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1.
Int J Qual Stud Health Well-being ; 17(1): 2015058, 2022 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-34905464

RESUMO

PURPOSE: Comfort Measures Only (CMO) is a label commonly used in the USA that guides the care of a hospitalized patient who is likely to die. The CMO label has unclear and inconsistent meaning, calling to question the experiences and practices of hospital-basedalliative care providers. The purpose of this study was to understand the meaning of CMO as experienced by hospital-based palliative care providers. METHODS: Using hermeneutic phenomenological research, we investigated eight palliative care experts' common experiences and shared practices of using CMO order sets in their hospital work settings. Data were collected through individual face-to-face interviews, and were analysed by an interpretive team. RESULTS: Four related themes and one constitutive pattern of "Dealing with Dying" reflect the meaning of comfort-measures-only practices. The themes are: comfort care as morphine drip; enacting a traditional binary pattern of care: all or nothing; supporting patient and family at end of life vs. CMO; and evolving culture-a better way to care for the dying. CONCLUSION: Palliative care providers and non-palliative clinicians understood and practiced end of life care in sharply different ways with dying in hospital settings, raising new questions that analyse, modify and extend extant knowledge.


Assuntos
Cuidados Paliativos na Terminalidade da Vida , Assistência Terminal , Hospitais , Humanos , Cuidados Paliativos , Conforto do Paciente
2.
Enferm. foco (Brasília) ; 12(3): 429-435, dez. 2021.
Artigo em Português | LILACS, BDENF - Enfermagem | ID: biblio-1352537

RESUMO

Objetivo: identificar o conhecimento dos profissionais de enfermagem sobre cuidados paliativos nos setores de clínica médica. Metodologia: estudo qualitativo, realizado em um hospital público no estado do Rio de Janeiro, Brasil. Foram entrevistados 20 profissionais de enfermagem nos meses de janeiro e fevereiro de 2019. Os dados foram analisados através da análise de conteúdo temática. Resultados: Evidenciou-se a compreensão dos profissionais de enfermagem sobre os cuidados paliativos; fatores intervenientes a realização dos cuidados paliativos de qualidade e o conhecimento dos profissionais de enfermagem acerca das normatizações e legislações referentes aos cuidados paliativos. Conclusão: os profissionais de enfermagem possuem uma percepção contraditória sobre os cuidados paliativos com ocorrência de fatores intervenientes a implementação dos cuidados paliativos e um desconhecimento a respeito das legislações e normas que regem os cuidados paliativos. (AU)


Objective: To identify the knowledge of nursing professionals about palliative care in the sectors of medical clinic. Methods: Qualitative study, carried out in a public hospital in the state of Rio de Janeiro, Brazil. Twenty nursing professionals were interviewed in the months of January and February 2019. The data were analyzed through thematic content analysis. Results: The nursing professionals' understanding of palliative care became evident; intervening factors the provision of quality palliative care and the knowledge of nursing professionals about the standards and legislation regarding palliative care. Conclusion: Nursing professionals have a contradictory perception about palliative care with the occurrence of intervening factors in the implementation of palliative care and a lack of knowledge about the laws and regulations that govern palliative care. (AU)


Objetivo: Identificar el conocimiento de los profesionales de enfermería sobre cuidados paliativos en los sectores de la clínica médica. Metodos: Estudio cualitativo, realizado en un hospital público del estado de Río de Janeiro, Brasil. Veinte profesionales de enfermería fueron entrevistados en los meses de enero y febrero de 2019. Los datos se analizaron mediante análisis de contenido temático. Resultados: La comprensión de los profesionales de enfermería sobre los cuidados paliativos se hizo evidente; los factores intervinientes son la provisión de cuidados paliativos de calidad y el conocimiento de los profesionales de enfermería sobre los estándares y la legislación sobre cuidados paliativos. Conclusión: Los profesionales de enfermería tienen una percepción contradictoria sobre los cuidados paliativos con la aparición de factores intervinientes en la implementación de los cuidados paliativos y la falta de conocimiento sobre las leyes y regulaciones que rigen los cuidados paliativos. (AU)


Assuntos
Cuidados Paliativos , Cuidados Paliativos na Terminalidade da Vida , Enfermagem de Cuidados Paliativos na Terminalidade da Vida , Conforto do Paciente
3.
Clin Nurse Spec ; 35(6): 303-313, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-34606210

RESUMO

PURPOSE: This quality improvement project created a guide for critical care providers transitioning patients to comfort measures only encouraging communication, collaboration, and shared decision making; ensuring management of patients' end-of-life symptoms and needs; and enhancing provider satisfaction by improving structure and consistency when transitioning patients. DESCRIPTION OF THE PROJECT: Interviews conducted with staff in intensive care units revealed opportunities to improve structure and processes of transitioning patients at the end of life. A subcommittee of experts designed a checklist to facilitate interdisciplinary conversations. Impact on provider satisfaction and symptom management was assessed. Presurveys circulated used a Research Electronic Data Capture tool. A checklist was implemented for 3 months, and then postsurveys were sent. Charts were audited to identify improvement in symptom management and compared with retrospective samples. OUTCOMES: Clinical improvements were seen in communication (12%), collaboration (25%), shared decision making (22%), and order entry time (17%). In addition, 72% agreed the checklist improved structure and consistency; 69% reported improved communication, collaboration, and shared decision making; 61% felt it improved knowledge/understanding of patient needs; and 69% agreed it improved management of patient symptoms. CONCLUSION: After checklist implementation, staff felt more involved and more comfortable, and reported more clarity in transitioning patients; no improvement in patient outcomes was realized.


Assuntos
Lista de Checagem , Enfermagem de Cuidados Críticos/organização & administração , Recursos Humanos de Enfermagem no Hospital/psicologia , Conforto do Paciente/organização & administração , Satisfação Pessoal , Comunicação , Tomada de Decisão Compartilhada , Humanos , Unidades de Terapia Intensiva , Relações Interprofissionais , Pesquisa em Avaliação de Enfermagem , Melhoria de Qualidade
4.
BMJ Open Qual ; 10(3)2021 09.
Artigo em Inglês | MEDLINE | ID: mdl-34588188

RESUMO

Poor communication contributes to morbidity and mortality, not only in general medical care but also at the end oflife. This leads to issues relating to symptom control and quality of care. As part of an international project focused on bereaved relatives' perceptions about quality of end-of-life care, we undertook a quality improvement (QI) project in a general hospital in Córdoba city, Argentina.By using two iterative QI cycles, we launched an educational process and introduced a clinical mnemonic tool, I-PASS, during ward handovers. The introduction of the handover tool was intended to improve out-of-hours care.Our clinical outcome measure was ensuring comfort in at least 60% of dying patients, as perceived by family carers, during night shifts in an oncology ward during the project period (March-May 2019). As process-based measures, we selected the proportion of staff completing the I-PASS course (target 60%) and using I-PASS in at least 60% of handovers. Participatory action research was the chosen method.During the study period, 13/16 dying patients were included. We received 23 reports from family carers about the level of patient comfort during the previous night.Sixty-five per cent of healthcare professionals completed the I-PASS training. The percentage of completed handovers increased from 60% in the first Plan-Do-Study-Act (PDSA) cycle to 68% in the second one.The proportion of positive reports about patient comfort increased from 63% (end of the first PDSA cycle) to 87% (last iterative analysis after 3 months). Moreover, positive responses to 'Did doctors and nurses do enough for the patient to be comfortable during the night?' increased from 75% to 100% between the first and the second QI cycle.In conclusion, we achieved the successful introduction and staff training for use of the I-PASS tool. This led to improved perceptions by family carers, about comfort for dying patients.


Assuntos
Transferência da Responsabilidade pelo Paciente , Assistência Terminal , Morte , Humanos , Conforto do Paciente , Melhoria de Qualidade
5.
Clin Oral Investig ; 25(12): 6517-6531, 2021 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-34568955

RESUMO

OBJECTIVES: The primary aim of this systematic review was to evaluate whether intraoral scanning (IOS) is able to reduce working time and improve patient-reported outcome measures (PROMs) compared to conventional impression (CI) techniques, taking into account the size of the scanned area. The secondary aim was to verify the effectiveness of IOS procedures based on available prosthodontic outcomes. MATERIALS AND METHODS: Electronic and manual literature searches were performed to collect evidence concerning the outcomes of IOS and CI performed during the treatment of partially and complete edentulous patients for tooth- or implant-supported restorations. Qualitative analysis was conducted to evaluate the time efficiency and PROMs produced by the two different techniques. Clinical prosthodontic outcomes were analyzed among the included studies when available. RESULTS: Seventeen studies (9 randomized controlled trials and 8 prospective clinical studies) were selected for qualitative synthesis. The 17 included studies provided data from 430 IOS and 370 CI performed in 437 patients. A total of 7 different IOS systems and their various updated versions were used for digital impressions. The results demonstrated that IOS was overall faster than CI independent of whether quadrant or complete-arch scanning was utilized, regardless of the nature of the restoration (tooth or implant supported). IOS was generally preferred over CI regardless of the size of the scanned area and nature of the restoration (tooth- or implant-supported). Similar prosthodontic outcomes were reported for workflows implementing CI and IOS. CONCLUSIONS: Within the limitations of this systematic review, IOS is faster than CI, independent of whether a quadrant or complete arch scan is conducted. IOS can improve the patient experience measured by overall preference and comfort and is able to provide reliable prosthodontic outcomes. CLINICAL RELEVANCE: Reduced procedure working time associated with the use of IOS can improve clinical efficiency and the patient experience during impression procedures. Patient-reported outcome measures (PROMs) are an essential component of evidence-based dental practice as they allow the evaluation of therapeutic modalities from the perspective of the patient. IOS is generally preferred by patients over conventional impressions.


Assuntos
Implantes Dentários , Conforto do Paciente , Desenho Assistido por Computador , Técnica de Moldagem Odontológica , Humanos , Estudos Prospectivos , Prostodontia
6.
rev. cuid. (Bucaramanga. 2010) ; 12(3): 1-18, 20210821.
Artigo em Espanhol | LILACS, BDENF - Enfermagem, COLNAL | ID: biblio-1343502

RESUMO

Introducción: la comodidad componente de calidad de vida, busca la conservación y recuperación de la salud. El objetivo fue comprender el significado de la comodidad del paciente con enfermedad crónica hospitalizado en Medellín-Colombia. Material y Métodos: investigación etnográfica particularista, con 14 participantes, a través de entrevistas semiestructuradas y observación. Análisis se realizó con herramientas de la teoría fundamentada, se dio lectura y relectura, codificación de datos, y se generaron categorías/subcategorías hasta la saturación teórica a través del muestreo teórico. Resultados: categorías: Interactuando con otros: El compañero del lado y La muerte de otro. Interactuando con el equipo de salud: Atributos de la atención; y Entre la comodidad e incomodidad con los que atienden. Elementos: comunicación e información. Discusión: la comodidad está dada en parte por la interacción que los pacientes tienen con el equipo de salud, en especial con enfermería. Igual se comprendió lo que generan comodidad e incomodidad en los pacientes. Los atributos personales como la empatía, la competencia profesional y el uso de un lenguaje adecuado son los más nombrados. Igualmente, la información y la comunicación son vitales en la percepción de comodidad. Conclusiones: el significado que los pacientes le atribuyen a la comodidad está dada por la interacción con el equipo de salud, sus atributos personales e información que se brinda sobre su estado y evolución de salud como de los efectos de su tratamiento. Entre los que causan incomodidad: no ser escuchados, la actitud negativa del personal de enfermería, no atender su llamado oportunamente y presenciar la muerte del compañero.


Introduction: comfort, a quality of life component, seeks the preservation and recovery of health. Objective: was to understand the meaning of comfort in patients with chronic disease hospitalized in Medellin-Colombia. Material and Methods: particularistic ethnographic research, with 14 participants, through semi-structured interviews and observation. Analysis was carried out with grounded theory tools, reading and rereading, data coding, and categories/subcategories were generated until theoretical saturation through theoretical sampling. Results: Categories: Interacting with others: The partner on the side and The death of another. Interacting with the health care team: Attributes of care; and Between comfort and discomfort with caregivers. Elements: communication and information. Discussion: comfort is given in part by the interaction that patients have with the health care team, especially with nursing. It was also understood what generates comfort and discomfort in patients. Personal attributes such as empathy, professional skills and the use of appropriate language are the most frequently mentioned. Likewise, information and communication are vital in the perception of comfort. Conclusions: the meaning that patients attribute to comfort is given by the interaction with the healthcare team, their personal attributes and the information provided about their health status and evolution as well as the effects of their treatment. Among those that cause discomfort: not being listened to, the negative attitude of the nursing staff, not attending to their call in a timely manner and witnessing the death of a partner.


Introdução: o conforto, um componente da qualidade de vida, busca a preservação e a recuperação da saúde. O objetivo era compreender o significado do conforto em pacientes com doenças crônicas hospitalizados em Medellín-Colômbia. Material e Métodos: pesquisa etnográfica particularista, com 14 participantes, mediante entrevistas semiestruturadas e observação. A análise foi realizada com ferramentas da teoria fundamentada, leitura e releitura, codificação de dados, e categorias/subcategorias foram geradas até a saturação teórica através de amostragem teórica. Resultados: Categorias: Interagindo com outros: O parceiro ao lado e A morte de outro; Interagindo com a equipe de saúde: Atributos do cuidado; e Entre conforto e desconforto com os cuidadores. Elementos: comunicação e informação. Discussão: o conforto é dado em parte pela interação que os pacientes têm com a equipe de saúde, especialmente com a enfermagem. Também foi entendido o que gera conforto e desconforto nos pacientes. Atributos pessoais como empatia, competência profissional e o uso de linguagem apropriada são os mais mencionados. Da mesma forma, a informação e a comunicação são vitais na percepção do conforto. Conclusões: O significado que os pacientes atribuem ao conforto é dado pela interação com a equipe de saúde, seus atributos pessoais e as informações fornecidas sobre o estado de saúde e evolução, assim como os efeitos de seu tratamento. Entre aqueles que causam desconforto: não ser escutados, a atitude negativa do pessoal de enfermagem, não atender prontamente seu chamado e testemunhar a morte do colega.


Assuntos
Humanos , Masculino , Feminino , Doença Crônica , Conforto do Paciente , Hospitalização
7.
rev. cuid. (Bucaramanga. 2010) ; 12(3): 1-14, 20210821.
Artigo em Português | LILACS, BDENF - Enfermagem, COLNAL | ID: biblio-1343783

RESUMO

Introdução: o conforto, um componente da qualidade de vida, busca a preservação e a recuperação da saúde. O objetivo era compreender o significado do conforto em pacientes com doenças crônicas hospitalizados em Medellín-Colômbia. Material e Métodos: pesquisa etnográfica particularista, com 14 participantes, mediante entrevistas semiestruturadas e observação. A análise foi realizada com ferramentas da teoria fundamentada, leitura e releitura, codificação de dados, e categorias/subcategorias foram geradas até a saturação teórica através de amostragem teórica. Resultados: Categorias: Interagindo com outros: O parceiro ao lado e A morte de outro; Interagindo com a equipe de saúde: Atributos do cuidado; e Entre conforto e desconforto com os cuidadores. Elementos: comunicação e informação. Discussão: o conforto é dado em parte pela interação que os pacientes têm com a equipe de saúde, especialmente com a enfermagem. Também foi entendido o que gera conforto e desconforto nos pacientes. Atributos pessoais como empatia, competência profissional e o uso de linguagem apropriada são os mais mencionados. Da mesma forma, a informação e a comunicação são vitais na percepção do conforto. Conclusões: O significado que os pacientes atribuem ao conforto é dado pela interação com a equipe de saúde, seus atributos pessoais e as informações fornecidas sobre o estado de saúde e evolução, assim como os efeitos de seu tratamento. Entre aqueles que causam desconforto: não ser escutados, a atitude negativa do pessoal de enfermagem, não atender prontamente seu chamado e testemunhar a morte do colega.


Introduction: comfort, a quality of life component, seeks the preservation and recovery of health. Objective: was to understand the meaning of comfort in patients with chronic disease hospitalized in Medellin-Colombia. Material and Methods: particularistic ethnographic research, with 14 participants, through semi-structured interviews and observation. Analysis was carried out with grounded theory tools, reading and rereading, data coding, and categories/subcategories were generated until theoretical saturation through theoretical sampling. Results: Categories: Interacting with others: The partner on the side and The death of another. Interacting with the health care team: Attributes of care; and Between comfort and discomfort with caregivers. Elements: communication and information. Discussion: comfort is given in part by the interaction that patients have with the health care team, especially with nursing. It was also understood what generates comfort and discomfort in patients. Personal attributes such as empathy, professional skills and the use of appropriate language are the most frequently mentioned. Likewise, information and communication are vital in the perception of comfort. Conclusions: the meaning that patients attribute to comfort is given by the interaction with the healthcare team, their personal attributes and the information provided about their health status and evolution as well as the effects of their treatment. Among those that cause discomfort: not being listened to, the negative attitude of the nursing staff, not attending to their call in a timely manner and witnessing the death of a partner.


Introducción: la comodidad componente de calidad de vida, busca la conservación y recuperación de la salud. El objetivo fue comprender el significado de la comodidad del paciente con enfermedad crónica hospitalizado en Medellín-Colombia. Material y Métodos: investigación etnográfica particularista, con 14 participantes, a través de entrevistas semiestructuradas y observación. Análisis se realizó con herramientas de la teoría fundamentada, se dio lectura y relectura, codificación de datos, y se generaron categorías/subcategorías hasta la saturación teórica a través del muestreo teórico. Resultados: categorías: Interactuando con otros: El compañero del lado y La muerte de otro. Interactuando con el equipo de salud: Atributos de la atención; y Entre la comodidad e incomodidad con los que atienden. Elementos: comunicación e información. Discusión: la comodidad está dada en parte por la interacción que los pacientes tienen con el equipo de salud, en especial con enfermería. Igual se comprendió lo que generan comodidad e incomodidad en los pacientes. Los atributos personales como la empatía, la competencia profesional y el uso de un lenguaje adecuado son los más nombrados. Igualmente, la información y la comunicación son vitales en la percepción de comodidad. Conclusiones: el significado que los pacientes le atribuyen a la comodidad está dada por la interacción con el equipo de salud, sus atributos personales e información que se brinda sobre su estado y evolución de salud como de los efectos de su tratamiento. Entre los que causan incomodidad: no ser escuchados, la actitud negativa del personal de enfermería, no atender su llamado oportunamente y presenciar la muerte del compañero.


Assuntos
Humanos , Masculino , Feminino , Doença Crônica , Conforto do Paciente , Hospitalização
9.
Sex Reprod Health Matters ; 29(1): 1932702, 2021 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-34165395

RESUMO

Antiretroviral therapy effectively prevents sexual and vertical transmission of HIV. Yet, some women living with HIV report having unmet needs for reproductive health care. This study measured the prevalence of women discussing reproductive goals with any current healthcare provider and assessed the effect of the current HIV care provider's gender on such discussions and whether comfort was a mediator. We analysed baseline and 18-month survey data from 533 women living with HIV enrolled in the Canadian HIV Women's Sexual and Reproductive Health Cohort Study (CHIWOS) (2013-2017), a community-based participatory study, restricting the analysis to participants aged 16-45 years. We used causal mediation analysis to estimate direct and indirect effects of the gender of one's HIV care provider on reproductive discussions, incorporating mediating and interaction effects of women having any provider with whom they felt comfortable discussing reproductive goals. Between the baseline and 18-month follow-up surveys, 34.3% (183/533) of women discussed their reproductive goals with a healthcare provider. Having a woman HIV care provider was associated with a 1.18 excess relative risk (ERR) of discussion (95%CI: 0.15, 2.20). The mediating effect of comfort was primarily explained by the fact that those participants with women providers felt more comfortable discussing their reproductive goals compared to participants with men providers, accounting for 66% (95%CI: 32%, 99%) of the total effect. Findings support that HIV provider gender affects women's comfort and whether they discuss reproductive goals, which must be acknowledged and addressed in care delivery.


Assuntos
Infecções por HIV , Conforto do Paciente , Canadá , Estudos de Coortes , Feminino , Objetivos , Infecções por HIV/tratamento farmacológico , Infecções por HIV/epidemiologia , Pessoal de Saúde , Humanos , Masculino
10.
Pediatr Rheumatol Online J ; 19(1): 98, 2021 Jun 29.
Artigo em Inglês | MEDLINE | ID: mdl-34187503

RESUMO

BACKGROUND: Subcutaneous anakinra is an interleukin-1 inhibitor used to treat juvenile idiopathic arthritis. Recent reports suggest anakinra can be a valuable addition to the treatment of COVID-19 associated cytokine storm syndrome and the related multisystem inflammatory syndrome (MIS-C) in children. Herein, we describe our experience with intravenously administered anakinra. FINDINGS: 19 Patients (9 male) received intravenous (IV) anakinra for treatment of macrophage activation syndrome (MAS) secondary to systemic lupus erythematosus (SLE), systemic JIA (SJIA) or secondary hemophagocytic lymphohistiocytosis (sHLH). In most cases the general trend of the fibrinogen, ferritin, AST, and platelet count (Ravelli criteria) improved after initiation of IV anakinra. There were no reports of anaphylaxis or reactions associated with administration of IV anakinra. CONCLUSION: Intravenous administration of anakinra is an important therapeutic option for critically ill patients with MAS/HLH. It is also beneficial for those with thrombocytopenia, subcutaneous edema, neurological dysfunction, or very young, hospitalized patients who need multiple painful subcutaneous injections.


Assuntos
Administração Intravenosa/métodos , COVID-19/tratamento farmacológico , Proteína Antagonista do Receptor de Interleucina 1/administração & dosagem , Lúpus Eritematoso Sistêmico , Linfo-Histiocitose Hemofagocítica , Síndrome de Ativação Macrofágica , Síndrome de Resposta Inflamatória Sistêmica/tratamento farmacológico , Antirreumáticos/administração & dosagem , COVID-19/epidemiologia , COVID-19/imunologia , Criança , Criança Hospitalizada/psicologia , Estado Terminal/psicologia , Estado Terminal/terapia , Síndrome da Liberação de Citocina/tratamento farmacológico , Síndrome da Liberação de Citocina/virologia , Feminino , Humanos , Lúpus Eritematoso Sistêmico/complicações , Lúpus Eritematoso Sistêmico/imunologia , Lúpus Eritematoso Sistêmico/terapia , Linfo-Histiocitose Hemofagocítica/complicações , Linfo-Histiocitose Hemofagocítica/imunologia , Linfo-Histiocitose Hemofagocítica/terapia , Síndrome de Ativação Macrofágica/sangue , Síndrome de Ativação Macrofágica/tratamento farmacológico , Síndrome de Ativação Macrofágica/etiologia , Masculino , Conforto do Paciente/métodos , Estudos Retrospectivos , SARS-CoV-2
12.
J Infect Public Health ; 14(7): 839-844, 2021 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-34118733

RESUMO

PURPOSE: Little is known regarding the burden of infections and clinical practice towards hospitalized patients with limits on life-sustaining measures. We aim to describe the infectious syndromes, clinical care, the emergence of multi-drug resistant organisms and outcomes in this population. PATIENTS AND METHODS: Retrospective cohort of patients labeled as support or comfort care in a tertiary care center between 2016-2019. RESULTS: A total of 347 patients were included with a mean age of 68.5 years, who were predominantly males (59.94%), bedbound (69.74%), on tube feeding (66.86%), and required indwelling urinary catheters (61.96%). The total number of admissions during the first year was 498, with the mean length of stay being 30 days. The number of infectious syndromes identified during that period was 821episodes, with a mean of 2 infectious syndromes per admission. The most common infection identified was pneumonia (41.66%) followed by urinary tract infections (27.16%). A total of 3891 microbiological cultures were taken with a mean of 5 cultures per infectious syndrome. The most commonly identified pathogens were Gram-negative bacteria (61.03%), with a high rate of multidrug-resistant organisms (MDROs) (48.53%). The one-year mortality was 86.4%. Using carbapenem antibiotic and pneumonia were the independent predictors used for the MDROs. CONCLUSION: Our study reflects the high burden of infections, antimicrobial resistance, and hospital admissions among a population with limited life expectancy. A consensus regarding investigating and managing of infectious syndromes, and antimicrobial prescription is needed to reduce the harms associated with overuse of antimicrobials.


Assuntos
Antibacterianos , Infecção Hospitalar , Idoso , Antibacterianos/uso terapêutico , Infecção Hospitalar/tratamento farmacológico , Bactérias Gram-Negativas , Humanos , Masculino , Conforto do Paciente , Estudos Retrospectivos , Centros de Atenção Terciária
13.
Mayo Clin Proc ; 96(5): 1276-1287, 2021 05.
Artigo em Inglês | MEDLINE | ID: mdl-33958058

RESUMO

Over the past 40 years, the medical and surgical management of congenital heart disease has advanced considerably. However, substantial room for improvement remains for certain lesions that have high rates of morbidity and mortality. Although most congenital cardiac conditions are well tolerated during fetal development, certain abnormalities progress in severity over the course of gestation and impair the development of other organs, such as the lungs or airways. It follows that intervention during gestation could potentially slow or reverse elements of disease progression and improve prognosis for certain congenital heart defects. In this review, we detail specific congenital cardiac lesions that may benefit from fetal intervention, some of which already have documented improved outcomes with fetal interventions, and the state-of-the-science in each of these areas. This review includes the most relevant studies from a PubMed database search from 1970 to the present using key words such as fetal cardiac, fetal intervention, fetal surgery, and EXIT procedure. Fetal intervention in congenital cardiac surgery is an exciting frontier that promises further improvement in congenital heart disease outcomes. When fetuses who can benefit from fetal intervention are identified and appropriately referred to centers of excellence in this area, patient care will improve.


Assuntos
Terapias Fetais/métodos , Cardiopatias Congênitas/diagnóstico , Cardiopatias Congênitas/terapia , Conforto do Paciente , Assistência Perinatal/métodos , Diagnóstico Pré-Natal , Feminino , Humanos , Recém-Nascido , Cuidados Paliativos/métodos , Gravidez , Prognóstico
15.
J Soc Work End Life Palliat Care ; 17(2-3): 173-185, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-33843496

RESUMO

Comfort care homes are community-run, residential homes that provide end-of-life care to terminally ill individuals who lack safe, secure housing and a reliable caregiver system. As nonprofit, non-medical facilities, these homes have faced both new and magnified challenges due to the COVID-19 pandemic. This article highlights the value of collaborative interagency partnerships and shares reflections on the unique pandemic pressures faced by comfort care homes. Innovative ideas for improving community-based end-of-life care and implications for social work practice are included.


Assuntos
COVID-19/terapia , Cuidadores/psicologia , Casas de Saúde/organização & administração , Conforto do Paciente/métodos , Assistência Terminal/métodos , COVID-19/psicologia , Competência Clínica , Humanos , Cuidados Paliativos/métodos , Assistência Terminal/psicologia
16.
J Am Heart Assoc ; 10(8): e019785, 2021 04 20.
Artigo em Inglês | MEDLINE | ID: mdl-33823605

RESUMO

Background Stroke remains one of the leading causes of disability and death in the United States. We characterized 10-year nationwide trends in use of comfort care interventions (CCIs) among patients with ischemic stroke, particularly pertaining to acute thrombolytic therapy with intravenous tissue-type plasminogen activator and endovascular thrombectomy, and describe in-hospital outcomes and costs. Methods and Results We analyzed the National Inpatient Sample from 2006 to 2015 and identified adult patients with ischemic stroke with or without thrombolytic therapy and CCIs using validated International Classification of Diseases, Ninth Revision (ICD-9) codes. We report adjusted odds ratios (ORs) and 95% CI of CCI usage across five 2-year periods. Of 4 249 201 ischemic stroke encounters, 3.8% had CCI use. CCI use increased over time (adjusted OR, 4.80; 95% CI, 4.15-5.55) regardless of acute treatment type. Advanced age, female sex, White race, non-Medicare insurance, higher income, disease severity, comorbidity burden, and discharge from non-northeastern teaching hospitals were independently associated with receiving CCIs. In the fully adjusted model, thrombolytic therapy and endovascular thrombectomy, respectively, conferred a 6% and 10% greater likelihood of receiving CCIs. Among CCI users, there was a significant decline in in-hospital mortality compared with all other dispositions over time (adjusted OR, 0.46; 95% CI, 0.38-0.56). Despite longer length of stay, CCI hospitalizations incurred 16% lower adjusted costs. Conclusions CCI use among patients with ischemic stroke has increased regardless of acute treatment type. Nonetheless, considerable disparities persist. Closing the disparities gap and optimizing access, outcomes, and costs for CCIs among patients with stroke are important avenues for further research.


Assuntos
Custos de Cuidados de Saúde/tendências , Disparidades em Assistência à Saúde/tendências , Hospitalização/economia , AVC Isquêmico/terapia , Conforto do Paciente/economia , Terapia Trombolítica/economia , Adolescente , Adulto , Idoso , Idoso de 80 Anos ou mais , Estudos Transversais , Feminino , Seguimentos , Disparidades em Assistência à Saúde/economia , Humanos , Pacientes Internados , AVC Isquêmico/economia , Masculino , Pessoa de Meia-Idade , Estudos Retrospectivos , Fatores de Tempo , Estados Unidos , Adulto Jovem
17.
Holist Nurs Pract ; 35(3): 150-157, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-33853099

RESUMO

This randomized controlled clinical trial was conducted to determine the effect of music therapy on fatigue, comfort and vital signs of the liver transplant patients. The study sample comprised 120 adult patients (60 in the experimental and 60 in the control group) who met the inclusion criteria and agreed to participate in the study. In the experimental group, the researcher performed music therapy. After applying music therapy once to patients for 30 minutes, their fatigue, comfort, and vital signs were evaluated. No treatment was performed in the control group. According to music therapy follow-ups after liver transplantation, mean scores of fatigue levels were lower, comfort levels were higher, and vital signs were normal, with a statistical significance in the experimental group compared with the control group in all measurements before and after music therapy (P < .001). The study should be repeated using different parameters.


Assuntos
Fadiga/terapia , Musicoterapia/normas , Conforto do Paciente/normas , Adulto , Fadiga/psicologia , Feminino , Humanos , Transplante de Fígado/métodos , Transplante de Fígado/psicologia , Masculino , Pessoa de Meia-Idade , Musicoterapia/métodos , Conforto do Paciente/estatística & dados numéricos , Complicações Pós-Operatórias/prevenção & controle , Complicações Pós-Operatórias/psicologia , Sinais Vitais/fisiologia
18.
Nurs Open ; 8(5): 2284-2300, 2021 09.
Artigo em Inglês | MEDLINE | ID: mdl-33724709

RESUMO

AIM: To evaluate the effectiveness of bed bath methods for skin integrity, skin cleanliness and comfort enhancement in adults. DESIGN: A systematic review based on the PRISMA guidelines. METHODS: We searched for quantitative studies published between 2004-2020, using the PubMed, MEDLINE and CINAHL. The remaining 25 studies were appraised by the JBI tool. RESULTS: Only four of the included studies were of high quality. Studies of above moderate quality demonstrated that disposable towels were as effective as cotton towels for skin lesions and bacterial removal. Applying a hot towel maintained the skin barrier function and provided warmth; cotton towels were effective for cleaning even with weak pressure, and post-bed bath moisturizer treatment contributed to skin integrity. CONCLUSION: Although various methods have been examined, the available evidence is inadequate for establishing best practices. It is necessary to verify empirical research with rigorous methodology involving elderly inpatients and to develop instruments that measure patients' comfort.


Assuntos
Conforto do Paciente , Pele , Adulto , Idoso , Humanos , Pacientes Internados
19.
Artigo em Inglês | MEDLINE | ID: mdl-33722177

RESUMO

Grief and bereavement support is a fundamental component of palliative care, yet there is a gap in practice as not all palliative care services offer it. The compassionate communities (CC) approach aims to build community capacity to address grief as grief support is considered everyone's responsibility. This study describes the characteristics, development, growth and attendees of a grief support program that uses a CC approach to bridge the gap of grief support in palliative care.


Assuntos
Luto , Assistência Terminal , Empatia , Pesar , Humanos , Cuidados Paliativos , Conforto do Paciente
20.
J Am Geriatr Soc ; 69(7): 1933-1940, 2021 07.
Artigo em Inglês | MEDLINE | ID: mdl-33760226

RESUMO

BACKGROUND: The reasons for discordance between advance care planning (ACP) documentation and current preferences are not well understood. The POLST form offers a unique opportunity to learn about the reasons for discordance and concordance that has relevance for POLST as well as ACP generally. DESIGN: Qualitative descriptive including constant comparative analysis within and across cases. SETTING: Twenty-six nursing facilities in Indiana. PARTICIPANTS: Residents (n = 36) and surrogate decision-makers of residents without decisional capacity (n = 37). MEASUREMENTS: A semi-structured interview guide was used to explore the reasons for discordance or concordance between current preferences and existing POLST forms. FINDINGS: Reasons for discordance include: (1) problematic nursing facility practices related to POLST completion; (2) missing key information about POLST treatment decisions; (3) deferring to others; and (4) changes over time. Some participants were unable to explain the discordance due to a lack of insight or inability to remember details of the original POLST conversation. Explanations for concordance include: (1) no change in the resident's medical condition and/or the resident is unlikely to improve; (2) use of the substituted judgment standard for surrogate decision-making; and (3) fixed opinion about what is "right" with little to no insight. CONCLUSION: Participant explanations for discordance between existing POLST orders and current preferences highlight the importance of adequate structures and processes to support high quality ACP in nursing facilities. Residents with stable or poor health may be more appropriate candidates for POLST than residents with a less clear prognosis, though preferences should be revisited periodically as well as when there is a change in condition to help ensure existing documentation is concordant with current treatment preferences.


Assuntos
Planejamento Antecipado de Cuidados/organização & administração , Adesão a Diretivas Antecipadas/psicologia , Instituição de Longa Permanência para Idosos , Casas de Saúde , Preferência do Paciente/psicologia , Idoso , Idoso de 80 Anos ou mais , Comunicação , Documentação , Feminino , Humanos , Indiana , Masculino , Conforto do Paciente/organização & administração , Pesquisa Qualitativa
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