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1.
Barbarói ; (58): 47-64, jan.-jun. 2021. ilus
Artigo em Português | LILACS, Index Psicologia - Periódicos | ID: biblio-1150688

RESUMO

Este estudo buscou investigar as perspectivas de adolescentes sobre a prática de cuidado dos irmãos. A amostra foi composta por seis adolescentes de ambos os sexos, com idades entre 11 e 19 anos. Os dados foram coletados por meio de entrevistas semiestruturadas e as informações foram submetidas à análise de conteúdo. Ressalta-se a importância das atividades desempenhadas pelos adolescentes no contexto familiar para o sustento financeiro da família. A percepção do cuidador sobre o cuidado dispensado aos irmãos abarcou aspectos positivos e negativos, sendo também considerada uma prática normal e rotineira. Dentre os pontos positivos, constatou-se transmitir algo de bom aos irmãos, os desafios e facilidades na realização de atividades de cuidado com os irmãos menores. A prática do cuidado pode contribuir para o sentimento de importância no contexto familiar, como também ser percebida como uma falha das mães no cumprimento de suas responsabilidades. As percepções negativas referiram-se à limitação dos tempos de lazer, à rotina estressante e à mediação de brigas entre os irmãos menores. Evidencia-se a importância de analisar o que essa prática representa para os adolescentes cuidadores, já que esta pode estar associada a sentimentos de desconforto, influenciar o bem-estar, bem como limitar a realização de atividades de lazer.(AU)


This study sought to investigate the perspectives of adolescents about their sibling caretaking. The sample consisted of six adolescents of both sexes, aged between 11 and 19 years old. The data were collected through semi-structured interviews and were submitted to content analysis. The importance of the activities performed by adolescents in the family context for the financial support of the family is emphasized. The caregiver's perception of the care given to siblings contained positive and negative aspects, and was also considered to be routine practice. Among the positives factors, it was found to transmit something good to the siblings, the challenges and facilities in carrying out care activities to younger siblings. The sibling caretaking practice can contribute to the feeling of importance in the family context, as well as being perceived as a failure of mothers in carrying out their responsibilities. Negative perceptions referred to the limitation of leisure time, the stressful routine and the mediation of fights between younger siblings. The importance of analyzing what this practice represents for young caregivers is evident, as it can be associated with uncomfortable feelings, influence well-being, as well as limit the performance of leisure activities.(AU)


Este estudio buscó investigar las perspectivas de los adolescentes sobre la práctica del cuidado de los hermanos. La muestra estuvo formada por seis adolescentes de ambos sexos, con edades comprendidas entre los 11 y los 19 años. La información se recopiló a través de entrevistas semiestructuradas y la información se sometió a análisis de contenido. Se enfatiza la importancia de las actividades que realizan los adolescentes en el contexto familiar para el apoyo financiero de la familia. La percepción del cuidador sobre el cuidado brindado a los hermanos contenía aspectos tanto positivos como negativos, y también se considera una práctica normal y rutinaria. Entre los puntos positivos, se encontró transmitir algo bueno a los hermanos, los desafíos y facilidades para realizar actividades de cuidado con los hermanos menores. La práctica del cuidado puede contribuir al sentimiento de importancia en el contexto familiar, además de ser percibida como un fracaso de las madres en el cumplimiento de sus responsabilidades. Las percepciones negativas se referían a la limitación del tiempo libre, la rutina estresante y la mediación de peleas entre hermanos menores. Es evidente la importancia de analizar lo que representa esta práctica para los cuidadores adolescentes, ya que puede asociarse a sentimientos de malestar, influir en el bienestar, así como limitar la realización de actividades de ocio.(AU)


Assuntos
Humanos , Adolescente , Adolescente , Cuidadores , Irmãos , Família
2.
J Aging Stud ; 57: 100932, 2021 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-34083001

RESUMO

Adoption of strict social distancing and sanitary measures were inevitable in the attempt to thwart the spread of the Covid-19 virus. These measures, however, came at a cost for older adults who faced major mental health issues because of social isolation. The impact of social isolation remains well documented in the wake of the pandemic. This paper explored the lived experiences of older adults living in the community during the Covid-19 sanitary lockdown in the small-island state of Mauritius. As a small-island state with family structures that still skew towards extended or modified extended families, it was interesting to explore whether older adults would be reporting feelings of social isolation as was being reported elsewhere. This study utilized a qualitative approach using a lifeworld hermeneutical approach with 15 older adult participants, recruited through convenience and snowball sampling, in the community. Data were collected using a narrative approach supplemented by an interview guide. Thematic analysis was used to identify themes from transcribed and translated data. Six themes were discovered: Fears of the virus and fear of deprivation; Reliving and recreating bonds; Active contribution to family life; Being and feeling valued within the family; Rediscovering family time and family moments; and Fear of going back to 'normal'. The study revealed positive experiences of the lockdown period characterised by an increase bonding in the family, deepening of familial bond, and increased value despite an initial apprehension of the lockdown. A renewed sense of purpose as well as deepening of bonds was reported by older adults. Some limitations in relation to data trustworthiness and respondents bias, however, could not be avoided since the study was carried out during sanitary lockdown period. The feelings of social isolation and depression reported by older adults who lived alone were not seen in this study, suggesting that the family structure may have a role to play in mitigating these effects. There would also be a need to explore similar small-island states or similar cultures where the effects of sanitary lockdowns may be different from current literature.


Assuntos
COVID-19/psicologia , Família/psicologia , Medo/psicologia , Distanciamento Físico , Isolamento Social/psicologia , Idoso , COVID-19/prevenção & controle , Feminino , Humanos , Vida Independente , Masculino , Maurício , Pessoa de Meia-Idade , SARS-CoV-2
3.
Medicina (Kaunas) ; 57(5)2021 May 11.
Artigo em Inglês | MEDLINE | ID: mdl-34064850

RESUMO

Background and Objectives: Numerous authors have reported that the commonest type of vertigo in children is migraine-associated vertigo (vestibular migraine and benign paroxysmal vertigo of childhood-BPV). We aimed to provide the possible etiological background of vertigo and dizziness in Slovenian children. Materials and Methods: A retrospective case series of pediatric vertigo and dizziness children referred to the tertiary pediatric otorhinolaryngology center from 2015 to 2020. Children received a complete audiological and vestibular workup and were referred to pediatric specialists depending on the clinical presentation. Results: Of 257 children (42% male, 58% female) aged 1-17 years (M = 10.9, SD = 4.3 years) in 19.1% vertigo and dizziness were classified as central, in 12.4% as a peripheral vestibular, in 10.9% as a hemodynamic, in 5.8% as a psychological and none as visual by pediatric neurologists, otorhinolaryngologists, cardiologists, psychologists or ophthalmologists, respectively. 40.8% (20) children with central vertigo had BPV (7.8% of all children) and 8.2% (4) migrainous vertigo. In 43.6% (112 children), the etiology remained unclassified. Conclusions: After a thorough multidisciplinary workup, the etiology of vertigo and dizziness was unraveled in the majority of children referred to our tertiary otorhinolaryngology center. The most common cause was central; however, in a considerable number, the etiology remained unclassified. The latter could be attributed to the self-limiting nature of vertigo spells. Hence, a child presenting with dizziness and vertigo requires a multidisciplinary approach, in which referral to a neurologist is, in most cases, essential.


Assuntos
Tontura , Transtornos de Enxaqueca , Criança , Tontura/epidemiologia , Tontura/etiologia , Família , Feminino , Humanos , Masculino , Transtornos de Enxaqueca/complicações , Transtornos de Enxaqueca/diagnóstico , Transtornos de Enxaqueca/epidemiologia , Estudos Retrospectivos , Vertigem/diagnóstico , Vertigem/epidemiologia , Vertigem/etiologia
4.
Rev Esp Salud Publica ; 952021 Jun 02.
Artigo em Espanhol | MEDLINE | ID: mdl-34075016

RESUMO

OBJECTIVE: Breast cancer is a commonly diagnosed disease in nurses that, from recent years, has been linked to shift work and night work. Also, different components of work stress have such an impact on the nurses' health and work, family and social conciliation. The objective of this research was to analyze the family and working characteristics of Spanish nurses who perform shift work (including night shifts) in search of possible associations with manifestations of psychosomatic stress and the risk of breast cancer. METHODS: A cross-sectional descriptive study was conducted through a virtual questionnaire in a sample of 966 Registered Nurses in Spain between December 2019 and November 2020. A descriptive analysis of sociodemographic and occupational variables was performed, and statistically significant differences and associations were contrasted by estimating risks and confidence intervals. RESULTS: The number of night shifts throughout life and the number of years worked were statistically significant for the association with breast cancer. In addition, other psychosomatic manifestations such as insomnia, palpitations or extreme tiredness were highlighted. Among the most appreciated aspects to generate job satisfaction, co-worker's relationship was underlined. CONCLUSIONS: Rotating shift work can cause multiple clinical alterations that could lead to problems related to family conciliation, self-care or employment wellness. It is important to control the physical, psychological and emotional overload of nurses.


Assuntos
Atitude do Pessoal de Saúde , Atitude Frente a Saúde , Família/psicologia , Enfermeiras e Enfermeiros/psicologia , Trabalho/psicologia , Adulto , Neoplasias da Mama/epidemiologia , Estudos Transversais , Feminino , Humanos , Masculino , Enfermeiras e Enfermeiros/estatística & dados numéricos , Jornada de Trabalho em Turnos , Espanha/epidemiologia , Inquéritos e Questionários
5.
Zhonghua Yi Xue Yi Chuan Xue Za Zhi ; 38(6): 565-568, 2021 Jun 10.
Artigo em Chinês | MEDLINE | ID: mdl-34096027

RESUMO

OBJECTIVE: To explore the genetic basis for a child featuring global developmental delay. METHODS: DNA was extracted from peripheral blood sample taken from the patient and subjected to whole exome sequencing. Suspected variants were verified by Sanger sequencing of his family members. RESULTS: A heterozygous c.239T>C (p.Ile80Thr) variant of the GNB1 gene was detected in the proband, which was a verified to be de novo in origin. CONCLUSION: The heterozygous c.239T>C (p.Ile80Thr) variant of the GNB1 gene probably underlay the disease in this child.


Assuntos
Artrogripose , Subunidades beta da Proteína de Ligação ao GTP , Deficiência Intelectual , Criança , Família , Heterozigoto , Humanos , Deficiência Intelectual/genética , Sequenciamento Completo do Exoma
6.
J Med Case Rep ; 15(1): 279, 2021 Jun 01.
Artigo em Inglês | MEDLINE | ID: mdl-34059119

RESUMO

BACKGROUND: Polyps of the uterine cervix are one of the most common benign hyperplastic lesions occurring in the female genital tract that usually arise from the endocervical canal and are believed to be the result of reactive changes due to long-standing chronic inflammation, multiparty, and foreign bodies. Cervical polyps are usually small in size (less than 4 cm) that are commonly found in adult women; however, a few cases of giant polyps and the rare occurrence of these lesions in children have also been reported. Heterotopias and malignant transformation in cervical polyps are considered to be very rare. CASE PRESENTATION: We present the case of a 10-year-old Afghan girl with a giant pedunculated mass protruding out of the uterine cervix that was accompanied by abdominal pain and mass sensation. The mass was completely excised by surgical intervention and the specimen was submitted for histopathological evaluation. Upon gross and microscopic examination, the characteristic findings of a hamartomatous polyp with heterologous mesenchymal tissue in the form of mature cartilage were seen. To the best of our knowledge, this is the first case of a giant (17.5 cm) hamartomatous polyp of the uterine cervix in this age group. CONCLUSION: Giant hamartomatous cervical polyps rarely occur in patients below 10 years of age. The majority of these lesions are benign; however, a few cases with malignant transformation are also reported, which demands elaborate investigations into the etiopathogenesis and nature of the lesions.


Assuntos
Hamartoma , Neoplasias do Colo do Útero , Adulto , Transformação Celular Neoplásica , Criança , Família , Feminino , Humanos , Neoplasias do Colo do Útero/cirurgia
7.
Artigo em Inglês | MEDLINE | ID: mdl-34000151

RESUMO

OBJECTIVE: To examine the various psychosocial factors associated with reverse migration among migrant workers during the coronavirus disease 2019 (COVID-19) lockdown in India. METHODS: A cross-sectional multicenter study was conducted at 4 sites in Northwest India. The migrant workers were recruited from various shelter homes, and information was gathered from reverse migrant workers and controls using various tools including a sociodemographic profile; knowledge, attitudes, and practices questionnaire; and reasons for migration and reverse migration questionnaires. A total of 275 reverse migrant workers and 276 controls participated in the study. RESULTS: There was a considerable difference between reverse migrant workers and controls regarding the question of whether it was safe to travel during lockdown (76.0% vs 26.4%, respectively). The most common route of spread of COVID-19 infection was through touching and sneezing, and symptoms were fever, dry cough, and sore throat in both groups. Reverse migrant workers had low self-esteem and were reluctant to participate in customs of their migration city. A large number of reverse migrant workers reported that they had no money to survive, worried about family back home at their village, felt pressured by family members to come back to the village, and had been terminated from their job. CONCLUSIONS: Reverse migrant workers had the attitude that it was safe to travel during the lockdown. About one-fifth of the reverse migrant workers reported no place to live and fear of getting an infection. The reverse migrant workers also reported feeling low and gloomy, restless, and uncertain about the future and fear of death. Lack of jobs was a major factor driving migrant workers from their native homes.


Assuntos
Emprego , Família , Conhecimentos, Atitudes e Prática em Saúde , Migrantes/psicologia , Adolescente , Adulto , Idoso , Controle de Doenças Transmissíveis , Estudos Transversais , Feminino , Humanos , Índia , Masculino , Pessoa de Meia-Idade , Adulto Jovem
9.
Isr Med Assoc J ; 23(5): 286-290, 2021 May.
Artigo em Inglês | MEDLINE | ID: mdl-34024044

RESUMO

BACKGROUND: Consent rates for organ donation remain one of the most important factors determining the number of organs available for transplantation. Trauma casualties constitute a substantial part of the deceased organ donor pool and have unique characteristics that distinguish them from the general donor population. However, this group has not been extensively studied. OBJECTIVES: To identify donor factors associated with positive familial consent for solid organ donation among trauma casualties. METHODS: This retrospective study included all trauma casualties who were admitted to the Rabin Medical Center, Beilinson hospital, during the period from January 2008 to December 2017, who were potential organ donors. Data collected included demographic features, the nature of the injury, surgical interventions, and which organs were donated. Data was collected from the Rabin Medical Center Trauma Registry. RESULTS: During the study period 24,504 trauma patients were admitted and 556 died over their hospital course. Of these 76 were potential donors, of whom 32 became actual donors and donated their organs. Two factors showed a statistically significant correlation to donation, namely female gender (P = 0.018) and Jewish religion of the deceased (P = 0.032). CONCLUSIONS: Only a small group of in hospital trauma deaths were potential solid organ donors (13.7%) and less than half of these became actual donors. Consent rates were higher when the deceased was female or Jewish.


Assuntos
Consentimento Livre e Esclarecido/estatística & dados numéricos , Transplante de Órgãos/estatística & dados numéricos , Doadores de Tecidos/estatística & dados numéricos , Obtenção de Tecidos e Órgãos/estatística & dados numéricos , Adolescente , Adulto , Idoso , Criança , Pré-Escolar , Família , Feminino , Hospitais , Humanos , Lactente , Masculino , Pessoa de Meia-Idade , Sistema de Registros , Religião e Medicina , Estudos Retrospectivos , Fatores Sexuais , Doadores de Tecidos/provisão & distribuição , Ferimentos e Lesões/epidemiologia , Adulto Jovem
10.
PLoS One ; 16(5): e0250590, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-33951085

RESUMO

BACKGROUND: Due to the dramatic measures accompanying isolation and the general uncertainty and fear associated with COVID-19, patients and relatives may be at high risk for adverse psychological outcomes. Until now there has been limited research focusing on the prevalence of psychological distress and associated factors in COVID-19 patients and their relatives. The objective of our study was to assess psychological distress in COVID-19 patients and their relatives 30 days after hospital discharge. METHODS: In this prospective observational cohort study at two Swiss tertiary-care hospitals we included consecutive adult patients hospitalized between March and June 2020 for a proven COVID-19 and their relatives. Psychological distress was defined as symptoms of anxiety and/or depression measured with the Hospital Anxiety and Depression Scale (HADS), i.e., a score of ≥8 on the depression and/or anxiety subscale. We further evaluated symptoms of post-traumatic stress disorder (PTSD), defined as a score of ≥1.5 on the Impact of Event Scale-Revised (IES-R). RESULTS: Among 126 included patients, 24 (19.1%) had psychological distress and 10 (8.7%) had symptoms of PTSD 30 days after hospital discharge. In multivariate logistic regression analyses three factors were independently associated with psychological distress in patients: resilience (OR 0.82; 95%CI 0.71 to 0.94; p = 0.005), high levels of perceived stress (OR 1.21; 95%CI 1.06 to 1.38; p = 0.006) and low frequency of contact with relatives (OR 7.67; 95%CI 1.42 to 41.58; p = 0.018). The model showed good discrimination, with an area under the receiver-operating characteristic curve (AUC) of 0.92. Among 153 relatives, 35 (22.9%) showed symptoms of psychological distress, and 3 (2%) of PTSD. For relatives, resilience was negatively associated (OR 0.85; 95%CI 0.75 to 0.96; p = 0.007), whereas perceived overall burden caused by COVID-19 was positively associated with psychological distress (OR 1.72; 95%CI 1.31 to 2.25; p<0.001). The overall model also had good discrimination, with an AUC of 0.87. CONCLUSION: A relevant number of COVID-19 patients as well as their relatives exhibited psychological distress 30 days after hospital discharge. These results might aid in development of strategies to prevent psychological distress in COVID-19 patients and their relatives.


Assuntos
/psicologia , Família/psicologia , Angústia Psicológica , Adulto , Idoso , Área Sob a Curva , /virologia , Estudos de Coortes , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Alta do Paciente , Prevalência , Estudos Prospectivos , Curva ROC , Resiliência Psicológica , Fatores Socioeconômicos , Transtornos de Estresse Pós-Traumáticos/diagnóstico , Transtornos de Estresse Pós-Traumáticos/epidemiologia , Estresse Psicológico
11.
J Trop Pediatr ; 67(2)2021 05 17.
Artigo em Inglês | MEDLINE | ID: mdl-33998656

RESUMO

Acanthamoeba meningoencephalitis is a very rare entity with high mortality rate. Its diagnosis is usually delated, and the optimal approach for its treatment is uncertain. In presented case, early diagnosis was made with direct examination of cerebral spinal fluid, and immediate initiation of accurate treatment with amphotericin B and fluconazole survived patient.


Assuntos
Acanthamoeba , Amebíase , Infecções Protozoárias do Sistema Nervoso Central , Meningoencefalite , Amebíase/diagnóstico , Amebíase/tratamento farmacológico , Infecções Protozoárias do Sistema Nervoso Central/diagnóstico , Infecções Protozoárias do Sistema Nervoso Central/tratamento farmacológico , Criança , Família , Humanos , Meningoencefalite/diagnóstico , Meningoencefalite/tratamento farmacológico
12.
Gan To Kagaku Ryoho ; 48(5): 621-626, 2021 May.
Artigo em Japonês | MEDLINE | ID: mdl-34006699

RESUMO

Family members of cancer patients experience major changes in their daily lives due to their loved one's illness. The associated stress spreads across all aspects of their lives, physical, emotional, psychological and social, and due to risk of physical and mental illness posed, these family members are referred to as secondary patients. With advances in cancer medicine, family participation is required in various aspects of patient decision‒making, and families must address many challenges, not just nursing. After the patient's death, the family then becomes the bereaved family. The bereaved families of patients who died of cancer have characteristic burdens such as"regret"", unhelpful communication", and"anniversary reactions", and it is necessary to take appropriate measures while paying attention to the risk of physical and mental illness among the family members. In addition, it is important to have knowledge not only of physical and mental problems but also legal problems that arise, and to ask a specialist when necessary to support patients, families, and bereaved families.


Assuntos
Luto , Neoplasias , Família , Humanos
13.
Codas ; 33(2): e20190128, 2021.
Artigo em Português, Inglês | MEDLINE | ID: mdl-33978101

RESUMO

PURPOSE: To identify the factors associated with the cognitive development of children from 24 to 42 months of age, as well as to characterize the availability of toys and resources present in the family environment, and the parental practices that signal family stability. METHODS: Cross-sectional analytical study conducted with children regularly enrolled in public and private educational institutions of a medium-sized city. Cognitive development was assessed by means of the Bayley test and the quality of the environment was evaluated using the Adapted Family Environment Resource Inventory (FERI). The children were allocated into two groups based on the cognitive test result and compared regarding activities performed at home; reports of outings and trips in the last year; presence of regular scheduled activities; activities developed with parents; toys the child has or has had; presence of newspapers, magazines, and books at home; the person responsible for monitoring the child during day-care; and routines of the child and family. RESULTS: Of the 104 children evaluated, 72% were enrolled in the public education network and 69% belonged to economic classes C and D. Regarding cognitive development, 55% had above-average development. In the bivariate analysis, it was observed that greater availability of toys and materials for the child and higher economic levels were related to better scores on the cognitive development test. These remained as predictors of cognitive development in binary logistic regression analysis. CONCLUSION: Greater availability of resources in the family environment and economic levels were positively associated with cognitive development in children.


Assuntos
Desenvolvimento Infantil , Medicina de Família e Comunidade , Criança , Cognição , Estudos Transversais , Família , Humanos
14.
Dimens Crit Care Nurs ; 40(2): 83-91, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-33961377

RESUMO

BACKGROUND/INTRODUCTION: Bereavement and grief in critical care nurses remain an understudied phenomenon. As a way of self-protection, nurses may compartmentalize their own feelings and need assistance and support in processing feelings of bereavement. Nurses spend much of their time caring for patients and their family members, while guiding them through the dying process; however, they may not take adequate time to address their own bereavement needs. OBJECTIVE/AIMS: The aims of this study were to explore the bereavement needs of critical care nurses after experiencing the expected or unexpected death of a patient and, from their lived experiences, gain insight as to how nurses perceive, process, and cope with the death of a patient. METHODOLOGY: A qualitative, phenomenological focus group was conducted with critical care nurses (N = 10) after gaining institutional review board approval. The group discussion was audio-recorded and transcribed. Content analysis was performed to identify common themes. RESULTS: Seven themes emerged: (a) emotional distress, leading to compassion fatigue, burnout, and moral distress, (b) empathy, (c) resurfacing personal loss leading to secondary traumatic stress in the workplace, (d) unrealistic expectations placed on the nurse, (e) detachment leading to compartmentalization, (f) lack of formal education, and (g) self-care and available resources. DISCUSSION/CONCLUSION: More education for nurses in undergraduate and continuing education programs is needed to assist nurses in the bereavement process. More interventional studies are needed to explore programs of nurses' self-care both in the workplace and in nurses' personal lives to more effectively support their emotional needs.


Assuntos
Luto , Enfermeiras e Enfermeiros , Cuidados Críticos , Família , Pesar , Humanos , Pesquisa Qualitativa
15.
Soins ; 66(854): 49-52, 2021 Apr.
Artigo em Francês | MEDLINE | ID: mdl-33962734

RESUMO

When the only geno-identical donor is a minor child with autistic type disorders, the question of consent arises. Reflection on the decision to transplant bone marrow in this specific context.


Assuntos
Transplante de Medula Óssea , Doadores de Tecidos , Criança , Família , Humanos
17.
BMC Fam Pract ; 22(1): 94, 2021 05 15.
Artigo em Inglês | MEDLINE | ID: mdl-33992079

RESUMO

BACKGROUND: The bereaved families of COVID-19 victims are among the most vulnerable social groups in the COVID-19 pandemic. This highly infectious and contagious disease has afflicted these families with numerous psychological crises which have not been studied much yet. The present study is an attempt at investigating the psychological challenges and issues which the families of COVID-19 victims are faced with. The present study aims to identify the Mental Health crises which the families of COVID-19 deceased victims are going through. METHODS: A qualitative research, the present study uses a conventional content analysis design. The participants were 16 members of the families of COVID-19 victims selected from medical centers in Iran from February to May 2020 via purposeful sampling. Sampling continued to the point of data saturation Data were collected via semi-structured individual interviews conducted online. The collected data were analyzed according to the conventional qualitative content analysis approach. RESULTS: Analyses of the data yielded two main themes and seven categories. Emotional shock included (feelings of guilt and rumination, bitter farewell, strange burial and concern about unreligious burial), and fear of the future included (instability in the family, lack of job security and difficult financial conditions, Stigmatization and complications in social interactions). CONCLUSION: The families of COVID-19 deceased victims are affected by various psychological crises which have exposed them to a deep sense of loss and emotional shock. Therefore, there is an urgent need for a cultural context which recognizes and supports all the various aspects of the mental health of these families.


Assuntos
Luto , Família/psicologia , Saúde Mental , Pneumonia Viral/mortalidade , Adulto , Feminino , Humanos , Entrevistas como Assunto , Irã (Geográfico)/epidemiologia , Masculino , Pandemias , Pneumonia Viral/virologia , Pesquisa Qualitativa
18.
Am Soc Clin Oncol Educ Book ; 41: 413-422, 2021 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-34010046

RESUMO

Effective delivery of cancer care via telehealth requires a planned care system that accounts for myriad patient, provider, and practice/cancer center resources before, during, and after the care episode. Telehealth is broadly defined as a method to have virtual, bidirectional communication between patients and providers. Telehealth can include methods such as audio-only, video-consultation, and tele-monitoring, which can occur in a synchronous, asynchronous, or blended format. The purpose of this review is to present common foundational principles for providing clinical cancer care via telehealth, followed by an overview of three distinct examples of comprehensive telehealth programs that have been developed to meet the needs of patients and families across the cancer trajectory, including survivorship, rehabilitation, and palliative care phases. The programs described are exemplars that were developed and implemented prior to the coronavirus pandemic, so they reflect many years of planning and evidence. Lessons learned include the need for ongoing patient support, clinician training, and cancer health system/practice programmatic considerations such as billing, scheduling, reimbursement, software, and hardware/platform security. Although the COVID-19 pandemic produced an explosive shift in regulations and implementation, sustainability of these changes may not be long-term. Nevertheless, a permanent shift in cancer care to include telehealth is likely here to stay.


Assuntos
Família/psicologia , Neoplasias/epidemiologia , Pacientes/estatística & dados numéricos , Telemedicina/métodos , Humanos
19.
Rev Infirm ; 70(271): 38-40, 2021 May.
Artigo em Francês | MEDLINE | ID: mdl-34024583

RESUMO

The question of the place and role of caregivers, most often parents, for children with autism spectrum disorders has undergone significant change in recent years. It is now proven that when a parent acquires knowledge about autism, he is able to interact in a functional way and thus to use more effective educational methods with his child.


Assuntos
Transtorno do Espectro Autista , Transtorno Autístico , Adolescente , Cuidadores , Criança , Família , Humanos , Masculino , Pais
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