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J Pediatr Nurs ; 2020 Oct 17.
Artigo em Inglês | MEDLINE | ID: mdl-33082034


PURPOSE: The main stage of developing an educational health technology is meeting the expectations of users. Nurses in Brazil can benefit from online training about therapeutic play interventions. This study identified the learning demands of nurses for acquiring competence in the use of therapeutic play to build an online course. DESIGN AND METHODS: Focus groups study, guided by the COREQ guidelines. Nurses experienced in pediatric care participated in eight groups held in hospitals across all Brazilian regions in 2018. The focus group interviews had a mean duration of two hours and were moderated by the main researcher and an observer, both of whom were nurses experienced in qualitative research. All interviews were audio recorded. The transcripts of the audios were coded, from which the themes were developed, and thematic analysis performed. RESULTS: Nurses (N = 53, 8.5 ± 6.3 years of experience in pediatric care) reported their learning demands in three themes: "Learning theoretical concepts", "Developing therapeutic play skills", and "Learning the therapeutic play in a fun, interactive and motivational online environment". CONCLUSION: Nurses learning demands involve theoretical concepts and skills to implement therapeutic play through an interesting online course. PRACTICE IMPLICATIONS: By developing play-based competence through an online learning environment nurses can feel confident in implementing therapeutic play into their pediatric practice, setting the stage for a future of positive interaction between nurses and children in pediatric health care.

Artigo em Inglês | MEDLINE | ID: mdl-32945713


Purpose: This study aimed to uncover the fertility-related concerns and uncertainties in adolescent and young adult (AYA) childhood cancer survivors. Methods: In this qualitative study, participants were recruited from an oncohematology outpatient clinic at a university hospital in Brazil. Twenty-four AYA cancer survivors, aged 18- 24 years (13 men and 11 women), participated in individual semistructured interviews focusing on two parts-sociodemographic and clinical variables and guiding questions that enabled understanding of the concerns and uncertainties regarding the risks of infertility and their impact on relationships and the need for guidance. Data were analyzed using inductive thematic analysis. Results: Four themes were identified from the data-(1) knowledge about fertility, (2) emotional impact and fertility-related uncertainty, (3) sharing the possible risk of infertility with partners, and (4) need for information on possible loss of fertility. Conclusion: The meanings attributed to the loss of fertility after cancer treatment uncovered the need for health professionals to organize survivor services in line with the survivors' needs, and include reproductive concerns and uncertainties in this planning. The study results provide insights for the development of health care services that meet the real needs of this particular population that has long-term follow-up demands.

Rev Bras Enferm ; 73 Suppl 4: e20180975, 2020.
Artigo em Português, Inglês | MEDLINE | ID: mdl-32756743


OBJECTIVES: to analyze how children with type 1 diabetes mellitus and their families explain the pathology, based on their understanding of the factors related to the discovery of diabetes, the etiology, treatment, and prognosis of the disease. METHODS: qualitative methodological approach, based on medical anthropology and the narrative method. In-depth interviews were conducted with 12 families of children with type 1 diabetes mellitus attending follow-up consultations at a specialized center. The statements were subjected to inductive thematic analysis. RESULTS: the explanatory models identified describe the families search for the clarification of the signs and symptoms that the child had. Faced with the disease, families reorganized themselves to meet new health care needs of children, such as adequate nutrition, physical exercise, and blood glucose monitoring. Final Considerations: knowing the explanatory models allows the understanding of how families give meaning to the child's illness, favoring daily nursing care and an effective control of the disease.

Psicol. clín ; 32(2): 357-386, maio-ago. 2020.
Artigo em Português | LILACS-Express | LILACS, Index Psicologia - Periódicos técnico-científicos | ID: biblio-1125421


Tendo em vista a relevância da Gestalt-Terapia (GT) para o cenário atual da Psicologia, este estudo apresenta reflexões teóricas sobre os fundamentos filosóficos e teórico-epistemológicos que sustentam essa abordagem. Por meio de breve retrospectiva histórica, a pesquisa localiza o surgimento da abordagem em um cenário então dominado pelas perspectivas psicanalítica e comportamental. A seguir, são abordados os fundamentos teórico-epistemológicos que sustentam e norteiam as intervenções da GT. Em seguida, discorre-se conceitualmente sobre o modelo terapêutico da GT, concentrando-se na análise de conceitos como aqui-agora, 'awareness' e fronteiras de contato. A última parte é dedicada à consideração de apontamentos críticos e identificação de limitações da GT. A partir das reflexões desenvolvidas, entende-se que a intervenção terapêutica em GT privilegia a experiência presente e tem por objetivo restaurar o contato, utilizando para tanto a relação dialógica. Na abordagem gestáltica, o indivíduo é considerado um ser provisório que está em permanente construção, a partir das relações que estabelece. Essas relações acompanham o movimento de inacabamento, inerente à condição do homem, e a eterna reconstrução que caracteriza o devir humano. Ao final, demonstra-se que a GT reúne um acervo que contribui de modo significativo não apenas para a clínica psicoterápica, como também para o avanço do saber psicológico.

Given the relevance of Gestalt-Therapy (GT) to the current scenario of Psychology, this study presents some theoretical reflections on the philosophical and theoretical-epistemological foundations that support this approach. Through a brief historical retrospective, the study locates the emergence of the approach in a scenario then dominated by the psychoanalytic and behavioral perspectives. Next, the theoretical-epistemological foundations that support and guide GT interventions are addressed. Conceptual discourse is then discussed about the therapeutic model of GT, focusing on the analysis of concepts such as here-now, awareness, and contact boundaries. The last part is devoted to the consideration of critical notes and limitations of GT. From the reflections developed, it is understood that the therapeutic intervention in GT privileges the present experience and its function is to restore the contact, using to that end the dialogical relation. In the Gestalt approach, the individual is considered a provisional being, which is under permanent construction, based on the relationships established. These relations accompany the movement of unfinishedness, inherent to the human condition, and the eternal reconstruction that characterizes becoming human. Finally, it is shown that the GT brings together a collection that contributes significantly not only to the psychotherapeutic clinic, but also to the advancement of psychological knowledge.

En vista de la relevancia de la Gestalt-Terapia (GT) para el escenario actual de la Psicología, este estudio presenta algunas reflexiones teóricas sobre los fundamentos filosóficos, teóricos y epistemológicos que sostienen ese abordaje. Por medio de una breve retrospectiva histórica, el estudio localiza el surgimiento del abordaje en un escenario entonces dominado por las perspectivas psicoanalítica y conductual. Así, se abordan los fundamentos teórico-epistemológicos que sostienen y orientan las intervenciones de la GT. En seguida se discurre conceptualmente sobre el modelo terapéutico de la GT, concentrándose en el análisis de conceptos como aquí-ahora, 'awareness' y fronteras de contacto. La última parte está dedicada a la consideración de apuntes críticos y limitaciones de la GT. A partir de las reflexiones desarrolladas se entiende que la intervención terapéutica en GT privilegia el experiencia presente y tiene por función restaurar el contacto, utilizando, para tanto, la relación dialógica. En el abordaje gestáltico el individuo es considerado un ser provisional, que está en permanente construcción, a partir de las relaciones que establece. Estas relaciones acompañan el movimiento de inacabamiento, que es inherente a la condición del hombre, y la eterna reconstrucción que caracteriza al devenir humano. Al final, se demuestra que la GT reúne un acervo que contribuye de modo significativo no sólo a la clínica psicoterápica, sino también al avance del saber psicológico.

Eur J Med Genet ; 63(11): 104018, 2020 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-32739285


Health professionals working in services providing genetic counseling need objective instruments to assess genetic counseling outcomes and also to "give a voice" to those using these services. Lack of knowledge regarding such outcomes may directly impact the effectiveness and the potential benefits of counseling, quality of life, health promotion, and empowerment of those receiving counseling. There are very few instruments available for most countries, however there are none in Brazil. In this context, this study aimed to adapt and preliminarily validate the Genetic Counseling Outcome Scale (GCOS-24), a Patient-Reported Outcome Measure (PROM), originally developed in British English. This methodological study recruited 278 individuals attending a medical genetic service at a Brazilian university hospital. We performed the translation, back-translation, semantic validation, pilot study and field study for testing of some psychometric properties. The instrument's internal consistency and test-retest reliability (stability) were assessed using Cronbach's alpha coefficient and Intraclass Correlation Coefficient, respectively. The Brazilian version of the GCOS-24 presented face and content validity, satisfactory internal consistency (Cronbach's α = 0.71), and moderate stability (ICC = 0.52). It was considered reliable, easily understood and relevant to assessing the genetic counseling outcomes for the study participants. Its construct validity still needs to be assessed to verify the instrument's internal structure and its potential use to measure change in empowerment following genetic counseling provided by Brazilian clinical genetics services.

Psychooncology ; 2020 Jul 13.
Artigo em Inglês | MEDLINE | ID: mdl-32658362


OBJECTIVE: This qualitative systematic review aims to synthesize qualitative evidence from primary studies on experiencing health-related quality of life (HRQoL) in extended and permanent cancer survivors. METHODS: A systematic literature search was performed in PubMed, CINAHL, LILACS, PsycINFO, Scopus, and Web of Science. It followed guidelines from the statement in the Enhancing Transparency in Reporting the Synthesis of Qualitative Research (ENTREQ). A quality appraisal of each study was undertaken using the Critical Appraisal Skills Programme. Data synthesis was conducted according to the thematic synthesis approach. Confidence in each review finding was assessed using the Confidence in the Evidence from Reviews of Qualitative research (Grade-CERQual). RESULTS: Twenty-four studies from nine countries were selected for the final sample. Analysis of the studies' results allowed for the construction of nine descriptive themes that were interpreted into three analytical themes: "The body as a representation of HRQoL," "Living through and beyond cancer: the re-signification of HRQoL," and "Employing resources to improve HRQoL." According to the CERQual approach, moderate confidence estimations were achieved for the results. CONCLUSIONS: The themes reflect that the HRQoL experience is re-signified by survivors from the privilege of being alive. This process happens with the support of social resources, family, hope, and spirituality. Based on the findings, it is suggested that health staff should be able to recognize the impact that cancer survival has on HRQoL and develop a care plan that addresses needs to sustain health in these survivors.

J Pediatr Oncol Nurs ; 37(6): 444-457, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-32715930


This study aims to synthesize qualitative evidence about the bereavement experience of parents following the death of a child due to cancer. A qualitative metasynthesis was conducted from searching five databases. The search identified 650 articles that were independently assessed by two reviewers. Thirty-one articles were selected for full-text reading and assessed for eligibility; a total of 14 articles were included in the final sample and submitted to quality appraisal. The software NVivo® was used to organize the data and support the thematic analysis procedures. Two analytical themes were constructed: (1) losing a child and facing a rupture in identity and sense of life and (2) surviving grief and reengaging in life. The grief process was dynamic, continuous, and begun before the death of the child. Fathers and mothers reacted differently to the loss and experience of grief. The loss of a child definitively changed the parents' life and caused identity crisis and loss of life's purpose. During the process of survival, parents constructed new meanings that helped them cope with grief; they used strategies that allowed them to recover their sense of purpose in life. Synthesizing the experience of bereaved parents is essential to improve the support families of children with advanced cancer receive to better cope with their suffering and loss, before and after the child's death.

J Pediatr Nurs ; 53: e35-e40, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-32063429


PURPOSE: Understanding disease mechanisms inside the body is crucial to engage youth with type 1 diabetes (T1D) in self-care behaviors. This study describes how Instructional Therapeutic Play (ITP) group sessions held by nurses in a Brazilian camp can enhance youth's understanding about T1D. DESIGN AND METHODS: Youth with T1D participated in video recorded ITP group sessions guided by the Sensitive Creative Method. First, participants were asked to create an artistic production based upon the query "What happens in the body of a young person who has diabetes?". They described their drawings and shared information, providing opportunities to discuss T1D pathophysiology. Second, campers were told a story about a child who had T1D onset using a rag doll and illustrative figures. Participants were asked to create a second artistic production based upon the same initial query. Finally, campers had another presentation of the drawings, discussion, and sharing through the question "How did the story told help you understand your diabetes?" Transcriptions of ITP sessions were submitted to thematic analysis. RESULTS: Twenty participants (9-17yo) were assigned to age/gender matched groups. Four themes were built: Designing insulin production; Experiencing the glycemic vigilance in diabetes management; The ITP session as a safe space to share challenges with nurses and peers; and Unraveling the myths of diabetes with the ITP session. CONCLUSION: Therapeutic play sessions enhanced youth's knowledge and unraveled myths of T1D pathophysiology. PRACTICE IMPLICATIONS: ITP sessions can be developed by nurses in order to deliver age-appropriate diabetes education to pediatric patients.

Eur J Oncol Nurs ; 44: 101692, 2020 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-31751850


PURPOSE: Most qualitative studies do not explore experience throughout the urologic cancer survival trajectory. Moreover, the evidence of the experience of cancer survivors that focuses on the contextual aspects of culture is scarce in oncology literature. This study aimed to analyze the survival experience of urological cancer from the perspective of men. METHOD: This was a narrative research based on the concepts of culture derived from the interpretative medical anthropologic approach. Semi-structured interviews were conducted with 10 male survivors of urological cancer at different survival seasons. Seven participants agreed to a second interview, which resulted in 17 interviews. The data were analyzed using a five-phase thematic analysis approach. The findings are presented as narrative syntheses. The standards for reporting qualitative research (SPQR) was used in this study. RESULTS: Two narrative syntheses were constructed: "The journey of urological cancer: discovering oneself as a survivor" and "What I was and what I am today": the disruption on the body and life. The narrative synthesis shows that survivors undergo transitions of identity from being healthy men to wrecked men. The survivors tried to present themselves as normal men to keep their masculinity intact. However, the experience of survival constituted a process of liminality and biographical disruption. CONCLUSION: The experience of surviving urological cancer has highlighted the physical, emotional, and social challenges experienced by these male survivors. It is recommended to oncology nurses that nursing care should be planned along survival seasons considering the survivors' individual and subjective experiences.

Rev. enferm. UFSM ; 10: 33, 2020.
Artigo em Inglês, Português | LILACS, BDENF - Enfermagem | ID: biblio-1119326


Objetivo: analisar as concepções de pais e mães de crianças com câncer em relação à doença e ao tratamento quimioterápico de seus filhos, de acordo com os conceitos do Modelo do Senso Comum (MSC). Método: estudo descritivo, qualitativo. Foram entrevistados 14 pais de pacientes pediátricos em tratamento oncológico. Os dados foram submetidos à análise de conteúdo e analisados segundo o MSC. Resultados: os resultados foram reunidos nas categorias: Identidade da doença: concepções sobre o câncer; Duração: o tempo para o diagnóstico e os sintomas envolvidos; Causas da doença: a busca por explicações; Consequências da doença e do tratamento; Cura ou controle: percepções sobre o prognóstico, baseadas nos domínios do MSC. Conclusão: concepções negativas relacionadas ao câncer e seu tratamento podem gerar incertezas nos pais, comprometer a mobilização de recursos para lidar com os desdobramentos da doença e reduzir as expectativas de um desfecho positivo da experiência.

Objective: analyze the conceptions of fathers and mothers of children with cancer about their children's disease and chemotherapy, in accordance with the concepts of the Commonsense Model (CSM). Method: descriptive, qualitative study. Fourteen parents of pediatric patients in cancer treatment were interviewed. The data were submitted to content analysis and analyzed according to the CSM. Results: the results were joined in the categories: Identity of the disease: conceptions on the cancer; Duration: time for the diagnosis and symptoms involved; Causes of the disease: the search for explanations; Consequences of the disease and the treatment; Cure or control: perceptions on the prognosis, based on the domains of the CSM. Conclusion: negative conceptions on the cancer and its treatment can arouse uncertainties in the parents, compromise the mobilization of resources to cope with the consequences of the disease and reduce the expections that the experience will have a positive outcome.

Objetivo: analizar las concepciones de los padres de niños con cáncer respecto a la enfermedad y al tratamiento quimioterápico de sus hijos, según los conceptos del Modelo del Sentido Común (MSC). Método: estudio descriptivo, cualitativo. Fueron entrevistados 14 padres de niños en tratamiento oncológico. Los datos fueron sometidos al análisis de contenido y analizados según el MSC. Resultados: los resultados fueron reunidos en las categorías: Identidad de la enfermedad: concepciones sobre el cáncer; Duración: el tiempo para el diagnóstico y los síntomas involucrados; Causas de la enfermedad: la búsqueda por explicaciones; Consecuencias de la enfermedad y del tratamiento; Cura o control; percepciones sobre el pronóstico, basadas en los dominios del MSC. Conclusión: concepciones negativas relacionadas al cáncer y su tratamiento pueden generar incertidumbres, comprometer la movilización de recursos para lidiar con los desdoblamientos de la enfermedad y reducir las expectativas de un desfecho positivo de la experiencia.

Humanos , Pais , Criança , Adolescente , Neoplasias
Acta Paul. Enferm. (Online) ; 33: e, 2020. tab, graf
Artigo em Português | LILACS-Express | LILACS, BDENF - Enfermagem | ID: biblio-1088506


Resumo Objetivo Identificar estudos na literatura nacional e internacional sobre a eficácia das intervenções não farmacológicas para melhoria da qualidade de vida de crianças e adolescentes com câncer. Métodos Revisão integrativa, cuja busca ocorreu nos meses de setembro e outubro de 2018, nas bases de dados PsycINFO, Web of Science, CINAHL, LILACS, IBECS, BDENF e MEDLINE® para responder à questão norteadora: "Quais são as intervenções não farmacológicas disponíveis na literatura e utilizadas para melhorar a qualidade de vida de crianças e adolescentes com câncer?". Foram incluídos artigos originais, publicados entre 2013 e 2018, nos idiomas inglês, português ou espanhol. Excluíram-se estudos que focavam outras temáticas, população adulta, artigos de revisão, dissertações e teses. Resultados A amostra foi constituída por 22 artigos, que foram agrupados, conforme suas similaridades, em três categorias. As intervenções utilizadas foram: atividade física exclusiva (6); atividade física conciliada à outra intervenção (8); e intervenções psicológicas (8). Destas intervenções, 13 apresentaram diferenças significativas na melhoria da qualidade de vida. Conclusão As intervenções não farmacológicas utilizando exercício físico exclusivo ou conciliado a outra intervenção foram as mais eficazes. Esta revisão auxilia na sensibilização dos profissionais sobre a importância da temática e fornece subsídios para o planejamento de ações estratégicas, no âmbito da enfermagem pediátrica, que incluam intervenções não farmacológicas, conciliadas ao tratamento padrão, para a melhoria da qualidade de vida de crianças e adolescentes com câncer. Os resultados devem ser avaliados com cautela, pois identificou-se uma diversidade de intervenções, protocolos e número de participantes - o que dificulta a generalização dos achados.

Resumen Objetivo Identificar estudios en la literatura nacional e internacional sobre la eficacia de las intervenciones no farmacológicas en la mejora de la calidad de vida de niños y adolescentes con cáncer. Métodos Revisión integradora, cuya búsqueda ocurrió en los meses de septiembre y octubre de 2018, en las bases de datos PsycINFO, Web of Science, CINAHL, LILACS, IBECS, BDENF y MEDLINE® para responder la pregunta orientadora: "¿Cuáles son las intervenciones no farmacológicas disponibles en la literatura y utilizadas para mejorar la calidad de vida de niños y adolescentes con cáncer?". Se incluyeron artículos originales publicados entre 2013 y 2018 en los idiomas inglés, portugués y español. Se excluyeron estudios que se centraban en otras temáticas, como población adulta, artículos de revisión, tesis de maestría y doctorado. Resultados La muestra fue formada por 22 artículos, que fueron agrupados en tres categorías según sus similitudes. Las intervenciones utilizadas fueron: actividad física exclusiva (6), actividad física conciliada con otra intervención (8) e intervenciones psicológicas (8). De estas intervenciones, 13 presentaron diferencias significativas en la mejora de la calidad de vida. Conclusión Las intervenciones no farmacológicas utilizando ejercicio físico exclusivo o conciliado con otra intervención fueron las más eficaces. Esta revisión ayuda a sensibilizar a los profesionales sobre la importancia de esta temática y contribuye a la planificación de acciones estratégicas en el ámbito de la enfermería pediátrica, que incluyan intervenciones no farmacológicas, conciliadas con el tratamiento estándar, para la mejora de la calidad de vida de niños y adolescentes con cáncer. Los resultados deben analizarse con cautela, ya que se identificó una diversidad de intervenciones, protocolos y número de participantes, lo que dificulta la generalización de los descubrimientos.

Abstract Objective To identify, in both the Brazilian and international literature, studies about the efficacy of nonpharmacological interventions oriented toward improving quality of life in children and adolescents with cancer. Methods Integrative review whose search process was carried out in September and October 2018 in the following databases: PsycINFO, Web of Science, Cumulative Index to Nursing and Allied Health Literature, Latin America and Caribbean Center on Health Sciences Information, Índice Bibliográfico Español de Ciencias de la Salud, Banco de Dados em Enfermagem, and MEDLINE®. The guiding question was "What are the nonpharmacological interventions available in the literature used to improve quality of life in children and adolescents with cancer?". Original articles published between 2013 and 2018 in English, Portuguese, or Spanish were included. Studies that focused on other subjects or adult population and review articles, dissertations, and theses were excluded. Results The sample was 22 articles, which were grouped, according to their similarities, into three categories. The described interventions consisted of: exclusive physical activity (6); physical activity combined with another intervention (8); and psychological interventions (8). Among these interventions, 13 showed significant differences in the improvement of quality of life. Conclusion The nonpharmacological interventions that applied physical exercise or were combined with another intervention were the most effective. The present review helps raising awareness of professionals of the importance of the subject and provides resources to plan strategical actions, in the context of pediatric nursing, that include nonpharmacological interventions, together with the standard treatment, to improve quality of life in children and adolescents with cancer. The results must be evaluated with caution, given that a variety of interventions, protocols, and number of participants was identified in the sample, which hinders the generalization of the findings.

Rev. bras. enferm ; 73(supl.4): e20180975, 2020. tab
Artigo em Inglês | LILACS-Express | LILACS, BDENF - Enfermagem | ID: biblio-1125965


ABSTRACT Objectives: to analyze how children with type 1 diabetes mellitus and their families explain the pathology, based on their understanding of the factors related to the discovery of diabetes, the etiology, treatment, and prognosis of the disease. Methods: qualitative methodological approach, based on medical anthropology and the narrative method. In-depth interviews were conducted with 12 families of children with type 1 diabetes mellitus attending follow-up consultations at a specialized center. The statements were subjected to inductive thematic analysis. Results: the explanatory models identified describe the families search for the clarification of the signs and symptoms that the child had. Faced with the disease, families reorganized themselves to meet new health care needs of children, such as adequate nutrition, physical exercise, and blood glucose monitoring. Final Considerations: knowing the explanatory models allows the understanding of how families give meaning to the child's illness, favoring daily nursing care and an effective control of the disease.

RESUMEN Objetivos: analizar como niños con diabetes mellitus tipo 1 y sus familias explican la patología, a partir de la comprensión que poseen sobre los factores relacionados a la descubierta del diabetes, etiología, tratamiento y pronóstico de la enfermedad. Métodos: abordaje metodológico cualitativo, fundamentado en la antropología médica y método narrativo. Se han realizado entrevistas en profundidad con 12 familias de niños con diabetes mellitus tipo 1en seguimiento en un centro especializado. Se ha sometido las narrativas al análisis temático inductivo. Resultados: los modelos explicativos identificados describen la búsqueda de las familias por el esclarecimiento de los señales y síntomas que el niño presentaba. Delante de la enfermedad, las familias se reorganizaron para atender a las nuevas necesidades de cuidados de salud de los niños, como alimentación adecuada, práctica de ejercicios físicos y seguimiento glucémico. Consideraciones Finales: conocer los modelos explicativos permite comprender como las familias ha dado sentido a la experiencia de la enfermedad del niño, favoreciendo el cuidado diario de enfermería y el efectivo control de la enfermedad.

RESUMO Objetivos: analisar como crianças com diabetes mellitus tipo 1 e suas famílias explicam a patologia, a partir da compreensão que possuem sobre os fatores relacionados à descoberta do diabetes, etiologia, tratamento e prognóstico da doença. Métodos: abordagem metodológica qualitativa, fundamentada na antropologia médica e método narrativo. Realizaram-se entrevistas em profundidade com 12 famílias de crianças com diabetes mellitus tipo 1 em seguimento em um centro especializado. Submeteram-se as narrativas à análise temática indutiva. Resultados: os modelos explicativos identificados descrevem a busca das famílias pelo esclarecimento dos sinais e sintomas que a criança apresentava. Diante da doença, as famílias se reorganizaram para atender às novas necessidades de cuidados de saúde das crianças, como alimentação adequada, prática de exercícios físicos e monitorização glicêmica. Considerações Finais: conhecer os modelos explicativos permite compreender como as famílias dão sentido à experiência do adoecimento da criança, favorecendo o cuidado diário de enfermagem e o efetivo controle da doença.

Rev. enferm. UERJ ; 27: e37458, jan.-dez. 2019. tab
Artigo em Português | LILACS, BDENF - Enfermagem | ID: biblio-1045977


Objetivo: analisar as atitudes de enfermeiros acerca da administração de antineoplásicos em oncologia pediátrica. Método: estudo descritivo, com análise estatística dos dados. Participaram 20 enfermeiros de um hospital de ensino, localizado na capital paulista, que administravam quimioterapia (QT) a crianças e adolescentes. Em 2016, mediante questionário autoaplicável, foram coletados dados de caracterização dos participantes e sobre suas atividades profissionais na administração de QT, que incluíam principais receios e preocupações, além dos potenciais eventos adversos associados à quimioterapia. Resultados: poucos participantes eram especialistas na área de oncologia ou pediatria; a maioria dos profissionais buscou conhecimento e capacitação por iniciativa própria; os enfermeiros classificaram a atividade como complexa e específica para quem possui interesse na área. Conclusão: todos os enfermeiros consideraram a QT o principal tratamento para o câncer infanto-juvenil. O risco de extravasamento e a falta de dispositivos adequados para administração das drogas foram os fatores que mais preocuparam os participantes.

Objective: to examine nurses' attitudes to the administration of antineoplastics in pediatric oncology. Method: this descriptive study used statistical data analysis. The participants were twenty nurses, who administered chemotherapy to children and adolescents at a teaching hospital in São Paulo City. In 2016, data were collected using a self-report questionnaire on the participants' characteristics and their experience with chemotherapy administration, which included the main chemotherapyrelated fears, concerns and potential adverse events. Results: few participants were specialists in the field of oncology or pediatrics; most sought knowledge and capacity-building on their own initiative; and the nurses classified the activity as complex and specific to those with an interest in the field. Conclusion: all the nurses considered chemotherapy the main treatment for childhood cancer. The factors that most concerned the participants were the risk of extravasation and the lack of appropriate devices for drug administration.

Objetivo: analizar las actitudes de enfermeros acerca de la administración de antineoplásicos en oncología pediátrica. Método: estudio descriptivo, con análisis estadística de los datos. Participaron 20 enfermeros de un hospital de enseñanza, ubicado en la capital de São Paulo, que administraban quimioterapia (QT) a niños y adolescentes. En 2016, a través de cuestionario autoaplicable, se recopilaron datos sobre la caracterización de los participantes y sobre sus actividades profesionales en la administración de quimioterapia que incluían los principales temores, preocupaciones y potenciales eventos adversos asociados a la quimioterapia. Resultados: pocos participantes eran especialistas en el área de oncología o pediatría; la mayoría de los profesionales buscó conocimiento y capacitación por iniciativa propia; los enfermeros clasificaron la actividad como compleja y específica para quien tiene interés en el área. Conclusión: todos los enfermeros consideraron la quimioterapia como el tratamiento principal para el cáncer infantil. El riesgo de extravasación y la falta de dispositivos adecuados para la administración de las drogas fueron los factores que más preocuparon a los participantes.

Humanos , Masculino , Feminino , Enfermagem Pediátrica , Conhecimentos, Atitudes e Prática em Saúde , Conduta do Tratamento Medicamentoso , Oncologia , Antineoplásicos , Enfermeiras e Enfermeiros , Epidemiologia Descritiva
Psicopedagogia ; 36(111): 275-284, set.-dez. 2019. ilus
Artigo em Português | LILACS-Express | LILACS | ID: biblio-1056994


A criança se expressa de maneira pluralizada, de maneira verbal e não verbal. O desenho é uma das formas de expressão e possibilita, em especial, o uso de um método adequado de interpretação. Vários pesquisadores dedicaram-se ao estudo do desenho infantil, entretanto, são incipientes temas específicos para a interpretação de desenhos de crianças com deficiências e transtornos mentais. Através das narrativas gráficas pretendeu-se focar na compreensão do olhar da criança para a família. Os desenhos das crianças são parte da oficina Café & Prosa, realizada numa escola de atendimento especializado. A pesquisa teve objetivo de mostrar, a partir das narrativas gráficas, como as crianças apresentam a família e como projetam os sujeitos com os quais convivem. Obtiveram-se, através da interpretação das narrativas gráficas, temas sobre a presença e ausência da mãe ou do pai; a substituição do pai por avós, tios, namorados da mãe; animais de estimação. Todos os desenhos apresentados foram confeccionados por crianças com algum problema de ordem mental ou deficiências em fases distintas. É fato que as crianças, sejam "normais" ou com deficiências, conseguem expressar e narrar, graficamente, suas histórias e seus contextos particulares. Criar narrativas gráficas poetiza o dia a dia, ressignifica as atividades diárias, incorpora novos significados e sentidos para a vida.

The child expresses himself in a pluralized, in a verbal and non-verbal way, in which the drawings assume, in particular, an adequate method of interpretation. Several researchers dedicated to the study of children's design, however, is incipient specific themes for the interpretation of drawings of children with mental problems or multiple disabilities. Through the graphic narratives it was intended to focus on the understanding of the child's and family's gaze. The drawings of the children are part of the Café & Prosa workshop, held in a specialized service school. The research had the objective of presenting, from the graphic narratives, how the children present the family and how they project the subjects with whom they coexist. By the interpretation of graphic narratives, themes about the presence and absence of the mother or father were obtained; the replacement of the father by grandparents, uncles, mother's boyfriends; pets. All drawings presented were made by children with some mental problem or deficiency in their development and at different stages. It is a fact that children, being "normal" or carrying some disorder or disability, can express and narrate, graphically, their stories and their particular contexts. To create graphical narratives poetizes the day to day, resignifies the daily activities, incorporates new meanings for the life.

Rev Esc Enferm USP ; 53: e03494, 2019.
Artigo em Português, Inglês | MEDLINE | ID: mdl-31618311


OBJECTIVE: To interpret the meaning attributed to men's experience regarding their body during the development of prostate cancer. METHOD: Ethnographic study carried out with men and guided by the narrative method and the theoretical frameworks of medical anthropology and the anthropology of masculinities. Information was obtained through recorded interviews, direct observation, and logs from a field journal, which were examined using inductive thematic analysis. RESULTS: Seventeen men participated in the study. During the process of falling ill with prostate cancer, the male bodies were ruled by moral experiences that influenced the way men conducted their relationship with their health and multifaceted masculinity, standing for hegemonic cultural principles and identity affirmation moral dilemmas, which were interpreted with the meaning of embodiment. CONCLUSION: During the development of the disease, men experience bodily, social, and moral dilemmas that threaten the hegemonic masculinity. Understanding them can help professionals deal with this population.

Atitude Frente a Saúde , Masculinidade , Neoplasias da Próstata/psicologia , Idoso , Idoso de 80 Anos ou mais , Humanos , Masculino , Pessoa de Meia-Idade
Rev. bras. enferm ; 72(5): 1153-1160, Sep.-Oct. 2019.
Artigo em Inglês | LILACS, BDENF - Enfermagem | ID: biblio-1042121


ABSTRACT Objective: To explore factors that interact and shape the meaning and experience of mothers of HIV-exposed children in relation to replacing breastfeeding by infant formula. Method: A qualitative study was carried out with 23 mothers living with HIV, whose children were up to 18 months of age and under follow-up in a specialized care service. Symbolic Interactionism, semi-structured interviews and content analysis were adopted as theoretical framework. Results: The social symbols of breastfeeding, the (un)availability of the milk formula and the (lack of)support of health professionals influenced the mothers' experience with formula feeding. Social, cultural and economic constraints have proved capable of undermining the conditions necessary for the replacement of breastfeeding. Final considerations: The availability of infant formula, access to lactation inhibitor and quality of health services still represent challenges to eradicate new HIV infections in children.

RESUMEN Objetivo: Explorar los factores que interactúan y moldean el significado y la experiencia de madres de niños expuestos al VIH en relación a la sustitución de la lactancia por una fórmula láctea infantil. Método: Estudio cualitativo, con 23 madres viviendo con VIH, cuyos hijos tenían hasta 18 meses de edad y estaban bajo seguimiento en servicio de asistencia especializada. Se adoptaron el Interaccionismo Simbólico como referencial teórico, entrevistas semiestructuradas y el análisis de contenido. Resultados: Los símbolos sociales de la lactancia, la (in) disponibilidad de la fórmula láctea y el (des) apoyo de los profesionales de la salud influenciaron a la experiencia de las madres con la alimentación por una fórmula láctea. Los cercos sociales, culturales y económicos se mostraron capaces de perjudicar las condiciones necesarias para la sustitución de la lactancia materna. Consideraciones finales: La disponibilidad de la fórmula láctea infantil, el acceso al inhibidor de la lactancia y la calidad de los servicios de salud todavía representan desafíos para eliminar nuevas infecciones por el VIH en niños.

RESUMO Objetivo: Explorar os fatores que interagem e moldam o significado e a experiência de mães de crianças expostas ao HIV em relação à substituição do aleitamento por fórmula láctea infantil. Método: Estudo qualitativo, com 23 mães vivendo com HIV, cujos filhos tinham até 18 meses de idade e estavam sob acompanhamento em serviço de assistência especializado. Foram adotados o Interacionismo Simbólico como referencial teórico, entrevistas semiestruturadas e análise de conteúdo. Resultados: Os símbolos sociais da amamentação, a (in)disponibilidade da fórmula láctea e o (des)apoio dos profissionais de saúde influenciaram a experiência das mães com a alimentação por fórmula láctea. Cerceamentos sociais, culturais e econômicos mostraram-se capazes de prejudicar as condições necessárias para a substituição do aleitamento materno. Considerações finais: A disponibilidade da fórmula láctea infantil, o acesso ao inibidor de lactação e a qualidade dos serviços de saúde ainda representam desafios para eliminar novas infecções pelo HIV em crianças.

Humanos , Feminino , Lactente , Adulto , Aleitamento Materno/psicologia , Infecções por HIV/complicações , Infecções por HIV/psicologia , Fórmulas Infantis/normas , Mães/psicologia , Brasil , Aleitamento Materno/efeitos adversos , Pesquisa Qualitativa , Comportamento Materno/psicologia , Mães/estatística & dados numéricos
Rev Bras Enferm ; 72(5): 1153-1160, 2019 Sep 16.
Artigo em Inglês, Português | MEDLINE | ID: mdl-31531635


OBJECTIVE: To explore factors that interact and shape the meaning and experience of mothers of HIV-exposed children in relation to replacing breastfeeding by infant formula. METHOD: A qualitative study was carried out with 23 mothers living with HIV, whose children were up to 18 months of age and under follow-up in a specialized care service. Symbolic Interactionism, semi-structured interviews and content analysis were adopted as theoretical framework. RESULTS: The social symbols of breastfeeding, the (un)availability of the milk formula and the (lack of)support of health professionals influenced the mothers' experience with formula feeding. Social, cultural and economic constraints have proved capable of undermining the conditions necessary for the replacement of breastfeeding. FINAL CONSIDERATIONS: The availability of infant formula, access to lactation inhibitor and quality of health services still represent challenges to eradicate new HIV infections in children.

Aleitamento Materno/psicologia , Infecções por HIV/psicologia , Fórmulas Infantis/normas , Mães/psicologia , Adulto , Brasil , Aleitamento Materno/efeitos adversos , Feminino , Infecções por HIV/complicações , Humanos , Lactente , Recém-Nascido , Comportamento Materno/psicologia , Mães/estatística & dados numéricos , Pesquisa Qualitativa
J Relig Health ; 58(6): 2219-2240, 2019 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-31446605


Spiritual well-being is a major issue in health care, but instruments for measuring this construct in adolescents are lacking. This study adapted the 12-item Functional Assessment of Chronic Illness Therapy-Spiritual Well-being Scale (FACIT-Sp-12) for use with Brazilian adolescents with chronic diseases and developed a parental observer-rated version, using an expert panel, back-translation, and cognitive interviews with 72 participants. The psychometric properties of both versions were verified with two- and three-factor models by testing with 212 participants. The self- and parental-reported versions showed face validity, content validity, and acceptable levels of internal consistency for the overall scale and the two-factor model. The convergent validity was satisfactory for most items in both two- and three-factor models, but there was a lack of discrimination in the three-factor model using multitrait-multimethod analysis. This study presents the first instrument to assess the spiritual well-being of adolescents from their point of view and to allow their parents to serve as evaluators. However, we recommend further psychometric testing of the self- and parental-report scales to assess spiritual well-being in adolescents with chronic diseases in Brazil.

Doença Crônica/psicologia , Psicometria/estatística & dados numéricos , Qualidade de Vida/psicologia , Religião e Medicina , Espiritualidade , Inquéritos e Questionários/normas , Adolescente , Brasil , Criança , Doença Crônica/etnologia , Feminino , Nível de Saúde , Humanos , Masculino , Pais , Procurador , Reprodutibilidade dos Testes , Autorrelato , Tradução
Death Stud ; : 1-17, 2019 Aug 12.
Artigo em Inglês | MEDLINE | ID: mdl-31403372


This meta-synthesis aims to synthesize qualitative evidence from primary studies to better understand the experience of the spirituality of parents and its relationship to adapting following stillbirth. Five electronic databases were systematically searched and the quality of 21 eligible studies was critically appraised. A thematic synthesis revealed two analytical themes: (1) Spiritual suffering following stillbirth; (2) Moving through spirituality to adapt to the loss, each encompassing four descriptive themes. The findings can inform a more culturally and spiritually sensitive approach to care, taking into account the parents' beliefs, folk customs, religion, values, and spiritual needs.