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1.
Texto & contexto enferm ; 29: e20190025, Jan.-Dec. 2020.
Artigo em Inglês | LILACS, BDENF - Enfermagem | ID: biblio-1059133

RESUMO

ABSTRACT Objective: to analyze the perceptions of the family members of users of a children's psychosocial care center, regarding the facilitating factors and the difficulties in the communication with the health professionals. Method: a qualitative and descriptive study conducted with 25 family members of users of a children's psychosocial care center in a city of Minas Gerais (Brazil). Data collection took place between April and July 2017 using focus groups and a semi-structured script for the implementation of group sessions. Data was analyzed according to content analysis, thematic category. Results: two categories emerged from the analysis: Professional-Family relationship and Suggestions to enhance communication, which included practicalities and difficulties in communication. The data showed that the professional-family relationship refers to the professionals' positive actions, which facilitate communication, and to their negative actions, which means offering a distant and dehumanized care and failing to provide guidance. The suggestions to enhance communication were directed to the interventions focused on the family and on the dynamics and management of the service. Conclusion: there is a need for collaboration among management, staff and family members, which can contribute to a better health care and to building more solidary and dialogical relationships.


RESUMEN Objetivo: analizar las percepciones de los familiares de los usuarios de un centro de atención psicosocial infanto-juvenil, en relación con los factores facilitadores y las dificultades de la comunicación con los profesionales de la salud. Método: estudio cualitativo y descriptivo realizado con 25 familiares de usuarios de un centro de atención psicosocial infanto-juvenil en un municipio de Minas Gerais (Brasil). Los datos se recolectaron entre los meses de abril y junio de 2017 por medio de grupos focalizados, con la aplicación de un guión semiestructurado para desarrollar las sesiones grupales. Los datos se analizaron conforme al análisis de contenido, con la modalidad temática. Resultados: a partir del análisis surgieron dos categorías: Relación profesional-familia y Sugerencias para potenciar la comunicación; ambas abarcaron facilidades y dificultades en la comunicación. Los datos evidenciaron que la relación profesional-familia se refiere tanto a las acciones positivas de los profesionales, que facilitan la comunicación, como a sus acciones negativas, que significan ofrecer una atención distante y poco humanizada con escasa orientación. Las sugerencias para potenciar la comunicación estuvieron dirigidas a las intervenciones enfocadas en la familia y en la dinámica y organización del servicio. Conclusión: se hace evidente que es necesaria una aproximación entre la administración, el equipo de profesionales y los familiares, lo que puede ayudar a mejorar los cuidados en salud y hacer posible que se establezcan relaciones más solidarias y con más diálogo.


RESUMO Objetivo: analisar as percepções dos familiares de usuários de um centro de atenção psicossocial infantojuvenil, em relação aos fatores facilitadores e dificultadores da comunicação com os profissionais de saúde. Método: estudo qualitativo, descritivo, realizado com 25 familiares de usuários de um centro de atenção psicossocial infantojuvenil, em um município de Minas Gerais (Brasil). A coleta de dados ocorreu entre os meses de abril a julho de 2017, por meio de grupos focais, aplicando-se roteiro semiestruturado para desenvolvimento das sessões grupais. Os dados foram analisados segundo a análise de conteúdo, modalidade temática. Resultados: da análise emergiram duas categorias: Relação profissional-família e Sugestões para potencializar a comunicação, as quais abrangeram facilidades e dificuldades na comunicação. Os dados evidenciaram que a relação profissional-família diz respeito às ações positivas dos profissionais que facilitam a comunicação, e às ações negativas atuação distante, pouco humanizado, com escassez de orientação. As sugestões para potencializar a comunicação foram direcionadas às intervenções focadas na família e na dinâmica e organização do serviço. Conclusão: evidencia-se a necessidade de aproximação entre gerência, equipe de profissionais e familiares; o que pode contribuir para melhoria do cuidado em saúde e para a construção de relações mais solidárias e dialógicas.


Assuntos
Saúde Mental , Cuidadores , Comunicação , Serviços de Saúde Mental , Relações Profissional-Família , Assistência à Saúde , Relações Familiares
2.
Texto & contexto enferm ; 29: e20180451, Jan.-Dec. 2020. tab
Artigo em Inglês | LILACS, BDENF - Enfermagem | ID: biblio-1101983

RESUMO

ABSTRACT Objective: to analyze the relationship between the characteristics of patients in cancer treatment, their family caregivers, the care provided with the overload, as well as between overload and the care skills. Method: a cross-sectional study conducted at the chemotherapy and radiotherapy services of a university hospital in Rio Grande do Sul (Brazil) from March to August 2017, with 132 family caregivers of patients in cancer treatment. Data was collected by an instrument that characterizes patients, caregivers and care (the Brazilian version of the Caring Ability Inventory) and the Zarit Overload Scale. The following coefficients were used: Spearman correlation, Mann-Whitney or Kruskal-Wallis. Results: there was a significant relationship between the total overload and the patient's level of dependence (p=0.021) and help from others (p=0.009). The "care impact" factor was significantly related with the patient's level of dependence (p=0.006), the caregiver's gender (p=0.035) and the care help (p=0.043). Regarding the "perception of self-efficacy" factor, there was a significant relationship involving the caregiver's age (p=0.036) and, in the "caregiver expectation" factor, a significant relationship was observed with the care help (p=0.002). There was a significant and negative correlation between the total care skill and the overload factor related to interpersonal relationship (p=0.035); and between the "courage" dimension and the "perception of self-efficacy" (p=0.032) and "interpersonal relationship" (p=0.008) factors. Conclusion: the characteristics of the patient, the caregiver and the care provided influence the overload of the family caregiver, and this overload, in turn, interferes with the care skills. These results should be considered when planning interventions that aim to guide and prepare family caregivers for home care.


RESUMEN Objetivo: analizar la asociación de las características de pacientes en tratamiento oncológico, las de sus cuidadores familiares y las de los cuidados prestados con la sobrecarga, y entre esta última y la habilidade de cuidado. Método: estudio transversal desarrollado en los servicios de quimioterapia y radioterapia de un hospital universitario de Rio Grande do Sul (Brasil), entre marzo y agosto de 2017, con 132 cuidadores familiares de pacientes en tratamiento oncológico. Los datos se recolectaron por medio de un instrumento para caracterizar a los pacientes, a los cuidadores y a los cuidados, la versión brasileña del Caring Ability Inventory, y por medio de la Escala de Sobrecarga de Zarit. Se utilizaron los siguientes coeficientes: correlación de Spearman, Mann-Whitney o Kruskal-Wallis. Resultados: se observó una asociación significativa de la sobrecarga total con el grado de dependencia del paciente (p=0,021) y la ayuda de terceros para prestar los cuidados (p=0,009). El factor "impacto de los cuidados" se asoció de manera significativa con el grado de dependencia del paciente (p=0,006), el sexo del cuidador (p=0,035) y la ayuda para ofrecer los cuidados (p=0,043). En el factor "percepción de la autoeficiencia" se registró una asociación significativa con la edad del cuidador (p=0,036) y en el factor "expectativa con respecto a ofrecer los cuidados" se observó una asociación significativa con la ayuda para ofrecerlos (p=0,002). Se registró una asociación significativa y negativa entre la habilidad total de los cuidados y el factor de la sobrecarga relacionado con la relación interpersonal (p=0,035); y de la dimensión "coraje" y los factores "percepción de la autoeficiencia" (p=0,032) y relación interpersonal (p=0,008). Conclusión: las características del paciente, del cuidador y de los cuidados prestados influyen sobre la sobrecarga del cuidador familiar; y dicha sobrecarga, a su vez, interfiere en la habilidade de cuidar. Estos resultados deben ser considerados al planificar intervenciones destinadas a orientar y preparar a los cuidadores familiares para prestar cuidados domiciliarios.


RESUMO Objetivo: analisar a associação entre as características de pacientes em tratamento oncológico, de seus cuidadores familiares e do cuidado prestado com a sobrecarga, e desta com a habilidade de cuidado. Método: estudo transversal desenvolvido nos serviços de quimioterapia e radioterapia de um hospital universitário do Rio Grande do Sul (Brasil), no período de março a agosto de 2017, com 132 cuidadores familiares de pacientes em tratamento oncológico. Os dados foram coletados por instrumento de caracterização dos pacientes, dos cuidadores e do cuidado, - versão brasileira do Caring Ability Inventory e a Escala de Sobrecarga de Zarit. Os seguintes coeficientes foram utilizados: correlação de Spearman, Mann-Whitney ou Kruskal-Wallis. Resultados: foi observada associação significativa da sobrecarga total com o grau de dependência do paciente (p=0,021) e auxílio de terceiros para o cuidado (p=0,009). O fator impacto de cuidado associou-se de modo significativo com o grau de dependência do paciente (p=0,006), sexo do cuidador (p=0,035) e auxílio para o cuidado (p= 0,043). No fator percepção de autoeficácia houve associação significativa com a idade do cuidador (p=0,036) e, no fator expectativa face ao cuidar, observou-se associação significativa com o auxílio para o cuidado (p=0,002). Houve correlação significativa e negativa entre a habilidade de cuidado total e o fator da sobrecarga relacionado à relação interpessoal (p=0,035); e da dimensão coragem e os fatores percepção de autoeficácia (p=0,032) e relação interpessoal (p=0,008). Conclusão: as características do paciente, do cuidador e do cuidado prestado influenciam na sobrecarga do cuidador familiar e esta, por sua vez, interfere na habilidade de cuidado. Esses resultados devem ser considerados no planejamento de intervenções que visem orientar e preparar os cuidadores familiares para cuidados domiciliares.


Assuntos
Humanos , Família , Enfermagem , Cuidadores , Assistência Domiciliar , Neoplasias , Estudos Transversais , Serviços de Assistência Domiciliar
3.
Texto & contexto enferm ; 29: e20190075, Jan.-Dec. 2020. tab
Artigo em Inglês | LILACS, BDENF - Enfermagem | ID: biblio-1101973

RESUMO

ABSTRACT Objective: to analyze the dialogical educative process as a strategy to prepare the relatives of children with special health needs in the transition from hospital to home. Method: qualitative study developed from the Creative Sensitive Method, carried out between February and June 2018 at the Inpatient Unit of a public hospital located in the city of Rio de Janeiro. Family caregivers of nine children with special health needs in transition from hospital to home were included in the study, totaling nine participants. The empirical material was evaluated through the analysis of the French discourse. Results: the educative process allowed the relatives to unveil demands for technological and medicative care, modified habitual elements, clinically complex care and social demands to be worked on by the nurse in the transition from hospital to home. From the analysis, the following category emerged: The educative process as a strategy to prepare the relatives of children with special health needs in the transition from hospital to home. The dialogue was produced, however, without exhausting the I-You relationship, maintaining the dialogicity in the group and encouraging the exchange between the different realities of the relatives. Conclusion: the educative dialogic process is an adequate strategy to prepare the relatives of children with special health needs in the hospital-home transition, where the nurses act as coordinators, suggesting a minimum program-related content.


RESUMEN Objetivo: analizar el proceso educativo dialógico como estrategia de preparación de los familiares de niños con necesidades especiales en la transición del hospital a la casa. Método: estudio cualitativo desarrollado a partir del Método Creativo Sensible, realizado entre febrero y junio de 2018 en la Unidad de Pacientes Internados de un hospital público situado en la ciudad de Rio de Janeiro. El estudio se realizó con familiares cuidadores de nueve niños con necesidades especiales en transición del hospital hacia la casa, compuesto por el total de 9 participantes. El material empírico se evaluó por medio del análisis de discurso francés. Resultados: el proceso educativo permitió que los familiares develaran demandas de cuidados, tecnológicas y medicamentosas, cuidados habituales modificados, cuidados clínicamente complejos y demandas sociales que deben ser trabajadas por el enfermero en la transición del hospital hacia la casa. Del análisis, emergió la categoría: el proceso educativo como estrategia de preparación de los familiares de niños con necesidades especiales en la transición del hospital a la casa. El diálogo se produjo, sin embargo, sin agotar la relación yo-tu, manteniendo el carácter dialógico en el grupo e incentivando el intercambio entre las diferentes realidades de los familiares. Conclusión: el proceso educativo dialógico es una estrategia adecuada para preparar los familiares de niños con necesidades especiales de salud en la transición hospital-casa, en el cual los enfermeros actúan como coordinadores, sugiriendo un contenido programático mínimo.


RESUMO Objetivo: analisar o processo educativo dialógico como estratégia de preparo dos familiares de crianças com necessidades especiais de saúde na transição do hospital para casa. Método: estudo qualitativo desenvolvido a partir do Método Criativo Sensível, realizado entre fevereiro e junho de 2018 na Unidade de Pacientes Internos de um hospital público localizado na cidade do Rio de Janeiro. Familiares cuidadores de nove crianças com necessidades especiais de saúde em transição do hospital para casa integraram o estudo, totalizando nove participantes. O material empírico foi avaliado por meio da análise do discurso francesa. Resultados: o processo educativo permitiu que os familiares desvelassem demandas de cuidados tecnológicas e medicamentosas, habituais modificados, cuidados clinicamente complexos e demandas sociais a serem trabalhados pelo enfermeiro na transição do hospital para a casa. Da análise, emergiu a categoria: o processo educativo como estratégia de preparo dos familiares de crianças com necessidades especiais de saúde na transição do hospital para casa. O diálogo foi produzido, porém, sem esgotar a relação eu-tu, mantendo a dialogicidade no grupo e incentivando o intercâmbio entre as diferentes realidades dos familiares. Conclusão: o processo educativo dialógico é uma estratégia adequada para preparar os familiares de crianças com necessidades especiais de saúde na transição hospital-casa, no qual os enfermeiros atuam como coordenadores, sugerindo um conteúdo programático mínimo.


Assuntos
Adulto , Pessoa de Meia-Idade , Enfermagem Pediátrica , Doença Crônica , Crianças com Deficiência , Família , Saúde Pública , Educação em Saúde , Cuidadores
4.
Rev. enferm. UERJ ; 28: e44488, jan.-dez. 2020.
Artigo em Inglês, Português | LILACS, BDENF - Enfermagem | ID: biblio-1096023

RESUMO

Objetivo: identificar dúvidas de puérperas e familiares sobre cuidados domiciliares com o recém-nascido de baixo risco e analisar a roda de conversa, mediada por simulador realístico de baixa fidelidade, como uma tecnologia educativa para o preparo de famílias no processo de alta da maternidade. Método: pesquisa qualitativa, incluindo dezenove familiares de recém-nascidos de baixo risco em um hospital municipal de Rio das Ostras, Rio de Janeiro, de maio a outubro de 2018, por entrevista semiestruturada. Dados submetidos à Análise Temática. Resultados: as dúvidas dos familiares versaram sobre cuidados com higiene, alimentação, ambiente, afeto, saúde, sono e doenças. A roda de conversa com simulador de baixa fidelidade foi considerada uma estratégia positiva para mediar o aprendizado. Conclusão: a tecnologia educativa revelou-se útil na instrumentalização de famílias no processo de alta da maternidade, visto que o cuidador fortalece suas potencialidades, retira dúvidas e troca informações e experiências no grupo.


Objective: to identify puerperal and family members' questions about home care with low-risk newborns and to analyze the conversation circle, mediated by a realistic low fidelity simulator, as an educational technology for the preparation of families in the maternity discharge process. Method: qualitative research conducted with nineteen relatives of low-risk newborns in the municipal hospital in Rio das Ostras, Rio de Janeiro, Brazil, from May to October 2018, through semi-structured interview. Data submitted to thematic analysis. Results: the family members' doubts were about care with hygiene, food, environment, affection, health, sleep and diseases. The conversation wheel with low fidelity simulator was considered a positive strategy to mediate learning. Conclusion: the educational technology proved to be useful in the instrumentalization of families in the maternity discharge process, as the caregiver strengthens their potential, removes doubts and exchanges information and experiences in the group.


Objetivo: identificar dudas puerperales y familiares sobre atención domiciliaria con recién nacidos de bajo riesgo y analizar el círculo de conversación, mediado por simulador realista de baja fidelidad, como una tecnología educativa de preparación de familias en el proceso de alta de la maternidad. Método: investigación cualitativa, con diecinueve familiares de recién nacidos de bajo riesgo en un hospital municipal en Río das Ostras, Río de Janeiro, de mayo a octubre de 2018, a través de entrevistas semiestructuradas. Se utilizó a Análisis temático. Resultados: las dudas fueron sobre higiene, alimentación, medio ambiente, afecto, salud, sueño y enfermedades. El círculo de conversación con simulador se consideró una estrategia positiva para mediar en el aprendizaje. Conclusión: la tecnología educativa demostró ser útil en la instrumentalización de familias en el proceso de alta de la maternidad, porque el cuidador fortalece su potencial, elimina dudas e intercambia información y experiencias en el grupo.


Assuntos
Humanos , Masculino , Feminino , Adulto , Adulto Jovem , Alta do Paciente , Recém-Nascido , Família , Cuidadores/educação , Tecnologia Educacional , Assistência Domiciliar/educação , Brasil , Tecnologia Educacional/métodos , Pesquisa Qualitativa , Treinamento por Simulação , Maternidades , Hospitais Municipais
5.
J Dent Hyg ; 94(5): 14-21, 2020 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-33008945

RESUMO

Purpose: Children of Hispanic seasonal or migrant farmworkers in the United States (US) experience high rates of Early Childhood Caries (ECC) and have high rates of untreated dental caries. The purpose of this study was to explore Hispanic seasonal farmworker caregivers' beliefs and/or perceptions regarding ECC their children's oral health.Methods: A qualitative explanatory model interview approach was used with a purposive sample of Hispanic parents/caregivers, working and residing in Orange and Ulster Counties, New York. The Explanatory Model Interview Catalogue (EMIC) was used as a guide to the semi-structured, recorded interviews conducted in locations selected by the participants. The texts were independently read and thematically analyzed by two researchers.Results: A total of 20 parents/caregivers consented to participate. Six themes were identified for the components of the EMIC and included: etiology: eating candy/sweets (65%); sign/symptoms of decay: tooth color change (50%); pathophysiology: not brushing daily (75%); course of disease/impact on daily life: appearance (40%); impact of caries on child's future health: affects child until adult teeth erupt (25%); treatment for pain: tooth brushing (55%). Over half of the respondents (55%) indicated that getting dental care for their children was a priority.Conclusion: Results from this study showed that Hispanic seasonal farmworkers have a desire to maintain their children's oral health. However, they lacked knowledge in some key concepts related to the disease process and prevention of ECC. Caregivers need additional oral health education with consideration for oral health literacy.


Assuntos
Cuidadores , Cárie Dentária , Adulto , Criança , Pré-Escolar , Fazendeiros , Hispano-Americanos , Humanos , New York , Estações do Ano
6.
JCO Glob Oncol ; 6: 1494-1509, 2020 10.
Artigo em Inglês | MEDLINE | ID: mdl-33017179

RESUMO

PURPOSE: The coronavirus disease 2019 (COVID-19) pandemic has had a global impact, and Singapore has seen 33,000 confirmed cases. Patients with cancer, their caregivers, and health care workers (HCWs) need to balance the challenges associated with COVID-19 while ensuring that cancer care is not compromised. This study aimed to evaluate the psychological effect of COVID-19 on these groups and the prevalence of burnout among HCWs. METHODS: A cross-sectional survey of patients, caregivers, and HCWs at the National Cancer Centre Singapore was performed over 17 days during the lockdown. The Generalized Anxiety Disorder-7 and Maslach Burnout Inventory were used to assess for anxiety and burnout, respectively. Self-reported fears related to COVID-19 were collected. RESULTS: A total of 624 patients, 408 caregivers, and 421 HCWs participated in the study, with a response rate of 84%, 88%, and 92% respectively. Sixty-six percent of patients, 72.8% of caregivers, and 41.6% of HCWs reported a high level of fear from COVID-19. The top concern of patients was the wide community spread of COVID-19. Caregivers were primarily worried about patients dying alone. HCWs were most worried about the relatively mild symptoms of COVID-19. The prevalence of anxiety was 19.1%, 22.5%, and 14.0% for patients, caregivers, and HCWs, respectively. Patients who were nongraduates and married, and caregivers who were married were more anxious. The prevalence of burnout in HCWs was 43.5%, with more anxious and fearful HCWs reporting higher burnout rates. CONCLUSION: Fears and anxiety related to COVID-19 are high. Burnout among HCWs is similar to rates reported prepandemic. An individualized approach to target the specific fears of each group will be crucial to maintain the well-being of these vulnerable groups and prevent burnout of HCWs.


Assuntos
Ansiedade/epidemiologia , Esgotamento Profissional/epidemiologia , Cuidadores/psicologia , Infecções por Coronavirus/psicologia , Neoplasias/psicologia , Pneumonia Viral/psicologia , Adulto , Idoso , Ansiedade/diagnóstico , Ansiedade/psicologia , Betacoronavirus/patogenicidade , Esgotamento Profissional/diagnóstico , Esgotamento Profissional/psicologia , Institutos de Câncer/organização & administração , Institutos de Câncer/normas , Infecções por Coronavirus/epidemiologia , Infecções por Coronavirus/prevenção & controle , Infecções por Coronavirus/transmissão , Estudos Transversais , Medo/psicologia , Feminino , Pessoal de Saúde/psicologia , Acesso aos Serviços de Saúde/organização & administração , Acesso aos Serviços de Saúde/normas , Humanos , Controle de Infecções/normas , Transmissão de Doença Infecciosa do Paciente para o Profissional/prevenção & controle , Transmissão de Doença Infecciosa do Profissional para o Paciente/prevenção & controle , Masculino , Oncologia/organização & administração , Oncologia/normas , Pessoa de Meia-Idade , Neoplasias/terapia , Pandemias/prevenção & controle , Pneumonia Viral/epidemiologia , Pneumonia Viral/prevenção & controle , Pneumonia Viral/transmissão , Prevalência , Singapura/epidemiologia , Carga de Trabalho/psicologia
7.
BMC Infect Dis ; 20(1): 738, 2020 Oct 07.
Artigo em Inglês | MEDLINE | ID: mdl-33028260

RESUMO

BACKGROUND: In accordance with international guidance for tuberculosis (TB) prevention, the Tanzanian Ministry of Health recommends isoniazid preventive therapy (IPT) for children aged 12 months and older who are living with HIV. Concerns about tolerability, adherence, and potential mistreatment of undiagnosed TB with monotherapy have limited uptake of IPT globally, especially among children, in whom diagnostic confirmation is challenging. We assessed IPT implementation and adherence at a pediatric HIV clinic in Tanzania. METHODS: In this prospective cohort study, eligible children living with HIV aged 1-15 years receiving care at the DarDar Pediatric Program in Dar es Salaam who screened negative for TB disease were offered a 6-month regimen of daily isoniazid. Patients could choose to receive IPT via facility- or community-based care. Parents/caregivers and children provided informed consent and verbal assent respectively. Isoniazid was dispensed with the child's antiretroviral therapy every 1-3 months. IPT adherence and treatment completion was determined by pill counts, appointment attendance, and self-report. Patients underwent TB symptom screening at every visit. RESULTS: We enrolled 66 children between July and December 2017. No patients/caregivers declined IPT. Most participants were female (n = 43, 65.1%) and the median age was 11 years (interquartile range [IQR] 8, 13). 63 (95.5%) participants chose the facility-based model; due to the small number of participants who chose the community-based model, valid comparisons between the two groups could not be made. Forty-nine participants (74.2%) completed IPT within 10 months. Among the remaining 17, 11 had IPT discontinued by their provider due to adverse drug reactions, 5 lacked documentation of completion, and 1 had unknown outcomes due to missing paperwork. Of those who completed IPT, the average monthly adherence was 98.0%. None of the participants were diagnosed with TB while taking IPT or during a median of 4 months of follow-up. CONCLUSIONS: High adherence and treatment completion rates can be achieved when IPT is integrated into routine, self-selected facility-based pediatric HIV care. Improved record-keeping may yield even higher completion rates. IPT was well tolerated and no cases of TB were detected. IPT for children living with HIV is feasible and should be implemented throughout Tanzania.


Assuntos
Antituberculosos/uso terapêutico , Infecções por HIV/patologia , Isoniazida/uso terapêutico , Tuberculose/prevenção & controle , Adolescente , Instituições de Assistência Ambulatorial , Antirretrovirais/uso terapêutico , Cuidadores/psicologia , Criança , Pré-Escolar , Feminino , Infecções por HIV/tratamento farmacológico , Humanos , Lactente , Masculino , Adesão à Medicação , Cooperação do Paciente , Estudos Prospectivos , Tanzânia , Resultado do Tratamento
8.
J Alzheimers Dis ; 77(2): 539-541, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-32925073

RESUMO

The ongoing coronavirus disease 2019 (COVID-19) pandemic has substantially affected patients with dementia and their caregivers. However, we found not all Alzheimer's disease (AD) patients were afraid of COVID-19 infection. Therefore, we investigated the association between rate of awareness of COVID-19 and depressive tendency in AD. 126 consecutive outpatients with AD were enrolled in this study from May 25, on the day when the declaration of emergency was lifted in Japan, through June 30, 2020. In addition to routine psychological tests, the participants were asked the following two questions: "Do you know COVID-19?" and "Why are you wearing a face mask?". Moderate to severe AD patients were found to have a low COVID-19 recognition rate and did not fully understand why they were wearing face masks. In addition, because they did not understand the seriousness of the COVID-19 outbreak, their Geriatric Depression Scale scores were also substantially lower. These results may appear to simply indicate that people with severe dementia are unaware of current events. However, these results provide insights into how to care for patients with dementia and how to allocate the time and support of our limited staff during the COVID-19 outbreak.


Assuntos
Doença de Alzheimer , Conscientização , Infecções por Coronavirus , Competência Mental , Pandemias , Assistência ao Paciente , Pneumonia Viral , Idoso , Doença de Alzheimer/diagnóstico , Doença de Alzheimer/psicologia , Doença de Alzheimer/virologia , Betacoronavirus , Cuidadores/psicologia , Controle de Doenças Transmissíveis/organização & administração , Infecções por Coronavirus/epidemiologia , Infecções por Coronavirus/prevenção & controle , Infecções por Coronavirus/psicologia , Feminino , Humanos , Japão/epidemiologia , Masculino , Pandemias/prevenção & controle , Assistência ao Paciente/métodos , Assistência ao Paciente/tendências , Pneumonia Viral/epidemiologia , Pneumonia Viral/prevenção & controle , Pneumonia Viral/psicologia , Sistemas de Apoio Psicossocial , Índice de Gravidade de Doença
9.
Rev Med Suisse ; 16(707): 1737-1740, 2020 Sep 23.
Artigo em Francês | MEDLINE | ID: mdl-32969608

RESUMO

This article presents the construction of a chain of care of perinatal psychiatric situations within the University Service of Child and Adolescent Psychiatry, which evolved within the framework of the departmentalization of this service. This chain of care includes the psychiatry of the liaison, the outpatient clinics as well as and day hospital care and extends from the prenatal period to the child's five years, with a focus on the relationship between child and caregivers, as well as an individual perspective on the child. Herein, we present and describe the different units and their functioning emphasizing the synergies and collaborations put in place that ensure the best possible continuity for patients and their families by promoting as much as possible the therapeutic alliance in this chain of care.


Assuntos
Psiquiatria do Adolescente/organização & administração , Psiquiatria Infantil/organização & administração , Adolescente , Cuidadores , Criança , Saúde da Família , Feminino , Humanos , Transtornos Mentais/terapia , Gravidez , Universidades
10.
Zhonghua Yi Xue Za Zhi ; 100(35): 2758-2762, 2020 Sep 22.
Artigo em Chinês | MEDLINE | ID: mdl-32972056

RESUMO

Objective: To explore the characteristics of psychiatric symptoms and caregivers' distress in anti-N-methyl-D-aspartate receptor (NMDAR) encephalitis. Methods: Seventy-two patients with anti-NMDAR encephalitis were investigated in Peking Union Medical College Hospital from 2011 to 2018. The Chinese version of the Neuropsychiatric Inventory-Questionnaire (NPI-Q) was used to assess the severity of neuropsychiatric symptoms and caregivers' distress around the treatment. Results: A highly positive correlation existed between severity scores of neuropsychiatric symptoms and caregiver distress, and pre- and post-treatment correlation coefficients was 0.872 and 0.947, respectively (all P<0.001). The frequency of 12 symptom domains was higher than 45% before treatment, however, it significantly reduced to below 45% after treatment. Irritability/lability, agitation/aggression were the most common neuropsychiatric symptoms. Irritability/lability, agitation/aggression, and nighttime behavioral disturbances occurred concurrently. Patients with severe symptoms tended to be administrated antipsychotics (Z=-2.581, P=0.01). Neuropsychiatric symptoms significantly improved after immunotherapy (Z=-6.611, P<0.001). There was no significant difference in the symptom severity and distress subscale scores between the first episode and relapse around the therapy (P>0.05). Conclusion: Patients with anti NMDAR encephalitis often present severe neuropsychiatric symptoms, which aggravate the burden on caregivers. Immunotherapy significantly improves neuropsychiatric symptoms, and thus reduces the distress of caregivers.


Assuntos
Encefalite Antirreceptor de N-Metil-D-Aspartato , Transtornos Mentais , Ansiedade , Cuidadores , Humanos , Recidiva Local de Neoplasia
11.
Cien Saude Colet ; 25(9): 3555-3556, 2020 Sep.
Artigo em Inglês, Português | MEDLINE | ID: mdl-32876280

RESUMO

We live in a global pandemic unprecedented in our generation. These are challenging times for healthcare workers. We are all in the same storm and join the same collective effort against COVID-19. However, we are not in the same boat. Inequality determines how each category of the health workforce is affected by the new coronavirus in Brazil. Exposed to the disease on the frontlines, nursing technicians and assistants suffer disproportionately the dire effects of the pandemic. More than 1.3 million technicians and almost 420 thousand nursing assistants provide essential care in health units and do not have the assistance and financial backing to mitigate the effects of COVID-19 on themselves and their families. Eight in every ten of these professionals are women, who are providers and also assume, in most cases, the role of primary caregivers for children, older adults, and the sick in their families. Low wages make hinder access to safer transportation and care alternatives for dependents, which is the reality of most professionals who keep the health system running throughout the pandemic.


Assuntos
Infecções por Coronavirus/epidemiologia , Pessoal de Saúde/estatística & dados numéricos , Disparidades nos Níveis de Saúde , Pneumonia Viral/epidemiologia , Brasil/epidemiologia , Cuidadores/estatística & dados numéricos , Infecções por Coronavirus/terapia , Assistência à Saúde/organização & administração , Feminino , Pessoal de Saúde/organização & administração , Humanos , Masculino , Pandemias , Pneumonia Viral/terapia
13.
Evid Based Dent ; 21(3): 110-111, 2020 09.
Artigo em Inglês | MEDLINE | ID: mdl-32978546

RESUMO

Aim To investigate the differential preventive effect of motivational interviewing on early childhood caries according to socioeconomic variables in a primary healthcare setting. Trial design Randomised, double-blind trial with two parallel groups, based in a community setting.Study population Selected from an invited subgroup of children born in 2013 and 2014 in the northern area of the city of Porto Alegre, Rio Grande do Sul, BrazilInterventions Primary caregivers of the patients were randomised to receive information about breastfeeding, child nutrition and oral hygiene during an initial dental appointment in the patient's first year of life either by conventional delivery techniques or by motivational interviewing.Outcomes Analysis of dmfs index from clinical examinationResults Nine-hundred and fifteen patients were randomised to the two arms and 414 children were included in the study, with 501 lost to follow up. One-hundred and eighty-six received conventional health education, and 228 received motivational interviewing. The caries rate per 100 surface year was 1.29 for the conventional education group, and 0.46 for the motivational interviewing group. The effect of motivational interviewing was statistically significant in the lower-income category with prevention of 57% of carious lesions. There was no such statistically significant difference in the higher income subjects.Conclusions The outcome showed reduced caries experience by children where their primary caregiver has received preventative advice via a motivational interviewing technique when compared to conventional education methods. This study suggests that motivational interviewing is more effective in more disadvantaged groups.


Assuntos
Cárie Dentária , Entrevista Motivacional , Cuidadores , Criança , Pré-Escolar , Método Duplo-Cego , Humanos , Higiene Bucal
14.
Soins Gerontol ; 25(145): 31-33, 2020.
Artigo em Francês | MEDLINE | ID: mdl-32988485

RESUMO

Geriatric caregivers are subjected to physically and psychologically demanding situations. A geriatric short-stay service has implemented measures with a unique, creative and dynamic approach. These include participatory management, benevolence and the enhancement of the quality of work.


Assuntos
Cuidadores , Geriatria , Idoso , Humanos
15.
Soins Gerontol ; 25(145): 34-39, 2020.
Artigo em Francês | MEDLINE | ID: mdl-32988486

RESUMO

The malaise in the gerontology sector can be accounted for and new explanations for caregiver burnout can be proposed. Through a review of the literature, an overview of the issue can be drawn up and a theoretical and clinical reflection can be initiated. After having contextualized the extent of the phenomenon, we will present the plural conceptions of burn out and its origin. A new look will be taken at this syndrome by raising a set of factors potentially involved in the exhaustion of caregivers.


Assuntos
Esgotamento Profissional , Cuidadores/psicologia , Geriatria , Idoso , Humanos
16.
Soins Gerontol ; 25(145): 40-45, 2020.
Artigo em Francês | MEDLINE | ID: mdl-32988487

RESUMO

A significant proportion of elderly people suffering from neurodegenerative pathologies are cared for by an informal caregiver. From the earliest stages of the disease, the psychological and behavioural disorders of patients constitute stress and anxiety factors for their caregivers. Mindfulness meditation has proven its usefulness in the management of anxiety. A study proposes caregiver management based on a mindfulness meditation program.


Assuntos
Cuidadores/psicologia , Meditação/psicologia , Atenção Plena , Idoso , Ansiedade/prevenção & controle , Humanos , Estresse Psicológico/psicologia
17.
Soins ; 65(845): 10-13, 2020 May.
Artigo em Francês | MEDLINE | ID: mdl-32862956

RESUMO

There is a close link between care and communication. The purpose of the study is to evaluate therapeutic communication when bed washing patients, which dependent patients may experience as an aggressive treatment. Improved comfort, improved serenity, less intense pain, lower pulse and blood pressure have been observed in patients looked after by caregivers practising therapeutic communication.


Assuntos
Banhos , Cuidadores/psicologia , Comunicação , Relações Profissional-Paciente , Humanos , Resultado do Tratamento
18.
Soins ; 65(845): 25-26, 2020 May.
Artigo em Francês | MEDLINE | ID: mdl-32862960

RESUMO

In terms of health, women and men are not on equal footing. Not only due to biological factors, but also in the social, cultural and economic realms. Gender bias influences medical practice, research, teaching and behaviour of both caregivers and patients. This bias results in situations of inequality as well as gender discrimination in access to health and medical care. Taking gender into account in matters of health is a major bioethical issue.


Assuntos
Disparidades nos Níveis de Saúde , Sexismo , Cuidadores/psicologia , Feminino , Disparidades em Assistência à Saúde , Humanos , Masculino , Fatores Sexuais , Fatores Socioeconômicos
20.
Vaccine ; 38(44): 6882-6888, 2020 10 14.
Artigo em Inglês | MEDLINE | ID: mdl-32912643

RESUMO

INTRODUCTION: The Changchun Changsheng Vaccine Incident (CCVI) occurred mid-2018 and involved irregularities in the manufacture and quality control of diphtheria-tetanus-acellular-pertussis and rabies vaccines. This study investigates vaccine confidence amongst Chinese caregivers and vaccination-service providers (VSPs) six months after the CCVI. METHODS: Quantitative surveys were conducted in January 2019 with 2124 caregivers of children and 555 VSPs in three areas in China. The proportions of respondents who agreed to the four statements from the Vaccine Confidence Index™ were used to measure vaccine confidence. Descriptive and univariate analyses were performed to study the level of vaccine confidence. Semi-structured interviews were conducted with 48 caregivers, 43 VSPs and 9 immunization program managers. Interviews were analyzed thematically using a combination of deductive and inductive coding. Media surveillance was conducted to monitor public responses to the CCVI. RESULTS: Media surveillance indicated that public attention to vaccine-related issues increased sharply immediately post-CCVI but declined rapidly thereafter. Six months post-CCVI, 96.0% of caregivers and the same proportion of VSPs reported that vaccination was important and compatible with their religious beliefs. 82.7% and 88.2% of caregivers agreed that vaccines were safe and effective. 92.8% and 94.6% of VSPs agreed that vaccines were safe and effective. Both caregivers and VSPs reported an immediate decline in vaccine confidence post-CCVI. In most cases this trust was regained over time following government and public health responses, however some people remained hesitant about vaccinating their children. Many VSPs were overwhelmed by consultations, workload and psychological pressure after the CCVI. CONCLUSION: After an initial decline, vaccine confidence recovered to pre-incident levels six months after the CCVI. However, some caregivers moved from the higher to the lower end of the vaccine confidence spectrum, pointing to the need to promote the acceptance of vaccination especially given the need for new vaccines to control the coronavirus epidemic.


Assuntos
Cuidadores/psicologia , Corpo Clínico/psicologia , Controle de Qualidade , Retirada de Medicamento Baseada em Segurança , Confiança/psicologia , Adulto , China , Estudos Transversais , Vacinas contra Difteria, Tétano e Coqueluche Acelular/efeitos adversos , Feminino , Humanos , Programas de Imunização , Masculino , Pessoa de Meia-Idade , Vacinas Antirrábicas/efeitos adversos , Inquéritos e Questionários , Vacinação/estatística & dados numéricos , Recusa de Vacinação/psicologia
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