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1.
Esc. Anna Nery Rev. Enferm ; 26(spe): e20210208, 2022. ilus
Artigo em Português | LILACS, BDENF - Enfermagem | ID: biblio-1292780

RESUMO

Objetivo: compreender a ausência de rituais fúnebres na pandemia de COVID-19 no processo de viver o luto das famílias brasileiras que perderam entes queridos por COVID-19. Método: pesquisa qualitativa documental realizada em três jornais disponibilizados online. Foram analisadas 67 reportagens, divididas em duas categorias; a primeira trata dos sofrimentos psicológicos derivados do isolamento social, como ansiedade, depressão, solidão e medo; e a segunda trata das diferentes manifestações do luto e o efeito psicológico das perdas em meio à pandemia. Resultado: a ritualização da morte é indissociável do processo de elaboração das perdas. A ausência de rituais fúnebres, aliada ao distanciamento social, repercute de forma desafiadora para a sociedade e para os profissionais da saúde mental. Estratégias não presenciais de demonstração de afeto e elaboração da perda podem amenizar o isolamento imposto pela pandemia. Conclusões e implicações para a prática: o processo de viver humano é repleto de ritos de passagem e a ritualística na morte-morrer se mostra necessária para a vivência da despedida, da certeza do distanciamento ocorrido entre entes e família. Implica em modos resolutivos de registro emocional, mental e mesmo físico da expressão pública de sofrimento do enlutado e do não esquecimento do Ser à morte. Impacta na prática assistencial para o acolhimento, orientação e elaboração das perdas para a manutenção de vida saudável das pessoas enlutadas, o que propõe argumentos teórico-reflexivos no cuidado em saúde mental e na guarida de pessoas enlutadas decorrentes da pandemia


Objective: to understand the absence of funeral rituals in the process of living the grief process of Brazilian families who lost loved ones by COVID-19. Method: this is a qualitative documental research carried out in three newspapers available online. Sixty-seven reports were analyzed, divided into two categories; the first deals with psychological suffering derived from social isolation, such as anxiety, depression, loneliness and fear; and the second deals with the different manifestations of grief and the psychological effect of losses amidst the pandemic. Result: the ritualization of death is inseparable from the process of elaboration of the losses. The absence of funeral rituals combined with social dictatorship can have a challenging impact on society and mental healthcare professionals. Non-presential strategies for showing affection and elaborating the loss can ease the isolation imposed by the pandemic. Conclusions and implications for practice: the human living process is full of rites of passage and death-dying rituals prove to be necessary for the experience of farewell, of the certainty of the distance between loved ones and family. It implies resolving modes of emotional, mental and even physical recording of the public expression of the griever's suffering and not forgetting the Being's to death. It impacts care practice for reception, guidance and elaboration of losses for the maintenance of a healthy life for grievers, which proposes theoretical-reflective arguments in mental healthcare and in the shelter of grievers resulting from the pandemic


Objetivo: comprender la ausencia de rituales funerarios en el proceso de dolor de las familias brasileñas que perdieron a sus seres queridos por COVID-19. Método: una investigación documental cualitativa realizada en tres periódicos disponibles en línea. Se analizaron 67 informes, divididos en dos categorías; el primero trata sobre el sufrimiento psicológico derivado del aislamiento social, como la ansiedad, la depresión, la soledad y el miedo; y el segundo trata de las diferentes manifestaciones del dolor y el efecto psicológico de las pérdidas en medio de la pandemia. Resultado: la ritualización de la muerte es inseparable del proceso de elaboración de las pérdidas. La ausencia de rituales funerarios combinada con la dictadura social puede tener un impacto desafiante en la sociedad y los profesionales de la salud mental. Las estrategias no presenciales para mostrar afecto y explicar la pérdida pueden aliviar el aislamiento impuesto por la pandemia. Conclusiones e implicaciones para la práctica: el proceso del vivir humano está lleno de ritos de paso y los rituales de la muerte-morir resultan necesarios para la experiencia de la despedida, de la certeza de la distancia entre los seres queridos y la familia. Implica resolver modos de registro emocional, mental e incluso físico de la expresión pública del sufrimiento del doliente y del no olvido del Ser hasta la muerte. Incide en la práctica asistencial para la recepción, orientación y elaboración de las pérdidas para el mantenimiento de una vida sana de las personas en dolor, el cual propone argumentos teórico-reflexivos en la atención de la salud mental y en el refugio de personas en dolor producto de la pandemia


Assuntos
Humanos , Luto , Família/psicologia , Morte , Pandemias , Rituais Fúnebres/psicologia , COVID-19 , Pesquisa Qualitativa , Distanciamento Físico
2.
Vínculo ; 18(2): 1-12, jul.-dez. 2021. ilus
Artigo em Português | LILACS, Index Psicologia - Periódicos | ID: biblio-1341791

RESUMO

O presente artigo tem como objetivo compartilhar a experiência de um Grupo Psicoterapêutico de Mulheres, trabalho de psicoterapia grupal realizado em um Centro de Atenção Psicossocial (CAPS). Ao relatar a história do grupo de mulheres, pretendemos abordar as seguintes temáticas: os desafios da clínica na rede de atenção psicossocial e como o grupo de mulheres enfrentou os fracassos e se tornou um espaço de elaboração de luto, fortalecimento de singularidades, bem como de abertura para novas possibilidades de vida; desta forma, reafirmando o potencial dos grupos terapêuticos para sustentação da clínica nos dispositivos públicos de saúde. Percebemos que o potencial terapêutico do grupo de mulheres consiste em proporcionar um lugar de contar e recontar suas histórias. Neste espaço, elas podem compartilhar identificações e integrar-se nas diferenças. Permite-se falar de suas perdas, dores, estigmas e da relação com o fracasso. O processo psicoterapêutico favorece processos de elaboração e ressignificação, tornando possível vislumbrar e, inclusive, construir um recomeço. Pretende-se que esta reflexão vá ao encontro de outros terapeutas de grupo, em outros serviços de saúde, tecendo assim uma rede de reflexões e conhecimento sobre a clínica e a temática de grupos e instituições.


This article aims to share the experience of a Psychotherapeutic Group for Women, a group psychotherapy work carried out in a Psychosocial Care Center (CAPS). In reporting the history of the group of women, we intend to address the following themes: the challenges of the clinic in the psychosocial care network and how the group of women faced the failures and became a space for the elaboration of mourning, strengthening of singularities, as well as openness to new life possibilities; thus, reaffirming the potential of the therapeutic groups to support the clinic in public health devices. We realized that the therapeutic potential of the group of women is to provide a place to tell and retell their stories. In this space, they can share identifications and integrate themselves into differences. It allows you to talk about your losses, pains, stigmas and the relationship with failure. The psychotherapeutic process favors processes of elaboration and reframing, making it possible to see and even build a new beginning. It is intended that this reflection will meet other group therapists, in other health services, thus weaving a network of reflections and knowledge about the clinic and the theme of groups and institutions.


Este artículo tiene como objetivo compartir nuestra experiencia con el Grupo de Mujeres, que es un trabajo de psicoterapia grupal realizado en un Centro de Atención Psicosocial. Al informar su historia, pretendemos abordar los desafíos de la clínica en la Red de Atención Psicosocial y cómo tal grupo se enfrentó a los fracasos para convertirse en un espacio para la elaboración del dolor, el fortalecimiento de las singularidades y la apertura a nuevas posibilidades de vida, reafirmando el potencial de los grupos terapéuticos para apoyar la clínica en dispositivos de salud pública. Encontramos que el potencial terapéutico del Grupo de Mujeres es proporcionar un lugar para contar y volver a contar historias. En este espacio, sus participantes pueden compartir identificaciones y agregar diferencias. En él, ellas se permiten hablar sobre sus pérdidas, dolores y estigmas y sobre su relación con el fracaso. El proceso psicoterapéutico favorece la elaboración y la reformulación, lo que permite vislumbrar e incluso construir un nuevo comienzo. Pretendemos que esta reflexión resuene entre otros terapeutas grupales, en otros servicios de salud, tejiendo así una red de reflexiones y conocimientos sobre la clínica y el tema de grupos e instituciones.


Assuntos
Humanos , Feminino , Psicoterapia , Grupos de Autoajuda , Luto , Processos Psicoterapêuticos , Reabilitação Psiquiátrica , Serviços de Saúde Mental
3.
Psychiatr Hung ; 36(3): 401-416, 2021.
Artigo em Húngaro | MEDLINE | ID: mdl-34738532

RESUMO

While examining art psychology, it is often experienced that heavy traumas have a highly incentive role on work of arts. It is an exceptional precedent, when a work is born with the intention of processing a trauma, what is also documented by the author himself. Mourning, which is known to be "the most perfect" work of Németh, was written with this intention, when László Németh and his wife lost their three and a half years old daughter, Pocó, in 1930. The period around the experience of loss has never been studied with a focus on processing trauma. This study will research this topic. Examining the novel, Mourning and the relevant work- and biographical documents with the method of psychobiography it can be stated, that László Németh experiencing an acute loss, the unmet needs of his own grief while being in the creative writing process, his unprocessed previous traumas coming to the front, and extreme character portrayal of the novel were presumably obstructive, while the support of his wife and his cousin's similar experience of loss through its role in encouraging the creative process were supporting in processing the trauma. The novel Mourning offers a genuine portrayal of the emotional ups and downs and the looming isolation, as well as of the role of the community experienced during bereavement. In 1931, it is through the words of a peasant woman that László Németh conveys his message, which is still relevant today. The message of the uniqueness of bereavement helps to prevent the grief from becoming the "disease of pride".


Assuntos
Luto , Pesar , Pré-Escolar , Feminino , Humanos , Princípios Morais , Redação
4.
Appl Nurs Res ; 62: 151456, 2021 12.
Artigo em Inglês | MEDLINE | ID: mdl-34814990

RESUMO

AIMS AND OBJECTIVES: To understand the influence of family caregivers' perceptions about patients' dying and death quality on their grief intensity. BACKGROUND: Dying patients and their family caregivers face life-limiting illness together, and they work jointly to negotiate shared understandings and mutual adaptation to losses. DESIGN: Cross-sectional data were collected via an online survey. The manuscript followed the STROBE report guideline. METHODS: Family caregivers of patients who had died within 8-365 days prior were recruited. The Quality of Dying and Death Questionnaire (QDDQ) (translated into Mandarin) and the Chinese Grief Reaction Assessment Form (GRAF) were used to measure the two key variables. Multivariate linear regression was performed to explore the links between the two variables while controlling for potential confounders. RESULTS: Data were collected from 170 bereaved Chinese caregivers, and 150 cases were involved in the analysis. The four-factor structure of the QDDQ was appropriate for Chinese participants. After controlling whether end-of-life care was provided and families' satisfaction with physicians' and nurses' services, regressions revealed that more intense grief of the bereaved caregivers was associated with better symptom control for and worse transcendence of the deceased patient. Moreover, those who believed that the deceased had fulfilled his or her family duties before death experienced less intense grief, and the participant's relationship with the deceased also made a difference. CONCLUSION: Two aspects of patients' dying and death quality perceived by family caregivers, namely symptom control and transcendence, have opposite influences on caregivers' grief intensity.


Assuntos
Luto , Cuidadores , Estudos Transversais , Família , Feminino , Pesar , Humanos , Masculino , Percepção
5.
Eur J Oncol Nurs ; 55: 102058, 2021 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-34757272

RESUMO

PURPOSE: This study examines the post-traumatic growth (PTG) of bereaved families who care for cancer patients and related factors in Japan. METHODS: Participants included 1298 members of bereaved families of cancer patients (aged 20 or older). An anonymous self-administered questionnaire on PTG, coping, and social support was mailed to 496 bereaved families who provided written informed consent. RESULTS: Responses were obtained from 476 bereaved families; however, since 28 families had missing data, 448 were included for the analyses. The mean age of participants was 61.4 years: 69% women and 45% spouses. The average age of the deceased was 72.8 years old for men (59%). The PTG score of the bereaved families was higher for women than for men (p < 0.0001). Moreover, the Post-Traumatic Growth Inventory Score for those above 65 years of age was higher than of those below 65 years of age (p < 0.0001). A regression analysis confirmed that emotion-focused coping, problem-focused coping, relationship with the deceased, advanced age of bereaved families, and emotional support impacted PTG. CONCLUSION: The significance of the deceased for the bereaved, bereaved family members being older in age, emotion-focused coping, problem-focused coping, and emotional support suggest that these aspects are associated with psychological growth in terms of accepting the death of a loved one and moving forward. It is necessary to evaluate the relationship between the bereaved family and the deceased, the age and gender of the bereaved, coping behaviors, and support status and establish a higher quality bereaved family care system.


Assuntos
Luto , Neoplasias , Crescimento Psicológico Pós-Traumático , Idoso , Estudos Transversais , Família , Feminino , Humanos , Japão , Masculino , Pessoa de Meia-Idade , Inquéritos e Questionários
6.
Trials ; 22(1): 751, 2021 Oct 28.
Artigo em Inglês | MEDLINE | ID: mdl-34711262

RESUMO

BACKGROUND: Family caregivers of dying cancer patients are affected by grief experiences and bereavement complications. Several approaches such as psycho-emotional care and an increase in spirituality have been suggested to diminish these complications. However, the knowledge about the effects of family-based dignity intervention and expressive writing on anticipatory grief in family caregivers of dying cancer patients is limited. This is a study protocol describing a hospital-based mixed-methods study on the effects of family-based dignity intervention and expressive writing on anticipatory grief in family caregivers of dying cancer patients. METHODS: This mixed-methods study will be done in an embedded explanatory design with two quantitative and qualitative phases. In the first phase (quantitative), a randomized clinical trial will be done, in which 200 family caregivers of dying cancer patients will be randomly assigned to one of the four groups: family-based single dignity intervention (group 1), expressive writing intervention (group 2), combined family-based single dignity intervention and expressive writing (group 3), and control (group 4). At baseline, 1 week and 2 weeks after the interventions, anticipatory grief will be assessed by a 13-item anticipatory grief scale. After the quantitative phase, the qualitative phase will be conducted through the conventional content analysis approach of Granheim and Lundman, in which an individual semi-structured interview will be taken from participants in the first phase to collect data on their experiences on interventions. Finally, data from the quantitative and qualitative phases will be analyzed and discussed. DISCUSSION: Family caregivers of dying cancer patients usually experience depression, anxiety, and psychological distress due to isolation and inadequate social support. Psychological interventions such as dignity and expressive writing interventions may help caregivers to obtain a better understanding of themselves and to increase their abilities to cope with caregiving difficulties. Therefore, there is a need for a comprehensive study confirming the effects of mentioned interventions on family caregivers of dying cancer patients. TRIAL REGISTRATION: Iranian Registry of Clinical Trials ( www.irct.ir ) identifier: IRCT20210111050010N1. Date of trial registration: Feb 6, 2021. This is the first version of this protocol.


Assuntos
Luto , Neoplasias , Cuidadores , Pesar , Humanos , Irã (Geográfico) , Neoplasias/terapia , Qualidade de Vida , Ensaios Clínicos Controlados Aleatórios como Assunto , Respeito , Redação
7.
BMC Palliat Care ; 20(1): 159, 2021 Oct 15.
Artigo em Inglês | MEDLINE | ID: mdl-34649560

RESUMO

BACKGROUND: Childhood bereavement is common, and is associated with elevated symptoms of grief with distress and impairment. However, few developmentally appropriate interventions to support grieving children are available to date. In Toulouse, France we developed an innovative four-session group intervention to support grieving families and evaluated its feasibility and acceptability. METHODS: The workshop consists of four sessions over 4 months, open to children bereaved of a sibling or parent, and co-facilitated by two mental health professionals. After an intake assessment, children were placed into closed groups according to age and relation to the deceased. The session content was balanced between creative activities and grief-related discussions. Overall satisfaction was evaluated in March-April of 2020 by an 8-question online survey of children and parents having participated between 2011 and 2019. Freeform commentaries were analysed using the thematic synthesis process. RESULTS: Of the 230 emails sent in March 2020, 46 children and 81 parents agreed to participate (55% response rate). The families reported an overall high level of satisfaction regarding the intervention that was rated as good to excellent. A majority of respondents considered their participation in the workshop helpful and in accordance with their expectations. Most would recommend the workshop to a friend, and would participate again in the group if needed. The group intervention helped reduce social isolation, facilitated grief expression, and supported the creation of a sense of community among bereaved families. CONCLUSIONS: Encouraging community and mutual support among grieving families is fundamental in bereavement care. Our four-session workshop held over 4 months and led by mental health professionals aimed to help reduce social isolation and foster coping skills through artistic creation and group discussion. Our results highlight the potential need for family bereavement support over a longer period and a provision of a variety of services. Our intervention model is feasible for families, and further studies examining its efficacy are warranted.


Assuntos
Luto , Irmãos , Adaptação Psicológica , Adolescente , Criança , Pesar , Humanos , Pais
8.
Artigo em Inglês | MEDLINE | ID: mdl-34699700

RESUMO

Grief is a process provoked as a response to different losses, such as death, loss of job, relationship breakdown, some unexpected life events and changes, etc. The experiences of loss and bereavement are very individual. Even though loss is expected, the person feels traumatized, especially if death is provoked by violence, natural disasters, or war. This pandemic, like other disasters (wars, tsunami, earthquakes, floods, etc.) has provoked intensive reactions of grief, reactions that could persist for years. The core symptoms of grief are described in the ICD-11 and DSM-5 manuals. The term "complicated grief" in the medical sense refers to a superimposed process that alters grief and modifies its course for the worse. Prolonged grief disorder (PGD) is characterized by normal grief symptoms, but these are symptoms that remain too intense for too long of a period. This article is a review of the manifestations and duration of grief in different occasions, and it is based on over 50 published papers, and discoveries in the Medline and Psych-Net databases. Commonly described reactions to grief are: shock, disbelief or denial, a high level of anxiety, distress, anger, sadness, insomnia, and a loss of appetite. As predictors for a high/slow decreasing trajectory of grief process are: female gender, reported symptoms of depression before the traumatic event, and higher scores on avoidance. However, grief is transient, even as we are is in the midst of its clutches. People should expect to fluctuate between moments of sadness and mourning, and moments of acceptance, or even happiness for being alive. Researchers suppose that when a crisis passes; most people will be able to bounce back and move on with their lives.


Assuntos
Luto , Transtornos de Estresse Pós-Traumáticos , Ansiedade , Manual Diagnóstico e Estatístico de Transtornos Mentais , Feminino , Pesar , Humanos
9.
BMJ Open ; 11(10): e047275, 2021 10 29.
Artigo em Inglês | MEDLINE | ID: mdl-34716156

RESUMO

OBJECTIVE: Family caregivers play an essential role in end-of-life care but suffer considerable impact on their own health. A better understanding of main factors related to carers' health is important to inform interventions. The purpose of the study was to test for the first time the potential impact of a comprehensive set of observable variables on carer health during end-of-life caregiving within a population-based carer sample. DESIGN: National retrospective, cross-sectional, 4-month post-bereavement postal census survey of family carers of people who died from cancer. SETTING AND PARTICIPANTS: Relatives who registered a death from cancer during a 2-week period in England were identified from death certificates by the Office of National Statistics; response rate was 1504/5271 (28.5%). OUTCOME MEASURES: Carers' mental health was measured through General Health Questionnaire (GHQ)-12; general health was measured through EuroQoL EQ-Visual Analogue Scale (EQ-5D VAS). METHODS: Survey questions to measure potential variables associated with carer health were based on past research and covered patients' symptoms and functioning; caregiving activities and hours; informal and formal help received; work hours, other caregiving, volunteering; changes to work, income and expenditure; sleep and relaxation; and demographic variables. Bivariate analyses and ordinary least square regression were performed to investigate these variables' relationship with outcomes. RESULTS: Patients' psychological symptoms and functioning, caregiving hours, female gender and self-sought formal help related to worse mental health. General practitioner and social care input and relaxation related to better mental health. Patients' psychological symptoms, caregiving hours and female gender were associated with worse general health, and older age, employment and relaxation were associated with better general health. CONCLUSIONS: Improvements in carers' health overall may be made by focusing on potential impacts of patients' psychological symptoms on carers, facilitating respite and relaxation, and paying particular attention to factors affecting female carers.


Assuntos
Luto , Neoplasias , Idoso , Cuidadores , Estudos Transversais , Morte , Feminino , Humanos , Estudos Retrospectivos , Inquéritos e Questionários
11.
Psychiatr Danub ; 33(Suppl 9): 102-107, 2021 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-34559787

RESUMO

Deaths caused by the virus Covid-19 expose survivors to a high risk of developing a mourning pathology, a state of suffering that presents traumatic aspects similar to Post Traumatic Stress Disorder (PTSD). The characteristics with which the death process took place, during the period following the Coronavirus infection, are configured as important risk factors due to the inability to give the last farewell to the deceased during the period of the lockdown, to see and accompany their loved ones in the last moments of their life. The absence of the deceased body to cry for, the lack of a funeral and any other type of social and personal ritual, are to be considered as obstacles and aggravation factors with respect to the usual elaborative dynamics of mourning. The functional role of some brain areas such as the amygdala in mediating both the responses to stress and the learning of emotions implicitly identifies its importance in the pathophysiology of major trauma such as in pathological bereavement and in PTSD. Behavioral and environmental psychology studies have highlighted the therapeutic value of open contexts, in particular green areas, such as in forest bathing, in the processing of traumas, in which the narration can take place in a way that is independent from traditional therapy, with encouraging results, as demonstrated from the clinical case of Sofia.


Assuntos
Luto , COVID-19 , Transtornos de Estresse Pós-Traumáticos , Controle de Doenças Transmissíveis , Pesar , Humanos , SARS-CoV-2 , Transtornos de Estresse Pós-Traumáticos/terapia
12.
Z Psychosom Med Psychother ; 67(3): 329-350, 2021 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-34524058

RESUMO

Objective: To review and synthesize existing psychoanalytic literature on the psychological impact of stillbirth on mothers and fathers. Method: This qualitative systematic review followed, as far as possible, the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. The Psychoanalytic Electronic Publishing Archive, the Single Case Archive, and PsycINFO (1999-2019) were searched to identify relevant articles published between 1999-2019 that report clinical material or theoretical considerations concerning the psychological effects of stillbirth on parents, as emerging during classical analytic or psychoanalytic therapy session/journey. A thematic synthesis was performed. Results: 46 articles were identified, providing data on the parents' experiences of grief and gender differences, the detrimental effects on the parental couple's relationship, the mother's identification with the dead baby, the importance for mothers to meet and care the stillborn baby, the mothers' drive for another pregnancy and the fear of further loss, the mothers' ambivalence toward subsequent pregnancy and child, the potential negative effects of unresolved bereavement on subsequent baby, and the replacement of a stillborn child. Conclusion: Our findings reveal there is some psychoanalytic literature providing insight into the psychological dynamics of parents after a stillbirth, with observations that could be used to improve psychological health care practices. One of the main therapeutic tasks was to facilitate parents to create a psychic space where they can bring to life, psychically, their lost and never- really-known stillborn baby, and to let him or her to be part of the on-going family narrative.


Assuntos
Luto , Pais/psicologia , Natimorto , Pai , Feminino , Pesar , Humanos , Lactente , Masculino , Gravidez
13.
BMC Palliat Care ; 20(1): 136, 2021 Sep 04.
Artigo em Inglês | MEDLINE | ID: mdl-34481491

RESUMO

BACKGROUND: Losing a child tragically impacts the well-being and functioning of parents. With these effects extending beyond emotional, physical morbidity and compromising self-perceptions, appropriate, longitudinal, timely and personalised support is key to effective care of bereaved parents. However, in the absence of a comprehensive understanding of parental bereavement, effective support of bereaved parents remains suboptimal. To address this gap, we scrutinise prevailing data on the effects of a child's death, aged 0-12 years, through the lens of the Ring Theory of Personhood (RToP). METHODS: To study prevailing accounts of bereaved parents following the death of a child, we adopt Krishna's Systematic Evidence Based Approach (SEBA) to structure our Systematic Scoping Review (SSR in SEBA). RESULTS: Three thousand seventy-four abstracts were reviewed, 160 full text articles were evaluated, and 111 articles were included and analysed using thematic and content analysis. Four themes/categories were identified relating to the four rings of the RToP. Findings reveal that static concepts of protective and risk factors for grief are misplaced and that the support of healthcare professionals is key to assisting bereaved parents. CONCLUSION: In the absence of consistent support of bereaved parents, this study highlights the need for effective training of healthcare professionals, beginning with an appreciation that every aspect of an individual parent's personhood is impacted by the loss of their child. Acknowledging grief as a complex, evolving and personalised process subjected to parental characteristics, settings, context and available support, this SSR in SEBA calls attention to effective nurturing of the relationship between parents and healthcare professionals, and suggests use of the RToP to assess and direct personalised, timely, specific support of parents in evolving conditions. We believe the findings of this review also call for further studies to support healthcare professionals as they journey with bereaved parents.


Assuntos
Luto , Pessoalidade , Criança , Pesar , Pessoal de Saúde , Humanos , Recém-Nascido , Pais
14.
J Pediatr Oncol Nurs ; 38(6): 364-374, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-34494927

RESUMO

Background: Childhood cancer is the leading cause of illness-related death, leaving thousands of parents to experience bereavement. This article presents select findings about the nature of the continued parenting relationship, which is an essential theme of the parental bereavement experience. Method: Heideggerian phenomenology provided the philosophical underpinnings of this study, which aimed to describe the lived experience of bereaved parents who experienced the death of a child due to cancer. Van Manen's (1997) method guided data collection and analysis. Six parents participated in interviews to share what it has been like for them since their child's death. The researcher wrote analytic memos, documented detailed field notes, and used a member checking process to ensure trustworthiness of findings. Results: A structure of the lived experience of parental bereavement emerged, which included the essential theme of the continued parenting relationship. The parenting relationship continues throughout a parent's lifetime in spite of the child's physical absence, albeit in a different manner. This different nature of parenting is known as parenting beyond the veil. Bereaved parents continue to parent beyond the veil by engaging in meaningful activities, seeking activities that strengthen a deep connection with the child, and being open to comforting signs that enhance their continued relationship. Discussion: Parents believe sharing their experience can help nurses and other professionals understand the importance of their continued parenting relationship and their need to parent beyond the veil so that they can provide high quality care to bereaved parents in the future.


Assuntos
Luto , Neoplasias , Criança , Pesar , Humanos , Poder Familiar , Pais
15.
J Occup Health Psychol ; 26(5): 405-420, 2021 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-34472904

RESUMO

Virtually every employee will experience bereavement and grief at some point in their careers, but organizations are often ill-prepared to support grieving employees. Little empirical work has been conducted on the experience of grief in the workplace, and this study answers calls for research on the subject. We interviewed bereaved employees (N = 14) who continued to work full-time. Data was analyzed using thematic analysis conducted by three independent coders. The results suggested four key themes that characterized effective bereavement support in the workplace and that together comprise the C.A.R.E. model of bereavement support-vis: (1) communication, (2) accommodation, (3) recognition of the loss, and (4) emotional support. The results provide insight into critical ways that employers, leaders, and coworkers can support grieving employees. (PsycInfo Database Record (c) 2021 APA, all rights reserved).


Assuntos
Luto , Comunicação , Emprego , Pesar , Humanos , Local de Trabalho
16.
J Affect Disord ; 295: 673-680, 2021 12 01.
Artigo em Inglês | MEDLINE | ID: mdl-34509783

RESUMO

BACKGROUND: The death of a child is a highly traumatic event and often leads to mental health problems, including posttraumatic stress disorder (PTSD). Previous studies have focused on overall PTSD after the loss of an only child; however, little attention has been given to PTSD at the symptom level. This study aims to identify the network structure of PTSD symptoms in bereaved parents who have lost their only child, known as Shidu parents in Chinese society. METHODS: A cross-sectional study enrolled 385 bereaved individuals who had lost an only child across 10 cities in China from November 2016 to July 2017. PTSD symptoms were measured by the PTSD Checklist for DSM-5 (PCL-5). Network analysis was implemented by using the R packages qgraph and bootnet. RESULTS: The PTSD network revealed that diminished interest, exaggerated startle, irritability/anger, and nightmares were the most central symptoms. The strongest connections emerged between the symptoms of recurrent thoughts and nightmares, irritability/anger and reckless/self-destructive behavior, and hypervigilance and exaggerated startle. LIMITATIONS: We utilized cross-sectional data, and it is therefore not possible to infer the evolution of the symptom network over time. In addition, participants were limited to parents who had lost an only child, and the findings of this study must be interpreted with caution. CONCLUSIONS: The current study provides further clarity regarding how PTSD symptoms relate to each other in bereaved parents who have lost an only child. Symptoms with high centrality and connectedness may be viable targets for intervention in bereaved parents who have lost an only child.


Assuntos
Luto , Transtornos de Estresse Pós-Traumáticos , Criança , China , Estudos Transversais , Humanos , Filho Único , Pais , Transtornos de Estresse Pós-Traumáticos/etiologia
17.
Prev Med ; 152(Pt 1): 106583, 2021 11.
Artigo em Inglês | MEDLINE | ID: mdl-34538373

RESUMO

Suicide bereavement is frequent in the general population and it can have deleterious consequences on the mental health and social functioning of the bereaved individuals. However, those bereaved can face substantial barriers to receive support, and online resources may improve the accessibility of support. This systematic review aimed at examining the use and benefits of online resources dedicated to people bereaved by suicide and appraising the quality of the research in this field. Systematic review according to PRISMA guidelines, involving searches in Pubmed, Scopus and Web of Science, conducted in August 2020. The integrative systematic review involved extracting and merging qualitative and quantitative data. Quality assessment was conducted with the Mixed Methods Appraisal Tool (MMAT). The review included 12 studies, mostly of moderate quality. Online resources are predominantly used by middle-aged women, parents who lost their child by suicide, and recently bereaved individuals. Online resources offer a way for help-seeking around the clock for less educated, more disadvantaged and isolated people. People bereaved by suicide use online resources to seek and share support, share and find information, memorialize their loved one and for meaning-making. Negative effects of online resources are rare. The evidence on the use and benefits of online resources for people bereaved by suicide remains scarce but show encouraging results regarding their positive impact on the mental and psychosocial health of the users.


Assuntos
Luto , Suicídio , Criança , Família , Feminino , Pesar , Humanos , Saúde Mental , Pessoa de Meia-Idade
18.
Ageing Res Rev ; 71: 101461, 2021 11.
Artigo em Inglês | MEDLINE | ID: mdl-34534681

RESUMO

While widowhood is known to be associated with poorer physical and mental health outcomes, studies examining the association of widowhood with cognition have yielded mixed results. This review aimed to elucidate the link between widowhood and cognitive decline. A systematic search of Medline, Embase, PsycInfo, CINAHL and Scopus (until December 2020) was conducted to identify studies on the association between widowhood (vs. being married) and cognition in cognitively healthy adults aged 50 +. A cross-sectional meta-analysis (of 10 studies; n = 24,668) found a significant association of widowhood with cognition (g = - 0.36, 95% CI [- 0.47, - 0.25], p = < 0.001). Meta-regressions suggested that study design, cognitive domain measured, sample age, difference in mean age between widowed and married groups, and study continent did not account for observed heterogeneity. A longitudinal meta-analysis (of 3 studies; n = 10,378) found that the "continually widowed" group (from baseline to follow-up) showed significantly steeper declines in cognition compared to the "continually married" group (g = - 0.15, 95%CI [- 0.19, - 0.10], p = < 0.001). Findings indicate that widowhood may be a risk factor for cognitive decline. As there are no effective treatments for cognitive impairment, studying mechanisms by which widowhood might be associated with poorer cognition could inform prevention programs for those who have experienced spousal bereavement.


Assuntos
Luto , Disfunção Cognitiva , Viuvez , Idoso , Disfunção Cognitiva/epidemiologia , Estudos Transversais , Feminino , Humanos , Estudos Longitudinais , Pessoa de Meia-Idade
19.
Qual Health Res ; 31(10): 1812-1822, 2021 08.
Artigo em Inglês | MEDLINE | ID: mdl-34525864

RESUMO

North America's overdose crisis is an urgent public health issue that has resulted in thousands of deaths. As the crisis began to take hold across Canada in 2016, bereaved parents, mainly mothers, emerged as vocal advocates for drug policy reform and harm reduction, using their stories to challenge the stigma of drug-related death. In 2017, we launched a qualitative research partnership with leading family organizations in Canada, conducting interviews with 43 mothers whose children had died from substance use, to understand their experiences of drug policy advocacy. Our findings showed that participants' motivations for engaging in advocacy were rooted in their experiences of grief, and that advocacy led to feelings of empowerment and connection to others. Our research suggests that advocacy can be cathartic and associated with healing from grief, but that "going public" in sharing a family story of substance use death can also have a considerable personal cost.


Assuntos
Luto , Preparações Farmacêuticas , Criança , Feminino , Pesar , Humanos , Mães , Motivação , Políticas
20.
Nihon Ronen Igakkai Zasshi ; 58(3): Mourning3, 2021.
Artigo em Japonês | MEDLINE | ID: mdl-34483185

Assuntos
Luto , Pesar , Humanos
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