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1.
Am J Law Med ; 45(2-3): 202-223, 2019 May.
Artigo em Inglês | MEDLINE | ID: mdl-31722629

RESUMO

In the 21st century the opportunity for the public to comment to an administrative agency typically means an invitation to go to a website, type words into a box, and hit send. Many advocacy groups provide templates for people to submit a statement in support or opposition to specific proposals. However, standardized comments do not capture the voice of Medicaid. They do not share people's personal experiences and insights. This article describes how consumer advocates in Kentucky devised a strategy, their Secret Sauce, to help consumers participate in the public comment process that is now required for Section 1115 Medicaid demonstration waiver applications. It shows how advocates can help real people's voices be heard in the public comment process, not through templates but through a process that assists people to tell their own stories in their own words. This is Medicaid's voice, the stories of real people who rely on Medicaid. Medicaid's voice can help policy makers understand the real-life impact of policy choices they make. It can also provide relevant evidence for courts reviewing the Secretary's grant of a Section 1115 waiver. Medicaid's voice can also help build political momentum, bringing those who rely on Medicaid to the polls and into the political conversation about the future of Medicaid.


Assuntos
Participação da Comunidade , Defesa do Consumidor , Medicaid/legislação & jurisprudência , Narrativas Pessoais como Assunto , Humanos , Cobertura do Seguro/legislação & jurisprudência , Kentucky , Patient Protection and Affordable Care Act , Estados Unidos
2.
Scand J Psychol ; 60(6): 596-608, 2019 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-31512259

RESUMO

What gives individuals' lives meaning is one of the bigger questions confronted by community members? Making sense of our lives and determining what it is that provides us with direction, strength, or commitment is no simple task and even more so in western consumerist societies where so many experiences appear accessible. Finding ways to elicit thoughtful responses from research participants, has led to varied approaches to this increasingly rich research area. An encouraging method is to use digital photography to extract information on what it is that captures participants' 'mind's eye' when reflecting on meaning in their lives. In this article, a pilot study using a combination of digital photography and descriptive narratives was established to explore the thoughts of 174 year seven students in a private West Australian school on what provided their lives with meaning both in school and outside of school. The photos and narratives were explored for themes and while many categories were identified, it was apparent that relationships were the strongest source of meaning in their lives.


Assuntos
Amigos , Felicidade , Satisfação Pessoal , Pesquisa Qualitativa , Estudantes , Adolescente , Criança , Feminino , Humanos , Masculino , Narrativas Pessoais como Assunto , Fotografação , Projetos Piloto , Instituições Acadêmicas , Austrália Ocidental
3.
Rev. Asoc. Esp. Neuropsiquiatr ; 39(135): 91-108, ene.-jun. 2019.
Artigo em Espanhol | IBECS | ID: ibc-186383

RESUMO

A partir de una etnografía realizada en Galicia entre 2013 y 2014, el presente texto aborda el impacto que tiene la praxis biomédica en entornos terapéuticos, particularmente en la elaboración de significados personales sobre el sufrimiento psíquico. A partir de diferentes relatos biográficos de personas diagnosticadas de esquizofrenia, se destacan algunos elementos discursivos y prácticas atencionales que interfieren en los marcos de referencia desde los que las personas afectadas identifican posibles causas de su malestar. Desde una perspectiva socioeducativa, dialógica y crítica, se señala cómo, más allá de la existencia de determinadas estructuras de poder, por medio de la puesta en valor de los saberes en primera persona, resulta posible situar alternativas, tácticas y objetivos a desarrollar en la gestión social del malestar


Based on an ethnographic study conducted in Galicia (Spain) during 2013-2014, this paper analyses the impact of biomedical praxis in therapeutic environments, particularly on how people diagnosed with mental disorders attribute personal meanings to their own psychic suffering. Drawing from different personal biographical accounts of people diagnosed with schizophrenia, we highlight certain biomedical discourses and practices actually interfering the way in which they identify the causes of their own suffering. As an attempt to step beyond the hegemonic frameworks and practices in dealing with mental suffering, we propose some other theoretical approaches (e.g. socio-educational, dialogical, and critical ones), emphasizing personal grounded knowledge among other alternative options


Assuntos
Humanos , Narrativas Pessoais como Assunto , Esquizofrenia/diagnóstico , Linguagem do Esquizofrênico , Psicologia do Esquizofrênico , Opressão Social , Marginalização Social/psicologia , Participação do Paciente/métodos , Transtornos Psicóticos/psicologia
4.
Index enferm ; 28(1/2): 37-41, ene.-jun. 2019.
Artigo em Espanhol | IBECS | ID: ibc-184981

RESUMO

Objetivo: analizar las narrativas que sobre morbilidad materna extrema han desarrollado mujeres sobrevivientes a esta experiencia en san luis potosí, méxico. Metodología: estudio biográfico-narrativo en el que mediante muestreo intencional inicial y teórico posteriormente, fueron seleccionadas 20 mujeres para recuperar sus relatos sobre la experiencia. Las narrativas compartidas fueron sometidas a análisis paradigmático de contenido. Resultados principales: con marco en la antropología del riesgo, se identificó que las narrativas que prevalecen sobre morbilidad materna extrema son: a) como sinónimo de muerte, b) como evento fortuito y efímero, y c) como una situación ilegítima o inventada. Conclusión: las narrativas que las mujeres han construido sobre su experiencia de morbilidad materna extrema son diversas, sostenidas en emociones que van desde el miedo, hasta la aceptación e incredulidad; sin embargo, ninguna de estas narrativas aporta al desarrollo de una agencia real para prevenir un riesgo obstétrico futuro


Objective: to analyze the narratives about extreme maternal morbidity developed by women survivors of this experience in san luis potosí, mexico. Methods: biographicalnarrative study in which, through initial intentional sampling and theoretical sampling, 20 women were selected to recover their report son her experiences. The shared narratives were transcribed and later subjected to a paradigmatic analysis of content. Results: with a framework in the anthropology of risk it was identified that the narratives that prevail over extreme maternal morbidity are: a) as a synonym of death, b) as a fortuitous and ephemeral event, and c) as an illegitimate or invented situation. Conclusions: the narratives that women have built on their experience of extreme maternal morbidity are diverse, sustained in emotions ranging from fear to acceptance and disbelief; however, none of these narratives contributes to the development of a real agency to prevent a future obstetric risk


Assuntos
Humanos , Feminino , Adolescente , Adulto Jovem , Adulto , Narrativas Pessoais como Assunto , Mortalidade Materna , Sobreviventes , Morbidade , Gravidez de Alto Risco , Fatores de Risco , México , Pesquisa Qualitativa , Saúde Materna , Indicadores de Morbimortalidade , Complicações na Gravidez , Complicações do Trabalho de Parto
5.
Australas Psychiatry ; 27(5): 469-471, 2019 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-30945930

RESUMO

OBJECTIVE: Janet Frame (1924-2004) was one of New Zealand's most celebrated authors. Much of her work stems from her experiences as a psychiatric patient. She was hospitalised for about eight years with a diagnosis of schizophrenia. Treatments included insulin coma therapy and unmodified electroconvulsive therapy. Her doctors then planned for her to have a leucotomy, which was cancelled upon discovery that one of her works had won a prestigious literary award. She subsequently moved to England and was assessed at the Maudsley Hospital by Sir Aubrey Lewis. She was found to never have suffered from schizophrenia; her condition was instead attributed to the effects of overtreatment and prolonged hospitalisation. She reflected profoundly on these experiences in her writing, and those who are interested in psychiatry are truly fortunate to have access to her autobiographies, fiction and poetry. CONCLUSIONS: Janet Frame has written both autobiographical and fictional accounts of her many years of psychiatric treatment, describing individuals, interpersonal relationships, and everyday life in these institutions. Her own life story demonstrates extraordinary recovery and achievement.


Assuntos
Erros de Diagnóstico , Literatura Moderna , Medicina na Literatura , Esquizofrenia , Erros de Diagnóstico/história , Feminino , História do Século XX , História do Século XXI , Humanos , Literatura Moderna/história , Medicina na Literatura/história , Nova Zelândia , Narrativas Pessoais como Assunto
7.
Milbank Q ; 97(1): 176-227, 2019 03.
Artigo em Inglês | MEDLINE | ID: mdl-30883954

RESUMO

Policy Points Narratives about patients' experiences with outpatient care are essential for quality improvement because they convey ample actionable information that both elaborates on existing domains within patient experience surveys and describes multiple additional domains that are important to patients. The content of narrative feedback from patients can potentially be translated to improved quality in multiple ways: clinicians can learn from their own patients, groups of clinicians can learn from the experience of their peers' patients, and health system administrators can identify and respond to patterns in patients' accounts that reflect systemic challenges to quality. Consistent investment by payers and providers is required to ensure that patient narratives are rigorously collected, analyzed fully, and effectively used for quality improvement. CONTEXT: For the past 25 years, health care providers and health system administrators have sought to improve care by surveying patients about their experiences. More recently, policymakers have acted to promote this learning by deploying financial incentives tied to survey scores. This article explores the potential of systematically elicited narratives about experiences with outpatient care to enrich quality improvement. METHODS: Narratives were collected from 348 patients recruited from a nationally representative Internet panel. Drawing from the literature on health services innovation, we developed a two-part coding schema that categorized narrative content in terms of (a) the aspects of care being described, and (b) the actionability of this information for clinicians, quality improvement staff, and health system administrators. Narratives were coded using this schema, with high levels of reliability among the coders. FINDINGS: The scope of outpatient narratives divides evenly among aspects of care currently measured by patient experience surveys (35% of content), aspects related to measured domains but not captured by existing survey questions (31%), and aspects of care that are omitted from surveys entirely (34%). Overall, the narrative data focused heavily on relational aspects of care (43%), elaborating on this aspect of experience well beyond what is captured with communication-related questions on existing surveys. Three-quarters of elicited narratives had some actionable content, and almost a third contained three or more separate actionable elements. CONCLUSIONS: In a health policy environment that incentivizes attention to patient experience, rigorously elicited narratives hold substantial promise for improving quality in general and patients' experiences with care in particular. They do so in two ways: by making concrete what went wrong or right in domains covered by existing surveys, and by expanding our view of what aspects of care matter to patients as articulated in their own words and thus how care can be made more patient-centered. Most narratives convey experiences that are potentially actionable by those committed to improving health care quality in outpatient settings.


Assuntos
Assistência Ambulatorial , Medidas de Resultados Relatados pelo Paciente , Melhoria de Qualidade , Humanos , Satisfação do Paciente , Narrativas Pessoais como Assunto
8.
BMC Med Inform Decis Mak ; 19(1): 43, 2019 03 14.
Artigo em Inglês | MEDLINE | ID: mdl-30871518

RESUMO

BACKGROUND: Social isolation is an important social determinant that impacts health outcomes and mortality among patients. The National Academy of Medicine recently recommended that social isolation be documented in electronic health records (EHR). However, social isolation usually is not recorded or obtained as coded data but rather collected from patient self-report or documented in clinical narratives. This study explores the feasibility and effectiveness of natural language processing (NLP) strategy for identifying patients who are socially isolated from clinical narratives. METHOD: We used data from the Medical University of South Carolina (MUSC) Research Data Warehouse. Patients 18 years-of-age or older who were diagnosed with prostate cancer between January 1, 2014 and May 31, 2017 were eligible for this study. NLP pipelines identifying social isolation were developed via extraction of notes on progress, history and physical, consult, emergency department provider, telephone encounter, discharge summary, plan of care, and radiation oncology. Of 4195 eligible prostate cancer patients, we randomly sampled 3138 patients (75%) as a training dataset. The remaining 1057 patients (25%) were used as a test dataset to evaluate NLP algorithm performance. Standard performance measures for the NLP algorithm, including precision, recall, and F-measure, were assessed by expert manual review using the test dataset. RESULTS: A total of 55,516 clinical notes from 3138 patients were included to develop the lexicon and NLP pipelines for social isolation. Of those, 35 unique patients (1.2%) had social isolation mention(s) in 217 notes. Among 24 terms relevant to social isolation, the most prevalent were "lack of social support," "lonely," "social isolation," "no friends," and "loneliness". Among 1057 patients in the test dataset, 17 patients (1.6%) were identified as having social isolation mention(s) in 40 clinical notes. Manual review identified four false positive mentions of social isolation and one false negatives in 154 notes from randomly selected 52 controls. The NLP pipeline demonstrated 90% precision, 97% recall, and 93% F-measure. The major reasons for a false positive included the ambiguities of the experiencer of social isolation, negation, and alternate meaning of words. CONCLUSIONS: Our NLP algorithms demonstrate a highly accurate approach to identify social isolation.


Assuntos
Algoritmos , Registros Eletrônicos de Saúde , Aplicações da Informática Médica , Narração , Processamento de Linguagem Natural , Neoplasias da Próstata/psicologia , Isolamento Social , Idoso , Humanos , Masculino , Pessoa de Meia-Idade , Narrativas Pessoais como Assunto
9.
Rev Bras Enferm ; 72(1): 162-169, 2019.
Artigo em Inglês | MEDLINE | ID: mdl-30916282

RESUMO

OBJECTIVE: To explore the meaning of being a family caregiver for a relative with advanced heart failure (HF) in their own home, and to gain an understanding of how dignity is upheld in family caregiving contexts. METHOD: We used a phenomenological-hermeneutical method inspired by the Ricoeurian philosophy. Portuguese caregivers for relatives with advanced HF participated in two reflective interviews over a four-month period. RESULTS: The ten family caregivers enrolled in this study included two daughters and eight spouses with a mean age of 70 years. We identified two main themes: (1) Struggle between inner force and sense of duty; (2) Struggle between feelings of burden and security. FINAL CONSIDERATIONS: People with HF have debilitating symptoms associated with psychological stress, which can burden both them and their family caregivers. Findings support that family caregivers require participation in the planning and execution of their relative's health care.


Assuntos
Cuidadores/psicologia , Insuficiência Cardíaca/psicologia , Narrativas Pessoais como Assunto , Adaptação Psicológica , Idoso , Idoso de 80 Anos ou mais , Efeitos Psicossociais da Doença , Feminino , Insuficiência Cardíaca/complicações , Humanos , Masculino , Pessoa de Meia-Idade , Pesquisa Qualitativa , Qualidade de Vida/psicologia , Estresse Psicológico/etiologia , Estresse Psicológico/psicologia
10.
Qual Health Res ; 29(10): 1497-1507, 2019 08.
Artigo em Inglês | MEDLINE | ID: mdl-30827183

RESUMO

Responding to the limitations of dominant biomedical quantitative approaches to suicide research, scholars have called for qualitative research documenting first-person narratives of suicide to gain access to the "true experts." This raises questions about what we can learn about suicide from first-person narratives. In this article, we critically examine the practice of analyzing first-person narratives of nonfatal suicidal behavior to make truth claims about the causes of suicide. We make explicit the assumptions that underlie the interpretation of first-person narratives and draw on research within cognitive neuropsychology and social psychology to explore how memory processes, perception, and attribution errors might influence the way individuals narrate their experience. We employ literature from narrative theory and life-writing to argue that narratives about nonfatal suicidal behavior are at best partial accounts which are constructed within very particular circumstances, making it impossible to interpret them as revealing the true causes of suicide.


Assuntos
Narrativas Pessoais como Assunto , Tentativa de Suicídio/psicologia , Humanos , Pesquisa Qualitativa , Suicídio/prevenção & controle , Suicídio/psicologia
12.
J Intellect Disabil ; 23(2): 190-202, 2019 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-29172897

RESUMO

Parent narratives have contributed to ethnographic accounts of the lives of children with autism, but there are fewer examples of parents producing their own autoethnographies. This article explores the affordances of an online blog for enabling a parent of a child with autism to produce a written record of practice which may be considered 'autoethnographic'. Richardson's framework for ethnography as Creative Analytic Process (CAP) is applied to extracts from a blog post in order to consider its contribution, reflexivity, aesthetic merit and impact. The article addresses the methodological and ethical implications of reconceptualizing parents as researchers and the potential contribution of new writing platforms to the development of auto/ethnography.


Assuntos
Transtorno do Espectro Autista , Blogging , Pais , Narrativas Pessoais como Assunto , Adulto , Antropologia Cultural , Criança , Feminino , Humanos , Masculino , Redação
13.
J Marital Fam Ther ; 45(2): 323-336, 2019 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-29470853

RESUMO

"How, of all the millions of people in the world, did the two of you get together?", a question to be addressed conjointly to a couple, part of a Structure Family Interview developed during the early heydays of the Mental Research Institute at Palo Alto, California, is analyzed in terms of structure, process and outcome of responses to it, and discussed as a powerful research and clinical tool with current potentials, as it provides in a succinct fashion remarkable insights into a narrative that is constitutive of the couple and, by omission or commission, revealing in terms of the couple's evolution.


Assuntos
Terapia de Casal/métodos , Relações Interpessoais , Narrativas Pessoais como Assunto , Cônjuges/psicologia , Adulto , Feminino , Humanos , Masculino
14.
Clin Child Psychol Psychiatry ; 24(1): 129-143, 2019 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-30080102

RESUMO

Maudsley Family-Based Treatment (FBT) is currently the best supported treatment for adolescents with anorexia nervosa (AN); however, little is known about whether it achieves its stated aim in the final phases of promoting the patient's return to an expected developmental trajectory. This study aimed to explore the perspectives of young people and their parents regarding the developmental impact of AN, and the role of FBT in addressing developmental challenges. Young people ( N = 12) who ceased FBT a minimum 1 year prior, and their parents ( N = 12), completed face-to-face semi-structured interviews, and data were analysed using a narrative inquiry method. All the participants described AN as highly disruptive to adolescent development, with phase one of FBT accentuating this experience. In phases two and three, FBT helped facilitate adolescent development in three key ways: Supporting return to adolescent pursuits, facilitating autonomy and providing freedom to develop post-FBT. This study offers preliminary insights into the variety of developmental challenges and needs experienced by families, as well as approaches clinicians can take to supporting development in phases two and three of FBT.


Assuntos
Desenvolvimento do Adolescente , Anorexia Nervosa/psicologia , Anorexia Nervosa/terapia , Terapia Familiar/métodos , Pais/psicologia , Adolescente , Adulto , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Narrativas Pessoais como Assunto , Pesquisa Qualitativa , Adulto Jovem
15.
Child Care Health Dev ; 45(1): 54-62, 2019 01.
Artigo em Inglês | MEDLINE | ID: mdl-30335194

RESUMO

BACKGROUND: Living with spina bifida in Palestine is a critical issue that might influence various aspects of the individual's life. It is a challenge for children, their families, and health care providers because it requires lifelong treatment and follow-up of care provision. However, little focus has been placed on these children's perceptions about their daily life experiences with spina bifida. PURPOSE: To illuminate the lived experience of children with spina bifida in the West Bank, Palestine. METHODS: A qualitative study was conducted using the phenomenological hermeneutical method to interpret the meaning of being a child with spina bifida in Palestine. Ten children with spina bifida, aged 7-18 years, were interviewed. The two local authors independently analyzed the Arabic transcriptions, whereas the two Swedish authors analyzed the transcriptions after translation to English. Finally, the four authors discussed their analysis and reached agreement about the themes. RESULTS: Studying the children's experience with spina bifida helped us highlight their feelings, needs, and challenges. The findings were formulated into one main theme, Vulnerability and suffering due to social exclusion and stigma, which was grounded in three themes: Experiencing negative self-concept, Experiencing vulnerability, and Obtaining a sense of security. These three themes were in turn derived from subthemes. CONCLUSION: The Palestinian children in this study faced physical, emotional, and psychosocial challenges, which negatively influenced their health and development. They were vulnerable and stigmatized, and they lived with a negative self-concept. The findings could help health professionals, families, and caregivers to achieve a deeper understanding of what being a child with disabilities entails, and the findings may also serve as a platform for interventions that seek to promote these children's development and to enable them to experience childhood as a meaningful and positive process.


Assuntos
Crianças com Deficiência/psicologia , Narrativas Pessoais como Assunto , Autoimagem , Estigma Social , Disrafismo Espinal/psicologia , Adolescente , Árabes , Atitude Frente a Saúde , Criança , Feminino , Humanos , Relações Interpessoais , Masculino , Oriente Médio/epidemiologia , Grupo Associado , Pesquisa Qualitativa , Autocuidado/psicologia , Participação Social/psicologia , Disrafismo Espinal/epidemiologia , Disrafismo Espinal/fisiopatologia , Estresse Psicológico , Incontinência Urinária/epidemiologia , Incontinência Urinária/etiologia , Incontinência Urinária/psicologia
16.
Nurs Ethics ; 26(1): 105-115, 2019 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-28095762

RESUMO

BACKGROUND:: Lack of compassion is claimed to result in poor and sometimes harmful nursing care. Developing strategies to encourage compassionate caring behaviours are important because there is evidence to suggest a connection between having a moral orientation such as compassion and resulting caring behaviour in practice. OBJECTIVE:: This study aimed to articulate a clearer understanding of compassionate caring via nurse educators' selection and use of published texts and film. METHODOLOGY:: This study employed discourse analysis. PARTICIPANTS AND RESEARCH CONTEXT:: A total of 41 nurse educators working in universities in the United Kingdom (n = 3), Ireland (n = 1) and Canada (n = 1) completed questionnaires on the narratives that shaped their understanding of care and compassion. FINDINGS:: The desire to understand others and how to care compassionately characterised educators' choices. Most narratives were examples of kindness and compassion. A total of 17 emphasised the importance of connecting with others as a central component of compassionate caring, 10 identified the burden of caring, 24 identified themes of abandonment and of failure to see the suffering person and 15 narratives showed a discourse of only showing compassion to those 'deserving' often understood as the suffering person doing enough to help themselves. DISCUSSION:: These findings are mostly consistent with work in moral philosophy emphasising the particular or context and perception or vision as well as the necessity of emotions. The narratives themselves are used by nurse educators to help explicate examples of caring and compassion (or its lack). CONCLUSION:: To feel cared about people need to feel 'visible' as though they matter. Nurses need to be alert to problems that may arise if their 'moral vision' is influenced by ideas of desert and how much the patient is doing to help himself or herself.


Assuntos
Empatia , Docentes de Enfermagem/psicologia , Narrativas Pessoais como Assunto , Canadá , Humanos , Irlanda , Inquéritos e Questionários , Reino Unido
17.
Int J Offender Ther Comp Criminol ; 63(6): 919-939, 2019 05.
Artigo em Inglês | MEDLINE | ID: mdl-28893122

RESUMO

The recovery paradigm is a widely accepted strength-based approach in general mental health care. Particular challenges arise when applying this paradigm in a forensic context. To address these issues, the present study examined recovery based on first-person narratives of offenders formerly labeled as not criminally responsible of whom the judicial measure was abrogated. Eleven in-depth interviews were conducted to obtain information on lived experiences and recovery resources of this hard-to-reach and understudied population. The interviews focused on recovery and elements that indicated a sense of progress in life. Key themes were derived from the collected data. Descriptions of recovery resources followed recurrent themes, including clinical, functional, social, and personal resources. Participants also reported ambiguous experiences related to features of the judicial trajectory. This was defined as forensic recovery and can be seen as an additional mechanism, besides more established recovery dimensions, that is unique to mentally ill offenders.


Assuntos
Criminosos/psicologia , Defesa por Insanidade , Transtornos Mentais/reabilitação , Pessoas Mentalmente Doentes/psicologia , Narrativas Pessoais como Assunto , Recuperação de Função Fisiológica , Adulto , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Pesquisa Qualitativa
18.
Psychol Serv ; 16(2): 302-311, 2019 May.
Artigo em Inglês | MEDLINE | ID: mdl-30372092

RESUMO

To gain a better understanding of military suicide, we examined suicide narratives for 135 Soldiers extracted from two large-scale surveillance systems: the Department of Defense Suicide Event Report (DoDSER) and the Centers for Disease Control and Prevention's (CDC) National Violent Death Reporting System (NVDRS). Using coroner/medical examiner and law enforcement narratives captured in the NVDRS and mental health provider narrative data collected across multiple domains from the DoDSER, we examined circumstances surrounding military suicides using a qualitative content analysis approach. We identified five common proximal circumstances: (1) intimate partner relationship problems (63.0%); (2) mental health/substance abuse (51.9%); (3) military job-related (46.7%); (4) financial (17.8%); and (5) criminal/legal activity (16.3%). Evidence of premeditation was present in 37.0% of suicides. Decedents frequently struggled with multiple, high-stress problems and exhibited symptoms of coping and emotion regulation difficulties. Findings demonstrate potential points of intervention for suicide prevention strategies. (PsycINFO Database Record (c) 2019 APA, all rights reserved).


Assuntos
Adaptação Psicológica , Sintomas Afetivos/psicologia , Relações Interpessoais , Transtornos Mentais/psicologia , Militares/psicologia , Narrativas Pessoais como Assunto , Suicídio/psicologia , Adolescente , Adulto , Sintomas Afetivos/epidemiologia , Feminino , Humanos , Masculino , Transtornos Mentais/epidemiologia , Pessoa de Meia-Idade , Militares/estatística & dados numéricos , Pesquisa Qualitativa , Suicídio/estatística & dados numéricos , Estados Unidos/epidemiologia , Adulto Jovem
19.
Neuropsychol Rehabil ; 29(7): 985-1004, 2019 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-28789595

RESUMO

Although narrative storytelling has been found to assist identity construction, there is little direct research regarding its application in rehabilitation following traumatic brain injury (TBI). The aim of this review was to identify published evidence on the use of personal narrative approaches in rehabilitation following TBI and to synthesise the findings across this literature. A systematic search of four databases was conducted in December 2016. No limit was set on the start date of the search. Personal narrative approaches were defined as direct client participation in sharing personal stories using written, spoken or visual methods. The search retrieved 12 qualitative research articles on the use of personal narrative approaches in TBI rehabilitation. Thematic synthesis of the narrative data and authors' reported findings of the 12 articles yielded an overall theme of building a strengths-based identity and four sub-themes: 1) expressing and communicating to others; 2) feeling validated by the act of someone listening; 3) reflecting and learning about oneself; and 4) being productive. The findings of this review support the use of personal narrative approaches in addressing loss of identity following TBI. Healthcare professionals and the community are encouraged to seek opportunities for survivors of TBI to share their stories.


Assuntos
Lesões Encefálicas Traumáticas/psicologia , Lesões Encefálicas Traumáticas/reabilitação , Narração , Narrativas Pessoais como Assunto , Pesquisa Qualitativa , Humanos , Autoimagem
20.
Physis (Rio J.) ; 29(1): e290104, 2019.
Artigo em Português | LILACS | ID: biblio-1002820

RESUMO

Resumo O objetivo deste artigo é discutir a performance de sofrimento a partir das narrativas de mães de crianças com condições crônicas complexas de saúde veiculadas em uma revista eletrônica, seguindo também a pista de alguns links que levam a blogs. A visibilidade dos conteúdos compartilhados na internet, seja qual for a plataforma, e sua crescente função social de construção conjunta levam-nos a voltar nossa atenção especificamente para este espaço contemporâneo. A partir de uma imersão de inspiração etnográfica nos escritos, foram identificados movimentos engendrados pelas narrativas: captura, afirmação de um lugar, constituição de um vetor de forças e luta simbólica. Na forma de um ensaio, buscou-se articular discursivamente o material empírico com questões teóricas. A internet é um importante recurso de aproximação e vinculação ao ensejar a circulação de narrativas contra-hegemônicas. Mostrar o rosto e o nome, próprios e do filho, pode fazer parte de um movimento que afirme uma individualidade sofredora, mas pode também culminar na produção de novos sentidos, ampliando o campo de possibilidades, inclusive simbólicas, para mães e crianças.


Abstract This paper aims discuss the performance of suffering from the narratives of mothers of children with complex chronic health conditions published in a web journal, also following the trail of some links that lead to blogs. The visibility of shared content on the internet, whatever the platform, and its growing social function of joint construction, leads us to turn our attention specifically to this contemporary space. From an immersion of ethnographic inspiration in the writings, movements generated by the narratives were identified: capture, affirmation of a place, constitution of a vector of forces and symbolic struggle. In the form of an essay, we sought to articulate the empirical material discursively with theoretical questions. Internet is an important resource of approximation and linkage in allowing the circulation of counter-hegemonic narratives. Showing their faces and names and their children's can be part of a movement that affirms a suffering individuality, but can also culminate in the production of new senses, expanding the field of possibilities, including symbolic ones for mothers and children with complex chronic health conditions.


Assuntos
Humanos , Saúde da Criança , Doença Crônica , Internet , Narrativas Pessoais como Assunto , Mães/psicologia
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