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1.
Ann Agric Environ Med ; 27(3): 476-480, 2020 Sep 11.
Artigo em Inglês | MEDLINE | ID: mdl-32955232

RESUMO

INTRODUCTION AND OBJECTIVE: The family is a reliable and permanent source of support for every human being. It is the key link in the welfare system. The aim of the study is to assess parents' attitudes towards the occurrence of a difficult situation resulting from a child's chronic illness. MATERIAL AND METHODS: The study involved randomly selected parents of children with chronic diseases (N=107). The study was carried out at the Dental Clinic of the 'Little Prince' Children's Hospice in Lublin. RESULTS: The study revealed that for parents a difficult life situation is mainly associated with the disability of a family member or a friend, whereas the action approach is the most frequently chosen attitude towards a child's chronic disease. In the examined group of parents, a significant correlation was observed between the age of the parents and the choice of a specific parental attitude towards the child's chronic disease (in terms of intellectual approach). However, no significant correlations were found between the parents' place of residence and the choice of a specific parental attitude towards the chronic disease of a child. CONCLUSIONS: During the diagnosis of chronically ill children, parents should also be educated in this regard. Therapy and psychological help, as well as directing parents to relevant support groups, organizations or associations, will prove immensely valuable while coping with a difficult life situation.


Assuntos
Atitude Frente a Saúde , Doença Crônica/psicologia , Pais/psicologia , Adaptação Psicológica , Adolescente , Adulto , Criança , Pré-Escolar , Pessoas com Deficiência/psicologia , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Polônia
2.
MMWR Morb Mortal Wkly Rep ; 69(36): 1238-1243, 2020 Sep 11.
Artigo em Inglês | MEDLINE | ID: mdl-32914770

RESUMO

Frequent mental distress, defined as 14 or more self-reported mentally unhealthy days in the past 30 days,* is associated with adverse health behaviors, increased use of health services, mental disorders (e.g., diagnosis of major depressive disorder), chronic diseases, and functional limitations (1). Adults with disabilities more often report depression and anxiety (2), reduced health care access (3), and health-related risk behaviors (4) than do adults without disabilities. CDC analyzed 2018 Behavioral Risk Factor Surveillance System (BRFSS) data to compare the prevalence of frequent mental distress among adults with disabilities with that among adults without disabilities and to identify factors associated with mental distress among those with disabilities. Nationwide, an estimated 17.4 million adults with disabilities reported frequent mental distress; the prevalence of reported mental distress among those with disabilities (32.9%) was 4.6 times that of those without disabilities (7.2%). Among adults with disabilities, those with both cognitive and mobility disabilities most frequently reported mental distress (55.6%). Adults with disabilities who reported adverse health-related characteristics (e.g., cigarette smoking, physical inactivity, insufficient sleep, obesity, or depressive disorders) or an unmet health care need because of cost also reported experiencing more mental distress than did those with disabilities who did not have these characteristics. Adults living below the federal poverty level reported mental distress 70% more often than did adults in higher income households. Among states, age-adjusted prevalence of mental distress among adults with disabilities ranged from 25.2% (Alaska) to 42.9% (New Hampshire). Understanding the prevalence of mental distress among adults with disabilities could help health care providers, public health professionals, and policy makers target interventions and inform programs and policies to ensure receipt of mental health screening, care, and support services to reduce mental distress among adults with disabilities.


Assuntos
Pessoas com Deficiência/psicologia , Pessoas com Deficiência/estatística & dados numéricos , Angústia Psicológica , Adolescente , Adulto , Idoso , Sistema de Vigilância de Fator de Risco Comportamental , Feminino , Acesso aos Serviços de Saúde/estatística & dados numéricos , Humanos , Masculino , Pessoa de Meia-Idade , Pobreza/estatística & dados numéricos , Prevalência , Fatores de Risco , Estados Unidos/epidemiologia , Adulto Jovem
3.
Medicine (Baltimore) ; 99(30): e21164, 2020 Jul 24.
Artigo em Inglês | MEDLINE | ID: mdl-32791690

RESUMO

BACKGROUND/OBJECTIVE: Both athletes with and without disabilities can develop burnout symptoms. However, athletes with disabilities may face different or more challenges compared to their counterparts without disabilities. The present study aimed at ascertaining the effect of digital storytelling intervention on burnout thoughts of adolescent-athletes with disabilities. METHOD: This study is a randomized controlled trial involving a total of 171 adolescent-athletes with disabilities who showed a high degree of burnout symptoms. These adolescent-athletes were randomly assigned to either an intervention group (n = 85) or a waitlisted control group (n = 86). The treatment intervention for the adolescent-athletes was digital stories which were created based on the framework of rational emotive behaviour therapy (REBT). The Athlete Burnout Questionnaire was used for gathering of data at three different times (baseline, post-test and follow up). Data were analyzed using repeated measure analysis of variance at a significant level of 0.05. RESULTS: Results showed that the digital storytelling intervention based on REBT significantly reduced burnout thoughts among disabled adolescent-athletes in the intervention group compared to athletes in the waitlisted control group as measured by the Athlete Burnout Questionnaire. Additionally, at follow-up evaluation, it was observed that the decrease in burnout scores was maintained by those athletes in the digital storytelling intervention. CONCLUSION: Digital storytelling intervention based on rational emotive behaviour therapy shows great potentials in addressing burnout among adolescent-athletes with disabilities.


Assuntos
Atletas/psicologia , Terapia Comportamental/métodos , Esgotamento Psicológico/terapia , Pessoas com Deficiência/psicologia , Narração , Adolescente , Esgotamento Psicológico/psicologia , Feminino , Humanos , Masculino , Inquéritos e Questionários , Pensamento , Adulto Jovem
4.
BMC Public Health ; 20(1): 1294, 2020 Aug 26.
Artigo em Inglês | MEDLINE | ID: mdl-32847576

RESUMO

BACKGROUND: Mild to moderate road traffic injury (RTI) in people of working age is associated with limited recovery. Less is known about RTI recovery in older age. This study explored the perspectives and factors associated with recovery and health-related quality of life following mild to moderate RTI in older age in New South Wales, Australia. METHODS: A qualitative study using content analysis was undertaken. Participants aged 65 or more years were purposively selected from a larger inception cohort study of health outcomes following mild to moderate RTI conducted in New South Wales, Australia. Semi-structured interviews were undertaken at approximately 12 or 24 months post-injury. Content analysis was used to code and analyse the data, with methodological rigour obtained by double-coding and discussing findings to reach consensus. Results were reported using the consolidated criteria for reporting qualitative research (COREQ). RESULTS: Nineteen participants were invited to participate in the study of which 12 completed interviews. Data saturation was reached at the twelfth interview. Recovery experiences were diverse. Five main themes were identified: recovery is regaining independence; injury and disability in older age; the burden of non-obvious disability; the importance of support; and positive personal approaches. Key facilitators of recovery were: regaining independence; support from family and friends; and positive personal approaches. Key barriers were: threats to independence; passive coping behaviours; non-obvious disabilities (chronic pain, psychological impacts); and reluctance to raise ongoing issues with General Practitioners. Threats to independence, especially not driving and self-care, appeared to have a more profound effect on recovery than physical functioning. CONCLUSION: Older people view injury as a threat to independent functioning. This is somewhat different to what younger people report. Regaining independence is key to older people's recovery and health-related quality of life following RTI, and should be a key consideration for health professionals, services and supports working with this unique cohort. Greater efforts to help older people regain their independence following RTI are needed and can be facilitated by health professionals and appropriate service provision. TRIAL REGISTRATION: Australia New Zealand clinical trial registry identification number ACTRN12613000889752 .


Assuntos
Acidentes de Trânsito/estatística & dados numéricos , Pessoas com Deficiência/psicologia , Ferimentos e Lesões/epidemiologia , Ferimentos e Lesões/reabilitação , Adaptação Psicológica , Idoso , Idoso de 80 Anos ou mais , Estudos de Coortes , Pessoas com Deficiência/estatística & dados numéricos , Feminino , Humanos , Vida Independente/psicologia , Masculino , New South Wales/epidemiologia , Pesquisa Qualitativa , Qualidade de Vida/psicologia
5.
Rehabil Psychol ; 65(3): 199-205, 2020 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-32804531

RESUMO

Objective/Purpose: The objective of this article is to provide information about the ways in which the novel coronavirus 2019 (COVID-19) pandemic may affect the ongoing public health issue of violence against people with disabilities and how rehabilitation psychologists and other providers can address these concerns in their practice. METHOD: This article reviews the literature on violence against people with disabilities as well as emerging literature on the COVID-19 pandemic and its social and medical consequences. RESULTS: The COVID-19 pandemic magnifies existing issues and barriers facing people with disabilities who are experiencing interpersonal violence. These issues include reliance on the perpetrator for care and assistance, barriers to reporting abuse and seeking help, fear of retaliation and other negative consequences if abuse is reported, emotional abuse related to disability, and exacerbation of secondary physical and mental health sequalae of abuse. CONCLUSIONS/IMPLICATIONS: The COVID-19 pandemic and its consequences enhance the already increased risk for abuse among people with disabilities. Providers who work with individuals with disabilities should address these issues at both the individual client and systems levels. (PsycInfo Database Record (c) 2020 APA, all rights reserved).


Assuntos
Betacoronavirus , Infecções por Coronavirus/psicologia , Pessoas com Deficiência/psicologia , Pessoas com Deficiência/estatística & dados numéricos , Pandemias/estatística & dados numéricos , Pneumonia Viral/psicologia , Violência/psicologia , Violência/estatística & dados numéricos , Pessoas com Deficiência/reabilitação , Acesso aos Serviços de Saúde/estatística & dados numéricos , Humanos
6.
Rehabilitation (Stuttg) ; 59(4): 223-230, 2020 Aug.
Artigo em Alemão | MEDLINE | ID: mdl-32851608

RESUMO

PURPOSE: People with disabilities belong to a vulnerable population group, especially with regard to their economic and health situation. In the social-epidemiological research, hardly any studies on mental health and health awareness among people with disabilities are available using representative data, in particular not differentiated according to their degree of disability (DoD). Therefore, the aim of this study is to investigate 1) differences in mental health and health awareness between people with disabilities compared to people without disabilities. In addition, the study 2) shows differences mental health outcomes and health awareness, differentiated according to the DoD. METHODS: Data is used from the representative study "Gesundheit in Deutschland Aktuell (GEDA) 2012" (N=19,294). Outcomes were self-reported health, health awareness, depression or depressive mood, mental discomfort, vitality and psychological well-being. The exposure variable used was the recognized disability (DoD≥50 vs. DoD<50 vs. no disability). Univariate and bivariate analyses were conducted using cross-tables and multivariate analyses using binary logistic regression models, controlled for socio-demographic, economic and health-related features. RESULTS: People with disabilities often rate their mental health worse than people without disabilities. The bi- and multivariate analyses revealed a disability-specific gradient for all outcome measures according to the DoD (p<0,001). People with disabilities had a significantly higher likelihood of poor mental health compared to people without disabilities. People with severe disabilities (DoD≥50) had a more than 4,6-fold increased likelihood risk of poor self-reported health and 2,5-fold likelihood of depression or depressed mood compared to people without disabilities. A high level of health awareness was more prevalent in PWD than in those without disabilities. CONCLUSION: The study highlights that People with disabilities more frequently reported mental health problems than people without disabilities. Targeted measures are necessary, which address in particular the target group of the people with disabilities. There is further need to strengthen access to health services and programs, assistive technologies and support services, and to make health of people with disabilities to the subject of research and health promotion in line with the WHO Action Plan on "Better health for all people with disabilities" (2014-2021).


Assuntos
Estado de Consciência , Pessoas com Deficiência/psicologia , Saúde Mental , Alemanha , Humanos , Inquéritos e Questionários
7.
Fisioterapia (Madr., Ed. impr.) ; 42(4): 177-184, jul.-ago. 2020. graf, tab
Artigo em Espanhol | IBECS | ID: ibc-193505

RESUMO

INTRODUCCIÓN: El ciclo de rehabilitación se caracteriza por contribuir efectivamente en la calidad de vida y estimular la integración de las personas con discapacidad a sus diferentes roles. OBJETIVO: El propósito de este estudio fue demostrar las propiedades psicométricas de validez y fiabilidad del instrumento para medir el alcance de las acciones de los fisioterapeutas en el ciclo de rehabilitación de personas con discapacidad. MÉTODO: Este instrumento (42 ítems) se aplicó a una muestra de 118 fisioterapeutas colombianos de diferentes regiones del país. La validez del contenido fue realizada por 5 expertos mediante una matriz de validación y por una prueba piloto con 10 fisioterapeutas con características semejantes a las de la muestra. La validez de confiabilidad se estableció por homogeneidad con alfa de Cronbach y la de constructo mediante análisis factorial de extracción. RESULTADOS: La prueba KMO para validez de constructo resultó en 0,763, y la prueba de Bartlett con un p-valor prácticamente igual a cero. Los ítems 9, 36, 37 y 42 explican más del 80% de la varianza y el coeficiente alfa de Cronbach global resultó en 0,946. CONCLUSIONES: Se han obtenido resultados que sugieren la pertinencia del uso de este cuestionario como instrumento de recogida de datos para la investigación sobre las acciones en el ciclo de rehabilitación de personas con discapacidad en fisioterapeutas colombianos


INTRODUCTION: The rehabilitation cycle is characterized by effectively contributing to the quality of life and stimulating the integration of people with disabilities into their different roles. GOAL: The purpose of this study was to demonstrate the psychometric properties of validity and reliability of the instrument to measure the scope of the actions of physiotherapists in the rehabilitation cycle of people with disabilities. METHOD: This instrument (42 items) was applied to a sample of 118 Colombian physiotherapists from different regions of the country. The validity of the content was carried out by 5 experts through a validation matrix and by a pilot test with 10 physiotherapists with characteristics similar to those of the sample. Reliability validity was established by homogeneity with Cronbach's Alpha and construct validity using extraction factor analysis. RESULTS: The KMO test for construct validity resulted in .763, the Bartlett test with a p-value practically equal to zero. Items 9, 36, 37 and 42 explain more than 80% of the variance. The results showed that the scale is highly reliable (Cronbach Global Alpha Coefficient = 946). CONCLUSIONS: Sufficient validity has been obtained to use of this questionnaire as an instrument of data collection for research into the actions in the rehabilitation cycle of people with disabilities of Colombian physiotherapists


Assuntos
Humanos , Masculino , Feminino , Adulto , Psicometria/instrumentação , Reprodutibilidade dos Testes , Pessoas com Deficiência/reabilitação , Modalidades de Fisioterapia/instrumentação , Pessoas com Deficiência/psicologia , Pessoas com Deficiência/estatística & dados numéricos , Qualidade de Vida , Análise Fatorial , Inquéritos e Questionários
8.
Eur Psychiatry ; 63(1): e52, 2020 06 01.
Artigo em Inglês | MEDLINE | ID: covidwho-456901

RESUMO

As COVID-19 has plagued our world, the term "social distancing" has been widely used with the aim to encourage the general population to physically distance themselves from others in order to reduce the spread of the virus. However, this term can have unintended but detrimental effects, as it evokes negative feelings of being ignored, unwelcome, left alone with one's own fears, and even excluded from society. These feelings may be stronger in people with mental illnesses and in socio-economically disadvantaged groups, such as stigmatized minorities, migrants, and homeless persons [1], many of them also having high risk for suicidal behaviors [2]. Mental health disorders are pervasive worldwide; the global burden accounting for approximately 21.2-32.4% of years lived with disability-more than any other group of illnesses [3]. So, the vulnerable group of people with mental health disorders represents a considerable share of the total global population.


Assuntos
Infecções por Coronavirus/epidemiologia , Emoções , Transtornos Mentais/epidemiologia , Transtornos Mentais/psicologia , Pneumonia Viral/epidemiologia , Distância Social , Terminologia como Assunto , Criança , Pessoas com Deficiência/psicologia , Pessoas com Deficiência/estatística & dados numéricos , Feminino , Humanos , Saúde Mental/estatística & dados numéricos , Pandemias , Estereotipagem , Populações Vulneráveis/psicologia , Populações Vulneráveis/estatística & dados numéricos
10.
Eur Psychiatry ; 63(1): e52, 2020 06 01.
Artigo em Inglês | MEDLINE | ID: mdl-32475365

RESUMO

As COVID-19 has plagued our world, the term "social distancing" has been widely used with the aim to encourage the general population to physically distance themselves from others in order to reduce the spread of the virus. However, this term can have unintended but detrimental effects, as it evokes negative feelings of being ignored, unwelcome, left alone with one's own fears, and even excluded from society. These feelings may be stronger in people with mental illnesses and in socio-economically disadvantaged groups, such as stigmatized minorities, migrants, and homeless persons [1], many of them also having high risk for suicidal behaviors [2]. Mental health disorders are pervasive worldwide; the global burden accounting for approximately 21.2-32.4% of years lived with disability-more than any other group of illnesses [3]. So, the vulnerable group of people with mental health disorders represents a considerable share of the total global population.


Assuntos
Controle de Doenças Transmissíveis , Infecções por Coronavirus/epidemiologia , Emoções , Transtornos Mentais/epidemiologia , Transtornos Mentais/psicologia , Pneumonia Viral/epidemiologia , Terminologia como Assunto , Criança , Pessoas com Deficiência/psicologia , Pessoas com Deficiência/estatística & dados numéricos , Feminino , Humanos , Saúde Mental/estatística & dados numéricos , Pandemias , Estereotipagem , Populações Vulneráveis/psicologia , Populações Vulneráveis/estatística & dados numéricos
11.
Health Qual Life Outcomes ; 18(1): 182, 2020 Jun 15.
Artigo em Inglês | MEDLINE | ID: mdl-32539861

RESUMO

BACKGROUND: Nearly a quarter of the population in the UAE has type 2 diabetes mellitus (T2DM), and this medical condition is associated with poorer oral health. The effects on oral health-related quality of life (OHRQoL), however, have not been examined in this population. Therefore, the objective of this study was to assess the impact of oral health problems, such as caries and periodontitis, on OHRQoL among Arab patients with and without T2DM. METHODS: This matched case-control study included 88 diabetic and 88 non-diabetic participants recruited from University Dental Hospital Sharjah and University Hospital Sharjah, UAE. Participants completed a sociodemographic questionnaire as well as the Oral Health Impact Profile short form (OHIP-14), which measures OHRQoL. Clinical examinations were conducted to assess participants' dental caries status, using the Decayed Missing Filled Teeth (DMFT) Index, and periodontal condition, via clinical attachment loss (CAL) dichotomized to CAL < 3 mm and CAL ≥3 mm. Linear regression models were used to identify the association among OHIP domains, clinical attachment loss, DMFT scores, and diabetes status. RESULTS: The mean age of participants was 43.0 years. A significantly (p = 0.01) higher proportion of diabetic patients (23%) had a CAL ≥3 mm than non-diabetic patients (10%). No significant differences in OHIP scores were observed between diabetic and non-diabetic patients. The results of the linear regression suggested that irrespective of diabetic status, DMFT scores were significantly associated with physical disability, physical pain, psychological discomfort, and psychological disability, as well as total OHIP scores. CAL was significantly associated with the handicap domain. Among non-diabetic patients, OHIP scores were significantly associated with DMFT scores in five OHIP domains (functional limitation, physical disability, physical pain, psychological discomfort, psychological disability), as well as total OHIP scores. Among diabetic patients, CAL was significantly associated with both the social disability and handicap domains, while only the handicap domain reached statistical significance among non-diabetic patients. CONCLUSIONS: Participants who had decayed teeth, irrespective of their diabetic status, reported substantial physical and psychological impacts on OHRQoL. CAL also had a significant impact on OHRQoL, being primarily associated with the OHIP handicap domain in both diabetic and non-diabetic patients.


Assuntos
Diabetes Mellitus Tipo 2/complicações , Saúde Bucal , Qualidade de Vida , Adulto , Estudos de Casos e Controles , Cárie Dentária/complicações , Cárie Dentária/psicologia , Diabetes Mellitus Tipo 2/psicologia , Pessoas com Deficiência/psicologia , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Periodontite/complicações , Periodontite/psicologia , Inquéritos e Questionários , Perda de Dente/complicações , Perda de Dente/psicologia , Emirados Árabes Unidos
12.
Int J Health Plann Manage ; 35(5): 993-996, 2020 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-32567725

RESUMO

Throughout the world, the public is being informed about the physical effects of SARS-CoV-2 infection and steps to take to prevent exposure to the coronavirus and manage symptoms of COVID-19 if they appear. However, the effects of this pandemic on one's mental health have not been studied at length and are still not known. As all efforts are focused on understanding the epidemiology, clinical features, transmission patterns, and management of the COVID-19 outbreak, there has been very little concern expressed over the effects on one's mental health and on strategies to prevent stigmatization. People's behavior may greatly affect the pandemic's dynamic by altering the severity, transmission, disease flow, and repercussions. The present situation requires raising awareness in public, which can be helpful to deal with this calamity. This perspective article provides a detailed overview of the effects of the COVID-19 outbreak on the mental health of people.


Assuntos
Infecções por Coronavirus/psicologia , Saúde Mental , Pandemias , Pneumonia Viral/psicologia , Adolescente , Idoso , Criança , Infecções por Coronavirus/complicações , Infecções por Coronavirus/epidemiologia , Pessoas com Deficiência/psicologia , Pessoal de Saúde/psicologia , Humanos , Transtornos Mentais/epidemiologia , Transtornos Mentais/etiologia , Pneumonia Viral/complicações , Pneumonia Viral/epidemiologia , Fatores de Risco , Estereotipagem
13.
Intellect Dev Disabil ; 58(3): 241-250, 2020 06 01.
Artigo em Inglês | MEDLINE | ID: mdl-32484885

RESUMO

People with disabilities have more health complications and higher healthcare utilization related to tobacco use than people without disabilities. Yet, they are less likely to use tobacco cessation resources. Important to meaningful and lasting health behavior change are relationships developed in the home, workplace, and community. Some people with disabilities rely on paid and unpaid caregivers. Just like people with disabilities, paid caregivers are more likely to use tobacco, creating a unique opportunity to target smoking cessation to people with disabilities and their caregivers. Living Independent From Tobacco (LIFT), an evidence-based tobacco cessation intervention, was implemented with dyads of people with disabilities (n = 5) and their caregivers (n = 7). Qualitative analyses revealed that participants valued the dyadic approach and the opportunity to learn coping skills to help with smoking cessation. Lessons for offering inclusive health promotion interventions to people with disabilities and their caregivers are discussed.


Assuntos
Cuidadores/psicologia , Pessoas com Deficiência/psicologia , Promoção da Saúde/métodos , Abandono do Uso de Tabaco , Adulto , Idoso de 80 Anos ou mais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Pesquisa Qualitativa , Abandono do Uso de Tabaco/métodos , Resultado do Tratamento , Adulto Jovem
16.
Rev Med Suisse ; 16(692): 911-914, 2020 May 06.
Artigo em Francês | MEDLINE | ID: mdl-32374536

RESUMO

One part of the population of neurolesioned patients is the transition of young patients with neurodisabilities to adult life. To guarantee favourable social and professional reinsertion is a major challenge, requiring inter-professional care. For this reason, in 2006 the CHUV, Lausanne created a transition-consultation framework with neuro-paediatricians and adult neurologists specialised in neuro-rehabilitation linked to a Swiss pilot social and professional reinsertion project collaborating with the invalidity insurance. As a model of the follow up of neurolesioned patients, this article reports the results of the reinsertion project that aims to bring awareness to the general practitioner of an inter-disciplinary care method adaptable to individuals. The holistic service saves time and improves the rate of successful reinsertion of young adults into social and professional life.


Assuntos
Pessoas com Deficiência/reabilitação , Emprego , Medicina Geral/métodos , Relações Interpessoais , Pessoas com Deficiência/psicologia , Clínicos Gerais , Humanos , Encaminhamento e Consulta
17.
Eur J Phys Rehabil Med ; 56(3): 361-365, 2020 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-32383576

RESUMO

BACKGROUND: The COVID-19 pandemic is having a great impact on health services. Patients not receiving care due to closure of outpatient services suffer a collateral damage. Our aim was to provide first data on impact of COVID-19 on people experiencing disability in Europe. METHODS: We developed an estimation from a survey and publicly available data. Thirty-eight countries have been inquired through the European Bodies of Physical and Rehabilitation Medicine - the rehabilitation medical specialty. The nine questions of the survey focused on March 31st, 2020. We used the following indicators: for inpatients, acute and rehabilitative hospital beds; for outpatients, missing uniform European data, we used information from Italy, Belgium and the UK, and estimated for Europe basing on population, number of rehabilitation physicians, physiotherapists, and people with self-reported limitations. RESULTS: Thirty-five countries (92%) including 99% of the population (809.9 million) answered. Stop of admissions to rehabilitation, early discharge and reduction of activities involved 194,800 inpatients in 10 countries. Outpatient activities stopped for 87%, involving 318,000 patients per day in Italy, Belgium and the UK, leading to an estimate range of 1.3-2.2 million in Europe. Seven countries reported experiences on rehabilitation for acute COVID-19 patients. CONCLUSIONS: COVID-19 emergency is having a huge impact on rehabilitation of people experiencing disability. This may lead to future cumulative effects due to reduced functional outcome and consequent increased burden of care. When the emergency will fade, rehabilitation demand will probably grow due to an expected return wave of these not well treated patients, but probably also of post-COVID-19 patients' needs.


Assuntos
Betacoronavirus , Controle de Doenças Transmissíveis/organização & administração , Infecções por Coronavirus/epidemiologia , Pessoas com Deficiência/reabilitação , Acesso aos Serviços de Saúde/organização & administração , Medicina Física e Reabilitação/organização & administração , Pneumonia Viral/epidemiologia , Infecções por Coronavirus/prevenção & controle , Pessoas com Deficiência/psicologia , Pessoas com Deficiência/estatística & dados numéricos , Europa (Continente) , Humanos , Pandemias/prevenção & controle , Pneumonia Viral/prevenção & controle , Isolamento Social
19.
BMC Public Health ; 20(1): 642, 2020 May 07.
Artigo em Inglês | MEDLINE | ID: mdl-32380993

RESUMO

BACKGROUND: How adults with disabilities perceive participation has received little attention. Our purpose was to formulate a grounded theory on participation, based on the subjective experience of adults with cognitive, physical, or psychiatric impairment(s), and to identify barriers, facilitators, and support needs concerning participation in different areas of life. We aimed to explore whether the United Nations' Convention on the Rights of Persons with Disabilities (CRPD), ratified by Switzerland in 2014, and its principles are being met. Here we report on the main category and focus on the participation areas 'family of origin' and 'intimate relationships.' METHODS: In a qualitative, grounded theory study, we conducted problem-centered interviews with 23 adults with cognitive, physical, or psychiatric impairments (30-53 years; 11 men, 12 women), with different housing (on their own, assisted living, with parents) and work situations (primary vs. secondary labor market) in nine German-speaking Swiss cantons. RESULTS: Participation can be understood as a continuum that extends on a horizontal level (from participation is restricted to participation takes place) and a vertical level (separative setting vs. inclusive setting). In separative as well as in inclusive settings, diverse levels of participation are possible. Many participants were stuck in an 'in-between' area between separative and inclusion-oriented settings. In the family of origin, there was a thin line between fulfilling relations that enhance participation and conflictual relations and overprotective parenting that limit participation. In intimate relationships, opportunities for participation were limited overall. Many interviewees were single. Social environment and family of origin (e.g., parents) can enable and facilitate intimate relationships and sexual contacts but can also be an important barrier. CONCLUSIONS: Participation can be understood as a continuum. Participation restrictions exist in separative as well as in inclusive-oriented settings, also in the areas of family of origin and intimate relationships. Participation barriers must be torn down in separative as well as in inclusion-oriented settings. Trajectories to inclusive settings should be facilitated. Families with children with impairment(s) should be supported from early on to create the best possible participation possibilities for the (adult) person with impairment(s) and to support the family of origin itself.


Assuntos
Cognição , Pessoas com Deficiência/psicologia , Transtornos Mentais/psicologia , Parceiros Sexuais/psicologia , Adaptação Psicológica , Adulto , Feminino , Teoria Fundamentada , Humanos , Relações Interpessoais , Masculino , Pais/psicologia , Pesquisa Qualitativa , Qualidade de Vida/psicologia , Suíça
20.
Health Qual Life Outcomes ; 18(1): 160, 2020 May 29.
Artigo em Inglês | MEDLINE | ID: mdl-32471430

RESUMO

BACKGROUND: Studies examining the impact of injury on health-related quality of life (HRQL) over time are necessary to understand the short- and long-term consequences of injury for population health. The aim of this systematic review was to provide an evidence update on studies that have measured HRQL over time in general injury populations using a generic (general) health state measure. METHODS: Studies conducted between 2010 and 2018 that assessed HRQL at more than one time point among general injury populations were eligible for inclusion. Two reviewers independently extracted information from each study on design, HRQL measure used, method of HRQL measure administration, timing of assessment(s), predictive variables, ability to detect change, and findings. Quality appraisals of each study were also completed by two reviewers using items from the RTI Item Bank on Risk of Bias and Precision of Observational Studies and the Guidelines for the Conduction of Follow-up Studies Measuring Injury-Related Disability. RESULTS: Twenty-nine studies (44 articles) that met the inclusion criteria were identified. HRQL was measured using 14 different generic measures; the SF-36, SF-12, and EQ-5D were used most frequently. A varying number of follow-up assessments were undertaken, ranging from one to five. Follow-up often occurred 12 months post-injury. Fewer studies (n = 11) examined outcomes two or more years post-injury, and only one to 10 years post-injury. While most studies documented improvements in HRQL over time since the injury event, study populations had not returned to pre-injury status or reached general population norm HRQL values at post-injury follow-ups. CONCLUSIONS: Since 2010 there has been a substantial increase in the number of studies evaluating the HRQL of general injury populations. However, significant variability in study design continues to impede quantification of the impact of injury on population health over time. Variation between studies is particularly evident with respect to timing and number of follow-up assessments, and selection of instruments to evaluate HRQL.


Assuntos
Qualidade de Vida , Projetos de Pesquisa/normas , Ferimentos e Lesões/reabilitação , Adolescente , Adulto , Idoso , Criança , Pré-Escolar , Pessoas com Deficiência/psicologia , Feminino , Seguimentos , Indicadores Básicos de Saúde , Humanos , Masculino , Pessoa de Meia-Idade , Ferimentos e Lesões/psicologia , Adulto Jovem
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