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1.
Article in English | MEDLINE | ID: mdl-38294634

ABSTRACT

We summarize the clinical trials (CTs) main characteristics, including members of ethnic minorities from Latin America. We carried out a systematic search in six databases. We made a descriptive synthesis of CTs, summarizing the characteristics, interventions, main findings, results, and conclusions reported. 4411 studies were acquired in search strategy, leaving 24 CTs in the final selection. Of these, ten were randomized, four were non-randomized, and the remainder had other designs. Most of the studies were carried out in the population of infants and children (08), ten of the studies included only women, and two studies included men. Nine studies were conducted in Mexico, with the Mayan ethnic minority being mostly evaluated (05). In only 15 it was mentioned that their research was approved by a research ethics committee. Finally, half of the CTs reported funding from international agencies and third reported funding from government agencies. Our results show that that CTs in ethnic minorities are limited and reduced to a few native peoples of the continent.

2.
Health Policy Plan ; 38(10): 1225-1241, 2023 Nov 28.
Article in English | MEDLINE | ID: mdl-37803966

ABSTRACT

High-quality health systems must provide accessible, people-centred care to both improve health and maintain population trust in health services. Furthermore, accurate measurement of population perspectives is vital to hold health systems accountable and to inform improvement efforts. To describe the current state of such measures in Latin America and the Caribbean (LAC), we conducted a systematic review of facility and population-based assessments that included patient-reported experience and satisfaction measures. Five databases were searched for publications on quantitative surveys assessing healthcare quality in Spanish- or Portuguese-speaking LAC countries, focusing on the domains of processes of care and quality impacts. We included articles published since 2011 with a national sampling frame or inclusion of multiple subnational regions. We tabulated and described these articles, identifying, classifying and summarizing the items used to assess healthcare quality into the domains mentioned earlier. Of the 5584 publications reviewed, 58 articles met our inclusion criteria. Most studies were cross-sectional (95%), assessed all levels of healthcare (57%) and were secondary analyses of existing surveys (86%). The articles yielded 33 unique surveys spanning 12 LAC countries; only eight of them are regularly administered surveys. The most common quality domains assessed were satisfaction (in 33 out of 58 articles, 57%), evidence-based/effective care (34%), waiting times (33%), clear communication (33%) and ease of use (31%). Items and reported ratings varied widely among instruments used, time points and geographical settings. Assessment of patient-reported quality measures through population- and facility-based surveys is present but heterogeneous in LAC countries. Satisfaction was measured frequently, although its use in accountability or informing quality improvement is limited. Measurement of healthcare quality in LAC needs to be more systematic, regular, comprehensive and to be led collaboratively by researchers, governments and policymakers to enable comparison of results across countries and to effectively inform policy implementation.


Subject(s)
Delivery of Health Care , Ethnicity , Humans , Latin America/epidemiology , Caribbean Region/epidemiology , Health Services
3.
BMC Nurs ; 22(1): 320, 2023 Sep 16.
Article in English | MEDLINE | ID: mdl-37716954

ABSTRACT

BACKGROUND: Globalization and population migration have led to increasingly culturally diverse societies, which has made nursing education in cultural competence and transcultural care a priority. This includes the ability to provide person-centered and culturally congruent care, even within one's own culture. However, this sort of training has been developed and implemented in practice comparatively more by English-speaking societies. Therefore, the aim of this study was to identify the existing educational initiatives for nurses and future ones in cultural competence and transcultural care in Spanish and explore their didactic characteristics in terms of teaching and learning formats, contents, skills, and evaluation methods at different academic levels. METHODS: A scoping review was carried out by following the specific PRISMA recommendations and those of the Joanna Briggs Institute guidance throughout PudMed, Web of Science, Embase, Google Scholar, and Cinahl databases and also gray literature in the form of official documentation that later was complemented with a gap analysis including training programs published by Spanish and Latin-American educational institutions and the approaches of key academic informants. RESULTS: The published evidence on nursing training in cultural competence or related topics in Spanish-speaking higher education for nurses is limited. Specific nursing programs in Spanish-speaking universities are primarily found in Spain, with fewer options available in Latin America. These contents are offered either as optional subjects or immersed in other courses and mainly taught in theoretical sessions. Practice in real contexts is supposed to be evaluated transversally under the cultural scope according to national educational recommendations though barely visible in students' evaluation reports. Even though postgraduate training dedicated to these issues exists, it is still limited, mixed with other contents, and generally depends on a few researchers investigating and publishing on the topic from very specific universities. CONCLUSIONS: It is essential to establish a common global strategy including Spanish-speaking countries in nurses' higher education and professional training on topics focused on cultural competence as well as the provision of nurses' social and cultural sensitivity towards their own culture and to define whether those that currently exist are effective. It is also crucial that this training was evaluated in practice in order to achieve enough impact on students, health organizations, and population health.

4.
Pilot Feasibility Stud ; 9(1): 158, 2023 Sep 09.
Article in English | MEDLINE | ID: mdl-37689724

ABSTRACT

BACKGROUND: Diabetic retinopathy is a leading cause of preventable blindness in Canada. Clinical guidelines recommend annual diabetic retinopathy screening for people living with diabetes to reduce the risk and progression of vision loss. However, many Canadians with diabetes do not attend screening. Screening rates are even lower in immigrants to Canada including people from China, Africa, and the Caribbean, and these groups are also at higher risk of developing diabetes complications. We aim to assess the feasibility, acceptability, and fidelity of a co-developed, linguistically and culturally tailored tele-retinopathy screening intervention for Mandarin-speaking immigrants from China and French-speaking immigrants from African-Caribbean countries living with diabetes in Ottawa, Canada, and identify how many from each population group attend screening during the pilot period. METHODS: We will work with our health system and patient partners to conduct a 6-month feasibility pilot of a tele-retinopathy screening intervention in a Community Health Centre in Ottawa. We anticipate recruiting 50-150 patients and 5-10 health care providers involved in delivering the intervention for the pilot. Acceptability will be assessed via a Theoretical Framework of Acceptability-informed survey with patients and health care providers. To assess feasibility, we will use a Theoretical Domains Framework-informed interview guide and to assess fidelity, and we will use a survey informed by the National Institutes of Health framework from the perspective of health care providers. We will also collect patient demographics (i.e., age, gender, ethnicity, health insurance status, and immigration information), screening outcomes (i.e., patients with retinopathy identified, patients requiring specialist care), patient costs, and other intervention-related variables such as preferred language. Survey data will be descriptively analyzed and qualitative data will undergo content analysis. DISCUSSION: This feasibility pilot study will capture how many people living with diabetes from each group attend the diabetic retinopathy screening, costs, and implementation processes for the tele-retinopathy screening intervention. The study will indicate the practicability and suitability of the intervention in increasing screening attendance in the target population groups. The study results will inform a patient-randomized trial, provide evidence to conduct an economic evaluation of the intervention, and optimize the community-based intervention.

5.
Front Public Health ; 11: 1233264, 2023.
Article in English | MEDLINE | ID: mdl-37711235

ABSTRACT

Background: This review wants to highlight the importance of computer programs used to control the steps in the management of dangerous drugs. It must be taken into account that there are phases in the process of handling dangerous medicines in pharmacy services that pose a risk to the healthcare personnel who handle them. Objective: To review the scientific literature to determine what computer programs have been used in the field of hospital pharmacy for the management of dangerous drugs (HDs). Methods: The following electronic databases were searched from inception to July 30, 2021: MEDLINE (via PubMed), Embase, Cochrane Library, Scopus, Web of Science, Latin American and Caribbean Literature in Health Sciences (LILACS) and Medicine in Spanish (MEDES). The following terms were used in the search strategy: "Antineoplastic Agents," "Cytostatic Agents," "Hazardous Substances," "Medical Informatics Applications," "Mobile Applications," "Software," "Software Design," and "Pharmacy Service, Hospital." Results: A total of 104 studies were retrieved form the databases, and 18 additional studies were obtained by manually searching the reference lists of the included studies and by consulting experts. Once the inclusion and exclusion criteria were applied, 26 studies were ultimately included in this review. Most of the applications described in the included studies were used for the management of antineoplastic drugs. The most commonly controlled stage was electronic prescription; 18 studies and 7 interventions carried out in the preparation stage focused on evaluating the accuracy of chemotherapy preparations. Conclusion: Antineoplastic electronic prescription software was the most widely implemented software at the hospital level. No software was found to control the entire HD process. Only one of the selected studies measured safety events in workers who handle HDs. Moreover, health personnel were found to be satisfied with the implementation of this type of technology for daily work with these medications. All studies reviewed herein considered patient safety as their final objective. However, none of the studies evaluated the risk of HD exposure among workers.


Subject(s)
Mobile Applications , Pharmacy Service, Hospital , Humans , Caribbean Region , Databases, Factual , Ethnicity
6.
Alzheimers Dement (N Y) ; 9(3): e12425, 2023.
Article in English | MEDLINE | ID: mdl-37744309

ABSTRACT

Introduction: The Brazilian population in the United States (U.S.), a Latinx subgroup, is rapidly growing and aging but remains underrepresented in U.S. health research. In addition to group-specific genetic and environmental risks, Brazilian immigrants and their offspring in the U.S. likely have cumulative risks for health inequities.It is estimated that 71% of Brazilian immigrants in the U.S. are undocumented, which may limit healthcare access/utilization. Furthermore, mental health is reported as a health priority by Brazilian immigrants in the U.S., and there is a lack of research on Alzheimer's disease and related dementia (AD/ADRD) in this population. Methods: We reviewed the scientific literature using traditional (e.g., PubMed) sources and databases generated by U.S. and Brazilian governments, as well as international organizations, and press articles. Results: This perspective review lists recommendations for researchers, health providers, and policymakers to promote greater inclusion of U.S. Brazilian populations in health research and care. The review identifies research areas in need of attention to address health inequities and promote mental/brain health in Brazilian immigrants and their offspring living in the U.S. These research areas are: 1) epidemiological studies to map the prevalence and incidence of mental/brain health conditions; 2) research on aging and AD/ADRD risk factors among Brazilian populations in the U.S.; and 3) the need for greater representation of U.S-residing Brazilian population in other relevant research areas involving genetics, neuropathology, and clinical trials. Conclusions: The recommendation and research efforts proposed should help to pave the way for the development of community-engagement research and to promote mental/brain health education, improvement of mental/brain health and AD/ADRD services, and the development of culturally-informed intervention to the U.S.-residing Brazilian communities. HIGHLIGHTS: The Brazilian population in the United States is growing but is underrepresented in U.S. health research.Approximately 71% of Brazilian immigrants in the United States are undocumented, with an increased risk for health inequities.Mental health is reported as a central health priority by Brazilian immigrants in the United States.There is a lack of research on Alzheimer's disease and other dementias (ADRD) in Brazilian immigrants in the United States.Epidemiological research is needed to map the prevalence/incidence of mental health conditions and ADRD risk factors among Brazilian immigrants in the United States.

7.
Cad Saude Publica ; 39(9): e00038423, 2023.
Article in English, Portuguese | MEDLINE | ID: mdl-37729304

ABSTRACT

Neighborhood disorder is an important aspect that may influence the health of residents in urban areas. The aims of this study were to map and systematize methods for measuring physical and social neighborhood disorder in studies conducted in Latin American cities. By means of a scoping review, articles published from 2000 in English, Spanish, and Portuguese with the following descriptors were mapped: neighborhood, physical disorder, and social disorder. Searches were conducted in MEDLINE (PubMed), LILACS (Virtual Health Library), Scopus, Web of Science, and Cochrane Library. Information on authorship, year, study type, locality, data source, target population, outcome, dominion, indicator, method, geographic unit, and unit of analysis was extracted. Variables from the disorder-related studies were extracted and grouped by similarity of content and themes. A total of 22 articles were identified, all published between 2012 and 2022, the majority in Brazil (n = 16). The perception of the individual was the most used method. The most frequent theme addressed in the physical disorder dominion was public streets (n = 20) and security (n = 15), in the social disorder dominion. A lack of consensus in the literature regarding variables used to measure physical and social neighborhood disorder in Latin American cities was detected. In addition to the need for standardization of the theme, studies to verify the sustainability of proposed measurement methods relevant to dynamically classify and compare urban neighborhoods and health impacts based on levels of exposure to physical and social disorder, are recommended.


A desordem da vizinhança é um importante aspecto que pode impactar a saúde de residentes em áreas urbanas. Os objetivos desta pesquisa foram mapear e sistematizar os métodos de mensuração da desordem física e social na vizinhança em estudos realizados em cidades da América Latina. Por meio de revisão de escopo, foram mapeados artigos publicados a partir do ano 2000 em inglês, espanhol e português com os seguintes descritores: vizinhança, desordem física e desordem social. As buscas foram realizadas no MEDLINE (PubMed), LILACS (Biblioteca Virtual em Saúde), Scopus, Web of Science e Biblioteca Cochrane. Foram extraídas informações sobre autoria, ano, tipo de estudo, local, fonte de dados, população-alvo, desfecho, domínio, indicador, método, unidade geográfica e unidade de análise. As variáveis dos estudos relacionadas à desordem foram extraídas e agrupadas pela similaridade dos conteúdos e temas. Foram identificados 22 artigos, publicados entre 2012 e 2022, sendo a maioria do Brasil (n = 16). A percepção do indivíduo foi o método mais utilizado. O tema mais frequentemente abordado no domínio da desordem física foi vias públicas (n = 20), enquanto no domínio social foi segurança (n = 15). Detectou-se ausência de consenso na literatura quanto às variáveis utilizadas para aferir a desordem física e social da vizinhança em cidades da América Latina. Além da necessidade de padronização do tema, recomendam-se estudos que verifiquem a sustentabilidade de métodos de mensuração propostos, relevantes para classificar e comparar, de forma dinâmica, vizinhanças urbanas e os impactos na saúde com base nos níveis de exposição à desordem física e social.


El desorden del vecindario es un aspecto importante que puede influir en la salud de los residentes en áreas urbanas. Los objetivos fueron mapear y sistematizar los métodos de medición del desorden físico y social en el vecindario en estudios realizados en ciudades de América Latina. Por medio de una revisión de alcance, fueron mapeados artículos publicados a partir del año 2000 en inglés, español y portugués, que poseían los siguientes descriptores: vecindario, desorden físico y desorden social. Las búsquedas se realizaron en MEDLINE (PubMed), LILACS (Biblioteca Virtual en Salud), Scopus, Web of Science y Librería Cochrane. Se extrajeron informaciones sobre la autoría, el año, el tipo de estudio, la ubicación, la fuente de datos, la población objetivo, el resultado, el dominio, el indicador, el método, la unidad geográfica y la unidad de análisis. Las variables de los estudios relacionados con el desorden fueron extraídas y agrupadas por la similitud de los contenidos y temas. Fueron identificados 22 artículos, todos publicados entre 2012 y 2022, siendo la mayoría de Brasil (n = 16). La percepción del individuo fue el método más utilizado. El tema más frecuente abordado en el ámbito del desorden físico fue el de las vías públicas (n = 20) y seguridad (n = 15), en lo social. Se detectó una falta de consenso en la literatura en cuanto a las variables utilizadas para medir el desorden físico y social del vecindario en ciudades de América Latina. Además de la necesidad de estandarización del tema, se recomiendan estudios que verifiquen la sostenibilidad de los métodos de medición propuestos, relevantes para clasificar y comparar, de forma dinámica, los vecindarios urbanos y los impactos en la salud con base en niveles de exposición a desorden físico y social.


Subject(s)
Authorship , Ethnicity , Humans , Brazil/epidemiology , Cities , Latin America/epidemiology
8.
PLoS One ; 18(9): e0291307, 2023.
Article in English | MEDLINE | ID: mdl-37699044

ABSTRACT

BACKGROUND: Mental health conditions often go untreated, which can lead to long-term poor emotional, social physical health and behavioural outcomes, and in some cases, suicide. Mental health-related stigma is frequently noted as a barrier to help seeking, however no previous systematic review has considered evidence from the Caribbean specifically. This systematic review aimed to address two research questions: (1) What is the impact of mental health stigma on help-seeking in the Caribbean? (2) What factors underlie the relationship between stigma and help-seeking in the Caribbean? METHODS: A systematic search was conducted across six electronic databases (Medline, Embase, Global Health, PsychInfo, Scopus and LILACS). The search included articles published up to May 2022. Experts in the field were consulted to provide publication recommendations and references of included studies were checked. Data synthesis comprised of three components: a narrative synthesis of quantitative findings, a thematic analysis of qualitative findings, and a meta-synthesis combining these results. RESULTS: The review included nine articles (reflecting eight studies) totaling 1256 participants. A conceptual model was derived from the meta-synthesis, identifying three themes in relation to mental health stigma and help-seeking in the Caribbean: (i) Making sense of mental health conditions'; (ii) Anticipated/Experienced stigma-related experiences and (iii) Individual characteristics. CONCLUSION: This review provides insights into the relationship between mental health stigma and help-seeking in the Caribbean based upon the current research evidence. This can be applied in the design of culturally appropriate future research, and to support policy and practice towards stigma reduction, and improved mental care help-seeking in the Caribbean.


Subject(s)
Emotions , Mental Health , Humans , Caribbean Region , Databases, Factual , Ethnicity
9.
Int J Eat Disord ; 56(9): 1688-1693, 2023 09.
Article in English | MEDLINE | ID: mdl-37265119

ABSTRACT

The eating disorders field acknowledges the need to include diverse populations in research. Although global diversity has increased in epidemiologic research, there is still a significant lack of research in Africa and the Caribbean. The objectives of this article are to highlight knowledge gaps in these regions and make recommendations to improve future research. We searched the literature about the epidemiology of eating disorders in Africa and the Caribbean and provided a brief summary of research findings and measures used to identify cases. There is a large knowledge gap about the epidemiology of eating disorders across African and Caribbean nations. Knowledge about the cultural appropriateness of measurement instruments and screening tools is also lacking. Inadequate information about the epidemiology of eating disorders in Africa and the Caribbean inhibits the eating disorders research field from identifying who is affected. Further, measures and screening instruments with uncertain cultural validity inhibit the ability to understand case presentations and treatment targets. We recommend that the field advocate for the inclusion of eating disorders in larger population health research and that future research should evaluate the appropriateness of measurement instruments to capture eating disorder cases in African and Caribbean countries. PUBLIC SIGNIFICANCE: There is a lack of eating disorder research in African and Caribbean countries. The limited studies that do exist show evidence of eating disorders in African and Caribbean countries. Research is needed to develop culturally relevant measures for screening and case identification, and to calculate incidence and prevalence.


Subject(s)
Ethnicity , Feeding and Eating Disorders , Humans , Africa/epidemiology , Caribbean Region/epidemiology , Feeding and Eating Disorders/diagnosis , Feeding and Eating Disorders/epidemiology
10.
Front Public Health ; 11: 1134076, 2023.
Article in English | MEDLINE | ID: mdl-37325326

ABSTRACT

Background: Hispanic adults with mental health conditions in the United States experience disproportionate access to and utilization of professional mental health treatment. This is believed to be in part due to systemic barriers and challenges, difficulty accessing care, cultural factors, and stigma. Studies to date have failed to examine these specific factors within the unique context of the Paso del Norte U.S.-Mexico border region. Methods: For this study, 25 Hispanic adults identifying primarily of Mexican descent participated in four focus groups exploring these topics. Three groups were facilitated in Spanish and one group in both English and Spanish. Focus groups followed a semi-structured format eliciting perspectives on mental health and mental illness, help-seeking, barriers and facilitators of help-seeking and treatment access, and recommendations for mental health agencies and providers. Results: Qualitative data analysis yielded the following themes: understanding of mental health and help-seeking; barriers to accessing care; mental health treatment facilitators; and recommendations for agencies, providers, and researchers. Conclusion: Findings from this study support the need for innovative mental health engagement strategies to reduce stigma, increase understanding of mental health, foster support systems, reduce individual and systemic barriers to seeking and accessing care, and to continue to engage communities in mental health outreach and research.


Subject(s)
Health Services Accessibility , Hispanic or Latino , Mental Disorders , Mental Health , Adult , Humans , Hispanic or Latino/psychology , Mental Disorders/therapy , Mental Health Services , Mexico , Taboo , United States
11.
J Int Migr Integr ; : 1-29, 2023 May 11.
Article in English | MEDLINE | ID: mdl-37360632

ABSTRACT

By the end of 2020, more than 500,000 migrants from Central America, Haiti, Africa, and Asia sought asylum along the US-Mexico border despite COVID-19-related travel restrictions and public health measures. A scoping review was conducted to understand the role of COVID-19-related policies on irregular migration flows through Central America and Mexico and to examine the experiences of asylum seekers traversing this region. Peer-reviewed literature, policy briefs, and commentaries were screened for inclusion, resulting in 33 documents selected for this review. This review identified three dominant themes: border closures due to multiple national migration policies, delays in asylum procedures, and increased risks to migrant wellbeing. This article argues that border closures were a punitive policy measure to deter irregular migration during the COVID-19 pandemic. Implications for future research and policy include prioritizing the health needs of asylum seekers and advocating the appropriateness and effectiveness of immigration and public health policy.

12.
Dialect Anthropol ; : 1-33, 2023 May 12.
Article in English | MEDLINE | ID: mdl-37361235

ABSTRACT

Inspired by political philosophy, critical studies of border regimes often reduce human rights and relief work to some accomplice role in migratory control and surveillance. Drawing on ethnographic research on pro-migrant activism in Tijuana, a large city on Mexico's northern border, I contrast such critical literature on border policies with an anthropological approach to the study of organizations and bureaucracies. In particular, drawing attention to activists as providers of goods and services enables us to deal with activism as an ensemble of concrete actors, institutions, and practices. The contradictory directives to which providers are subject, faced with inevitable conflicts, shifting alliances, and overlapping structures, are apparent in cases of co-production of services through complex forms of coordination between local authorities, civil associations, and international organizations. Revealing the political dimensions of service delivery-not reducible to domination-these assemblages of modes of governance are frequently oriented to cope with migrants' immobility in cities like Tijuana, turned into places of indefinite delay by policies that extend the spaces of interception and expulsion to neighboring "transfer" countries.

13.
BMC Public Health ; 23(1): 1110, 2023 06 09.
Article in English | MEDLINE | ID: mdl-37296399

ABSTRACT

BACKGROUND: Understanding the diversity and multiplicity of identities experienced by youth in Aotearoa (Te reo Maori name of the country) New Zealand (NZ) is vital to promoting their wellbeing. Ethnic minority youth (EMY) in NZ (defined as those identifying with Asian, Middle Eastern, Latin American and African ethnic origins) have been historically under-studied and under-counted, despite reporting high levels of discrimination, a major determinant of mental health and wellbeing and potentially a proxy for other inequities. In this paper, we describe the protocol for a multi-year study that examines, using an intersectional approach, how multiple marginalised identities impact mental and emotional wellbeing of EMY. METHODS: This is a multiphase, multi-method study designed to capture the diversity of lived realities of EMY who self-identify with one or more additional marginalised intersecting identity (the population referred here as EMYi). Phase 1 (Descriptive study) will involve secondary analyses of national surveys to examine the prevalence and relationships between discrimination and wellbeing of EMYi. Phase 2 (Study on public discourse) will analyse data from media narratives, complemented by interviews with stakeholders to explore discourses around EMYi. Phase 3 (Study on lived experience) will examine lived experiences of EMYi to discuss challenges and sources of resilience, and how these are influenced by public discourse. Phase 4 (Co-design phase) will use a creative approach that is youth-centered and participatory, and will involve EMYi, creative mentors and health service, policy and community stakeholders as research partners and advisors. It will employ participatory generative creative methods to explore strengths-based solutions to discriminatory experiences. DISCUSSION: This study will explore the implications of public discourse, racism and multiple forms of marginalisation on the wellbeing of EMYi. It is expected to provide evidence on the impacts of marginalisation on their mental and emotional wellbeing and inform responsive health practice and policy. Using established research tools and innovative creative means, it will enable EMYi to propose their own strength-based solutions. Further, population-based empirical research on intersectionality and health is still nascent, and even more scarce in relation to youth. This study will present the possibility of expanding its applicability in public health research focused on under-served communities.


Subject(s)
Ethnic and Racial Minorities , Ethnicity , Adolescent , Humans , Intersectional Framework , Maori People , Minority Groups , Asian , Middle Eastern People , African People
15.
BMC Psychiatry ; 23(1): 344, 2023 05 17.
Article in English | MEDLINE | ID: mdl-37198589

ABSTRACT

BACKGROUND: The UK government committed to legislating for Advance Choice Documents/Advance Statements (ACD/AS) following their recommendation by the Independent Review of the MHA (2018). ACDs/AS are yet to be implemented in routine practice despite evidence and high demand; they are associated with improved therapeutic relationships and a reduction (25%, RR 0.75, CI 0.61-0.93) in compulsory psychiatric admission. Barriers to their implementation are well documented, ranging from low knowledge levels to logistical challenges in accessing the content during episodes of acute care. In the UK this is an issue for Black people, who experience detention rates disproportionately (over three times) higher than those of White British people and have poorer care experiences and outcomes. ACDs/AS allow for Black people to have their concerns heard by mental health professionals in a care system where they often feel their views are ignored. AdStAC aims to improve Black service users' experiences in mental health services in South London by co-producing and testing an ACD/AS implementation resource with Black service users, mental health professionals and carers/supporters of Black service users. METHODS/DESIGN: The study will take place in South London, England over three phases: 1) formative work through stakeholder workshops; 2) co-production of resources through a consensus development exercise and working groups; and 3) testing of the resources using quality improvement (QI) methods. A lived experience advisory group, staff advisory group and project steering committee will support the study throughout. The implementation resources will comprise: advance choice document/advance statement (ACD/AS) documentation, stakeholder trainings, a manual for mental health professionals to facilitate the processes of creating and revising advance statements, and informatics development. DISCUSSION: The implementation resources will help increase the likelihood of the new mental health legislation in England being implemented effectively; through aligning evidence-based medicine, policy and law to effectively provide positive clinical, social and financial outcomes for Black people, the National Health Service (NHS) and wider society. This study will likely benefit a wider group of people with severe mental illness, as when marginalised groups who are least engaged, can be supported with these strategies, then the strategies are likely to work for others.


Subject(s)
Mental Disorders , Mental Health Services , Humans , State Medicine , Caribbean People , Mental Disorders/therapy , Mental Disorders/psychology , Black People
16.
Article in English | MEDLINE | ID: mdl-37107743

ABSTRACT

Screen media use starts in early childhood, despite recommendations to limit use. This study explored low-income Mexican American mothers' and fathers' beliefs, parenting practices, and perceived contextual contributors related to toddler screen use. We conducted interviews with 32 low-income Mexican American parents. Transcripts of audio recordings were analyzed to identify themes. Parents perceived numerous benefits to screen use, including learning and enjoyment, as well as seeing it as a helpful tool for parents. Reported risks included harmful mental and physical effects and a risk of use being all-consuming. Parents managed screen use with a variety of practices, including giving close attention to content, monitoring duration, and engaging in co-use. They also used screens for behavior management and in specific situations, such as to prepare for sleep. Some differences in beliefs and parenting practices exist by screen device type. Parents also reported that contextual factors, such as weather and neighborhood safety, influenced screen use. This study extends the current literature regarding child screen use, with its focus on low-income Mexican American toddlers. The findings offer interventionists and providers insight into the management of screens in the lives of this population.


Subject(s)
Mexican Americans , Parenting , Child, Preschool , Female , Humans , Mothers , Parent-Child Relations , Poverty , Fathers , Male
17.
Sci Rep ; 13(1): 6374, 2023 04 19.
Article in English | MEDLINE | ID: mdl-37076555

ABSTRACT

Several studies have quantified the air pollution exposure disparities across racial and income groups. However, there is still a lack of investigations assessing disparities related to the impacts of weather on air pollution, which could indicate target air pollution reduction strategies under different climate scenarios. Our study aims to address this gap by estimating the economic and racial disparities of the weather impact on air quality in Brazil between 2003 and 2018. First, we used a generalized additive approach to estimate the weather-related changes in PM2.5. This framework derived "weather penalty", which a positive penalty suggests that an increase in PM2.5 was associated with long-term weather changes in the study period. Then, we estimated the population-weighted weather penalty for racial and income groups. Average penalty for the White population (the most-exposed group) was 31% higher than that of the Pardo population (the least-exposed group, mainly people of light brown skin color) in Brazil. In the stratification analysis by region, the Midwest and South were the regions where the black population was the most-exposed group. For the income group, our results indicate that the high-income population group was the most-exposed group in all analyses, including the national and the regional analyses. These findings are somewhat surprising, as previous studies have shown that minority and low-income populations tend to be more exposed to air pollution, than white and higher-income populations. However, our study suggests that disparities in exposure to air pollution may be more complex and nuanced than previously thought. Further research is needed to better understand the underlying drivers of these environmental disparities, and to develop targeted interventions to reduce exposures.


Subject(s)
Air Pollutants , Air Pollution , Humans , Air Pollutants/analysis , Particulate Matter/analysis , Brazil/epidemiology , Air Pollution/analysis , Weather , Environmental Exposure
18.
J Med Internet Res ; 25: e43684, 2023 03 13.
Article in English | MEDLINE | ID: mdl-36912876

ABSTRACT

BACKGROUND: Owing to the increasing number of people with palliative care needs and the current shortage of health care professionals (HCPs), providing quality palliative care has become challenging. Telehealth could enable patients to spend as much time as possible at home. However, no previous systematic mixed studies reviews have synthesized evidence on patients' experiences of the advantages and challenges of telehealth in home-based palliative care. OBJECTIVE: In this systematic mixed studies review, we aimed to critically appraise and synthesize the findings from studies that investigated patients' use of telehealth in home-based palliative care, focusing on the advantages and challenges experienced by patients. METHODS: This is a systematic mixed studies review with a convergent design. The review is reported according to the PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-Analyses) statement. A systematic search was performed in the following databases: Allied and Complementary Medicine Database, CINAHL, Cochrane Central Register of Controlled Trials, Embase, Latin American and Caribbean Health Sciences Literature, MEDLINE, PsycInfo, and Web of Science. The inclusion criteria were as follows: studies using quantitative, qualitative, or mixed methods; studies that investigated the experience of using telehealth with follow-up from HCPs of home-based patients aged ≥18; studies published between January 2010 and June 2022; and studies published in Norwegian, Danish, Swedish, English, Portuguese, or Spanish in peer-reviewed journals. Five pairs of authors independently assessed eligibility of the studies, appraised methodological quality, and extracted data. The data were synthesized using thematic synthesis. RESULTS: This systematic mixed studies review included 41 reports from 40 studies. The following 4 analytical themes were synthesized: potential for a support system and self-governance at home; visibility supports interpersonal relationships and a joint understanding of care needs; optimized information flow facilitates tailoring of remote caring practices; and technology, relationships, and complexity as perpetual obstacles in telehealth. CONCLUSIONS: The advantages of telehealth were that patients experience a potential support system that could enable them to remain at home, and the visual features of telehealth enable them to build interpersonal relationships with HCPs over time. Self-reporting provides HCPs with information about symptoms and circumstances that facilitates tailoring care to specific patients. Challenges with the use of telehealth were related to barriers to technology use and inflexible reporting of complex and fluctuating symptoms and circumstances using electronic questionnaires. Few studies have included the self-reporting of existential or spiritual concerns, emotions, and well-being. Some patients perceived telehealth as intrusive and a threat to their privacy at home. To optimize the advantages and minimize the challenges with the use of telehealth in home-based palliative care, future research should include users in the design and development process.


Subject(s)
Home Care Services , Telemedicine , Humans , Palliative Care/methods , Telemedicine/methods , Health Personnel/psychology , Ethnicity
19.
Int J Soc Psychiatry ; 69(6): 1303-1311, 2023 09.
Article in English | MEDLINE | ID: mdl-36924461

ABSTRACT

BACKGROUND: Brazilian immigrants are becoming a more visible minority and, although different from other Latinos (in a linguistic, cultural, historical, and ethnic sense), are usually either counted as Latinos, not included in the Latino samples or simply overlooked in research studies. It is essential to understand the stress and pressures they undergo and appreciate their singular perspective and culturally-infused experiences to meet their needs and improve their mental healthcare and quality of life in the United States. AIM: The aim of this review is to understand and describe the experience of Brazilian immigrants in the U.S., related to mental health, assessing what studies have addressed and what is still needing to be researched. METHOD: We carried out an integrative review of peer-reviewed articles published between 2011 and 2022 using PychInfo, PubMed, and Proquest, addressing mental health of Brazilian immigrants in the United States. RESULTS: A total of 10 articles were included revealing the interest of a variety of fields and uncovering three themes: (1) mental healthcare needs (especially warmth and understanding of culture), (2) common sources of support and stress in the community and work, and (3) Socioeconomic aspects related to their mental health, including discrimination, work-life balance, neighborhood cohesion, and acculturation. CONCLUSIONS: Results may be useful to practitioners, researchers, and policy makers, who should be attentive to client's familiarity with the English language, their sources of support, spirituality, specific Brazilian traits, their feeling of 'being invisible', life in community, and their previous experiences with healthcare in Brazil.


Subject(s)
Emigrants and Immigrants , Mental Health , United States , Humans , Brazil , Quality of Life , Hispanic or Latino/psychology , Acculturation
20.
Transcult Psychiatry ; 60(4): 690-702, 2023 08.
Article in English | MEDLINE | ID: mdl-36991563

ABSTRACT

Among the cultural conceptualizations of distress, susto is defined in the DSM-5 as "a cultural explanation of distress and misfortune in Latin America that refers to an illness attributed to a terrifying event that causes the soul to leave the body and leads to unhappiness and illness, as well as difficulties in performing key social functions" (American Psychiatric Association (APA) (2013). Diagnostic and Statistical Manual of Mental Disorders, 5th edition. Washington, DC: APA, p. 836). Thus, susto represents a cultural explanation that encompasses the symptoms of various mental disorders and physical diseases. We analyzed the descriptions of susto from different scientific fields and related them to definitions of DSM-5 syndromes. Three syndromic subtypes of susto show a symptomatic overlap with depression, post-traumatic stress disorder (PTSD) and somatic disorder. However, linguistic metaphors describing symptoms and perceived causes that are specific for Latin American culture support the concept of susto as a specific idiom of distress (e.g., loss of soul, shadow or ajayu; sunken, closed or white eyes; jumping and screaming in the night; being thrown to the ground). In addition, if diagnostic criteria are met for mental disorders, then susto describes a perceived cause of psychopathological states (e.g., depressive disorder, PTSD, somatic disorder, panic disorder, generalized anxiety disorder). Future research with people who have experienced susto is needed to clarify whether susto precedes the onset of other mental disorders (perceived cause) or whether it is a way of designating distress (idiom of distress).


Subject(s)
Concept Formation , Stress Disorders, Post-Traumatic , Humans , Stress Disorders, Post-Traumatic/psychology , Anxiety Disorders , Hispanic or Latino , Diagnostic and Statistical Manual of Mental Disorders
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