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1.
Braz Oral Res ; 33: e018, 2019 Aug 15.
Artigo em Inglês | MEDLINE | ID: mdl-31432923

RESUMO

The aim of the present study was to evaluate the association between access to oral health care in the Primary Health Care (PHC) and Oral Health-Related Quality of Life (OHRQoL). The present study was a cross-sectional study, and the sample was composed of 412 users living in the areas covered by the public PHC services who visited a health unit for an oral exam or treatment in the last 24 months. Participants in the study responded to a home-based interview with questions that addressed socioeconomic status, behavioral, general health, dental prostheses, access to dental services in the PHC and their OHRQoL as measured by the Oral Health Impact Profile (OHIP-14) instrument. After the interview, a dental examination was performed to count the number of teeth. Chi-square tests, Student's t tests and multivariate analyses were performed using a hierarchical model and a Poisson regression with robust variance to evaluate the association between independent variables and OHRQoL. Access to oral health services in the PHC was statistically associated with OHRQoL, and the estimated prevalence rate was PR = 1.17 (CI 95% 1.00-1.37). In this study, the definition of access was based on the availability of dental consultations on demand. The study identified that lack of access to oral health services offered by the PHC was associated with a higher prevalence of impact on the quality of life of individuals.


Assuntos
Serviços de Saúde Bucal/estatística & dados numéricos , Acesso aos Serviços de Saúde/estatística & dados numéricos , Saúde Bucal/estatística & dados numéricos , Atenção Primária à Saúde/estatística & dados numéricos , Qualidade de Vida , Adulto , Idoso , Brasil/epidemiologia , Estudos Transversais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Prevalência , Distribuição por Sexo , Perfil de Impacto da Doença , Fatores Socioeconômicos , Inquéritos e Questionários
2.
Turk J Ophthalmol ; 49(3): 142-148, 2019 06 27.
Artigo em Inglês | MEDLINE | ID: mdl-31245976

RESUMO

Objectives: The aim of this study was to evaluate the prevalence of dry eye symptoms among lecturers. Materials and Methods: The study included 254 lecturers employed at Mersin University. The lecturers were selected by simple random sampling from lists obtained from the personnel department. Data were obtained between November 15 and December 15, 2017 using a questionnaire developed by the researchers and the Ocular Surface Disease Index (OSDI). The data were evaluated using descriptive statistics, Student's t-test, ANOVA, and correlation tests with the SPSS package program. Results: Of the lecturers who participated in the study, 52.8% were male and 47.2% were female, and the mean age was 39.29±9.41 years. According to OSDI scores, 20.5% of the participants had mild, 15% had moderate, and 36.5% had severe disease. There were significant differences in mean OSDI score based on sex (p<0.001), alcohol use (p=0.01), continuous drug use (p=0.03), wearing glasses (p=0.04), history of dry eye (p<0.001), and presence of dry eye symptoms (p<0.001). There were also significant differences between the OSDI score categories in terms of sex (p<0.001), smoking status (p=0.04), wearing glasses (p=0.03), history of dry eye (p<0.001), and presence of dry eye symptoms. The only factor significantly correlated with OSDI score was daily duration of computer usage (p=0.009). Conclusion: Our study showed that a substantial proportion of lecturers experience dry eye symptoms, and OSDI scores were associated with daily duration of computer use. Determining the factors associated with dry eye is important for the planning of preventive interventions.


Assuntos
Síndromes do Olho Seco/epidemiologia , Doenças Profissionais/epidemiologia , Exposição Ocupacional/efeitos adversos , Qualidade de Vida , Ensino , Lágrimas/metabolismo , Adulto , Idoso , Estudos Transversais , Síndromes do Olho Seco/diagnóstico , Feminino , Humanos , Incidência , Masculino , Pessoa de Meia-Idade , Doenças Profissionais/diagnóstico , Prevalência , Estudos Retrospectivos , Perfil de Impacto da Doença , Inquéritos e Questionários , Turquia/epidemiologia , Adulto Jovem
3.
An. psicol ; 35(2): 181-187, mayo 2019. graf
Artigo em Inglês | IBECS | ID: ibc-181687

RESUMO

In breast cancer patients, quality of life has been associated with treatment response and overall survival. One hundred women undergoing chemotherapy treatment for breast cancer completed questionnaires including demographic and clinical information, the EORTC-Quality of Life Questionnaire, Hospital Anxiety and Depression Scales, Body Image Scale, Index of Family Relations and the Life Orientation Test. The results showed that higher optimism and better body image were associated with improved quality of life. Distress significantly predicted physical and emotional quality of life, but recurrence only predicted physical quality of life. Family stress was a moderator in the relationship between psychological distress and emotional quality of life, showing the need to screen and intervene on family stress in patients with breast cancer. The results may help in designing interventions for women with breast cancer in order to promote quality of life


En pacientes con cáncer de mama, la calidad de vida se ha asociado con la respuesta al tratamiento y la supervivencia global. Cien mujeres sometidas a tratamiento de quimioterapia para el cáncer de mama completaron cuestionarios incluyendo información demográfica y clínica, Cuestionario de Calidad de Vida EORTC, Escalas de Ansiedad y Depresión Hospitalaria, Escala de Imagen Corporal, Índice de Relaciones Familiares y el Test de Orientación Vital. Los resultados mostraron que un mayor optimismo y una mejor imagen corporal se asociaron con una mejor calidad de vida. La morbilidad psicológica predijo significativamente la calidad de vida física y emocional, pero la recurrencia sólo predijo la calidad de vida física. El estrés familiar fue un moderador en la relación entre la morbilidad psicológica y la calidad de vida emocional, mostrando la necesidad de detectar e intervenir en el estrés familiar en pacientes con cáncer de mama. Los resultados pueden ayudar en el diseño de intervenciones para las mujeres con cáncer de mama con el fin de promover la calidad de vida


Assuntos
Humanos , Feminino , Adulto , Pessoa de Meia-Idade , Neoplasias da Mama/psicologia , Qualidade de Vida/psicologia , Família/psicologia , Estresse Psicológico/psicologia , Autoimagem , Perfil de Impacto da Doença , Apoio Social , Relações Familiares/psicologia , Imagem Corporal/psicologia , Estudos Transversais
4.
Am J Occup Ther ; 73(3): 7303205070p1-7303205070p11, 2019 May/Jun.
Artigo em Inglês | MEDLINE | ID: mdl-31120837

RESUMO

OBJECTIVE: This study's objective was to test the psychometrics of Smith's (2013) Low Vision Independence Measure (LVIM) using the Rasch model. METHOD: A cohort design was used with 93 participants receiving occupational therapy for low vision. Confirmatory factor analysis (CFA) with a parceling approach was used to test the LVIM factors and Rasch analysis to examine item-level psychometrics. RESULTS: Participants' average age was 78.9 yr (standard deviation = 12.1), and the majority were female (72.8%) with macular degeneration (62.3%). The CFA revealed two measurement factors: visual field or scotoma (n = 28) and visual acuity (n = 24). We removed six misfitting items, and the two factors of the revised LVIM demonstrated good rating scale function, good internal consistency (person reliability: visual field, .87; visual acuity, .90), good precision (person strata: visual field, 3.91; visual acuity, 4.40), no ceiling or floor effects, and no differential item functioning. CONCLUSION: The revised LVIM demonstrates good psychometrics on the Rasch model and can be used as a valid outcome measure in low vision rehabilitation.


Assuntos
Inquéritos e Questionários/normas , Baixa Visão , Pessoas com Deficiência Visual/psicologia , Idoso , Idoso de 80 Anos ou mais , Feminino , Humanos , Pessoa de Meia-Idade , Psicometria , Qualidade de Vida , Reprodutibilidade dos Testes , Perfil de Impacto da Doença , Baixa Visão/fisiopatologia , Acuidade Visual/fisiologia
5.
Rev. pesqui. cuid. fundam. (Online) ; 11(3): 567-575, abr.-maio 2019.
Artigo em Inglês, Português | LILACS, BDENF - Enfermagem | ID: biblio-987511

RESUMO

Objetivo: Analisar as repercussões causadas pela incontinência urinária na qualidade de vida dos idosos. Métodos: Pesquisa descritiva e exploratória, com abordagem qualitativa, composta por 12 idosos. A coleta de dados foi realizada por meio de entrevistas, em um ambulatório de urologia e ginecologia de um hospital público/escola de referência em Teresina. Os dados foram interpretados pela análise temática de conteúdo. Resultados: Os depoimentos originaram duas categorias: sentimentos negativos dos idosos com incontinência urinária e aspectos sociais que interferem na qualidade de vida dos idosos com incontinência urinária. Conclusão: A incontinência urinária nos idosos é uma patologia pouco discutida nas consultas, a baixa escolaridade dos idosos influencia na demora em procurar o tratamento para a doença e esclarecimento da mesma. Há a necessidade de um olhar diferenciado por parte dos profissionais de saúde para os idosos acometidos com esta patologia


Objective: The study's aim has been to analyze the urinary incontinence repercussions towards the elderly's life quality. Methods: It is a descriptive-exploratory study with a qualitative approach, which was comprised by 12 participants from both genders. The research scenario was a urology and gynecology ambulatory from a large public hospital/school that performs procedures of high complexity and etiology in Teresina city, Piauí State. Data analysis occurred through the thematic content analysis. Results: The statements gave rise to two categories, as follows: the elderly's negative feelings related to urinary incontinence; and, the social aspects that impact in the quality of life of elderly people bearing urinary incontinence. Conclusion: The urinary incontinence in elderly people is a poorly discussed pathology during consultations. Furthermore, the elderly's low level of education ends up influencing them in realizing the necessity of looking for understanding and treatment about the disease. Conclusively, health professionals must have a different perspective with regards to the elderly people bearing this pathology


Objetivo: Analizar las repercusiones causadas por la incontinencia urinaria en la calidad de vida de los ancianos. Métodos: Investigación descriptiva y exploratoria, con abordaje cualitativo, compuesta por 12 ancianos. La recolección de datos fue realizada por medio de entrevistas, en un ambulatorio de urología y ginecología de un hospital público / escuela de referencia en Teresina. Los datos fueron interpretados por el análisis temático de contenido. Resultados: Los testimonios originaron dos categorías: sentimientos negativos de los ancianos con incontinencia urinaria y aspectos sociales que interfieren en la calidad de vida de los ancianos con incontinencia urinaria. Conclusión: La incontinencia urinaria en los ancianos es una patología poco discutida en las consultas, la baja escolaridad de los ancianos influye en la demora en buscar el tratamiento para la enfermedad y aclaración de la misma. Hay necesidad de una mirada diferenciada por parte de los profesionales de la salud para los ancianos afectados con esta patología


Assuntos
Humanos , Masculino , Feminino , Idoso de 80 Anos ou mais , Incontinência Urinária/complicações , Incontinência Urinária/enfermagem , Incontinência Urinária/terapia , Qualidade de Vida , Incontinência Urinária/prevenção & controle , Perfil de Impacto da Doença
6.
Ideggyogy Sz ; 72(3-4): 115-122, 2019 Mar 30.
Artigo em Húngaro | MEDLINE | ID: mdl-30957466

RESUMO

Background and purpose: The purpose of our communication was to determine the total cost of cerebral paretic patients in Hungary between 0 and 18 years and to assess their impact on the national budget. Methods: Based on the data of Borsod county we calculated the CP characteristics. The cost of CP was determined by routine care of individuals. Lost Parental Income and Tax were calculated on the basis of average earnings. The ratio of GDP, Health and Social Budget and Health Budget to CP is based on CP annual average cost and frequency. We have developed a repeatable computational model. Results: Of the risk groups, premature birth (30.97%), low birth weight (29.64%), perinatal asphyxia (19.47%) were the most common. Source is unknown of 37.61% of the cases. CP prevalence was 2.1‰. The two-sided (59.7%) and the one-sided (19.0%) spastic pareses dominated. The most serious form is the two-sided spastic paresis (42.5% GMFCS 3-5 degrees). Epilepsy was 22.0%, incontinence was 27%, mental involvement was 46%. Care for one child up to 18 years of age costs an average of 73 million HUF (€ 251,724). The lost family income was 27.36 million HUF (€ 94,345), and lost tax and health care contributions were 14.46 million HUF (€ 49,862). Additionally, 0.525% of the GDP, 0.88% of the full health and social budget and 1.83% of direct medical costs were spent for CP families. Conclusion: The cost of CP disease is significant. Costs can be reduced by improving primary prevention. From the perspective of the family and government, it is better to care for families so they can take care of their disabled children.


Assuntos
Paralisia Cerebral/economia , Paralisia Cerebral/epidemiologia , Efeitos Psicossociais da Doença , Custos de Cuidados de Saúde/estatística & dados numéricos , Adolescente , Paralisia Cerebral/psicologia , Paralisia Cerebral/terapia , Criança , Pré-Escolar , Epilepsia/epidemiologia , Humanos , Hungria/epidemiologia , Lactente , Recém-Nascido , Prevalência , Qualidade de Vida , Convulsões/economia , Perfil de Impacto da Doença
7.
J Refract Surg ; 35(4): 214-221, 2019 Apr 01.
Artigo em Inglês | MEDLINE | ID: mdl-30984978

RESUMO

PURPOSE: To evaluate the standard clinical outcomes, defocus curves, and satisfaction obtained with a new diffractive low addition trifocal intraocular lens (IOL). METHODS: Thirty patients who were implanted with the Versario Multifocal 3F IOL (Valeant Med Sp.zo.o., Warsaw, Poland) were recruited for a prospective observational study at Qvision, Vithas Virgen del Mar Hospital, Almería, Spain. Variables for reporting standard outcomes were collected at the 1-month visit for monocular vision and the 3-month visit for binocular vision, including best spectacle refraction and corrected and uncorrected visual acuities at far, intermediate (67 cm), and near (40 cm) distances. In addition, monocular and binocular visual acuity defocus curves were measured and questionnaires for grading subjective visual quality, satisfaction, and visual function were supplied at the end of the follow-up. RESULTS: Monocular corrected distance visual acuity decreased progressively from far (-0.05 logMAR) to near (0.25 logMAR) and improved approximately -0.1 logMAR along the defocus curve in binocular vision. The mean residual spherical equivalent (SE) was 0.15 ± 0.47 diopters (D), with 79% of eyes within ±0.50 D and 97% within ±1.00 D with the SRK/T formula. All of the visual function tasks improved after surgery, especially driving at night, which increased from 58 to 79 (P < .05). Of 27 patients, 84.4% were satisfied or very satisfied with their general vision. CONCLUSIONS: This new lens was similar in terms of visual performance and satisfaction to other trifocal IOLs. It can be classified as a trifocal extended depth of focus IOL because of the performance between extended depth of focus IOLs and medium-high addition trifocal IOLs. [J Refract Surg. 2019;35(4):214-221.].


Assuntos
Implante de Lente Intraocular , Lentes Intraoculares Multifocais , Facoemulsificação , Pseudofacia/fisiopatologia , Visão Binocular/fisiologia , Acuidade Visual/fisiologia , Idoso , Feminino , Seguimentos , Humanos , Masculino , Pessoa de Meia-Idade , Satisfação do Paciente , Estudos Prospectivos , Perfil de Impacto da Doença , Inquéritos e Questionários , Resultado do Tratamento
8.
Indian J Ophthalmol ; 67(5): 669-676, 2019 05.
Artigo em Inglês | MEDLINE | ID: mdl-31007237

RESUMO

Purpose: Coping strategies employed by people with visual disability can influence their quality of life (QoL). We aimed to assess coping in patients with low vision or blindness. Methods: In this descriptive cross sectional study, 60 patients (25-65 years) with <6/18 best-corrected vision (BCVA) in the better eye and vision loss since ≥6 months were recruited after the institutional ethics clearance and written informed consent. Age, gender, presence of other chronic illness, BCVA, coping strategies (Proactive Coping Inventory, Hindi version), and vision-related quality of life (VRQoL; Hindi version of IND-VFQ33) were recorded. Range, mean (standard deviation) for continuous and proportion for categorical variables. Pearson correlation looked at how coping varied with age and with VRQoL. The analysis of variance (ANOVA) and t-test compared coping scores across categorical variables. Statistical significance was taken at P < 0.05. Results: Sixty patients fulfilled inclusion criteria. There were 33 (55%) women; 25 (41.7%) had low vision, 5 (8.3%) had economic blindness, and 30 (50.0%) had social blindness; 27 (45.0%) had a co-morbid chronic illness. Total coping score was 142 ± 26.43 (maximum 217). VRQoL score (maximum 100) was 41.9 ± 15.98 for general functioning; 32.1 ± 12.15 for psychosocial impact, and 41.1 ± 17.30 for visual symptoms. Proactive coping, reflective coping, strategic planning, and preventive coping scores correlated positively with VRQoL in general functioning and psychosocial impact. Conclusion: Positive coping strategies are associated with a better QoL. Ophthalmologists who evaluate visual disability should consider coping mechanisms that their patients employ and should refer them for counseling and training in more positive ways of coping.


Assuntos
Adaptação Psicológica , Qualidade de Vida/psicologia , Baixa Visão/reabilitação , Acuidade Visual/fisiologia , Pessoas com Deficiência Visual/reabilitação , Adulto , Idoso , Estudos Transversais , Feminino , Seguimentos , Humanos , Masculino , Pessoa de Meia-Idade , Estudos Retrospectivos , Perfil de Impacto da Doença , Inquéritos e Questionários , Baixa Visão/psicologia
9.
Clín. salud ; 30(1): 13-20, mar. 2019. graf, tab
Artigo em Espanhol | IBECS | ID: ibc-180394

RESUMO

La innovación en los servicios sanitarios afronta retos en cuanto a la generación de alternativas eficaces para las crecientes necesidades de la población, así como el desarrollo de metodologías para su evaluación. El propósito de éste estudio fue determinar el retorno social de la inversión (SROI) de un tratamiento psicológico basado en la evidencia. Se llevó a cabo el análisis de un programa de intervención psicológica con un diseño que incluía medidas pre/postratamiento y un grupo control. Como resultado se obtuvo un impacto social positivo: cada euro invertido ofreció un retorno social neto de 2.98€. En conclusión, puede decirse que el SROI puede ofrecer información sobre el impacto social provocado por las intervenciones clínicas, determinando los rendimientos tangibles obtenidos con la inversión


Innovation in health care services generates the development of new initiatives. Research should focus on the development of methodologies that allow the evaluation of interventions and determine the true impact they have. The purpose of this study was to determine the social return of investment (SROI) of a health treatment. An analysis of a psychological intervention program was carried out with a design that included pre/post-treatment measures and control group. As results, a positive social impact was obtained. Each monetary unit spent offered a net social return of 2.98. In conclusion, SROI can offer information about the social impact caused by health care interventions, determining the tangible return obtained with the investment


Assuntos
Humanos , Técnicas Psicológicas , Prática Clínica Baseada em Evidências/métodos , Medidas de Resultados Relatados pelo Paciente , Perfil de Impacto da Doença , Custos de Cuidados de Saúde , Estudos de Casos e Controles
11.
Rev. logop. foniatr. audiol. (Ed. impr.) ; 39(1): 27-31, ene.-mar. 2019. tab, graf
Artigo em Espanhol | IBECS | ID: ibc-176637

RESUMO

Introducción: La disartria corresponde a un trastorno adquirido del habla de origen neurológico. Habitualmente, la evaluación se centra en describir los procesos motores del habla afectados, las características perceptuales y determinar el grado de severidad a través de la inteligibilidad del habla. Pocas veces se explora el impacto de este trastorno sobre la calidad de vida de la persona. Método: Se realizó un estudio cuantitativo, no experimental, transversal, descriptivo y correlacional. Se evaluaron 21 personas con disartria (51.04 ± 13.06 años, 13 hombres) con el protocolo de evaluación de habla para pacientes disártricos y el cuestionario autoadministrado de calidad de vida en hablantes disártricos (QOL-Dys). Resultados: Las personas con disartria ven alterada su calidad de vida. Hay una correlación significativa con el grado de severidad de la disartria (r = -.5, p =.02). La inteligibilidad predice de manera significativa el puntaje en el cuestionario de calidad de vida total (R2 =.2, p =.04). El puntaje más bajo se presenta en la percepción de la reacción de los otros (1.66 ± 12.93), y el más alto en enfrentarse a situaciones difíciles (24.38 ± 9.12). Conclusión: La disartria afecta la calidad de vida de las personas. Se recomienda su evaluación para mejorar la intervención en estas personas


Introduction: Dysarthria is an acquired motor speech disorder of neurological origin. Usually assessment focuses on describing the affected motor processes of speech, perceptual characteristics and determining the degree of severity through speech intelligibility, but rarely explores the impact it has on the quality of life of the person. Method: A quantitative, non-experimental, cross-sectional, descriptive and correlational study was performed. Twenty-one patients with dysarthria (51.04 ± 13.06 years, 13 men) were evaluated with the speech assessment protocol for dysarthric patients and the self-administered quality of life questionnaire for dysarthric speakers (QOL-Dys). Results: The quality of life of people with dysarthria is affected (QOL), which correlates significantly with the degree of severity of the dysarthria (r = -.5, p = .02). Intelligibility significantly predicts the score of the total quality of life questionnaire (R2 =.2, p = .04). The lowest score occurred in the perception of the reaction of the others (16.66 ± 12.93), and the highest in dealing with difficult situations (24.38 ± 9.12). Conclusion: Quality of life is affected in people with dysarthria, its assessment is recommended to improve intervention in these people


Assuntos
Humanos , Masculino , Feminino , Adulto Jovem , Adulto , Pessoa de Meia-Idade , Idoso , Disartria/psicologia , Transtornos da Articulação/psicologia , Inteligibilidade da Fala , Qualidade de Vida/psicologia , Perfil de Impacto da Doença , Índice de Gravidade de Doença , Estudos Transversais
12.
Rev. lab. clín ; 12(1): 38-52, ene.-mar. 2019. tab, graf
Artigo em Espanhol | IBECS | ID: ibc-176973

RESUMO

Este documento describe las causas de error más frecuentes en la medición de marcadores tumorales séricos proteicos en sus diferentes fases: preanalítica, analítica y postanalítica y recomendaciones para detectar y solventar problemas, así como la interpretación de los resultados de los marcadores tumorales en la práctica clínica


This document describes the most frequent causes of error in the measurement of 13 serum protein tumour markers in their different phases: preanalytical, analytical and 14 postanalytic and recommendations to detect and solve problems, as well as the 15 interpretation of the results of the Tumor Markers in clinical practice


Assuntos
Humanos , Biomarcadores Tumorais/análise , Técnicas de Laboratório Clínico/métodos , Neoplasias/diagnóstico , Padrões de Prática Médica , Perfil de Impacto da Doença , Reprodutibilidade dos Testes , Coleta de Amostras Sanguíneas/normas , Preservação de Amostras/métodos
13.
Med. oral patol. oral cir. bucal (Internet) ; 24(2): e165-e171, mar. 2019. tab
Artigo em Inglês | IBECS | ID: ibc-180639

RESUMO

Background: Neurodegenerative diseases that affect the cerebellum, especially in elderly individuals, cause im¬pairment of motor coordination and quality of life. The presente study evaluated the electromyographic activity and thickness of the right and left masseter and temporal muscles, and the maximum molar bite force of individu¬als with spinocerebellar ataxia. Material and Methods: Twenty-eight individuals were divided into two groups: those with (n=14) and without (n=14) spinocerebellar ataxia. Data on the masticatory muscles obtained from the electromyographic activity (resting, right and left laterality and protrusion), muscle thickness (maximal voluntary contraction and tensile strength) and maximum bite force (right and left) were tabulated and descriptive analysis using Student’s t-test (P ≤ 0.05). Results: In the comparison between groups, greater electromyographic activity was demonstrated for individuals with spinocerebellar ataxia, with a statistically significant difference in protrusion and laterality for the temporal muscles (P = 0.05). T here was no statistically significant d ifference b etween t he g roups for m asticatory muscles thickness in the conditions evaluated. For maximum molar bite force, the group with spinocerebellar ataxia showed lower bite force (P ≤ 0.05). Conclusions: The data obtained suggest that spinocerebellar ataxia promotes functional reduction in the stomatognathic system, mainly affecting the electromyographic activity and bite force, hindering chewing, with a resultant alteration of nutritional intake and a decrease of quality of life


No disponible


Assuntos
Humanos , Masculino , Feminino , Adulto , Pessoa de Meia-Idade , Ataxias Espinocerebelares/fisiopatologia , Sistema Estomatognático/fisiopatologia , Músculos da Mastigação/fisiopatologia , Perfil de Impacto da Doença , Eletromiografia , Força de Mordida , Músculo Masseter/fisiopatologia , Músculo Temporal/fisiopatologia , Estudos Prospectivos , Estudos de Casos e Controles
14.
Cornea ; 38(5): 600-604, 2019 May.
Artigo em Inglês | MEDLINE | ID: mdl-30730335

RESUMO

PURPOSE: To assess vision-related quality of life using the Impact of Vision Impairment Questionnaire (IVI) in patients with keratoconus enrolled in the Save Sight Keratoconus Registry. METHODS: In this cross-sectional study, data on 107 keratoconic patients were collected through a prospectively designed web-based registry from a quaternary referral eye hospital and 2 corneal subspecialty practices. Vision-related quality of life was evaluated using the IVI. Rasch analysis was used to transform the IVI responses into interval-level measures comprising reading, mobility, and emotional well-being subscales. Associations between best-corrected visual acuity (BCVA), maximum simulated keratometry (Kmax), steep keratometry (K2), and pachymetry for each eye and IVI subscale scores were evaluated with univariate (Pearson correlations) and multivariable regression adjusted for age and gender. RESULTS: Of the 107 patients, 37 (34.5%), 41 (38.0%) and 29 (26.9%) had mild, moderate, and severe keratoconus, respectively. On uni- and multivariable analysis, BCVA in the better eye had the strongest association with reading [r = 0.51; 95% confidence interval (CI), 0.35-0.64, P = 0.004] and mobility (r = 0.55; 95% CI, 0.41-0.67, P < 0.001) subscale scores. BCVA in the better and worse eye, both had the joint strongest associations with emotional scores on univariate analysis, but only the latter was significant on multivariable analysis (r = 0.37; 95% CI, 0.20-0.53, P < 0.001). K2 and Kmax in the better eye also displayed significant associations with reading and mobility scores. CONCLUSIONS: In patients with keratoconus, BCVA in the better eye had the strongest correlation with reading and mobility scores, whereas BCVA in the worse eye was significantly correlated with emotional scores.


Assuntos
Ceratocone/psicologia , Qualidade de Vida , Adolescente , Adulto , Idoso , Córnea/patologia , Estudos Transversais , Feminino , Humanos , Ceratocone/fisiopatologia , Masculino , Pessoa de Meia-Idade , Limitação da Mobilidade , Estudos Prospectivos , Leitura , Análise de Regressão , Perfil de Impacto da Doença , Inquéritos e Questionários , Acuidade Visual/fisiologia , Adulto Jovem
15.
Urology ; 127: 53-60, 2019 05.
Artigo em Inglês | MEDLINE | ID: mdl-30790648

RESUMO

OBJECTIVES: To test the validity of an Internet-based version of Expanded Prostate Cancer Index Composite (EPIC-26) versus the phone-based version. Most men will survive for years after treatment for localized prostate cancer (PCa) and may experience lasting treatment-related toxicities affecting health-related quality of life. The EPIC-26 is a validated instrument that measures health-related quality of life across 5 PCa-specific domains. Previously, EPIC-26 was administered via phone in a large multicenter clinical trial. METHODS: We developed an Internet-based version of EPIC-26. We recruited subjects from two prospective longitudinal study cohorts of PCa patients undergoing local therapy: PROST-QA, and PROSTQA-RP2. Subjects were randomized to either an "Internet-first" or "phone-first" group. Subjects were offered the alternate questionnaire modality 2 weeks after completing the initial modality. RESULTS: 181 subjects were offered enrollment; 133 agreed to participate. 65 subjects were randomized to the "Internet- first" group and 68 subjects to the "phone-first" group. Of these, 37 and 26 subjects respectively completed both questionnaire versions (response rate: 44.4%). Test-retest analysis showed significant intraclass correlations in all 5 domains of EPIC-26: urinary incontinence (r = 0.96), urinary irritation (r = 0.85), bowel function (r = 0.61), sexual function (r = 0.94), and hormonal function (r = 0.89). There was no effect of order of questionnaire administration. CONCLUSION: This study demonstrates excellent correlation of responses between Internet-based and phone-based EPIC-26 administration. All domains demonstrated test-retest reliability between modalities, without ordering effect. This validates the use of internet-based EPIC-26 in international registries as part of the International Consortium for Health Outcomes Measurement effort, and may facilitate its use in clinical practice and quality improvement.


Assuntos
Internet/estatística & dados numéricos , Neoplasias da Próstata/psicologia , Neoplasias da Próstata/terapia , Qualidade de Vida , Telefone/estatística & dados numéricos , Fatores Etários , Idoso , Estudos de Coortes , Humanos , Estudos Longitudinais , Masculino , Pessoa de Meia-Idade , Invasividade Neoplásica , Estadiamento de Neoplasias , Estudos Prospectivos , Neoplasias da Próstata/mortalidade , Neoplasias da Próstata/patologia , Medição de Risco , Perfil de Impacto da Doença , Análise de Sobrevida
16.
Rev Bras Epidemiol ; 21Suppl 02(Suppl 02): e180012, 2019 Feb 04.
Artigo em Português, Inglês | MEDLINE | ID: mdl-30726357

RESUMO

INTRODUCTION: The use of dental prosthesis and the tooth loss in elderly people are associated with significant impact on the overall health and quality of life. Continuous assessment of oral health profile in this population is important for planning the actions and policies of the area. OBJECTIVES: The aims of this study were to assess the prevalence of tooth loss and use of dental prosthesis among the elderly people in different periods, to evaluate the association between functional dentition (20 teeth or more) and socioeconomic factors, and to evaluate the impact of tooth loss and use of dental prosthesis on self-rated oral health. METHODS: Thesample consisted of people aged 60 years and older who participated in the Health, Well-Being, and Aging Study (SABE). Data from the years 2000, 2006, and 2010 were used to assess the prevalence of tooth loss and use of dental prosthesis. Analysis of the factors associated with the functional dentition and self-rated oral health was based on the data collected in 2010. Comparison of oral health profile over the 3 years was done through descriptive analysis and comparison of confidence intervals. Multiple logistic regression models were used to assess the factors associated with functional dentition and self-rated oral health. RESULTS: The prevalence of tooth loss and use of dental prosthesis remained constant over the three periods analyzed. Functional dentition was significantly associated with education, sex, and race/gender. Individuals in need of dental prosthesis and with periodontal pocket were more likely to report poor oral health. CONCLUSION: There was no reduction in the prevalence of tooth loss and in the use of dental prosthesis over 10 years. Functional dentition is associated with socioeconomic inequalities. Self-rated oral health is associated with the need of dental prosthesis.


Assuntos
Prótese Dentária/estatística & dados numéricos , Autoavaliação Diagnóstica , Vida Independente/estatística & dados numéricos , Saúde Bucal/estatística & dados numéricos , Perda de Dente/epidemiologia , Distribuição por Idade , Idoso , Idoso de 80 Anos ou mais , Brasil/epidemiologia , Estudos Transversais , Inquéritos de Saúde Bucal/métodos , Feminino , Humanos , Modelos Logísticos , Masculino , Pessoa de Meia-Idade , Prevalência , Distribuição por Sexo , Perfil de Impacto da Doença , Fatores Socioeconômicos , Fatores de Tempo
17.
Health Psychol ; 38(3): 206-216, 2019 03.
Artigo em Inglês | MEDLINE | ID: mdl-30762400

RESUMO

OBJECTIVE: The sustainment of gains for cancer patients provided psychosocial interventions is unclear. Furthermore, it is unknown whether interventions also yield long-term positive changes. The present study experimentally tests if an intervention delivered at cancer diagnosis could yield broad, long-term, changes in domains such as relationships, worldview, priorities, and goals. It was hypothesized that the intervention group would report more positive and fewer negative life changes during survivorship versus the control group. METHOD: Patients with Stage II/III breast cancer were randomized to biobehavioral intervention (BBI) or assessment only. At randomization, patients completed measures of cancer stress (Impact of Events Scale [IES]) and depressive symptoms (Center for Epidemiological Studies Depression scale [CES-D]). At the 24-month follow-up, survivors (N = 160) completed a thought listing task with 7 prompts (e.g., "relationships"). Patients listed thoughts about change since diagnosis and rated each for valence. Groups were compared on the frequency of positive/negative thoughts across prompts. Listed thoughts were content analyzed. RESULTS: BBI survivors reported significantly more positive changes (p < .05), controlling for IES and CES-D. Groups did not differ on negative changes. Patients with higher IES/CES-D scores reported more negative changes at 24 months (ps < .05). Content analysis revealed a predominance (13/23) of positive thought categories. CONCLUSIONS: Adding support for efficacy, BBI survivors reported significantly more positive life changes since diagnosis than survivors not receiving BBI. More generally, heightened stress/depressive symptoms at diagnosis foretold survivors' reporting of more negative changes. Thought listing is a strategy to obtain personalized accounts of life changes after breast cancer. (PsycINFO Database Record (c) 2019 APA, all rights reserved).


Assuntos
Neoplasias da Mama/psicologia , Sobreviventes de Câncer/psicologia , Terapia Cognitivo-Comportamental , Transtorno Depressivo/terapia , Adulto , Neoplasias da Mama/terapia , Climatério , Transtorno Depressivo/psicologia , Feminino , Humanos , Pessoa de Meia-Idade , Qualidade de Vida/psicologia , Perfil de Impacto da Doença
18.
Rev. enferm. UFPE on line ; 13(2): 424-430, fev. 2019. tab
Artigo em Português | BDENF - Enfermagem | ID: biblio-1010204

RESUMO

Objetivo: avaliar a qualidade de vida de portadores de células falciformes atendidos pelo Programa de Anemia Falciforme. Método: trata-se de um estudo quantitativo, descritivo e analítico em 20 portadores de anemia falciforme e 40 indivíduos não falciformes. Coletaram-se os dados por meio de entrevistas no período entre fevereiro a maio de 2015. Avaliou-se a qualidade de vida por meio de SF-36 e WHOQOL-BREF. Apresentaram-se os resultados em forma de tabelas. Resultados: constata-se que a maioria dos pacientes com doença falciforme se declara como negros e castanhos e com baixo nível de escolaridade; os aspectos físicos e a capacidade funcional tiveram os piores resultados e, com a idade, o aspecto físico se torna mais comprometido. Mostrou-se, pelo questionário SF-36, que, entre os escores, os indivíduos com DF apresentavam dor, capacidade funcional, vitalidade, aspectos físicos, emocionais e de saúde mental como os mais prejudicados em relação ao grupo de pacientes sem DF. Conclusão: apresentou-se, pela avaliação WHOQOL-BREF, comprometimento significativo da qualidade de vida física e geral entre os pacientes com DF; já os participantes com doença falciforme sofrem um impacto negativo na qualidade de vida, o que interfere e influencia a saúde dessas pessoas.(AU)


Objective: to evaluate the quality of life of sickle cell patients treated by the Sickle Cell Anemia Program. Method: this is a quantitative, descriptive and analytical study in 20 patients with sickle cell anemia and 40 non-sickle individuals. Data was collected through interviews between February and May 2015. Quality of life was evaluated through SF-36 and WHOQOL-BREF. Results were presented in the form of tables. Results: the majority of patients with sickle cell disease declare themselves as black and brown with a low level of schooling; the physical aspects and the functional capacity had the worst results and, with age, the physical aspect becomes more compromised. The SF-36 questionnaire showed that, among the scores, individuals with FD presented pain, functional capacity, vitality, physical, emotional and mental health aspects as the most impaired in relation to the group of patients without SCD. Conclusion: the WHOQOL-BREF evaluation showed a significant impairment of physical and general quality of life among patients with DF; participants with sickle-cell disease have a negative impact on quality of life, which interferes with and influences the health of these people.(AU)


Objetivo: evaluar la calidad de vida de portadores de células falciformes atendidos por el Programa de Anemia Falciforme. Método: se trata de un estudio cuantitativo, descriptivo y analítico en 20 portadores de anemia falciforme y 40 individuos no falciformes. Se recogieron los datos a través de entrevistas en el período entre febrero a mayo de 2015. Se evaluó la calidad de vida por medio de SF-36 y WHOQOL-BREF. Se presentaron los resultados en forma de tablas. Resultados: se constata que la mayoría de los pacientes con enfermedad falciforme se declara como negros y castaños y con bajo nivel de escolaridad; los aspectos físicos y la capacidad funcional tuvieron los peores resultados y, con la edad, el aspecto físico se vuelve más comprometido. Se mostró, por el cuestionario SF-36, que entre los escores, los individuos con DF presentaban dolor, capacidad funcional, vitalidad, aspectos físicos, emocionales y de salud mental como los más perjudicados en relación al grupo de pacientes sin DF. Conclusión: se presentó, por la evaluación WHOQOLBREF, un compromiso significativo de la calidad de vida física y general entre los pacientes con DF; ya los participantes con enfermedad falciforme sufren un impacto negativo en la calidad de vida, lo que interfiere e influye en la salud de esas personas.(AU)


Assuntos
Humanos , Masculino , Feminino , Qualidade de Vida , Condições Sociais , Perfil de Saúde , Perfil de Impacto da Doença , Anemia Falciforme , Estudos de Casos e Controles , Doença Crônica , Epidemiologia Descritiva
19.
Rev. pesqui. cuid. fundam. (Online) ; 11(1): 199-204, jan.-mar. 2019. tab.
Artigo em Inglês, Português | LILACS, BDENF - Enfermagem | ID: biblio-968473

RESUMO

Objetivo: Evaluar la calidad de vida relacionada con la salud de las personas con diabetes mellitus tipo 2 servido por el Primaria de la Salud. Métodos: Estudio descriptivo transversal realizado con 50 pacientes diabéticos. Los datos fueron recolectados a través de la aplicación de un formulario de información socioeconómica y clínica y el estudio de resultados médicos de 36 preguntas Short Form Health Survey (SF-36). Los datos se expresaron como frecuencias absolutas y relativas y tendencia central y medidas de dispersión. Resultados: El promedio más alto de las puntuaciones del SF-36 fueron encontrados en las áreas de "capacidad funcional, vitalidad y aspectos sociales", mientras que las más bajas se concentraron en las zonas "estado general de salud y la apariencia física". Conclusión: La funcionalidad de las actividades diarias y la percepción de la salud fueron los principales factores cometidos por la diabetes mellitus tipo 2


Objetivo: Avaliar a qualidade de vida relacionada à saúde de pessoas com diabetes mellitus tipo 2 atendidas pela Atenção Primária à Saúde. Método: Estudo descritivo, transversal realizado com 50 pacientes diabéticos. Os dados foram coletados por meio da aplicação de um formulário para informações socioeconômicas e clínicas e do Medical Outcomes Study 36-item Short Form Health Survey (SF-36). Os dados foram expressos como frequências absolutas e relativas e medidas de tendência central e dispersão. Resultados: As maiores médias dos escores do SF-36 foram verificadas nos domínios "Capacidade Funcional, Vitalidade e Aspectos Sociais", enquanto as menores concentraram-se nos domínios "Estado Geral da Saúde e Aspecto Físico". Conclusão: A funcionalidade das atividades diárias e a percepção sobre a saúde foram os principais aspectos comprometidos pelo diabetes mellitus tipo 2


Objective: To evaluate the quality of life related to health of people with type 2 diabetes mellitus served by Primary Health. Methods: Descriptive transversal study performed with 50 diabetic patients. Data were collected through the application of a form for socioeconomic and clinical information and the Medical Outcomes Study 36-item Short Form Health Survey (SF-36). Data were expressed as absolute and relative frequencies and central tendency and dispersion steps. Results: The highest average of the SF-36 scores were found in the areas "Functional Capacity, Vitality and Social Aspects", while the lowest were concentrated in areas "General State of Health and Physical Appearance." Conclusion: The functionality of daily activities and perception of health were the main factors committed by the type 2 diabetes mellitus


Assuntos
Humanos , Masculino , Feminino , Adulto , Pessoa de Meia-Idade , Idoso , Perfil de Impacto da Doença , Diabetes Mellitus Tipo 2/enfermagem , Diabetes Mellitus Tipo 2/prevenção & controle , Atenção Primária à Saúde
20.
Rev. pesqui. cuid. fundam. (Online) ; 11(1): 211-215, jan.-mar. 2019. graf., tab.
Artigo em Inglês, Português | LILACS, BDENF - Enfermagem | ID: biblio-968500

RESUMO

Objetivo: Avaliar os aspectos referentes as limitações físicas, psicossociais e qualidade de vida das pessoas atingidas pela hanseníase. Método: Estudo quantitativo, transversal. Foram aplicadas as escalas Screening Activity Limitation and Safety Awareness (SALSA), Participação Social e World Health Organization Quality of Life (WHOQOL-bref) com 31 sujeitos. Resultado: Evidenciou-se que a maioria dos participantes apresentava algum grau de restrição física e social. Correlacionando com o grau de incapacidade, destaca-se que os pacientes que apresentaram restrições também possuíam grau II de incapacidade. Quanto à qualidade de vida, o domínio psicológico e o de relações sociais apresentaram as médias mais altas, enquanto o físico e o ambiental tiveram as mais baixas. Conclusão: Afirma-se a necessidade de priorização e intensificação das ações de prevenção de incapacidades da hanseníase


Objective: Analyze the aspects related to the physical, psychosocial and quality of life of people affected by leprosy. Method: Quantitative, crosssectional study. The Screening Activity Limitation and Safety Awareness (SALSA), Social Participation and e World Health Organization Quality of Life (WHOQOL-bref) scales were applied with 31 subjects. Result: The majority of the participants presented some degree of physical and social restriction. The correlation with the degree of disability highlighted that the patients who presented restrictions also had degree of disability II. About the quality of life, the psychological domain and the social relations showed the highest averages, while the physical and the environmental had the lowest ones. Conclusion: It is necessary to prioritize and intensify actions to prevent disability in leprosy


Objetivo: Evaluar los aspectos referentes a las limitaciones físicas, psicosociales y calidad de vida de las personas afectadas por la lepra. Método: Estudio cuantitativo, transversal. Se aplicaron las escalas Screening Activity Limitation and Safety Awareness (SALSA), Participación Social y World Health Organization Quality of Life (WHOQOL-bref) con 31 sujetos. Resultado: Se evidenció que la mayoría de los participantes presentaba algún grado de restricción física y social. Correlacionando con el grado de incapacidad, se destaca que los pacientes que presentaron restricciones, también poseían grado II de incapacidad. En cuanto a la calidad de vida, el dominio psicológico y el de relaciones sociales presentaron las medias más altas, mientras que el físico y el ambiental tuvieron las más bajas. Conclusión: Se afirma la necesidad de priorización e intensificación de las acciones de prevención de incapacidades de la lepra


Assuntos
Humanos , Masculino , Feminino , Adulto , Pessoa de Meia-Idade , Idoso , Hanseníase/prevenção & controle , Hanseníase/psicologia , Hanseníase/terapia , Qualidade de Vida , Autocuidado , Perfil de Impacto da Doença
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