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2.
Rev Med Suisse ; 16(681): 310-313, 2020 Feb 12.
Artigo em Francês | MEDLINE | ID: mdl-32049452

RESUMO

For the purpose of improving the management of somatic disorders among patients suffering from severe intellectual development and autism spectrum disorders, a specific admissions mechanism has been implemented at Geneva University Hospitals (HUG). The Adult Psychiatric Hospital Unit (UPHA), a complex intervention unit, collaborates with HUG's Disability Program. From May 2018 to May 2019, 29 requests for hospitalizations were accepted. These requests primarily originated from private practice physicians (42 %). In some cases, immediate admissions were urgently organized, and in others a 13-day waiting period was imposed. Hospitalizations were adapted to the patient: more often than not, these were short (48 %), with 6 hospitalizations extended for an average 103-day period. A clinical case illustrates the healthcare management provided.


Assuntos
Transtorno do Espectro Autista/psicologia , Transtorno do Espectro Autista/terapia , Deficiência Intelectual/psicologia , Deficiência Intelectual/terapia , Adulto , Pessoas com Deficiência/psicologia , Hospitalização , Humanos , Suíça
3.
J Clin Nurs ; 29(1-2): 195-207, 2020 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-31610045

RESUMO

AIMS AND OBJECTIVES: To explore the experiences of the families of young adults with intellectual disabilities at the point of transition from child to adult health services. BACKGROUND: The population of people with intellectual disabilities is changing rapidly, with young people with increasingly complex needs surviving into adulthood and requiring transition from child to adult health services. DESIGN: An interpretative qualitative design. METHODS: Semi-structured interviews were held with ten family carers of young adults with intellectual disabilities and complex care needs, who were in the process of or had recently completed a transition from child to adult health services in Scotland. Data were analysed using thematic analysis. The COREQ checklist was used. RESULTS: Transition emerged as a highly emotional and challenging period for family carers. Their experiences were captured in five main themes: "a deep sense of loss," "an overwhelming process," "parents making transitions happen," "a shock to the adult healthcare system" and "the unbearable pressure." Nurses were often seen as instrumental to counteracting some of these challenges. CONCLUSIONS: There is an urgent need to respond to the challenges experienced by carers at the point of transition and beyond, by ensuring early and coordinated planning, effective information sharing and communication and clear transition processes and guidelines. A person-centred and family-centred approach is required to minimise negative impact on the health and well-being of the young adult with intellectual disabilities and their carers. RELEVANCE TO CLINICAL PRACTICE: Registered nurses have a key role in providing information and support, along with coordinating care at the time of transition from child to adult health services for young adults with complex intellectual disabilities. It is vital that their input is person-centred and responds effectively to the expert knowledge of family carers, while at the same time ensuring their needs for information and support are also addressed.


Assuntos
Cuidadores/psicologia , Família/psicologia , Deficiência Intelectual/enfermagem , Transição para Assistência do Adulto/organização & administração , Adolescente , Adulto , Feminino , Humanos , Deficiência Intelectual/psicologia , Masculino , Pessoa de Meia-Idade , Relações Profissional-Família , Pesquisa Qualitativa , Escócia , Adulto Jovem
4.
Nat Commun ; 10(1): 4679, 2019 10 15.
Artigo em Inglês | MEDLINE | ID: mdl-31616000

RESUMO

Postsynaptic density (PSD) proteins have been implicated in the pathophysiology of neurodevelopmental and psychiatric disorders. Here, we present detailed clinical and genetic data for 20 patients with likely gene-disrupting mutations in TANC2-whose protein product interacts with multiple PSD proteins. Pediatric patients with disruptive mutations present with autism, intellectual disability, and delayed language and motor development. In addition to a variable degree of epilepsy and facial dysmorphism, we observe a pattern of more complex psychiatric dysfunction or behavioral problems in adult probands or carrier parents. Although this observation requires replication to establish statistical significance, it also suggests that mutations in this gene are associated with a variety of neuropsychiatric disorders consistent with its postsynaptic function. We find that TANC2 is expressed broadly in the human developing brain, especially in excitatory neurons and glial cells, but shows a more restricted pattern in Drosophila glial cells where its disruption affects behavioral outcomes.


Assuntos
Transtornos Mentais/genética , Proteínas do Tecido Nervoso/metabolismo , Transtornos do Neurodesenvolvimento/genética , Proteínas/genética , Adolescente , Adulto , Animais , Transtorno Autístico/genética , Transtorno Autístico/psicologia , Comportamento Animal , Encéfalo/metabolismo , Criança , Pré-Escolar , Anormalidades Craniofaciais/genética , Deficiências do Desenvolvimento/genética , Deficiências do Desenvolvimento/psicologia , Proteínas de Drosophila/genética , Proteínas de Drosophila/metabolismo , Drosophila melanogaster , Epilepsia/genética , Feminino , Humanos , Deficiência Intelectual/genética , Deficiência Intelectual/psicologia , Transtornos do Desenvolvimento da Linguagem/genética , Transtornos do Desenvolvimento da Linguagem/psicologia , Masculino , Proteínas de Membrana/genética , Proteínas de Membrana/metabolismo , Transtornos Mentais/psicologia , Proteínas Musculares/genética , Proteínas Musculares/metabolismo , Mutação , Transtornos do Neurodesenvolvimento/psicologia , Neuroglia/metabolismo , Neurônios/metabolismo , Proteínas/metabolismo , Sequenciamento Completo do Exoma , Adulto Jovem
5.
Res Dev Disabil ; 94: 103493, 2019 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-31563028

RESUMO

People with intellectual disability (ID) may find shared zones troublesome to negotiate because of the lack of the traditional clearly defined rules and boundaries. With the built environment identified as a barrier to active travel and community access, it is vital to explore how pedestrians with ID navigate shared zones to ensure that this group is not placed in harm's way or discouraged from active travel because of the implications of shared zones. This study investigated the visual strategies of 19 adults with ID and 21 controls who wore head mounted eye trackers in a Shared Zone and at a zebra crossing (as a contrast traffic environment). In total 4750 valid fixations were analysed. Participants with ID fixated on traffic relevant objects at a rate of 68 percent of the control participants. Furthermore, the males with ID were 9(4.4-18.7) times more likely to fixate on non-traffic relevant objects compared with traffic relevant objects, much higher odds than that of females with ID 1.8(0.4-1.7). Zebra crossings appeared to act as a cue, drawing pedestrians' visual attention to the traffic environment, with both groups more likely to look at traffic relevant objects on/at the zebra crossing (66%: 34%). Future implementation of shared zones needs to be carefully considered in relation to the safety of road users with ID and their capacity to identify and assess salient environmental information.


Assuntos
Acidentes de Trânsito , Deficiência Intelectual , Reconhecimento Visual de Modelos , Pedestres/psicologia , Acidentes de Trânsito/prevenção & controle , Acidentes de Trânsito/psicologia , Adulto , Ambiente Construído/normas , Medições dos Movimentos Oculares , Feminino , Humanos , Deficiência Intelectual/diagnóstico , Deficiência Intelectual/psicologia , Deficiência Intelectual/reabilitação , Masculino , Determinação de Necessidades de Cuidados de Saúde , Fatores Sexuais
6.
Res Dev Disabil ; 94: 103458, 2019 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-31525613

RESUMO

BACKGROUND: People with intellectual disabilities (ID) are usually cared for by their own parents, families or informal caregivers. Caring for a person with ID can have a negative impact on caregivers' mental health (burden, depression, anxiety). The main aim of the EDUCA-IV trial was testing the efficacy of a psychoeducational intervention program (PIP) versus standard practice and to see whether the PIP intervention would reduce the caregiver's burden at post-intervention (4 months) and at follow-up (8 months). METHOD: This was a multi-centre randomised controlled trial including 194 caregivers (96 randomised to PIP, 98 to control condition). PIP intervention consists of 12 weekly group sessions. The control group received treatment as usual. Primary outcomes measured included the Zarit Burden Interview (ZBI). Secondary outcomes were caregivers' mental health (GHQ-28), anxiety (STAI) and depression (CES-D). RESULTS: The decrease of ZBI scores was not significant at 4 months. There was significant decrease in the GHQ scores at 4 and 8 months. CES-D showed relevant results at follow-up. Intention to treat analyses showed similar results. CONCLUSIONS: The PIP intervention seems not to be effective reducing burden, but appears to have a positive result on general mental health. The program was well received and valued by caregivers.


Assuntos
Adaptação Psicológica , Ansiedade , Cuidadores , Depressão , Educação em Saúde/métodos , Deficiência Intelectual/psicologia , Qualidade de Vida , Adulto , Ansiedade/etiologia , Ansiedade/psicologia , Cuidadores/educação , Cuidadores/psicologia , Efeitos Psicossociais da Doença , Depressão/etiologia , Depressão/psicologia , Feminino , Humanos , Análise de Intenção de Tratamento , Masculino , Saúde Mental , Estresse Psicológico/etiologia , Estresse Psicológico/psicologia
7.
Res Dev Disabil ; 94: 103460, 2019 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-31476725

RESUMO

BACKGROUND: The phenotype of Down syndrome (DS) is usually characterized by relative strengths in visual skills and severe deficits in auditory processing; this has consequences for language and communication. To date, it is not known whether this pattern characterizes the psycholinguistic profile of young adults with DS. AIMS: This study aimed to assess whether, relative to their cognitive level, young adults with DS present a specific and homogeneous phenotype for both auditory and visual psycholinguistic skills. METHODS AND PROCEDURES: Fifty young adults with DS and 50 peers with other intellectual disability (ID) were equated in chronological age and nonverbal cognition and were compared regarding their performance in auditory and visual psycholinguistic functions. OUTCOMES AND RESULTS: Participants with DS showed more phenotypic-specific deficits in auditory psycholinguistic skills than in those involved in visual processing. However, phenotypic-specific impairments in visual psycholinguistic skills were also observed, while no significant between-group differences were found for some auditory psycholinguistic skills. CONCLUSIONS AND IMPLICATIONS: The psycholinguistic pattern of young adults with DS is not homogeneous with respect to auditory and visual processing. The profile of specific deficits suggests that the educative support for young adults with DS may need to be specific.


Assuntos
Percepção Auditiva , Transtornos da Comunicação , Síndrome de Down , Deficiência Intelectual , Reconhecimento Visual de Modelos , Cognição , Transtornos da Comunicação/diagnóstico , Transtornos da Comunicação/etiologia , Transtornos da Comunicação/psicologia , Síndrome de Down/diagnóstico , Síndrome de Down/psicologia , Feminino , Humanos , Deficiência Intelectual/diagnóstico , Deficiência Intelectual/psicologia , Desenvolvimento da Linguagem , Masculino , Fonética , Psicolinguística , Fala , Comportamento Verbal , Adulto Jovem
8.
Res Dev Disabil ; 94: 103462, 2019 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-31499378

RESUMO

BACKGROUND AND AIMS: We aimed to determine whether a second-order global competence latent factor could be identified as underlying relations between adolescent mental health, social skills, and academic functioning. A secondary aim was to test whether early childhood characteristics predict adolescent global competence. A final aim was to test differences in these models across youth with typical cognitive development (TD) or intellectual disability (ID). METHODS AND PROCEDURES: Participants were 246 youth with TD (n = 148) or ID (n = 98), with assessments from early childhood (3, 4, 5 years) and adolescence (13, 15). These youths' parents and teachers provided measures. A Multiple Indicator, Multiple Causes (MIMIC) model was tested using structural equation modeling, in which parenting, maternal depression, and emotional dysregulation in early childhood were entered as predictors of adolescent global competence. OUTCOMES AND RESULTS: A second-order global competence factor emerged, and was predicted by early childhood variables. The final MIMIC model demonstrated excellent fit. Negative parenting in early childhood predicted lower adolescent global competence for both TD and ID youth. Maternal depression predicted adolescent global competence only for youth with ID, while emotion dysregulation predicted only for youth with TD. CONCLUSIONS AND IMPLICATIONS: Results have implications for longitudinal mechanisms of influence and early intervention targets for specific populations.


Assuntos
Desenvolvimento Infantil , Filho de Pais Incapacitados/psicologia , Depressão/psicologia , Deficiência Intelectual/psicologia , Comportamento Materno/psicologia , Poder Familiar/psicologia , Adolescente , Sintomas Afetivos/psicologia , Comportamento Infantil , Pré-Escolar , Cognição , Feminino , Humanos , Masculino , Relações Pais-Filho , Desenvolvimento da Personalidade , Habilidades Sociais
9.
J Autism Dev Disord ; 49(12): 5023-5035, 2019 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-31493155

RESUMO

The primary objective of this study was to identify the profiles of families of children with autism spectrum disorder (ASD) without intellectual disability (ID) based on several risk indicators: sociodemographic and emotional indicators, parental stress, confidant social support, and coping strategies. A second aim was to determine the differences in communicative skills between children of family subtypes empirically established according to the aforementioned risk factors. Participants were 52 Spanish mothers and their children with ASD. Through cluster analysis, three subtypes of families were identified, classifying them as "high risk, moderate risk, and little risk". The "little risk" profile showed significantly less stress and greater use of coping strategies and confidant social support. Furthermore, the children's communication exhibited better development, compared to children from the other family environments.


Assuntos
Transtorno Autístico/psicologia , Comunicação , Família , Deficiência Intelectual/psicologia , Adaptação Psicológica , Transtorno Autístico/complicações , Criança , Feminino , Humanos , Deficiência Intelectual/complicações , Masculino , Habilidades Sociais
10.
Res Dev Disabil ; 94: 103477, 2019 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-31494354

RESUMO

BACKGROUND: Disability support organisations have embraced Active Support, but it has proved difficult to embed in services. AIMS: This study aimed to identify the factors associated with increases over time in the quality of Active Support. METHOD: Data were collected on the predicted variable of the quality of Active Support, and predictor variables of service user, staff and service characteristics, including practice leadership, and composition and size of services from 51 services in 8 organisations over 2-7 time points. Data were analysed using multi-level modelling. RESULTS: There was significant linear change in Active Support scores (group mean centered at the organisational level) over time. Individuals with lower support needs received better Active Support and those with higher support needs experienced greater increases over time. Stronger practice leadership and more staff with training in Active Support were significant predictors of the quality of Active Support. Larger services with seven or more individuals and where there was a very heterogeneous mix of individuals were associated with lower quality of support. CONCLUSIONS: Ensuring strong practice leadership, and staff training in Active Support that emphasises the principle of adapting support to each individual's level of ability and preferences are key to delivering high levels of Active Support.


Assuntos
Deficiência Intelectual , Participação nas Decisões/normas , Reabilitação Psiquiátrica , Sistemas de Apoio Psicossocial , Melhoria de Qualidade/organização & administração , Serviço Social , Desenvolvimento de Pessoal/normas , Engajamento no Trabalho , Adulto , Austrália , Participação da Comunidade/métodos , Pessoas com Deficiência/psicologia , Feminino , Humanos , Deficiência Intelectual/psicologia , Deficiência Intelectual/reabilitação , Estudos Longitudinais , Masculino , Pessoa de Meia-Idade , Reabilitação Psiquiátrica/métodos , Reabilitação Psiquiátrica/organização & administração , Reabilitação Psiquiátrica/normas , Qualidade da Assistência à Saúde , Serviço Social/métodos , Serviço Social/organização & administração , Serviço Social/normas
11.
Res Dev Disabil ; 93: 103452, 2019 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-31398559

RESUMO

BACKGROUND: The general developmental as well as the disability specific literature has stressed the crucial influence of parents on their child's social-emotional development. Attachment theory provides a framework to describe parental roles within the parent-child attachment relationship. The current study explored parents' perspectives on their role as attachment figure and the preconditions they consider necessary to establish secure attachment in children with severe or profound intellectual disability (ID). METHODS: Semi-structured interviews with 54 parents on their child's social-emotional development, attachment behaviour and the parent-child attachment bond were analysed using the Framework Method. All children were between 15 months and seven years old and had a severe or profound ID. RESULTS: Parents reported their child's clear preference towards them and acknowledged the role they fulfil as stress regulator. Children differed in the extent to which they use their parent to explore new environments. Overall, parents described the attachment relationship with their child as positive but challenging. CONCLUSIONS: Parents acknowledged the roles they fulfil both as a safe haven for their child, and (to a lesser extent) as a secure base. Clinical practice could benefit from a parental perspective to identify particular challenges parents encounter in building a secure attachment relationship.


Assuntos
Comportamento Infantil/psicologia , Educação Infantil/psicologia , Deficiência Intelectual , Apego ao Objeto , Relações Pais-Filho , Pais/psicologia , Adulto , Criança , Desenvolvimento Infantil , Pré-Escolar , Feminino , Humanos , Lactente , Deficiência Intelectual/diagnóstico , Deficiência Intelectual/psicologia , Masculino , Índice de Gravidade de Doença
12.
Intellect Dev Disabil ; 57(4): 274-288, 2019 08.
Artigo em Inglês | MEDLINE | ID: mdl-31373543

RESUMO

The purpose of this study was to explore the cross-cultural validity of the Self-Determination Inventory: Student Report, a newly developed measure of self-determination grounded in Causal Agency Theory. The tool was translated to Spanish and administered to American and Spanish adolescents. The sample was structured to include adolescents with and without intellectual disability in both cultural contexts. More than 3,000 students in the U.S. and Spain aged 13 to 22 completed the assessment. Findings suggest that the same set of items can be used across cultural contexts and in youth with and without intellectual disability, although there are some specific differences in item functioning across students with and without intellectual disability in Spain that must be further researched. There were specific patterns of differences in latent self-determination means, with students with intellectual disability scoring lower in the U.S. and Spain. Implications for assessment research and practice in diverse cultural contexts are explored.


Assuntos
Deficiência Intelectual/psicologia , Autonomia Pessoal , Psicometria/normas , Autorrelato , Estudantes , Adolescente , Comparação Transcultural , Feminino , Humanos , Masculino , Psicometria/instrumentação , Reprodutibilidade dos Testes , Espanha , Estados Unidos , Adulto Jovem
13.
Intellect Dev Disabil ; 57(4): 323-336, 2019 08.
Artigo em Inglês | MEDLINE | ID: mdl-31373551

RESUMO

People with intellectual disability (ID) experience negative consequences as a result of stigmas held by the public. Students with ID involved in inclusive postsecondary education (IPSE) programs demonstrate positive outcomes. This study examines the impact of an IPSE program on typically matriculating student attitudes toward ID. Explicit and implicit attitudes were measured at the start and end of a semester among IPSE volunteer peer mentors (n = 17) and an uninvolved student group (n = 14). Findings indicate that volunteers demonstrated lower discomfort after their volunteer experience, as measured by the Attitudes Toward Intellectual Disability Questionnaire (ATTID). Volunteers also demonstrated higher knowledge of causes and preference for interaction with people with ID than nonvolunteers. This demonstrates that volunteer involvement in IPSE positively impacts attitudes toward people with ID among typically matriculating college students.


Assuntos
Atitude Frente a Saúde , Educação de Pessoa com Deficiência Intelectual/normas , Deficiência Intelectual/psicologia , Opinião Pública , Estudantes/psicologia , Feminino , Conhecimentos, Atitudes e Prática em Saúde , Humanos , Masculino , Estigma Social , Inquéritos e Questionários , Adulto Jovem
14.
Trials ; 20(1): 500, 2019 Aug 14.
Artigo em Inglês | MEDLINE | ID: mdl-31412913

RESUMO

BACKGROUND: Persons with mild to borderline intellectual disabilities generally show dysfunctions in mentalization and stress regulation, resulting in problematic social relationships and personal distress. Intervention programs may improve mentalizing abilities. The aim of this study is to examine the effectiveness of the serious game 'You & I' in changing mentalizing abilities and stress regulation in adults with mild to borderline intellectual disabilities. METHODS: A two-arm, parallel, superiority randomized controlled trial will be used with 172 adults with mild to borderline intellectual disabilities. Participants will be randomly assigned to either the experimental group to play the serious game 'You & I' or a waitlist control group. Participants will be assessed at baseline, post intervention (5 weeks after baseline), and follow-up (6-8 weeks after post intervention). They also will fill in questionnaires for personal factors, personal development, personal well-being, social validity, autism spectrum quotient (demographic variables), mentalizing abilities (primary outcome measure), and stress regulation (secondary outcome measure). DISCUSSION: The serious game 'You & I' aims to improve mentalizing abilities in adults with mild to borderline intellectual disabilities, which is expected to lead to improved regulation of stress in social relationships. The study's unique feature is the use of a serious game to improve mentalizing abilities. If the intervention is effective, the serious game can be implemented on a broad scale in Dutch care organizations for people with intellectual disabilities as an effective preventive tool to improve mentalizing abilities. TRIAL REGISTRATION: Netherlands Trial Register, NTR7418 . Registered on 2 August 2018.


Assuntos
Deficiência Intelectual/reabilitação , Mentalização , Pessoas com Deficiência Mental/reabilitação , Estresse Psicológico/prevenção & controle , Jogos de Vídeo , Adaptação Psicológica , Estudos de Equivalência como Asunto , Humanos , Deficiência Intelectual/diagnóstico , Deficiência Intelectual/psicologia , Pessoas com Deficiência Mental/psicologia , Países Baixos , Comportamento Social , Estresse Psicológico/diagnóstico , Estresse Psicológico/psicologia , Fatores de Tempo , Resultado do Tratamento
15.
Percept Mot Skills ; 126(5): 862-885, 2019 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-31362582

RESUMO

Regular practice of sport activities yields psychophysical benefits for both the general population and persons affected by physical or intellectual impairments. Practicing competitive sport may add further value to these benefits. The objective of this observational cross-sectional study was to investigate the role of competitive sport practice in enhancing self-perceived psychophysical well-being of some select participants, using the Psychological General Well-Being Index and the Short Form-12 indices. We recruited at national events 100 young Italian competitive swimmers affected by physical or intellectual impairment. These respondents' results were compared with those of a control group of 100 Italian participants who did not practice competitive sport but who were also affected by physical or intellectual impairment, randomly selected from rehabilitation clinics and communities of young people with disabilities. Scores of psychological and emotional well-being were higher by 40% or more for the practitioners of competitive sport (p < .0001; Cohen's effect size d ≥ 1.3). While our study's results suggest possible positive psychophysical benefits to competitive sport practice for young people affected by physical or intellectual impairment, longitudinal research is needed to be certain that our results are not due to self-selection into sports participation of those persons with disabilities who have a uniquely higher sense of well-being.


Assuntos
Deficiência Intelectual/psicologia , Saúde Mental , Esportes para Pessoas com Deficiência/psicologia , Natação/psicologia , Adolescente , Criança , Estudos Transversais , Pessoas com Deficiência/psicologia , Emoções , Feminino , Nível de Saúde , Humanos , Masculino , Autoimagem , Adulto Jovem , Esportes Juvenis
16.
J Autism Dev Disord ; 49(11): 4482-4487, 2019 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-31451966

RESUMO

People with autism are often characterized as having difficulties with theory of mind abilities such as emotion recognition. However, rather than being a pervasive deficit of 'mindblindness,' a number of studies suggests these difficulties vary by context, and when people with autism mindread non-human agents, such as animals or cartoons, these abilities improve. To replicate this effect, 15 adolescents with both autism and intellectual disability participated in a test of facial emotion recognition, with both human and animal faces. Participants performed significantly better on the animal version of the assessment compared to the human version, and human rather than animal scores were the strongest predictor of symptom severity. These results were shown to be primarily driven by improvement in recognition of the emotions happiness and anger in animal rather than human faces. Implications with regards to social motivation and theory of mind interventions are discussed.


Assuntos
Transtorno Autístico/psicologia , Emoções , Deficiência Intelectual/psicologia , Adolescente , Animais , Transtorno Autístico/complicações , Expressão Facial , Reconhecimento Facial , Feminino , Humanos , Deficiência Intelectual/complicações , Masculino , Estimulação Luminosa , Teoria da Mente
17.
Rev Esc Enferm USP ; 53: e03481, 2019 Jul 29.
Artigo em Português, Inglês | MEDLINE | ID: mdl-31365727

RESUMO

OBJECTIVE: To analyze the social and conceptual skills of people with Intellectual Disability. METHOD: A descriptive study conducted with 100 caregivers, 9 teachers and 100 people with Intellectual Disability from a Philanthropic Institution in Campina Grande, Paraíba, Brazil. The participants ages in the study ranged from 9 to 83 years. Three-hundred (300) questionnaires were administered. The data were processed by Factorial Matching Analysis in the Tri-Deux-Mots program . RESULTS: Considering the factorial correspondence plan, it should be noted that the social skills of students in the age group between 21 and 40 years were related to playing educational games, playing ball with friends and dating. Regarding conceptual skills, students revealed autonomy in relation to school activities, however the caregivers emphasized that they lack autonomy in relation to these skills. In perceiving the realities of students from different classes, teachers presented opposing opinions on dependency and independence issues. CONCLUSION: Education and health professionals and caregivers can collaborate more effectively in developing the autonomy of people with Intellectual Disability by promoting a more interactive environment which provides skills development and interpersonal relationships without discrimination, disrespect or prejudice.


Assuntos
Deficiência Intelectual/psicologia , Autonomia Pessoal , Comportamento Social , Habilidades Sociais , Adolescente , Adulto , Fatores Etários , Idoso , Idoso de 80 Anos ou mais , Brasil , Cuidadores/estatística & dados numéricos , Criança , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Professores Escolares/estatística & dados numéricos , Inquéritos e Questionários , Adulto Jovem
18.
Ann Ist Super Sanita ; 55(2): 151-160, 2019.
Artigo em Inglês | MEDLINE | ID: mdl-31264638

RESUMO

Applied Computer technologies can address the needs of individuals with autism spectrum disorders (ASD). Data on the efficacy of assistive technology in ASD is limited, and its effectiveness in supporting and facilitating skill acquisition in this specific population must be still demonstrated. 63 Italian ASD subjects underwent learning activities administered by cardboards or a touch screen support. The support preference was evaluated in a choice trial, and quantitative analysis was performed on items regarding communication and challenging behaviours. Touch devices are attractive especially for males without intellectual disability and a lower communication and cooperation behaviours with the use of touch screen compared with paper support was shown depending on activities. Overall, our data do not confirm the hypothesis that touch screen presentation improves activity completion and behavioural performance for each individual with ASD. Data discourage an indiscriminate use of these devices and suggest analysing with more attention the core ingredients that should shape digital devices when used for people on ASD.


Assuntos
Recursos Audiovisuais , Transtorno do Espectro Autista/psicologia , Terminais de Computador , Adolescente , Comportamento do Adolescente , Fatores Etários , Criança , Comportamento Infantil , Transtornos Globais do Desenvolvimento Infantil/psicologia , Barreiras de Comunicação , Comportamento do Consumidor , Feminino , Humanos , Deficiência Intelectual/psicologia , Relações Interpessoais , Masculino , Projetos Piloto , Tato , Interface Usuário-Computador
19.
J Autism Dev Disord ; 49(10): 4244-4255, 2019 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-31289987

RESUMO

This randomized controlled study evaluated a computer-based intervention on emotion understanding in 32 children with autism spectrum conditions with and without intellectual disability (ID) aged 7-15 years. The intervention group (n = 16) used the program for 12 h while the control group (n = 16) was not included in any intervention or training beside the usual educational curriculum. After controlling for pre-intervention scores and symptom severity, strong positive effects were observed in emotion recognition from real face photographs and pictograms, as well as in understanding situation-based emotion across both intellectual ability groups. The typical and ID intervention groups performed significantly better on all EU measures, compared to controls, at the level of feature based distant generalization.


Assuntos
Transtorno do Espectro Autista/terapia , Inteligência Emocional , Emoções , Deficiência Intelectual/terapia , Psicoterapia/métodos , Adolescente , Transtorno do Espectro Autista/complicações , Transtorno do Espectro Autista/psicologia , Criança , Pré-Escolar , Feminino , Humanos , Deficiência Intelectual/complicações , Deficiência Intelectual/psicologia , Masculino
20.
Res Dev Disabil ; 92: 103427, 2019 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-31271941

RESUMO

BACKGROUND: Family members of parents with intellectual disabilities (ID) are viewed as their main source of support. However, the existence of family involvement itself does not guarantee that such support will be beneficial. AIMS: This study draws on the perspectives of social workers to describe and evaluate involvement by Israeli family members (grandparents) in the lives of their adult children with ID (parents with ID) who themselves have become parents. METHOD: A thematic analysis was conducted in 21 semi-structured interviews with social workers serving parents with ID through social service departments. RESULTS: From the social workers' perspectives, grandparent attitudes regarding their adult children with ID procreating and parenting ranged from strong resistance to active encouragement. Two sub-themes of grandparent involvement were identified from the social workers' perspectives: the critical role of grandparent support, and the complex relationships between grandparents and the parents with ID. Two further and interrelated subthemes emerged on the role of social worker engagement with grandparents. CONCLUSIONS: Professionals should be aware that grandparent involvement can either support or undermine the parenting function of parents with ID. Social service professionals need to promote family involvement that empowers parents with ID by supporting their needs and roles, but without supplanting their primary parenting activities.


Assuntos
Crianças Adultas/psicologia , Relações Familiares , Avós/psicologia , Deficiência Intelectual , Pais/psicologia , Assistentes Sociais/psicologia , Adulto , Atitude , Feminino , Humanos , Deficiência Intelectual/psicologia , Deficiência Intelectual/reabilitação , Relação entre Gerações , Masculino , Pessoa de Meia-Idade , Percepção Social , Apoio Social
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