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Sr Care Pharm ; 35(1): 38-46, 2020 Jan 01.
Artigo em Inglês | MEDLINE | ID: mdl-31883544


OBJECTIVE: To describe recommendations made by geriatric clinical pharmacists within an innovative care model focusing on patients with dementia living at home. DESIGN: Retrospective chart review. SETTING: Outpatients in a tertiary care Veterans Affairs health care system. PARTICIPANTS: Veterans who underwent a Caring for Older Adults and Caregivers at Home (COACH) Program assessment and had at least one medicationrelated recommendation made by a geriatric clinical pharmacist. MAIN OUTCOME MEASURES: The primary endpoint was the number and category of medication-related recommendations made by a geriatric clinical pharmacist at the initial COACH program assessment. Secondary endpoints were recommendation acceptance rates and change in potentially inappropriate medications (PIMs) at six months. RESULTS: There were 104 patients included. The mean age was 81 years and the majority of patients were male and Caucasian. At baseline, patients were receiving a mean of 12 medications/person, and 59% of patients were receiving at least one PIM. There were 248 total medication recommendations made, with a mean of 2.4 recommendations/person (range 1-5). The three most common recommendation categories were to discontinue a drug, decrease the dose, and switch to a potentially safer alternative. Providers accepted 110 (44%) recommendations within six months. Patients were receiving a mean of one PIM/person at baseline, and no change was observed at six months.CONCLUSION: This study describes recommendations made through medication reviews by geriatric clinical pharmacists within an innovative care model for patients with dementia living at home. These data may provide information to other clinical pharmacists implementing consult services in similar settings.

Cuidadores , Farmacêuticos , Idoso de 80 Anos ou mais , Empatia , Feminino , Humanos , Masculino , Lista de Medicamentos Potencialmente Inapropriados , Estudos Retrospectivos
J Nurs Adm ; 50(1): 40-44, 2020 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-31809455


The purpose of the Aging Well Nursing-Interprofessional Salon was to explore current local community healthcare issues for older adults and to develop innovative strategies that support and enhance their health. An initiative emerged from the salon that focuses on identifying caregivers to ensure their awareness of available support resources. We are in the process of developing a pilot plan that includes collaboration of PhD and doctorate of nursing practice students, nursing faculty, and community agencies that support older adults.

Cuidadores , Serviços de Saúde Comunitária , Serviços de Saúde para Idosos , Profissionais de Enfermagem , Idoso , Feminino , Humanos , Masculino , Massachusetts
Ned Tijdschr Tandheelkd ; 126(12): 665-671, 2019 Dec.
Artigo em Holandês | MEDLINE | ID: mdl-31840678


The ageing of the population in the Netherlands and in Belgium and the growing number of older people who still have their own teeth mean that dentists are seeing older patients in their dental practices increasingly often. Loss of cognitive abilities can hinder communication with the patients. Dementia and care-resistant behaviour demand a special patient-centred approach. In addition, frail older people are often dependent on carers or volunteers who actively participate in the conversation when the patient visits the dentist. This article addresses issues dentists should take into account in such cases. It also makes suggestions about how most effectively to direct communications with older patients and/or their companions.

Comunicação , Odontólogos , Idoso , Idoso de 80 Anos ou mais , Bélgica , Cuidadores , Humanos , Países Baixos
Soins ; 64(840): 11-16, 2019 Nov.
Artigo em Francês | MEDLINE | ID: mdl-31847962


In surgery and anaesthesia safety rules and criteria must be respected. Checks need to be made by caregivers at certain stages. The patient should also be involved in these checks. The surgical patient self-check list is the tool used in this approach.

Lista de Checagem , Segurança do Paciente , Cuidadores , Humanos , Pacientes
Soins ; 64(841): 1, 2019 Dec.
Artigo em Francês | MEDLINE | ID: mdl-31864503

Cuidadores , Humanos
Soins ; 64(841): 50-51, 2019 Dec.
Artigo em Francês | MEDLINE | ID: mdl-31864514


Beyond the checking of a prescription, the pathophysiological characteristics of the patient and the other prescribed medicines, pharmacists contribute to the field of oncology in their other missions. The benefits in terms of the reduction of risks for caregivers have been favoured by the centralisation of preparations combined with the application of other methods derived from industry. Research is continuing in order to dispense safe medicines which comply with the prescription and control the risks linked to the use of these highly active medicines.

Cuidadores/psicologia , Relações Interprofissionais , Neoplasias/tratamento farmacológico , Farmacêuticos/psicologia , Humanos
Rev Infirm ; 68(256): 33-34, 2019 Dec.
Artigo em Francês | MEDLINE | ID: mdl-31870477


Emotional skills refer to the ability to identify, understand, express, use one's emotions and those of others. For caregivers, who are experiencing increasingly stressful work conditions and who are accompanying people going through painful moments in their lives, emotional skills are a valuable tool. They make it easier to take a step back from the professional and personal experience and thus promote a better quality of life at work. They concern health students in their initial training.

Cuidadores , Estresse Ocupacional , Local de Trabalho , Cuidadores/psicologia , Emoções , Humanos , Enfermeiras e Enfermeiros/psicologia , Qualidade de Vida
Rev Infirm ; 68(256): 40-42, 2019 Dec.
Artigo em Francês | MEDLINE | ID: mdl-31870480


Reducing tobacco consumption does not reduce the risk of mortality and morbidity associated with pathologies caused by smoking. It should therefore only be a transitional step towards a complete stop. Caregivers will encourage the use of smoking cessation medication that avoid the phenomenon of compensation and promote complete cessation of smoking.

Abandono do Hábito de Fumar , Uso de Tabaco , Cuidadores , Humanos , Fumar , Prevenção do Hábito de Fumar
Rev. Esc. Enferm. USP ; 53: e03491, Jan.-Dez. 2019. graf
Artigo em Inglês, Português | LILACS, BDENF - Enfermagem | ID: biblio-1020389


RESUMO Objetivo Relatar as experiências educativas das mães ou cuidadoras de crianças com microcefalia, desenvolvidas por equipe acadêmica na temática da promoção da saúde dessas crianças. Método Trata-se de relato de experiência vivenciado por alunos do curso de graduação em enfermagem, discentes e docentes do programa de Pós-Graduação em Saúde e Ambiente da Universidade Tiradentes sobre intervenções educativas realizadas em três unidades de referência no atendimento à criança com microcefalia no estado de Sergipe. A amostra do estudo foi de conveniência. Resultados Participaram da pesquisa 70 mães ou cuidadoras principais de crianças com diagnóstico confirmado de microcefalia, durante os meses de setembro a dezembro. Os eixos temáticos-teóricos selecionados para descrever as atividades foram promoção da alimentação saudável, importância do vínculo mãe e filho e estimulação precoce de crianças com microcefalia. Conclusão A experiência relatada demostrou a importância das estratégias educativas na promoção da saúde de crianças com microcefalia, proporcionando capacitação adicional às mães/cuidadoras para que estas ofereçam um cuidado holístico e humanizado a essas crianças.

RESUMEN Objetivo Relatar las experiencias educativas de las madres o cuidadoras de niños con microcefalia, desarrolladas por equipo académico en la temática de la promoción de la salud de esos niños. Método Se trata de relato de experiencia vivida por alumnos de la carrera universitaria de enfermería, discentes y docentes del programa de Posgrado en Salud y Ambiente de la Universidad Tiradentes acerca de intervenciones educativas realizadas en tres unidades de referencia en la atención al niño con microcefalia en el Estado de Sergipe. La muestra del estudio fue de conveniencia. Resultados Participaron en la investigación 70 madres o cuidadoras principales de niños con diagnóstico de microcefalia, durante los meses de septiembre a diciembre. Los ejes temáticos-teóricos seleccionados para describir las actividades fueron promoción de la alimentación sana, importancia del vínculo madre e hijo y estimulación precoz de niños con microcefalia. Conclusión La experiencia relatada demostró la importancia de las estrategias educativas en la promoción de la salud de niños con microcefalia, proporcionando capacitación adicional a las madres/cuidadoras a fin de que estas proporcionen un cuidado holístico y humanizado a esos niños.

ABSTRACT Objective To report the educational experiences of mothers or caregivers of children with microcephaly, as developed by an academic team with the theme of promoting these children's health. Method This is an experience report by undergraduate nursing students and Health and Environment Post-Graduation students and professors of Tiradentes University on educational interventions carried out in three reference units for the care of children with microcephaly in the state of Sergipe. The study sample was taken by convenience. Results A total of 70 mothers or primary caregivers of children with a confirmed diagnosis of microcephaly during the months of September to December participated in the study. The thematic-theoretical axes selected to describe the activities were promotion of healthy eating, importance of the mother and child bond, and early stimulation of children with microcephaly. Conclusion The experience reported demonstrates the importance of educational strategies in promoting the health of children with microcephaly, providing additional training to mothers/caregivers to provide holistic and humanized care to these children.

Humanos , Feminino , Adolescente , Adulto , Pessoa de Meia-Idade , Educação em Saúde , Cuidadores , Promoção da Saúde , Microcefalia/terapia , Mães , Entrevista , Enfermagem Familiar , Pesquisa Qualitativa
Rev. Esc. Enferm. USP ; 53: e03466, Jan.-Dez. 2019.
Artigo em Inglês, Espanhol | LILACS, BDENF - Enfermagem | ID: biblio-1020391


RESUMEN Objetivo Describir la experiencia del cuidado familiar a la mujer con cáncer de mama durante el tratamiento, desde la perspectiva de los cuidadores en el contexto mexicano. Método Estudio cualitativo fenomenológico. Fueron realizadas entrevistas en profundidad con cuidadores de mujeres sobrevivientes de cáncer de mama seleccionados mediante muestreo intencional, acumulativo y secuencial. Se llevó a cabo un análisis de contenido convencional. Resultados Participaron siete cuidadores. Los cuidadores refieren sus experiencias positivas y negativas al asumir su rol de cuidadores informales en el contexto familiar. Sobre la fortaleza de la reciprocidad del cuidado y su recompensa, prevalecen los momentos críticos, los sentimientos negativos y la falta de recursos de apoyo durante la experiencia. Ello permite entender el vínculo del cuidado informal para potenciarlo con estrategias de afrontamiento y orientación especifica por parte del personal de enfermería. Conclusión Los participantes experimentaron una transformación en su identidad como cuidadores y al ser conscientes de su experiencia, fueron capaces de describir sus cualidades lo que incrementa sus estrategias de afrontamiento tanto de la enfermedad como de los desafíos del cuidado.

RESUMO Objetivo Descrever a experiência do cuidado familiar com a mulher com câncer de mama durante o tratamento, do ponto de vista dos cuidadores no contexto mexicano. Método Estudo qualitativo fenomenológico. Foram realizadas entrevistas em profundidade com cuidadores de mulheres sobreviventes ao câncer de mama selecionados por meio de amostragem intencional, acumulativa e sequencial. Foi realizada uma análise de conteúdo convencional. Resultados Participaram sete cuidadores. Os cuidadores relatam suas experiências positivas e negativas ao assumir seu papel de cuidadores informais no contexto familiar. Sobre a força da reciprocidade do cuidado e sua recompensa, prevalecem os momentos críticos, os sentimentos negativos e a falta de recursos de apoio durante a experiência. Isso permite entender o vínculo do cuidado informal para potencializá-lo com estratégias de enfrentamento e orientação específica por parte do pessoal de enfermagem. Conclusão Os participantes experimentaram uma transformação na sua identidade como cuidadores e, ao ser conscientes da sua experiência, foram capazes de descrever suas qualidades, o que aumenta suas estratégias de enfrentamento tanto da doença quanto dos desafios do cuidado.

ABSTRACT Objective To describe the experience of family care to women with breast cancer during treatment from the perspective of caregivers in the Mexican context. Method Qualitative phenomenological study. In-depth interviews were conducted with caregivers of women who survived breast cancer. Participants were selected by intentional, cumulative and sequential sampling. A conventional content analysis was performed. Results Participation of seven caregivers, who reported their positive and negative experiences when assuming their role as informal caregivers in the family context. On the strength of the reciprocity of care and its reward, prevailed critical moments, negative feelings, and lack of support resources during the experience. This enables the understanding of the informal care bond in order to enhance it with coping strategies and specific guidance from the nursing staff. Conclusion Participants experienced a transformation in their identity as caregivers and by being aware of their experience, they could describe their qualities, which increased their coping strategies with the disease and the care challenges.

Humanos , Feminino , Adulto , Pessoa de Meia-Idade , Idoso , Neoplasias da Mama/terapia , Família , Cuidadores/psicologia , Enfermagem Oncológica , Entrevista , Pesquisa Qualitativa
Rev. latinoam. cienc. soc. niñez juv ; 17(2): 170-192, jul.-dic. 2019. tab
Artigo em Espanhol | LILACS | ID: biblio-1043048


Resumen (analítico) Es posible evitar las lesiones no intencionales, particularmente en los menores, esto se ve obstruido por la percepción de los cuidadores. La narrativa recupera la experiencia de los cuidadores, padres, familiares, analizando la visión sobre las lesiones, en hijos o menores a cargo, hospitalizados. A partir de los resultados se percibe que hay una reducción de la percepción de riesgo en los cuidadores y carencia en la información de medidas preventivas. Además, una creencia de carencia de control, cedido al destino. Se concluye que existe una ingenuidad preventiva en la sobreestimación de las capacidades de los niños. Una percepción de riesgo, creencias y conductas que reducen la valoración del peligro. Roles de género y estatus socio-económico son bases de esta visión fatalista. Resultando la reducción de capacidades de prevención, hacia hijos o menores a cargo.

Abstract (analytical) It is possible to avoid unintentional injuries, particularly in children. This is affected by the perceptions of caregivers. This study collects the experiences of caregivers, parents and relatives, analyzing their visions of injuries of their children or children under their care who have been hospitalized. Based on the results it is perceived that there is a reduction of the perception of risk among caregivers and a lack of information on preventive measures. In addition, there is a belief that they have a lack of control and that it is unavoidable that children injure themselves. The authors conclude that there is a preventative naivety that exists among parents and caregivers and an overestimation of the abilities of children. There are perceptions of risk, beliefs and behaviors that reduce the levels of danger perceived by adults. Traditional gender roles and socio-economic status form the basis of this fatalistic vision. This results in a reduction of prevention capacities that protect adults' children and children under their care.

Resumo (analítico) É possível evitar lesões não intencionais, particularmente em crianças, ainda que obstruídas pela percepção dos cuidadores. A narrativa recupera a experiência dos pais ou familiares cuidadores, analisando a visão sobre as lesões, em crianças ou menores responsáveis, internados. A partir dos resultados nota-se que há redução na percepção do risco nos cuidadores e falta de informação sobre medidas cautelares. Além disso, uma crença de falta de controle, dada ao destino. Há também ingenuidade preventiva e superestimação das capacidades das crianças. Uma percepção de risco, crenças e comportamentos que reduzem a avaliação do perigo. Os papéis de gênero e o status socioeconômico são a base dessa visão fatalista. Redução resultante de capacidades de prevenção, para crianças ou menores responsáveis.

Acidentes , Criança , Cuidadores
Wien Med Wochenschr ; 169(15-16): 387-393, 2019 Nov.
Artigo em Alemão | MEDLINE | ID: mdl-31728785


The original English version of the palliative performance scale (PPS) has been used for two decades to describe the functional status of palliative patients. Based on clinical parameters PPS helps to estimate the survival time of palliative patients: the higher the functional status the longer the survival. This is interesting for patients, their family caregivers and health care professionals in order to plan for care. Until now there has not been published an official German version of the PPS.The functional status via a German version of the PPS of 394 patients of a palliative consulting team and their survival times were analyzed. Kaplan-Meier-curves were drawn and tested for differences. The hypothesis was tested if functional status using the German version of the PPS and survival are correlated. In this population differences in survival could clearly be shown for any category of PPS.This German version of the PPS is a useful and possible tool to estimate survival time of palliative patients using just clinical information.

Neoplasias , Cuidados Paliativos , Sobreviventes de Câncer/estatística & dados numéricos , Cuidadores , Humanos , Neoplasias/mortalidade , Cuidados Paliativos/estatística & dados numéricos , Prognóstico , Análise de Sobrevida
Rev Med Suisse ; 15(671): 2110-2113, 2019 Nov 13.
Artigo em Francês | MEDLINE | ID: mdl-31742943


In the absence of curative pharmaceutical treatment for evolving cognitive impairment, non-drug interventions are key components in patients' and caregivers' care. These interventions, when combined and adapted to the needs of the patient and the caregiver, allow for maintaining functional autonomy, decreasing caregiver burden and, possibly, slowing down cognitive decline. An on-going study in Suisse Romande (INDID-MCI-QOL) assesses the effect of the number and type of interventions conducted over a year on the evolution of physical, psychological and cognitive health in this population.

Cuidadores/psicologia , Disfunção Cognitiva/psicologia , Disfunção Cognitiva/terapia , Qualidade de Vida , Humanos
BMJ ; 367: l6278, 2019 11 01.
Artigo em Inglês | MEDLINE | ID: mdl-31676488

Cuidadores , Humanos
BMJ ; 367: l6250, 2019 11 01.
Artigo em Inglês | MEDLINE | ID: mdl-31676571

Cuidadores , Pais , Humanos
Rev Lat Am Enfermagem ; 27: e3200, 2019 Oct 14.
Artigo em Português, Inglês, Espanhol | MEDLINE | ID: mdl-31618393


OBJECTIVE: to describe the level of uncertainty in illness in family caregivers of palliative care patients and detect associations between the profile of the caregiver and the levels of uncertainty. METHOD: descriptive correlational study conducted with 300 family caregivers of hospitalized patients. The sociodemographic characterization of caregiver and patient was used to assess the caregiver profile, as well as the Uncertainty in Illness scale for family caregivers. Spearman's Rho correlation test was applied to detect associations. RESULTS: the average score of illness uncertainty was 91.7 points. The analysis showed significant correlations between the level of uncertainty and patient dependence (r=0.18, p=0.001), symptom assessment (r=0.312, p<0.001), length of service as a caregiver (r=0.131, p=0.023), perception of support from health professionals (r=-0.16, p=0.048), family (r=-0.145, p=0.012) and religious support (r=-0.131, p=0.050). CONCLUSIONS: there were high levels of uncertainty in caregivers about their patient's illness. These levels are associated with the health condition and symptoms of the patient who is cared for, the length of service as a caregiver and the perceived support from health professionals, family and religion.

Cuidadores/psicologia , Cuidados Paliativos/psicologia , Incerteza , Adaptação Psicológica , Adolescente , Adulto , Idoso , Idoso de 80 Anos ou mais , Cuidadores/estatística & dados numéricos , Estudos Transversais , Feminino , Hospitalização/estatística & dados numéricos , Humanos , Masculino , Pessoa de Meia-Idade , Cuidados Paliativos/estatística & dados numéricos , Percepção , Fatores Socioeconômicos , Espiritualidade , Inquéritos e Questionários , Adulto Jovem
Soins Psychiatr ; 40(324): 25-28, 2019.
Artigo em Francês | MEDLINE | ID: mdl-31623803


Pregnancy and motherhood are additional ordeals for young unaccompanied girls, a particularly vulnerable section of the population. They are marked by the revival of the traumatic valence, the need to reconstruct themselves through the pregnancy and the importance of establishing a relationship of trust with the professionals supporting them. A qualitative study was carried out through the prism of the perspective of these professionals.

Cuidadores/psicologia , Criança Abandonada , Menores de Idade , Refugiados , Adolescente , Criança , Feminino , Humanos , Gravidez , Pesquisa Qualitativa
Z Gerontol Geriatr ; 52(Suppl 4): 282-290, 2019 Nov.
Artigo em Alemão | MEDLINE | ID: mdl-31612279


BACKGROUND: Since 2015, the Hospice and Palliative Care Act has defined the entitlement of nursing home residents to preventive planning in the final phase of their lives. Nevertheless, the advance care planning (ACP) concept has not yet been sufficiently researched in Germany. The deficient evidence on this topic appears to be even more considerable in connection with dementia. The necessity of such a discussion increases exponentially when dementia is diagnosed, not only for the person affected but also for their relatives and other caregivers and companions. OBJECTIVE: With respect to people with dementia, documents by a prominent German ACP provider were assessed as being insufficient by the authors. The aim of the pilot study presented here was to modify a questionnaire (value anamnesis) frequently used in the national context in order to apply it to this vulnerable group. MATERIAL AND METHODS: The value anamnesis was modified in 11 steps and pre-tested on people with dementia in an early stage. The focus of the document is on attitudes towards life, death and life-prolonging measures. The modification process was carried out in an iterative process based on the grounded theory according to Strauss and Corbin. RESULTS AND CONCLUSION: The stepwise adaptation of the document has created a practicable and low-threshold approach that also enables the vulnerable group of people with dementia to comprehensively deal with existential issues and to exchange views on them. This catalogue of questions is used as a basis document for the subsequent main study: here the life attachment of people with dementia is explored and thus a new perspective is placed on ACP.

Planejamento Antecipado de Cuidados , Cuidadores/psicologia , Demência/terapia , Inquéritos e Questionários , Demência/psicologia , Alemanha , Humanos , Projetos Piloto
J Indian Soc Pedod Prev Dent ; 37(3): 237-244, 2019.
Artigo em Inglês | MEDLINE | ID: mdl-31584022


Background: The purpose of the present study was to resolve whether caregiving for a child with disability influences the physical and mental health of the caregivers and whether stress is related to the quality of life of the caregivers. Methods: The Parental Stress Scale questionnaire for the assessment of parental stress and the Short Form-12 version 2 questionnaire for the assessment of physical and mental health quality of life were distributed among 69 parents of developmentally disabled children and 137 parents of healthy children (control group). Various sociodemographic factors were also included. Results: A significant difference was seen between the two groups in terms of employment, presence of disabled sibling, smoking, and physical activity. Parents of developmentally disabled children had significantly higher stress levels and worse mental health-related quality of life. Overall physical health quality of life was similar between cases and controls. Stress had a negative correlation with both mental and physical health quality of life of the parents. Conclusion: Stress related to raising a child with disability negatively influences the parental quality of life. Stress management aiming at its prevention and reduction might be significant aspects of intervention for the improvement of the quality of life of the caregivers.

Crianças com Deficiência , Cuidadores , Estudos de Casos e Controles , Criança , Humanos , Pais , Qualidade de Vida , Estresse Psicológico , Inquéritos e Questionários
Rev Infirm ; 68(254): 29-30, 2019 Oct.
Artigo em Francês | MEDLINE | ID: mdl-31587848


What is the common thread to ensure that the caregiver-patient relationship plays an integral role in healthcare facilities? The origins date to 1973, with the evolution of the nursing programme. The patient moves from the object stage to the subject stage. To date, he is considered a full "person" in all aspects, psychic, physical, cultural and social.

Cuidadores/psicologia , Instalações de Saúde , Relações Interpessoais , Humanos , Enfermagem/organização & administração