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1.
Psychol Aging ; 36(5): 557-571, 2021 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-34166026

RESUMO

Late-life marital status is associated with cognitive aging; however, the influence of life course marital biography (i.e., changes in marital status) on late-life cognitive trajectories, as well as gender differences in the effects of marital biography, remain to be explored. Associations between (a) marital status at study baseline (currently married, previously married, never married) and (b) retrospectively reported life course marital biography (i.e., age at first marriage, time spent unmarried following initial marriage, history of divorce, history of widowhood) and up to 20 years of subsequent episodic memory trajectories were examined using latent growth curve models in 3,061 participants aged 51 + in the Health and Retirement Study 2017 Life History Mail Survey. Gender differences were examined with multiplicative interaction terms and stratified models. Participants who were married at study baseline demonstrated higher initial memory than previously and never married individuals. Older age at first marriage and shorter duration spent unmarried were each associated with better initial episodic memory among previously married individuals only; longer duration spent unmarried was associated with slower memory decline. Stratified models suggested that these associations may be driven by women. These results highlight the importance of considering multiple aspects of marital biography, not just current marital status, in cognitive aging research. Marital biography may have an enduring influence on cognitive aging, particularly among previously married older women. Future work is needed to identify mechanisms (e.g., socioeconomic resources, cognitive stimulation, self and spousal health, emotional support) through which marital histories influence cognitive aging. (PsycInfo Database Record (c) 2021 APA, all rights reserved).


Assuntos
Envelhecimento Cognitivo/psicologia , Estado Civil/estatística & dados numéricos , Casamento/psicologia , Casamento/estatística & dados numéricos , Transtornos da Memória/epidemiologia , Transtornos da Memória/psicologia , Adolescente , Adulto , Idoso , Idoso de 80 Anos ou mais , Cognição , Feminino , Nível de Saúde , Humanos , Masculino , Memória Episódica , Pessoa de Meia-Idade , Estudos Retrospectivos , Apoio Social , Fatores Socioeconômicos , Cônjuges/psicologia , Cônjuges/estatística & dados numéricos , Fatores de Tempo , Adulto Jovem
2.
CMAJ Open ; 9(2): E703-E710, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-34162662

RESUMO

BACKGROUND: Recreational cannabis use was legalized in Canada in October 2018. We aimed to determine the prevalence and correlates of cannabis consumption among pregnant individuals in a single Canadian city following national legalization. METHODS: Over the period May to October 2019, we distributed an anonymous cross-sectional survey to pregnant patients attending family practice, midwifery, and low-risk and high-risk obstetrics clinics in Hamilton, Ontario. Eligibility was based on English literacy and current pregnancy. The survey included questions regarding lifetime and in-pregnancy cannabis use, intent for postpartum use and patterns of use. We also collected demographic information. We calculated descriptive statistics and performed logistic regression analyses to explore the relations between cannabis consumption and demographic characteristics. RESULTS: Of 531 pregnant individuals approached, 478 agreed and were able to participate, for a 90% participation rate. Among these 478 respondents, 54 (11%) reported consuming cannabis at some point during the pregnancy and 20 (4%) reported currently consuming cannabis. Among the 460 respondents who intended to breastfeed, 23 (5%) planned to consume cannabis during the postpartum period. Of 20 current users, 13 (65%) reported consuming cannabis at least weekly and 19 (95%) reported nausea, sleep problems or anxiety as reasons for use. Respondents without postsecondary education had 10.0-fold (95% confidence interval [CI] 4.6-23.5) greater odds of prenatal cannabis consumption than university-educated respondents. In addition, respondents who reported that their partners used cannabis had 3.9-fold (95% CI 2.2-7.3) greater odds of prenatal cannabis consumption than those who reported that their partners did not use cannabis. INTERPRETATION: Lower educational attainment and partners' cannabis consumption were associated with greater odds of inpregnancy cannabis use. These results may help to inform early intervention strategies to decrease cannabis consumption during this vulnerable period of fetal and neonatal development.


Assuntos
Escolaridade , Desenvolvimento Fetal/efeitos dos fármacos , Uso da Maconha , Complicações na Gravidez , Cônjuges , Adulto , Estudos Transversais , Demografia , Feminino , Humanos , Masculino , Uso da Maconha/efeitos adversos , Uso da Maconha/epidemiologia , Ontário/epidemiologia , Período Periparto , Gravidez , Complicações na Gravidez/epidemiologia , Complicações na Gravidez/prevenção & controle , Complicações na Gravidez/psicologia , Prevalência , Serviços Preventivos de Saúde/organização & administração , Fatores de Risco , Cônjuges/psicologia , Cônjuges/estatística & dados numéricos
3.
Medicine (Baltimore) ; 100(19): e25904, 2021 May 14.
Artigo em Inglês | MEDLINE | ID: mdl-34106651

RESUMO

ABSTRACT: The postoperative physiological changes and psychological pressure of cancer patients affect the patient's adaptability to the disease, and thus affect the spousal intimate relationship. This study aimed to evaluate the correlation between spousal intimate relationship, self-disclosure, and adaptability among colorectal cancer (CCI) patients with enteric stoma.This cross-sectional study selected patients with CCI in Henan Province from February 2018 to October 2020. The Marital Adjustment Test (MAT), the Distress Disclosure Index scale, and the Ostomy adjustment inventory-20 scale were used to collect relevant data of the participants. A Pearson correlation analysis was used to test the correlation between variables, and multiple stepwise regression analysis was used to test the influence of general information on the intimate relationship, self-disclosure, and adaptability.Among the respondents, 42.6% had a spousal intimate relationship problem, 58.4% had a low or moderate level of self-disclosure, and 90.8% were at a low or moderate level of adaptation. Education background, self-care ability, and postoperative time were associated with a couple's intimate relationship. Average monthly household income, gender, and place of residence were associated with self-disclosure. Self-care ability, average monthly household income, postoperative time, and educational background were associated with adaptation.Healthcare workers should provide more health education training to guide CCI enterostomy patients to express their thoughts and feelings with each other increase self-disclosure, so as to enhance their intimate relationship then improve their adoption to ostomy, finally elevate their quality of life.


Assuntos
Adaptação Psicológica , Neoplasias Colorretais/cirurgia , Revelação , Enterostomia/psicologia , Cônjuges/psicologia , Idoso , Neoplasias Colorretais/psicologia , Estudos Transversais , Feminino , Humanos , Relações Interpessoais , Masculino , Pessoa de Meia-Idade , Qualidade de Vida , Autocuidado , Fatores Socioeconômicos , Fatores de Tempo
4.
PLoS One ; 16(4): e0249516, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-33886597

RESUMO

The present global study attempts to verify the links between marital satisfaction and the number of children as well as its moderators in an international sample. Data for the study was obtained from our published dataset and included 7178 married individuals from 33 countries and territories. We found that the number of children was a significant negative predictor of marital satisfaction; also sex, education, and religiosity were interacting with the number of children and marital satisfaction, while there were no interactions with economic status and individual level of individualistic values. The main contribution of the present research is extending our knowledge on the relationship between marital satisfaction and the number of children in several, non-Western countries and territories.


Assuntos
Casamento/psicologia , Cônjuges/psicologia , Criança , Bases de Dados Factuais , Características da Família , Feminino , Humanos , Masculino , Satisfação Pessoal , Fatores Socioeconômicos , Inquéritos e Questionários
5.
Eur J Oncol Nurs ; 52: 101932, 2021 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-33799020

RESUMO

PURPOSE: This study aimed to examine the impact of family resilience on the individual resilience of couples during cancer and explore the potential mediating role of perceived social support and the moderating role of sex in this association in cancer patient-spouse dyads. METHOD: The participants were 272 cancer patients and their spouses (N = 544) who completed the Family Resilience Assessment Scale, the Perceived Social Support Scale and the Resilience Scale. We adopted the actor-partner interdependence mediation model to examine whether and how patients' and their spouses' family resilience was associated with their own and their partners' perceived social support and individual resilience. RESULTS: The results indicated that the patients' and their spouses' level of family resilience was positively associated with their own individual resilience directly and indirectly by increasing their own perceived social support. The family resilience of the spouses was associated with an increase in the patients' individual resilience only indirectly by increasing the patients' perceived social support. The spouse-actor effects between family resilience and individual resilience differed significantly by sex. CONCLUSION: Enhancing family resilience and perceived social support within the family can improve individual resilience. The findings regarding the sex differences serve as a rationale for gender-based approaches to improving individual resilience in the family context.


Assuntos
Relações Familiares/psicologia , Neoplasias/psicologia , Resiliência Psicológica , Apoio Social , Cônjuges/psicologia , Adaptação Psicológica , Adulto , Idoso , China , Termos de Consentimento , Estudos Transversais , Características da Família , Feminino , Hospitalização , Humanos , Relações Interpessoais , Masculino , Pessoa de Meia-Idade , Fatores Sexuais , Inquéritos e Questionários
6.
PLoS One ; 16(4): e0249360, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-33905421

RESUMO

BACKGROUND: In Pakistan, there is a dearth of literature on the perceptions of anemia among women of reproductive age (WRA). This study was undertaken to explore the perceptions of women, their husbands, and healthcare providers about anemia, its possible causes, and how anemia impacts maternal and child health in Thatta, Pakistan. METHODS: A qualitative study was conducted in Thatta, Pakistan from September to December 2018. Using a pre-tested semi-structured interview (SSI), we collected data to understand their definitions of anemia through ten focus group discussions (FGDs) with women and their partners and ten primary informant interviews (KIIs) with healthcare providers. We identified six major themes: (I) Knowledge and awareness of anemia, (II) Causes and consequences of Anemia, (III) Dietary practices, (IV) Knowledge and practices regarding the use of iron-folic acid supplements, (V) Factors influencing prevention and control of anemia and (VI) Women's health behavior. We analyzed the data through thematic analysis using NVivo 10 software. RESULTS: Most community members were not aware of the term anemia but described anemia as a condition characterized by 'blood deficiency' in the body. All study participants perceived anemia as an important health problem tending to cause adverse outcomes among WRA and their children. Study participants perceived gutka (chewable tobacco) consumption as an important cause of anemia. Healthcare providers identified short inter-pregnancy intervals, lack of family planning, poor health-seeking behavior, and consumption of unhealthy food as causes of anemia in the district. Consumption of unhealthy food might not be related to related to a poorer knowledge of iron-deficient foods, but economic constraints. This was further endorsed by the healthcare providers who mentioned that most women were too poor to afford iron-rich foods. All men and women were generally well versed with the sources of good nutrition to be consumed by WRA to prevent anemia. CONCLUSION: The findings suggest that the government should plan to develop strategies for poverty-stricken and vulnerable rural women and plan health awareness programs to improve dietary practices, compliance with supplements, and health-seeking behavior among women of reproductive age. There is a need to develop effective counseling strategies and context-specific health education sessions to improve the health-seeking behavior of women and men in the Thatta district of Pakistan. Besides, there is need to address social determinants of health such as poverty that pushes women of poorer socioeconomic strata to eat less nutritious foods and have more anaemia. Therefore, a comprehensive and robust strategic plan need to be adopted by government that focuses not only on the awareness programs, but also aim to reduce inequities that lead to pregnant women eat iron-poor foods, which, in turn, forces them to become anemic.


Assuntos
Anemia/epidemiologia , Conhecimentos, Atitudes e Prática em Saúde , Pesquisa Qualitativa , População Rural/estatística & dados numéricos , Cônjuges/psicologia , Anemia/psicologia , Criança , Suplementos Nutricionais , Feminino , Humanos , Masculino , Estado Nutricional , Paquistão/epidemiologia , Aceitação pelo Paciente de Cuidados de Saúde/psicologia , Percepção , Gravidez
7.
Reprod Health ; 18(1): 82, 2021 Apr 19.
Artigo em Inglês | MEDLINE | ID: mdl-33874969

RESUMO

BACKGROUND: Supportive male involvement is strongly correlated with contraceptive use. In Rwanda, where the contraceptive prevalence rate among married women increased from 17 to 52% from 2005 to 2010, and stagnated at 53% in 2015, understanding the role of male partners in collaborative couple contraceptive use can help inform programs designed to further increase the use of contraception in Rwanda. METHODS: This study utilized qualitative methods in 2018, specifically 32 in-depth interviewers with mostly current users of modern contraceptive methods and eight focus group discussions with family planning providers-both family planning nurses and community health workers (CHWs). Respondents were from Musanze and Nyamasheke Districts, the districts with the highest and lowest modern contraceptive use, respectively, to explore the role of couple collaboration in family planning use in Rwanda. Data were analyzed using the thematic content approach in Atlas.ti (8). RESULTS: Findings demonstrate that some men are opposed to use of male methods of contraception, and some are opposed to any contraceptive use, which can lead to covert use. Women and providers prefer collaborative couple contraceptive use-as a result, providers advocate for and encourage male partner participation in contraceptive use. Women are most often burdened with seeking out information, initiating discussions, and sharing information discovered about contraceptive use with partners. Decision-making about contraceptive use, once discussed, can be collaborative and motivated by financial considerations. When couple contraceptive use is collaborative, benefits range from marital harmony to husband's support of sustained use through reminders about appointments, joint counseling, and support in managing side effects. CONCLUSION: Family planning providers at the community and clinic levels encourage collaborative contraceptive use among couples and some Rwandan couples communicate well about family planning use. Despite the positives, women are expected to source family planning information, share that information with their male partners, seek out family planning services, and use family planning. If more Rwandan male partners accepted use, used male methods of contraception, and participated even more in the work it takes to use family planning, the potential for sustained, and even enhanced, contraceptive use in Rwanda could be realized.


Assuntos
Comportamento Contraceptivo , Anticoncepção/estatística & dados numéricos , Serviços de Planejamento Familiar , Cônjuges/psicologia , Comunicação , Comportamento Cooperativo , Feminino , Humanos , Entrevistas como Assunto , Masculino , Ruanda , Consentimento do Representante Legal , Adulto Jovem
8.
Psychol Assess ; 33(5): 427-442, 2021 May.
Artigo em Inglês | MEDLINE | ID: mdl-33793264

RESUMO

The Continuous Assessment of Interpersonal Dynamics (CAID) is an observational coding method that enables continuous tracking of warmth and dominance in both members of a dyad as an interaction unfolds. Research using this tool has revealed dynamic patterns relevant to psychopathology and psychotherapy, suggesting considerable potential for clinical assessment and research. However, CAID data are sensitive to a variety of person and situational factors, and the way that these factors combine to influence CAID data is poorly understood. We examined data from 10 raters using CAID to assess moment-to-moment warmth and dominance in opposite-sex married dyads (N = 137 couples) interacting in four distinct situations. Using Generalizability Theory methods, we decomposed sources of variance in CAID data and estimated multiple forms of between- and within-person reliability. Results revealed how spouses' moment-to-moment behaviors varied as a function of person, sex, dyad, rater, situation, and relevant interactions between these factors. Based on these results, we provided guidelines for interpreting CAID data at different levels of aggregation in clinical research and practice. (PsycInfo Database Record (c) 2021 APA, all rights reserved).


Assuntos
Relações Interpessoais , Psicometria/métodos , Cônjuges/psicologia , Adulto , Avaliação Momentânea Ecológica , Feminino , Generalização Psicológica , Humanos , Masculino , Pessoa de Meia-Idade , Teoria Psicológica , Reprodutibilidade dos Testes
9.
J Parkinsons Dis ; 11(3): 1047-1056, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-33780375

RESUMO

BACKGROUND: The coronavirus disease 2019 (COVID-19) pandemic has negatively affected the mental health of the general population. OBJECTIVE: We investigated the determinants of quality of life (QOL) in Parkinson's disease (PD) patients during the COVID-19 pandemic. METHODS: Impacts of lifestyle changes due to the COVID-19 pandemic on 100 patients with PD and their caregivers/spouses were assessed. The Hospital Anxiety and Depression Scale was used to assess anxiety and depression. The physical component summary (PCS) and mental component summary (MCS) scores of the short form (SF)-8 were used to evaluate health-related QOL. RESULTS: Regarding health-related QOL, physical function, role physical, general health, vitality and the PCS score were significantly worse in PD patients than in caregivers. Worsening of PD-related symptoms, increased stress, and decreased physical activity were observed in 29.0%, 37.0% and 44.0% of PD patients, respectively. Sixteen patients (16.0%) experienced problems with hospital access, but none reported medication shortages. Strong concerns about COVID-19 were reported by 47.0% of caregivers and 50.0% of PD patients. In PD patients, increased gait disturbance and rigidity, disease severity, smoking, the levodopa equivalent dose and decreased body weight predicted a worse PCS score; anxiety, depression, female sex, stress and long disease duration predicted a worse MCS score. In caregivers, age and smoking contributed to a worse PCS score; depression, stress and worsening patient mood contributed to a worse MCS score. CONCLUSION: We report the negative impacts of the COVID-19 pandemic on health-related QOL and its determinants in PD patients and their caregivers.


Assuntos
COVID-19 , Cuidadores/psicologia , Doença de Parkinson/psicologia , Qualidade de Vida/psicologia , Cônjuges/psicologia , Idoso , Ansiedade/psicologia , Depressão/psicologia , Exercício Físico/psicologia , Feminino , Acesso aos Serviços de Saúde , Inquéritos Epidemiológicos , Humanos , Japão , Masculino , Pessoa de Meia-Idade , Doença de Parkinson/enfermagem , Doença de Parkinson/fisiopatologia , Fatores Sexuais , Estresse Psicológico/psicologia , Fatores de Tempo
10.
BMC Pregnancy Childbirth ; 21(1): 221, 2021 Mar 20.
Artigo em Inglês | MEDLINE | ID: mdl-33743632

RESUMO

BACKGROUND: Domestic violence during pregnancy as one of the most common social problems and major challenges of health systems can affect the health of the mother and fetus. The study aimed to compare the two groups of intervention based on solution-focused counseling and control in terms of violence and quality of life amounts in women who had experienced domestic violence. METHODS: A randomized controlled trial on 90 pregnant women was blocked into two intervention groups (n = 45) and a control (n = 45). The intervention group received six counseling sessions with a solution-focused approach. Study tool included conflict tactics scale (CTS- 2) and short form health survey (SF-36). The tools were completed once before the intervention and again 6 weeks after the end of the counseling sessions by the participants of both groups. The P-value less than 0.05 was considered statistically significant. RESULTS: A total of 82/90 pregnant women were analyzed. The results showed that median and interquartile range (IQR) of physical, psychological and sexual violence significantly decreased in the intervention group than the control group (Ps = 0.001). Moreover, quality of life scores significantly improved in the intervention group compared to the control group (P = 0.001). CONCLUSION: Solution-focused counseling could be an effective approach to reduce the amount of violence and increase the quality of life in women exposed to domestic violence. TRIAL REGISTRATION: Iranian Registry of Clinical Trials IRCT2017040628352N4 . Date of registration: August 20th 2017.


Assuntos
Aconselhamento/métodos , Violência Doméstica/prevenção & controle , Gestantes/psicologia , Qualidade de Vida , Adulto , Violência Doméstica/psicologia , Violência Doméstica/estatística & dados numéricos , Feminino , Seguimentos , Idade Gestacional , Inquéritos Epidemiológicos , Humanos , Masculino , Cônjuges/psicologia , Resultado do Tratamento , Adulto Jovem
11.
J Ayub Med Coll Abbottabad ; 33(1): 64-70, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-33774957

RESUMO

BACKGROUND: The present study intended to examine the direct effects of perceived spousal support and postpartum depression on postpartum maternal bonding. Furthermore, it also explored the mediating role of postpartum depression between perceived spousal support and postpartum maternal bonding. METHODS: This study was based on a cross-sectional survey research design. A purposive sample of 170 women who were already diagnosed by the doctor/psychiatrist as suffering from postpartum depression was recruited from different hospitals of Gujrat district. Urdu translated versions of The Marital Empathy Scale, Postpartum Bonding Questionnaire, and the Edinburgh Postnatal Depression Scale were used to measure the focal constructs of the study. RESULTS: IBM Amos was used to test the proposed model of the present study. Path analysis revealed that perceived spousal support had negative significant direct effects on postpartum depression and postpartum maternal bonding. Postpartum depression had significant positive direct effect on postpartum maternal bonding. Finally, the significant indirect effect of perceived spousal support through postpartum depression on postpartum maternal bonding was negative. CONCLUSIONS: The mediation found in the present study suggested that perceived spousal support reduced the postpartum depression, which in turn, lowered the chances of dysfunctional postpartum maternal bonding with the baby. Implications of the study along with the recommendations for future studies have been reflected upon.


Assuntos
Depressão Pós-Parto/psicologia , Relações Mãe-Filho/psicologia , Apoio Social , Cônjuges/psicologia , Estudos Transversais , Feminino , Humanos , Lactente , Recém-Nascido , Masculino , Inquéritos e Questionários
12.
PLoS One ; 16(3): e0247187, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-33705415

RESUMO

Household time-use patterns are expected to reflect each household member's daily activity participation and duration with intra-household interactions constrained by multiple budgets. Among various activities, the allocated activity derived from undertaking a household task is studied relatively less in the literature. Who will take an allocated activity is a discrete choice problem of household task assignment, and once a household member is assigned with one household task, other members will have more time to do other activities. To better understand household time-use patterns affected by household task assignment, this paper proposed a joint household-level multiple discrete-continuous extreme value-multinomial logit (MDCEV-MNL) model with multiple constraints. The Karush-Kuhn-Tucker (KKT) method combined with the simulation-based maximum likelihood estimation method is proposed to estimate the proposed model. Based on the household activity-travel data from Beijing of China, the proposed model is customized to explore elderly couples' time-use patterns with intra-household interactions affected by household task assignment. Following the findings, policy implications are suggested to build an age-friendly society.


Assuntos
Serviço de Limpeza/estatística & dados numéricos , Serviço de Limpeza/normas , Serviço de Limpeza/tendências , Idoso , Pequim , China , Simulação por Computador , Características da Família , Feminino , Humanos , Atividades de Lazer/psicologia , Masculino , Modelos Estatísticos , Cônjuges/psicologia
13.
Health Psychol ; 40(3): 207-216, 2021 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-33630642

RESUMO

OBJECTIVE: Research has shown a beneficial influence of partner support on smoking cessation. Previous studies mainly focused on support and neglected negative behaviors. Less is known about differences in support perceptions between partners. This study aimed to examine how supportive as well as negative control behaviors relate to smoking and relationship satisfaction in single-smoking couples during a quit attempt. METHOD: Smokers and their nonsmoking partners (n = 170 cohabiting couples) participated in an intensive longitudinal study over 21 days with end-of-day diaries. A dyadic score model was used, emphasizing couple levels and differences for the explanatory variables (i.e., support and negative control) and the outcome variables (smoking [for smokers only]; relationship satisfaction). RESULTS: Smokers whose partner showed more supportive and less negative control behavior had a lower probability of smoking, and both partners had higher relationship satisfaction. On days with more supportive and less negative control behavior than usual, smokers had a lower probability of smoking and both partners had higher relationship satisfaction. For smokers who reported more support than their partner reported providing, the couples' relationship satisfaction was higher and the smokers' relationship satisfaction was higher than their partners'. Differences between received and provided support/control at the between-couple and daily level were unrelated to smoking. CONCLUSIONS: Support seems important during a quit attempt as it was related to a lower probability of smoking and higher relationship satisfaction in couples, while negative control behaviors should be avoided as they were associated with higher probability of smoking and lower relationship satisfaction. (PsycInfo Database Record (c) 2021 APA, all rights reserved).


Assuntos
Fumantes/psicologia , Abandono do Hábito de Fumar/métodos , Fumar/psicologia , Cônjuges/psicologia , Adolescente , Adulto , Idoso , Características da Família , Feminino , Humanos , Estudos Longitudinais , Masculino , Pessoa de Meia-Idade , Satisfação Pessoal , Método Simples-Cego , Apoio Social , Fumar Tabaco , Adulto Jovem
14.
Support Care Cancer ; 29(8): 4389-4394, 2021 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-33438051

RESUMO

OBJECTIVE: To describe spouse caregivers' perceived gains in their own words from participating in a fully manualized 5-session educational counseling program whose goals were to enhance their self-care and skills to interpersonally support their wife with breast cancer. METHODS: Interviews from 81 spouses obtained 7 months after exiting from a fully manualized educational counseling program, Helping Her Heal, were content analyzed using inductive coding methods adapted from grounded theory. Trustworthiness of study results was protected by coding to consensus, formal peer debriefing, and maintaining an audit trail. RESULTS: Analysis yielded 3 conceptual domains: Giving Me Structure; Adding Skills to Help Her and Us; and Gaining Insights into Myself and My Wife, all of which reflected practical things on which spouses could take action and ways they could take care of themselves, support their wife, and from which they gained insight into their own and their wife's response to the breast cancer. CONCLUSIONS: Findings suggest that short-term, fully manualized counseling programs can provide opportunities and practical ways spouse caregivers are able to gain interpersonal communication, self-care skills, and personal insights. This scripted model of counseling is a way in which to deliver educational counseling with self-reported benefits, even though the program is fully scripted and not uniquely fashioned for each caregiver's unique experience. CLINICAL TRIAL REGISTRATION NUMBERS: NCI-2013-01838 .


Assuntos
Cuidadores/psicologia , Aconselhamento/normas , Cônjuges/psicologia , Feminino , Humanos , Masculino , Pessoa de Meia-Idade
15.
Taiwan J Obstet Gynecol ; 60(1): 24-30, 2021 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-33495003

RESUMO

OBJECTIVE: Cross-border reproductive care (CBRC) has become popular in the world, including mainland China. We designed a questionnaire and aimed to determine the main factors that infertile couples from mainland China may consider for CBRC. MATERIALS AND METHODS: In this cross-sectional questionnaire-based study, we retrospectively analyzed the data from questionnaires collected at the Reproductive Center of Beijing BaoDao Obstetrics and Gynecology Hospital from January 2018 to June 2018. The questionnaire contained 38 items that belonged to six different categories (environment and equipment, service quality, patient safety, medical quality, information acquisition channel and overseas medical services). The item scores for each factor were calculated and then weighted using principal component analysis. RESULTS: A total of 297 infertile couples were identified. Most of the infertile women were aged 31-35 years, were married 1-3 years, and had a bachelor's degree. In the weighted factor analysis, "clean outpatient clinic and medical equipment" had the highest weight in the dimension of environment and equipment. The item with the highest weight in the dimension of service quality was "wait time for examination". In the dimension of patient safety, "health education on medication and surgery by counselors" had the highest weight. The item with the highest weight in the dimension of medical quality was "fee charged for ART treatment". The items with the three highest weights in the dimension of information acquisition channel were "other (seminar, exhibition, dissertation …)", "introduction from friends and relatives", and "telephone inquiry". In the dimension of overseas medical services, the two items with the highest weights were "cultural similarities" and "language similarities". CONCLUSION: For CBRC, infertile couples from mainland China may take following significant factors into consideration: a high success rate and inexpensive treatment, cultural and linguistic familiarity, high-quality service and short wait time.


Assuntos
Infertilidade/psicologia , Turismo Médico/psicologia , Técnicas de Reprodução Assistida/psicologia , Adulto , China , Estudos Transversais , Análise Fatorial , Feminino , Humanos , Infertilidade/terapia , Masculino , Gravidez , Estudos Retrospectivos , Cônjuges/psicologia , Inquéritos e Questionários
16.
PLoS One ; 16(1): e0238662, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-33434205

RESUMO

BACKGROUND: Understanding contraceptive use dynamics is critical to addressing unmet need for contraception. Despite evidence that male partners may influence contraceptive decision-making, few studies have prospectively examined the supportive ways that men influence women's contraceptive use and continuation. OBJECTIVE: This study sought to understand the predictive effect of partner influence, defined as partner's fertility intentions and support for contraception, and discussions about avoiding pregnancy prior to contraceptive use, on contraceptive use dynamics (continuation, discontinuation, switching, adoption) over a one-year period. METHODS: This study uses nationally representative longitudinal data of Ugandan women aged 15-49 collected in 2018-2019 (n = 4,288 women baseline; n = 2,755 women one-year follow-up). Two analytic sub-samples of women in union and in need of contraception at baseline were used (n = 618 contraceptive users at baseline for discontinuation/switching analysis; n = 687 contraceptive non-users at baseline for adoption analysis). Primary dependent variables encompassed contraceptive use dynamics (continuation, discontinuation, switching, and adoption); three independent variables assessed partner influence. For each sub-sample, bivariate associations explored differences in sociodemographic and partner influences by contraceptive dynamics. Multinomial regression models were used to examine discontinuation and switching for contraceptive users at baseline; logistic regression identified predictors of contraceptive adoption among non-users at baseline. RESULTS: Among users at baseline, 26.3% of women switched methods and 31.5% discontinued contraceptive use by follow-up. Multinomial logistic regression, adjusting for women's characteristics, indicated the relative risk of contraceptive discontinuation doubled when women did not discuss pregnancy avoidance with their partner prior to contraceptive use. Partner influence was not related to method switching. Among non-users at baseline, partner support for future contraceptive use was associated with nearly three-fold increased odds of contraceptive adoption. SIGNIFICANCE: These results highlight the potentially supportive role of male partners in contraceptive adoption. Future research is encouraged to elucidate the complex pathways between couple-based decision-making and contraceptive dynamics through further prospective studies.


Assuntos
Comportamento Contraceptivo/psicologia , Comportamento Contraceptivo/tendências , Cônjuges/psicologia , Adolescente , Adulto , Estudos de Coortes , Anticoncepção/métodos , Anticoncepcionais/farmacologia , Dispositivos Anticoncepcionais/tendências , Feminino , Fertilidade , Humanos , Estudos Longitudinais , Pessoa de Meia-Idade , Estudos Prospectivos , Uganda
17.
Health Qual Life Outcomes ; 19(1): 35, 2021 Jan 27.
Artigo em Inglês | MEDLINE | ID: mdl-33499876

RESUMO

OBJECTIVES: To determine the level of agreement between both proxy versions and the self-completed EQ-5D-5L. DESIGN: A randomized agreement study. SETTING AND PARTICIPANTS: We recruited 120 patients (compos mentis) and their proxies at the orthopaedic outpatient clinic. Patients completed the regular EQ-5D-5L and their proxy completed the proxy version of the EQ-5D-5L and rated the patients' health from their own (proxy-proxy) perspective (i.e. how do you rate the health of the patient), and from the patient's (proxy-patient) perspective (i.e. how do you think the patient would rate their own health if they were able to). MEASURES: The primary outcome was the agreement between patients and their proxy, quantified as the intra class correlation coefficient for the EQ-5D-5L Utility score. RESULTS: Average Utility scores were 0.65 with the self completed EQ-5D-5L, versus 0.60 with the proxy-patient version and 0.58 with the proxy-proxy version. The ICC was 0.66 (95% CI 0.523, 0.753) for the proxy-patient perspective and 0.58 (95% CI 0.411, 0.697) for the proxy-proxy perspective. The mean gold standard score of the VAS-Health was 69.7 whereas the proxy-proxy perspective was 66.5 and the proxy-patient perspective was 66.3. CONCLUSION AND IMPLICATIONS: The proxy-patient perspective yielded substantial agreement with the self completed EQ-5D-5L, while the agreement with the proxy-proxy perspective was moderate. In this study population of patients without cognitive impairment, proxies tended to underestimate the quality of life of their relative.


Assuntos
Procurador , Qualidade de Vida/psicologia , Cônjuges/psicologia , Adulto , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Ortopedia , Psicometria , Inquéritos e Questionários
18.
Medicina (Kaunas) ; 57(1)2021 Jan 07.
Artigo em Inglês | MEDLINE | ID: mdl-33430175

RESUMO

Background and objectives: To explore the impacts that Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has on the patient and their family members using the WHOQOL-BREF (Abbreviated World Health Organisation Quality of Life questionnaire) and FROM-16 (Family Reported Outcome Measure-16) quality of life assessments. Materials and Methods: A quantitative research study using postal questionnaires was conducted. A total of 39 adult volunteers expressed an interest in participating in the study: 24 returned appropriately completed questionnaires. Patients with ME/CFS completed the WHOQOL-BREF and up to four of their family members completed the FROM-16 questionnaire. Results: ME/CFS negatively affects the quality of life of the patient (median scores WHOQOL-BREF: Physical health = 19, Psychological = 44, Social relationships = 37.5, Environment = 56, n = 24) and their family members' quality of life (FROM-16: Emotional = 9.5, Personal and social = 11.5, Overall = 20.5, n = 42). There was a significant correlation between the patient's reported quality of life scores and their family members' mean FROM-16 total scores. Conclusions: This study identifies the major impact that having an adult family member with ME/CFS has on the lives of partners and of other family members. Quality of life of ME/CFS patients was reduced most by physical health compared to the other domains. Quality of life of family members was particularly impacted by worry, family activities, frustration and sadness. This highlights the importance of measuring the impact on the lives of family members using tools such as the FROM-16 in the ME/CFS clinical encounter and ensuring appropriate support is widely available to family members.


Assuntos
Família/psicologia , Síndrome de Fadiga Crônica/fisiopatologia , Qualidade de Vida , Adolescente , Adulto , Crianças Adultas/psicologia , Idoso , Idoso de 80 Anos ou mais , Efeitos Psicossociais da Doença , Emoções , Síndrome de Fadiga Crônica/psicologia , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Pais/psicologia , Interação Social , Cônjuges/psicologia , Adulto Jovem
19.
Support Care Cancer ; 29(7): 3857-3864, 2021 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-33386988

RESUMO

PURPOSE: Sexual life is a multidimensional issue that can be affected negatively after gynecological cancer. The aim of this study was to reveal what sexuality life difficulties Iranian women with gynecological cancers experience. METHODS: A qualitative approach was conducted through face-to-face semi-structured interviews with 16 Iranian women with gynecological cancer and then analyzed with conventional content analysis. RESULTS: Three themes emerged from the data: (1) participant's struggle to maintain the sexual monopoly of the husband, (2) deterioration of intimacy, and (3) unpleasant bed-life experiences. Most women are ashamed to talk about their sexual relationships problems, and on the other hand, nurses and physicians ignore to talk about their sexual problems, so these women are alone in the face of this problem. CONCLUSION: Although women with gynecological cancer experience sexual problems such as reluctant to have sex and lack of enjoyment, they struggle to maintain sexual life with their husbands. These women do not have enough support. They believe that sexuality is a shameful issue, and they are reluctant to ask questions about it. Health professionals need to talk about the possibility of sexual problems due to changes in their bodies caused by cancer. These women need to be encouraged to talk about these problems, with consideration to their religious and cultural differences.


Assuntos
Neoplasias dos Genitais Femininos/psicologia , Comportamento Sexual/psicologia , Cônjuges/psicologia , Adulto , Idoso , Feminino , Humanos , Irã (Geográfico) , Pessoa de Meia-Idade , Pesquisa Qualitativa , Adulto Jovem
20.
Support Care Cancer ; 29(3): 1477-1486, 2021 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-32699998

RESUMO

OBJECTIVES: To explore the benefit finding (BF) relationship between colorectal cancer (CRC) survivors and their spousal caregivers, and to discover the dyadic impact of BF on quality of life (QOL) in CRC survivor and spousal caregiver couples. METHODS: Conducted from May 2018 to December 2018, the study included 286 couples consisting of CRC survivors and their spousal caregivers. The study survey evaluated participants' BF, anxiety, depression, and QOL. Data analysis methods included Pearson's correlation, paired t test, and the actor-partner interdependence mediation model (APIMeM). RESULTS: CRC survivors and spousal caregivers reported comparable moderate to high BF experience (ranging from 68.9 to 80.8%). Moderate to high correlations were found between CRC survivors and their spousal caregivers in all of the paired BFs (including the overall BF scale and three factors) (all Ps < 0.001, r = 0.461-0.612). We found significant positive correlations of the same measures between dyads of CRC survivors and spousal caregivers (r = 0.331-0.612), including BFS-C (overall BF scale and three subscales), HADS-C (anxiety and depression), PCS, and MCS. To a certain degree, BF exerts an impact on couples' QOL through the mediating effect of psychological distress (anxiety and depression). CONCLUSIONS: The present study further confirms the dyadic interdependence between BF, anxiety, depression, and QOL in couples coping with CRC. In addition, the APIMeM findings may support the proposed mechanism, in that buffering against negative emotions (psychological distress) is an approach in which BF plays an important role, e.g., improves QOL, in the context of a stressful process.


Assuntos
Cuidadores/psicologia , Neoplasias Colorretais/psicologia , Qualidade de Vida/psicologia , Cônjuges/psicologia , Sobreviventes de Câncer , Neoplasias Colorretais/mortalidade , Feminino , Humanos , Masculino , Inquéritos e Questionários
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