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1.
Hu Li Za Zhi ; 67(1): 106-112, 2020 Feb.
Artigo em Chinês | MEDLINE | ID: mdl-31960402

RESUMO

Preterm infants face increased rates of mortality and developmental complications, which are a burden on children's parents (and caregivers), who suffer from exhaustion and situational uncertainty. This case focused on an extremely-low-birth-weight (908 gm) premature infant with initial unstable vital signs complicated by a grade 4 intraventricular hemorrhage (IVH) that led to partial brain atrophy and enlarged brain ventricles. A poor neurological outcome was expected due to the high risk of cerebral palsy and impaired cognitive abilities. Long-term healthcare for this critical infant was causing tremendous physical, emotional, and financial strains on the family. The parents suffered from worries over the poor prognosis, resulting in stress, sleep disorders, and relationship difficulties with the healthcare professionals. Considering the poor prognosis of the infant, the parents faced a medical dilemma between choosing aggressive treatment and withdrawal of treatment, which led to stress and sleep disorders. Differences between the parents and health professionals regarding disease severity perception and treatment opinions further strained their mutual relationship. To ameliorate this issue, the author implemented family-centered care (the FOCUS family intervention) to help the patient and his family. This intervention is designed to increase family involvement, foster an optimistic attitude and effective stress coping techniques, and reduce uncertainty and negative emotions. For the patient, we provided symptom-relief management to improve abnormal muscle tone and development delay. Our intervention ameliorated the negative emotions, insomnia symptoms, and imbalanced family relationships and improved the life quality of the caregivers. Furthermore, the intervention enhanced the patient's autoregulatory ability, and both physical and neurological development. This case study is expected to provide experience in critical care for premature infants with a poor prognosis and their family using a FOCUS family intervention as well as to improve the quality of healthcare delivery in intensive clinical settings.


Assuntos
Hemorragia Cerebral/terapia , Família/psicologia , Doenças do Prematuro/terapia , Relações Profissional-Família , Hemorragia Cerebral/patologia , Humanos , Recém-Nascido de Peso Extremamente Baixo ao Nascer , Recém-Nascido , Recém-Nascido Prematuro , Doenças do Prematuro/patologia
2.
Urologe A ; 59(1): 87-98, 2020 Jan.
Artigo em Alemão | MEDLINE | ID: mdl-31728563

RESUMO

The juridification of medicine affects all disciplines, including urology. Therefore, in this discipline it can well happen that patients not only feel wrongly treated or complain that a treatment was not performed lege artis but also demand compensation or even bring criminal charges. From the patient point of view, the doctor is often more likely to blame for a complication that has arisen or for a hoped for but failed treatment success, than that it is accepted that a complication is typical for the intervention, which, despite the greatest medical care, unfortunately can become reality and is a fateful course. Insurance against claims for damages can be taken out. Not to be underestimated, however, is the personal burden of the accusations with which doctors are confronted by patients, relatives, expert witnesses and courts and against which one must defend oneself. This can mean additional work in addition to the normal medical workload. Therefore, the legal pitfalls in urology should be known.


Assuntos
Imperícia/legislação & jurisprudência , Urologia/legislação & jurisprudência , Compensação e Reparação/legislação & jurisprudência , Prova Pericial/legislação & jurisprudência , Humanos , Seguro de Responsabilidade Civil/economia , Seguro de Responsabilidade Civil/legislação & jurisprudência , Responsabilidade Legal/economia , Imperícia/economia , Aceitação pelo Paciente de Cuidados de Saúde , Relações Médico-Paciente , Relações Profissional-Família , Urologia/economia
4.
Rev. Pesqui. (Univ. Fed. Estado Rio J., Online) ; 12: 189-195, jan.-dez. 2020. ilus
Artigo em Inglês, Português | LILACS, BDENF - Enfermagem | ID: biblio-1047755

RESUMO

Objetivo: discutir sobre a reação familiar frente ao processo de comunicação de morte encefálica e a possível doação de órgãos. Método: revisão integrativa da literatura, com busca dos artigos nas bases de dados: SciELO, BEDENF, LILACS, MEDLINE publicados entre os anos de 2008 a 2017. Selecionou-se para essa pesquisa, 14 publicações conforme os critérios de inclusão e exclusão. Resultados: o elemento principal para que o processo de doação seja satisfatório é a família. E que estes apresentam reações diversas ao receber a informação de morte encefálica e a possível doação de órgão. Dentre esses vários fatores estão a local onde a comunicação é realizada e o desconhecimento dos familiares sobre a opinião do doador. Conclusão: ao receberem o diagnóstico de morte encefálica, os familiares apresentam manifestações como tristeza, choro e revolta. O desconhecimento esse assunto, leva os familiares a uma série de questionamentos e uma possível recusa na doação


Objective: discuss about the family reaction in front of the communication process of brain death and possible organ donation. Method: integrative review of literature, with search of articles in databases: SciELO, BEDENF, LILACS, MEDLINE published between the years of 2008 to 2017. We selected for this research, 14 publications according to the criteria of inclusion and exclusion. Results: the main element for which the donation process is satisfactory is the family. And they have different reactions to receive the information of brain death and organ donation possible. Among these various factors are the place where the communication is performed and the lack of family about the opinion of the donor. Conclusion: to receive the diagnosis of brain death, the rooms feature manifestations such as sadness, crying and revolt. The lack of this subject, brings the family to a series of questions and a possible refusal in the donation


Objetivo: discutir acerca de la reacción de la familia frente al proceso de comunicación de muerte cerebral y posible la donación de órganos. Método: revisión de la literatura integradora, con búsqueda de artículos en bases de datos: BEDENF, SciELO, LILACS, MEDLINE, publicados entre los años de 2008 a 2017. Hemos seleccionado para esta investigación, 14 publicaçoes según los criterios de inclusión y exclusión. Resultados: el principal elemento para que el proceso de donación es satisfactoria es la familia. Y tienen diferentes reacciones para recibir la información de la muerte cerebral y la donación de órganos es posible. Entre estos diversos factores son el lugar donde se realiza la comunicación y de la falta de familia acerca de la opinión de los donantes. Conclusión: para recibir el diagnóstico de muerte cerebral, las habitaciones cuentan con manifestaciones como la tristeza, el llanto y la revuelta. La falta de este tema, trae a la familia a una serie de preguntas y un posible rechazo de la donación


Assuntos
Humanos , Masculino , Feminino , Relações Profissional-Família/ética , Obtenção de Tecidos e Órgãos , Morte Encefálica , Família/psicologia
5.
Artigo em Inglês, Português | LILACS, BDENF - Enfermagem | ID: biblio-1048327

RESUMO

Objetivo: descrever ações executadas pelo acompanhante junto à parturiente, conforme informações recebidas no pré-natal. Método: estudo qualitativo, descritivo, exploratório, com 21 acompanhantes, com o uso de um questionário semiestruturado. No processamento de análise dos dados, foi utilizado o software Iramuteq. Resultados: emergiram duas classes: 1. A informação no pré-natal sobre o direito do acompanhante e 2. A participação do acompanhante junto à parturiente e as ações executadas. Conclusão: a informação referente ao direito do acompanhante e ações a serem desenvolvidas por eles no processo de parto foram poucas ou nenhuma durante o pré-natal e as ações realizadas por eles foram provenientes de conhecimento adquirido por meio de busca individual ou recebido no momento da internação


Objective: to describe actions taken by the companion of the parturient, according the information received in prenatal care. Method: qualitative, descriptive, exploratory study with 21 companions, with the use of a semi-structured questionnaire. In the data analysis processing, Iramuteq software was used. Results: the two categories that emerged: 1. The information in the prenatal about your rights to the parturient companion 2. The participation of the parturient companion and the actions taken. Conclusion: observed that the information concerning the right of the companion and actions to be undertaken by them on labor process, were little or no during prenatal care, and the actions performed by them came from knowledge acquired through individual search or received at the time of hospitalization


Objetivo: describir acciones ejecutadas por el acompañante junto a la parturienta, conforme informaciones recibidas en el prenatal. Método: estudio cualitativo, descriptivo, exploratorio, con 21 acompañantes, con el uso de un cuestionario semiestructurado. En el procesamiento de análisis de los datos, se utilizó el software Iramuteq. Resultados: emergieron dos clases: 1. La información en el prenatal sobre el derecho del acompañante y 2. La participación del acompañante junto a la parturienta y las acciones ejecutadas. Conclusión: la información referente al derecho del acompañante y acciones a ser desarrolladas por ellos en el proceso de parto y parto fueron pocas o ninguna durante el prenatal y las acciones realizadas por ellos, fueron provenientes de conocimiento adquiridos por medio de búsqueda individual o recibidas en el momento de la internación


Assuntos
Humanos , Masculino , Feminino , Gravidez , Adulto , Pessoa de Meia-Idade , Cuidado Pré-Natal , Parto Humanizado , Acompanhantes Formais em Exames Físicos/tendências , Relações Profissional-Família , Relações Profissional-Paciente , Trabalho de Parto , Parto , Pesquisa Qualitativa , Humanização da Assistência , Acolhimento
6.
Artigo em Inglês, Português | LILACS, BDENF - Enfermagem | ID: biblio-1048054

RESUMO

Objetivo: compreender a contribuição da consulta de enfermagem para a educação em saúde dos familiares de crianças em tratamento quimioterápico ambulatorial. Método: pesquisa de campo de abordagem qualitativa, realizada no interior do estado de São Paulo com 15 famílias atendidas na consulta de enfermagem, por meio de entrevista semiestruturada. Os dados foram analisados com a técnica de análise de conteúdo. Resultados: identificou-se uma categoria temática central "A consulta de enfermagem como ferramenta para o empoderamento dos pais", subsidiada pelos seguintes núcleos de sentido: fundamental, apoio, acolhimento, relação de confiança e vínculo, aprendizado e segurança. Conclusão: a consulta de enfermagem foi revelada como um espaço que proporciona o empoderamento da família por meio da aquisição do conhecimento sobre o diagnóstico, o tratamento e a forma de lidar com a criança oncológica, o que possibilita aos pais maior segurança para cuidarem do filho


Objective: to understand the contribution of the nursing consultation to the health education of the relatives of children undergoing outpatient chemotherapy. Method: a qualitative field survey was carried out at in a town in the State of Sao Paulo with 15 families seen at the nursing consultation. Data collection was performed through a semi-structured interview and analyzed through content analysis technique. Results: a central thematic category was identified: "The nursing consultation as a tool for empowering the parents", supported by the nuclei of meaning: fundamental, support, reception, trust and bonding, learning and confidence. Conclusion: the nursing consultation was revealed as a moment for providing empowerment for the child's family through knowledge acquisition regarding the diagnosis, treatment and way of coping with the oncological child, which provides the parents with greater confidence to care for their child


Objetivo: comprender la contribución de la consulta de enfermería para la educación en salud de familiares de niños en tratamiento ambulatorio de quimioterapia. Método: estudio de campo de enfoque cualitativo, realizado en el interior de São Paulo, con 15 familias atendidas en consulta de enfermería, por medio de entrevista semiestructurada. Los datos fueron analizados con la técnica de análisis de contenido. Resultados: se identificó una categoría temática central "La consulta de enfermería como herramienta para empoderamiento de los padres", auxiliada por los siguientes núcleos de sentido: fundamental, apoyo, acogida, relación de confianza y vínculo, aprendizaje y seguridad. Conclusión: la consulta de enfermería fue revelada como un espacio que proporciona el empoderamiento de la familia por medio de adquisición de conocimiento sobre el diagnóstico, el tratamiento y la forma de tratar con el niño oncológico, lo que les propicia a los padres mayor seguridad para cuidar del hijo


Assuntos
Humanos , Masculino , Criança , Adulto , Pais/educação , Enfermagem no Consultório , Oncologia/educação , Relações Profissional-Família , Família , Saúde da Criança , Pesquisa Qualitativa , Assistência Ambulatorial
7.
World Neurosurg ; 133: 457-465, 2020 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-31881580

RESUMO

Clinical neurosurgery is a complex specialty with multiple participants, including a variety of providers, patients, family members, and administrators, who interact in complex fashions. Modern-day patient care requires near-constant team communication of vital, detailed clinical information; any breakdown in this process can result in patient harm. Medical communication practices with patients impact mutual rapport as well as the overall physician-patient relationship. Enhanced relationship-centered communication techniques have been shown to improve patient compliance and may positively influence malpractice litigation rates. Neurosurgeons frequently interact with other health care providers and members of the hospital administration on matters relating to billing, compliance, and quality. Communication among the stakeholders is complicated, however, by the fact that the participants may be speaking a variety of different, mutually unintelligible "languages." We discuss the details of the various types of information exchanges in neurosurgery, the key players involved, and the vulnerabilities to breakdowns in the system. In addition, we review the multifaceted, systems-level issues in neurosurgical communication and related weaknesses.


Assuntos
Comunicação , Neurocirurgia , Equipe de Assistência ao Paciente , Relações Médico-Paciente , Relações Profissional-Família , Humanos , Neurocirurgiões , Assistência Centrada no Paciente
8.
J Clin Ethics ; 30(4): 347-355, 2019.
Artigo em Inglês | MEDLINE | ID: mdl-31851626

RESUMO

Most professional guidelines advocate family presence during resuscitation (FPDR). Many clinicians, however, are still reluctant to implement this recommendation. In this article I present the most comprehensive case for FPDR to date. I review the little that has been written about the ethics of FPDR, as well as the available empirical evidence. More importantly, I present and defend three arguments for FPDR: adherence to professional guidelines, benefit to patients and relatives, and patients' autonomy. I conclude with suggestions for future research.


Assuntos
Reanimação Cardiopulmonar/ética , Cuidados Críticos/ética , Família , Relações Profissional-Família/ética , Atitude do Pessoal de Saúde , Reanimação Cardiopulmonar/psicologia , Cuidados Críticos/psicologia , Família/psicologia , Humanos , Guias de Prática Clínica como Assunto
9.
J Clin Ethics ; 30(4): 376-383, 2019.
Artigo em Inglês | MEDLINE | ID: mdl-31851628

RESUMO

An Asian Indian Hindu family chose no intervention and hospice care for their newborn with hypoplastic right heart syndrome as an ethical option, and the newborn expired after five days. Professional nursing integrates values-based practice and evidence-based care with cultural humility when providing culturally responsive family-centered culture care. Each person's worldview is unique as influenced by culture, language, and religion, among other factors. The Nursing Team sought to understand this family's collective Indian Hindu worldview and end-of-life beliefs, values, and practices, in view of the unique aspects of the situation while the team integrated evidence-based strategies to provide family-centered culture care. Parental care choices conflicted with those of the Nursing Team, and some nurses experienced moral distress and cultural dissonance when negotiating their deeply held cultural and religious views to advocate for the family. The inability to reconcile and integrate a stressful or traumatic experience impacts nurses' well-being and contributes to compassion fatigue. Nurses need to be intentional in accessing interventions that promote coping and healing and moral resilience. Reflection and cultural humility, assessment, and knowledge in context, increase evidence-based culture care and positive outcomes. U.S. society's views on ethical behavior continue to evolve, and some may argue that the law should place more limits on parents' right to choose or to refuse treatment for their infants and children. Moral distress can lead to moral resilience and satisfaction of compassion when nurses provide family-centered culture care with cultural responsiveness and integrate values-based practice with evidence-based care, and aim to first do no harm.


Assuntos
Enfermagem Familiar/ética , Princípios Morais , Recursos Humanos de Enfermagem no Hospital/psicologia , Relações Profissional-Família/ética , Religião , Estresse Psicológico , Recusa do Paciente ao Tratamento/ética , Atitude Frente a Morte/etnologia , Criança , Cultura , Empatia , Hinduísmo , Humanos , Lactente , Recém-Nascido
11.
Br J Nurs ; 28(21): 1380-1386, 2019 Nov 28.
Artigo em Inglês | MEDLINE | ID: mdl-31778332

RESUMO

BACKGROUND: young-onset dementia (under age 65) varies in many respects to typical aged dementia. Health professionals are centrally involved in supporting individuals and families to cope with the unique challenges that young-onset dementia (YOD) brings. AIMS: this study aimed to explore professionals' perceptions of the key challenges faced by people living with YOD and their families, and how they provide support to this group. METHODS: qualitative interviews were conducted with nine health professionals from a range of health and social care contexts. Data were analysed using interpretative phenomenological analysis. FINDINGS: interviewees reported significant challenges in trying to enact support for people with YOD, and families. Particular challenges relate to delays in accessing timely diagnosis, and difficulty in accessing relevant, age-appropriate supports. Interviewees experienced ethical tensions working in this area; interviewees were keen to enact support for the person following diagnosis, but felt constrained by service options that were not relevant or readily accessible to the person, and in some instances, traditional dementia services added to, rather than lessened the stress experienced by those involved. CONCLUSION: dementia and health services should be cognisant of the unique challenges of YOD, and models of service provision should aim to respond accordingly. Nurses and other health professionals should be afforded the necessary structures to support people living with YOD. This relates to dedicated YOD models of care, specifically timely diagnosis, post-diagnosis support and community services that enhance personhood and resilience.


Assuntos
Atitude do Pessoal de Saúde , Demência/terapia , Ética Médica , Pessoal de Saúde/psicologia , Acesso aos Serviços de Saúde , Necessidades e Demandas de Serviços de Saúde , Adaptação Psicológica , Idade de Início , Demência/psicologia , Família/psicologia , Humanos , Pessoa de Meia-Idade , Relações Profissional-Família , Relações Profissional-Paciente , Pesquisa Qualitativa , Apoio Social
12.
N Engl J Med ; 381(18): 1741-1752, 2019 10 31.
Artigo em Inglês | MEDLINE | ID: mdl-31657887

RESUMO

BACKGROUND: Physicians, particularly trainees and those in surgical subspecialties, are at risk for burnout. Mistreatment (i.e., discrimination, verbal or physical abuse, and sexual harassment) may contribute to burnout and suicidal thoughts. METHODS: A cross-sectional national survey of general surgery residents administered with the 2018 American Board of Surgery In-Training Examination assessed mistreatment, burnout (evaluated with the use of the modified Maslach Burnout Inventory), and suicidal thoughts during the past year. We used multivariable logistic-regression models to assess the association of mistreatment with burnout and suicidal thoughts. The survey asked residents to report their gender. RESULTS: Among 7409 residents (99.3% of the eligible residents) from all 262 surgical residency programs, 31.9% reported discrimination based on their self-identified gender, 16.6% reported racial discrimination, 30.3% reported verbal or physical abuse (or both), and 10.3% reported sexual harassment. Rates of all mistreatment measures were higher among women; 65.1% of the women reported gender discrimination and 19.9% reported sexual harassment. Patients and patients' families were the most frequent sources of gender discrimination (as reported by 43.6% of residents) and racial discrimination (47.4%), whereas attending surgeons were the most frequent sources of sexual harassment (27.2%) and abuse (51.9%). Proportion of residents reporting mistreatment varied considerably among residency programs (e.g., ranging from 0 to 66.7% for verbal abuse). Weekly burnout symptoms were reported by 38.5% of residents, and 4.5% reported having had suicidal thoughts during the past year. Residents who reported exposure to discrimination, abuse, or harassment at least a few times per month were more likely than residents with no reported mistreatment exposures to have symptoms of burnout (odds ratio, 2.94; 95% confidence interval [CI], 2.58 to 3.36) and suicidal thoughts (odds ratio, 3.07; 95% CI, 2.25 to 4.19). Although models that were not adjusted for mistreatment showed that women were more likely than men to report burnout symptoms (42.4% vs. 35.9%; odds ratio, 1.33; 95% CI, 1.20 to 1.48), the difference was no longer evident after the models were adjusted for mistreatment (odds ratio, 0.90; 95% CI, 0.80 to 1.00). CONCLUSIONS: Mistreatment occurs frequently among general surgery residents, especially women, and is associated with burnout and suicidal thoughts.


Assuntos
Esgotamento Profissional/epidemiologia , Cirurgia Geral/educação , Internato e Residência , Abuso Físico/estatística & dados numéricos , Assédio Sexual/estatística & dados numéricos , Discriminação Social/estatística & dados numéricos , Esgotamento Profissional/psicologia , Feminino , Humanos , Masculino , Estado Civil , Corpo Clínico Hospitalar , Recursos Humanos em Hospital , Abuso Físico/psicologia , Relações Médico-Paciente , Relações Profissional-Família , Fatores Sexuais , Assédio Sexual/psicologia , Discriminação Social/psicologia , Ideação Suicida , Inquéritos e Questionários , Estados Unidos/epidemiologia
13.
MMW Fortschr Med ; 161(Suppl 6): 3-8, 2019 Oct.
Artigo em Alemão | MEDLINE | ID: mdl-31587170

RESUMO

BACKGROUND: Family members of patients with severe illness are burdened with the care and participation in challenging decisions regarding medical treatment and care in addition to the challenges of their own lives. They express a wish for low-threshold support services. However, there are few publications on targeted interventions for the support of family members of patients with a serious illness. METHOD: An information brochure was developed on the basis of a systematic review and its feasibility and acceptance were tested with an evaluation sheet, handed out to family members in 3 different settings (3 palliative care units, 21 family practices, and 2 home palliative care services) over a period of 6 weeks. Satisfaction was measured using a 5-point Likert scale (1 = very satisfied, 5 = not satisfied at all). To assess the acceptance of the brochure the participants were asked about their willingness to read. The benefit was judged on questions of information gain. In addition, deficiencies could be named and suggestions for improvement could be made. RESULTS: Overall, 27 evaluation sheets were analysed. 93% of the participating relatives read the whole brochure. 63% of the relatives were satisfied or very satisfied with the flyer (median 2 = satisfied). 70% of the relatives said they had received new information. CONCLUSIONS: In this feasibility study, the acceptance and usefulness of the information flyer for a large number of relatives was confirmed. Such an information flyer thus provides a low-threshold supplement to the support of families in the care at the end of life.


Assuntos
Disseminação de Informação/métodos , Folhetos , Relações Profissional-Família , Família/psicologia , Estudos de Viabilidade , Serviços de Assistência Domiciliar , Humanos , Cuidados Paliativos
14.
JAMA ; 322(14): 1353-1354, 2019 Oct 08.
Artigo em Inglês | MEDLINE | ID: mdl-31593276
16.
Soins Pediatr Pueric ; 40(310): 10-13, 2019.
Artigo em Francês | MEDLINE | ID: mdl-31543228

RESUMO

The reflexive approach supported by interdisciplinarity enables the professional to approach the breastfeeding experience from a perspective which takes into account the family as a whole. The interdisciplinary input aims to support reflexive practices around this global perspective of the family and possibly benefit from interventions which are more focused on the psycho-social aspects of the breastfeeding experience.


Assuntos
Aleitamento Materno , Equipe de Assistência ao Paciente , Aleitamento Materno/psicologia , Feminino , Humanos , Lactente , Relações Profissional-Família
17.
Soins Pediatr Pueric ; 40(310): 31-33, 2019.
Artigo em Francês | MEDLINE | ID: mdl-31543232

RESUMO

The death of a twin hospitalised in neonatal intensive care presents several issues that the children's nurse must take into account. Identifying the elements which characterise the issues around supporting families confronted at the same time with the grieving and bonding processes enables suitable actions to be put in place.


Assuntos
Pesar , Enfermeiras Pediátricas/psicologia , Pais/psicologia , Relações Profissional-Família , Humanos , Recém-Nascido , Recém-Nascido Prematuro , Terapia Intensiva Neonatal , Apego ao Objeto , Gêmeos
18.
BMC Health Serv Res ; 19(1): 635, 2019 Sep 05.
Artigo em Inglês | MEDLINE | ID: mdl-31488131

RESUMO

BACKGROUND: Dementia is a cause of disability and dependency associated with high demands for health services and expected to have a significant impact on resources. Care policies worldwide increasingly rely on family caregivers to contribute to service delivery for older people, and the general direction of health care policy internationally is to provide care in the community, meaning most people will receive services there. Patient safety in primary care is therefore important for future care, but not yet investigated sufficiently when services are carried out in patients' homes. In particular, we know little about how family carers experience patient safety of older people with dementia in the community. METHODS: This was an explorative study, with qualitative in-depth interviews of 23 family carers of older people with suspected or diagnosed dementia. Family carers participated after receiving information primarily through health professionals working in dementia care. A semi-structured topic guide was used in a flexible way to capture participants' experiences. A four-step inductive analysis of the transcripts was informed by hermeneutic-phenomenological analysis. RESULTS: The ways our participants sought to address risk and safety issues can be understood to constitute protective practices that aimed to prevent or reduce the risk of harm and/or alleviate damage from harm that occurs. The protective practices relate to four areas: physical harm, economic harm, emotional harm, and relational harm. The protective practices are interlinked, and family carers sometimes prioritize one over another, and as they form part of family practice, they are not always visible to service providers. As a result, the practices may complicate interactions with health professionals and even inadvertently conceal symptoms or care needs. CONCLUSIONS: When family caregivers prevent harm and meet needs, some needs may be concealed or invisible to health professionals. To recognize all needs and provide effective, safe and person-centered care, health professionals need to recognize these preventive practices and seek to build a solid partnership with family carers.


Assuntos
Cuidadores/psicologia , Demência/psicologia , Segurança do Paciente , Adulto , Idoso , Idoso de 80 Anos ou mais , Serviços de Saúde Comunitária , Demência/terapia , Feminino , Redução do Dano , Pessoal de Saúde , Serviços de Saúde , Assistência Domiciliar , Humanos , Masculino , Pessoa de Meia-Idade , Relações Profissional-Família , Pesquisa Qualitativa
19.
Rev. Asoc. Méd. Argent ; 132(3): 19-26, sept. 2019.
Artigo em Espanhol | LILACS | ID: biblio-1045890

RESUMO

El presente trabajo desarrolla la problemática de un sujeto desde que conoce su enfermedad. ¿Cómo vivencia el diagnóstico el pronóstico y la terapia sugerida? ¿Cómo afecta esta situación al resto de los integrantes de la familia? ¿Cuál es el abordaje con pacientes crónicos y terminales? Además se hace incapié en la importancia de un tratamiento interdisciplinario. El rol del psicólogo frente a este tipo de pacientes consiste en sostener una postura ética que no haga foco solo en el diagnóstico orgánico, sino que tome en cuenta el sufrimiento de quien nos convoca, escuchando cuál es su deseo y su proyecto de vida más allá de la enfermedad. Se abordan los siguientes temas: la clínica con niños, el acompañamiento de docentes, clowns o payamédicos en la internación hospitalaria o domiciliaria: el lugar de la familia en este proceso, sus angustias y temores; los avances en la legislación sobre muerte digna; los cuidados paliativos. Algunas viñetas clínicas acompañan los aportes teóricos.


The present work develops the problem of a subject from the knowledge of his illness. How do you experience the diagnosis, prognosis and suggested therapy? How does this situation affect the rest of the family members? What is the approach with chronic and terminal patients? and the importance of an interdisciplinary treatment. The psychologist's role in dealing with this type of patients is to maintain an ethical stance that does not only remain with the organic diagnosis but also takes into account the suffering of the person who summons us, listening to what is his desire and his life project beyond the illness. The following topics are addressed: the clinic with children. The accompaniment of the teachers, clowns or payamédicos in the hospitalization or domiciliary hospitalization. The place of the family in this process, their anxieties and fears. Advances in legislation on dignified death. Palliative care. Some clinical vignettes accompany the theoretical contributions.


Assuntos
Humanos , Criança , Equipe de Assistência ao Paciente , Relações Profissional-Família , Doente Terminal/psicologia , Cuidados Paliativos , Pediatria , Direito a Morrer , Terapias Complementares , Atitude Frente a Morte , Doença Crônica
20.
Psico USF ; 24(3): 437-448, jul.-set. 2019. tab
Artigo em Inglês | LILACS | ID: biblio-1040777

RESUMO

The objective of this research is to investigate family members' perceptions as to the end-of-life decision-making process in an ICU. The authors conducted a qualitative descriptive study in which they interviewed six family members of critically ill patients admitted to the ICU of a private hospital. Five categories of analysis emerged from the examination of the material. This study will discuss two of those categories: the decision-making process and the relationship with the medical staff. The results indicate that family members were satisfied with communication with the medical staff, an important aspect for the decision-making process. Within this context, the shared model, prioritization of palliative care and identification of futile treatments prevailed, aimed at ensuring the patient's comfort and dignity at the end of life. The results also reveal the need for integration of palliative care in ICUs, particularly in end-of-life situations. (AU)


O presente estudo tem como objetivo investigar a percepção dos familiares acerca do processo de tomada de decisão na terminalidade em UTI. Realizou-se uma pesquisa descritiva de cunho qualitativo, na qual foram entrevistados seis familiares de pacientes gravemente enfermos, internados na UTI de um hospital privado. Do estudo do material emergiram cinco categorias de análise. Neste trabalho serão discutidas duas categorias: processo de tomada de decisão e relação com a equipe médica. Os resultados indicam que os familiares se mostraram satisfeitos com a comunicação com os membros da equipe de saúde, aspecto importante para o processo de tomada de decisão. Neste contexto prevaleceram o modelo compartilhado, a priorização de medidas paliativas e a identificação de medidas fúteis, a fim de garantir o conforto e a dignidade no processo de morrer do paciente. Evidenciou-se a busca de integração dos cuidados paliativos em UTI, principalmente em situações finais de vida. (AU)


El presente estudio tiene como objetivo investigar la percepción de los familiares sobre el proceso de toma de decisiones en el estado terminal de vida en la UCI. Se realizó una investigación descriptiva de carácter cualitativo, en la cual fueron entrevistados seis familiares de pacientes gravemente enfermos, internados en la UCI de un hospital privado. Del estudio del material surgieron cinco categorías de análisis. En este trabajo serán discutidas dos categorías: proceso de toma de decisiones y relación con el equipo médico. Los resultados indican que los familiares se mostraron satisfechos con la comunicación con los miembros del equipo de salud, aspecto importante para el proceso de toma de decisiones. En este contexto prevalecieron el modelo compartido, la priorización de medidas paliativas y la identificación de medidas inútiles, con el fin de garantizar comodidad y dignidad en el proceso de muerte del paciente. Se evidenció la búsqueda de integración de los cuidados paliativos en la UCI, principalmente en situaciones finales de vida. (AU)


Assuntos
Humanos , Masculino , Feminino , Adulto , Pessoa de Meia-Idade , Idoso , Idoso de 80 Anos ou mais , Cuidados Intermitentes/psicologia , Tomada de Decisões , Unidades de Terapia Intensiva , Médicos/psicologia , Relações Profissional-Família , Pesquisa Qualitativa , Comunicação em Saúde
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