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1.
Rev. enferm. UERJ ; 29: e51932, jan.-dez. 2021.
Artigo em Inglês, Português | LILACS | ID: biblio-1224598

RESUMO

Objetivo: analisar a produção do conhecimento sobre a experiência da família acerca dos cuidados paliativos da criança com câncer hospitalizada na unidade de terapia intensiva e discutir o papel da enfermagem no atendimento à família da criança com câncer frente aos cuidados paliativos. Método: revisão integrativa realizada na PUBMED, LILACS, SCOPUS, SCIELO e CINAHL entre janeiro e março de 2020. Resultados: a amostra foi composta por 13 artigos, originando duas categorias: O impacto do cuidado paliativo da criança com câncer na dinâmica familiar e o cuidado multiprofissional, em especial dos enfermeiros, à família da criança com câncer. Conclusão: os estudos revelaram o panorama nacional e internacional dos cuidados paliativos à criança com câncer e a desestruturação da dinâmica familiar nos aspectos físicos, sociais, psicológicos, e financeiros, caracterizando o período como estressante e doloroso. Os enfermeiros estabelecem condutas terapêuticas objetivando promover qualidade de vida para crianças em cuidados paliativos e seus familiares.


Objective: to examine production of knowledge on families' experience of palliative care for children with cancer hospitalized in an intensive care center and discuss the role of nursing in assisting the family of the child in palliative cancer care. Method: this integrative review was conducted on PubMed, LILACS, Scopus, SciELO and CINAHL between January and March 2020. Results: from the sample of 13 articles, two categories originated: The impact of palliative cancer care for children on family dynamics and multiprofessional care, especially by nurses, for the family of the child with cancer. Conclusion: the studies revealed the national and international panorama of palliative care for children with cancer and the breakdown of physical, social, psychological, and financial family dynamics, characterizing the period as stressful and painful. Nurses establish therapeutic approaches aimed at promoting quality of life for children in palliative care and their families.


Objetivo: analizar la producción de conocimiento sobre la experiencia familiar en los cuidados paliativos de niños con cáncer, hospitalizados en la unidad de cuidados intensivos, y discutir el papel de la enfermería en la asistencia a la familia del niño con cáncer frente a los cuidados paliativos. Método: Revisión integradora realizada en PUBMED, LILACS, SCOPUS, SCIELO y CINAHL entre enero y marzo de 2020. Resultados: La muestra estuvo conformada por 13 artículos, originando dos categorías: El impacto de los cuidados paliativos para niños con cáncer en la dinámica familiar y los cuidados multiprofesionales, especialmente de las enfermeras, a la familia del niño con cáncer. Conclusión: Los estudios revelaron el panorama nacional e internacional de los cuidados paliativos para niños con cáncer y la ruptura de la dinámica familiar en aspectos físicos, sociales, psicológicos y económicos, caracterizándolo como un período estresante y doloroso. Las enfermeras establecen enfoques terapéuticos dirigidos a promover la calidad de vida de los niños en cuidados paliativos y sus familias.


Assuntos
Humanos , Masculino , Feminino , Criança , Cuidados Paliativos , Família/psicologia , Criança Hospitalizada , Conhecimentos, Atitudes e Prática em Saúde , Unidades de Terapia Intensiva , Neoplasias/terapia , Papel do Profissional de Enfermagem , Neoplasias/enfermagem , Relações Enfermeiro-Paciente
2.
Holist Nurs Pract ; 35(5): 248-256, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-34407022

RESUMO

Cancer affects not only the patient but also family members as informal caregivers. In order for family caregivers to achieve balance and improve their caregiving roles, it is essential to identify the beliefs and psychological aspects affecting them. The present study was carried out qualitatively with a descriptive phenomenological design in 2020. The main participants in this study were selected from one of the major referral centers for cancer patients in West Azerbaijan Province, located in northwestern, Iran. Twenty-two family caregivers were selected through a purposive sampling method. Data analysis showed that the 3 main themes of "emotional and religious preconceptions," "feeling committed to caring for beloveds," and "resilience" played a prominent role in family caregivers. These factors led to caregivers' commitment to and responsibility for care. Holistic care necessitates consideration of all aspects of human life. The results of this study led to an understanding of the complex tendencies and feelings of family caregivers. Based on the results, it was found that care is influenced by beliefs, religious preconceptions, sociocultural, and psychological factors. Identifying these variables helps medical staff share planning, interventions, and counseling with family caregivers and address issues that affect them.


Assuntos
Cuidadores/psicologia , Neoplasias/enfermagem , Assistência ao Paciente/psicologia , Psicologia , Adaptação Psicológica , Humanos , Irã (Geográfico) , Neoplasias/psicologia , Assistência ao Paciente/normas , Pesquisa Qualitativa
3.
Clin J Oncol Nurs ; 25(4): 488, 2021 08 01.
Artigo em Inglês | MEDLINE | ID: mdl-34269340

RESUMO

As a nursing student back in the late 1970s, I thought I would not work in oncology because it hit too close to home; my mother, my grandmother, my grandfather, and a college friend had all had cancer. Working with patients with cancer would bring up too many memories and worries to which I would never subject myself.


Assuntos
COVID-19/psicologia , Neoplasias/enfermagem , Neoplasias/psicologia , Recursos Humanos de Enfermagem no Hospital/psicologia , Enfermagem Oncológica/métodos , Feminino , Humanos , Pessoa de Meia-Idade , Pandemias , SARS-CoV-2
4.
Clin J Oncol Nurs ; 25(4): 457-464, 2021 08 01.
Artigo em Inglês | MEDLINE | ID: mdl-34269347

RESUMO

BACKGROUND: Healthcare delivery has been significantly changed because of the COVID-19 pandemic. Patients undergoing hematopoietic stem cell transplantation (HSCT) are vulnerable to infections because of their immunocompromised status. The risk of nosocomial infection may be reduced by providing care to patients at home. OBJECTIVES: This article describes one cancer center's approach for delivering safe patient care through homecare encounters, the benefits of home care for HSCT, and future directions. METHODS: Patients received detailed information on home encounters. Advanced practice providers visited patients daily and then returned to the clinic to formulate a plan of care with the interprofessional care team. Transplantation RNs visited patients on the same day to provide the prescribed care. FINDINGS: Based on evaluations from 32 patients and 12 providers, the results indicated that home care was safe, feasible, and beneficial for patient care post-HSCT during the COVID-19 pandemic.


Assuntos
Transplante de Células-Tronco Hematopoéticas/enfermagem , Serviços de Assistência Domiciliar/normas , Neoplasias/enfermagem , Neoplasias/cirurgia , Enfermagem Oncológica/normas , Terapias em Estudo/normas , Transplante Homólogo/enfermagem , Adulto , Idoso , Idoso de 80 Anos ou mais , COVID-19/epidemiologia , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , North Carolina , Pandemias , Guias de Prática Clínica como Assunto , SARS-CoV-2
5.
Rev. enferm. UFPE on line ; 15(2): [1-15], jul. 2021. ilus, graf, tab
Artigo em Português | BDENF - Enfermagem | ID: biblio-1290986

RESUMO

Objetivo: Descrever as evidências disponíveis na literatura acerca dos conhecimentos e das práticas da administração de fluidos por via subcutânea em pacientes oncológicos. Metodologia: Revisão integrativa de literatura, utilizando os descritores enfermagem, hipodermóclise, terapia subcutânea e câncer; nos idiomas inglês, português e espanhol, sem data limite de publicação. Dos 160 artigos encontrados, 11 compuseram a amostra. Resultados: Destes artigos, 54% (n=6) estavam publicados na língua inglesa, 63% (n=7) foram publicados nos últimos cinco anos. Dentre eles 81% (n=9) são classificados com nível de evidência seis por constituírem estudos observacionais ou relatos de experiências, enquanto dois estudos são revisões de literatura. Quanto ao assunto principal dos estudos, a maioria das pesquisas aponta a utilização da via subcutânea em pacientes em cuidados paliativos domiciliares. Conclusão: Nesta pesquisa foi possível conhecer a hipodermóclise, suas indicações, finalidades, vantagens e desvantagens, concluindos, a partir dos estudos analisados, ser essa via de administração de fluidos e/ou fármacos uma possibilidade de uso em pacientes oncológicos, tendo como ênfase nos pacientes em cuidados paliativos.(AU)


Objective: To describe the evidence available in the literature about the knowledge and practices of subcutaneous fluid administration in cancer patients. Methodology: Integrative literature review, using the keywords nursing, hypodermoclysis, subcutaneous therapy, and cancer; in English, Portuguese and Spanish, with no publication deadline. Of the 160 articles found, 11 comprised the sample. Results: Of these articles, 54% (n = 6) were published in the English language, 63% (n = 7) were published in the last five years. Among them, 81% (n = 9) are classified with the level of evidence six because they are observational studies or reports of experiences, while two studies are literature reviews. As for the main subject of the studies, most research points to the use of the subcutaneous route in patients under palliative care at home. Conclusion: In this research, it was possible to know hypodermoclysis, its indications, purposes, advantages, and disadvantages, concluding, from the studies analyzed, that this route of administration of fluids and/or drugs is a possibility of use in cancer patients, with an emphasis on palliative care patients.(AU)


Objetivo: Describir la evidencia disponible en la literatura sobre el conocimiento y las prácticas de la administración de fluidos subcutáneos en pacientes con cáncer. Metodología: Revisión integrativa de la literatura, utilizando las palabras clave enfermería, hipodermoclisis, terapia subcutánea y cáncer; en inglés, portugués y español, sin fecha límite de publicación. De los 160 artículos encontrados, 11 componen la muestra. Resultados: De estos artículos, 54% (n = 6) fueron publicados en idioma inglés, 63% (n = 7) fueron publicados en los últimos cinco años. Entre ellos, el 81% (n = 9) se clasifican con nivel de evidencia seis porque constituyen estudios observacionales o relatos de experiencias, mientras que dos estudios son revisiones de literatura. En cuanto al tema principal de los estudios, la mayoría de las investigaciones apuntan al uso de la vía subcutánea en pacientes en cuidados paliativos domiciliarios. Conclusión: En esta investigación se pudo conocer la hipodermoclisis, sus indicaciones, propósitos, ventajas y desventajas, concluyendo, a partir de los estudios analizados, que esta vía de administración de líquidos y / o fármacos es una posibilidad de uso en pacientes oncológicos, con un énfasis en los pacientes de cuidados paliativos.(AU)


Assuntos
Humanos , Masculino , Feminino , Conhecimentos, Atitudes e Prática em Saúde , Tela Subcutânea , Hipodermóclise , Neoplasias , Neoplasias/enfermagem , Neoplasias/tratamento farmacológico , PubMed
6.
Clin J Oncol Nurs ; 25(3): 235-236, 2021 06 01.
Artigo em Inglês | MEDLINE | ID: mdl-34019020

RESUMO

I recently completed work at a large-scale, drive-through COVID-19 vaccination initiative and was immediately struck by its military parallel in mobilizing this emergent medical response. Federal personnel were deployed quickly to assist the local workforce untested in a public health domain. The expansive integration of technology was at a level I had not previously witnessed. Computerized algorithms organized the flow of cars through a huge fairground (think Disneyland Park). Databases were created to register the public, make appointments, and document the specifics of vaccination administration. From day one, the pharmacy tent was in constant overdrive to ensure vaccine supply was in sync with hourly demand. The interface of all these platforms vaccinated 2,300 people per day.


Assuntos
Vacinas contra COVID-19/administração & dosagem , COVID-19/prevenção & controle , Neoplasias/enfermagem , COVID-19/virologia , Humanos , Enfermagem Oncológica , SARS-CoV-2/isolamento & purificação
7.
Clin J Oncol Nurs ; 25(3): 347-350, 2021 06 01.
Artigo em Inglês | MEDLINE | ID: mdl-34019021

RESUMO

The Community Oncology Unit (COU) in Nazareth, Israel, provides complete medical treatments to patients who live in the rural area of the country. During the COVID-19 pandemic, oncology nurses face additional challenges in facilitating cancer care. Pertinent adjustments are being made at the COU to maintain patients' safety and enable continuous oncology therapy by coordinating patients' COVID-19 testing and vaccination program.


Assuntos
COVID-19/epidemiologia , Neoplasias/enfermagem , Papel do Profissional de Enfermagem , Enfermagem Oncológica , COVID-19/virologia , Teste para COVID-19 , Vacinas contra COVID-19/administração & dosagem , Humanos , Israel , Oncologia , Neoplasias/terapia , Pandemias , SARS-CoV-2/isolamento & purificação
8.
Rev Bras Enferm ; 74(suppl 3): e20200441, 2021.
Artigo em Inglês, Português | MEDLINE | ID: mdl-34037175

RESUMO

OBJECTIVE: Identify, analyze and understand the social representations of nursing professionals about burnout syndrome. METHOD: Qualitative study with nursing professionals who worked in the direct assistance to oncologic patients, conducted through semi-structured interview, using the technique of content analysis, anchoring the interpretations in the theory of social representations. RESULTS: Seven professionals participated; after analysis, two categories emerged: "The stress of professionals, the naturalization of suffering and self-care strategies"; and "Ressignifications, learning in the oncologic sector and network gaps". The representations about stress and the relationship of the professionals with the daily practice were predominant. FINAL CONSIDERATIONS: The nursing professionals represented the burnout syndrome socially as stress and made important reflections on the subject in the context of daily work. Concepts that determine the behavior of professionals were perceived as mechanisms of confrontation. In the vision of this social group, spirituality was revealed as a therapeutic strategy.


Assuntos
Adaptação Psicológica , Esgotamento Psicológico , Neoplasias/enfermagem , Estresse Ocupacional , Angústia Psicológica , Estresse Psicológico , Humanos , Entrevistas como Assunto , Saúde Mental , Enfermagem Oncológica , Pesquisa Qualitativa
9.
Rev Bras Enferm ; 74(suppl 3): e20200735, 2021.
Artigo em Inglês, Português | MEDLINE | ID: mdl-34037177

RESUMO

OBJECTIVE: To analyze the experiences that generate pleasure and suffering in the work of nurses in an oncopediatric inpatient unit. METHODS: Qualitative, exploratory, descriptive study. Data collection took place from March to May 2018, through interviews with eight nurses in an oncopediatric inpatient unit. RESULTS: The verbalized experiences of pleasure were the work developed with children, participation in the treatment and cure of patients and the recognition of family members in relation to the work performed. The suffering experiences were palliative care and death of patients, performing invasive procedures and organizing work. FINAL CONSIDERATIONS: It was possible to analyze the experiences of pleasure and suffering of nurses in an oncopediatric unit through the psychodynamics of work, allowing to reinvent prevention and intervention measures by managers in health/mental illness processes at work.


Assuntos
Neoplasias/enfermagem , Enfermeiras Pediátricas/psicologia , Dor , Enfermagem Pediátrica , Prazer , Adulto , Criança , Pré-Escolar , Unidades Hospitalares , Humanos , Entrevistas como Assunto , Pessoa de Meia-Idade , Neoplasias/psicologia , Cuidados Paliativos , Pesquisa Qualitativa
10.
Bull Cancer ; 108(7-8): 686-695, 2021.
Artigo em Francês | MEDLINE | ID: mdl-34049669

RESUMO

BACKGROUND: The complexity of the hospital-city care pathway is a real challenge because of the lack of coordination and communication between many stakeholders. As part of a call for projects from the General Directorate of Healthcare Provision, an experiment involving private oncology coordinating nurses was developed to address this issue. To our knowledge, there is no evaluation so far of such a protocol . METHODS: This single-center retrospective study focused on data from the ONC'IDEC program between 2015 and 2018, where 28 private nurses provided a 24/7 hotline. The objective was to qualitatively assess the coordination of this system. The nature and number of calls, patient satisfaction and medico-economic parameters were assessed. RESULTS: More than a hundred patients (n=114) were included in this device (mean age: 72 ± 12 years). The most frequent reasons for calls concerned the patient's general condition (35 %) and home treatment follow-ups (13 %) but also referrals to the primary doctor (4 %), which helped avoiding hospitalizations. The patients were satisfied with the experiment (overall score of 8.4/10). DISCUSSION: Thanks to the ONC'IDEC program, patients were able to benefit from more appropriate care through a privileged interlocutor by making their care pathway more fluid and avoiding hospitalizations. It would be interesting to confirm these results by means of a study with a higher level of evidence, by comparing this protocol to conventional hospital coordination.


Assuntos
Procedimentos Clínicos/organização & administração , Linhas Diretas/organização & administração , Oncologia/organização & administração , Prática Privada de Enfermagem/organização & administração , Enfermagem Oncológica/organização & administração , Idoso , Comunicação , Feminino , Necessidades e Demandas de Serviços de Saúde/economia , Necessidades e Demandas de Serviços de Saúde/estatística & dados numéricos , Hospitalização/estatística & dados numéricos , Linhas Diretas/estatística & dados numéricos , Humanos , Masculino , Neoplasias/enfermagem , Satisfação do Paciente , Avaliação de Programas e Projetos de Saúde , Estudos Retrospectivos
12.
Nursing (Säo Paulo) ; 24(275): 5530-5543, abr.-2021.
Artigo em Português | LILACS, BDENF - Enfermagem | ID: biblio-1224224

RESUMO

Objetivo: elucidar o uso de tecnologias na educação em saúde para prevenção e rastreamento do Câncer de Mama. Método: Trata-se de uma revisão integrativa realizada nas bases de dados LILACS, MEDLINE, BDENF e PUBMED com temas relacionados ao uso de tecnologia para educação em saúde na prevenção e rastreamento precoce do câncer de mama, utilizando recorte temporal de 2015 à 2019, fontes primárias e avaliação dos níveis de evidência. Resultados: Constatou-se que os estudos apontam o papel fundamental do enfermeiro frente ao educar em saúde na prevenção e rastreamento do câncer de mama, destacando o uso de tecnologias computacionais como ferramentas aliadas ao processo de empoderamento feminino e fortalecimento do seu autocuidado. Conclusão: Evidenciou-se que o uso das tecnologias em saúde é de grande valia no desenvolvimento das estratégias educativas, refletindo no fortalecimento da autonomia da mulher e melhor operacionalização destas ações nos serviços de saúde.(AU)


Objective: to elucidate or use of technologies in education in health for prevention and tracking of Breast Cancer. Methods: It deals with an integrative review carried out in databases LILACS, MEDLINE, BDENF and PUBMED on topics related to the use of technology for education in health in prevention and early tracking of breast cancer, using temporal cut from 2015 to 2019, primary sources and evaluation of evidence levels. Results: I confirm that the studies play the fundamental role of the nurse in the face of or educating in health in the prevention and screening of breast cancer, highlighting the use of computer technologies as allied tools to the process of feminine empowerment and strengthening of self-care. Conclusion: Evidence that I use the technologies in health and of great value, not developing educational strategies, reflecting not strengthening the autonomy of women and the operationalization of these services for health services.(AU)


Objetivo: aclarar el uso de tecnologías en educación para la salud para la prevención y detección del cáncer de mama. Metodo: Se trata de una revisión integradora realizada en las bases de datos LILACS, MEDLINE, BDENF y PUBMED con temas relacionados con el uso de la tecnología para la educación en salud en la prevención y cribado temprano del cáncer de mama, utilizando un marco temporal de 2015 a 2019, fuentes primarias y evaluación de los niveles de evidencia. Resultados: Se encontró que los estudios señalan el papel fundamental del enfermero en la educación para la salud en la prevención y cribado del cáncer de mama, destacando el uso de tecnologías informáticas como herramientas conjugadas con el proceso de empoderamiento femenino y fortalecimiento de su autocuidado. Conclusión: Se evidenció que el uso de tecnologías en salud es de gran valor en el desarrollo de estrategias educativas, reflejando el fortalecimiento de la autonomía de las mujeres y una mejor operacionalización de estas acciones en los servicios de salud.(AU)


Assuntos
Humanos , Feminino , Neoplasias da Mama/diagnóstico , Neoplasias da Mama/prevenção & controle , Programas de Rastreamento , Educação em Saúde , Tecnologia Biomédica , Tecnologia Educacional/métodos , Prevenção de Doenças , Neoplasias/enfermagem
14.
Clin J Oncol Nurs ; 25(2): 119-125, 2021 04 01.
Artigo em Inglês | MEDLINE | ID: mdl-33739351

RESUMO

The COVID-19 pandemic continues to affect the health and well-being of individuals and communities worldwide. Patients with cancer are particularly vulnerable to experiencing serious health-related suffering from COVID-19. This requires oncology nurses in inpatient and clinic settings to ensure the delivery of primary palliative care while considering the far-reaching implications of this public health crisis. With palliative care skills fully integrated into oncology nursing practice, health organizations and cancer centers will be better equipped to meet the holistic needs of patients with cancer and their families receiving care for serious illness, including improved attention to physical, psychosocial, cultural, spiritual, and ethical considerations.


Assuntos
COVID-19/complicações , Neoplasias/enfermagem , Enfermagem Oncológica , Cuidados Paliativos/organização & administração , Pandemias , COVID-19/epidemiologia , COVID-19/virologia , Humanos , Neoplasias/complicações , SARS-CoV-2/isolamento & purificação
16.
Soins ; 66(853): 39-42, 2021 Mar.
Artigo em Francês | MEDLINE | ID: mdl-33775302

RESUMO

The first challenge, after graduating as an advanced practice nurse is to establish a new model of care in one's place of practice. The feedback from the creation of an advanced practice nurse position in oncology in Amiens-Picardie university hospital, using a population-based approach, illustrates the roles and skills required in this new health profession.


Assuntos
Prática Avançada de Enfermagem/organização & administração , Geriatria , Oncologia , Neoplasias , Idoso , França , Geriatria/organização & administração , Hospitais Universitários , Humanos , Oncologia/organização & administração , Neoplasias/enfermagem
17.
J Hosp Palliat Nurs ; 23(4): 346-353, 2021 08 01.
Artigo em Inglês | MEDLINE | ID: mdl-33660671

RESUMO

The COVID-19 pandemic has dramatically changed social life. This secondary qualitative analysis aimed to better understand the impact of the pandemic on bereaved hospice family caregivers' experiences of social connection and isolation in a time of social distancing and general anxiety. Six caregivers in 3 states recorded audio diaries (N = 59) between March 13 and May 15, 2020. Caregivers were, on average, 56.80 years old (SD, 14.22; range, 32-67 years old) and consisted of spouses (n = 2), adult children (n = 3), and a sibling (n = 1). Using NVIVO 12, caregiver diaries were coded for (1) "social connection" (n = 23), defined as being able to access or seeking informal or formal social support networks; (2) "isolation" (n = 17), defined as being unable or reluctant to access informal or formal social support networks, or feeling alone; and (3) "bereavement processes" (n = 147), informed by the dual process model of bereavement (restoration and loss-oriented stressors). Content analysis revealed that caregivers were able to connect with others despite physical distancing expectations, expressed loneliness and grief while in isolation, and described moving on in the face of uncertainty. Findings provide insight into how caregivers experienced bereavement during the initial period of the pandemic and highlight implications for hospice bereavement services.


Assuntos
Cuidadores/psicologia , Diários como Assunto , Neoplasias/enfermagem , Adulto , Idoso , COVID-19/psicologia , Feminino , Cuidados Paliativos na Terminalidade da Vida , Humanos , Masculino , Pessoa de Meia-Idade , Neoplasias/psicologia , Pandemias , Pesquisa Qualitativa , SARS-CoV-2 , Isolamento Social/psicologia , Apoio Social
18.
Eur J Oncol Nurs ; 51: 101925, 2021 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-33647543

RESUMO

PURPOSE: To understand the perspectives of oncology nurses on peer support for patients with cancer and the role of oncology nurses in its provision. METHOD: Thematic semi-structured interviews of 10 oncology nurses working in a single university hospital were conducted. The data were analysed using content analysis. RESULTS: Oncology nurses thought that peer support promotes the psychosocial wellbeing of patients with cancer by increasing their social contact and strengthening their emotional resources. In their daily work, oncology nurses engaged in several activities that promote the interactions between patients with cancer and informal forms of peer support. However, directing patients with cancer to formal peer support services outside specialised health care was not an established practice. Oncology nurses expressed several concerns about the availability of support and the coping ability of peer supporters and expressed scepticism about the reliability of information shared in peer support groups. CONCLUSIONS: The awareness of oncology nurses regarding formal peer support services appears rather limited. This knowledge gap should be reduced, such as through closer collaboration between hospitals and third sector cancer organisations, which does not appear effective at present based on the results. In addition, patients with cancer should be systematically informed about peer support.


Assuntos
Atitude do Pessoal de Saúde , Neoplasias/psicologia , Recursos Humanos de Enfermagem no Hospital/psicologia , Enfermagem Oncológica , Grupo Associado , Apoio Social , Adulto , Feminino , Hospitais Universitários , Humanos , Masculino , Pessoa de Meia-Idade , Neoplasias/enfermagem , Recursos Humanos de Enfermagem no Hospital/estatística & dados numéricos , Pesquisa Qualitativa
19.
Syst Rev ; 10(1): 43, 2021 02 01.
Artigo em Inglês | MEDLINE | ID: mdl-33526095

RESUMO

BACKGROUND: Cancer patients are particularly vulnerable to COVID-19, partially owing to their compromised immune systems and curbed or cut cancer healthcare services caused by the pandemic. As a result, cancer caregivers may have to shoulder triple crises: the COVID-19 pandemic, pronounced healthcare needs from the patient, and elevated need for care from within. While technology-based health interventions have the potential to address unique challenges cancer caregivers face amid COVID-19, limited insights are available. Thus, to bridge this gap, we aim to identify technology-based interventions designed for cancer caregivers and report the characteristics and effects of these interventions concerning cancer caregivers' distinctive challenges amid COVID-19. METHODS: A systematic search of the literature will be conducted in PubMed, PsycINFO, CINAHL, and Scopus from the database inception to the end of March 2021. Articles that center on technology-based interventions for cancer caregivers will be included in the review. The search strategy will be developed in consultation with an academic librarian who is experienced in systematic review studies. Titles, abstracts, and full-text articles will be screened against eligibility criteria developed a priori. The Preferred Reporting Items for Systematic Reviews and Meta-Analyses procedures will be followed for the reporting process. CONCLUSIONS: COVID-19 has upended cancer care as we know it. Findings of this study can shed light on evidence-based and practical solutions cancer caregivers can utilize to mitigate the unique challenges they face amid COVID-19. Furthermore, results of this study will also offer valuable insights for researchers who aim to develop interventions for cancer caregivers in the context of COVID-19. In addition, we also expect to be able to identify areas for improvement that need to be addressed in order for health experts to more adequately help cancer caregivers weather the storm of global health crises like COVID-19 and beyond. SYSTEMATIC REVIEW REGISTRATION: PROSPERO CRD42020196301.


Assuntos
Cuidadores/psicologia , Invenções , Neoplasias/enfermagem , COVID-19 , Atenção à Saúde , Humanos
20.
BMC Cancer ; 21(1): 204, 2021 Feb 27.
Artigo em Inglês | MEDLINE | ID: mdl-33639887

RESUMO

BACKGROUND: With increasing cancer incidence and decreasing cancer mortality, there is a growing need for a valid and culturally adapted tool to measure health-related quality of life in children with cancer. This study validated the DISABKIDS Chronic Generic Module (DCGM-37) in Chinese children and adolescents with cancer. METHODS: The DCGM-37 was translated and adapted for use in China following the guidelines from its copyright holders. In total, 140 children and adolescents with cancer and their guardians were included in this cross-sectional study. Internal consistency and test-retest reliability were evaluated. Convergent validity was examined using Pearson correlation between the DCGM-37 and the PedsQL 4.0 Generic Core Scale. Dimensionality was clarified using exploratory factor analysis. Discriminant validity was evaluated by comparing DCGM-37 scores by sex, age, family income, and clinical characteristics. RESULTS: Internal consistency (Cronbach's alpha 0.91) and test-retest reliability were good (intraclass correlation coefficient 0.87, 95% confidence interval 0.73-0.94). Strong correlations between the DCGM-37 and the PedsQL 4.0 (r = 0.83) suggest good convergent validity. Six factors explained 51.94% of the total variance. Children with leukemia scored higher than those with sarcoma in all subscales (effect size ranged from 0.39 to 0.83), especially the "social exclusion" subscales (effect size 0.83). Small to moderate differences (effect size ranged from 0.38 to 0.58) were observed by sex, age, and family income. Neither floor nor ceiling effects were observed. CONCLUSION: The DCGM-37 is reliable and valid for measuring health-related quality of life in Chinese children and adolescents with cancer.


Assuntos
Neoplasias/psicologia , Pacientes/psicologia , Psicologia do Adolescente , Psicologia da Criança , Qualidade de Vida , Inquéritos e Questionários , Atividades Cotidianas , Adolescente , Criança , China/epidemiologia , Estudos Transversais , Emoções , Feminino , Humanos , Masculino , Neoplasias/epidemiologia , Neoplasias/enfermagem , Pais/psicologia , Procurador , Psicometria , Reprodutibilidade dos Testes , Estudos Retrospectivos , Autorrelato , Comportamento Social , Fatores Socioeconômicos
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