports in literature and constitutes a comprehensive body of knowledge that can serve as a guide to humane and tailored cancer nursing care based on each person's needs.


Objetivo: revelar as experiências de mulheres chilenas com câncer em tratamento com quimioterapia. Materiais e método: estudo de pesquisa qualitativa fenomenológica segundo o pensamento filosófico de Martín Heidegger. Entrevistaram-se em profundidade 10 mulheres entre 45 e 64 anos, com diferentes diagnósticos de câncer em tratamento com quimioterapia. A análise foi realizada com base no método de Streubert e Carpenter, e triangulada com um pesquisador especialista. Resultados: a experiência de viver com câncer e com quimioterapia significa estar "vivendo com um tratamento que provoca mudanças profundas na vida das mulheres", e esta é uma categoria compreensiva essencial do estudo que contém quatro unidades de significados: 1) mudanças em todas as dimensões do "ser" das mulheres, tanto corporal quanto emocional e espiritualmente; 2) mudanças no "ser-si-mesma": antes e durante a quimioterapia; 3) mudanças de "ser" no mundo; 4) mudanças na família. Conclusões: a compreensão em profundidade do vivido pelas mulheres deste estudo confirma o publicado na literatura e constitui-se em um saber compreensivo que pode servir de guia para realizar cuidados de enfermagem oncológicos humanos e personalizados baseados nas necessidades de cada pessoa.

4.
Horiz. enferm ; 25(1): 23-31, 2014.
Artigo em Espanhol | LILACS | ID: biblio-831093

RESUMO

El ingreso de un paciente a una Unidad de Cuidados Intensivos (UCI), es un acontecimiento estresante para los miembros de la familia y las experiencias que viven al separarse resultan traumáticas, pero pocas veces son acogidas por los profesionales del staff clínico. Se realizó un estudio de caso para develar la experiencia de una enfermera cuya madre estuvo hospitalizada en una unidad de cuidados intensivos coronaria, para contribuir a generar conocimiento comprensivo en enfermería sobre este fenómeno y aportar a la humanización del cuidado de los familiares. Metodología: Para ello, se aplicó el método de investigación cualitativa de aproximación fenomenológica de Husserl. Se entrevistó en profundidad a una enfermera, quien firmó previamente un consentimiento informado. El proceso de análisis fue realizado basado en Streubert & Carpenter y triangulado con investigadores expertos. Resultados: Se develaron cuatro grandes unidades de significado. La experiencia de tener a su madre hospitalizada en una UCI significa: (1) vivir como un divagar de sentimientos en torno a la muerte, (2) significa, también, una incapacidad de desvincularse del rol de enfermera y tener conciencia de gravedad, (3) significa contar con diferentes apoyos y, por último, significa un (4) cambio de roles al interior de la familia. Conclusión: Se evidencian los aspectos más importantes para realizar intervenciones de cuidados de enfermería personalizados considerando los aspectos emocionales y psicológicos de acuerdo a las singularidades de la enfermera como familiar de paciente hospitalizado en una unidad de paciente crítico.


A patient admitted in an Intensive Care Unit (ICU) is a stressful event for the members of a family, the experiencesbe separated can be traumatic, but rarely are understood by clinical staff. A case study was conducted to reveal the experience of a nurse whose mother was in a Coronary Intensive Care Unit in order to contribute to the construction of comprehensive knowledge in Nursing about this phenomenon, and make a contribution in the humanization of caring for family. Methodology: was applied a qualitative investigation method of approximation phenomenological from Husserl In depth was interviewed a nurse who previously signed an informed consent. The process of analysis was performed based on Streubert & Carpenter and triangulated with expert researchers. Results: Four major units of meaning were unveiled. The experience of having her mother hospitalized in an ICU means: (1) live as a ramble from feelings about death, (2) also means an inability to disengage from the role of nurse and be aware of gravity, (3) means having diff erent supports and fi nally, means a (4) Change of roles within the family. Conclusion: The results indicated the most important interventions of nursing care considering the custom and human emotional and psychological aspects according to the singularities of the nurse as a relative of an ill patient in a critical inpatient unit.


Assuntos
Humanos , Adulto , Feminino , Unidades de Cuidados Coronarianos , Enfermeiros/psicologia , Relações Mãe-Filho , Relações Enfermeiro-Paciente , Pesquisa Qualitativa
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