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1.
Stud Health Technol Inform ; 282: 102-119, 2021 Jun 04.
Artigo em Inglês | MEDLINE | ID: mdl-34085962

RESUMO

For the creation of inclusive design solutions, designers require relevant knowledge about a diversity of users throughout the design process. Besides understanding users' needs and expectations, the ways in which users perceive and experience the environment contain valuable knowledge for designers. Since users' perceptions and experiences are mainly tacit by nature, they are much more difficult to communicate and therefore more difficult to externalize. Hence, more insight is needed into the ways designers can build knowledge on Universal Design through direct user contact. In a project called 'Light up for all' architecture students are asked to design a light switch and socket, elegant, usable and understandable to the greatest extent possible by everyone. Two workshops with user/experts are organized in the first stages of the design process in which students could gain insight into users' experiences and perceptions through direct contact. Three data collection techniques are used to analyze the teams' design processes: (1) a design diary, (2) observations of the workshops and (3) a focus group. By means of analyzing collected qualitative data, we have identified three different design aspects that affect designers' UD knowledge building process. First, findings give indications on values and limitations of working with selected design artefacts when externalizing users' experiences. Second, the value of stories clearly affected designers' deeper understanding about users' experiences. Finally, results show that in some situations, designers encountered contradictory information between observations and verbal conversations. These insights may help researchers to better understand designers' process of building knowledge on UD from users' experiences and perceptions, which may result in better incorporating users' experiences when designing for everyone.


Assuntos
Comunicação , Design Universal , Coleta de Dados , Grupos Focais , Humanos , Estudantes
3.
JMIR Mhealth Uhealth ; 9(6): e16304, 2021 06 08.
Artigo em Inglês | MEDLINE | ID: mdl-34100767

RESUMO

BACKGROUND: Parkinson disease (PD) is a common, multifaceted neurodegenerative disorder profoundly impacting patients' autonomy and quality of life. Assessment in real-life conditions of subjective symptoms and objective metrics of mobility and nonmotor symptoms such as sleep disturbance is strongly advocated. This information would critically guide the adaptation of antiparkinsonian medications and nonpharmacological interventions. Moreover, since the spread of the COVID-19 pandemic, health care practices are being reshaped toward a more home-based care. New technologies could play a pivotal role in this new approach to clinical care. Nevertheless, devices and information technology tools might be unhandy for PD patients, thus dramatically limiting their widespread employment. OBJECTIVE: The goals of the research were development and usability evaluation of an application, SleepFit, for ecological momentary assessment of objective and subjective clinical metrics at PD patients' homes, and as a remote tool for researchers to monitor patients and integrate and manage data. METHODS: An iterative and user-centric strategy was employed for the development of SleepFit. The core structure of SleepFit consists of (1) an electronic finger-tapping test; (2) motor, sleepiness, and emotional subjective scales; and (3) a sleep diary. Applicable design, ergonomic, and navigation principles have been applied while tailoring the application to the specific patient population. Three progressively enhanced versions of the application (alpha, v1.0, v2.0) were tested by a total of 56 patients with PD who were asked to perform multiple home assessments 4 times per day for 2 weeks. Patient compliance was calculated as the proportion of completed tasks out of the total number of expected tasks. Satisfaction on the latest version (v2.0) was evaluated as potential willingness to use SleepFit again after the end of the study. RESULTS: From alpha to v1.0, SleepFit was improved in graphics, ergonomics, and navigation, with automated flows guiding the patients in performing tasks throughout the 24 hours, and real-time data collection and consultation were made possible thanks to a remote web portal. In v2.0, the kiosk-mode feature restricts the use of the tablet to the SleepFit application only, thus preventing users from accidentally exiting the application. A total of 52 (4 dropouts) patients were included in the analyses. Overall compliance (all versions) was 88.89% (5707/6420). SleepFit was progressively enhanced and compliance increased from 87.86% (2070/2356) to 89.92% (2899/3224; P=.04). Among the patients who used v2.0, 96% (25/26) declared they would use SleepFit again. CONCLUSIONS: SleepFit can be considered a state-of-the-art home-based system that increases compliance in PD patients, ensures high-quality data collection, and works as a handy tool for remote monitoring and data management in clinical research. Thanks to its user-friendliness and modular structure, it could be employed in other clinical studies with minimum adaptation efforts. TRIAL REGISTRATION: ClinicalTrials.gov NCT02723396; https://clinicaltrials.gov/ct2/show/NCT02723396.


Assuntos
COVID-19 , Doença de Parkinson , Coleta de Dados , Humanos , Pandemias , Doença de Parkinson/tratamento farmacológico , Qualidade de Vida , SARS-CoV-2
4.
Rev Bras Enferm ; 74(3): e20201034, 2021.
Artigo em Inglês, Português | MEDLINE | ID: mdl-34133682

RESUMO

OBJECTIVES: to build and validate a data collection instrument for onco-hematological patients undergoing outpatient chemotherapy. METHODS: methodological study that aimed to build a scientifically consistent data collection instrument to evaluate hematological patients. There were five stages: identification of empirical indicators, evaluation of empirical indicators by focus group, construction of the instrument, content validation by judges and clinical validation. Built based on the Theory of Basic Human Needs of Horta, adjusted by Garcias and Cubas. RESULTS: the built instrument contains data on patient identification, perception and expectations related to the disease, assessment of psychobiological, psychosocial and psychospiritual needs. It reached 95% CVI, ensuring the instrument's content validity and Cronbach's alpha test with a reliability of 0.93. CONCLUSIONS: the instrument is a valid technology to assist nurses in data collection and may serve as a tool for onco-hematological nursing care, teaching and research.


Assuntos
Doenças Hematológicas , Cuidados de Enfermagem , Coleta de Dados , Humanos , Pacientes Ambulatoriais , Psicometria , Reprodutibilidade dos Testes , Inquéritos e Questionários
5.
Rev. SPAGESP ; 22(1): 98-113, ene.-jun. 2021. ilus, tab
Artigo em Português | LILACS, Index Psicologia - Periódicos | ID: biblio-1155517

RESUMO

Os grupos, a despeito de seu potencial para a Psicologia, ainda são pouco considerados pela Psicologia Analítica e escolas dissidentes. Buscou-se, assim, identificar pesquisas que discorressem sobre grupos na perspectiva da Psicologia Analítica e da Escola Arquetípica em programas de pós-graduação brasileiros. O levantamento de dados incluiu trabalhos publicados de 1997 a 2019, considerando-se dados concernentes à autoria, orientação, instituição de ensino superior (IES), programa de pós-graduação, região do país, ano, delineamento metodológico e instrumentos utilizados. Notou-se aumento dos trabalhos entre 2016 e 2018, predominância de autoria feminina, maior concentração de IES no Nordeste e Sudeste, foco em pesquisas empíricas qualitativas, com entrevistas ou grupo como instrumento de coleta de dados, demonstrando os benefícios do grupo como recurso terapêutico.


The groups, despite their potential for Psychology, are still little considered by Analytical Psychology and dissident schools. Thus, we sought to identify research that discussed groups from the perspective of Analytical Psychology and the Archetypal School in Brazilian postgraduate programs. The data survey included works published from 1997 to 2019, considering data concerning authorship, guidance, higher education institution (HEI), postgraduate program, the region of the country, year, methodological design, and instruments used. There was an increase in work between 2016 and 2018, the predominance of female authorship, a higher concentration of HEIs in the Northeast and Southeast, focus on qualitative empirical research, with interviews or group as a data collection instrument, demonstrating the benefits of the group as a therapeutic resource.


Los grupos, a pesar de su potencial para la Psicología, todavía son poco considerados por la Psicología Analítica y las escuelas disidentes. Así, buscamos identificar investigaciones que discutieran grupos desde la perspectiva de la Psicología Analítica y la Escuela Arquetípica en programas de posgrado brasileños. La encuesta de datos incluyó trabajos publicados de 1997 a 2019, considerando datos de autoría, orientación, institución de educación superior (IES), programa de posgrado, región del país, año, diseño metodológico e instrumentos utilizados. Hubo un aumento del trabajo entre 2016 y 2018, predominio de la autoría femenina, mayor concentración de IES en el Noreste y Sudeste, enfoque en la investigación empírica cualitativa, con entrevistas o grupo como instrumento de recolección de datos, demostrando los beneficios del grupo como recurso terapéutico.


Assuntos
Teoria Psicanalítica , Psicologia , Pesquisa , Autoria , Bibliometria , Coleta de Dados , Teoria Junguiana
6.
Gesundheitswesen ; 83(6): 470-480, 2021 Jun.
Artigo em Alemão | MEDLINE | ID: mdl-34020493

RESUMO

The evaluation of intervention effects is an important domain of health services research. The ad hoc commission for the use of routine practice data of the German Network for Health Services Research (DNVF) therefore provides this second part of its manual focusing on the use of routine practice data for the evaluation of intervention effects. First, we discuss definition issues and the importance of contextual factors. Subsequently, general requirements for planning, data collection and analysis as well as concrete examples for the evaluation of intervention effects for the 3 fields of application regarding pharmacotherapy, nonpharmaceutical interventions as well as complex interventions are elaborated. We consider scenarios in which no information from randomized controlled trials (RCTs) comparing the two groups directly is yet available or in which RCTs are already available but an extension of the research question is required. In all examples either with or without randomization, the first and foremost question is always whether the data source is suitable for the specific research question. Most of the examples chosen are from oncology trials, because the necessary data are already available for Germany, at least in some form. Finally, the manual discusses possible challenges for future use of these data.


Assuntos
Pesquisa sobre Serviços de Saúde , Armazenamento e Recuperação da Informação , Coleta de Dados , Alemanha
7.
JAMA Netw Open ; 4(5): e2110918, 2021 05 03.
Artigo em Inglês | MEDLINE | ID: mdl-34009347

RESUMO

Importance: Curbing COVID-19 transmission is currently the greatest global public health challenge. Consumer digital tools used to collect data, such as the Apple-Google digital contact tracing program, offer opportunities to reduce COVID-19 transmission but introduce privacy concerns. Objective: To assess uses of consumer digital information for COVID-19 control that US adults find acceptable and the factors associated with higher or lower approval of use of this information. Design, Setting, and Participants: This cross-sectional survey study obtained data from a nationally representative sample of 6284 US adults recruited by email from the web-based Ipsos KnowledgePanel in July 2020. Respondents evaluated scenarios reflecting uses of digital data for COVID-19 control (case identification, digital contact tracing, policy setting, and enforcement of quarantines). Main Outcomes and Measures: Levels of support for use of personal digital data in 9 scenarios to mitigate the spread of COVID-19 infection, rated on a Likert scale, ranging from 1 (strongly disagree) to 5 (strongly agree). Multivariable linear regression models were fitted for each scenario and included factors hypothesized to be associated with views about digital data use for COVID-19 mitigation measures. Black and Hispanic survey respondents were oversampled; thus, poststratification weights were used so that results are representative of the general US population. Results: Of 6284 individuals invited to participate in the study, 3547 responded, for a completion rate of 56%. A total of 1762 participants (52%) were female, 715 (21%) identified as Black, 790 (23%) identified as Hispanic, and 1224 (36%) were 60 years or older; mean (SD) age was 51.7 (16.6) years. Approval of scenarios was low, ranging from 28% to 43% (52%-67% when neutral responses were included). Differences were found based on digital data source (smartphone vs social media: coefficient, 0.29 [95% CI, 0.23-0.35]; P < .001; smart thermometer vs social media: coefficient, 0.09 [95% CI, 0.03-0.16]; P = .004). County COVID-19 rates (coefficient, -0.02; 95% CI, -0.16 to 0.13 for quartile 4 compared with quartile 1) and prior family diagnosis of COVID-19 (coefficient, 0.00; 95% CI, -0.25 to 0.25) were not associated with support. Compared with self-described liberal individuals, conservative (coefficient, -0.81; 95% CI, -0.96 to -0.66; P < .001) and moderate (coefficient, -0.52; 95% CI, -0.67 to -0.38; P < .001) individuals were less likely to support the scenarios. Similarly, large political differences were observed in support of the Apple-Google digital contact tracing program, with less support from conservative (coefficient, -0.99; 95% CI, -1.11 to -0.87; P < .001) and moderate (coefficient, -0.59; 95% CI, -0.69 to -0.48; P < .001) individuals compared with liberal individuals. Respondents from racial/ethnic minority groups were more supportive of the scenarios than were White, non-Hispanic respondents. For example, compared with White respondents, Black respondents were more supportive of the Apple-Google contact tracing program (coefficient, 0.20; 95% CI, 0.07-0.32; P = .002). Conclusions and Relevance: In this survey study of US adults, many were averse to their information being used on digital platforms to mitigate transmission of COVID-19. These findings suggest that in current and future pandemics, public health departments should use multiple strategies to gain public trust and accelerate adoption of tools such as digital contact tracing applications.


Assuntos
Atitude , COVID-19/prevenção & controle , Busca de Comunicante , Tecnologia Digital , Pandemias , Privacidade , Opinião Pública , Adulto , Idoso , Atitude/etnologia , Controle de Doenças Transmissíveis/métodos , Estudos Transversais , Coleta de Dados , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Grupos Minoritários , Política , SARS-CoV-2 , Smartphone , Mídias Sociais , Inquéritos e Questionários , Telemedicina , Estados Unidos
8.
Stud Health Technol Inform ; 279: 103-104, 2021 May 07.
Artigo em Inglês | MEDLINE | ID: mdl-33965925

RESUMO

BACKGROUND: Mobile apps may encourage a lifestyle that avoids unhealthy behaviors, such as smoking or poor nutrition, which promotes cardiovascular diseases (CVD). Yet, little data is available on the utilization, perception, and long-term effects of such apps to prevent CVD. OBJECTIVES: To develop a mobile app concept to reduce the individual CVD risk and collect information addressing research questions on CVD prevention while preserving data privacy and security. METHODS: To validate the concept, a prototype will be built, and usability studies will be performed. RESULTS: We expect to determine whether it is possible to reach a broad user base and to collect scientific information while protecting user data sufficiently. CONCLUSION: To address CVD prevention, we propose a mobile coaching app. We expect high acceptance rates in validation studies.


Assuntos
Doenças Cardiovasculares , Aplicativos Móveis , Telemedicina , Doenças Cardiovasculares/prevenção & controle , Coleta de Dados , Humanos , Privacidade
9.
Bull World Health Organ ; 99(5): 381-387A, 2021 May 01.
Artigo em Inglês | MEDLINE | ID: mdl-33958826

RESUMO

In the context of declining economic growth, now exacerbated by the coronavirus disease 2019 pandemic, Papua New Guinea is increasing the efficiency of its health systems to overcome difficulties in reaching global health and development targets. Before 2015, the national health information system was fragmented, underfunded, of limited utility and accessed infrequently by health authorities. We built an electronic system that integrated mobile technologies and geographic information system data sets of every house, village and health facility in the country. We piloted the system in 184 health facilities across five provinces between 2015 and 2016. By the end of 2020, the system's mobile tablets were rolled out to 473 facilities in 13 provinces, while the online platform was available in health authorities of all 22 provinces, including church health services. Fractured data siloes of legacy health programmes have been integrated and a platform for civil registration systems established. We discuss how mobile technologies and geographic information systems have transformed health information systems in Papua New Guinea over the past 6 years by increasing the timeliness, completeness, quality, accessibility, flexibility, acceptability and utility of national health data. To achieve this transformation, we highlight the importance of considering the benefits of mobile tools and using rich geographic information systems data sets for health workers in primary care in addition to the needs of public health authorities.


Assuntos
Sistemas de Informação Geográfica/organização & administração , Sistemas de Informação em Saúde/organização & administração , Vigilância em Saúde Pública/métodos , Tecnologia sem Fio/organização & administração , COVID-19/epidemiologia , Coleta de Dados , Programas Governamentais , Sistemas de Informação em Saúde/economia , Humanos , Papua Nova Guiné/epidemiologia , SARS-CoV-2
10.
Washington, D.C.; PAHO; 2021-05-28.
em Inglês | PAHO-IRIS | ID: phr-54130

RESUMO

One of the goals to be achieved by 2030 of the Global Health Sector Strategy on Viral Hepatitis 2016-2021 is to reduce mortality from hepatitis viruses B (HBV) and C (HCV). To measure and monitor it, countries need to implement a systematic process to generate national estimates of mortality from viral hepatitis, which many lack. This document is aimed at the institutions and/or ministries in charge of monitoring progress in each country. The main objective of this protocol is to present simple methods to estimate the proportion of patients with cirrhosis and hepatocellular carcinoma who have HBV and HCV infection, and then calculate the national mortality due to these sequelae attributable to viral hepatitis, preferably within a surveillance system. In addition, a general framework is provided on how the surveillance system should function, how to collect the data, and ethical considerations. The surveillance system will be based on sentinel centers where information will be collected from patients with cirrhosis and hepatocellular carcinoma. These data will be used to estimate the fraction of cirrhosis and hepatocellular carcinoma attributable to HBV and HCV. On the other hand, data will be collected on the number of deaths nationwide from cirrhosis and hepatocellular carcinoma. With this information, mortality from cirrhosis and hepatocellular carcinoma attributable to HBV and HCV will be estimated.


Assuntos
Cirrose Hepática , Carcinoma Hepatocelular , Hepatite B , Hepatite C , Mortalidade , Vigilância de Evento Sentinela , Coleta de Dados
12.
Nutrients ; 13(5)2021 Apr 29.
Artigo em Inglês | MEDLINE | ID: mdl-33946949

RESUMO

Eating habits appear to become less healthy once children move into adolescence. Adolescence is characterized by increasing independence and autonomy. Still, parents continue influencing adolescents' eating habits. This cross-sectional study used a Self-Determination Theory perspective to examine how parents can support preadolescents' food-related autonomy and competence and how these factors are associated with healthy eating motivation and food consumption at school. In addition, the effect of relative healthy food availability at home on preadolescents' food consumption at school was explored. In total, 142 Dutch preadolescents (mean age 12.18) and 81 parents completed questionnaires. The results showed that preadolescents perceived themselves as having higher food-related autonomy and lower competence to eat healthily as compared to their parents' perceptions. A path analysis was conducted to test the hypothesized model. Although parental support was positively associated with food-related autonomy, higher food-related autonomy was related to less healthy food intake at school. On the other hand, competence to eat healthily indirectly affected preadolescents' healthy intake ratio through their healthy eating motivation. Finally, the relative availability of healthy options at home was positively associated with preadolescents' healthy intake ratio outside the home. Findings from the study advance the understanding of individual and environmental factors that influence eating habits during the key life period of early adolescence. The results may inform interventions aiming to guide preadolescents to make healthy food choices on their own.


Assuntos
Comportamento Alimentar , Competência Mental , Pais , Autonomia Pessoal , Criança , Coleta de Dados , Dieta Saudável , Feminino , Humanos , Masculino , Países Baixos , Instituições Acadêmicas , Inquéritos e Questionários
13.
Zhongguo Zhong Yao Za Zhi ; 46(7): 1681-1685, 2021 Apr.
Artigo em Chinês | MEDLINE | ID: mdl-33982468

RESUMO

Collecting and summarizing human use experience(HUE) data, forming high-quality data and evidences that can be used for evaluation are the key links of HUE research on traditional Chinese medicine(TCM). The collection, collation and summary of human experience data were discussed in this paper. It is pointed out that the collection of HUE should be focus on the source of prescription of new traditional Chinese medicines, and be summarized based on dialectical thinking, experience in medication, characte-ristics of prescription and clinical application. The collected contents include prescription, process, clinical location and applicable population, efficacy data and safety data, etc. The methods include interview, clinical data summary and data mining. When the data formed based on HUE information is used as drug registration information, it is necessary to ensure that the data source is legal and compliant, and the ownership of intellectual property is clear.Data sources should meet the requirements of medical ethics. To avoid conflict of interest, data analysis should be conducted by an independent third party. It is necessary to develop the quality control measures of HUE data to ensure the data traceability, integrity, consistency and accuracy, and avoid data bias.The data of HUE should include the key data such as accurate clinical location and applicable population, recognized clinical efficacy and safety.After the formation of HUE, the statistical analysis plan of empirical data of human use should be formulated. Through strict data processing, statistical analysis and clinical interpretation, HUE can be produced for evaluation.


Assuntos
Medicamentos de Ervas Chinesas , Medicina Tradicional Chinesa , Coleta de Dados , Humanos , Prescrições , Controle de Qualidade
14.
Nursing (Säo Paulo) ; 24(276): 5632-5641, maio.2021.
Artigo em Português | LILACS, BDENF - Enfermagem | ID: biblio-1224642

RESUMO

Objetivo: Avaliar os cuidados de enfermagem com o protetor ocular em recém-nascidos. Método: Estudo investigatório descritivo, com abordagem qualitativa, realizado em hospital-escola, localizado na cidade de Fortaleza-Ceará, Brasil, janeiro a fevereiro de 2016. Participaram do estudo 15 enfermeiras que prestavam cuidados a recém-nascidos em fototerapia, na Unidade de Cuidados Intermediários e Terapia Intensiva. A coleta dos dados ocorreu por meio de entrevista não estruturada. Resultados: O protetor ocular é utilizado na prevenção de lesão na retina de recém-nascidos, sendo que existem riscos na utilização desse artefato e, para evitar danos, são realizados cuidados essenciais direcionados aos recém-nascidos sob fototerapia. Conclusão: Os cuidados que as enfermeiras prestam aos recém-nascidos são realizados de forma sistematizada, aliando humanização e tecnologia.(AU)


Objective: To evaluate nursing care with eye protection for newborns. Method: Descriptive investigative study, with a qualitative approach, carried out in a teaching hospital, located in the city of Fortaleza-Ceará, Brazil, January to February 2016. The study included 15 nurses who cared for newborns undergoing phototherapy, at the Intermediate Care and Intensive Care. Data collection took place through unstructured interviews. Results: The eye protector is used to prevent injury to the retina of newborns, and there are risks in the use of this artifact and, to avoid damage, essential care directed to newborns under phototherapy is performed. Conclusion: The care that nurses provide to newborns is carried out in a systematic way, combining humanization and technology.(AU)


Objetivo: Evaluar los cuidados de enfermería con protección ocular para recién nacidos. Método: Estudio descriptivo de investigación, con abordaje cualitativo, realizado en un hospital universitario, ubicado en la ciudad de Fortaleza-Ceará, Brasil, de enero a febrero de 2016. Participaron del estudio 15 enfermeras que asistieron a recién nacidos en fototerapia, en el Intermedio. Cuidados y cuidados intensivos. La recolección de datos se realizó mediante entrevistas no estructuradas. Resultados: El protector ocular se utiliza para prevenir daños en la retina del recién nacido, existen riesgos en el uso de este artefacto y, para evitar daños, se realizan cuidados esenciales dirigidos al recién nacido sometido a fototerapia. Conclusión: La atención que brindan las enfermeras al recién nacido se realiza de manera sistemática, combinando humanización y tecnología.(AU)


Assuntos
Humanos , Recém-Nascido , Fototerapia , Enfermagem Neonatal , Dispositivos de Proteção dos Olhos , Cuidados de Enfermagem , Unidades de Terapia Intensiva Neonatal , Traumatismos Oculares/prevenção & controle , Coleta de Dados , Hospitais de Ensino
15.
Alzheimer Dis Assoc Disord ; 35(2): 172-177, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-33901048

RESUMO

In March 2020, the novel coronavirus (COVID-19) became a global pandemic that would cause most in-person visits for clinical studies to be put on pause. Coupled with protective stay at home guidelines, clinical research at the Icahn School of Medicine at Mount Sinai Alzheimer's Disease Research Center (ISMMS ADRC) needed to quickly adapt to remain operational and maintain our cohort of research participants. Data collected by the ISMMS ADRC as well as from other National Institute on Aging (NIA) Alzheimer Disease centers, follows the guidance of the National Alzheimer Coordinating Center (NACC). However, at the start of this pandemic, NACC had no alternative data collection mechanisms that could accommodate these safety guidelines. To stay in touch with our cohort and to ensure continued data collection under different stages of quarantine, the ISMMS ADRC redeployed their work force to continue their observational study via telehealth assessment. On the basis of this experience and that of other centers, NACC was able to create a data collection process to accommodate remote assessment in mid-August. Here we review our experience in filling the gap during this period of isolation and describe the adaptations for clinical research, which informed the national dialog for conducting dementia research in the age of COVID-19 and beyond.


Assuntos
Doença de Alzheimer/epidemiologia , COVID-19/diagnóstico , Coleta de Dados , SARS-CoV-2/patogenicidade , Doença de Alzheimer/complicações , COVID-19/complicações , COVID-19/virologia , Demência/complicações , Humanos
16.
Eur J Cardiovasc Nurs ; 20(4): 392-396, 2021 05 22.
Artigo em Inglês | MEDLINE | ID: mdl-33893797

RESUMO

Face-to-face interviews have long been the norm for conducting qualitative interviews in healthcare research. However, the Covid-19 pandemic has accelerated the need to explore alternative methods. This, along with the swift digitalization of healthcare, has led to video, telephone, and online interactions becoming increasingly used. The use of new techniques to carry out interviews through video, telephone, and online applications all come with benefits and drawbacks. In this article, three ways of collecting data through qualitative interviews are described and their uses exemplified through a project investigating the impact of a transition program for adolescents with congenital heart disease.


Assuntos
COVID-19 , Coleta de Dados/métodos , Correio Eletrônico , Cardiopatias Congênitas/diagnóstico , Cardiopatias Congênitas/enfermagem , Redes Sociais Online , Telefone , Gravação em Vídeo , Adolescente , Enfermagem Cardiovascular/métodos , Feminino , Humanos , Masculino , Pandemias , Pesquisa Qualitativa , SARS-CoV-2
17.
Artigo em Inglês | MEDLINE | ID: mdl-33802154

RESUMO

The increasing number of human biomonitoring (HBM) studies undertaken in recent decades has brought to light the need to harmonise procedures along all phases of the study, including sampling, data collection and analytical methods to allow data comparability. The first steps towards harmonisation are the identification and collation of HBM methodological information of existing studies and data gaps. Systematic literature reviews and meta-analyses have been traditionally put at the top of the hierarchy of evidence, being increasingly applied to map available evidence on health risks linked to exposure to chemicals. However, these methods mainly capture peer-reviewed articles, failing to comprehensively identify other important, unpublished sources of information that are pivotal to gather a complete map of the produced evidence in the area of HBM. Within the framework of the European Human Biomonitoring Initiative (HBM4EU) initiative-a project that joins 30 countries, 29 from Europe plus Israel, the European Environment Agency and the European Commission-a comprehensive work of data triangulation has been made to identify existing HBM studies and data gaps across countries within the consortium. The use of documentary analysis together with an up-to-date platform to fulfil this need and its implications for research and practice are discussed.


Assuntos
Monitoramento Biológico , Poluentes Ambientais , Coleta de Dados , Monitoramento Ambiental , Poluentes Ambientais/análise , Europa (Continente) , Humanos , Israel , Metanálise como Assunto , Revisões Sistemáticas como Assunto
19.
Transformación Digital. Herramientas; 1OPS/EIH/IS/COVID-19/21-0008.
Monografia em Espanhol | PAHO-IRIS | ID: phr-53740

RESUMO

Esta herramienta está diseñada para realizar una evaluación rápida de las instituciones prestadoras de servicios de salud y de otras relacionadas con la salud y analiza su capacidad para recopilar datos críticos y de alta calidad en la respuesta a la pandemia de COVID-19. La herramienta evalúa el compromiso institucional con la pertinencia y la calidad de los datos utilizados para la toma de decisiones a todos los niveles. Además, facilita la autoevaluación para redefinir las prioridades de la pandemia; identifica la brecha de capacidad de los sistemas de datos internacionales, nacionales y subnacionales, y evalúa la capacidad para proporcionar datos fiables y constructivos.


Assuntos
COVID-19 , Coleta de Dados , Análise de Dados , Sistemas de Informação , Sistemas de Informação em Saúde , Betacoronavirus , Infecções por Coronavirus , Pandemias , América
20.
Digital Transformation. Tools; 1PAHO/EIH/IS/COVID-19/21-0008.
Monografia em Inglês | PAHO-IRIS | ID: phr-53614

RESUMO

This tool is designed for rapid assessment of health and health-related institutions and evaluates their capacity to gather critical, high-quality data in the COVID-19 pandemic response. The tool assesses institutional commitment to the timeliness and quality of data used for decision-making at all levels. It facilitates self-assessment to redefine pandemic priorities and, identifies the capacity gap within international, national, and subnational data systems, and assesses the ability to provide reliable and constructive data.


Assuntos
Coleta de Dados , Análise de Dados , Sistemas de Informação , Sistemas de Informação em Saúde , COVID-19 , Betacoronavirus , Pandemias , Infecções por Coronavirus , América
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