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2.
Rev. enferm. UERJ ; 28: e47474, jan.-dez. 2020.
Artigo em Inglês, Português | LILACS, BDENF - Enfermagem | ID: biblio-1145690

RESUMO

Objetivo: compreender como é a experiência das crianças/adolescentes de conviver com sintomas de uma condição crônica. Método: abordagem qualitativa, utilizando como referencial a Teoria Fundamentada nos Dados. Os participantes foram 11 crianças e adolescentes de seis a 18 anos incompletos hospitalizados em um hospital estadual universitário. Como instrumentos de coleta de dados, utilizou-se a entrevista semiestruturada e a técnica "draw, write and tell". As entrevistas foram audiogravadas e transcritas, e a análise seguiu os passos do referencial. Resultados: apreendeu-se a categoria "Tendo que conviver com os sintomas", que engloba cinco subcategorias que apresentam sintomas físicos, emocionais e gerais, a convivência com a multiplicidade de sintomas simultâneos e as consequências de se conviver com eles. Conclusão: a convivência com diversos sintomas leva a limitações. A enfermagem precisa favorecer a expressão das vivencias das crianças/adolescentes, minimizando situações de estresse e melhorar o gerenciamento dos sintomas, através do planejamento de estratégias individualizadas.


Objective: to comprehend children's or adolescents' experiences of living with symptoms of a chronic condition. Method: on a qualitative approach, taking Grounded Theory as a frame of reference and 11 children and adolescents aged 6 to 18 years hospitalized in a state university hospital as participants, data were collected by semi-structured interview using the "draw, write, and tell" technique. The interviews were recorded and transcribed, and then analyzed following the steps of Grounded Theory. Results: analysis identified the category "Having to live with symptoms", which comprised 5 subcategories featuring physical, emotional and general symptoms, the experience of living with multiple simultaneous symptoms, and the consequences of living with them. Conclusion: living with several symptoms entails limitations. Nursing needs to favor children's and adolescents' expressions of their experiences in order to minimize stressful situations and improve symptom management by planning individualized strategies.


Objetivo: comprender las experiencias de niños o adolescentes de vivir con síntomas de una enfermedad crónica. Método: con un enfoque cualitativo, tomando como marco de referencia la Teoría Fundamentada y como participantes a 11 niños y adolescentes de 6 a 18 años hospitalizados en un hospital universitario estatal, los datos se recolectaron mediante entrevista semiestructurada utilizando el método "dibujar, escribir y decir "técnica. Las entrevistas fueron grabadas y transcritas, y luego analizadas siguiendo los pasos de Grounded Theory. Resultados: el análisis identificó la categoría "Tener que vivir con síntomas", que comprendía 5 subcategorías que presentaban síntomas físicos, emocionales y generales, la experiencia de vivir con múltiples síntomas simultáneos y las consecuencias de vivir con ellos. Conclusión: vivir con varios síntomas conlleva limitaciones. La enfermería debe favorecer la expresión de las experiencias de los niños y adolescentes para minimizar las situaciones estresantes y mejorar el manejo de los síntomas mediante la planificación de estrategias individualizadas


Assuntos
Humanos , Masculino , Feminino , Criança , Adolescente , Criança Hospitalizada/psicologia , Doença Crônica , Adolescente Hospitalizado/psicologia , Hospitais Estaduais , Hospitais Universitários , Brasil , Pesquisa Qualitativa , Teoria Fundamentada , Acontecimentos que Mudam a Vida , Cuidados de Enfermagem
3.
BMJ ; 371: m4290, 2020 12 16.
Artigo em Inglês | MEDLINE | ID: mdl-33328164

RESUMO

OBJECTIVE: To evaluate evidence from randomised controlled trials and non-randomised controlled trials on the effectiveness of hospital clowns for a range of symptom clusters in children and adolescents admitted to hospital with acute and chronic conditions. DESIGN: Systematic review of randomised and non-randomised controlled trials. DATA SOURCES: Medline, ISI of Knowledge, Cochrane Central Register of Controlled Trials, Science Direct, Scopus, American Psychological Association PsycINFO, Cumulative Index to Nursing and Allied Health Literature, and Latin American and Caribbean Health Sciences Literature. STUDY SELECTION: Randomised and non-randomised controlled trials were peer reviewed using the following eligibility criteria: children and adolescents who were admitted to hospital for acute conditions or chronic disorders, studies comparing use of hospital clowns with standard care, and studies evaluating the effect of hospital clowns on symptom management of inpatient children and adolescents as a primary outcome. DATA EXTRACTION AND SYNTHESIS: Two investigators independently screened studies, extracted data, and appraised the risk of bias. Methodological appraisal was assessed by two investigators independently using the Jadad scale, the revised Cochrane risk-of-bias tool for randomised controlled trials (RoB 2), and the risk of bias in non-randomised studies (ROBINS-I) tool for non-randomised controlled trials. RESULTS: 24 studies (n=1612) met the inclusion criteria for data extraction and analysis. Most studies were randomised controlled trials (n=13). Anxiety was the most frequently analysed symptom (n=13), followed by pain (n=9), psychological and emotional responses and perceived wellbeing (n=4), stress (n=4), cancer related fatigue (n=3), and crying (n=2). Five studies used biomarkers, mainly cortisol, to assess stress or fatigue outcome following hospital clowns. Most of the randomised controlled trials (n=11; 85%) were rated as showing some concerns, and two trials were rated with a high risk of bias. Most non-randomised controlled trials (n=6; 55%) were rated with a moderate risk of bias according to ROBINS-I tool. Studies showed that children and adolescents who were in the presence of hospital clowns, either with or without a parent present, reported significantly less anxiety during a range of medical procedures, as well as improved psychological adjustment (P<0.05). Three studies that evaluated chronic conditions showed favourable results for the intervention of hospital clowns with significant reduction in stress, fatigue, pain, and distress (P<0.05). CONCLUSIONS: These findings suggest that the presence of hospital clowns during medical procedures, induction of anaesthesia in the preoperative room, and as part of routine care for chronic conditions might be a beneficial strategy to manage some symptom clusters. Furthermore, hospital clowns might help improve psychological wellbeing in admitted children and adolescents with acute and chronic disorders, compared with those who received only standard care. SYSTEMATIC REVIEW REGISTRATION: PROSPERO CRD42018107099.


Assuntos
Criança Hospitalizada/psicologia , Terapia do Riso/métodos , Doença Aguda/psicologia , Ansiedade/psicologia , Ansiedade/terapia , Criança , Doença Crônica/psicologia , Fadiga/psicologia , Fadiga/terapia , Humanos , Ensaios Clínicos Controlados não Aleatórios como Assunto , Manejo da Dor/psicologia , Ensaios Clínicos Controlados Aleatórios como Assunto , Estresse Psicológico/psicologia , Estresse Psicológico/terapia
4.
Rech Soins Infirm ; (141): 7-16, 2020 06.
Artigo em Francês | MEDLINE | ID: mdl-32988192

RESUMO

This article aims to reveal the ethical framework surrounding hospitalized school students, showing that, in the context of disease, traditional ethics do not work. From a philosophical perspective, the target audience are teachers and volunteers who teach at hospitals, but also nurses and other professionals who work with sick children. The development of an ethical framework based on the ethics of care (EoC) will enable teachers to guide their activity in hospitals, highlighting the need for another ethical framework in order to achieve a teaching practice that is fully responsible and compassionate. In an ethical framework centered on the sick child, concepts such as "care" and "well-being" are mobilized by understanding how they relate to the psychological well-being of hospitalized students. I propose that an educational attitude rooted in admiration, respect and love can be a good guide for teaching practices in hospitals, offering an alternative to the ethical limitations of codes based on a universal conception of justice.


Assuntos
Criança Hospitalizada/educação , Cuidados de Enfermagem/ética , Ensino/ética , Criança , Criança Hospitalizada/psicologia , Humanos , Estudantes/psicologia
5.
Pediatrics ; 146(3)2020 09.
Artigo em Inglês | MEDLINE | ID: mdl-32817268

RESUMO

BACKGROUND: Although required for healing, sleep is often disrupted during hospitalization. Blood pressure (BP) monitoring can be especially disruptive for pediatric inpatients and has few clinical indications. Our aim in this pilot study was to reduce unnecessary overnight BP monitoring and improve sleep for pediatric inpatients. METHODS: The intervention in June 2018 involved clinician education sessions and updated electronic health record (EHR) orders that enabled the forgoing of overnight BP checks. The postintervention period from July 2018 to May 2019 examined patient-caregiver surveys as outcome measures. These surveys measured inpatient sleep and overnight disruptions and were adopted from validated surveys: the Patient Sleep Questionnaire, expanded Brief Infant Sleep Questionnaire, and Potential Hospital Sleep Disruptions and Noises Questionnaire. Uptake of new sleep-friendly EHR orders was a process measure. Reported patient care escalations served as a balancing measure. RESULTS: Interrupted time series analysis of EHR orders (npre = 493; npost = 1472) showed an increase in intercept for the proportion of patients forgoing overnight BP postintervention (+50.7%; 95% confidence interval 41.2% to 60.3%; P < .001) and a subsequent decrease in slope each week (-0.16%; 95% confidence interval -0.32% to -0.01%; P = .037). Statistical process control of surveys (npre = 263; npost = 131) showed a significant increase in sleep duration for patients older than 2, and nighttime disruptions by clinicians decreased by 19% (P < .001). Annual estimated cost savings were $15 842.01. No major adverse events in patients forgoing BP were reported. CONCLUSIONS: A pilot study combining EHR changes and clinician education safely decreased overnight BP checks, increased pediatric inpatient sleep duration, and reduced nighttime disruptions by clinicians.


Assuntos
Determinação da Pressão Arterial/normas , Criança Hospitalizada , Pessoal de Saúde/normas , Análise de Séries Temporais Interrompida/normas , Melhoria de Qualidade/normas , Sono/fisiologia , Adolescente , Determinação da Pressão Arterial/psicologia , Determinação da Pressão Arterial/tendências , Cuidadores/educação , Cuidadores/normas , Cuidadores/tendências , Criança , Criança Hospitalizada/psicologia , Pré-Escolar , Registros Eletrônicos de Saúde/normas , Registros Eletrônicos de Saúde/tendências , Feminino , Pessoal de Saúde/educação , Pessoal de Saúde/tendências , Humanos , Lactente , Recém-Nascido , Análise de Séries Temporais Interrompida/tendências , Masculino , Projetos Piloto , Estudos Prospectivos , Melhoria de Qualidade/tendências
6.
Artigo em Inglês | MEDLINE | ID: mdl-32752251

RESUMO

The objective of this study was to examine the clinical characteristics of adolescents hospitalized after a suicide attempt or instrumental suicide-related behavior. Participants included thirty-six adolescents from the pediatric unit of a Polish hospital who made a nonfatal suicide attempt (SAA) or engaged in instrumental suicide-related behavior (IBA), as well as a general population sample (GPS). Psychosocial features were measured using the Kiddie Schedule for Affective Disorders and Schizophrenia (K-SADS), the Social and Occupational Functioning Assessment Scale (SOFAS), the Suicide Behaviors Questionnaire-Revised (SBQ-R), the Psychache Scale (TPS), the State-Trait Anxiety Inventory (STAI), the Center of Epidemiological Studies Depression Scale for Children (CES-DC), and the Prodromal Questionnaire (PQ-16). The SAA group scored significantly higher than the IBA group and the GPS in modules related to irritability and anhedonia, voice hallucinations and delusions, suicidal acts, thoughts and ideation, and medical lethality. Additionally, the SAA scored higher on the SBQ-R and PQ-16 compared to the IBA group and the GPS. Although anxiety, mental pain, and depressive symptoms could not independently distinguish between the SAA and IBA groups, psychotic symptoms were more frequently present within the SAA group. The above symptoms may be important to consider when screening for suicide risk in the general population.


Assuntos
Transtornos Psicóticos , Ideação Suicida , Tentativa de Suicídio , Adolescente , Adolescente Hospitalizado/psicologia , Ansiedade , Criança , Criança Hospitalizada/psicologia , Feminino , Humanos , Tentativa de Suicídio/psicologia
8.
Enferm. clín. (Ed. impr.) ; 30(supl.5): 103-105, jun. 2020. tab
Artigo em Inglês | IBECS | ID: ibc-196486

RESUMO

Anxiety is an internal response that gives danger signals to individuals. An anxiety reaction in preschool children arises from the effect of hospitalization where the child loses control of himself. This study aims to determine the effect of giving play therapy to arrange puzzles for anxiety in preschoolers in the Kendari City childcare room. Quantitative research was done with the design of quasi experiments among preschool children as samples treated in hospitals. The results showed that the level of anxiety of preschoolers experienced a significant decrease after being given puzzle play therapy. The conclusion in this study showed that puzzle play therapy effected anxiety levels in preschoolers


No disponible


Assuntos
Humanos , Masculino , Feminino , Pré-Escolar , Desenvolvimento Infantil , Jogos e Brinquedos/psicologia , Processos Mentais/fisiologia , Ansiedade/terapia , Ludoterapia/métodos , Análise de Variância , Ansiedade/classificação , Transtornos de Ansiedade/terapia , Criança Hospitalizada/psicologia , Psicometria/métodos
9.
Pediatrics ; 146(2)2020 08.
Artigo em Inglês | MEDLINE | ID: mdl-32430441

RESUMO

To control the spread of severe acute respiratory syndrome coronavirus 2, the virus responsible for coronavirus disease 2019, many hospitals have strict visitor restriction policies. These policies often prohibit both parents from visiting at the same time or having grandparents or other family members visit at all. We discuss cases in which such policies created ethical dilemmas and possibly called for compassionate exceptions from the general rules.


Assuntos
Betacoronavirus , Criança Hospitalizada/psicologia , Infecções por Coronavirus/prevenção & controle , Controle de Infecções/métodos , Pandemias/prevenção & controle , Assistência Centrada no Paciente/ética , Pneumonia Viral/prevenção & controle , Visitas a Pacientes/psicologia , Adolescente , Criança , Infecções por Coronavirus/psicologia , Infecções por Coronavirus/transmissão , Análise Custo-Benefício , Família , Feminino , Política de Saúde , Humanos , Recém-Nascido , Controle de Infecções/normas , Masculino , Assistência Centrada no Paciente/métodos , Assistência Centrada no Paciente/normas , Pneumonia Viral/psicologia , Pneumonia Viral/transmissão
10.
Soins Pediatr Pueric ; 41(312): 37-39, 2020.
Artigo em Francês | MEDLINE | ID: mdl-32200970

RESUMO

Professional reflection, initiated during childcare studies during a paediatric intensive care internship, can lead to the writing of a research protocol on the relational withdrawal of a hospitalized child. How could the use of the Baby Distress Alarm Scale, a tool for screening and assessing relational withdrawal behaviour, improve the detection of these behaviours in an inpatient child to prevent developmental disorders? Feedback from experience.


Assuntos
Criança Hospitalizada/psicologia , Transtornos do Comportamento Social , Criança , Humanos
11.
Lancet Child Adolesc Health ; 4(4): 312-321, 2020 04.
Artigo em Inglês | MEDLINE | ID: mdl-32087768

RESUMO

Delirium is a syndrome characterised by an acute and fluctuating alteration in cognition and awareness. It occurs frequently in children with serious medical illness, and is associated with adverse outcomes such as increased length of hospital stay, duration of mechanical ventilation, hospital costs, and mortality. Delirium-especially the hypoactive subtype-is often overlooked by paediatric practitioners, but can be reduced by mitigating risks and effectively managed if detected early. Non-modifiable risk factors of delirium include young age (age <2 years), cognitive or neurological disabilities, need for invasive mechanical ventilation, severe underlying illness and pre-existing chronic conditions, and poor nutritional status. Routine bedside screening using validated tools can enable early detection of delirium. To reduce delirium in hospitalised children, health-care providers should optimise the hospital environment (eg, by reducing sleep disruption and keeping the child stimulated during the day), improve pain management, and decrease sedation (particularly use of benzodiazepines).


Assuntos
Criança Hospitalizada/psicologia , Delírio/prevenção & controle , Delírio/psicologia , Respiração Artificial/efeitos adversos , Estudos de Casos e Controles , Criança Hospitalizada/estatística & dados numéricos , Pré-Escolar , Disfunção Cognitiva/epidemiologia , Delírio/classificação , Delírio/mortalidade , Diagnóstico Precoce , Humanos , Lactente , Tempo de Internação/tendências , Programas de Rastreamento/métodos , Doenças do Sistema Nervoso/epidemiologia , Estado Nutricional , Testes Imediatos/normas , Respiração Artificial/estatística & dados numéricos , Fatores de Risco
12.
PLoS One ; 15(1): e0228354, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-31999770

RESUMO

The experience of having a child hospitalised is stressful and disrupts families in myriad ways; however, the experiences of parents/caregivers who encounter repeated admissions of a child with acute lower respiratory infections are under-researched. This project aims to explore these experiences, from a qualitative perspective, using the philosophical tenets of reflective lifeworld research. The research included 14 face-to-face interviews with parents, grandparents, or primary caregivers, of children who, whilst under two years of age, were admitted to hospital multiple times with a lower respiratory infection diagnosis. Many of the participants were from Maori or Samoan ethnic backgrounds. The findings of this single site study revealed that these parents/caregivers' experiences were characterised by feelings of powerlessness, offering descriptions of hospitals as harsh and difficult places to reside, they are 'in-hospitable'. The findings suggest that repeated hospitalisations created a cycle of stressful experiences that impacted both familial relationships and interactions with society. This study draws attention to this previously obscured population group, and calls health care practitioners and policy advisors to engage differently over issues involving families in similar positions.


Assuntos
Cuidadores/psicologia , Criança Hospitalizada/psicologia , Família/psicologia , Hospitalização/estatística & dados numéricos , Infecções Respiratórias/diagnóstico , Feminino , Humanos , Lactente , Recém-Nascido , Entrevistas como Assunto , Masculino , Nova Zelândia/epidemiologia , Pesquisa Qualitativa , Infecções Respiratórias/psicologia
13.
Trials ; 21(1): 16, 2020 Jan 06.
Artigo em Inglês | MEDLINE | ID: mdl-31907017

RESUMO

BACKGROUND: Hospitalized infants undergo multiple painful procedures daily. Despite the significant evidence, procedural pain assessment and management continues to be suboptimal. Repetitive and untreated pain at this vital developmental juncture is associated with negative behavioral and neurodevelopmental consequences. To address this knowledge to practice gap, we developed the web-based Implementation of Infant Pain Practice Change (ImPaC) Resource to guide change in healthcare professionals' pain practice behaviors. This protocol describes the evaluation of the intervention effectiveness and implementation of the Resource and how organizational context influences outcomes. METHODS: An effectiveness-implementation hybrid type 1 design, blending a cluster randomized clinical trial and a mixed-methods implementation study will be used. Eighteen Neonatal Intensive Care Units (NICUs) across Canada will be randomized to intervention (INT) or standard practice (SP) groups. NICUs in the INT group will receive the Resource for six months; those in the SP group will continue with practice as usual and will be offered the Resource after a six-month waiting period. Data analysts will be blinded to group allocation. To address the intervention effectiveness, the INT and SP groups will be compared on clinical outcomes including the proportion of infants who have procedural pain assessed and managed, and the frequency and nature of painful procedures. Data will be collected at baseline (before randomization) and at completion of the intervention (six months). Implementation outcomes (feasibility, fidelity, implementation cost, and reach) will be measured at completion of the intervention. Sustainability will be assessed at six and 12 months following the intervention. Organizational context will be assessed to examine its influence on intervention and implementation outcomes. DISCUSSION: This mixed-methods study aims to determine the effectiveness and the implementation of a multifaceted online strategy for changing healthcare professionals' pain practices for hospitalized infants. Implementation strategies that are easily and effectively implemented are important for sustained change. The results will inform healthcare professionals and decision-makers on how to address the challenges of implementing the Resource within various organizational contexts. TRIAL REGISTRATION: ClinicalTrials.gov, NCT03825822. Registered 31 January 2019.


Assuntos
Implementação de Plano de Saúde/organização & administração , Unidades de Terapia Intensiva Neonatal/organização & administração , Manejo da Dor/métodos , Dor Processual/terapia , Padrões de Prática Médica/organização & administração , Adulto , Canadá , Criança Hospitalizada/psicologia , Estudos de Viabilidade , Feminino , Pessoal de Saúde/educação , Pessoal de Saúde/organização & administração , Implementação de Plano de Saúde/métodos , Humanos , Lactente , Recém-Nascido , Intervenção Baseada em Internet , Masculino , Auditoria Médica , Medição da Dor , Dor Processual/diagnóstico , Dor Processual/psicologia , Equipe de Assistência ao Paciente/organização & administração , Avaliação de Programas e Projetos de Saúde , Ensaios Clínicos Controlados Aleatórios como Assunto , Padrão de Cuidado , Adulto Jovem
14.
Rev. Rol enferm ; 43(1,supl): 458-463, ene. 2020. graf
Artigo em Português | IBECS | ID: ibc-193421

RESUMO

Cancer in the child affects the whole family, which experiences the uncertainty of the prognosis, projecting itself into an unpredictable future. Parents come to live with the disease, the treatments and their effects, in a sinuous path lined by the uncertainty of the next day. The aim was to identify parents' perceptions regarding the future of children / adolescents with cancer undergoing chemotherapy. A qualitative, exploratory, descriptive and transversal study was developed. Eleven parents of children with cancer who underwent chemotherapy after their homecare were enrolled. Data were collected by semi-structured interview and analyzed according to Bardin. From the content analysis emerged the domain "Future Uncertain", which integrates the category "Syndrome of Damocles" and the subcategories "Fear" and "Unpredictability of the Future". Fear is a negative emotion experienced by parents of children with cancer, from the time of diagnosis and throughout the course of the disease. The unpredictability of the future is a constant in the life of parents, generating a continuous concern, so they resort to the strategy of thinking and living only in the present. However, uncertainty can catalyze psychological growth, leading them to value small moments, and to incorporate uncertainty as an integral part of life. Nurses must carry out interventions aimed at better management of uncertainty, as they help in the process of adaptation and management of stress. These interventions should lead to a "new normality" in family life, in which confrontation with adversity leads to a whole new meaning of existence


No disponible


Assuntos
Humanos , Criança , Neoplasias/psicologia , Cuidado da Criança/organização & administração , Educação Infantil/psicologia , Enfermagem Oncológica/métodos , Cuidados de Enfermagem/métodos , Assistência Domiciliar/organização & administração , Expectativa de Vida , Relações Pais-Filho , Pais/psicologia , Criança Hospitalizada/psicologia , Atitude Frente a Saúde , Estudos Transversais , Mortalidade Prematura
15.
J Clin Nurs ; 29(5-6): 706-719, 2020 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-31821674

RESUMO

AIMS AND OBJECTIVES: To elucidate knowledge available on parents' experience and perception of sleep when they stay overnight in hospital together with their sick children. BACKGROUND: In Nordic countries, children are entitled to have at least one parent with them during hospitalisation. Parents' sleep, when accommodated at the hospital during the child's admission, may be a challenge. DESIGN: A systematic literature search was conducted in EMBASE, MEDLINE and PsycINFO; period is restricted from 1 January 2007 to 1 April 2019. Studies included were those in which parents were accommodated in hospital with their child, 0-18 years of age, for at least one night. Original peer-reviewed scientific research papers conducting qualitative, quantitative or mixed designs were included. Systematic reviews were not included. This systematic integrative review was registered in PROSPERO and performed according to the PRISMA guidelines. All authors participated in study selection, data extraction and quality assessment of the literature. RESULTS: Fifteen studies were included, and they varied in terms of origin, aims, design, methods used and sample size. Three overall main themes appeared: sleep quality, factors affecting sleep and consequences of sleep loss. Combined psychological factors were found to affect parents' sleep, as well as isolated psychological factors, for example, stress, anxiety, worries and difficult thoughts. Environmental and social factors were also identified, for example, privacy and caring for family. CONCLUSION: Study of this subject is still in its exploratory phase. There is a need for the development of theory of substance in the clarification of the meaning of sleep among parents during difficult times such as children's hospitalisation. RELEVANCE TO CLINICAL PRACTICE: Understanding risk factors associated with sleep and sleep deprivation in parents staying overnight in the hospital with their sick child is important, since lack of sleep may lead to serious stress-related outcomes for the parents.


Assuntos
Criança Hospitalizada/psicologia , Pais/psicologia , Sono , Adolescente , Ansiedade , Criança , Pré-Escolar , Feminino , Humanos , Lactente , Recém-Nascido , Masculino
16.
Rev. Pesqui. (Univ. Fed. Estado Rio J., Online) ; 12: 1348-1354, jan.-dez. 2020.
Artigo em Inglês, Português | LILACS, BDENF - Enfermagem | ID: biblio-1141003

RESUMO

Objetivo: Investigar a vivência de mães de crianças com câncer em cuidados paliativos. Métodos: Trata-se de uma pesquisa de campo de natureza qualitativa realizada em um hospital no estado da Paraíba. A amostra foi composta por 10 mães de crianças com câncer em cuidados paliativos. Para viabilizar a coleta dos dados, foi utilizada entrevista semiestruturada. O material obtido foi analisado por meio da técnica de análise de conteúdo proposta por Bardin. Resultados: Extraíram-se duas categorias temáticas: vivência de mães frente ao diagnóstico e tratamento de criança com câncer; e importância do apoio familiar durante os cuidados à criança hospitalizada com câncer. Conclusão: Mediante o estudo, nota-se que os cuidados paliativos precisam ser inseridos integralmente na assistência às mães de crianças com câncer, haja vista a difícil vivência das genitoras no enfretamento do diagnóstico e tratamento do filho. É, pois, necessário, que os profissionais de saúde criem espaços de diálogos acolhedores


Objective: The study's main purpose has been to investigate the mothers' experiences of bearing-cancer children who were undergoing palliative care concerning the cancer diagnosis, its treatment and family support during hospitalization. Methods: It is a field research with a qualitative approach, which was carried out with 10 (ten) mothers of bearing-cancer children who were undergoing palliative care at a hospital in the Paraíba State. Data collection took place through semi-structured interviews, subsequently, being subjected to the content analysis as proposed by Bardin. Results: After analyzing the empirical material, the following thematic categories were elaborated: Experiences of mothers facing of the diagnosis and treatment of their cancer children undergoing palliative care; Importance of family support during care provision for hospitalized children bearing cancer. Conclusion: Palliative care must be fully integrated with care provision towards cancer children mothers. Furthermore, it is necessary to provide spaces for embracement dialogues by health professionals


Objetivo: Investigar la vivencia de madres de niños con cáncer en cuidados paliativos en cuanto al diagnóstico, tratamiento y apoyo familiar durante la hospitalización. Métodos: investigación exploratoria con abordaje cualitativo, realizada con diez madres de niños con cáncer en cuidados paliativos em un hospital del estado de Paraíba, mediante entrevista semiestructurada y sometida a análisis de contenido propuesto por Bardin. Resultados: se extrajeron dos categorías temáticas: la experiencia de las madres respecto al diagnóstico y tratamiento de un niño con cáncer, destacando el dolor, sufrimiento, angustia ante el diagnóstico del niño; y la importancia del apoyo familiar durante el cuidado de los niños hospitalizados con cáncer, orientado a compartir sentimientos, afrontar condiciones adversas y tomar decisiones difíciles. Conclusión: los cuidados paliativos deben estar plenamente integrados en la atención a las madres de niños con cáncer, y es necessário desarrollar espacios de diálogo de bienvenida por parte de los profesionales de la salud


Assuntos
Humanos , Feminino , Criança , Cuidados Paliativos , Criança Hospitalizada , Mães , Neoplasias/diagnóstico , Neoplasias/terapia , Criança Hospitalizada/psicologia , Cuidadores/psicologia , Acolhimento , Relações Familiares , Relações Mãe-Filho , Mães/psicologia
17.
Rev. Pesqui. (Univ. Fed. Estado Rio J., Online) ; 12: 1017-1021, jan.-dez. 2020.
Artigo em Inglês, Português | LILACS, BDENF - Enfermagem | ID: biblio-1117080

RESUMO

Objetivo: Conhecer a percepção do enfermeiro sobre o brincar e o impacto dessa prática na assistência pediátrica. Método: Trata-se de uma pesquisa descritiva, exploratória e com abordagem qualitativa. A coleta de dados foi realizada após aprovação do Comitê de Ética em Pesquisa, por meio de uma entrevista semiestruturada, durante o período de maio a agosto de 2017. Resultados: Participaram do estudo 10 enfermeiros. A partir das entrevistas com os profissionais foi possível a apreensão de duas categorias: A percepção do enfermeiro sobre o brincar no processo de recuperação infantil e as dificuldades encontradas pela enfermagem na realização de atividades lúdicas. Conclusão: Diante da amplitude que reveste o cuidado à criança, os profissionais afirmam frequentemente, não possuírem tempo suficiente para desenvolver qualquer atividade lúdica. Ressaltaram, assim, a importância de haver um número adequado de profissionais frente a demanda de trabalho, considerando a complexidade da criança


Objective: To know the nurses' perception about playing and the impact of this practice on pediatric care. Method: This is an exploratory descriptive exploratory qualitative approach. The data collection was done after approval of the Research Ethics Committee, through a semistructured interview, during the period from May to August 2017. Results: Ten nurses participated in the study. From the interviews with the professionals it was possible to apprehend two categories: Nurses' perception about playing in the process of child recovery and difficulties encountered by nursing in performing play activities. Conclusion: Given the breadth of care for the child, professionals often say that they do not have enough time to develop any playful activity. They stressed, therefore, the importance of having an adequate number of professionals against the demand of work, considering the complexity of the child


Objetivo: Conocer la percepción del enfermero sobre el juego y el impacto de esta práctica em la asistencia pediátrica. Método: Se trata de una investigación descriptiva exploratoria y con abordaje cualitativo. La recolección de datos fue realizada después de la aprobación del Comité de Ética em Investigación, a través de una entrevista semiestructurada, durante el período de mayo a agosto de 2017. Resultados: Participaron del estudio 10 enfermeros. A partir de las entrevistas com los profesionales fue posible la aprehensión de dos categorías: La percepción del enfermero sobre el jugar en el proceso de recuperación infantil y dificultades encontradas por la enfermería en la realización de actividades lúdicas. Conclusión: Ante la amplitud que reviste el cuidado al niño, los profesionales afirman, frecuentemente, no poseen tiempo suficiente para desarrollar cualquier actividad lúdica. Resaltaron, así, la importancia de haber un número adecuado de profesionales frente a la demanda de trabajo, considerando la complejidad del niño


Assuntos
Humanos , Masculino , Feminino , Enfermagem Pediátrica/métodos , Jogos e Brinquedos , Criança Hospitalizada/psicologia , Percepção , Condições de Trabalho , Pesquisa Qualitativa , Saúde da Criança Institucionalizada
18.
Rev. Pesqui. (Univ. Fed. Estado Rio J., Online) ; 12: 1179-1186, jan.-dez. 2020. ilus
Artigo em Inglês, Português | LILACS, BDENF - Enfermagem | ID: biblio-1118981

RESUMO

Objetivo: Desvelar o que vem sendo produzido pela enfermagem sobre as experiências enfrentadas pelos familiares de crianças hospitalizadas. Método: Revisão integrativa a partir da busca nas bases PubMed, LILACS e na biblioteca Virtual SciELO, utilizando os descritores: hospitalized child, family, nursing, durante o mês de janeiro de 2018. Selecionaram-se estudos publicados entre 2011 e 2017, nos idiomas inglês, português e espanhol. Após a análise dos dados, foram selecionados 31 estudos; Resultados: Elaborou-se as categorias: adaptação da rotina familiar; afastamento do restante da família e dos filhos sadios; desajuste diante da estrutura física e falta de conforto hospitalar; procedimentos médicos, enfermagem e normas/rotinas rígidas. Conclusão: A hospitalização de uma criança interfere significativamente na vida dos familiares, afetando seu relacionamento familiar, sua saúde física e mental e a manutenção de sua rede social


Objective: The study's purpose has been to unveil what has been produced by nursing professionals concerning the experiences faced by hospitalized children family members. Methods: It is an integrative literature review, which was performed in January 2018 based on the search in the PubMed, LILACS and SciELO databases, using the descriptors: hospitalized child, family, nursing. The selected studies were published from 2011 to 2017 in English, Portuguese, and Spanish languages. After data analysis, 31 studies were selected. Results: The following categories were elaborated: adaptation of the family routine, withdrawing away from the rest of the family and healthy children; maladaptation due to physical structure and lack of hospital comfort; medical procedures, nursing and strict rules/routines. Conclusion: Children hospitalization impacts significantly on their family life, affecting their family relationships, their physical and mental health, and the maintenance of their social network


Objetivo: Desvelar lo que viene siendo producido por la enfermería sobre las experiencias enfrentadas por los familiares de niños hospitalizados. Método: Revisión integrativa a partir de la búsqueda en las bases PubMed, LILACS y en la biblioteca Virtual SciELO, utilizando los descriptores: hospitalized child, family, health, durante el mes de enero de 2018. Se seleccionaron estudios publicados entre 2011 y 2017, en los idiomas Inglés, portugués y español. Después del análisis de los datos, se seleccionaron 31 estudios; Resultados: Se elaboraron las categorías: adaptación de la rutina familiar; alejamiento del resto de la familia y de los hijos sanos; desajuste ante la estructura física y falta de confort hospitalario; procedimientos médicos, enfermería y normas / rutinas rígidas. Conclusión: La hospitalización de un niño interfiere significativamente en la vida de los familiares, afectando su relación familiar, su salud física y mental y el mantenimiento de su red social


Assuntos
Humanos , Masculino , Criança , Criança Hospitalizada/psicologia , Saúde da Criança Institucionalizada , Relações Familiares/psicologia , Enfermagem Pediátrica , Apoio Social , Família
19.
Can J Urol ; 26(6): 10022-10025, 2019 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-31860418

RESUMO

INTRODUCTION: The American Academy of Pediatrics views Certified Child Life Specialists (CCLS) as "an important component of pediatric hospital based care to address the psychosocial concerns that accompany hospitalization." CCLSs help patients and parents navigate the complex medical system in order to minimize psychosocial and emotional stress by implementing age appropriate coping skills. This survey explores the perceptions towards CCLS and their utilization with pediatric urology. MATERIALS AND METHODS: A Survey Monkey questionnaire was developed and distributed to Society for Pediatric Urology members (SPU) (n = 314). Providers were queried about CCLS implementation and their perception regarding CCLS's role in improving health related quality of life (HRQOL). RESULTS: There was a 34.1% response rate (n = 107). Ninety-four providers (87.9%) reported CCLS interaction with their patients and greater than 95% of providers felt CCLS imparted some degree of benefit to their patients' HRQOL. Only 4.7% felt CCLS offered no benefit to the patients. CCLS were consistently used in a minority of inpatient and outpatient settings and never in the radiological setting. They were used at least 50% of the time by the most responders in inpatient and radiological setting and nearly the same in the ambulatory surgery setting. CONCLUSIONS: This survey illuminates that the majority of providers interact with CCLS in clinical settings and believe their involvement is beneficial. However, CCLSs are under-utilized during invasive urological procedures where patient anxiety is high. By understanding perceptions of providers and their practice patterns we can overcome barriers to CCLS use and improve their quality of life.


Assuntos
Atitude do Pessoal de Saúde , Criança Hospitalizada , Diagnóstico por Imagem , Pessoal de Saúde , Urologia/estatística & dados numéricos , Assistência Ambulatorial/psicologia , Assistência Ambulatorial/estatística & dados numéricos , Procedimentos Cirúrgicos Ambulatórios/psicologia , Procedimentos Cirúrgicos Ambulatórios/estatística & dados numéricos , Criança , Criança Hospitalizada/psicologia , Criança Hospitalizada/estatística & dados numéricos , Diagnóstico por Imagem/psicologia , Diagnóstico por Imagem/estatística & dados numéricos , Família , Pesquisas sobre Serviços de Saúde , Pessoal de Saúde/psicologia , Pessoal de Saúde/estatística & dados numéricos , Hospitalização/estatística & dados numéricos , Humanos , Pacientes Internados/estatística & dados numéricos , Pacientes Ambulatoriais/estatística & dados numéricos , Qualidade de Vida
20.
Rev Bras Enferm ; 72(suppl 3): 251-258, 2019 Dec.
Artigo em Inglês, Português | MEDLINE | ID: mdl-31851261

RESUMO

OBJECTIVE: to understand the meaning of the care of hospitalized children for the nursing professionals of a pediatric unit. METHOD: phenomenological study, based on the existential phenomenology of Martin Heidegger. Ten nursing professionals were interviewed with the guiding question: "What is the care of hospitalized children for you? Tell me, in detail, your experience with taking care of hospitalized children." RESULTS: the meaning of the care of hospitalized children materializes between the profession and the various ways of preoccupation. By engaging in/worrying about the ways of being of everyday life, the professionals tend to improperness when trying to mediate and level all possibilities of being. However, when they extrapolate reassurance and do not get caught up in themselves, they achieve empathy, respect, and indulgence. FINAL CONSIDERATIONS: it is necessary to reassess the teaching and practice of care, so that authentic care is offered to children and their families in the context of hospitalization.


Assuntos
Criança Hospitalizada/psicologia , Enfermeiras e Enfermeiros/psicologia , Enfermagem Pediátrica/métodos , Adulto , Criança , Criança Hospitalizada/estatística & dados numéricos , Feminino , Humanos , Entrevistas como Assunto/métodos , Masculino , Pessoa de Meia-Idade , Enfermagem Pediátrica/tendências , Pesquisa Qualitativa
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