Ethnic Minority Participation in Clinical Trials from Latin America and the Caribbean: A Scoping Review.

We summarize the clinical trials (CTs) main characteristics, including members of ethnic minorities from Latin America. We carried out a systematic search in six databases. We made a descriptive synthesis of CTs, summarizing the characteristics, interventions, main findings, results, and conclusions reported. 4411 studies were acquired in search strategy, leaving 24 CTs in the final selection. Of these, ten were randomized, four were non-randomized, and the remainder had other designs. Most of the studies were carried out in the population of infants and children (08), ten of the studies included only women, and two studies included men. Nine studies were conducted in Mexico, with the Mayan ethnic minority being mostly evaluated (05). In only 15 it was mentioned that their research was approved by a research ethics committee. Finally, half of the CTs reported funding from international agencies and third reported funding from government agencies. Our results show that that CTs in ethnic minorities are limited and reduced to a few native peoples of the continent.

A systematic review of population and patient perspectives and experiences as measured in Latin American and Caribbean surveys.

High-quality health systems must provide accessible, people-centred care to both improve health and maintain population trust in health services. Furthermore, accurate measurement of population perspectives is vital to hold health systems accountable and to inform improvement efforts. To describe the current state of such measures in Latin America and the Caribbean (LAC), we conducted a systematic review of facility and population-based assessments that included patient-reported experience and satisfaction measures. Five databases were searched for publications on quantitative surveys assessing healthcare quality in Spanish- or Portuguese-speaking LAC countries, focusing on the domains of processes of care and quality impacts. We included articles published since 2011 with a national sampling frame or inclusion of multiple subnational regions. We tabulated and described these articles, identifying, classifying and summarizing the items used to assess healthcare quality into the domains mentioned earlier. Of the 5584 publications reviewed, 58 articles met our inclusion criteria. Most studies were cross-sectional (95%), assessed all levels of healthcare (57%) and were secondary analyses of existing surveys (86%). The articles yielded 33 unique surveys spanning 12 LAC countries; only eight of them are regularly administered surveys. The most common quality domains assessed were satisfaction (in 33 out of 58 articles, 57%), evidence-based/effective care (34%), waiting times (33%), clear communication (33%) and ease of use (31%). Items and reported ratings varied widely among instruments used, time points and geographical settings. Assessment of patient-reported quality measures through population- and facility-based surveys is present but heterogeneous in LAC countries. Satisfaction was measured frequently, although its use in accountability or informing quality improvement is limited. Measurement of healthcare quality in LAC needs to be more systematic, regular, comprehensive and to be led collaboratively by researchers, governments and policymakers to enable comparison of results across countries and to effectively inform policy implementation.

Exploring the education in cultural competence and transcultural care in Spanish for nurses and future nurses: a scoping review and gap analysis.

BACKGROUND: Globalization and population migration have led to increasingly culturally diverse societies, which has made nursing education in cultural competence and transcultural care a priority. This includes the ability to provide person-centered and culturally congruent care, even within one's own culture. However, this sort of training has been developed and implemented in practice comparatively more by English-speaking societies. Therefore, the aim of this study was to identify the existing educational initiatives for nurses and future ones in cultural competence and transcultural care in Spanish and explore their didactic characteristics in terms of teaching and learning formats, contents, skills, and evaluation methods at different academic levels. METHODS: A scoping review was carried out by following the specific PRISMA recommendations and those of the Joanna Briggs Institute guidance throughout PudMed, Web of Science, Embase, Google Scholar, and Cinahl databases and also gray literature in the form of official documentation that later was complemented with a gap analysis including training programs published by Spanish and Latin-American educational institutions and the approaches of key academic informants. RESULTS: The published evidence on nursing training in cultural competence or related topics in Spanish-speaking higher education for nurses is limited. Specific nursing programs in Spanish-speaking universities are primarily found in Spain, with fewer options available in Latin America. These contents are offered either as optional subjects or immersed in other courses and mainly taught in theoretical sessions. Practice in real contexts is supposed to be evaluated transversally under the cultural scope according to national educational recommendations though barely visible in students' evaluation reports. Even though postgraduate training dedicated to these issues exists, it is still limited, mixed with other contents, and generally depends on a few researchers investigating and publishing on the topic from very specific universities. CONCLUSIONS: It is essential to establish a common global strategy including Spanish-speaking countries in nurses' higher education and professional training on topics focused on cultural competence as well as the provision of nurses' social and cultural sensitivity towards their own culture and to define whether those that currently exist are effective. It is also crucial that this training was evaluated in practice in order to achieve enough impact on students, health organizations, and population health.

Computer programs used in the field of hospital pharmacy for the management of dangerous drugs: systematic review of literature.

Background: This review wants to highlight the importance of computer programs used to control the steps in the management of dangerous drugs. It must be taken into account that there are phases in the process of handling dangerous medicines in pharmacy services that pose a risk to the healthcare personnel who handle them. Objective: To review the scientific literature to determine what computer programs have been used in the field of hospital pharmacy for the management of dangerous drugs (HDs). Methods: The following electronic databases were searched from inception to July 30, 2021: MEDLINE (via PubMed), Embase, Cochrane Library, Scopus, Web of Science, Latin American and Caribbean Literature in Health Sciences (LILACS) and Medicine in Spanish (MEDES). The following terms were used in the search strategy: "Antineoplastic Agents," "Cytostatic Agents," "Hazardous Substances," "Medical Informatics Applications," "Mobile Applications," "Software," "Software Design," and "Pharmacy Service, Hospital." Results: A total of 104 studies were retrieved form the databases, and 18 additional studies were obtained by manually searching the reference lists of the included studies and by consulting experts. Once the inclusion and exclusion criteria were applied, 26 studies were ultimately included in this review. Most of the applications described in the included studies were used for the management of antineoplastic drugs. The most commonly controlled stage was electronic prescription; 18 studies and 7 interventions carried out in the preparation stage focused on evaluating the accuracy of chemotherapy preparations. Conclusion: Antineoplastic electronic prescription software was the most widely implemented software at the hospital level. No software was found to control the entire HD process. Only one of the selected studies measured safety events in workers who handle HDs. Moreover, health personnel were found to be satisfied with the implementation of this type of technology for daily work with these medications. All studies reviewed herein considered patient safety as their final objective. However, none of the studies evaluated the risk of HD exposure among workers.

Physical and social neighborhood disorder in Latin American cities: a scoping review. / Desordem física e social da vizinhança em cidades da América Latina: revisão de escopo.

Neighborhood disorder is an important aspect that may influence the health of residents in urban areas. The aims of this study were to map and systematize methods for measuring physical and social neighborhood disorder in studies conducted in Latin American cities. By means of a scoping review, articles published from 2000 in English, Spanish, and Portuguese with the following descriptors were mapped: neighborhood, physical disorder, and social disorder. Searches were conducted in MEDLINE (PubMed), LILACS (Virtual Health Library), Scopus, Web of Science, and Cochrane Library. Information on authorship, year, study type, locality, data source, target population, outcome, dominion, indicator, method, geographic unit, and unit of analysis was extracted. Variables from the disorder-related studies were extracted and grouped by similarity of content and themes. A total of 22 articles were identified, all published between 2012 and 2022, the majority in Brazil (n = 16). The perception of the individual was the most used method. The most frequent theme addressed in the physical disorder dominion was public streets (n = 20) and security (n = 15), in the social disorder dominion. A lack of consensus in the literature regarding variables used to measure physical and social neighborhood disorder in Latin American cities was detected. In addition to the need for standardization of the theme, studies to verify the sustainability of proposed measurement methods relevant to dynamically classify and compare urban neighborhoods and health impacts based on levels of exposure to physical and social disorder, are recommended.

A desordem da vizinhança é um importante aspecto que pode impactar a saúde de residentes em áreas urbanas. Os objetivos desta pesquisa foram mapear e sistematizar os métodos de mensuração da desordem física e social na vizinhança em estudos realizados em cidades da América Latina. Por meio de revisão de escopo, foram mapeados artigos publicados a partir do ano 2000 em inglês, espanhol e português com os seguintes descritores: vizinhança, desordem física e desordem social. As buscas foram realizadas no MEDLINE (PubMed), LILACS (Biblioteca Virtual em Saúde), Scopus, Web of Science e Biblioteca Cochrane. Foram extraídas informações sobre autoria, ano, tipo de estudo, local, fonte de dados, população-alvo, desfecho, domínio, indicador, método, unidade geográfica e unidade de análise. As variáveis dos estudos relacionadas à desordem foram extraídas e agrupadas pela similaridade dos conteúdos e temas. Foram identificados 22 artigos, publicados entre 2012 e 2022, sendo a maioria do Brasil (n = 16). A percepção do indivíduo foi o método mais utilizado. O tema mais frequentemente abordado no domínio da desordem física foi vias públicas (n = 20), enquanto no domínio social foi segurança (n = 15). Detectou-se ausência de consenso na literatura quanto às variáveis utilizadas para aferir a desordem física e social da vizinhança em cidades da América Latina. Além da necessidade de padronização do tema, recomendam-se estudos que verifiquem a sustentabilidade de métodos de mensuração propostos, relevantes para classificar e comparar, de forma dinâmica, vizinhanças urbanas e os impactos na saúde com base nos níveis de exposição à desordem física e social.

El desorden del vecindario es un aspecto importante que puede influir en la salud de los residentes en áreas urbanas. Los objetivos fueron mapear y sistematizar los métodos de medición del desorden físico y social en el vecindario en estudios realizados en ciudades de América Latina. Por medio de una revisión de alcance, fueron mapeados artículos publicados a partir del año 2000 en inglés, español y portugués, que poseían los siguientes descriptores: vecindario, desorden físico y desorden social. Las búsquedas se realizaron en MEDLINE (PubMed), LILACS (Biblioteca Virtual en Salud), Scopus, Web of Science y Librería Cochrane. Se extrajeron informaciones sobre la autoría, el año, el tipo de estudio, la ubicación, la fuente de datos, la población objetivo, el resultado, el dominio, el indicador, el método, la unidad geográfica y la unidad de análisis. Las variables de los estudios relacionados con el desorden fueron extraídas y agrupadas por la similitud de los contenidos y temas. Fueron identificados 22 artículos, todos publicados entre 2012 y 2022, siendo la mayoría de Brasil (n = 16). La percepción del individuo fue el método más utilizado. El tema más frecuente abordado en el ámbito del desorden físico fue el de las vías públicas (n = 20) y seguridad (n = 15), en lo social. Se detectó una falta de consenso en la literatura en cuanto a las variables utilizadas para medir el desorden físico y social del vecindario en ciudades de América Latina. Además de la necesidad de estandarización del tema, se recomiendan estudios que verifiquen la sostenibilidad de los métodos de medición propuestos, relevantes para clasificar y comparar, de forma dinámica, los vecindarios urbanos y los impactos en la salud con base en niveles de exposición a desorden físico y social.

Impact of mental health stigma on help-seeking in the Caribbean: Systematic review.

BACKGROUND: Mental health conditions often go untreated, which can lead to long-term poor emotional, social physical health and behavioural outcomes, and in some cases, suicide. Mental health-related stigma is frequently noted as a barrier to help seeking, however no previous systematic review has considered evidence from the Caribbean specifically. This systematic review aimed to address two research questions: (1) What is the impact of mental health stigma on help-seeking in the Caribbean? (2) What factors underlie the relationship between stigma and help-seeking in the Caribbean? METHODS: A systematic search was conducted across six electronic databases (Medline, Embase, Global Health, PsychInfo, Scopus and LILACS). The search included articles published up to May 2022. Experts in the field were consulted to provide publication recommendations and references of included studies were checked. Data synthesis comprised of three components: a narrative synthesis of quantitative findings, a thematic analysis of qualitative findings, and a meta-synthesis combining these results. RESULTS: The review included nine articles (reflecting eight studies) totaling 1256 participants. A conceptual model was derived from the meta-synthesis, identifying three themes in relation to mental health stigma and help-seeking in the Caribbean: (i) Making sense of mental health conditions'; (ii) Anticipated/Experienced stigma-related experiences and (iii) Individual characteristics. CONCLUSION: This review provides insights into the relationship between mental health stigma and help-seeking in the Caribbean based upon the current research evidence. This can be applied in the design of culturally appropriate future research, and to support policy and practice towards stigma reduction, and improved mental care help-seeking in the Caribbean.

The need for epidemiological research on eating disorders in Africa and the Caribbean.

The eating disorders field acknowledges the need to include diverse populations in research. Although global diversity has increased in epidemiologic research, there is still a significant lack of research in Africa and the Caribbean. The objectives of this article are to highlight knowledge gaps in these regions and make recommendations to improve future research. We searched the literature about the epidemiology of eating disorders in Africa and the Caribbean and provided a brief summary of research findings and measures used to identify cases. There is a large knowledge gap about the epidemiology of eating disorders across African and Caribbean nations. Knowledge about the cultural appropriateness of measurement instruments and screening tools is also lacking. Inadequate information about the epidemiology of eating disorders in Africa and the Caribbean inhibits the eating disorders research field from identifying who is affected. Further, measures and screening instruments with uncertain cultural validity inhibit the ability to understand case presentations and treatment targets. We recommend that the field advocate for the inclusion of eating disorders in larger population health research and that future research should evaluate the appropriateness of measurement instruments to capture eating disorder cases in African and Caribbean countries. PUBLIC SIGNIFICANCE: There is a lack of eating disorder research in African and Caribbean countries. The limited studies that do exist show evidence of eating disorders in African and Caribbean countries. Research is needed to develop culturally relevant measures for screening and case identification, and to calculate incidence and prevalence.

"Something very taboo": a qualitative exploration of beliefs, barriers, and recommendations for improving mental health care and access for Hispanic adults in the Paso del Norte U.S.-Mexico border region.

Background: Hispanic adults with mental health conditions in the United States experience disproportionate access to and utilization of professional mental health treatment. This is believed to be in part due to systemic barriers and challenges, difficulty accessing care, cultural factors, and stigma. Studies to date have failed to examine these specific factors within the unique context of the Paso del Norte U.S.-Mexico border region. Methods: For this study, 25 Hispanic adults identifying primarily of Mexican descent participated in four focus groups exploring these topics. Three groups were facilitated in Spanish and one group in both English and Spanish. Focus groups followed a semi-structured format eliciting perspectives on mental health and mental illness, help-seeking, barriers and facilitators of help-seeking and treatment access, and recommendations for mental health agencies and providers. Results: Qualitative data analysis yielded the following themes: understanding of mental health and help-seeking; barriers to accessing care; mental health treatment facilitators; and recommendations for agencies, providers, and researchers. Conclusion: Findings from this study support the need for innovative mental health engagement strategies to reduce stigma, increase understanding of mental health, foster support systems, reduce individual and systemic barriers to seeking and accessing care, and to continue to engage communities in mental health outreach and research.

Modes of governance and the ethnography of activism at the Mexico-US border.

Inspired by political philosophy, critical studies of border regimes often reduce human rights and relief work to some accomplice role in migratory control and surveillance. Drawing on ethnographic research on pro-migrant activism in Tijuana, a large city on Mexico's northern border, I contrast such critical literature on border policies with an anthropological approach to the study of organizations and bureaucracies. In particular, drawing attention to activists as providers of goods and services enables us to deal with activism as an ensemble of concrete actors, institutions, and practices. The contradictory directives to which providers are subject, faced with inevitable conflicts, shifting alliances, and overlapping structures, are apparent in cases of co-production of services through complex forms of coordination between local authorities, civil associations, and international organizations. Revealing the political dimensions of service delivery-not reducible to domination-these assemblages of modes of governance are frequently oriented to cope with migrants' immobility in cities like Tijuana, turned into places of indefinite delay by policies that extend the spaces of interception and expulsion to neighboring "transfer" countries.

An intersectional approach to exploring lived realities and harnessing the creativity of ethnic minority youth for health gains: protocol for a multiphase mixed method study.

BACKGROUND: Understanding the diversity and multiplicity of identities experienced by youth in Aotearoa (Te reo Maori name of the country) New Zealand (NZ) is vital to promoting their wellbeing. Ethnic minority youth (EMY) in NZ (defined as those identifying with Asian, Middle Eastern, Latin American and African ethnic origins) have been historically under-studied and under-counted, despite reporting high levels of discrimination, a major determinant of mental health and wellbeing and potentially a proxy for other inequities. In this paper, we describe the protocol for a multi-year study that examines, using an intersectional approach, how multiple marginalised identities impact mental and emotional wellbeing of EMY. METHODS: This is a multiphase, multi-method study designed to capture the diversity of lived realities of EMY who self-identify with one or more additional marginalised intersecting identity (the population referred here as EMYi). Phase 1 (Descriptive study) will involve secondary analyses of national surveys to examine the prevalence and relationships between discrimination and wellbeing of EMYi. Phase 2 (Study on public discourse) will analyse data from media narratives, complemented by interviews with stakeholders to explore discourses around EMYi. Phase 3 (Study on lived experience) will examine lived experiences of EMYi to discuss challenges and sources of resilience, and how these are influenced by public discourse. Phase 4 (Co-design phase) will use a creative approach that is youth-centered and participatory, and will involve EMYi, creative mentors and health service, policy and community stakeholders as research partners and advisors. It will employ participatory generative creative methods to explore strengths-based solutions to discriminatory experiences. DISCUSSION: This study will explore the implications of public discourse, racism and multiple forms of marginalisation on the wellbeing of EMYi. It is expected to provide evidence on the impacts of marginalisation on their mental and emotional wellbeing and inform responsive health practice and policy. Using established research tools and innovative creative means, it will enable EMYi to propose their own strength-based solutions. Further, population-based empirical research on intersectionality and health is still nascent, and even more scarce in relation to youth. This study will present the possibility of expanding its applicability in public health research focused on under-served communities.

Advance Statements for Black African and Caribbean people (AdStAC): protocol for an implementation study.

BACKGROUND: The UK government committed to legislating for Advance Choice Documents/Advance Statements (ACD/AS) following their recommendation by the Independent Review of the MHA (2018). ACDs/AS are yet to be implemented in routine practice despite evidence and high demand; they are associated with improved therapeutic relationships and a reduction (25%, RR 0.75, CI 0.61-0.93) in compulsory psychiatric admission. Barriers to their implementation are well documented, ranging from low knowledge levels to logistical challenges in accessing the content during episodes of acute care. In the UK this is an issue for Black people, who experience detention rates disproportionately (over three times) higher than those of White British people and have poorer care experiences and outcomes. ACDs/AS allow for Black people to have their concerns heard by mental health professionals in a care system where they often feel their views are ignored. AdStAC aims to improve Black service users' experiences in mental health services in South London by co-producing and testing an ACD/AS implementation resource with Black service users, mental health professionals and carers/supporters of Black service users. METHODS/DESIGN: The study will take place in South London, England over three phases: 1) formative work through stakeholder workshops; 2) co-production of resources through a consensus development exercise and working groups; and 3) testing of the resources using quality improvement (QI) methods. A lived experience advisory group, staff advisory group and project steering committee will support the study throughout. The implementation resources will comprise: advance choice document/advance statement (ACD/AS) documentation, stakeholder trainings, a manual for mental health professionals to facilitate the processes of creating and revising advance statements, and informatics development. DISCUSSION: The implementation resources will help increase the likelihood of the new mental health legislation in England being implemented effectively; through aligning evidence-based medicine, policy and law to effectively provide positive clinical, social and financial outcomes for Black people, the National Health Service (NHS) and wider society. This study will likely benefit a wider group of people with severe mental illness, as when marginalised groups who are least engaged, can be supported with these strategies, then the strategies are likely to work for others.

Parenting a Toddler in the Era of Pervasive Screens: Interviews with Low-Income Mexican American Parents.

Screen media use starts in early childhood, despite recommendations to limit use. This study explored low-income Mexican American mothers' and fathers' beliefs, parenting practices, and perceived contextual contributors related to toddler screen use. We conducted interviews with 32 low-income Mexican American parents. Transcripts of audio recordings were analyzed to identify themes. Parents perceived numerous benefits to screen use, including learning and enjoyment, as well as seeing it as a helpful tool for parents. Reported risks included harmful mental and physical effects and a risk of use being all-consuming. Parents managed screen use with a variety of practices, including giving close attention to content, monitoring duration, and engaging in co-use. They also used screens for behavior management and in specific situations, such as to prepare for sleep. Some differences in beliefs and parenting practices exist by screen device type. Parents also reported that contextual factors, such as weather and neighborhood safety, influenced screen use. This study extends the current literature regarding child screen use, with its focus on low-income Mexican American toddlers. The findings offer interventionists and providers insight into the management of screens in the lives of this population.

Economic and racial disparities of the weather impact on air quality in Brazil.

Several studies have quantified the air pollution exposure disparities across racial and income groups. However, there is still a lack of investigations assessing disparities related to the impacts of weather on air pollution, which could indicate target air pollution reduction strategies under different climate scenarios. Our study aims to address this gap by estimating the economic and racial disparities of the weather impact on air quality in Brazil between 2003 and 2018. First, we used a generalized additive approach to estimate the weather-related changes in PM2.5. This framework derived "weather penalty", which a positive penalty suggests that an increase in PM2.5 was associated with long-term weather changes in the study period. Then, we estimated the population-weighted weather penalty for racial and income groups. Average penalty for the White population (the most-exposed group) was 31% higher than that of the Pardo population (the least-exposed group, mainly people of light brown skin color) in Brazil. In the stratification analysis by region, the Midwest and South were the regions where the black population was the most-exposed group. For the income group, our results indicate that the high-income population group was the most-exposed group in all analyses, including the national and the regional analyses. These findings are somewhat surprising, as previous studies have shown that minority and low-income populations tend to be more exposed to air pollution, than white and higher-income populations. However, our study suggests that disparities in exposure to air pollution may be more complex and nuanced than previously thought. Further research is needed to better understand the underlying drivers of these environmental disparities, and to develop targeted interventions to reduce exposures.

Ser paciente haitiano/a en Chile y vivir el racismo en centros de la red pública de salud / Being a Haitian patient in Chile and experiencing racism in centers of the public health network

Resumen El presente trabajo se inscribe en los estudios sobre las migraciones contemporáneas a Chile, campo iniciado en los años noventa al momento de una transición democrática y una economía presentada como exitosa. Expone breves referencias a la migración hacia Chile proveniente de Haití y algunos elementos de la historia de Haití que conforman una situación migratoria particular. El objetivo es identificar el racismo presente en las interacciones entre profesionales de los centros de la red pública de salud y pacientes haitianos/as que acuden a ellos en Santiago de Chile. Este trabajo proviene de un proyecto mayor que analizó la sociabilidad y las competencias culturales de estos profesionales al interactuar con migrantes. Desde una metodología cualitativa se realizaron entrevistas semiestructuradas a profesionales de la red pública de salud y grupos focales a pacientes haitianos. El marco de referencia se centra en el racismo como sistema y como relación social, en la discriminación racial y sus efectos en las personas. Se analizan las palabras de los/as pacientes y los/as profesionales, se presentan algunas conclusiones sobre el racismo y la violencia registradas como forma de sociabilidad, entendiéndola como el modo en que se da el trato entre dos actores, uno de ellos en una posición superior. Estos procesos precisan ser reflexionados para dar cuenta del sufrimiento producido en hombres, mujeres y niños/as haitianos que buscan atención en la red de salud pública. Por último, se avanzan algunas orientaciones tendientes a superarlos.

Abstract The present work is inscribed within the field of contemporary migration studies in Chile, a line of investigation initiated during the nineties. At the time, various people from South America and the Caribbean arrived to the country, which was undergoing a democratic transition and presented itself as a successful economic model. Twenty-five years later, migrants from Haiti began arriving. Despite not constituting the largest group of migrants, they have become one of the most targeted by Chilean society, the media, the political class and government authorities. Since the election of Sebastián Piñera in 2018, certain measures were taken that signaled a policy aimed towards reducing Haitian presence in the country: namely, a "humanitarian" return plan exclusively for Haitians and the creation of a consular visa as the main permit in order to enter the country. During the COVID-19 pandemic, they were singled out as disobedient to the measures imposed by the state of emergency and the sanitary restrictions put in place. Chilean society agrees with restrictive norms and policies and looks with suspicion at a migrant group that it perceives as different. Chile, a country colonized in the name of humanist and republican values, which upholds cultural homogeneity, does not look favorably on the arrival of migrants from elsewhere in the region, and even less so on a migrant group whose skin color has been negatively evaluated, to the point of linking it to physical, cultural and psychological characteristics. This work makes brief references of the context of migrating to Chile, of doing so from Haiti, and of some elements of Haiti's history that make up this particular migratory situation. The proposed objective is to identify racism present within the interactions between public health workers and Haitian patients who approach them for help or treatment in the city of Santiago. This work stems from a larger project that analyzed the sociability and cultural skills of different public health professionals interacting with migrants. Employing a qualitative methodology, semi-structured interviews were conducted with professionals from the public health service and focus groups were organized with Haitian patients. The frame of reference focuses on racism as a system and as a social relationship, on racial discrimination and its effects on people. The words of patients and professionals are analyzed and conclusions are drawn in regards to racism and registered violence as forms of sociability, the latter understood as the way in which two actors interact when one of them is in a position of superiority. These processes need to be reflected upon in order to account for the damages caused to Haitian men, women and children seeking care in the public health network. Considering the importance of the right to migrate in current times and the multiple obstacles that impede it, Haitian life in Chile emerges as a "problem" when it comes to being attended, cared for or assisted to by health professionals, an issue that is linked to the fact that contemporary migrations have been repeatedly characterized as a "problem" and not as a social phenomenon that needs to be seriously analyzed with academic accuracy. Racist criticism emerges violently, offending and harming Haitian migrants who, in order to avoid it, sometimes prefer not to go public health centers, to look for alternatives when dealing with the ailments that afflict them, or straightforwardly abandon the possibility of being attended at all. Finally, some guidelines are advanced which may help to overcome these situations by training professionals in order to improve communications between them and Haitian migrants.

Advantages and Challenges of Using Telehealth for Home-Based Palliative Care: Systematic Mixed Studies Review.

BACKGROUND: Owing to the increasing number of people with palliative care needs and the current shortage of health care professionals (HCPs), providing quality palliative care has become challenging. Telehealth could enable patients to spend as much time as possible at home. However, no previous systematic mixed studies reviews have synthesized evidence on patients' experiences of the advantages and challenges of telehealth in home-based palliative care. OBJECTIVE: In this systematic mixed studies review, we aimed to critically appraise and synthesize the findings from studies that investigated patients' use of telehealth in home-based palliative care, focusing on the advantages and challenges experienced by patients. METHODS: This is a systematic mixed studies review with a convergent design. The review is reported according to the PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-Analyses) statement. A systematic search was performed in the following databases: Allied and Complementary Medicine Database, CINAHL, Cochrane Central Register of Controlled Trials, Embase, Latin American and Caribbean Health Sciences Literature, MEDLINE, PsycInfo, and Web of Science. The inclusion criteria were as follows: studies using quantitative, qualitative, or mixed methods; studies that investigated the experience of using telehealth with follow-up from HCPs of home-based patients aged ≥18; studies published between January 2010 and June 2022; and studies published in Norwegian, Danish, Swedish, English, Portuguese, or Spanish in peer-reviewed journals. Five pairs of authors independently assessed eligibility of the studies, appraised methodological quality, and extracted data. The data were synthesized using thematic synthesis. RESULTS: This systematic mixed studies review included 41 reports from 40 studies. The following 4 analytical themes were synthesized: potential for a support system and self-governance at home; visibility supports interpersonal relationships and a joint understanding of care needs; optimized information flow facilitates tailoring of remote caring practices; and technology, relationships, and complexity as perpetual obstacles in telehealth. CONCLUSIONS: The advantages of telehealth were that patients experience a potential support system that could enable them to remain at home, and the visual features of telehealth enable them to build interpersonal relationships with HCPs over time. Self-reporting provides HCPs with information about symptoms and circumstances that facilitates tailoring care to specific patients. Challenges with the use of telehealth were related to barriers to technology use and inflexible reporting of complex and fluctuating symptoms and circumstances using electronic questionnaires. Few studies have included the self-reporting of existential or spiritual concerns, emotions, and well-being. Some patients perceived telehealth as intrusive and a threat to their privacy at home. To optimize the advantages and minimize the challenges with the use of telehealth in home-based palliative care, future research should include users in the design and development process.

Brazilian immigrants in the United States and mental health: An integrative review.

BACKGROUND: Brazilian immigrants are becoming a more visible minority and, although different from other Latinos (in a linguistic, cultural, historical, and ethnic sense), are usually either counted as Latinos, not included in the Latino samples or simply overlooked in research studies. It is essential to understand the stress and pressures they undergo and appreciate their singular perspective and culturally-infused experiences to meet their needs and improve their mental healthcare and quality of life in the United States. AIM: The aim of this review is to understand and describe the experience of Brazilian immigrants in the U.S., related to mental health, assessing what studies have addressed and what is still needing to be researched. METHOD: We carried out an integrative review of peer-reviewed articles published between 2011 and 2022 using PychInfo, PubMed, and Proquest, addressing mental health of Brazilian immigrants in the United States. RESULTS: A total of 10 articles were included revealing the interest of a variety of fields and uncovering three themes: (1) mental healthcare needs (especially warmth and understanding of culture), (2) common sources of support and stress in the community and work, and (3) Socioeconomic aspects related to their mental health, including discrimination, work-life balance, neighborhood cohesion, and acculturation. CONCLUSIONS: Results may be useful to practitioners, researchers, and policy makers, who should be attentive to client's familiarity with the English language, their sources of support, spirituality, specific Brazilian traits, their feeling of 'being invisible', life in community, and their previous experiences with healthcare in Brazil.

Susto as a cultural conceptualization of distress: Existing research and aspects to consider for future investigations.

Among the cultural conceptualizations of distress, susto is defined in the DSM-5 as "a cultural explanation of distress and misfortune in Latin America that refers to an illness attributed to a terrifying event that causes the soul to leave the body and leads to unhappiness and illness, as well as difficulties in performing key social functions" (American Psychiatric Association (APA) (2013). Diagnostic and Statistical Manual of Mental Disorders, 5th edition. Washington, DC: APA, p. 836). Thus, susto represents a cultural explanation that encompasses the symptoms of various mental disorders and physical diseases. We analyzed the descriptions of susto from different scientific fields and related them to definitions of DSM-5 syndromes. Three syndromic subtypes of susto show a symptomatic overlap with depression, post-traumatic stress disorder (PTSD) and somatic disorder. However, linguistic metaphors describing symptoms and perceived causes that are specific for Latin American culture support the concept of susto as a specific idiom of distress (e.g., loss of soul, shadow or ajayu; sunken, closed or white eyes; jumping and screaming in the night; being thrown to the ground). In addition, if diagnostic criteria are met for mental disorders, then susto describes a perceived cause of psychopathological states (e.g., depressive disorder, PTSD, somatic disorder, panic disorder, generalized anxiety disorder). Future research with people who have experienced susto is needed to clarify whether susto precedes the onset of other mental disorders (perceived cause) or whether it is a way of designating distress (idiom of distress).

Translation, cross-cultural adaptation and validation of the EPOCH-RRT questionnaire "Empowering Patients On Choices For Renal Replacement Therapy" for the Brazilian context / Tradução, adaptação transcultural e validação do questionário EPOCH-RRT "Empowering Patients On Choices For Renal Replacement Therapy" para o contexto brasileiro

Abstract Introduction: Chronic kidney disease (CKD) is a global public health problem. In Brazil, the incidence and prevalence rates of dialysis CKD progressively increase, but the transition process is a challenge for patients and caregivers in coping with the disease. Dialysis urgency, lack of planned access or prior knowledge of treatment is a reality for most. Guidelines recommend that treatment options should include the conscious preference of a fully informed patient. However, pre-dialysis educational information is an exception, leading to a large number of unplanned initial dialysis. The original study "Empowering Patients on Choices for Renal Replacement Therapy" (EPOCH-RRT) aimed to identify patient priorities and gaps in shared decision-making about dialysis, using structured interviews with questions about demographics, clinical history and patients' perception of their health. The goal of this study was to carry out the translation, cross-cultural adaptation and validation of the questionnaires used in the EPOCH-RRT Study for the Brazilian context. Method: This is a methodological study that consisted of the initial translation, synthesis of the translations, back translation, review by a committee of experts, pre-test and evaluation of the psychometric properties of the instrument. All ethical precepts were followed. Results: The questionnaires were translated, adapted and validated for the Brazilian context. Additionally, it was applied to 84 chronic renal patients on hemodialysis, peritoneal dialysis and outpatients. Discussion: There is a lack of an educational-therapeutic approach aimed at patients with CKD, and the EPOCH-RRT questionnaire can be a tool for Brazilian dialysis services to change this paradigm.

Resumo Introdução: A doença renal crônica (DRC) é um problema de saúde pública mundial. No Brasil, as taxas de incidência e prevalência da DRC dialítica aumentam progressivamente, mas o processo de transição apresenta-se como desafio para pacientes e cuidadores no enfrentamento da doença. Urgência dialítica, ausência de acesso planejado ou conhecimento prévio do tratamento é uma realidade para a maioria. Diretrizes recomendam que opções de tratamento devam incluir a preferência consciente de um paciente totalmente informado. No entanto, informação educacional pré-diálise é exceção, acarretando grande número de diálises iniciais não planejadas. O estudo original "Empowering Patients on Choices for Renal Replacement Therapy" (EPOCH-RRT) teve por objetivo identificar as prioridades do paciente e as lacunas na tomada de decisões compartilhadas sobre a diálise, utilizando entrevistas estruturadas, com questões sobre dados demográficos, história clínica e percepção dos pacientes sobre sua saúde. O objetivo desta pesquisa foi realizar a tradução, adaptação transcultural e validação dos questionários utilizados no Estudo EPOCH-RRT para o contexto brasileiro. Método: Trata-se de estudo metodológico que consistiu na tradução inicial, síntese das traduções, retro tradução, revisão por um comitê de especialistas, pré-teste e avaliação das propriedades psicométricas do instrumento. Todos os preceitos éticos foram seguidos. Resultados: Os questionários foram traduzidos, adaptados e validados para o contexto brasileiro. Adicionalmente, foi aplicado em 84 pacientes renais crônicos em hemodiálise, diálise peritoneal e ambulatoriais. Discussão: Há carência de enfoque educativo-terapêutico dirigido aos pacientes com DRC, e o questionário EPOCH-RRT pode ser uma ferramenta para serviços de diálise brasileiros mudarem esse paradigma.

Offer of integrative and complementary health practices for the elderly in health services: A protocol for systematic review and meta analysis.

INTRODUCTION: Integrative and complementary health practices (ICHP) question the hegemony of the biomedical, technical and hospital paradigm, as they are an important axis in the process of redefining the health care model. Understanding how ICHP are offered to the elderly population can help to improve the production of changes in care and in the daily life of health services. OBJECTIVE: To identify and summarize the scientific evidence on the provision of ICHP for the elderly in health services. METHODS: This is a research protocol for a scoping review following the recommendations of the Extension for Scoping Reviews method proposed by the Joanna Briggs Institute. Studies will be collected in the following databases, Latin American and Caribbean Health Sciences Literature, Web of Science, Scopus, Scielo, Online System for Searching and Analyzing Medical Literature (MEDLINE), Embase, Virtual Library in Health and gray literature. Two independent reviewers will perform screening, data extraction, and risk of bias assessment using the Joanna Briggs Institute Critical Assessment Checklist. For the quality of evidence, the Grading of Recommendations, Assessment, Development and Evaluation analysis will be used. RESULTS: This review will provide information on the provision of ICHP for the elderly population in health services. CONCLUSIONS: This scoping review will provide evidence to help health professionals, managers and users to recognize more effective therapeutic inventions for promoting, preventing and protecting comprehensive health at different levels of care.