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2.
RECIIS (Online) ; 13(3): 457-470, jul.-set. 2019. ilus
Artigo em Português | LILACS | ID: biblio-1016410

RESUMO

Este artigo discute a emergência de iniciativas ciberativistas centradas na representação política LGBT, assim como a sua contribuição para a consolidação das demandas do movimento e para o aprofundamento da democracia. Com abordagem qualitativa e procedimento monográfico, objetiva-se compreender a atuação da campanha #VoteLGBT, desenvolvida nas redes de comunicação digital distribuída nas eleições de 2014 e 2016. Delimitam-se, como corpus, as ferramentas sociais digitais utilizadas e os conteúdos das publicações realizadas no Facebook. Conclui-se que a iniciativa #VoteLGBT produz uma tripla visibilização (das candidaturas para os eleitores; dos eleitores para os candidatos; das demandas e temáticas para os candidatos e eleitores); expõe desigualdades políticas veladas no próprio regime democrático; cumpre a função, ao usar ferramentas digitais, de aproximar as dimensões civil e política em uma mesma ambiência; busca, ao produzir conteúdo, sensibilizar e convocar os eleitores, demonstrando a legitimidade das pautas e a importância da participação e da representação política.


This article discusses the emergence of cyberactivist initiatives centered on LGBT political representation and its contribution to the consolidation of demands required by that movement and to deepen the democracy. With a qualitative approach and monographic procedure, the objective of this study is to understand the performance of the #VoteLGBT campaign, developed in distributed digital communication networks before the Brazilian elections in 2014 and 2016. It was delimited as corpus the digital social tools used to those campaigns and the contents of the information posted in Facebook. We concluded that the #VoteLGBT initiative produces a triple visibility (of candidates to voters, of voters to candidates, of demands and themes to candidates and voters); exposes veiled political inequalities in the democratic regime itself; in using digital tools, it fulfills the function of approaching the civil and political dimensions in the same environment; in producing content, it seeks to sensitize the voters to LGBT's issues and to choose their representant, demonstrating the legitimacy of those issues and the importance of political participation and representation.


Este artículo discute la emergencia de iniciativas ciberactivistas centradas en la representación política LGBT y su contribución para la consolidación de las demandas del movimiento y para la profundización de la democracia. Con un enfoque cualitativo y un procedimiento monográfico, el objetivo del estudio es comprender la actuación de la campaña #VoteLGBT, desarrollada en redes de comunicación digital distribuida antes de las elecciones brasileñas de 2014 y 2016. Delimitamos como corpus las herramientas sociales digitales utilizadas en las campañas y los contenidos de las informaciones publicadas en Facebook. Concluimos que la iniciativa #VoteLGBT produce una triple visibilidad (de candidatos para votantes, de votantes para candidatos, de demandas y temas para candidatos y votantes); expone desigualdades políticas veladas en el proprio régimen democrático; al emplear herramientas digitales, cumple la función de acercar las dimensiones civil y política en el mismo ambiente; al producir contenido, busca sensibilizar los votantes para las cuestiones LGBT y para elegir sus candidatos , demostrando la legitimidad de los temas y la importancia de la participación y representación política.


Assuntos
Humanos , Acesso à Informação , Iniquidade Social , Minorias Sexuais e de Gênero , Política , Brasil , Comunicação , Democracia , Disseminação de Informação , Identidade de Gênero
4.
Mem Inst Oswaldo Cruz ; 114: e190257, 2019.
Artigo em Inglês | MEDLINE | ID: mdl-31432893

RESUMO

We present a decentralised solution for managing scientific communication, based on distributed ledger technologies, also called blockchains. The proposed system aims to solve incentive problems displayed by traditional systems in scientific communication and publication. A minimal working model is presented, defining roles, processes, and expected results from the novel system. The proposed solution is viable, given the current status of blockchain technology, and should lead to a rethinking of current practices and their consequences for scientific communication.


Assuntos
Acesso à Informação , Comunicação , Registros Eletrônicos de Saúde , Publicações Periódicas como Assunto/tendências , Editoração/tendências , Humanos
5.
Stud Health Technol Inform ; 264: 1164-1168, 2019 Aug 21.
Artigo em Inglês | MEDLINE | ID: mdl-31438108

RESUMO

Perception of emotions and adequate responses are key factors of a successful conversational agent. However, determining emotions in a healthcare setting depends on multiple factors such as context and medical condition. Given the increase of interest in conversational agents integrated in mobile health applications, our objective in this work is to introduce a concept for analyzing emotions and sentiments expressed by a person in a mobile health application with a conversational user interface. The approach bases upon bot technology (Synthetic intelligence markup language) and deep learning for emotion analysis. More specifically, expressions referring to sentiments or emotions are classified along seven categories and three stages of strengths using treebank annotation and recursive neural networks. The classification result is used by the chatbot for selecting an appropriate response. In this way, the concerns of a user can be better addressed. We describe three use cases where the approach could be integrated to make the chatbot emotion-sensitive.


Assuntos
Comunicação , Emoções , Assistência à Saúde , Humanos , Linguagem
6.
Stud Health Technol Inform ; 264: 1813-1814, 2019 Aug 21.
Artigo em Inglês | MEDLINE | ID: mdl-31438357

RESUMO

Intelligent conversation agents (ICAs) have been used for patient self-management and support in recent years. This study systematically reviewed ICA resarch and innovation in academic and industrial institutions using bibliometric and patent analysis. We reported the types of diseases and patients, and the ICAs delivery approaches for patient-self-management. We identified the gaps in the productivity and focused areas.


Assuntos
Bibliometria , Comunicação , Autogestão , Humanos , Armazenamento e Recuperação da Informação , Inteligência , Inquéritos e Questionários
7.
Stud Health Technol Inform ; 263: 75-86, 2019 Jul 30.
Artigo em Inglês | MEDLINE | ID: mdl-31411154

RESUMO

Distributed cognition theory posits that our cognitive tasks are so tightly coupled to the environment that cognition extends into the environment, beyond the skin and the skull. It uses cognitive concepts to describe information processing across external representations, social networks and across different periods of time. Distributed cognition lends itself to exploring how people interact with technology in the workplace, issues to do with communication and coordination, how people's thinking extends into the environment and sociotechnical system architecture and performance more broadly. We provide an overview of early work that established distributed cognition theory, describe more recent work that facilitates its application, and outline how this theory has been used in health informatics. We present two use cases to show how distributed cognition can be used at the formative and summative stages of a project life cycle. In both cases, key determinants that influence performance of the sociotechnical system and/or the technology are identified. We argue that distributed cognition theory can have descriptive, rhetorical, inferential and application power. For evidence-based health informatics it can lead to design changes and hypotheses that can be tested.


Assuntos
Cognição , Informática Médica , Comunicação , Tecnologia
8.
Stud Health Technol Inform ; 263: 122-133, 2019 Jul 30.
Artigo em Inglês | MEDLINE | ID: mdl-31411158

RESUMO

Inadequate communication is a factor in suboptimal junior doctor management of deteriorating ward patients. Junior doctors' information and communication technology (ICT) systems are not the sole cause or cure for this. However, junior doctors are already dissatisfied with existing technologies for general hospital communication. The Deterioration Communication Management Theory (DCMT) provides a means to approach these issues by uniting two themes: 1) factors affecting the properties of ICT used to communicate to junior doctors; and 2) factors affecting junior doctor interpretation of communication about deteriorating hospital patients. ICT factors include how the combination of physical devices and mode of usage affect user perception of system reliability and efficiency. Junior doctors interpret clinician communication about patient deterioration in terms of risk, which is affected by their contextual responsibility and experience. Perceived risk and contextual experience in turn affects their communication efficiency. Combining these themes gives more options to explain junior doctor communication in this clinical context and to design ICT systems to improve it.


Assuntos
Comunicação , Corpo Clínico Hospitalar , Modelos Organizacionais , Médicos , Hospitais , Humanos , Reprodutibilidade dos Testes
9.
Stud Health Technol Inform ; 264: 1288-1292, 2019 Aug 21.
Artigo em Inglês | MEDLINE | ID: mdl-31438133

RESUMO

Low-back pain (LBP) is a leading cause of disability globally. It is complex and multifactorial, with a miriad of factors interwining and interacting to burden healthcare and individuals. Self-management support is central as part of best-practice to improve outcomes. In recent years, informatics has increasingly been considered to support care; however, due to its complex nature, several factors need to be unpacked in order to consider how technologies might support LBP. The present study utilised semi-structured interviews involving N = 20 participants (n = 10 practicing clinicains and n = 10 indidivuals living with chronic LBP (cLBP)) to collect user-centered perceptions and considerations for key factors central to technology succeeding in supporting cLBP. Six themes were identified: tracking, alterts, user-experience, communication, feedback, and content. Findings lay groundwork for future research aimed at developing technologies that can encourage shared-decision making in supporting cLBP management in a particpatory health paradigm.


Assuntos
Dor Crônica , Dor Lombar , Autogestão , Comunicação , Tomada de Decisões , Humanos , Manejo da Dor
10.
Stud Health Technol Inform ; 266: 115-120, 2019 Aug 08.
Artigo em Inglês | MEDLINE | ID: mdl-31397311

RESUMO

Recent research involving representatives from nursing professional organisations found a lack of governance regarding access and use of mobile technology has led to the maintenance of outdated safety and quality strategies. Current organisational policies and guidelines preclude nurses from aligning with the Australian National Safety and Quality in Health Service Standards. Continuance of the mobile technology paradox,where there is theinability of nurses to access and use mobile technology at point of care, hinders the promotion of positive two-way communication between consumers and nurses as the lack of connectivity impedes opportunities for nurses to partner with consumers to promote participation in their own healthcare, develop mutuality of understanding, and improve health and ehealth literacy. Legitimisation ofthe use of mobile technology at point of care is necessaryto supportmeeting consumer expectations, improve the consumer experience and promote participatory health, while contributing to delivery ofcontemporaryhealthcare.


Assuntos
Assistência à Saúde , Sistemas Automatizados de Assistência Junto ao Leito , Austrália , Comunicação , Serviços de Saúde , Humanos
11.
Stud Health Technol Inform ; 264: 512-515, 2019 Aug 21.
Artigo em Inglês | MEDLINE | ID: mdl-31437976

RESUMO

Medicine has evolved considerably in recent decades in part thanks to information and communication technologies in health (ICTs). However, face-to-face consultations continue to be the predominant model, since alternatives such as telemedicine are still the subject of debate. On the other hand, in some very specific specialties, centralization is relevant, mainly due to the low frequency and prevalence of diseases, as well as the need to have highly specialized professionals, causing problems in terms of accessibility and costs for the health system. In this study we have analyzed the first consultations to an orthopedics oncology service at a tertiary institution and performed an analysis of economic costs was carried out between 2 possible scenarios: face-to-face consultations versus telemedicine. Analyzing the 2 scenarios, there would be a cost-benefit in the use of telemedicine leading to a decrease in healthcare cost between 12.2% and 72%.


Assuntos
Agendamento de Consultas , Telemedicina , Comunicação , Análise Custo-Benefício , Ortopedia
12.
Stud Health Technol Inform ; 264: 1972-1973, 2019 Aug 21.
Artigo em Inglês | MEDLINE | ID: mdl-31438434

RESUMO

Globally, there is an expanding elderly population, and families are finding it increasingly challenging to coordinate care for their older family members. This paper reports on the usage patterns of InfoSAGE, an online private social network that has tools for communication and care coordination for elders and their families. This descriptive analysis describes the types of family networks using the platform and types of functionality most used by elders and their family members.


Assuntos
Comunicação , Família , Idoso , Idoso Fragilizado , Humanos
13.
Stud Health Technol Inform ; 264: 2005-2006, 2019 Aug 21.
Artigo em Inglês | MEDLINE | ID: mdl-31438451

RESUMO

Family health history (FHx) is vital in early detection of genetic diseases. This research studied two different FHx collection interface and compared them based on the IBM CSUQ usability metrics. We found the conversational interface to be significantly better in terms of overall satisfaction, system usefulness, interface quality and information quality than the traditional interface.


Assuntos
Comunicação , Interface Usuário-Computador , Anamnese
14.
Stud Health Technol Inform ; 264: 808-812, 2019 Aug 21.
Artigo em Inglês | MEDLINE | ID: mdl-31438036

RESUMO

Care coordination has received attention as an opportunity to improve healthcare delivery. Current work to quantify provider coordination has primarily relied on identifying shared patients, but neglects to understand communication patterns. We applied social network analysis to electronic health record (EHR) secure messaging data to compare networks of providers who share patients and networks of providers who communicate about patients. We studied 2175 stage I-III breast cancer patients who received outpatient treatment from 1758 providers at a large academic medical center in the southeastern United States. Patients in our cohort were involved in 94324 appointments and were the subject of 307144 message threads. We found that 9.9% of provider-provider pairs that shared patients were mutually involved in electronic communication about their patients. EHR data sources can be used to evaluate provider communication across a clinical enterprise, which can help identify opportunities to improve collaboration and reduce provider burnout.


Assuntos
Neoplasias da Mama , Correio Eletrônico , Estudos de Coortes , Comunicação , Registros Eletrônicos de Saúde , Humanos
15.
Stud Health Technol Inform ; 264: 818-823, 2019 Aug 21.
Artigo em Inglês | MEDLINE | ID: mdl-31438038

RESUMO

Recent advancements in mediated communication technologies enable unfettered communication between patients and their providers. We explore patients' utilization of different direct and mediated communication modalities in a Direct Primary Care (DPC) clinic and the patient characteristics that predict their communication behavior patterns. Based on this knowledge, we developed 2 patient personas that explicate the nuances of patients who tend to prefer visiting the clinic in person versus those who use mediated modalities more often. We hope this study may inform future work in understanding and supporting patient-provider communication in a new technical environment. The results suggest that patients and their health team alike may be incentivized to voluntarily adopt and utilize multi-modality communication in a DPC setting.


Assuntos
Comunicação , Atenção Primária à Saúde , Humanos
16.
Codas ; 31(4): e20180177, 2019 Aug 22.
Artigo em Português, Inglês | MEDLINE | ID: mdl-31460569

RESUMO

PURPOSE: This study aimed to present findings on language, behavior, and neurodevelopment in a girl diagnosed with Angelman Syndrome, evaluated when she was three and eight years old. METHODS: The following evaluation instruments were used: Observation of Communication Behavior, Early Language Milestone (ELM) Scale, and Denver Developmental Screening Test, 2nd edition (DDST-II). RESULTS: In this case report, presence of AS phenotype signals such as wide mouth and wide-spaced teeth, tongue thrusting, strabismus, up slanting palpebral fissures, and sialorrhea are verified. Expressive and receptive deficits were verified in the language assessment, with the absence of orality and loss of comprehension with very similar performances in both evaluations. The ELM and DDST-II tests indicated severe impairment of all abilities evaluated at both three and eight years of age. Performance was quite similar in both evaluations in all areas of child development. Little progress was observed over time despite the great therapeutic and educational investment. CONCLUSION: The presence of a complex scenario such as AS demands high complexity clinical needs, a situation that is worsened due to scarcity of therapeutic resources that could minimize the harmful impacts of AS and culminate in increased quality of life for the AS population and their families.


Assuntos
Síndrome de Angelman/reabilitação , Transtornos do Neurodesenvolvimento/reabilitação , Síndrome de Angelman/diagnóstico , Síndrome de Angelman/psicologia , Criança , Desenvolvimento Infantil , Comunicação , Feminino , Humanos , Desenvolvimento da Linguagem , Testes de Linguagem , Transtornos do Neurodesenvolvimento/diagnóstico , Transtornos do Neurodesenvolvimento/psicologia , Testes Neuropsicológicos , Desempenho Psicomotor
17.
Stud Health Technol Inform ; 265: 175-180, 2019 Aug 09.
Artigo em Inglês | MEDLINE | ID: mdl-31431595

RESUMO

Patient-centered healthcare requires development of materials for health consumers that increase health literacy, enrich the provider-patient dialog, empower shared decision-making, and improve downstream outcomes. Unfortunately, evidence suggests current methods of communication, including print and electronic media, are inadequate. The Narrative Theory of Learning is grounded in the premise that humans define their experiences and form cognitive structures (e.g., new learning, novel concepts) within the context of narratives. Simply put, humans remember stories better than fragmented bits of information. Therefore, we propose leveraging the power of narratives and stories to improve the efficacy and impact of consumer health applications. We describe several examples of future technologies that could incorporate narrative techniques and present a call to action for future research and development.


Assuntos
Alfabetização em Saúde , Participação do Paciente , Comunicação , Tomada de Decisões , Humanos , Narração
18.
Pan Afr Med J ; 33(Suppl 2): 4, 2019.
Artigo em Inglês | MEDLINE | ID: mdl-31402964

RESUMO

Introduction: Lessons learned from the Ebola virus disease (EVD) outbreak enabled Liberia to develop a health plan for strengthening public health capacity against potential public health threats. risk communication is one of the core pillars that provide life-saving information and knowledge for the public to take preventive and proactive actions against public health threats. These were applied in response to the post-ebola meningococcal septicemia and meningitis outbreaks in Sinoe and Grand Kru counties. This paper documents risk communication experiences in these post-ebola outbreaks in Liberia. Methods: Risk Communication and health promotion strategies were deployed in developing response plans and promptly disseminating key messages to affected communities to mitigate the risks. Other strategies included engagement of community leaders, partnership with the media and dissemination of messages through the community radios, active monitoring community risk perceptions and compliance, rumor management, mobile stage and interpersonal communication (IPC) during the Meningococcal disease outbreaks in Sinoe and Grand Kru counties. Results: In Sinoe, about 36,891 households or families in 10 health districts were reached through IPC and dialogue. Circulating rumors such as "Ebola" was the cause of deaths was timely and promptly mitigated. There was increased trust and adherence to health advice including prompt reporting of sick people to the nearest health facility in the two counties. Conclusion: Risk communication and health promotion encouraged community support and involvement in any response to public threats and events. No doubt, risk communication and health promotion play an important role in preparedness and response to public health emergencies.


Assuntos
Comunicação , Surtos de Doenças/prevenção & controle , Doença pelo Vírus Ebola/epidemiologia , Infecções Meningocócicas/epidemiologia , Fortalecimento Institucional , Promoção da Saúde/métodos , Humanos , Libéria/epidemiologia , Saúde Pública , Risco
19.
Pan Afr Med J ; 33(Suppl 2): 10, 2019.
Artigo em Inglês | MEDLINE | ID: mdl-31402968

RESUMO

Introduction: in spite of the efforts and resources committed by the division of infectious disease and epidemiology (DIDE) of the national public health institute of Liberia (NPHIL)/Ministry of health to strengthening integrated disease surveillance and response (IDSR) across the country, quality data management system remains a challenge to the Liberia NPHIL/MoH (Ministry of health), with incomplete and inconsistent data constantly being reported at different levels of the surveillance system. As part of the monitoring and evaluation strategy for IDSR continuous improvement, data quality assessment (DQA) of the IDSR system to identify successes and gaps in the disease surveillance information system (DSIS) with the aim of ensuring data accuracy, reliability and credibility of generated data at all levels of the health system; and to inform an operational plan to address data quality needs for IDSR activities is required. Methods: multi-stage cluster sampling that included stage 1: simple random sample (SRS) of five counties, stage 2: simple random sample of two districts and stage 3: simple random sample of three health facilities was employed during the study pilot assessment done in Montserrado County with Liberia institute of bio medical research (LIBR) inclusive. A total of thirty (30) facilities was targeted, twenty nine (29) of the facilities were successfully audited: one hospital, two health centers, twenty clinics and respondents included: health facility surveillance focal persons (HFSFP), zonal surveillance officers (ZSOs), district surveillance officers (DSOs) and County surveillance officers (CSOs). Results: the assessment revealed that data use is limited to risk communication and sensitization, no examples of use of data for prioritization or decision making at the subnational level. The findings indicated the following: 23% (7/29) of health facilities having dedicated phone for reporting, 20% (6/29) reported no cell phone network, 17% (5/29) reported daily access to internet, 56.6% (17/29) reported a consistent supply of electricity, and no facility reported access to functional laptop. It was also established that 40% of health facilities have experienced a stock out of laboratory specimens packaging supplies in the past year. About half of the surveyed health facilities delivered specimens through riders and were assisted by the DSOs. There was a large variety in the reported packaging process, with many staff unable to give clear processes. The findings during the exercise also indicated that 91% of health facility staff were mentored on data quality check and data management including the importance of the timeliness and completeness of reporting through supportive supervision and mentorship; 65% of the health facility assessed received supervision on IDSR core performance indicator; and 58% of the health facility officer in charge gave feedback to the community level. Conclusion: public health is a data-intensive field which needs high-quality data and authoritative information to support public health assessment, decision-making and to assure the health of communities. Data quality assessment is important for public health. In this review completeness, accuracy, and timeliness were the three most-assessed attributes. Quantitative data quality assessment primarily used descriptive surveys and data audits, while qualitative data quality assessment methods include primarily interviews, questionnaires administration, documentation reviews and field observations. We found that data-use and data-process have not been given adequate attention, although they were equally important factors which determine the quality of data. Other limitations of the previous studies were inconsistency in the definition of the attributes of data quality, failure to address data users' concerns and a lack of triangulation of mixed methods for data quality assessment. The reliability and validity of the data quality assessment were rarely reported. These gaps suggest that in the future, data quality assessment for public health needs to consider equally the three dimensions of data quality, data use and data process. Measuring the perceptions of end users or consumers towards data quality will enrich our understanding of data quality issues. Data use is limited to risk communication and sensitization, no examples of use of data for prioritization or decision making at the sub national level.


Assuntos
Controle de Doenças Transmissíveis/métodos , Doenças Transmissíveis/epidemiologia , Vigilância em Saúde Pública/métodos , Saúde Pública , Análise por Conglomerados , Comunicação , Confiabilidade dos Dados , Instalações de Saúde/estatística & dados numéricos , Humanos , Libéria/epidemiologia , Projetos Piloto , Reprodutibilidade dos Testes , Risco , Inquéritos e Questionários
20.
Stud Health Technol Inform ; 264: 1710-1711, 2019 Aug 21.
Artigo em Inglês | MEDLINE | ID: mdl-31438305

RESUMO

Using telemedicine to provide care is an attractive alternative for patients. However, few studies have examined the demographics of the patients using virtual care. In this paper, we investigate the demographic features of the Virtual Care (VC) users; Age, gender, roles, and preferred methods of communication are studied.


Assuntos
Comunicação , Telemedicina , Demografia , Humanos , Interface Usuário-Computador
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