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1.
Crit Care Resusc ; 22(3): 221-226, 2020 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-32900328

RESUMO

BACKGROUND: Regularly informing families of the condition of their relative can be difficult. Text messaging via mobile telephones may achieve such communication effectively. OBJECTIVE: To test the hypotheses that we could efficiently deliver real-time short message service (SMS) updates to families and that these SMS updates would be accepted and welcomed. DESIGN: Prospective observational study. PARTICIPANTS: Cohort of 91 cardiac surgery patients and 156 family participants. INTERVENTION: At five distinct landmark events, we sent pre-written SMS updates to designated mobile numbers. We used the sendQuick (TalariaX) mobile messaging platform via the internet in our hospital. To alleviate privacy concerns, all patients were referred to as "your loved one". The message confirmed the passing of each landmark and directed the families towards the next one. After the patient's discharge, families were followed up with a telephone call and a five-point Likert scale questionnaire. RESULTS: We successfully sent all five SMS messages for 72 patients to 114 participants (73%). Among 114 participants, all agreed the SMS service was reassuring and that the SMS messages were easy to follow and kept participants informed. Almost all felt the SMS service did not increase anxiety and all disagreed with the SMS service being intrusive. All surveyed participants stated that they would recommend the service to other families. CONCLUSION: We successfully instituted real-time SMS updates. All surveyed participants agreed that these messages were reassuring, informative and easy to follow and that they would recommend the SMS service to other families.


Assuntos
Telefone Celular , Comunicação , Cuidados Críticos/métodos , Família/psicologia , Envio de Mensagens de Texto , Humanos , Estudos Prospectivos
2.
PLoS One ; 15(8): e0236870, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-32813732

RESUMO

The aim of the study was to verify the relationship between child-oriented and partner-oriented perfectionism, and their associations with narcissism and with difficulties in the romantic and parental domains. A total of 459 individuals participated, 264 women and 195 men (Mage = 33.88, SD = 4.39). Child-oriented perfectionism and partner-oriented perfectionism were related to each other and positively correlated with narcissism. Partner-oriented perfectionism turned out to be a specific predictor of difficulties in the romantic relations, whereas child-oriented perfectionism was found to be a predictor of difficulties in parental relation. The results suggest that studies on other-oriented perfectionism should take into consideration concrete individuals at whom perfectionistic expectations are directed (e.g. partner and children). This will enable a more precise investigation of the influence of perfectionism on family life and a better understanding of the social consequences of other-oriented perfectionism.


Assuntos
Família/psicologia , Poder Familiar/psicologia , Perfeccionismo , Criança , Pré-Escolar , Feminino , Humanos , Lactente , Masculino , Narcisismo
3.
PLoS One ; 15(8): e0237113, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-32760157

RESUMO

OBJECTIVE: Adolescent migrants present psychological disorders more frequently than the corresponding host population but their access to care and to follow-up are less effective. The French method of transcultural psychotherapy (TPT) was conceived to respond to these problems. Our objective is to assess how these adolescents and their families perceive the experience and effectiveness of TPT. METHOD: We conducted semistructured interviews with the families of adolescents seen for TPT. The data were analyzed by a qualitative thematic methodology. RESULTS: We spoke to 21 participants in 8 families. The families came to TPT with a sense that the teen's current treatment was at an impasse. During the follow-up, they noted that family communication and relationships had improved, as had their connection to their culture of origin. Besides commenting on what they perceived as limitations, families identified specific elements of TPT as therapeutic. CONCLUSION: The pronounced diversity of the group and the use of both multiperspective narration and an interpreter were specific elements driving the construction of a good therapeutic alliance, despite the initial barriers. Pursuit of the evaluation of TPT is essential to advance the psychiatric care of adolescent migrants.


Assuntos
Medidas de Resultados Relatados pelo Paciente , Psicoterapia/métodos , Migrantes/psicologia , Aculturação , Adolescente , Criança , Características Culturais , Família/psicologia , Feminino , Humanos , Masculino , Psicoterapia/normas , Inquéritos e Questionários , Adulto Jovem
5.
Intern Med J ; 50(9): 1146-1150, 2020 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-32761863

RESUMO

The scale of the COVID-19 pandemic represents unprecedented challenges to healthcare systems. We describe a cohort of 18 critically ill COVID-19 patients - to our knowledge the highest number, in a single intensive care unit in Australia. We discuss the complex challenges and dynamic solutions that concern an intensive care unit pandemic response. Acting as the State's COVID-19 referral hospital, we provide local insights to consider alongside national guidelines.


Assuntos
Infecções por Coronavirus/epidemiologia , Unidades de Terapia Intensiva/organização & administração , Pneumonia Viral/epidemiologia , Idoso , Betacoronavirus , Comunicação , Infecções por Coronavirus/mortalidade , Infecções por Coronavirus/terapia , Planejamento em Desastres , Família/psicologia , Feminino , Humanos , Controle de Infecções/organização & administração , Unidades de Terapia Intensiva/normas , Tempo de Internação , Masculino , Pessoa de Meia-Idade , Saúde do Trabalhador/normas , Pandemias , Pneumonia Viral/mortalidade , Pneumonia Viral/terapia , Guias de Prática Clínica como Assunto , Encaminhamento e Consulta , Austrália do Sul/epidemiologia
6.
Am J Hosp Palliat Care ; 37(11): 992-997, 2020 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-32762477

RESUMO

Telemedicine technology has become essential to healthcare delivery in the COVID-19 era, but concerns remain regarding whether the intimacy and communication that is central to high-quality palliative care will be compromised by the use of this technology. We employed a business model approach to identify the need for system innovation in palliative care, and a quality improvement approach to structure the project. Products from this project included a standard operating procedure for safe use of tablet computers for inpatient palliative care consultations and family visitations; tablet procurement with installation of video telehealth software; and training and education for clinical staff and other stakeholders. We describe a case illustrating the successful use of palliative care telehealth in the care of a COVID-19-positive patient at the end of life. Successful use of video telehealth for palliative care involved overcoming inertia to the development of telehealth infrastructure and learning clinical video telehealth skills; and engaging front-line care staff and family members who were open to a trial of telehealth for communication. Information gleaned from family about the patient as a person helped bedside staff to tailor care toward aspects meaningful to the patient and family and informed best practices to incorporate intimacy into future palliative video consultations and family visit.


Assuntos
Betacoronavirus , Infecções por Coronavirus/terapia , Cuidados Paliativos/métodos , Pneumonia Viral/terapia , Telemedicina/métodos , Assistência Terminal/métodos , Família/psicologia , Humanos , Masculino , Pandemias , Melhoria de Qualidade , Visitas a Pacientes
7.
J Perinatol ; 40(10): 1576-1581, 2020 10.
Artigo em Inglês | MEDLINE | ID: mdl-32772051

RESUMO

Although the COVID-19 pandemic has largely not clinically affected infants in neonatal intensive care units around the globe, it has affected how care is provided. Most hospitals, including their NICUs, have significantly reduced parental and family visitation privileges. From an ethical perspective, this restriction of parental visitation in settings where infectious risk is difficult to understand. No matter what the right thing to do is, NICUs are currently having to support families of their patients via different mechanisms. In this perspective, we discuss ways NICUs can support parents and families when they are home and when they are in the NICU as well as provide infants the support needed when family members are not able to visit.


Assuntos
Infecções por Coronavirus , Controle de Infecções/métodos , Unidades de Terapia Intensiva Neonatal/organização & administração , Terapia Intensiva Neonatal , Pandemias , Pneumonia Viral , Sistemas de Apoio Psicossocial , Betacoronavirus , Infecções por Coronavirus/epidemiologia , Infecções por Coronavirus/prevenção & controle , Infecções por Coronavirus/transmissão , Família/psicologia , Humanos , Recém-Nascido , Recém-Nascido Prematuro , Terapia Intensiva Neonatal/organização & administração , Terapia Intensiva Neonatal/psicologia , Inovação Organizacional , Pandemias/prevenção & controle , Pneumonia Viral/epidemiologia , Pneumonia Viral/prevenção & controle , Pneumonia Viral/transmissão
8.
PLoS One ; 15(8): e0235044, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-32822366

RESUMO

Rape is the most demoralizing type of crime violating human rights worldwide. Research has primarily focused on children and women's experiences of rape, even though victims include men and little documentation available concerning their experiences of reporting these incidents. The study aimed to investigate men's experiences when reporting rape to the police. An Interpretative Phenomenological Analysis was used to collect and analyze qualitative data from a purposive sample of eleven men who were rape victims. The findings of the study revealed three superordinate and twenty-two subordinate themes. First, motivation for reporting rape to the police included self-protection from re-victimization, being killed, and prevalent prison cultural practice, seeking justice and answers for rape, moral duty, family support, and encouraging reports of the crime. Second, perceived barriers for reporting rape included fear of stigmatization and ridicule, unknown perpetrators, internalized homophobia, men's preconceived prejudices, perceived justice system delays, fear of being killed, and protecting their reputation. Third, negative experiences when reporting rape included a long waiting period at the reception before opening a case file and the delayed responses of police investigating the rape scene. Also, there was discouragement from the police, disparaging behavior of police, victim-blaming, lack of communication with the victim about case progress and experiences of police homosexual intolerance. The findings show that most men were motivated to report rape to the police despite the perceived barriers and negative experiences they had with the police. Thus, this provides baseline evidence for strategies to be developed to encourage the reporting of rape. Each police station must provide dedicated personnel for professional and sensitive handling of all rape victims, including men. Furthermore, future studies should be conducted to evaluate rape victims' satisfaction with the services provided by the police.


Assuntos
Vítimas de Crime/estatística & dados numéricos , Riso , Polícia/psicologia , Estupro/psicologia , Adulto , Vítimas de Crime/psicologia , Família/psicologia , Medo , Humanos , Masculino , Prisões , Justiça Social , Apoio Social , África do Sul , Estereotipagem , Adulto Jovem
9.
J Intellect Disabil Res ; 64(10): 739-749, 2020 10.
Artigo em Inglês | MEDLINE | ID: mdl-32808424

RESUMO

BACKGROUND: The COVID-19 pandemic introduced challenges to families with young children with developmental delays. Beyond the widespread concerns surrounding illness, loss of employment and social isolation, caregivers are responsible for overseeing their children's educational and therapeutic programmes at home often without the much needed support of professionals. METHOD: The present study sought to examine the impact of COVID-19 in 77 ethnically, linguistically and socioeconomically diverse families with young children with intellectual and developmental disabilities (IDDs) in California and Oregon, who were participating in larger intervention studies. Parents responded to five interview questions about the impact of the pandemic, services for their child, silver linings or positive aspects, coping and their concerns about the long-term impact of the pandemic. RESULTS: Parents reported that their biggest challenge was being at home caring for their children with the loss of many essential services. Parents reported some positive aspects of the pandemic, especially being together as a family. Although there were positive aspects of the situation, many parents expressed concern about long-term impacts of the pandemic on their children's development, given the loss of services, education and social engagement opportunities. CONCLUSION: Results suggest that parents of young children with IDD report significant challenges at home during the pandemic. Professional support, especially during the reopening phases, will be critical to support family well-being and child developmental outcomes.


Assuntos
Infecções por Coronavirus , Deficiências do Desenvolvimento/enfermagem , Família , Acesso aos Serviços de Saúde , Deficiência Intelectual/enfermagem , Pandemias , Pneumonia Viral , Adulto , California/etnologia , Criança , Pré-Escolar , Família/etnologia , Família/psicologia , Feminino , Humanos , Masculino , Oregon/etnologia , Pais
10.
Ir Med J ; 113(6): 100, 2020 06 11.
Artigo em Inglês | MEDLINE | ID: mdl-32816435

RESUMO

The Covid-19 pandemic has brought unprecedented pressure to healthcare systems worldwide, resulting in significant and precipitous changes in demand, burden and method of delivery. The psychosocial impact of this crisis is likely to increase over the course of the pandemic, peak later than medical cases and endure for longer thereby significantly exceeding medical morbidity. It will have far reaching impact on the individual, their family and their care providers. Frontline healthcare workers and those with pre-existing mental health difficulties are recognised at increased risk. Now that the initial surge has been expertly curtailed, it is essential that urgent consideration is now directed towards the mental health implications of the current outbreak and ensure that we are as ready for the increased MH needs of the community as we were for the intensive medical care.


Assuntos
Infecções por Coronavirus/epidemiologia , Infecções por Coronavirus/psicologia , Saúde Mental , Pandemias , Pneumonia Viral/epidemiologia , Pneumonia Viral/psicologia , Betacoronavirus , Comorbidade , Família/psicologia , Pessoal de Saúde/psicologia , Humanos , Irlanda/epidemiologia , Transtornos Mentais/epidemiologia , Angústia Psicológica , Populações Vulneráveis/psicologia
11.
Hu Li Za Zhi ; 67(4): 50-60, 2020 Aug.
Artigo em Chinês | MEDLINE | ID: mdl-32748379

RESUMO

BACKGROUND: Truth-telling is an important step toward reducing the cognitive gap between physicians and patients as well as reducing the psychological pressures applied to physicians by family members. There is a lack of research on the truth-telling experience and needs in the intensive care unit from the perspective of patient family members. PURPOSE: This study is designed to explore the experiences and needs of families in the intensive care unit. METHODS: A descriptive phenomenology method was used in this study. In-depth interviews were conducted with five participants who had family members assessed with acute physiology and chronic health evaluation II scores ≥ 20. Data were analyzed using Giorgi's phenomenological methods and Nvivo 11. RESULTS: Four experience themes were examined, including (1) nothing is clear, requires explanation; (2) helpless to find answers, need a nurse to resolve this issue; (3) professional conduct makes us feel helpless, longing for love from the medical team; (4) decisions are very difficult, hoping to get more help. CONCLUSIONS / IMPLICATIONS FOR PRACTICE: The family members expressed that they were unable to understand the underlying causes of the progression in patient condition because the medical team only presented outcomes to the family and did not discuss related causes. Thus, it is recommended that medical teams learn to recognize the cognitive processes of patient family members and consider their emotions, including their needs and expectations, in order to provide individualized explanations based on a patient's status and progress.


Assuntos
Família/psicologia , Unidades de Terapia Intensiva , Médicos/psicologia , Relações Profissional-Família , Revelação da Verdade , Humanos , Determinação de Necessidades de Cuidados de Saúde , Pesquisa Qualitativa
12.
J Perinatol ; 40(9): 1283-1285, 2020 09.
Artigo em Inglês | MEDLINE | ID: mdl-32709980

RESUMO

Parents of NICU infants are a vulnerable population from a psychological perspective, and often experience high levels of acute stress, depression, anxiety, and post-traumatic stress. The added burden of the current SARS CoV-2 disease (COVID-19) pandemic is likely to exacerbate these issues, with potential implications for the wellbeing of infants and families in the short- and long-term. In this paper, we propose utilizing the stress contagion framework and consider how psychosocial stress can "spill over" into the parent-infant relationship domain, which can impact child development and family wellbeing longer term. As the effects of the pandemic will likely persist well beyond the acute stage, we offer advocacy points and general guidelines for healthcare professionals to consider in their quest to mitigate stress and build resilience in NICU families.


Assuntos
Infecções por Coronavirus/epidemiologia , Infecções por Coronavirus/prevenção & controle , Família/psicologia , Unidades de Terapia Intensiva Neonatal/organização & administração , Pandemias/prevenção & controle , Pneumonia Viral/epidemiologia , Pneumonia Viral/prevenção & controle , Sistemas de Apoio Psicossocial , Adulto , Relações Familiares/psicologia , Feminino , Humanos , Recém-Nascido , Controle de Infecções/organização & administração , Transmissão Vertical de Doença Infecciosa/prevenção & controle , Masculino , Determinação de Necessidades de Cuidados de Saúde , Pandemias/estatística & dados numéricos , Pais/psicologia , Medição de Risco , Estados Unidos , Populações Vulneráveis/psicologia
13.
BMC Psychiatry ; 20(1): 379, 2020 07 17.
Artigo em Inglês | MEDLINE | ID: mdl-32680478

RESUMO

BACKGROUND: To date, the psychological impact of COVID-19 epidemic among family members of health care workers (HCWs) in China has been neglected. This cross-sectional study investigates the mental health status and related factors in families of HCWs employed in designated hospitals in Ningbo, China. METHODS: Family members of HCWs in five designated hospitals in Ningbo, China, were recruited in February, 2020 for this study. Demographic variables, COVID-19-related events in the lives of the participants, knowledge of COVID-19, and the working status of family members (that is, HCWs) were collected using online self-administered questionnaires. Mental health status was assessed using the Chinese versions of the Generalized Anxiety Disorder-7 (GAD-7) and Patient Health Questionnaire-9 (PHQ-9). Multivariable logistic regression analyses were performed to identify the main factors associated with the mental health conditions. RESULTS: In total, 845 participants completed the questionnaires correctly (95.80% response rate). The prevalence of anxiety and depression symptoms were respectively 33.73% (95% CI: 30.53-36.92%) and 29.35% (95% CI: 26.27-32.43%) when a cut-off score of 5 was used for GAD-7 and PHQ-9. Risk factors for anxiety symptoms included more time (hours) spent thinking about the COVID-19, and whether or not family members (that is, HCWs) had direct contact with confirmed or suspected COVID-19 patients while high participants' self-reported safety scores for HCW's protective equipment was a protective factor. More time (hours) spent thinking about COVID-19, longer average working time per week worked by family members (that is, HCWs), and being parents and other next of kin of HCWs were risk factors for depressive symptoms. Compared to participants who were HCWs, participants who were private sector workers were more likely to develop depressive symptoms, while government or institutional employees were less likely to suffer from depressive symptoms. CONCLUSIONS: Psychological responses to COVID-19 have been dramatic among family members of HCWs during the rising phase of the outbreak. Our findings provide strong evidence to examine and attend to the mental health of this population during the COVID-19 epidemic.


Assuntos
Ansiedade/epidemiologia , Infecções por Coronavirus/epidemiologia , Depressão/epidemiologia , Família/psicologia , Pessoal de Saúde , Pneumonia Viral/epidemiologia , Adulto , Ansiedade/psicologia , Betacoronavirus , China/epidemiologia , Estudos Transversais , Depressão/psicologia , Surtos de Doenças , Feminino , Humanos , Masculino , Saúde Mental , Pessoa de Meia-Idade , Pandemias , Questionário de Saúde do Paciente , Equipamento de Proteção Individual , Admissão e Escalonamento de Pessoal , Prevalência , Fatores de Tempo
14.
Public Health ; 185: 243-245, 2020 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-32688099

RESUMO

OBJECTIVES: The objective of this study was to investigate possible differences in COVID-19-related anxiety based on previous theories in social psychology. STUDY DESIGN: Cross-sectional online questionnaire delivered via the crowdworking platform. METHODS: Four-hundred and seven (120 men and 287 women) adults (aged >18 years) from the United Kingdom answered the State-Trait Anxiety Inventory 'in light of the COVID-19 situation', followed by three health and three financial anxiety items. RESULTS: Our findings imply that women are more anxious than men, people are more anxious about others than about themselves, their anxiety about relatives is higher than about strangers, and anxiety about health is higher than about financial issues. CONCLUSIONS: We suggest that these preliminary findings should be further investigated to help policymakers improve both their treatment of pandemic-related anxiety and their messages.


Assuntos
Ansiedade/epidemiologia , Infecções por Coronavirus/psicologia , Pandemias , Pneumonia Viral/psicologia , Adulto , Infecções por Coronavirus/epidemiologia , Estudos Transversais , Família/psicologia , Feminino , Humanos , Relações Interpessoais , Masculino , Pneumonia Viral/epidemiologia , Teoria Psicológica , Distribuição por Sexo , Fatores Socioeconômicos , Inquéritos e Questionários , Reino Unido/epidemiologia
15.
PLoS One ; 15(7): e0235812, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-32697774

RESUMO

Experiencing adversities has been associated with the use of violence but this has not been explored with filicide offenders in South Africa. Individual, semi-structured interviews were conducted with 22 parents/stepparents/caregivers convicted of child homicide in South Africa, resulting in 49 in-depth interviews. Data were analyzed by means of grounded theory. Using an ecological framework, this study alludes to the widespread and cumulative nature of violence and trauma experiences within multiple domains of the participants' lives. The study highlighted the absence of support in the aftermath of experiencing trauma, possibly resulting in these parents lacking resources to mitigate the sequelae of adverse experiences. This study calls for trauma related, mental health components to be integrated into violence interventions and for these to address the impact of trauma at the individual, family, and societal levels, to prevent the transition from victim to offender.


Assuntos
Maus-Tratos Infantis , Criminosos , Homicídio , Pais , Adulto , Cuidadores/psicologia , Criança , Maus-Tratos Infantis/psicologia , Criminosos/psicologia , Família/psicologia , Feminino , Homicídio/psicologia , Humanos , Masculino , Pais/psicologia , Pesquisa Qualitativa , África do Sul , Violência/psicologia , Adulto Jovem
16.
Nihon Koshu Eisei Zasshi ; 67(6): 390-398, 2020.
Artigo em Japonês | MEDLINE | ID: mdl-32612079

RESUMO

Objectives In Japan, the proportion of older people receiving end-of-life care in geriatric health services facilities (GHSF) is increasing. However, to our knowledge, there have been no previous studies investigating the relationship between the structure of GHSFs and the quality of end-of-life care evaluated by bereaved families.Methods We secondarily analyzed data from the survey done by the Japan Association of Geriatric Health Services Facilities (JAGHSF) in January 2014. Study subjects were 3 recently bereaved family members who had experienced planned end-of-life care at different facilities of the JAGHSF.The dependent variable was the bereaved family members' satisfaction with end-of-life care, which was obtained based on the best answer out of a 5 point scale for the question "Didn't you regret your family member's death immediately after he/she died?" The independent variables included schemes of explanation of patients' conditions at GHSF, management, and education of facilities and staff by doctors. We conducted a univariate analysis, followed by a multivariable logistic regression analysis.Results For the final analysis, we included 363 bereaved family members, of which 250 (68.9%) were satisfied with the end-of-life care. In a multivariable logistic regression analysis, family members' satisfaction was significantly associated with regular medical consultation by doctors for facility users (adjusted odds ratio 2.94, 95% CI 1.52-5.70), explanation about patients' conditions at the time of admission by facility staff other than doctors (2.07, 1.01-4.25), explanation about patients' conditions at the time of deterioration by facility staff other than doctors (3.12, 1.17-8.33), and stress management by doctors for facility staff (3.63, 1.84-7.16).Conclusions Respect for the roles of the facility staff other than doctors, such as the participation of facility staff in explaining situations for facility users and family members and management of facility staff stress, may improve satisfaction with end-of-life care among bereaved family members. More attention is needed for these factors to improve the quality of end-of-life care in GHSFs.


Assuntos
Luto , Família/psicologia , Instalações de Saúde , Serviços de Saúde para Idosos , Corpo Clínico , Satisfação Pessoal , Assistência Terminal , Engajamento no Trabalho , Idoso , Idoso de 80 Anos ou mais , Feminino , Humanos , Japão , Modelos Logísticos , Masculino , Pessoa de Meia-Idade , Inquéritos e Questionários
17.
J Public Health (Oxf) ; 42(3): 656-658, 2020 Aug 18.
Artigo em Inglês | MEDLINE | ID: mdl-32648578

RESUMO

An ongoing outbreak of coronavirus disease 2019 (COVID-19) has rapidly spread in the world, whereas asymptomatic carriers may also play a critical role in the pandemic. We report a familial cluster of COVID-19 caused by one family member before his onset of illness, indicating that it seems to be potentially infectious during the incubation period, even earlier than we expected. Close contact, especially in a small enclosed space, might be the cause of familial transmission. The unsynchronized changes in the clinical symptoms and COVID-19 nucleic acid were found in this case, so consecutive nucleic acid detection of pretty suspected cases was recommended. Family members, especially of whom the confirmed cases contacted with since one incubation period before onset rather than 2 days before onset, should be regarded as close contact and centrally isolated in case of asymptomatic infection already existed in the family.


Assuntos
Infecções Assintomáticas/epidemiologia , Infecções por Coronavirus/epidemiologia , Infecções por Coronavirus/transmissão , Surtos de Doenças/estatística & dados numéricos , Transmissão de Doença Infecciosa/estatística & dados numéricos , Família/psicologia , Pandemias/estatística & dados numéricos , Pneumonia Viral/epidemiologia , Pneumonia Viral/transmissão , Betacoronavirus , China/epidemiologia , Análise por Conglomerados , Humanos
18.
Clin J Am Soc Nephrol ; 15(9): 1259-1266, 2020 09 07.
Artigo em Inglês | MEDLINE | ID: mdl-32665227

RESUMO

BACKGROUND AND OBJECTIVES: During the coronavirus disease 2019 outbreak, the treatment of families with children on long-term KRT is challenging. This study was conducted to identify the current difficulties, worries regarding the next 2 months, and mental distress experienced by families with children on long-term KRT during the coronavirus disease 2019 outbreak and to deliver possible management approaches to ensure uninterrupted treatment for children on long-term KRT. DESIGN, SETTING, PARTICIPANTS, & MEASUREMENTS: A multicenter online survey was conducted between February 10 and 15, 2020, among the families with children on long-term KRT from five major pediatric dialysis centers in mainland China. The primary caregivers of children currently on long-term KRT were eligible and included. Demographic information, severe acute respiratory syndrome coronavirus 2 infection status, current difficulties, and worries regarding the next 2 months were surveyed using a self-developed questionnaire. The Patient Health Questionnaire-9 and the General Anxiety Disorder Scale-7 were used to screen for depressive symptoms and anxiety, respectively. RESULTS: Among the children in the 220 families included in data analysis, 113 (51%) children were on dialysis, and the other 107 (49%) had kidney transplants. No families reported confirmed or suspected cases of coronavirus disease 2019. Overall, 135 (61%) and 173 (79%) caregivers reported having difficulties now and having worries regarding the next 2 months, respectively. Dialysis supply shortage (dialysis group) and hard to have blood tests (kidney transplantation group) were most commonly reported. A total of 29 (13%) caregivers had depressive symptoms, and 24 (11%) had anxiety. After the survey, we offered online and offline interventions to address their problems. At the time of the submission of this paper, no treatment interruption had been reported. CONCLUSIONS: The coronavirus disease 2019 outbreak has had physical, mental, logistical, and financial effects on families with children on long-term KRT.


Assuntos
Betacoronavirus/patogenicidade , Infecções por Coronavirus/prevenção & controle , Família/psicologia , Nefropatias/terapia , Pandemias/prevenção & controle , Pneumonia Viral/prevenção & controle , Terapia de Substituição Renal , Adaptação Psicológica , Adolescente , Adulto , Fatores Etários , Cuidadores/psicologia , Criança , China/epidemiologia , Infecções por Coronavirus/psicologia , Infecções por Coronavirus/transmissão , Infecções por Coronavirus/virologia , Efeitos Psicossociais da Doença , Relações Familiares , Feminino , Pesquisas sobre Serviços de Saúde , Conhecimentos, Atitudes e Prática em Saúde , Acesso aos Serviços de Saúde , Interações entre Hospedeiro e Microrganismos , Humanos , Nefropatias/psicologia , Masculino , Saúde Mental , Pessoa de Meia-Idade , Segurança do Paciente , Pneumonia Viral/psicologia , Pneumonia Viral/transmissão , Pneumonia Viral/virologia , Terapia de Substituição Renal/efeitos adversos , Medição de Risco , Fatores de Risco , Fatores de Tempo , Resultado do Tratamento
19.
Fam Process ; 59(3): 1007-1017, 2020 09.
Artigo em Inglês | MEDLINE | ID: mdl-32663330

RESUMO

The coronavirus disease 2019 (COVID-19) pandemic has precipitated substantial global disruption and will continue to pose major challenges. In recognition of the challenges currently faced by family scientists, we share our perspectives about conducting family research in the context of the COVID-19 pandemic. There are two primary issues we address in this article. First, we present a range of potential solutions to challenges in research, resulting from the pandemic, and discuss strategies for preserving ongoing research efforts. We discuss approaches to scaling back existing protocols, share ideas for adapting laboratory-based measures for online administration (e.g., using video chat platforms), and suggest strategies for addressing missing data and reduced sample size due to lower participation rates and funding restrictions. We also discuss the importance of measuring COVID-19 relevant factors to use as controls or explore as moderators of primary hypotheses. Second, we discuss how the COVID-19 pandemic represents a scientifically important context for understanding how families adjust and adapt to change and adversity. Increased stress precipitated by the pandemic, varying from acute stress associated with job loss to more chronic and enduring stress, will undoubtedly take a toll. We discuss ways that family scientists can contribute to pandemic-related research to promote optimal family functioning and protect the health of family members.


Assuntos
Infecções por Coronavirus/psicologia , Terapia Familiar/tendências , Família/psicologia , Pneumonia Viral/psicologia , Quarentena/psicologia , Pesquisa/tendências , Adaptação Psicológica , Betacoronavirus , Infecções por Coronavirus/prevenção & controle , Humanos , Pandemias/prevenção & controle , Pneumonia Viral/prevenção & controle
20.
Fam Process ; 59(3): 912-921, 2020 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-32663322

RESUMO

Following the format put forth by Imber-Black and Roberts, I examine daily rituals, family traditions, holidays, and life cycle rituals during the pandemic of COVID-19. Marked by symbols capable of carrying multiple meanings, symbolic actions, special time and special place, and newly invented and adapted rituals are illustrated through stories of couples, families, and communities.


Assuntos
Comportamento Ritualístico , Infecções por Coronavirus/psicologia , Família/psicologia , Pneumonia Viral/psicologia , Quarentena/psicologia , Espiritualidade , Betacoronavirus , Infecções por Coronavirus/prevenção & controle , Feminino , Humanos , Imaginação , Masculino , Pandemias/prevenção & controle , Pneumonia Viral/prevenção & controle
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