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1.
Braz. j. biol ; 84: e246463, 2024. tab
Artigo em Inglês | MEDLINE, LILACS, VETINDEX | ID: biblio-1355899

RESUMO

Abstract Quilombola communities are present in many Brazilian states living in precarious health conditions. This is due to geographic isolation, limitations to the access of the area in which they live in, and the lack of quality in the service when it is needed to be provided. Therefore, the aim of this study was to analyze the quality of life of women from a quilombola community in northeastern Brazil. It is an observational, cross-sectional and descriptive study. 160 adult women were first interviewed through a form to collect a profile and then it was applied the WHOQOL Quality of Life questionnaire - bref. It was observed that the women were on average 40.7 years old (±17.25), married, self-declared black, who did not finish elementary school, housewife, had no income, with their own masonry house, with up to 6 rooms, supplied by a box of community treated water. Quality of Life had median scores in the domains: physical (3.18), psychological (3.4), social relationships (3.45) and environment (2.59). With this research, it was possible to characterize the quilombola community of Santa Luzia do Norte-AL regarding the difficulties of access to health and income generation, issues that affect their health condition. The problems described in this study can contribute to health actions being planned and carried out in order to improve socioeconomic and health conditions in this community, considering the social, political and environmental context, valuing their traditional knowledge and practices.


Resumo As comunidades quilombolas, estão presentes em diversos estados brasileiros, vivendo em condições de saúde mais precárias. Isto ocorre por conta do isolamento geográfico, das limitações de acesso e da falta de qualidade no serviço quando este é prestado. Nesse sentido, o objetivo do estudo foi analisar a qualidade de vida de mulheres de uma comunidade quilombola do nordeste brasileiro. Estudo observacional, transversal e descritivo. Foram entrevistadas 160 mulheres adultas, através de um formulário para a coleta de perfil e do questionário de Qualidade de Vida WHOQOL - bref. Foi observado que as mulheres tinham em média 40,7 anos (±17,25), casadas, autodeclaradas negras, com fundamental incompleto, do lar, sem renda, com moradia de alvenaria, própria, com até 6 cômodos, abastecidas por caixa de água comunitária, tratada. A Qualidade de Vida, apresentou escores medianos nos domínios: físico (3,18), psicológico (3,4), relações sociais (3,45) e meio ambiente (2,59). Com a realização desta pesquisa foi possível caracterizar a comunidade quilombola de Santa Luzia do Norte-AL quanto as dificuldades de acesso a saúde e geração de renda, fatos que repercutem na sua condição de saúde. Os problemas descritos neste estudo podem contribuir para que ações de saúde sejam planejadas e efetivadas com o intuito de melhorar as condições socioeconômicas e de saúde nessa comunidade, considerando-se o contexto social, político e ambiental, valorizando seus saberes e práticas tradicionais.


Assuntos
Humanos , Feminino , Adulto , Qualidade de Vida , Brasil , Estudos Transversais , Inquéritos e Questionários
2.
Oxid Med Cell Longev ; 2022: 8918966, 2022.
Artigo em Inglês | MEDLINE | ID: mdl-35340209

RESUMO

Parkinson's disease (PD) is an age-related neurodegenerative disorder characterized by progressive deterioration of motor function and loss of dopaminergic neurons in the substantia nigra. Although PD is more common in people over 60 years old, people with young-onset PD tend to increase recently. Up to now, there is no cure for PD; therapies mainly focus on reducing symptoms and improving patient quality of life. Thus, the requirement of exploring new medications is needed. There is a strong relationship between oxidative stress and PD. Therefore, antioxidant compounds have been considered as a novel therapy for PD. In this study, we indicated a new potential candidate for PD treatment, rumdul fruit (Sphaerocoryne affinis-a member of the Annonaceae family), due to evaluating its activities on the fly model of Parkinson. Our experimental results showed that rumdul fruit water extract (RFWE) has a strong antioxidant capacity with IC50 value in DPPH assay which was 85.62 ± 1.05 µg/mL. The use of RFWE at concentrations of 3, 6, and 12 mg/mL could strongly ameliorate the locomotor disabilities and dopaminergic neuron degeneration. Although the RFWE at high concentrations like 12 mg/mL and 18 mg/mL could induce some side effects on fly development and viability, our data strongly demonstrated that RFWE effectively rescued PD phenotypes on the fly model. Although component in the plant extract, as well as the molecular mechanism helping to recover the phenotype, has not been elucidated yet, the research contributed strong scientific evidence for further research on applying rumdul as a novel natural source for PD treatment.


Assuntos
Annonaceae , Doença de Parkinson , Antioxidantes/farmacologia , Antioxidantes/uso terapêutico , Neurônios Dopaminérgicos , Humanos , Doença de Parkinson/tratamento farmacológico , Qualidade de Vida
3.
BMC Musculoskelet Disord ; 23(1): 308, 2022 Mar 31.
Artigo em Inglês | MEDLINE | ID: mdl-35361169

RESUMO

BACKGROUND: Calcific tendinitis of the shoulder (CT) is a common disorder with a large disease burden. The initial treatment is with conservative measures. However, when this fails the next step treatment remains unclear. Minimal invasive treatment modalities have emerged. Needle aspiration of the calcific deposits (NACD) and extracorporeal shock wave therapy (ESWT) have both shown good clinical results. Nonetheless, in the current orthopedic literature there are not any studies available that compare both the effectiveness and cost-effectiveness of those two treatment modalities. Therefore, our primary objective is to compare the effectiveness of NACD to ESWT. A secondary objective is to compare the cost-effectiveness of both treatment modalities and workability. METHODS: Following a power calculation using the minimal clinical important difference of our primary outcome (Constant-Murley score, CMS) 140 patients will be included in the study. Enrolment is based upon strict inclusion/ exclusion criteria outlined in the Methods section. Participants will be randomized by computer in two groups (e.g. 70 patients will receive NACD and 70 patients will receive ESWT). The NACD treatment will consist of a sonographically guided removal of the calcific deposits and the ESWT treatment will be a focused ESWT. Both treatments will be conducted according to a standardized protocol, as part of care as usual in our hospital. The primary outcome will be the between group differences in functional outcome (measured with the CMS) between baseline and after 12 months follow-up. Secondary outcomes will be questionnaires regarding the clinical outcome (SST) and quality of life (EQ-5D-5L). Furthermore, NRS pain and cost related questionnaires (iPCQ and ProDisQ) will be collected during follow-up after two months, six months and at final follow-up after 12 months. DISCUSSION: This study will provide more insight regarding treatment for conservative therapy resistant calcific tendinitis of the shoulder by comparing NACD to focused ESWT, which will aid the physician and patient in determining the appropriate treatment plan. TRIAL REGISTRATION: Dutch trial register: NTR7093 registered on 11 March 2018.


Assuntos
Calcinose , Tratamento por Ondas de Choque Extracorpóreas , Tendinopatia , Calcinose/complicações , Calcinose/diagnóstico por imagem , Calcinose/terapia , Tratamento Conservador , Humanos , Qualidade de Vida , Ensaios Clínicos Controlados Aleatórios como Assunto , Ombro , Tendinopatia/complicações , Tendinopatia/diagnóstico por imagem , Tendinopatia/terapia , Resultado do Tratamento
4.
Health Qual Life Outcomes ; 20(1): 71, 2022 Apr 29.
Artigo em Inglês | MEDLINE | ID: mdl-35488344

RESUMO

BACKGROUND: It is estimated that, worldwide, 9% of deaths occur as a result of insufficient physical activity (PA) practice. Practicing PA can prevent and/or reduce the deleterious effects of different types of diseases and can improve general health aspects related to health-related quality of life (HRQoL). PURPOSE: To analyze the relationship of different PA domains with different HRQoL domains over a two-year period. METHODS: This is an observational study with a two-year longitudinal design. The sample, composed of adults, was selected from a randomization of the streets of the different regions (north, south, east, west and center) covering individuals from all areas of the city. To assess the practice of PA, the Baecke questionnaire was used. The instrument Medical Outcomes Study SF-36-Item Short Form Health Survey was used to assess the HRQoL domains. Linear regression models were used to analyzed the association of different PA domains with changes in HRQoL. Multivariate statistical models were adjusted for gender, age, socioeconomic status, marital status, the respective PA score at baseline, smoking, body mass index, and morbidity. RESULTS: 331 adults were evaluated. There was a decrease in the practice of PA in the occupational domain and an increase in the leisure/locomotion domain. Regarding HRQoL, there was an increase in the scores of body pain and mental health, and a decrease in scores of general health, vitality, social aspects and emotional aspects. The PA practice in the occupational domain was inversely related to functional capacity (ß = - 7.2 [CI 95% - 13.0; - 1.4]). The practice of PA through sports in leisure time was positively associated with vitality (ß = 5.5 [CI 95% 0.2; 10.7]) and mental health (ß = 15.2 [CI 95% 6.8; 23.7]). PA practice during leisure and locomotion was inversely associated with functional capacity (ß = - 5.68 [CI 95% - 10.7; - 0.6]) and positively associated with vitality ß = 4.8 [CI 95% 0.8; 8.7]) and mental health (ß = 8.4 [CI 95% 2.0; 14.9]). The total PA practice was inversely associated with functional capacity (ß = - 3.8 [CI 95% - 6.5; - 1.2]) and positively associated with pain in the body (ß = 4.9 [CI 95% 0.3; 9.4]), vitality (ß = 2.9 [CI 95% 0.7; 5.0]) and mental health (ß = 5.7 [CI 95% 2.2; 9.2]). CONCLUSIONS: It is suggested that practicing PA continuously within a period of two years can positively affect some physical aspects and some mental aspects related to HRQoL, but not all of them. A strategy for public policy actions is to explore these variables by domain and thus detect the real needs and improvements that can be made for the population.


Assuntos
Nível de Saúde , Qualidade de Vida , Adulto , Estudos Transversais , Exercício Físico/psicologia , Humanos , Dor , Qualidade de Vida/psicologia
5.
Braz. j. oral sci ; 21: e225686, jan.-dez. 2022. tab
Artigo em Inglês | LILACS, BBO - Odontologia | ID: biblio-1366509

RESUMO

Aim: Tooth loss is very prevalent in Brazil, reflecting high demand for dental services, especially those related to oral rehabilitation. This study aimed to assess the quality of life in total edentulous patients rehabilitated with implants and fixed prosthesis. Methods: Thirty-two patients were evaluated before and after rehabilitation with dental implants and fixed prosthesis using the OHIP-14 questionnaire and the Visual Analogue Scale (VAS) after 6 months follow-up. Results:OHIP-14 revealed a significant improvement after treatment in all seven parameters and in the global score (P < 0.001). VAS presented positive results related to patient satisfaction regarding oral rehabilitation, except for the hygiene of the fixed dentures. Conclusion: At the end of this study, OHIP-14 scores decreased by 50% in most of the questions raised, and VAS presented positive results, except for hygiene of the fixed dentures, presenting an improvement in the quality of life of total edentulous patients after rehabilitation with implants and fixed prosthesis


Assuntos
Humanos , Masculino , Feminino , Qualidade de Vida , Implantes Dentários , Boca Edêntula/reabilitação , Satisfação do Paciente , Prótese Total
6.
Psychooncology ; 31(1): 54-61, 2022 01.
Artigo em Inglês | MEDLINE | ID: mdl-34498358

RESUMO

OBJECTIVES: To examine the impact of breast reconstruction on women's perceptions of body image over time and to assess the influence of sociodemographic variables on body image. METHODS: A prospective, longitudinal cohort study, using validated breast cancer-specific questionnaires, to compare patient-reported outcomes in women choosing immediate (n = 61), delayed (n = 16) or no (n = 23) breast reconstruction. RESULTS: One hundred women completed baseline questionnaires that included items on body image; 30 women completed all four annual follow-up sets, while 20 women completed baseline only. The three groups were well matched at baseline and similar trajectories in body image measures were identified over 48 months in all groups. At 12 months post-mastectomy, significant changes were seen in eight of the 10 subscales; this reduced to seven subscales at 24 months and four at 36 months. By 48 months, only three subscales remained significantly different to baseline scores: women remained less vulnerable and had fewer limitations (improved outcomes); the one worse outcome was persistently higher levels of arm concern. Three of the sociodemographic variables (health insurance, age and employment status) showed significant inter-group differences at some time points. CONCLUSION: These findings suggest women recover from the negative impact of mastectomy on body image within four years of surgery, whether they have immediate, delayed or no reconstruction. Our results provide some indirect evidence that having a choice of BR options is important, regardless of the choice made. Four years appears to be a suitable follow-up period for future studies in this area.


Assuntos
Neoplasias da Mama , Mamoplastia , Imagem Corporal , Neoplasias da Mama/cirurgia , Feminino , Humanos , Estudos Longitudinais , Mamoplastia/métodos , Mastectomia , Medidas de Resultados Relatados pelo Paciente , Estudos Prospectivos , Qualidade de Vida
7.
Multimedia | Recursos Multimídia | ID: multimedia-9685

RESUMO

O webinário abordará a importância, as possibilidades e as oportunidades para o breve aconselhamento sobre diferentes comportamentos, por parte de diferentes profissionais, na rotina de serviço das UBS. Também se pretende refletir sobre os obstáculos para o breve aconselhamento e os resultados observados a partir da sua prática. As UBS e suas equipes são responsáveis por cuidar dos indivíduos e de suas famílias, por meio de consultas de rotina, visitas domiciliares e acompanhamento de condições como diabetes mellitus e hipertensão arterial sistêmica, entre outros serviços. Dessa forma, todo e qualquer contato das equipes com os usuários, na rotina do serviço, deve ser considerado uma oportunidade para a promoção da saúde. Nesse sentido, o breve aconselhamento em saúde será debatido enquanto estratégia relativamente simples e com grande potencial de promoção de saúde, principalmente por envolver linguagem acessível e objetiva. Breve aconselhamento em Atenção Primária à Saúde. Considerado pela Organização Mundial da Saúde (OMS) como uma importante ferramenta no contexto da prevenção e controle das doenças crônicas, o breve aconselhamento é uma ação educativa, e qualquer profissional de saúde pode oferecê-lo. Com duração média de 10 minutos, é uma abordagem feita durante a consulta clínica, para a modificação de diferentes comportamentos associados ao estilo de vida (alimentação, atividade física, consumo de álcool e tabagismo), no contexto dos cuidados primários de saúde. A padronização dessa abordagem permite mais eficiência no funcionamento dos serviços de saúde, garantindo uma base de intervenção e facilitando o monitoramento das ações. Além disso, a implementação do breve aconselhamento e a identificação precoce de doenças aumentam as oportunidades de acompanhamento e uma melhor articulação entre os profissionais de saúde. A prática é uma medida de prevenção e deve ser realizada durante as consultas nos serviços de APS, considerando adicionalmente a necessidade de referenciar de acordo com os fluxos para o cuidado integral em saúde. A abordagem pode contribuir para a diminuição de doenças como diabetes e obesidade, para o melhor controle após a sua instalação, para o menor risco de complicações associadas e, consequentemente, para a menor necessidade de utilização de serviços de saúde especializados futuramente.


Assuntos
Atenção Primária à Saúde/normas , Guias Alimentares , Dieta Saudável , Estilo de Vida Saudável , Alimentos Integrais , Comportamento Alimentar , Segurança Alimentar , Alimentos Industrializados , Exercício Físico , Qualidade de Vida , Brasil , Tabagismo/prevenção & controle , Promoção da Saúde , Pessoal de Saúde
9.
Multimedia | Recursos Multimídia | ID: multimedia-9691

RESUMO

O II Seminário Internacional de Alimentação e Nutrição na Atenção Primária à Saúde teve como objetivo disseminar informações técnico-científicas e promover trocas de experiências a partir de espaços de discussão e proposição de ações em conjunto com coordenadores estaduais e municipais de alimentação e nutrição, gestores e profissionais envolvidos no desenvolvimento destas ações nos territórios, além de pesquisadores, estudantes e demais interessados no tema. Esse contou com um público de 5 mil pessoas, residentes em mais de 50 países. Houve o lançamento de duas importantes publicações: Recomendações para o Fortalecimento da Atenção Nutricional na Atenção Primária à Saúde no Brasil e Matriz para Organização dos Cuidados em Alimentação e Nutrição na Atenção Primária à Saúde. Esses materiais foram desenvolvidos para dar apoio técnico aos gestores e profissionais na organização da atenção nutricional e na formulação de estratégias de cuidado nos territórios cobertos pela APS no Brasil, buscando reverter cenários de má nutrição.


Assuntos
Política Nutricional , Segurança Alimentar , Dieta Saudável , Doenças não Transmissíveis/prevenção & controle , Insegurança Alimentar , Sistemas Locais de Saúde , Desenvolvimento Sustentável , Desnutrição/prevenção & controle , Atenção Primária à Saúde , Colaboração Intersetorial , Vigilância Nutricional , Formulação de Políticas , Alimentos Industrializados , Promoção da Saúde , Prisioneiros , Comportamento Alimentar , Saúde da Família , COVID-19/epidemiologia , Agentes Comunitários de Saúde , Alocação de Recursos para a Atenção à Saúde/economia , Pessoal de Saúde/educação , Estilo de Vida Saudável , Qualidade de Vida , Educação Alimentar e Nutricional , Alimentos Integrais
10.
Multimedia | Recursos Multimídia | ID: multimedia-9692

RESUMO

O II Seminário Internacional de Alimentação e Nutrição na Atenção Primária à Saúde teve como objetivo disseminar informações técnico-científicas e promover trocas de experiências a partir de espaços de discussão e proposição de ações em conjunto com coordenadores estaduais e municipais de alimentação e nutrição, gestores e profissionais envolvidos no desenvolvimento destas ações nos territórios, além de pesquisadores, estudantes e demais interessados no tema. Esse contou com um público de 5 mil pessoas, residentes em mais de 50 países. Houve o lançamento de duas importantes publicações: Recomendações para o Fortalecimento da Atenção Nutricional na Atenção Primária à Saúde no Brasil e Matriz para Organização dos Cuidados em Alimentação e Nutrição na Atenção Primária à Saúde. Esses materiais foram desenvolvidos para dar apoio técnico aos gestores e profissionais na organização da atenção nutricional e na formulação de estratégias de cuidado nos territórios cobertos pela APS no Brasil, buscando reverter cenários de má nutrição.


Assuntos
Atenção Primária à Saúde , Política Nutricional , Segurança Alimentar , Insegurança Alimentar , Vigilância Nutricional , Promoção da Saúde , Obesidade/prevenção & controle , Integralidade em Saúde , Saúde Ambiental , Colaboração Intersetorial , Sistemas Locais de Saúde , Bebidas Adoçadas com Açúcar/normas , COVID-19/epidemiologia , Dieta Saudável , Alimentos Industrializados , Agentes Comunitários de Saúde , Doenças não Transmissíveis/prevenção & controle , Guias Alimentares , Saúde da Família , Desenvolvimento Sustentável , Manejo da Obesidade , Estigma Social , Estilo de Vida Saudável , Qualidade de Vida , Canadá , Brasil , Reino Unido
11.
Multimedia | Recursos Multimídia | ID: multimedia-9693

RESUMO

O II Seminário Internacional de Alimentação e Nutrição na Atenção Primária à Saúde teve como objetivo disseminar informações técnico-científicas e promover trocas de experiências a partir de espaços de discussão e proposição de ações em conjunto com coordenadores estaduais e municipais de alimentação e nutrição, gestores e profissionais envolvidos no desenvolvimento destas ações nos territórios, além de pesquisadores, estudantes e demais interessados no tema. Esse contou com um público de 5 mil pessoas, residentes em mais de 50 países. Houve o lançamento de duas importantes publicações: Recomendações para o Fortalecimento da Atenção Nutricional na Atenção Primária à Saúde no Brasil e Matriz para Organização dos Cuidados em Alimentação e Nutrição na Atenção Primária à Saúde. Esses materiais foram desenvolvidos para dar apoio técnico aos gestores e profissionais na organização da atenção nutricional e na formulação de estratégias de cuidado nos territórios cobertos pela APS no Brasil, buscando reverter cenários de má nutrição.


Assuntos
Atenção Primária à Saúde , Política Nutricional , Segurança Alimentar , Insegurança Alimentar , Pessoal de Saúde/educação , Educação Alimentar e Nutricional , Promoção da Saúde , Sistemas Locais de Saúde , Estilo de Vida Saudável , Qualidade de Vida , Dieta Saudável , Serviços de Saúde Escolar , Vigilância Nutricional , COVID-19/epidemiologia , Nutrição da Criança/educação , Alimentos Industrializados , Doenças não Transmissíveis/prevenção & controle , Publicidade de Alimentos , Exercício Físico , Comportamento Alimentar
12.
Clin. transl. oncol. (Print) ; 24(6): 1033-1046, junio 2022.
Artigo em Inglês | IBECS | ID: ibc-203804

RESUMO

Most patients diagnosed with luminal metastatic breast cancer (MBC) who are seen in oncology consultations are elderly. MBC in elderly patients is characterized by a higher percentage of hormone receptor (HR) expression and a lower expression of human epidermal growth factor receptor 2 (HER2). The decision regarding which treatment to administer to these patients is complex due to the lack of solid evidence to support the decision-making process. The objective of this paper is to review the scientific evidence on the treatment of elderly patients with luminal MBC. For this purpose, the Oncogeriatrics Section of the Spanish Society of Medical Oncology (SEOM), the Spanish Breast Cancer Research Group (GEICAM) and the SOLTI Group appointed a group of experts who have worked together to establish consensus recommendations to optimize the treatment of this population. It was concluded that the chronological age of the patient alone should not guide therapeutic decisions and that a Comprehensive Geriatric Assessment (CGA) should be performed whenever possible before establishing treatment. Treatment selection for the elderly population should consider the patient’s baseline status, the expected benefit and toxicity of each treatment, and the impact of treatment toxicity on the patient’s quality of life and functionality.


Assuntos
Humanos , Masculino , Feminino , Mama/patologia , Neoplasias Unilaterais da Mama/tratamento farmacológico , Neoplasias Unilaterais da Mama/metabolismo , Avaliação Geriátrica , Receptor ErbB-2 , Fatores Etários , Qualidade de Vida
13.
BMC Womens Health ; 22(1): 198, 2022 05 28.
Artigo em Inglês | MEDLINE | ID: mdl-35643446

RESUMO

BACKGROUND: Breast cancer may impair health-related quality of life (HRQoL). We examined the mediating roles of perceived social support (PSS) and coping style (CS) in the relationship between resilience and HRQoL in newly diagnosed breast cancer patients. METHODS: Following a cross-sectional design, 431 patients completed a survey at two hospitals in Shaanxi Province, China. Four validated self-report measures assessed HRQoL, psychological resilience, PSS, and CS. A one-sample t-test analyzed differences between resilience, PSS, and CS in breast cancer patients and the corresponding norm. Multivariate linear regression analyzed the independent predictors of HRQoL. The mediating roles of PSS and CS between resilience and HRQoL were investigated using structural equation modeling (SEM). RESULTS: Participants had significantly lower scores for resilience and PSS, and higher scores for the avoidance and resignation CSs than their corresponding norm. SEM analysis showed resilience had significant direct effects on PSS (Bs: 0.59, 95% CI 0.49, 0.68, P = 0.003), CS (confrontation: 0.53 (0.44, 0.62), P = 0.001; resignation: - 0.66 (- 0.74, - 0.57), P = 0.002), and HRQoL (Bs range from 0.44 to 0.63, P < 0.05). Resilience had significant indirect effects (Bs range from 0.09 to 0.27), and PSS and CS had significant direct effects on HRQoL (P < 0.05). CONCLUSIONS: Newly diagnosed breast cancer patients had lower resilience and PSS, and higher negative CSs, suggesting that PSS and CS mediated the influence of resilience on HRQoL. A multimodal intervention program focusing on PSS and CS might improve the positive influences of resilience on HRQoL in breast cancer patients.


Assuntos
Neoplasias da Mama , Qualidade de Vida , Adaptação Psicológica , Neoplasias da Mama/psicologia , Estudos Transversais , Feminino , Humanos , Qualidade de Vida/psicologia , Apoio Social
14.
BMC Womens Health ; 22(1): 207, 2022 06 03.
Artigo em Inglês | MEDLINE | ID: mdl-35658863

RESUMO

BACKGROUND: Burden of breast cancer it continues to increase largely because of the aging and growth of the world population and assessment of quality of life is an important outcome measure to facilitate and improved care among breast cancer survivors, the aim of this study was to evaluate evidence of reliability, validity, and responsiveness of the Arabic version of the FACT-B + 4 questionnaire among participants with breast cancer related lymphedema (BCRL) in Saudi Arabia. METHODS: A prospective cross-sectional study, 51 participants with BCRL completed the Arabic version of FACT-B + 4. Internal consistency and test-retest-reliability were assessed using Cronbach's alpha, intraclass correlation-coefficient (ICC), and limits of agreement according to the Bland Altman method, respectively. The validation studies were carried-out by examining predefined hypotheses (n = 14) for both construct and Known-groups validity. To investigate the responsiveness, the Arabic version of FACT-B + 4 questionnaire was administrated preoperative and 4 weeks postoperatively among the participants with breast cancer (n = 34). RESULTS: The Cronbach alpha of the Arabic FACT-B + 4 total score was 0.90 and for the different subscales ranged from 0.74 to 0.89. Test-retest reliability for FACT-B + 4 total score and different subscales was found to be moderate to very strong (ICC 0.51-0.94). The Bland-Altman plot was adequate - 19.24 and 22.10 points. Measurement variability was acceptable for Arabic FACT-B + 4 and ARM subscale (standard error of measurement = 5.34, and 1.34). Moderate correlations (r = 0.42-0.62) were found between the subscale of the FACTB + 4 and the corresponding domains of SF-36. For known group validity, 72% (10 of 14) hypotheses on known group validity were accepted. CONCLUSION: FACT-B + 4 has adequate psychometric properties, thus making it useful for assessing QOL quality of life in Arabic speaking women with BCRL.


Assuntos
Linfedema Relacionado a Câncer de Mama , Neoplasias da Mama , Neoplasias da Mama/complicações , Estudos Transversais , Feminino , Humanos , Morbidade , Estudos Prospectivos , Psicometria , Qualidade de Vida , Reprodutibilidade dos Testes , Inquéritos e Questionários
15.
BMC Womens Health ; 22(1): 217, 2022 06 09.
Artigo em Inglês | MEDLINE | ID: mdl-35681158

RESUMO

BACKGROUND: Women living with HIV (WLWH) report low engagement in health care, missed office visits, and less engagement in the clinical encounter. Strengthening the clinical encounter for WLWH may improve health outcomes and quality of life. The Adaptive Leadership Framework for Chronic Illness offers specific adaptive leadership strategies for providers to improve patient-provider interactions. The purpose of this study was to examine adaptive leadership behaviors that contribute to the development of effective patient-provider communication from the perspectives of WLWH. METHODS: The descriptive, cross-sectional and qualitative study conducted interviews with 22 WLWH to assess perceptions of the clinical encounter related to HIV-related stigma, engagement in care, medical distrust, and experiences with discrimination and quality of life. Members of the study team using a set of a priori codes analyzed data using NVivo 12.0. RESULTS: Participants described two primary themes and subthemes of each for adaptive leadership behaviors. The primary theme for adaptive leadership of providers was "my provider cares about me"; subthemes were communication, trust building takes time, and supportive providers are trusted. The primary theme for adaptive leadership of WLWH themselves was "I care about me; subthemes were self-advocacy and self-empowerment. CONCLUSIONS: Providers can use adaptive leadership behaviors during clinical encounters to support WLWH, improve patient-provider communication, enhance trust, and improve patient outcomes.


Assuntos
Infecções por HIV , Estudos Transversais , Feminino , Humanos , Liderança , Pesquisa Qualitativa , Qualidade de Vida , Estigma Social
16.
Artigo em Inglês | MEDLINE | ID: mdl-35682448

RESUMO

We aimed to review the data available to evaluate the long-term consequences of coronavirus disease 2019 (COVID-19) at 6 months and above. We searched relevant observational cohort studies up to 9 February 2022 in Pubmed, Embase, and Web of Science. Random-effects inverse-variance models were used to evaluate the Pooled Prevalence (PP) and its 95% confidence interval (CI) of long-term consequences. The Newcastle-Ottawa quality assessment scale was used to assess the quality of the included cohort studies. A total of 40 studies involving 10,945 cases of severe acute respiratory syndrome coronavirus-2 (SARS-CoV-2) infection were included. Of the patients, 63.87% had at least one consequence at the 6 month follow-up, which decreased to 58.89% at 12 months. The most common symptoms were fatigue or muscle weakness (PP 6-12 m = 54.21%, PP ≥ 12 m = 34.22%) and mild dyspnea (Modified Medical Research Council Dyspnea Scale, mMRC = 0, PP 6-12 m = 74.60%, PP ≥ 12 m = 80.64%). Abnormal computerized tomography (CT; PP 6-12 m = 55.68%, PP ≥ 12 m = 43.76%) and lung diffuse function impairment, i.e., a carbon monoxide diffusing capacity (DLCO) of < 80% were common (PP 6-12 m = 49.10%, PP ≥ 12 m = 31.80%). Anxiety and depression (PP 6-12 m = 33.49%, PP ≥ 12 m = 35.40%) and pain or discomfort (PP 6-12 m = 33.26%, PP ≥ 12 m = 35.31%) were the most common problems that affected patients' quality of life. Our findings suggest a significant long-term impact on health and quality of life due to COVID-19, and as waves of ASRS-CoV-2 infections emerge, the long-term effects of COVID-19 will not only increase the difficulty of care for COVID-19 survivors and the setting of public health policy but also might lead to another public health crisis following the current pandemic, which would also increase the global long-term burden of disease.


Assuntos
COVID-19 , COVID-19/epidemiologia , Dispneia/epidemiologia , Dispneia/etiologia , Humanos , Pandemias , Qualidade de Vida , SARS-CoV-2
17.
Artigo em Inglês | MEDLINE | ID: mdl-35682454

RESUMO

Tanzania is among the top five countries with a high burden of sickle cell disease (SCD) in the world. Even though the effects of SCD on quality of life have been documented in other countries including Nigeria and the United States of America, few are known from Tanzania. Therefore, this study focused on evaluating the effects of SCD on the quality of life among children living with SCD and their parents. The study employed a qualitative approach to interview purposively selected parents of children who have lived with SCD and have used hydroxyurea (HU) for more than 3 years. The in-depth interviews were conducted with 11 parents of children with SCD at the Muhimbili University of Health and Allied Sciences (MUHAS) in Dar-es-salaam, Tanzania. A semi-structured interview guide was used. Interviews were audio-recorded, transcribed, and thematically analyzed. Three themes were generated including psycho-social effects: family conflicts and divorce, limited access to education, stress and fear; financial effects: Employment limitation, reduced efficiency and productivity, loss of job and lack of self-keeping expenses; and physical effects: physical disability and dependence, and burden of the frequent crisis. Children living with SCD and their parents suffer psycho-social, financial, and physical impacts of the disease. Appropriate interventions should be introduced to minimize the observed effects as ways of improving the quality of life of the individuals living with SCD and their caregivers.


Assuntos
Anemia Falciforme , Qualidade de Vida , Cuidadores , Criança , Medo , Humanos , Tanzânia/epidemiologia
18.
Artigo em Inglês | MEDLINE | ID: mdl-35682464

RESUMO

Colorectal cancer is one of the most common cancers in Europe and the world. Cancer treatments have side effects and cause significant deterioration of the patient's nutritional status. Patient malnutrition may worsen the health condition and prevent the deliberate effects of the therapy. The aim of this review was to describe the available data about clinical nutrition in colorectal cancer patients. A large proportion of colorectal cancer patients suffer from malnutrition, which negatively affects the survival prognosis, quality of life, and oncological therapy. Therefore, monitoring nutritional status during the treatment is essential and can be used to arrange proper nutritional therapy to enhance patient responses, prevent side effects, and shorten recovery time. The principles of nutrition during anticancer therapy should mainly consider light and low-fat foods, the exclusion of lactose and gluten-containing foods in certain cases, or the introduction of special dietary products such as oral nutrition supplements and it should be tailored to patients' individual needs.


Assuntos
Neoplasias Colorretais , Desnutrição , Terapia Nutricional , Neoplasias Colorretais/terapia , Humanos , Desnutrição/etiologia , Estado Nutricional , Qualidade de Vida
19.
Artigo em Inglês | MEDLINE | ID: mdl-35682495

RESUMO

Previous research has demonstrated the efficacy of psychological interventions to foster resilience. However, little is known about whether the cultural context in which resilience interventions are implemented affects their efficacy on mental health. Studies performed in Western (k = 175) and Eastern countries (k = 46) regarding different aspects of interventions (setting, mode of delivery, target population, underlying theoretical approach, duration, control group design) and their efficacy on resilience, anxiety, depressive symptoms, quality of life, perceived stress, and social support were compared. Interventions in Eastern countries were longer in duration and tended to be more often conducted in group settings with a focus on family caregivers. We found evidence for larger effect sizes of resilience interventions in Eastern countries for improving resilience (standardized mean difference [SMD] = 0.48, 95% confidence interval [CI] 0.28 to 0.67; p < 0.0001; 43 studies; 6248 participants; I2 = 97.4%). Intercultural differences should receive more attention in resilience intervention research. Future studies could directly compare interventions in different cultural contexts to explain possible underlying causes for differences in their efficacy on mental health outcomes.


Assuntos
Qualidade de Vida , Estresse Psicológico , Ansiedade/diagnóstico , Cuidadores/psicologia , Depressão/diagnóstico , Humanos , Saúde Mental , Estresse Psicológico/psicologia
20.
BMC Womens Health ; 22(1): 219, 2022 06 10.
Artigo em Inglês | MEDLINE | ID: mdl-35689259

RESUMO

BACKGROUND: Endometriosis and adenomyosis are common benign conditions compromising both physical and psychological health, with a negative impact on quality of life. This survey aimed to establish what the users' perspectives are on best possible care in the context of developing a multidisciplinary center for endometriosis and adenomyosis in Norway. METHODS: An electronic questionnaire was developed in collaboration between the Norwegian Patient's Endometriosis Society (NPES) and gynecologists with special interest in endometriosis and adenomyosis. The questionnaire was distributed digitally to the members of NPES in May 2021. RESULTS: 938 participants answered the questionnaire. Better patient information, long term therapeutic plans and integration of their partners into their care were the main concerns. Multidisciplinary care was a key issue for the majority, with (n = 775) 89% stating a need for a consultation with a psychologist, (n = 744) 86% at least one consultation with a nutritionist, (n = 733) 85% a physiotherapist, and (n = 676) 78% needing a sex therapist and (n = 935) 99,7% consider research and (n = 934) 99,8% consider quality assurance initiated by the endometriosis center to be important. The qualitative analysis of free text answers revealed a great need for updated and easily accessible information, meeting competent health care professionals and being taken seriously/listened to. CONCLUSIONS: This survey shows similar perceptions and a high level of agreement regarding their needs amongst people with endometriosis and/or adenomyosis. This survey supports recommendations by the experts that endometriosis/adenomyosis care should be centralized in specialized, multidisciplinary centers. The results of the present work will be valuable for the future planning and development of a multidisciplinary endometriosis center.


Assuntos
Adenomiose , Endometriose , Adenomiose/terapia , Endometriose/terapia , Feminino , Humanos , Noruega , Qualidade de Vida , Inquéritos e Questionários
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