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1.
Rev. Esc. Enferm. USP ; 53: e03466, Jan.-Dez. 2019.
Artigo em Inglês, Espanhol | LILACS, BDENF - Enfermagem | ID: biblio-1020391

RESUMO

RESUMEN Objetivo Describir la experiencia del cuidado familiar a la mujer con cáncer de mama durante el tratamiento, desde la perspectiva de los cuidadores en el contexto mexicano. Método Estudio cualitativo fenomenológico. Fueron realizadas entrevistas en profundidad con cuidadores de mujeres sobrevivientes de cáncer de mama seleccionados mediante muestreo intencional, acumulativo y secuencial. Se llevó a cabo un análisis de contenido convencional. Resultados Participaron siete cuidadores. Los cuidadores refieren sus experiencias positivas y negativas al asumir su rol de cuidadores informales en el contexto familiar. Sobre la fortaleza de la reciprocidad del cuidado y su recompensa, prevalecen los momentos críticos, los sentimientos negativos y la falta de recursos de apoyo durante la experiencia. Ello permite entender el vínculo del cuidado informal para potenciarlo con estrategias de afrontamiento y orientación especifica por parte del personal de enfermería. Conclusión Los participantes experimentaron una transformación en su identidad como cuidadores y al ser conscientes de su experiencia, fueron capaces de describir sus cualidades lo que incrementa sus estrategias de afrontamiento tanto de la enfermedad como de los desafíos del cuidado.


RESUMO Objetivo Descrever a experiência do cuidado familiar com a mulher com câncer de mama durante o tratamento, do ponto de vista dos cuidadores no contexto mexicano. Método Estudo qualitativo fenomenológico. Foram realizadas entrevistas em profundidade com cuidadores de mulheres sobreviventes ao câncer de mama selecionados por meio de amostragem intencional, acumulativa e sequencial. Foi realizada uma análise de conteúdo convencional. Resultados Participaram sete cuidadores. Os cuidadores relatam suas experiências positivas e negativas ao assumir seu papel de cuidadores informais no contexto familiar. Sobre a força da reciprocidade do cuidado e sua recompensa, prevalecem os momentos críticos, os sentimentos negativos e a falta de recursos de apoio durante a experiência. Isso permite entender o vínculo do cuidado informal para potencializá-lo com estratégias de enfrentamento e orientação específica por parte do pessoal de enfermagem. Conclusão Os participantes experimentaram uma transformação na sua identidade como cuidadores e, ao ser conscientes da sua experiência, foram capazes de descrever suas qualidades, o que aumenta suas estratégias de enfrentamento tanto da doença quanto dos desafios do cuidado.


ABSTRACT Objective To describe the experience of family care to women with breast cancer during treatment from the perspective of caregivers in the Mexican context. Method Qualitative phenomenological study. In-depth interviews were conducted with caregivers of women who survived breast cancer. Participants were selected by intentional, cumulative and sequential sampling. A conventional content analysis was performed. Results Participation of seven caregivers, who reported their positive and negative experiences when assuming their role as informal caregivers in the family context. On the strength of the reciprocity of care and its reward, prevailed critical moments, negative feelings, and lack of support resources during the experience. This enables the understanding of the informal care bond in order to enhance it with coping strategies and specific guidance from the nursing staff. Conclusion Participants experienced a transformation in their identity as caregivers and by being aware of their experience, they could describe their qualities, which increased their coping strategies with the disease and the care challenges.


Assuntos
Humanos , Feminino , Adulto , Pessoa de Meia-Idade , Idoso , Neoplasias da Mama/terapia , Família , Cuidadores/psicologia , Enfermagem Oncológica , Entrevista , Pesquisa Qualitativa
2.
Rev Infirm ; 68(255): 27-28, 2019 Nov.
Artigo em Francês | MEDLINE | ID: mdl-31757325

RESUMO

An innovative programme to assist outpatients aims to improve the support provided to patients being treated for cancer in the context of their community-hospital care pathway. Evaluated in haematology with patients receiving treatment for lymphoma, leukaemia, including allografts, the programme highlights new nursing roles at the heart of patient follow-up care. The safety and fluidity of the patient pathway is improved and the medical time optimised.


Assuntos
Assistência Ambulatorial , Oncologia , Neoplasias , Assistência ao Convalescente , Humanos , Neoplasias/enfermagem , Papel do Profissional de Enfermagem , Enfermagem Oncológica
3.
Toxicol Lett ; 316: 20-26, 2019 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-31465813

RESUMO

Health-care personnel handling antineoplastic drugs could be at risk for adverse health effects. We aimed to evaluate genotoxic and cytotoxic effects of antineoplastic drug exposure of personnel preparing and administering such drugs in three Oncology Hospitals in Italy enrolling 42 exposed subjects and 53 controls. Furthermore, we aimed to study the possible influence of XRCC1 and hOGG1 DNA repair genes polymorphisms on genotoxicity induced on buccal cells. We performed workplace and personal monitoring of some drugs and used exposure diary informations to characterize the exposure. Urinary 5-FU metabolite (α-fluoro-ß-alanine) was measured. Buccal Micronucleus Cytome (BMCyt) assay was used to evaluate DNA damage and other cellular anomalies. GEM and 5-FU contamination was found in 68% and 42% of wipe/swab samples respectively. GEM deposition was found on workers' pads while no α-fluoro-ß-alanine was found. BMCyt-assay showed higher genotoxicity and cytotoxicity on nurses administering antineoplastics than on preparators and controls. Among micronucleus (MN) positive (with MN frequency higher than 1.5‰) exposed subjects, the percentage of those carrying XRCC1 mut/het genotype was higher than in MN positive-controls. Using the sensitive BMCyt assay, we demonstrated that handling antineoplastics still represents a potential occupational health risk for workers that should be better trained/informed regarding such risks.


Assuntos
Antineoplásicos/efeitos adversos , Desoxicitidina/análogos & derivados , Monitoramento Ambiental/métodos , Fluoruracila/efeitos adversos , Micronúcleos com Defeito Cromossômico/induzido quimicamente , Testes para Micronúcleos , Mucosa Bucal/efeitos dos fármacos , Recursos Humanos de Enfermagem no Hospital , Exposição Ocupacional/efeitos adversos , Saúde do Trabalhador , Enfermagem Oncológica , Adulto , Antineoplásicos/urina , Biomarcadores/urina , Estudos de Casos e Controles , DNA Glicosilases/genética , Desoxicitidina/efeitos adversos , Desoxicitidina/urina , Feminino , Fluoruracila/urina , Humanos , Itália , Masculino , Pessoa de Meia-Idade , Mucosa Bucal/metabolismo , Exposição Ocupacional/prevenção & controle , Polimorfismo Genético , Medição de Risco , Fatores de Risco , Urinálise , Proteína 1 Complementadora Cruzada de Reparo de Raio-X/genética
4.
Eur J Oncol Nurs ; 42: 28-35, 2019 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-31446261

RESUMO

PURPOSE: There is a limited amount of studies with results on professional development of paediatric oncology nurses. This study seeks to increase the understanding of the factors associated with the professional development of paediatric oncology nurses through the continuous education programme from the paediatric nurses' perspective. METHOD: The descriptive, qualitative study used the text of participants' electronic diaries as data during a two-year continuing professional education programme in 2016-2018. The sample consisted of 17 paediatric oncology nurses who were working in three different university hospitals. The data were analysed with the inductive content analysis method. RESULTS: Professional development is linked with a strong knowledge base in nursing, which involves the use of nursing methods and up-to-date nursing practices. Professional development is also linked with the use of medical knowledge, which manifests as a deep understanding of cancers and their treatment. CONCLUSIONS: Research results show that a strong knowledge base in nursing alone is not sufficient for the professional development of paediatric oncology nurses. They also need to use their medical knowledge in order to gain an adequately deep understanding of children's cancers and their treatment. Nursing must be organised so that nurses have the opportunity to compare, share, question and argue for the methods they use with their colleagues in their own unit and other hospitals. Further research is needed on the professional development of paediatric oncology nurses and factors affecting it in order for a career development model to be created for this specific yet demanding area of nursing.


Assuntos
Educação Continuada em Enfermagem , Enfermagem Oncológica/educação , Enfermagem Pediátrica/educação , Adulto , Atitude do Pessoal de Saúde , Feminino , Humanos , Estudos Longitudinais , Pessoa de Meia-Idade , Pesquisa Qualitativa , Desenvolvimento de Pessoal
5.
Eur J Oncol Nurs ; 42: 69-75, 2019 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-31446266

RESUMO

PURPOSE: Burnout in nursing is a global phenomenon. Caring for dying patients could increase nurses' death anxiety. However, minimal information about oncology nurses' burnout and attitudes towards death in Chinese culture has been reported. This study aims to assess Chinese oncology nurses' burnout, and its relationship with attitudes towards death. METHOD: A cross-sectional design was used. A total of 279 oncology nurses from a cancer hospital in northern China were recruited using convenience sampling, and completed a survey containing a demographic form, the Death Attitudes Profile Scale and the Maslach Burnout Inventory. Descriptive statistics, independent t-test and one-way ANOVA, Pearson correlation analysis and multiple regression analysis were conducted to analyze data. RESULTS: An average of 73.1%-86.9% of oncology nurses reported moderate to high levels of burnout. Specifically, 48.7%, 45.4% and 65.1% of oncology nurses reported high levels of emotional exhaustion, depersonalization and personal accomplishment, respectively. Multiple regression analysis showed that fear of death, escape acceptance, younger age and participation of death education/training were significantly associated with emotional exhaustion (p < 0.01), accounting for 22.0% of the variance; fear of death, escape acceptance, and neutral acceptance in total explained 17.8% of depersonalization; fear of death, escape acceptance and neutral acceptance accounted for 8.5% of personal accomplishment. CONCLUSIONS: Oncology nurses with more positive attitudes towards death experience less burnout. Death education and death related training including discussion of personal attitudes towards death should be part of nursing education programs, which would in turn prevent oncology nurses from burnout.


Assuntos
Atitude do Pessoal de Saúde , Atitude Frente a Morte , Esgotamento Profissional/epidemiologia , Recursos Humanos de Enfermagem/psicologia , Enfermagem Oncológica , Adulto , Análise de Variância , Esgotamento Profissional/psicologia , China , Estudos Transversais , Despersonalização , Emoções , Empatia , Medo , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Análise Multivariada , Prevalência , Análise de Regressão , Inquéritos e Questionários
6.
BMC Med Inform Decis Mak ; 19(1): 130, 2019 07 11.
Artigo em Inglês | MEDLINE | ID: mdl-31296199

RESUMO

BACKGROUND: Patient decision aids (PDAs) can support the treatment decision making process and empower patients to take a proactive role in their treatment pathway while using a shared decision-making (SDM) approach making participatory medicine possible. The aim of this study was to develop a PDA for prostate cancer that is accurate and user-friendly. METHODS: We followed a user-centered design process consisting of five rounds of semi-structured interviews and usability surveys with topics such as informational/decisional needs of users and requirements for PDAs. Our user-base consisted of 8 urologists, 4 radiation oncologists, 2 oncology nurses, 8 general practitioners, 19 former prostate cancer patients, 4 usability experts and 11 healthy volunteers. RESULTS: Informational needs for patients centered on three key factors: treatment experience, post-treatment quality of life, and the impact of side effects. Patients and clinicians valued a PDA that presents balanced information on these factors through simple understandable language and visual aids. Usability questionnaires revealed that patients were more satisfied overall with the PDA than clinicians; however, both groups had concerns that the PDA might lengthen consultation times (42 and 41%, respectively). The PDA is accessible on http://beslissamen.nl/ . CONCLUSIONS: User-centered design provided valuable insights into PDA requirements but challenges in integrating diverse perspectives as clinicians focus on clinical outcomes while patients also consider quality of life. Nevertheless, it is crucial to involve a broad base of clinical users in order to better understand the decision-making process and to develop a PDA that is accurate, usable, and acceptable.


Assuntos
Técnicas de Apoio para a Decisão , Participação do Paciente , Neoplasias da Próstata/terapia , Adulto , Feminino , Humanos , Masculino , Enfermeiras e Enfermeiros , Enfermagem Oncológica , Educação de Pacientes como Assunto , Médicos , Urologia
7.
BMC Health Serv Res ; 19(1): 483, 2019 Jul 12.
Artigo em Inglês | MEDLINE | ID: mdl-31299966

RESUMO

BACKGROUND: Facing the increasing cancer incidence and cancer survivorship, many national strategic cancer plans have identified cancer care coordination as a priority for health service improvement. However, the high variability of practices, the diversity of definitions and underlying concepts increases the existing difficulty to standardise, replicate, transpose and assess care coordination within the French health system context. The EPOCK national study aims at evaluating practices and the working context of hospital-based cancer care coordination nurses, based on a previously designed reference framework for care coordination within the French health system context. METHODS: EPOCK is based on a comprehensive evaluation of nursing professions in cancer care coordination, considered as a complex intervention. Phase 1 (theoretical phase) will define and design a theoretical reference framework for care coordination in France through an international literature review, aiming to identify relevant models and all components of the expected framework and a structured consensus method, the Nominal group technique, aiming to select and prioritise the most relevant components already found in the literature review with regard to the French healthcare system; phase 2 (Operational phase) will consist in an in-depth analysis of practices, contexts, perceptions and attitudes related to care coordination occupations by nurses in oncology and all stakeholders (related professionals, patients and their caregivers) through a multicentric cross-sectional mixed-method evaluative study. The observed practices and contexts will be finally compared with the theoretical reference framework using both inductive and deductive approaches. DISCUSSION: This study will result in an evaluation framework identifying key models and key elements relative to cancer care coordination interventions that can be used to guide management of cancer care coordination nursing occupations within the French healthcare system. EPOCK would also assist in public decision-making to identify optimal targets, skills profiles and scope of actions for cancer coordination professions. Finally, EPOCK will describe typology of nurse practices in cancer care coordination and thus obtain precise preliminary information essential for drafting a medico-economic evaluation study of these new nursing professions' impact. TRIAL REGISTRATION: Clinicaltrial.gov registration: NCT03350776 , 11/22/2017.


Assuntos
Continuidade da Assistência ao Paciente/organização & administração , Neoplasias/enfermagem , Enfermagem Oncológica/organização & administração , Estudos Transversais , França , Pesquisa sobre Serviços de Saúde , Humanos , Pesquisa Qualitativa , Projetos de Pesquisa , Inquéritos e Questionários
8.
Eur J Oncol Nurs ; 41: 149-164, 2019 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-31358248

RESUMO

PURPOSE: Primary care nurses can contribute to cancer early diagnosis. The objective of this systematic review was to identify, appraise and synthesise evidence on primary care nurses' contribution towards cancer early diagnosis in developed countries. METHOD: The following databases were searched in September 2017: MEDLINE, PsychINFO, CINAHL, SCOPUS, and EMBASE. Data were extracted on nurses': knowledge of cancer; frequency of 'cancer early diagnosis-related discussions' with patients; and perceived factors influencing these discussions. Studies were appraised using the Mixed Methods Appraisal Tool. RESULTS: Twenty-one studies were included from: United States, United Kingdom, Ireland, Spain, Turkey, Australia, Brazil and Middle East. Studies were mostly of low quality (one did not meet any appraisal criteria, 15 met one, four met two, and one met three). Nurses' knowledge of cancer, and their frequency of 'cancer early diagnosis-related discussions', varied across countries. This may be due to measurement bias or nurses' divergent roles across healthcare systems. Commonly perceived barriers to having screening discussions included: lack of time, insufficient knowledge and communication skills, and believing that patients react negatively to this topic being raised. CONCLUSIONS: Findings suggest a need for nurses to be adequately informed about, and have the confidence and skills to discuss, the topic of cancer early diagnosis. Further high-quality research is required to understand international variation in primary care nurses' contribution to this field, and to develop and evaluate optimal methods for preparing them for, and supporting them in, this.


Assuntos
Detecção Precoce de Câncer/enfermagem , Neoplasias/diagnóstico , Papel do Profissional de Enfermagem , Enfermagem Oncológica/normas , Enfermagem de Atenção Primária/normas , Adulto , Austrália , Brasil , Feminino , Humanos , Irlanda , Masculino , Pessoa de Meia-Idade , Oriente Médio , Espanha , Turquia , Reino Unido , Estados Unidos
9.
Eur J Oncol Nurs ; 41: 24-32, 2019 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-31358254

RESUMO

PURPOSE: The administration of chemotherapy is a complex task which has many safety issues. Safe administration of chemotherapy by nurses should be evidence-based. The aim of this integrative review was to synthesise the evidence about education and practice requirements for safe administration of chemotherapy by nurses. METHOD: A systematic search of four databases identified 17 studies for inclusion in this review. Key words: Nurse, chemotherapy, cytotoxic drug, administration, safety, education. Data extracted from the studies included author, year, aims, design, sample, outcome measures and findings. After screening the articles, extracting study data and completing a summary table, critical appraisal of the studies was completed using the Mixed Methods Appraisal Tool (MMAT). RESULTS: All the studies focused on strategies to promote patient and nurse safety during nursing administration of chemotherapy. Content analysis identified five themes: governance, process safeguards, communication, interdisciplinary collaboration and education. Key strategies or interventions that increased patient and/or nurse safety identified were standardised computer-generated chemotherapy orders, barcodes, medication safety procedures, education and simulated learning. CONCLUSIONS: This review found low-level evidence exists about the education and safety requirements for nursing administration of chemotherapy. High-level research is needed to assist healthcare services to select evidence-based educational and safety strategies and provide appropriately resourced work environments to support the safe nursing administration of chemotherapy and deliver the best possible patient outcomes.


Assuntos
Assistência à Saúde/normas , Tratamento Farmacológico/normas , Recursos Humanos de Enfermagem no Hospital/educação , Enfermagem Oncológica/educação , Enfermagem Oncológica/normas , Segurança do Paciente/normas , Adulto , Feminino , Humanos , Masculino , Pessoa de Meia-Idade
10.
Eur J Oncol Nurs ; 41: 33-40, 2019 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-31358255

RESUMO

PURPOSE: To assess patients' diagnosed with cancer perceptions on individualized nursing care and quality of oncology nursing care in Cyprus. METHODS: This was a descriptive correlational research with 150 patients diagnosed with cancer and receiving treatment as in-patients at three different urban hospitals of Cyprus, based on predetermined inclusion and exclusion criteria. Data were collected with the Individualized Care Scale-ICS and the Quality Oncology Nursing Care Scale-QONCS. Statistical significance was set at the 0.05 level. RESULTS: Data showed that a medium level of support of patients' individuality was provided by nurses (ICS-A mean = 3.41, SD = 0.98) and a high level of realization of perceived individuality in the provided care. Quality of oncology nursing care was found high on three dimensions of care, i.e. being supported and confirmed, being respected and having a sense of belonging. A statistically significant positive correla-tion was observed between the two scales of ICS, i.e. ICS-A and ΙCS-B (r = 0.80), and four of the dimensions of QONCS, i.e. "Being supported and confirmed", "Being cared for religiously and spiritually", "Sense of Belonging" and "Being respected" and all the subscales, i.e. Clinical Situation (r = 0.45, 0.27, 0.41, 0.42), Personal life sit-uation (r = 0.30, 0.51, 0.44, 0.35) and Decision control (r = 0.35, 0.46, 0.35, 0.40). CONCLUSION: The correlations found between individualized care and quality of oncology nursing care, highlight the need to provide a more personalized nursing care as a means to achieve a high level of quality nursing care.


Assuntos
Neoplasias/enfermagem , Enfermagem Oncológica/normas , Assistência Centrada no Paciente/normas , Qualidade da Assistência à Saúde/normas , Adolescente , Adulto , Idoso , Idoso de 80 Anos ou mais , Estudos Transversais , Chipre , Tomada de Decisões , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Adulto Jovem
11.
Eur J Oncol Nurs ; 41: 41-48, 2019 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-31358256

RESUMO

PURPOSE: Extensive research results show quality improvements associated with advanced cancer nursing roles. Despite this, these roles are not implemented in many countries. The aim of this cross-sectional, population-based study was to compare patients' perception of care, before and after the introduction of a new advanced nursing role, the coordination contact nurse (CCN), in a region in Sweden. METHOD: All patients (with gynaecological, haematological, Head & Neck, upper gastrointestinal cancers) diagnosed in the region the year prior and one-year post introducing the new CCN role were identified from the Swedish Cancer Register. Data were collected using the European Organization of Research and Treatment of Cancer [EORTC] Quality of Life Questionnaire (QLQ-C30 and QLQ-INFO25) and a study specific questionnaire. RESULT: The results, based on baseline (n = 869) and follow-up data (n = 1003), show statistically significant patient-reported improvements after the introduction of the CCN role, regarding health-related patient information (EORTC QLQ- INFO25 global mean score increased from 41.23 to 44.16, p = 0.0006). We found statistically significant improvements related to availability of supportive care resources, e.g. increased reported access to contact nurse (from 53% to 66%, p ≤ 0.0001) and individual written care plans (from 40% to 54%, p < 0.0001). We also found some improvements related to patient involvement and care coordination, but also room for further developments. CONCLUSION: The implementation of the new advanced cancer nursing role may have contributed to important improvements, but it has also identified areas in need of development. Further research with long-term evaluations of CCN roles in other contexts, are both needed and on-going.


Assuntos
Prática Avançada de Enfermagem/normas , Neoplasias/enfermagem , Papel do Profissional de Enfermagem/psicologia , Enfermagem Oncológica/normas , Medidas de Resultados Relatados pelo Paciente , Satisfação do Paciente , Qualidade de Vida/psicologia , Adulto , Idoso , Idoso de 80 Anos ou mais , Estudos Transversais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Inquéritos e Questionários , Suécia
12.
Eur J Oncol Nurs ; 41: 56-63, 2019 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-31358258

RESUMO

PURPOSE: The objective of this mixed-methods study was to explore the experiences and perspectives of Transplant Nurses (TNs) in caring for related donors (RDs). METHOD: In this mixed-methods study, both quantitative and qualitative data were collected from semi-structured interviews with seven TNs from two clinical hospitals. Closed and multiple-choice questions regarding the organisation of RD care were administered in addition to an in-depth exploration of TN experiences and perspectives of RD care. Interviews were audio-recorded, transcribed, and qualitative data was subjected to thematic analyses. RESULTS: The analysis identified 5 themes relating to RD care: managing complex family dynamics and ambivalence; concerns about RD psychological adjustment; identifying and correcting RD misperceptions; limited guidelines and structured processes; limited training for the role and access to supervision. Five themes were identified describing the barriers to delivering RD care: RDs unwilling to express their concerns; language; time constraints; medical priority of clinicians; biomedical focus of TNs. All TNs agreed they would like additional training in the psychosocial management of RDs. TNs identified key areas for improvement, including psychosocial support and educational material. CONCLUSIONS: Our results highlight the significant role of TNs in RD care, and underline issues specific to the current RD care environment. Lack of training for the role and limited guidelines addressing RD care management are key issues which may detrimentally affect RD care. The pivotal role of TNs must be acknowledged and supported by improving TN training and implementing clear guidelines for the management of RDs. The trial has been registered on the publicly accessible register: www.clinicaltrials.gov site with the identifier ACTRN12617000407392.


Assuntos
Transplante de Células-Tronco Hematopoéticas/psicologia , Cuidados de Enfermagem/psicologia , Recursos Humanos de Enfermagem no Hospital/psicologia , Enfermagem Oncológica/métodos , Doadores de Tecidos/psicologia , Adulto , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Pesquisa Qualitativa
13.
Eur J Oncol Nurs ; 41: 7-15, 2019 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-31358260

RESUMO

PURPOSE: To determine how members of gynaecological oncology multidisciplinary teams experience and perceive the specialist nurse role. METHODS: Members of gynaecological oncology multidisciplinary teams were recruited via two professional organisations to participate in an online qualitative survey. Survey responses were subjected to an inductive content analysis and categorised according to meaning. RESULTS: Sixty-six (n = 66) multidisciplinary team members participated in the online survey. Most participants worked in metropolitan areas and within the public health care system. 71% (n = 47) of participants had a specialist nurse working in their team. Participants without a specialist nurse in their team (n = 19) believed that this was a disadvantage to the women in their care except where other experienced nurses were able to fill this void. Key aspects of the specialist nurse role identified by multidisciplinary team members included: Contact, communication, and coordination; Support and advocacy; Knowledge and education; Assessment, referral and management. Concerns and disadvantages relating to the role identified by team members included the development of dependence on the specialist nurse, the impact of large workloads, and the oversight of what other nurses can offer the patients. CONCLUSIONS: This study has contributed the perspective of a key stakeholder, the multidisciplinary team, to our understanding of the gynaecological oncology specialist nurse role. Clearer definition of specialist nurse roles is required. Standardised nomenclature and guidelines for practice are recommended to ensure that the specialist nurse role and their scope of practice are clear to key stakeholders and over-dependence on the individual in the role is mitigated.


Assuntos
Prática Avançada de Enfermagem/normas , Neoplasias dos Genitais Femininos/enfermagem , Enfermeiras Clínicas/normas , Enfermeiras Especialistas/normas , Papel do Profissional de Enfermagem , Enfermagem Oncológica/normas , Equipe de Assistência ao Paciente/normas , Adulto , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Inquéritos e Questionários
14.
Eur J Oncol Nurs ; 41: 72-81, 2019 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-31358261

RESUMO

PURPOSE: To identify the educational priorities of haematology nurses in relation to nursing care of patients with haematological conditions. METHOD: We used an online survey questionnaire to identify educational priorities and preferences for learning in haematology nurses across a European setting. Frequencies and descriptive statistics were calculated for demographic variables and chi-square tests to examine relationships between educational needs and demographic variables. RESULTS: 265 nurses from 21 countries responded, the majority being Staff Nurses (37.7%), with >5 years experience in haematology (77.3%) and educated to degree level or above (66.0%). The top 5 educational priorities were disease specific information for lymphoma, disease specific information for leukaemia, management of long-term side effects, understanding the immune system and new treatments in haematology. Demographic variables such as length of experience and patient group cared for influenced some educational priorities. Attending educational conferences was the preferred learning method. CONCLUSIONS: This study provides insight into self-perceived educational priorities for haematology nurses and priorities to inform development of educational initiatives.


Assuntos
Neoplasias Hematológicas/enfermagem , Hematologia/educação , Recursos Humanos de Enfermagem no Hospital/educação , Recursos Humanos de Enfermagem no Hospital/psicologia , Enfermagem Oncológica/educação , Autoimagem , Adulto , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Inquéritos e Questionários
15.
Eur J Oncol Nurs ; 41: 82-87, 2019 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-31358262

RESUMO

PURPOSE: This study was conducted to explore supportive care needs of Thai women with breast cancer undergoing chemotherapy. METHODS: Through qualitative interviews, a convenience sample of ten women with invasive and advanced invasive breast cancer who were undergoing chemotherapy were interviewed. Treatment for all women took place at a regional hospital in lower northern Thailand. Ten participants were interviewed, some more than once, for a total of 18 interviews. A qualitative approach with a semi-structured interview guideline was used in data collection. Content analysis was used to analyze the data. RESULTS: Four major themes were found: 1) the need for physical comfort and health safety, 2) the need for encouragement, 3) the need for solution of financial problems, and 4) the need for communication and useful information. This qualitative investigation found that supportive care needs of Thai women with breast cancer undergoing chemotherapy are essential for nurses to know in order to provide high quality care. CONCLUSIONS: Improvement of supportive care quality for women with breast cancer who are undergoing chemotherapy in Thai culture should include: 1) access to supportive care needs assessment, 2) proactive dissemination of necessary information for better management of their lives, 3) aids to daily living and psychosocial support, and 4) facilitation of easy access to welfare and finance help. Provision of supportive care from both families and health care teams could improve the quality of life and so ease the women's lives for Thai women with breast cancer undergoing chemotherapy.


Assuntos
Antineoplásicos/uso terapêutico , Neoplasias da Mama/tratamento farmacológico , Neoplasias da Mama/psicologia , Tratamento Farmacológico/psicologia , Enfermagem Oncológica/métodos , Qualidade de Vida/psicologia , Apoio Social , Adulto , Feminino , Humanos , Pessoa de Meia-Idade , Tailândia
16.
Rev. pesqui. cuid. fundam. (Online) ; 11(4): 849-856, jul.-set. 2019.
Artigo em Inglês, Português | LILACS, BDENF - Enfermagem | ID: biblio-1005488

RESUMO

Objetivos: Descrever e compreender como uma paciente com câncer de mama utilizava a religiosidade e a espiritualidade como recursos para enfrentar a doença. Método: Estudo descritivo, de natureza metodológica qualitativa. Referencial teórico da Antropologia Médica; método de estudo de caso etnográfico. Coleta de dados utilizou entrevistas semiestruturadas e observação. Resultados: A religiosidade e a espiritualidade foram exercitadas e tiveram grande importância no enfrentamento do câncer de mama para lidar com o adoecimento e as repercussões do tratamento, sendo evidenciadas na prática de orações, fé e frequência habitual à igreja. Conclusão: A espiritualidade e a religiosidade são recursos amplamente utilizados entre pacientes oncológicos, pois possibilitam novo sentido à experiência do adoecimento e do tratamento, modificando como as pessoas enxergam sua trajetória, promovendo menor desgaste e maior alívio em situações difíceis e estressantes, como no caso estudado. É importante que, desde a formação, o enfermeiro olhe para o indivíduo como ser biopsicossocioespiritual, buscando compreender suas dimensões e proporcionar melhor bem-estar


Objectives: The purpose was to describe and to understand how a patient with breast cancer used religiosity and spirituality as resources to face the disease. Method: Descriptive study, qualitative methodology. Theoretical reference of Medical Anthropology; ethnographic case study method. Data collection used semi-structured interviews and observation. Results: Religiosity and spirituality were exercised and have had great importance in breast cancer coping, for to get along with illness and treatment repercussions. That was evidenced through prayers, faith and usual attendance at church. Conclusion: Spirituality and religiosity are resources widely used among cancer patients. They give new meaning to illness and treatment experience, and change the way how people see their trajectory, promoting less tiredness and relief in difficult and stressful situations, as in the case studied. It is important that since the college, nurse looks to people as biopsychosocial and spiritual subject, seeking to understand their dimensions and give better well-being


Objetivos: Describir y comprender cómo una paciente con cáncer de mama utilizaba la religiosidad y la espiritualidad como recursos para enfrentar la enfermedad. Método: Estudio descriptivo, de naturaleza metodológica cualitativa. Referencial teórico de la Antropología Médica; Método de estudio de caso etnográfico. La recolección de datos utilizó entrevistas semiestructuradas y observación. Resultados: La religiosidad y la espiritualidad fueron ejercitadas y tuvieron gran importancia en el enfrentamiento del cáncer de mama, para lidiar con la enfermedad y las repercusiones del tratamiento, siendo evidenciadas en la práctica de oraciones, fe, frecuencia habitual a la iglesia. Conclusión: La espiritualidad y la religiosidad son recursos ampliamente utilizados entre pacientes oncológicos. Posibilitan nuevo sentido a la experiencia de la enfermedad y el tratamiento, modificando cómo las personas ven su trayectoria, promoviendo menor desgaste y mayor alivio en situaciones difíciles y estresantes, como en el caso estudiado. Es importante que desde la formación, el enfermero mira al individuo como ser biopsicosocioespiritual, buscando comprender sus dimensiones y proporcionar mejor bienestar


Assuntos
Humanos , Feminino , Pessoa de Meia-Idade , Neoplasias da Mama , Adaptação Psicológica , Espiritualidade , Enfermagem Oncológica , Assistência Religiosa , Brasil , Conforto do Paciente
17.
Rev. pesqui. cuid. fundam. (Online) ; 11(4): 931-936, jul.-set. 2019.
Artigo em Inglês, Português | LILACS, BDENF - Enfermagem | ID: biblio-1005745

RESUMO

Objetivo: Descrever a experiência de familiares cuidadores de pacientes oncológicos em cuidados paliativos e analisar as implicações para o cuidado de enfermagem. Métodos: Estudo descritivo de abordagem qualitativa, com coleta por meio de entrevista semiestruturada aberta e transcrições submetidas à análise de conteúdo. Resultados: Mediante análise construíram-se três unidades: "Adeus céu azul: a terminalidade da vida, o câncer e os cuidados paliativos", abordando o impacto e a migração para os cuidados paliativos sugerindo auxilio ao enfrentamento; "Respire fundo: desafios dos familiares cuidadores", tocante à escolha do cuidador, às privações e às dificuldades financeiras; "Maior que palavras: vivências que marcaram", enfatizando o impacto do diagnóstico e a dor oncológica como vivências mais significativas. Considerações finais: É necessário ouvir, dar voz e conhecer a história de vida dos familiares cuidadores para o planejamento e promoção satisfatórios da assistência de enfermagem e educação em saúde


Objectives: Describing the experience of family caregivers of cancer patients in palliative care and to analyze the implications for nursing care. Methods: Descriptive study of a qualitative approach, with collection through open semi-structured interview and transcripts submitted to Content Analysis. Results: Through of analyze was constructed three units: "Goodbye Blue Sky: Life Terminality, Cancer and Palliative Care," approaching the impact and migration to palliative care suggesting coping aid; "Take a deep breath: challenges of family caregivers", regarding caregiver choice, deprivation and financial hardship; "Bigger than words: experiences that marked", emphasizing the impact of diagnosis and cancer pain as more significant experiences. Final considerations: It is necessary to listen, give voice and know the life history of family caregivers for the satisfactory planning and promotion of nursing care and health education


Objetivos: Describir la experiencia de familiares cuidadores de pacientes oncológicos en cuidados paliativos y analizar las implicaciones para el cuidado de enfermería. Métodos: Estudio descriptivo de abordaje cualitativo, con colecta a través de entrevista semiestructurada abierta y transcripciones sometidas a Análisis de Contenido. Resultados: Mediante análisis se construyeron tres unidades: "Adiós cielo azul: la terminalidad de la vida, el cáncer y los cuidados paliativos", abordando el impacto y la migración para los cuidados paliativos sugiriendo auxilio al enfrentamiento; "Respire fondo: desafíos de los familiares cuidadores", con respecto a la elección del cuidador, las privaciones y las dificultades financieras; "Mayor que palabras: vivencias que marcaron", enfatizando el impacto del diagnóstico y el dolor oncológico como vivencias más significativas. Consideraciones finales: Es necesario escuchar, dar voz y conocer la historia de vida de los familiares cuidadores para la planificación y promoción satisfactorias de la asistencia de enfermería y educación para la salud


Assuntos
Humanos , Masculino , Feminino , Cuidados Paliativos/métodos , Cuidados Paliativos/psicologia , Família/psicologia , Cuidadores/psicologia , Enfermagem Oncológica/métodos , Neoplasias/enfermagem , Neoplasias/terapia
18.
Rio de Janeiro; s.n; 20190000. 153 p. graf, tab.
Tese em Português | LILACS, BDENF - Enfermagem | ID: biblio-1025297

RESUMO

INTRODUÇÃO: Trata-se de um estudo sobre a sistematização da assistência de enfermagem (SAE) com a operacionalização do processo de enfermagem (PE) no desenvolvimento da primeira fase deste processo, avaliação inicial de enfermagem. OBJETIVO GERAL: Implementar Tecnologia Educacional visando aumentar a adesão dos Enfermeiros à SAE/PE, quanto ao preenchimento do Instrumento de Avaliação Inicial, no módulo informatizado. OBJETIVOS ESPECÍFICOS: Descrever o nível de conhecimento técnico-científico e de valor atribuído pelos Enfermeiros sobre SAE/PE/Avaliação Inicial do paciente oncológico; desenvolver oficinas de sensibilização e de capacitação para o registro da avaliação inicial, no módulo informatizado e monitorar a adesão dos enfermeiros ao preenchimento desse instrumento, após a capacitação. MÉTODO: Estudo comparativo, antes e depois, tipo observacional, descritivo e transversal, com abordagem quantitativa e para o desenvolvimento dos produtos, o processo de análise administrativo de Cury, desenvolvido em três fases. Realizado no INCA/HC I, em uma amostra de 54 enfermeiros. A coleta de dados se deu por meio de questionário estruturado e por dados coletados no Sistema Absolute e na Intranet do INCA. Os dados foram organizados e armazenados num banco de dados construído numa planilha Microsoft Excel® 2007 e transportados para o software R® versão 3.4.4, para análise. A análise foi processada por estatística descritiva, utilizando-se de tabelas e figuras. RESULTADOS: Quanto ao questionário, os participantes da pesquisa eram predominantemente do sexo feminino, tinham em média 39 anos de idade, mais de 10 anos de formados; 98% dos respondentes possuíam curso de Pós-Graduação e tinham mais de 6 anos de INCA. A aplicação do questionário, evidenciou áreas de desconhecimentos sobre SAE/PE/ Avaliação Inicial; a maioria (83.34%) assinalou que existem dificuldades para a implantação da SAE/PE na unidade em que trabalham, 93% acreditam que a SAE/PE trazem benefícios para o paciente, para o enfermeiro e para Instituição. A maioria assinalou que conhecimento (96.30%), capacitação (96.30%), quantitativo adequado de RH (94,11%), educação permanente (81.48%), entre outros, facilita a aplicação da SAE/PE. Observou-se que a SAE/PE não está implementada no local da pesquisa. Quanto ao estudo comparativo, houve aumento dos registros em todos os locais do estudo, após a capacitação. CONSIDERAÇÕES FINAIS: Os dados coletados do questionário e analisados possibilitaram uma visão mais ampla do processo de trabalho realizado pelos enfermeiros participantes da pesquisa. Os dados obtidos do estudo comparativo, antes e após a Oficina de Sensibilização e Capacitação, evidenciaram aumento da adesão dos enfermeiros a esse processo de trabalho. A meta foi atingida, nos Serviços de Pronto-atendimento Adulto (70.80%) e Pediátrico (70%), e no Serviço de Oncologia Pediátrica (83%). Urge a necessidade de continuidade dessa Oficina, de modo a contemplar todo o efetivo de enfermeiros do HC I, fomentando e fortalecendo a discussão sobre essa temática, ampliando o nível de conhecimento, e de competência nesse quesito. Neste sentido, o convênio CAPES/COFEN/UNIRIO reforça o desenvolvimento de pesquisa na Sistematização da Assistência de Enfermagem a partir de melhorias nos processos de trabalho e consequentemente ocasiona impacto direto na prática profissional, na qualidade dos cuidados e segurança do paciente


INTRODUCTION: This is a study about the systematization of nursing care (SAE) with the operationalization of the nursing process (PE) in the development of the first phase of this process, initial nursing assessment. GENERAL OBJECTIVE: To implement Educational Technology to increase the adhesion of the Nurses to the SAE / PE, regarding the completion of the Initial Evaluation Instrument, in the computerized module. SPECIFIC OBJECTIVES: To describe the level of technical-scientific knowledge and value attributed by the Nurses on SAE / PE / Initial Evaluation of the cancer patient; develop awareness and training workshops to register the initial evaluation in the computerized module and monitor the adhesion of nurses to the completion of this instrument after the training. METHODS: A comparative, before and after, observational, descriptive and cross - sectional study, with a quantitative approach and for product development, the Cury administrative analysis process, developed in three phases. Performed in INCA / HC I, in a sample of 54 nurses. Data collection was done through a structured questionnaire and data collected in the Absolute System and INCA Intranet. The data were organized and stored in a database built on a Microsoft Excel® 2007 worksheet and transported to R® software version 3.4.4 for analysis. The analysis was processed by descriptive statistics, using tables and figures. RESULTS: As to the questionnaire, the participants were predominantly female, averaging 39 years of age, over 10 years of age; 98% of the respondents had a postgraduate course and had more than 6 years of INCA. The application of the questionnaire revealed areas of lack of knowledge about SAE / PE / Initial Evaluation; the majority (83.34%) pointed out that there are difficulties for the implantation of SAE / PE in the unit in which they work, 93% believe that the SAE / PE brings benefits to the patient, the nurse and to the Institution. The majority reported that knowledge (96.30%), training (96.30%), adequate quantitative HR (94.11%), permanent education (81.48%), among others, facilitates the application of SAE / PE. It was observed that the SAE / PE is not implemented at the research site. As for the comparative study, there was an increase in the records in all the study sites, after the training. FINAL CONSIDERATIONS: The data collected from the questionnaire and analyzed, allowed a broader view of the work process performed by the nurses participating in the research. The data obtained from the comparative study, before and after the Workshop on Sensitization and Training, showed an increase in nurses' adherence to this work process. The goal was achieved in Adult (70.80%) and Pediatric (70%) and in the Pediatric Oncology Service (83%). It is urgent that this Workshop be continued, so as to include all the HC I nurses, encouraging and strengthening the discussion on this topic, increasing the level of knowledge and competence in this area. In this sense, the CAPES / COFEN / UNIRIO agreement reinforces the development of research in Nursing Care Systematization based on improvements in work processes and consequently has a direct impact on professional practice, quality of patient care and safety


Assuntos
Humanos , Masculino , Feminino , Avaliação de Programas e Instrumentos de Pesquisa , Registros Eletrônicos de Saúde , Cuidados de Enfermagem/métodos , Enfermagem Oncológica , Capacitação em Serviço/métodos , Cuidados de Enfermagem/tendências , Processo de Enfermagem
19.
Enferm. foco (Brasília) ; 10(3): 152-157, jul. 2019. tab
Artigo em Português | LILACS, BDENF - Enfermagem | ID: biblio-1050332

RESUMO

Objetivo: Analisar o perfil de diagnósticos de enfermagem em pacientes em cuidados paliativos oncológicos conforme as dimensões do Diagrama de Abordagem Multidimensional. Método: Estudo descritivo quantitativo em Centro de Alta Complexidade em Oncologia. A coleta ocorreu entre junho a novembro de 2017 e os diagnósticos foram agrupados no diagrama e expressos por estatística descritiva. Resultados: Participaram 73 pacientes, a dimensão física enumerou: Nutrição desequilibrada ­ menor que as necessidades corporais, Perfusão periférica ineficaz, Dor crônica, Risco de integridade da pele prejudicada e Risco de lesão por pressão; dimensão social: Risco de tensão do papel do cuidador e Processos familiares interrompidos; dimensão espiritual expôs a Desesperança e Risco de sofrimento espiritual; e a dimensão psicológica a Ansiedade, Sentimento de impotência e Medo. Conclusão: majoritariamente os diagnósticos foram físicos, suscita-se a mudança de posturas no intuito de intervir nas demais necessidades sobretudo nas dimensões sociais, psicológicas e espirituais. (AU)


Objective: to analyze the profile of nursing diagnoses in patients in oncology palliative care according to the dimensions of the Multidimensional Approach Diagram. Methodology: quantitative descriptive study in Center of High Complexity in Oncology. The collection occurred between June and November of 2017 and the diagnoses were grouped in diagram and expressed by descriptive statistics. Results: 73 patients participated, the physical dimension listed: Unbalanced nutrition - less than bodily needs, Ineffective peripheral perfusion, Chronic pain, Impaired skin integrity risk and Risk of pressure lesion; social dimension: risk of the role of the caregiver and interrupted family processes; spiritual dimension exposed the Despair and Risk of spiritual suffering; and the psychological dimension to Anxiety, Feeling of Impotence and Fear. Conclusion: most of the diagnoses were physical, it is necessary to change postures in order to intervene in other needs, especially in the social, psychological and spiritual dimensions. (AU)


Objetivo: analizar el perfil de diagnósticos de enfermería en pacientes en cuidados paliativos oncológicos conforme las dimensiones del Diagrama de Enfoque Multidimensional. Metodología: estudio descriptivo cuantitativo en Centro de Alta Complejidad en Oncología. La recolección ocurrió entre junio a noviembre de 2017 y los diagnósticos fueron agrupados en el diagrama y expresados por estadística descriptiva. Resultados: participaron 73 pacientes, la dimensión física enumeró: Nutrición desequilibrada - menor que las necesidades corporales, Perfusión periférica ineficaz, Dolor crónico, Riesgo de integridad de la piel perjudicada y Riesgo de lesión por presión; dimensión social: Riesgo de tensión del papel del cuidador y Procesos familiares interrumpidos; la dimensión espiritual expuso la Desesperanza y el riesgo de sufrimiento espiritual; y la dimensión psicológica la Ansiedad, Sentimiento de impotencia y Miedo. Conclusión: mayoritariamente los diagnósticos fueron físicos, se suscita el cambio de posturas con el fin de intervenir en las demás necesidades sobre todo en las dimensiones sociales, psicológicas y espirituales. (AU)


Assuntos
Cuidados Paliativos , Enfermagem Oncológica , Diagnóstico de Enfermagem , Enfermagem , Cuidados de Enfermagem
20.
Indian J Dent Res ; 30(2): 226-230, 2019.
Artigo em Inglês | MEDLINE | ID: mdl-31169154

RESUMO

Background: Oral health awareness and oral care are crucial aspects of oncology nursing practice. However, very few studies concentrate on the oral care of cancer patients undergoing cancer treatment and nursing practice in the Indian subcontinent scenario/situation. Most of the published studies have been conducted in the Western and European countries. Aims: This study aimed to determine the nurses' practice and barriers regarding oral care in cancer patients undergoing chemotherapy and radiation therapy. Materials and Methods: A cross-sectional descriptive survey was conducted among 158 staff nurses working in oncology-related areas from four different hospitals of Dakshina Kannada district and Udupi district of Karnataka state, India. Statistical Analysis: Descriptive and inferential statistics was used by using SPSS 16 version. Results: More than half of respondents [54 (34.2%)] did not perform oral care as a part of routine duties. Maintenance of various records, lack of manpower, and lack of standard operating procedures were major barriers in providing oral care. Documentation audit revealed that nurses recorded oral care in the chart only when order was present in the care sheet, but oral problem assessment was not recorded at all. In all four hospitals surveyed, there was no protocol specifically designed for oral care of cancer patients. Conclusion: Nurses expressed that oral care in cancer patients was one of the most ignored aspect in oncology nursing. Our result highlights the need to develop evidence-based oral care intervention protocol and motivate staff nurses to attend continuing nursing educations regularly to keep themselves abreast of the latest trends in order to render comprehensive care to the patients.


Assuntos
Enfermagem Oncológica , Saúde Bucal , Atitude do Pessoal de Saúde , Estudos Transversais , Humanos , Índia , Inquéritos e Questionários
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