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1.
Res Dev Disabil ; 111: 103889, 2021 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-33578230

RESUMO

BACKGROUND: During COVID-19 measures face-to-face contact is limited and professional carers have to find other ways to support people with intellectual disabilities. COVID-19 measures can increase stress in people with intellectual disabilities, although some people may adapt to or grow from these uncertain situations. Resilience is the process of effectively negotiating, adapting to, or managing significant sources of stress and trauma. The current study aims to provide professional carers with new insights into how they can support people with intellectual disabilities. METHOD: An online survey was shared through the social media and organizational newsletters of MEE ZHN (a non-governmental organization for people with disabilities). The resilience framework by Ungar (2019) was adapted to fit to people with intellectual disabilities during COVID-19 measures. Statistical analyses were performed in SPSS statistics version 26. RESULTS: Results show that professional carers applied diverse and distal methods to maintain contact with people with intellectual disabilities during the COVID-19 measures. Professional carers reported a significant decrease in the quality of contact with clients with intellectual disabilities, but overall high levels of resilience in the same clients. IMPLICATIONS: Online methods of communication are possibly insufficient for professionals to cover all needs of people with intellectual disabilities. During this pandemic professionals should be aware of stress but also of resilience in people with intellectual disabilities.


Assuntos
Cuidadores , Pessoas com Deficiência , Deficiência Intelectual , Sistemas de Apoio Psicossocial , Resiliência Psicológica , Atitude do Pessoal de Saúde , /prevenção & controle , Cuidadores/psicologia , Cuidadores/estatística & dados numéricos , Pessoas com Deficiência/psicologia , Pessoas com Deficiência/reabilitação , Feminino , Humanos , Deficiência Intelectual/epidemiologia , Deficiência Intelectual/psicologia , Deficiência Intelectual/reabilitação , Masculino , Países Baixos/epidemiologia , Relações Profissional-Paciente , Qualidade da Assistência à Saúde , Inquéritos e Questionários
2.
Res Dev Disabil ; 110: 103856, 2021 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-33497856

RESUMO

During the COVID-19 pandemic, the Oasi Research Institute of Troina (Italy) became an important hotbed for infection; in fact, 109 patients with different levels of Intellectual Disability (ID) tested positive for COVID-19. The procedures and interventions put in place at the Oasi Research Institute due to the COVID-19 pandemic are exhaustively reported in this paper. The description of the clinical procedures as well as remote/in person psychological support services provided to people with ID and their families are here divided into three different sections: Phase I (or Acute phase), Phase II (or Activity planning), and Phase III (or Activity consolidation). In each section, the main psycho-pathological characteristics of patients, the reactions of family members and the multidisciplinary interventions put in place are also described.


Assuntos
/epidemiologia , Deficiências do Desenvolvimento/reabilitação , Deficiência Intelectual/reabilitação , Sistemas de Apoio Psicossocial , Telemedicina , Academias e Institutos , Adolescente , Adulto , Idoso , Idoso de 80 Anos ou mais , Transtorno do Espectro Autista/epidemiologia , Transtorno do Espectro Autista/psicologia , Transtorno do Espectro Autista/reabilitação , /fisiopatologia , Criança , Pré-Escolar , Comorbidade , Deficiências do Desenvolvimento/epidemiologia , Deficiências do Desenvolvimento/psicologia , Surtos de Doenças , Epilepsia/epidemiologia , Feminino , Hospitais Especializados , Humanos , Hipotireoidismo/epidemiologia , Lactente , Deficiência Intelectual/epidemiologia , Deficiência Intelectual/psicologia , Itália , Masculino , Pessoa de Meia-Idade , Transtornos do Humor/epidemiologia , Transtornos do Humor/psicologia , Transtornos do Humor/reabilitação , Obesidade/epidemiologia , Sobrepeso/epidemiologia , Transtornos da Personalidade/epidemiologia , Transtornos da Personalidade/psicologia , Transtornos da Personalidade/reabilitação , Transtornos Psicóticos/epidemiologia , Transtornos Psicóticos/psicologia , Transtornos Psicóticos/reabilitação , Índice de Gravidade de Doença , Adulto Jovem
3.
Intellect Dev Disabil ; 58(5): 355-360, 2020 10 01.
Artigo em Inglês | MEDLINE | ID: mdl-33032314

RESUMO

The COVID-19 epidemic caused disruption and dislocation in the lives of people with disabilities, their families, and providers. What we have learned during this period regarding the strengths and weaknesses of the service system for people with disabilities should provide a roadmap for building a more robust and agile system going forward. Based on a canvas of leaders in our field, I propose a way of outlining a reimagined system.


Assuntos
Betacoronavirus , Infecções por Coronavirus/prevenção & controle , Deficiências do Desenvolvimento/reabilitação , Serviços de Saúde/tendências , Deficiência Intelectual/reabilitação , Pandemias/prevenção & controle , Pneumonia Viral/prevenção & controle , Infecções por Coronavirus/epidemiologia , Infecções por Coronavirus/psicologia , Deficiências do Desenvolvimento/epidemiologia , Deficiências do Desenvolvimento/psicologia , Humanos , Deficiência Intelectual/epidemiologia , Deficiência Intelectual/psicologia , Pneumonia Viral/epidemiologia , Pneumonia Viral/psicologia
4.
J Intellect Disabil Res ; 64(10): 750-756, 2020 10.
Artigo em Inglês | MEDLINE | ID: mdl-32830390

RESUMO

BACKGROUND: During the COVID-19 outbreak, service providers in the Netherlands had to switch towards providing remote support for people with intellectual disabilities living independently. This study aims to provide insight into the use of online support during the outbreak. METHODS: We analysed quantitative data on planned and unplanned contacts between the online support service DigiContact and its service users. RESULTS: The results indicate that the COVID-19 outbreak and the related containment measures had a strong impact on online support use, specifically on the unplanned use of online support. CONCLUSION: Offering online support as a standard component of services for independently living people with intellectual disability enables service providers to be flexible and responsive towards fluctuations in both support needs and onsite support availability during a social crisis such as COVID-19.


Assuntos
Infecções por Coronavirus , Deficiência Intelectual/reabilitação , Pandemias , Aceitação pelo Paciente de Cuidados de Saúde , Pneumonia Viral , Telemedicina , Adulto , Infecções por Coronavirus/prevenção & controle , Feminino , Humanos , Vida Independente , Masculino , Países Baixos , Pandemias/prevenção & controle , Pneumonia Viral/prevenção & controle
5.
Siglo cero (Madr.) ; 51(2): 99-117, abr.-jun. 2020. tab
Artigo em Espanhol | IBECS | ID: ibc-193114

RESUMO

La asistencia personal para personas con discapacidad intelectual puede contribuir a la aplicación de los nuevos paradigmas de autodeterminación e inclusión social y a una mejora de la calidad de vida. Mediante revisión de la literatura y un análisis con expertos profesionales, expertos por experiencia y potenciales usuarios, se elaboró un modelo breve de asistencia personal para ser ejecutado por agentes comunitarios con supervisión profesional. El modelo considera actividades en los espacios habituales de las personas y sus familias, con apoyo para el uso de recursos formales e informales de la comunidad y el refuerzo de redes de apoyo que continúen operando una vez que termine la intervención. Con una duración de 9 meses, el modelo se desarrolla mediante un proceso de 3 etapas: 1) establecimiento de vínculo y elaboración de un plan individualizado, 2) implementación del plan y 3) refuerzo de los aprendizajes de los participantes y traspaso a redes de apoyo. Se discute la factibilidad de la aplicación del modelo en países latinoamericanos y la necesidad de realizar estudios que evalúen su implementación


Personal assistance for people with intellectual disabilities can contribute to the application of the new paradigms of self-determination and social inclusion and to an improvement in the quality of life. Through a literature review and analysis with professional experts, experts from experience and potential users, a brief model of personal assistance was developed to be executed by community agents with professional supervision. The model considers activities in the usual spaces of people and their families, with support for the use of community formal and informal resources and the reinforcement of social support networks that continue operating once the intervention ends. With duration of 9 months, the model is developed through a 3-stage process: 1) engagement and formulation of an individualized plan, 2) implementation of the plan, and 3) participants' learning reinforcement and transfer to support networks. The feasibility of the model in Latin American countries and the need for studies to evaluate its implementation are discussed


Assuntos
Humanos , Masculino , Feminino , Adulto Jovem , Deficiência Intelectual/reabilitação , Deficiência Intelectual/psicologia , Qualidade de Vida , Desejabilidade Social , Apoio Social , Política Pública , Políticas Públicas Antidiscriminatórias , Prova Pericial , Chile
6.
Medicine (Baltimore) ; 99(15): e19751, 2020 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-32282736

RESUMO

RATIONALE: This case report expands the mutation and phenotypic spectra of Beaulieu-Boycott-Innes syndrome (BBIS), and will be valuable for mutation-based pre- and post-natal screening of BBIS when conducting a genetic diagnosis. PATIENT CONCERNS: A 4-year old boy from Guilin City, Guangxi Zhuang Autonomous Region, China, was referred to our clinic for clarification of his diagnosis because he showed moderate intellectual disability. DIAGNOSIS: Two novel compound heterozygous mutations of THOC6, c.664T>C (p.Trp222Arg) and c.945+1 G>A were identified in this patient by whole exome sequencing. The two mutations were evaluated as pathogenic and likely pathogenic respectively according to the American College of Medical Genetics guidelines. This is the first case displaying the BBIS phenotype reported in the Chinese population. These two mutations have not been reported previously. INTERVENTIONS: Symptomatic treatment and rehabilitation training for patients. OUTCOMES: The genetic cause of the disease was identified. The family received scientific genetic counseling. LESSONS: BBIS is a rare syndromic autosomal recessive disease with intellectual disability and it is normally difficult for clinicians to recognize it. Whole exome sequencing is an efficient way to identify the gene which causes a particular disease in patients.


Assuntos
Anormalidades Múltiplas/genética , Deficiências do Desenvolvimento/genética , Deficiência Intelectual/genética , Atrofia Muscular/genética , Proteínas de Ligação a RNA/genética , Anormalidades Múltiplas/diagnóstico , Anormalidades Múltiplas/reabilitação , Anormalidades Múltiplas/terapia , Grupo com Ancestrais do Continente Asiático/genética , Pré-Escolar , Deficiências do Desenvolvimento/diagnóstico , Deficiências do Desenvolvimento/reabilitação , Deficiências do Desenvolvimento/terapia , Facies , Aconselhamento Genético/normas , Humanos , Deficiência Intelectual/diagnóstico , Deficiência Intelectual/reabilitação , Deficiência Intelectual/terapia , Masculino , Atrofia Muscular/diagnóstico , Atrofia Muscular/reabilitação , Atrofia Muscular/terapia , Mutação/genética , Fenótipo , Síndrome , Sequenciamento Completo do Exoma/métodos
7.
Rehabilitación (Madr., Ed. impr.) ; 54(1): 19-24, ene.-mar. 2020. tab
Artigo em Espanhol | IBECS | ID: ibc-196636

RESUMO

INTRODUCCIÓN: Las personas con discapacidad intelectual (DI) presentan problemas de equilibrio y riesgo de caídas, que se agravan con el envejecimiento. Este estudio tuvo como objetivo proporcionar información sobre los efectos de un programa de ejercicio en el riesgo de caídas, equilibrio y velocidad de la marcha en un grupo de personas mayores con DI. MATERIALES Y MÉTODOS: Ocho personas con DI leve a moderada (edad media: 56,37+/-7,08 años) participaron en un programa de 12 semanas de duración, basado en la realización de una sesión semanal que incluía ejercicios dirigidos al fortalecimiento de la musculatura estabilizadora, a estimular la propiocepción y a potenciar los reflejos en situaciones de inestabilidad. Los efectos del programa sobre el riesgo de caída y sobre el equilibrio y la velocidad de la marcha fueron valorados mediante la escala de Tinetti y la prueba Timed Up and Go, respectivamente. RESULTADOS: El programa resultó factible y no se registraron efectos adversos. Tras la finalización del mismo el riesgo de caídas no sufrió modificaciones, mientras que el equilibrio y la velocidad de la marcha mejoraron significativamente. CONCLUSIONES: Un programa semanal de 3 meses de duración, basado en la realización de ejercicios de fortalecimiento muscular y reeducación propioceptiva, se mostró factible y tuvo un impacto positivo sobre el equilibrio y la velocidad de la marcha en un grupo de personas mayores con DI. Estos resultados sientan las bases para que futuros ensayos clínicos aleatorizados, dirigidos a confirmar los efectos de este tipo de programas en el riesgo de caídas presente en esta población, puedan ser convenientemente diseñados


INTRODUCTION: People with intellectual disabilities (ID) have balance disturbances and risk of falls, which are aggravated with ageing. This study aimed to provide information on the effects of an exercise programme on fall risk, balance, and walking speed in a group of older people with ID. MATERIALS AND METHODS: Eight people with mild to moderate ID (mean age: 56.37+/-7.08 years) participated in a 12-week programme based on a weekly session that included exercises aimed at strengthening stabilising muscles, stimulating proprioception, and enhancing reflexes in unstable situations. The effects of the programme on the risk of falling and on balance and walking speed were assessed using the Tinetti scale and the Timed Up and Go test, respectively. RESULTS: The programme was feasible and no adverse effects were registered. At the end of the programme, the risk of falls remained unchanged, while balance and gait speed improved significantly. CONCLUSIONS: A three-month weekly programme based on muscle strengthening and proprioceptive re-education exercises was feasible and had a positive impact on balance and walking speed in a group of older people with ID. These results lay the foundation for future randomised clinical trials aiming to confirm the effects of such programmes on the risk of falls in this population


Assuntos
Humanos , Masculino , Feminino , Pessoa de Meia-Idade , Deficiência Intelectual/reabilitação , Técnicas de Exercício e de Movimento/métodos , Acidentes por Quedas/prevenção & controle , Equilíbrio Postural/fisiologia , Velocidade de Caminhada/fisiologia , Pessoas com Deficiência/reabilitação , Avaliação de Resultado de Intervenções Terapêuticas , Envelhecimento , Propriocepção/fisiologia , Distúrbios Somatossensoriais/prevenção & controle
8.
Artigo em Inglês | MEDLINE | ID: mdl-32085543

RESUMO

We aimed to develop a horticultural therapy program for the vocational rehabilitation of individuals with intellectual disabilities and examine its effects. Individuals with intellectual disabilities (n = 28, average age: 33.23 ± 4.9 years) were recruited from a welfare center in Jecheon, South Korea. They participated in eight weekly sessions of a horticultural therapy program consisting of common succulent cultivation techniques at a specialized succulent cultivation farm located in Jecheon, South Korea. Before and after the program, we assessed hand function (grip strength, pinch force, and hand dexterity, evaluated using a hand dynamometer, Jamar hydraulic pinch gauge, and grooved pegboard, respectively), emotional behavioral strategies (evaluated using the emotional behavioral checklist), and social skills (evaluated using the social skill rating system-teacher form). After participation in the horticultural therapy program, individuals with intellectual disabilities displayed significantly improved hand function, emotional behavior, and social skills (all p < 0.05). This study demonstrates the potential of horticultural therapy focused on succulent cultivation for the vocational training of individuals with intellectual disabilities. Future studies should investigate the effects of the program in a larger cohort.


Assuntos
Horticultura Terapêutica , Deficiência Intelectual , Reabilitação Vocacional , Adulto , Feminino , Humanos , Deficiência Intelectual/reabilitação , Masculino , República da Coreia , Educação Vocacional , Adulto Jovem
9.
Occup Ther Health Care ; 34(1): 85-98, 2020 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-32022608

RESUMO

This scoping review explores parents' experiences with implementing therapy home programs to determine the factors that influence compliance with incorporating therapy activities into their daily routines. Articles that described the experience of parents of children with Down syndrome with implementing an occupational therapy home program were included in this study. Peer-reviewed articles published within the past fifteen years (January 2003 - January 2018) were also included. Six articles met inclusion criteria. Three themes emerged: (1) emphasis on contextualization, (2) the parent-therapist relationship, and (3) emotional burden of parents. The findings suggest that practitioners develop interventions that are enfolded into the family's daily routine as well as considering the parents' emotional resources and learning style when designing therapy activities.


Assuntos
Cuidadores/psicologia , Síndrome de Down/reabilitação , Deficiência Intelectual/reabilitação , Terapia Ocupacional/métodos , Pais/psicologia , Cooperação do Paciente , Humanos
10.
J Appl Res Intellect Disabil ; 33(3): 488-495, 2020 May.
Artigo em Inglês | MEDLINE | ID: mdl-31851774

RESUMO

BACKGROUND: The cardiovascular disease (CVD) risk is high in adults with intellectual disabilities. This CVD risk can potentially be decreased with a resistance training (RT) programme at vigorous intensity, following previous research on successful High-Intensity Training programmes. Our aim was to explore the feasibility of a vigorous RT-programme for adults with intellectual disabilities with CVD risk factors. METHOD: Twenty-four adults with intellectual disabilities with at least one CVD risk factor participated in a 24-week RT-programme. The training intensity was increased from novice (50%1RM) to vigorous (75%-80%1RM). Feasibility was based on the achieved training intensity at the end of the RT-programme. RESULTS: Nineteen participants finished the RT-programme. Feasibility was good as 58% (11 out of 19) of the participants worked out at vigorous intensity at the end of the programme. CONCLUSIONS: It is feasible for the majority of adults with intellectual disabilities with CVD risk factors to exercise at vigorous intensity.


Assuntos
Doenças Cardiovasculares/prevenção & controle , Deficiência Intelectual/reabilitação , Avaliação de Processos e Resultados em Cuidados de Saúde , Treinamento de Resistência/métodos , Adulto , Doenças Cardiovasculares/epidemiologia , Comorbidade , Estudos de Viabilidade , Feminino , Humanos , Deficiência Intelectual/epidemiologia , Masculino , Pessoa de Meia-Idade , Fatores de Risco
11.
J Appl Res Intellect Disabil ; 33(3): 618-624, 2020 May.
Artigo em Inglês | MEDLINE | ID: mdl-31883357

RESUMO

Research on follow-up outcomes of systemic interventions for family members with an intellectual disability is scarce. In this study, short-term and long-term follow-up outcomes of multisystemic therapy for adolescents with antisocial or delinquent behaviour and an intellectual disability (MST-ID) are reported. In addition, the role of parental intellectual disability was examined. Outcomes of 55 families who had received MST-ID were assessed at the end of treatment and at 6-month, 12-month and 18-month follow-up. Parental intellectual disability was used as a predictor of treatment outcomes. Missing data were handled using multiple imputation. Rule-breaking behaviour of adolescents declined during treatment and stabilized until 18 months post-treatment. The presence or absence of parental intellectual disability did not predict treatment outcomes. This study was the first to report long-term outcomes of MST-ID. The intervention achieved similar results in families with and without parents with an intellectual disability.


Assuntos
Comportamento do Adolescente , Filho de Pais Incapacitados , Deficiência Intelectual/reabilitação , Delinquência Juvenil/prevenção & controle , Avaliação de Resultados em Cuidados de Saúde , Psicoterapia , Adolescente , Adulto , Feminino , Seguimentos , Humanos , Masculino , Pessoa de Meia-Idade
12.
J Appl Res Intellect Disabil ; 33(3): 442-456, 2020 May.
Artigo em Inglês | MEDLINE | ID: mdl-31746061

RESUMO

BACKGROUND: Transport is an important basis for social participation. Challenges to accessing and using transport for people with intellectual disabilities increase their risk of exclusion and loneliness. METHOD: Data from a nationally representative study of older people with intellectual disabilities (n = 708) were used to examine longitudinal changes in transport usage and factors associated with using public transport and other travel options. RESULTS: Findings confirmed that this population depends on others for transportation. The most frequently used mode, staff-supported transport, showed no significant longitudinal change. Public transport was secondary, with only moderate continued use between data collection points. Level of intellectual disability most strongly predicted public transport use, while community residence most strongly predicted using public transport to attend work or day programmes. CONCLUSIONS: Transport usage is associated with demand and supply factors linked to the person's environment, including having somewhere to go that requires transport and availability of transport options.


Assuntos
Hospital Dia , Readaptação ao Emprego , Deficiência Intelectual/reabilitação , Participação Social , Transportes , Trabalho , Adulto , Idoso , Idoso de 80 Anos ou mais , Feminino , Humanos , Irlanda , Estudos Longitudinais , Masculino , Pessoa de Meia-Idade , /reabilitação
13.
J Appl Res Intellect Disabil ; 33(3): 386-397, 2020 May.
Artigo em Inglês | MEDLINE | ID: mdl-31769160

RESUMO

BACKGROUND: Adults with an intellectual disability (ID) have much lower rates of employment than their counterparts without intellectual disability, which increases their risk of poverty and social exclusion. Differential treatment of people with intellectual disability in welfare and training policies suggests an expectation they will be passive welfare recipients rather than productive employees. METHODS: This paper aims to examine occupational activities by older people with intellectual disability in Ireland, exploring factors influencing outcomes using data from the IDS-TILDA study (n = 708). RESULTS: Most people were unemployed but engaged in regular occupational activity. Occupational activity was associated with better emotional/mental health. Activities of Daily Living (ADL) functioning was associated with an active occupational status, while social supports most strongly predicted high occupational engagement across a range of activities. CONCLUSIONS: A focus on the individual meaning derived from a broad range of engagement may better support people with intellectual disabilities to benefit from regular occupational activity.


Assuntos
Atividades Cotidianas , Emprego/estatística & dados numéricos , Deficiência Intelectual , Trabalho/estatística & dados numéricos , Adulto , Feminino , Humanos , Deficiência Intelectual/epidemiologia , Deficiência Intelectual/psicologia , Deficiência Intelectual/reabilitação , Irlanda/epidemiologia , Masculino , Pessoa de Meia-Idade , /reabilitação , /estatística & dados numéricos
14.
J Appl Res Intellect Disabil ; 33(3): 334-344, 2020 May.
Artigo em Inglês | MEDLINE | ID: mdl-31612579

RESUMO

BACKGROUND: Active Support, now widely adopted by disability support organizations, is difficult to implement. The study aim was to identify the factors associated with good Active Support. METHODS: Data on service user and staff characteristics, quality of Active Support and practice leadership were collected from a sample of services from 14 organizations annually for between 2 and 7 years, using questionnaires, structured observations and interviews. Data were analysed using multilevel modelling (MLM). RESULTS: Predictors of good Active Support were adaptive behaviour, practice leadership, Active Support training, and time since its implementation. Heterogeneity, having more than six people in a service and larger organizations were associated with lower quality of Active Support. CONCLUSIONS: In order to ensure that Active Support is consistently implemented, and thus, quality of life outcomes improved, organizations need to pay attention to both service design and support for staff through training and practice leadership.


Assuntos
Atitude do Pessoal de Saúde , Conhecimentos, Atitudes e Prática em Saúde , Pessoal de Saúde/normas , Serviços de Saúde/normas , Deficiência Intelectual/reabilitação , /reabilitação , Adulto , Pessoal de Saúde/educação , Pessoal de Saúde/estatística & dados numéricos , Serviços de Saúde/estatística & dados numéricos , Humanos , Liderança , Análise Multinível , Pesquisa Qualitativa
15.
J Appl Res Intellect Disabil ; 33(2): 296-309, 2020 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-31613038

RESUMO

Social inclusion of individuals with intellectual and developmental disabilities (IDD) is related to positive mental health and social outcomes; yet, individuals with IDD experience societal barriers that limit opportunities for community participation. Providing opportunities for interactions between individuals with and without IDD through peer mentoring may diminish barriers and improve community inclusion. Guided by the self-determination theory, the current report describes the development of a peer mentoring programme to promote the natural process of building intrinsic motivation and personal growth through opportunities for individuals without disabilities to socialize with individuals with IDD on a large university campus and throughout the surrounding community. The theoretical framework that informed the development of the peer mentoring programme is described, as well as the participants, the setting in which the programme is situated, the structure of the programme, the initial impacts and improvement of the programme over time, including approaches to sustainability, and implications for future research and practice.


Assuntos
Participação da Comunidade , Deficiência Intelectual/reabilitação , Tutoria , Grupo Associado , Autonomia Pessoal , Adolescente , Adulto , Feminino , Humanos , Masculino , Teoria Psicológica , Estudantes , Universidades , Adulto Jovem
16.
Disabil Health J ; 13(1): 100840, 2020 01.
Artigo em Inglês | MEDLINE | ID: mdl-31582357

RESUMO

BACKGROUND: Technology and social media offer individuals with intellectual and/or developmental disabilities (I/DD) unique and innovative ways to facilitate active participation in their own healthcare process. What remains unclear is the extent to which devices are currently used by this growing patient population. OBJECTIVE: To explore the prevalence of technology and social media use, as well as the possible barriers, among adult patients with I/DD. METHODS: A cross-sectional study utilizing an anonymous, accessible survey was used to obtain data from all adult patients (18 + years of age) with I/DD presenting for primary care services at a healthcare facility in New York between September and December of 2016. RESULTS: A total of 370 individuals completed the survey (529 approached, 69.9% response rate). Less than half (44.6%) of respondents used devices such as a tablet, smartphone or desktop; most (86.8%) did not use social media. Only 21.6% of respondents indicated that they use some type of assistive technology. While some respondents (46.0%) were identified by their caregivers as having a disability that would prevent them from learning/using technology, other respondents reported having no challenges (18.0%), needing training and/or ongoing support (7.4%), or being uncertain as to whether they would experience any challenges (15.5%). CONCLUSIONS: Many adult patients with I/DD do not use technology and social media that could promote self-determination and participation in their healthcare. Continued efforts must be made to promote technology use among adults with I/DD and to ensure that appropriate training is available for both the individual and his/her caregivers to achieve adoption and utilization.


Assuntos
Computadores/estatística & dados numéricos , Deficiências do Desenvolvimento/reabilitação , Deficiência Intelectual/reabilitação , Equipamentos de Autoajuda/estatística & dados numéricos , Mídias Sociais/estatística & dados numéricos , Adolescente , Adulto , Idoso , Estudos Transversais , Pessoas com Deficiência/estatística & dados numéricos , Feminino , Acesso aos Serviços de Saúde/estatística & dados numéricos , Humanos , Masculino , Pessoa de Meia-Idade , New York , Autonomia Pessoal , Smartphone/estatística & dados numéricos , Inquéritos e Questionários , Adulto Jovem
17.
J Appl Res Intellect Disabil ; 33(3): 409-419, 2020 May.
Artigo em Inglês | MEDLINE | ID: mdl-31713985

RESUMO

BACKGROUND: Individuals with intellectual disabilities (ID) may have difficulties in performing daily living tasks. Among other daily living tasks, independent automated teller machine (ATM) skills are an essential life skill for people with intellectual disabilities. MATERIALS AND METHODS: Three junior high school students in a special education class participated in the experiment. We employed the augmented reality (AR) technology to gamify ATM skill training. Specifically, a multiple baseline design was adopted to demonstrate the relation between game-based intervention and using an ATM independently. RESULTS: Data showed that the percentage of correct task steps increased among all three participants. Social validity results showed the teachers considered the AR game was very useful and it had helped their students learn the ATM skills effectively. CONCLUSIONS: The proposed AR game can be used for effective training of students with intellectual disabilities using an ATM independently.


Assuntos
Atividades Cotidianas , Realidade Aumentada , Deficiência Intelectual/reabilitação , Terapia Ocupacional/métodos , Jogos de Vídeo , Adolescente , Educação Especial , Feminino , Humanos , Masculino , Estudantes
18.
Health Soc Care Community ; 28(1): 81-90, 2020 01.
Artigo em Inglês | MEDLINE | ID: mdl-31482622

RESUMO

Very little is known of the activities of the most senior managers in organisations providing social care in the community to people with intellectual disabilities. Yet the importance of the focus and activities of senior managers in directing and supporting staff practice and staff experiences is likely to be central to an organisation's functioning and support provided for staff and service users. This study employed Delphi methodology with a panel of 11 senior managers, mostly chief executives, managing small to very large organisations providing support for people with intellectual disabilities, in the UK. Answering three rounds of questions, senior managers described their face-to-face and non-face-to-face contacts with staff and decision-making. Narrative data were subject to quantitative and thematic analysis. In the last round, themes were subject to quantitative analysis. Most contacts between senior managers and staff were in formal structured contexts and all managers used social media to promote the organisations' ambitions regarding good practice. The panel focused upon accessing and understanding the informal aspects of their organisations and staff factors. Decisions were both short-term reactive and long-term strategic and an effort to link these was felt to improve organisational functioning. A framework for understanding senior managers' activities emerged showing two sources of demands and opportunity, extra-organisational focused upon meeting legal and regulatory demands and intra-organisational focused upon understanding and influencing informal staff practices/experiences and cultures within their organisations.


Assuntos
Atitude do Pessoal de Saúde , Gerentes de Casos/organização & administração , Deficiência Intelectual/reabilitação , Técnica Delfos , Humanos , Cultura Organizacional , Reino Unido
19.
Disabil Rehabil Assist Technol ; 15(1): 14-20, 2020 01.
Artigo em Inglês | MEDLINE | ID: mdl-30306809

RESUMO

Purpose: This study evaluated a tablet-based program to help eight participants with moderate intellectual disability, sensory and/or motor impairments, and lack of expressive or expressive and receptive verbal skills to select and access leisure activities and video calls independently.Methods: The program relied on the use of a tablet (i.e., Samsung Galaxy Tab S2 LTE) with 8-inch screen, Android 6.0 Operating System, front camera, proximity sensor and multimedia player. The tablet was fitted with a SIM card and two specific applications, that is, WhatsApp Messenger for making video calls and MacroDroid for automating the tablet's functioning in accordance with the program conditions. The tablet presented pictures concerning leisure activities and preferred partners for video calls. The participant could select any activity or partner by touching (or nearing his or her hand to) the tablet's proximity sensor.Results: During the baseline (i.e., without the program), the participants failed to access leisure activities or video calls. During the post-intervention phase (i.e., with the program), they selected and accessed those activities and calls independently and spent between about 75% and 90% of the session time engaging with them.Conclusion: The tablet-based program can be highly beneficial for people like the participants of this study.Implications for rehabilitationA technology-aided program may enable persons with intellectual and other disabilities to independently access leisure activities and communication with distant partners.The program may involve the use of video calls to allow communication to participants with limited or no verbal skills.The program may be realized using a tablet (a) including Android 6.0 Operating System, proximity sensor, and multimedia player, and (b) fitted with a SIM card and applications such as WhatsApp Messenger and MacroDroid.The program may be easily adapted to the participants' characteristics in terms of activities available and partners to reach.


Assuntos
Auxiliares de Comunicação para Pessoas com Deficiência , Computadores de Mão , Pessoas com Deficiência/reabilitação , Deficiência Intelectual/reabilitação , Atividades de Lazer , Comunicação por Videoconferência , Adulto , Idoso , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Interface Usuário-Computador
20.
J Appl Res Intellect Disabil ; 33(2): 111-125, 2020 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-31390116

RESUMO

BACKGROUND: Demand for formal social services support for adults with intellectual disabilities is increasing internationally. Initiatives which empower individuals with intellectual disabilities to improve their health, develop living skills or manage chronic illnesses may promote independence and reduce unnecessary dependency on social services. METHODS: A "preventative framework" to managing demand comprising several domains was developed from existing literature to guide the search strategy. RESULTS: Fourteen papers related to three domains in the predetermined preventative framework were selected for inclusion in the review, including twelve economic studies. Outcomes included measurement of care needs, and cost-comparison between social care models or cost-effectiveness of interventions. Due to the heterogeneity, the present authors were not able to quantitatively synthesize findings. CONCLUSIONS: The present authors conclude that evidence linking initiatives across sectors to demand for adult social care is lacking. The present authors identify several gaps in the literature and make recommendations for future research and data recording in practice.


Assuntos
Necessidades e Demandas de Serviços de Saúde , Deficiência Intelectual/reabilitação , Serviço Social , Adulto , Humanos
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