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2.
Barbarói ; (58): 95-121, jan.-jun. 2021.
Artigo em Português | LILACS, Index Psicologia - Periódicos | ID: biblio-1150759

RESUMO

Objetivo: analisar na literatura científica global o tema protagonismo do usuário no serviço de saúde mental. Método: revisão integrativa da literatura, a partir de artigos em português, inglês e francês nas bases de dados da Biblioteca Virtual em Saúde, CINAHL, SCOPUS e PubMed com palavras-chave e MESH, sem determinação temporal. Elegeram-se 21 artigos pelo fluxograma de seleção no período de agosto de 2017 a abril 2020. Resultados: o protagonismo na área da saúde mental é descrito como uma prática transformadora e humanitária pautada nas necessidades do usuário, os artigos nacionais e internacionais trouxeram concepções e ações sobre o protagonismo. Conclusão: o Modelo da Maré, as oficinas terapêuticas, o Projeto Terapêutico Singular, o Psicodrama e o teatro são ferramentas que se apresentam essenciais para o protagonismo do usuário na assistência em saúde mental, pois demarcam tecnologias e dispositivos de produção que permeiam a autonomia, a valorização e subjetividade da pessoa assistida.(AU)


Objetivo: analizar en la literatura científica global el tema del protagonismo del usuario en el servicio de salud mental. Método: revisión bibliográfica integradora, basada en artículos en portugués, inglés y francés en las bases de datos de la Biblioteca Virtual en Salud, CINAHL, SCOPUS y PubMed con palabras clave y MESH, sin determinación temporal. El diagrama de flujo de selección eligió 21 artículos de agosto de 2017 a abril de 2020. Resultados: el protagonismo en el área de salud mental se describe como una práctica transformadora y humanitaria basada en las necesidades del usuario, los artículos nacionales e internacionales aportaron conceptos y acciones sobre protagonismo. Conclusión: el Modelo Maré, los talleres terapéuticos, el Proyecto Terapéutico Singular, el Psicodrama y el teatro son herramientas esenciales para el papel del usuario en la atención de la salud mental, ya que delimitan tecnologías y dispositivos de producción que impregnan la autonomía. La valoración y subjetividad de la persona asistida.(AU)


Objective: to analyze in the global scientific literature the theme of user leadership in the mental health service. Method: integrative literature review, based on articles in Portuguese, English and French in the databases of the Virtual Health Library, CINAHL, SCOPUS and PubMed with keywords and MESH, without temporal determination. 21 articles were chosen by the selection flowchart from August 2017 to April 2020. Results: the leadership in the mental health area is described as a transformative and humanitarian practice based on the needs of the user, national and international articles brought concepts and actions on leadership. Conclusion: the Tidal Model, the therapeutic workshops, the Singular Therapeutic Project, Psychodrama and the theater are tools that are essential for the role of the user in mental health care, as they demarcate technologies and production devices that permeate autonomy, the valuation and subjectivity of the assisted person.(AU)


Assuntos
Humanos , Pacientes , Saúde Mental , Autonomia Pessoal , Assistência à Saúde Mental , Serviços de Saúde Mental
3.
BMC Infect Dis ; 21(1): 449, 2021 May 18.
Artigo em Inglês | MEDLINE | ID: mdl-34006254

RESUMO

BACKGROUND: There is a need for innovative strategies to improve TB testing uptake and patient retention along the continuum of TB care early-on in treatment without burdening under-resourced health systems. We used a mixed methods approach to develop and pilot test a tuberculosis literacy and counselling intervention at an urban clinic in KwaZulu Natal, South Africa, to improve TB testing uptake and retention in tuberculosis care. METHODS: We engaged in discussions with clinic staff to plan and develop the intervention, which was delivered by senior social work students who received one-week training. The intervention included: 1) group health talks with all patients attending the primary clinic; and 2) individual counselling sessions, using motivational interviewing techniques, with newly diagnosed tuberculosis patients. We compared social work students' tuberculosis knowledge, attitudes, and practices before and after their training. We assessed the change in number of tuberculosis diagnostic tests performed after implementation via an interrupted time series analysis with a quasi-Poisson regression model. We compared pre- and post-intervention probabilities of treatment initiation and completion using regression analyses, adjusting for potential baseline confounders. We conducted focus groups with the students, as well as brief surveys and one-on-one interviews with patients, to assess acceptability, feasibility, and implementation. RESULTS: During the study period, 1226 individuals received tuberculosis diagnostic testing and 163 patients started tuberculosis treatment, of whom 84 (51.5%) received individual counselling. The number of diagnostic tuberculosis tests performed increased by 1.36 (95%CI 1.23-1.58) times post-intervention, adjusting for background calendar trend. Probabilities of TB treatment initiation and treatment completion increased by 10.1% (95%CI 1.5-21.3%) and 4.4% (95%CI -7.3-16.0%), respectively. Patients found the counselling sessions alleviated anxiety and increased treatment self-efficacy. Social work students felt the clinic staff were collaborative and highly supportive of the intervention, and that it improved patient engagement and adherence. CONCLUSIONS: Engaging clinic staff in the development of an intervention ensures buy-in and collaboration. Education and counselling before and early-on in tuberculosis treatment can increase tuberculosis testing and treatment uptake. Training junior social workers can enable task-shifting in under-resourced settings, while addressing important service gaps in tuberculosis care.


Assuntos
Aconselhamento , Letramento em Saúde , Tuberculose/diagnóstico , Adulto , Antituberculosos/uso terapêutico , Estudos de Viabilidade , Feminino , Pessoal de Saúde/psicologia , Humanos , Masculino , Pessoa de Meia-Idade , Pacientes/psicologia , Projetos Piloto , África do Sul , Resultado do Tratamento , Tuberculose/tratamento farmacológico
5.
PLoS One ; 16(5): e0251410, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-33974651

RESUMO

The objective of this study was to explore the impact of the coronavirus disease 2019 epidemic on ongoing and upcoming drug clinical trials. Qualitative semi-structured interviews were conducted with clinical trial staff and clinical trial subjects were surveyed by questionnaire in this study. The results of interviews and questionnaire showed that coronavirus disease 2019 pandemic has led to many changes in the implementation of drug clinical trials, including: a variety of meetings being held online webinars using various platforms, telemedicine and follow-up by video, A large number of deviations from protocol and losses of follow-up, delivery of clinical trial drugs by express, additional workload caused by screening for coronavirus, and anxiety of subjects. These results suggest that the coronavirus disease 2019 outbreak has hindered the progress and damaged the quality of clinical trials. The online meeting, remote follow-up, express delivery of drugs and remote monitoring in the epidemic environment can ensure the progress of clinical trials to a certain extent, but they cannot fully guarantee the quality as before.


Assuntos
COVID-19/patologia , Ensaios Clínicos como Assunto , Adulto , Antivirais/uso terapêutico , Ansiedade/etiologia , COVID-19/tratamento farmacológico , COVID-19/epidemiologia , COVID-19/virologia , Humanos , Entrevistas como Assunto , Pessoa de Meia-Idade , Pandemias , Pacientes/psicologia , Pesquisadores/psicologia , SARS-CoV-2/isolamento & purificação , Inquéritos e Questionários , Telemedicina , Adulto Jovem
6.
J Nurs Adm ; 51(6): 324-328, 2021 Jun 01.
Artigo em Inglês | MEDLINE | ID: mdl-33989240

RESUMO

OBJECTIVE: The purpose of this qualitative research study was to ascertain which nurse behaviors a subsection of adults 50 years and older who had had a recent inpatient admission believed conveyed nurse listening. BACKGROUND: Listening by nurses has been identified as one of the factors with the greatest impact on patients' overall rating of their hospital experience. The behaviors of nurses that lead to patients' perceptions that listening has occurred have been unexamined, thus hampering attempts at improvement. METHODS: Because of lack of literature support, a qualitative study using interpretative phenomenological analysis was undertaken to elicit a rich description of patients' lived experiences related to nurse listening behaviors. RESULTS: Study participants provided specific behaviors, both verbal and nonverbal, which led them to believe the nurse was either listening or not. These perceptions affected their sense of safety and ability to trust. CONCLUSIONS: Embracing these described behaviors could significantly impact patients' safety and recovery.


Assuntos
Relações Enfermeiro-Paciente , Pacientes/psicologia , Percepção , Idoso , Idoso de 80 Anos ou mais , Feminino , Humanos , Entrevistas como Assunto/métodos , Masculino , Pessoa de Meia-Idade , Segurança do Paciente/normas , Pesquisa Qualitativa , Inquéritos e Questionários , Confiança/psicologia
11.
Artigo em Espanhol | PAHO-IRIS | ID: phr-53946

RESUMO

La mayoría de los pacientes confían en los profesionales de la salud, pero muchos también recurren a fuentes fuera del consultorio para obtener información médica. Si bien muchos recursos proporcionan información correcta (por ejemplo, organismos gubernamentales de salud, organizaciones profesionales y grupos de defensa del paciente), no toda la información que los pacientes encuentran lo es. Los pacientes pueden encontrar información médica errónea procedente de una variedad de fuentes en línea, lo que pueden tener consecuencias importantes para la salud. [...]


Assuntos
Informação , Gestão da Informação , Comunicação , Internet , Pessoal de Saúde , Atitude do Pessoal de Saúde , Pacientes , Assistência ao Paciente
12.
BMJ Open ; 11(5): e043224, 2021 05 28.
Artigo em Inglês | MEDLINE | ID: mdl-34049902

RESUMO

OBJECTIVE: Informal family caregivers play a crucial role in cancer care. Effective caregiver involvement in cancer care can improve both patient and caregiver outcomes. Despite this, interventions improving the caregiver involvement are sparse. This protocol describes a randomised controlled trial evaluating the combined effectiveness of novel online caregiver communication education modules for: (1) oncology clinicians (eTRIO) and (2) patients with cancer and caregivers (eTRIO-pc). METHODS AND ANALYSIS: Thirty medical/radiation/surgical oncology or haematology doctors and nurses will be randomly allocated to either intervention (eTRIO) or control (an Australian State Government Health website on caregivers) education conditions. Following completion of education, each clinician will recruit nine patient-caregiver pairs, who will be allocated to the same condition as their recruiting clinician. Eligibility includes any new adult patient diagnosed with any type/stage cancer attending consultations with a caregiver. Approximately 270 patient-caregiver pairs will be recruited. The primary outcome is caregiver self-efficacy in triadic (clinician-patient-caregiver) communication. Patient and clinician self-efficacy in triadic communication are secondary outcomes. Additional secondary outcomes for clinicians include preferences for caregiver involvement, perceived module usability/acceptability, analysis of module use, satisfaction with the module, knowledge of strategies and feedback interviews. Secondary outcomes for caregivers and patients include preferences for caregiver involvement, satisfaction with clinician communication, distress, quality of life, healthcare expenditure, perceived module usability/acceptability and analysis of module use. A subset of patients and caregivers will complete feedback interviews. Secondary outcomes for caregivers include preparedness for caregiving, patient-caregiver communication and caring experience. Assessments will be conducted at baseline, and 1 week, 12 weeks and 26 weeks post-intervention. ETHICS AND DISSEMINATION: Ethical approval has been received by the Sydney Local Health District Human Research Ethics Committee (REGIS project ID number: 2019/PID09787), with site-specific approval from each recruitment site. Protocol V.7 (dated 1 September 2020) is currently approved and reported in this manuscript. Findings will be disseminated via presentations and peer-reviewed publications. Engagement with clinicians, media, government, consumers and peak cancer groups will facilitate widespread dissemination and long-term availability of the educational modules. TRIAL REGISTRATION NUMBER: ACTRN12619001507178.


Assuntos
Cuidadores , Educação à Distância , Adulto , Austrália , Humanos , Pacientes , Qualidade de Vida , Ensaios Clínicos Controlados Aleatórios como Assunto
13.
Am Soc Clin Oncol Educ Book ; 41: 413-422, 2021 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-34010046

RESUMO

Effective delivery of cancer care via telehealth requires a planned care system that accounts for myriad patient, provider, and practice/cancer center resources before, during, and after the care episode. Telehealth is broadly defined as a method to have virtual, bidirectional communication between patients and providers. Telehealth can include methods such as audio-only, video-consultation, and tele-monitoring, which can occur in a synchronous, asynchronous, or blended format. The purpose of this review is to present common foundational principles for providing clinical cancer care via telehealth, followed by an overview of three distinct examples of comprehensive telehealth programs that have been developed to meet the needs of patients and families across the cancer trajectory, including survivorship, rehabilitation, and palliative care phases. The programs described are exemplars that were developed and implemented prior to the coronavirus pandemic, so they reflect many years of planning and evidence. Lessons learned include the need for ongoing patient support, clinician training, and cancer health system/practice programmatic considerations such as billing, scheduling, reimbursement, software, and hardware/platform security. Although the COVID-19 pandemic produced an explosive shift in regulations and implementation, sustainability of these changes may not be long-term. Nevertheless, a permanent shift in cancer care to include telehealth is likely here to stay.


Assuntos
Família/psicologia , Neoplasias/epidemiologia , Pacientes/estatística & dados numéricos , Telemedicina/métodos , Humanos
14.
JAMA Netw Open ; 4(5): e2110314, 2021 05 03.
Artigo em Inglês | MEDLINE | ID: mdl-33999162

RESUMO

Importance: After the emergence of COVID-19, studies reported a decrease in hospitalizations of patients with ischemic stroke (IS), but there are little to no data regarding hospitalizations for the remainder of 2020, including outcome data from a large cohort of patients with IS and comorbid COVID-19. Objective: To assess hospital discharge rates, demographic factors, and outcomes of hospitalization associated with the COVID-19 pandemic among US patients with IS before vs during the COVID-19 pandemic. Design, Setting, and Participants: This retrospective cohort study used data from the Vizient Clinical Data Base on 324 013 patients with IS at 478 nonfederal hospitals in 43 US states between January 1, 2019, and December 31, 2020. Patients were eligible if they were admitted to the hospital on a nonelective basis and were not receiving hospice care at the time of admission. A total of 41 166 discharged between January and March 2020 were excluded from the analysis because they had unreliable data on COVID-19 status, leaving 282 847 patients for the study. Exposure: Ischemic stroke and laboratory-confirmed COVID-19. Main Outcomes and Measures: Monthly counts of discharges among patients with IS in 2020. Demographic characteristics and outcomes, including in-hospital death, among patients with IS who were discharged in 2019 (control group) were compared with those of patients with IS with or without comorbid COVID-19 (COVID-19 and non-COVID-19 groups, respectively) who were discharged between April and December 2020. Results: Of the 282 847 patients included in the study, 165 912 (50.7% male; 63.4% White; 26.3% aged ≥80 years) were allocated to the control group; 111 418 of 116 935 patients (95.3%; 51.9% male; 62.8% White; 24.6% aged ≥80 years) were allocated to the non-COVID-19 group and 5517 of 116 935 patients (4.7%; 58.0% male; 42.5% White; 21.3% aged ≥80 years) to the COVID-19 group. A mean (SD) of 13 846 (553) discharges per month among patients with IS was reported in 2019. Discharges began decreasing in February 2020, reaching a low of 10 846 patients in April 2020 before returning to a prepandemic level of 13 639 patients by July 2020. A mean (SD) of 13 492 (554) discharges per month was recorded for the remainder of 2020. Black and Hispanic patients accounted for 21.4% and 7.0% of IS discharges in 2019, respectively, but accounted for 27.5% and 16.0% of those discharged with IS and comorbid COVID-19 in 2020. Compared with patients in the control and non-COVID-19 groups, those in the COVID-19 group were less likely to smoke (16.0% vs 17.2% vs 6.4%, respectively) and to have hypertension (73.0% vs 73.1% vs 68.2%) or dyslipidemia (61.2% vs 63.2% vs 56.6%) but were more likely to have diabetes (39.8% vs 40.5% vs 53.0%), obesity (16.2% vs 18.4% vs 24.5%), acute coronary syndrome (8.0% vs 9.2% vs 15.8%), or pulmonary embolus (1.9% vs 2.4% vs 6.8%) and to require intubation (11.3% vs 12.3% vs 37.6%). After adjusting for baseline factors, patients with IS and COVID-19 were more likely to die in the hospital than were patients with IS in 2019 (adjusted odds ratio, 5.17; 95% CI, 4.83-5.53; National Institutes of Health Stroke Scale adjusted odds ratio, 3.57; 95% CI, 3.15-4.05). Conclusions and Relevance: In this cohort study, after the emergence of COVID-19, hospital discharges of patients with IS decreased in the US but returned to prepandemic levels by July 2020. Among patients with IS between April and December 2020, comorbid COVID-19 was relatively common, particularly among Black and Hispanic populations, and morbidity was high.


Assuntos
COVID-19/complicações , Hospitalização/estatística & dados numéricos , AVC Isquêmico/complicações , Avaliação de Resultados em Cuidados de Saúde/normas , Pacientes/classificação , Adolescente , Adulto , Fatores Etários , Idoso , Idoso de 80 Anos ou mais , COVID-19/epidemiologia , Estudos de Coortes , Grupos de Populações Continentais/etnologia , Grupos de Populações Continentais/estatística & dados numéricos , Feminino , Mortalidade Hospitalar/tendências , Hospitalização/tendências , Humanos , AVC Isquêmico/epidemiologia , Masculino , Pessoa de Meia-Idade , Avaliação de Resultados em Cuidados de Saúde/métodos , Avaliação de Resultados em Cuidados de Saúde/estatística & dados numéricos , Pandemias/prevenção & controle , Pandemias/estatística & dados numéricos , Pacientes/estatística & dados numéricos , Estudos Retrospectivos , Fatores de Risco , Estados Unidos/epidemiologia
15.
Alerta (San Salvador) ; 4(2): 28-37, may. 26, 2021. ilus
Artigo em Espanhol | LILACS, BISSAL | ID: biblio-1224721

RESUMO

La infección respiratoria por coronavirus ha generado gran cantidad de muertes desde su inicio en China en diciembre 2019. Debido a que es una enfermedad desconocida, son necesarios estudios para mejorar el abordaje, especialmente a personas en riesgo. Las personas menores de 60 años sin comorbilidades tienen menor riesgo de muerte comparadas con las que tienen comorbilidades como diabetes, hipertensión y cáncer que presentaron un riesgo 3 veces mayor de muerte intrahospitalaria por COVID-19 y menor supervivencia a 15 días


The respiratory coronavirus infection has caused a large number of deaths since its onset in China in December 2019. Because it is an unknown disease, studies are needed to improve the approach, especially to people at risk. People under 60 years of age without comorbidities have a lower risk of death compared to those with comorbidities such as diabetes, hypertension and cancer, who had a 3 times higher risk of in-hospital death from COVID-19 and lower 15-day survival


Assuntos
Humanos , Pacientes , Comorbidade , Morbidade , Infecções por Coronavirus
16.
Online braz. j. nurs. (Online) ; 20: e20216500, 05 maio 2021. ilus
Artigo em Inglês, Espanhol, Português | LILACS, BDENF - Enfermagem | ID: biblio-1248393

RESUMO

OBJETIVO: Mapear as práticas de segurança do paciente realizadas em pacientes oncológicos paliativos em uso de morfina para o controle da dor. MÉTODO: Revisão de escopo para responder à pergunta: Quais as evidências sobre as práticas de segurança do paciente realizadas em pacientes oncológicos paliativos que fazem uso de morfina para o controle da dor? A busca será realizada nas bases de dados MEDLINE, LILACS, Scopus, Embase, Web of Science, Cochrane e CINAHL e literatura cinzenta. Após a busca, todos as citações serão agrupadas no software Rayyan e as duplicatas removidas. Os títulos e resumos serão selecionados por dois revisores independentes. O texto completo das citações selecionadas será avaliado em detalhes em relação aos critérios de inclusão por dois revisores independentes. Os dados extraídos serão apresentados em um diagrama ou forma tabular de maneira que se alinhe com o objetivo desta revisão de escopo, e um resumo narrativo será fornecido


OBJECTIVE: To map the patient safety practices performed in palliative cancer patients using morphine for pain control. METHOD: A scoping review to answer the following question: What is the evidence on the patient safety practices performed in palliative cancer patients using morphine for pain control? The search will be carried out in the MEDLINE, LILACS, Scopus, Embase, Web of Science, Cochrane and CINAHL databases, as well as in the gray literature. After the search, all citations will be grouped in the Rayyan software and the duplicates will be removed. Titles and abstracts will be selected by two independent reviewers. The full text of the selected citations will be evaluated in detail in relation to the inclusion criteria by two independent reviewers. The extracted data will be presented in diagram or table formats so that it aligns with the objective of this scoping review, and a narrative abstract will be provided.


OBJETIVO: Mapear las prácticas de seguridad del paciente realizadas en pacientes con cáncer paliativo que utilizan morfina para el control del dolor. MÉTODO: Revisión de alcance para responder a la pregunta: ¿Cuál es la evidencia sobre las prácticas de seguridad del paciente que se implementan en pacientes con cáncer paliativo que utilizan morfina para el control del dolor? La búsqueda se realizará en las bases de datos MEDLINE, LILACS, Scopus, Embase, Web of Science, Cochrane y CINAHL y literatura gris. Después de la búsqueda, todas las citas se agruparán en el software Rayyan y se eliminarán los duplicados. Los títulos y resúmenes serán seleccionados por dos revisores independientes. El texto completo de las citas seleccionadas será evaluado en detalle según los criterios de inclusión por dos revisores independientes. Los datos extraídos se presentarán en un diagrama o en forma de tabla para que se alineen con el objetivo de esta revisión de alcance, y se proporcionará un resumen narrativo.


Assuntos
Humanos , Pacientes , Manejo da Dor , Segurança do Paciente , Dor do Câncer , Oncologia , Morfina , Cuidados Paliativos , Efeitos Colaterais e Reações Adversas Relacionados a Medicamentos
18.
Value Health Reg Issues ; 24: 240-246, 2021 May.
Artigo em Inglês | MEDLINE | ID: mdl-33895642

RESUMO

OBJECTIVES: Vaccines are recognized as the most effective strategy for long-term prevention of coronavirus disease 2019 (COVID-19) because they can reduce morbidity and mortality. The purpose of the present study was to evaluate willingness to pay (WTP) for a future COVID-19 vaccination among young adults in Southern Vietnam. METHODS: A cross-sectional, descriptive, and analytic study was undertaken with data collected from a community-based survey in southern Vietnam for 2 weeks in May 2020. The contingent valuation method was used to estimate WTP for COVID-19 vaccine. The average amount that respondents were willing to pay for the vaccine was US$ 85.9 2 ± 69.01. RESULTS: We also found the differences in WTP according to sex, living area, monthly income, and the level of self-rated risk of COVID-19. CONCLUSION: Our findings possibly contribute to the implementation of a pricing policy when the COVID-19 vaccine is introduced in Vietnam.


Assuntos
Vacinas contra COVID-19/economia , Gastos em Saúde/normas , Imunização/economia , Pacientes/psicologia , Adolescente , Adulto , Vacinas contra COVID-19/uso terapêutico , Estudos Transversais , Feminino , Custos de Cuidados de Saúde/normas , Custos de Cuidados de Saúde/estatística & dados numéricos , Gastos em Saúde/estatística & dados numéricos , Humanos , Imunização/métodos , Masculino , Pessoa de Meia-Idade , Pacientes/estatística & dados numéricos , Vietnã
19.
Health Qual Life Outcomes ; 19(1): 126, 2021 Apr 20.
Artigo em Inglês | MEDLINE | ID: mdl-33879176

RESUMO

OBJECTIVES: For patients with rheumatoid arthritis (RA) in China, little is known of how their illness perceptions affect their health-related quality of life (HRQoL). The present study investigated associations between specific illness perceptions due to RA and HRQoL features. METHODS: For 191 patients with RA, illness perceptions were measured using the Brief Illness Perceptions Questionnaire (BIPQ) comprising 8 domains. HRQoL was determined with the Medical Outcomes Study 36-Item Short-Form Health Survey (SF-36). Multivariate linear regression analyses were performed. RESULTS: The overall BIPQ of patients with RA was 49.09 ± 11.06. The highest and lowest scores were for concern (9.15 ± 1.81) and personal control (4.30 ± 2.52), respectively. Multivariate stepwise regression analyses showed that the overall BIPQ was significantly negatively associated with each HRQoL feature, and HRQoL total score (ß = - 0.343, P < 0.001, 95% CI - 7.080 to - 4.077). Positive associations between BIPQ features and HRQoL included personal control (ß = 0.119, P = 0.004, 95% CI 2.857-14.194) and treatment control (ß = 0.084, P = 0.029, 95% CI 0.640-12.391). Negative associations with HRQoL were identity (ß = - 0.105, P = 0.034, 95% CI - 13.159 to - 0.430) and emotional response (ß = - 0.207, P < 0.001, 95% CI - 18.334 to - 6.811). CONCLUSIONS: Patients with RA in China perceive their illness in ways that affect their HRQoL. These results suggest that strategies that target these perceptions may improve the quality of life of these patients.


Assuntos
Artrite Reumatoide/fisiopatologia , Artrite Reumatoide/psicologia , Doença Crônica/psicologia , Pacientes/psicologia , Pacientes/estatística & dados numéricos , Qualidade de Vida/psicologia , Resiliência Psicológica , Adulto , Idoso , Idoso de 80 Anos ou mais , China , Estudos Transversais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Análise de Regressão , Inquéritos e Questionários
20.
Sci Rep ; 11(1): 9037, 2021 04 27.
Artigo em Inglês | MEDLINE | ID: mdl-33907269

RESUMO

Situations like the COVID-19 pandemic urgently require the implementation of eHealth for vulnerable patient populations. Here we quantitatively evaluate use and potential of modern information and communication technology (ICT) in solid organ transplant (SOT) recipients. We conducted a structured, questionnaire-based, cross-sectional study that was addressed to patients after kidney, liver, pancreas, or combined transplantation. We focused on: sociodemographic data, present use of digital technologies in daily life and for health reasons, patients' eHealth literacy, and their overall attitude towards eHealth. A total of 234 patients completed the questionnaire. Most of the patients (90%) have a web-enabled computer, 78.2% have a smartphone, and 71.8% regularly search the internet for health-related information. Sixty-eight percent would like to receive discharge summaries online, and 54% would like to chat online with their physicians. Even though ICT use in daily life was age-related, no significant difference could be shown for health reasons or the type of transplanted organ. Modern ICT use is predominantly accepted for health reasons by SOT recipients. Regardless of the transplanted organ, a deeper integration of eHealth has potential for improving cross-sectoral care. To successfully implement eHealth technologies in cross-sectoral care future research should include online physician-patient communication, data security, data safety, and the aspects of quality and safety of care.


Assuntos
Atitude , Comunicação , Transplante de Órgãos , Telemedicina , Adulto , Feminino , Humanos , Competência em Informação , Internet , Pessoa de Meia-Idade , Pacientes/psicologia , Relações Médico-Paciente , Inquéritos e Questionários , Adulto Jovem
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