Might the bioethical principle of individual decisional autonomy have a politically liberalizing effect on soft authoritarian communities?

According to the bioethical principle of individual decisional autonomy, the patient has a right of informed consent to any medical or experimental procedure. The principle is politically liberal by advocating significant individual freedom as guaranteed by law and secured by civil liberties. When practiced in illiberal communities, might it have a political liberalizing effect? I respond first by analyzing cross-national norms of individual decisional autonomy to identify tensions with illiberal community; second, by examining examining Singapore in a single case study to show that liberal bioethics does not promote political liberalization; and third, by showing that the possibility of practicing liberal bioethics in research, clinically as well as in education, does not require a democratic order, and that liberal bioethics is unlikely to encourage the liberalization of illiberal political communities. Hence, it may never contribute to the development of globally effective cross-national norms for the legal regulation of bioethical research and clinical practice. Fourth, to bolster this analysis, I anticipate several possible objections to various of its aspects.

The Alabama Embryo Decision-The Politics and Reality of Recognizing "Extrauterine Children".

This Viewpoint discusses the Alabama Supreme Court's opinion on in vitro fertilization and how it plays into a larger push for fetal and embryonic personhood.

Direitos reprodutivos das mulheres submetidas à cesárea em Moçambique: uma revisão integrativa / Drets reproductius de les dones sotmeses a cesària a Moçambic: una revisió integradora / Derechos reproductivos de las mujeres sometidas a cesárea en Mozambique: una revisión integradora / Reproductive rights of women undergoing cesarean section in Mozambique: an integrative review

O presente artigo está voltado às questões referentes aos direitos reprodutivos e ao parto cesárea das mulheres em Moçambique. O objetivo foi analisar as ações/estratégias governamentais e não governamentais que visem a efetivação dos direitos reprodutivos das mulheres submetidas ao parto cesárea em Moçambique, discutindo sobre as fragilidades que configuram a violação desses direitos. Para tanto, foi realizada uma revisão integrativa da literatura nas bases de dados Elsevier, GALE, PubMed, Web of Science e DOAJ a partir da combinação dos descritores cesarean section OR reproductive rights AND Mozambique. Depois de aplicadas as estratégias de inclusão e exclusão, resultaram 13 artigos elegíveis para elaboração do presente estudo. Os resultados apontam para a falta de aplicabilidade das ações governamentais que, apesar de existirem, ainda são ineficazes para que as mulheres de Moçambique tenham seus direitos reprodutivos garantidos e assistidos.(AU)

Aquest article es centra en qüestions relacionades amb els drets reproductius i el part per cesària de les dones a Moçambic. L'objectiu era analitzar les accions/estratègies tant governamentalscom no governamentals que busquen l'efectivitat dels drets reproductius de les dones sotmeses a cesària a Moçambic, discutint les debilitats que constitueixen la violació d'aquests drets. Per fer-ho, es va realitzar una revisió integradora de la literatura a les bases de dades Elsevier, GALE, PubMed, Web of Science i DOAJ a partir de la combinació dels descriptors cesarean section OR reproductive rights AND Mozambique. Després d'aplicar les estratègies d'inclusió i exclusió, es van obtenir 13 articles elegibles per a l'elaboració del present estudi. Els resultats assenyalen la manca d'aplicabilitat de les accions governamentals que, malgrat existir, encara són ineficaços per garantir i atendre els drets reproductius de les dones a Moçambic.(AU)

El presente artículo se centra en cuestiones relacionadas con los derechos reproductivos y el parto por cesárea de las mujeres en Mozambique. El objetivo fue analizar las acciones/estrategias gubernamentales y no gubernamentales que buscan la efectividad de los derechos reproductivos de las mujeres sometidas a cesárea en Mozambique, discutiendo las debilidades que constituyen la violación de estos derechos. Para ello, se realizó una revisión integradora de la literatura en las bases de datos Elsevier, GALE, PubMed, Web of Science y DOAJ a partir de la combinación de los descriptores cesarean section OR reproductive rights AND Mozambique. Después de aplicar las estrategias de inclusión y exclusión, se obtuvieron 13 artículos elegibles para la elaboración del presente estudio. Los resultados señalan la falta de aplicabilidad de las acciones gubernamentales que, a pesar de existir, aún son ineficaces para garantizary atender los derechos reproductivos de las mujeres en Mozambique.(AU)

This article addresses issues related to reproductive rights and cesarean delivery for women in Mozambique. The objective was to analyze governmental and non-governmental actions / strategies aimed at the realization of the reproductive rights of women submitted to cesarean delivery in Mozambique, discussing the weaknesses that constitute the violation of these rights. To this end, an integrative literature review was carried out in the Elsevier, GALE, PubMed, Web of Science and DOAJ databases based on the combination of the descriptors cesarean section OR reproductive rights AND Mozambique. After applying the inclusion and exclusion strategies, 14 articles were eligible for the preparation of this study. The results point to the lack of applicability of government actions that, although they exist, are still ineffective for women in Mozambique to have their reproductive rights fully guaranteed and assisted.(AU)

Ethical obstacles in health systems research in India: Need for focused guidelines.

This paper focuses on the ethical tensions seen in health systems research by researchers owing to their scientific obligations to their research, ethical obligations to study participants, and social obligations to the community. Health systems research differs from other public health research fields in terms of the participants selected, power relations within health systems and the socio-political environment. The study seeks to answer the following questions through experiences in health system research. 1. What are the ethical tensions experienced by researchers in field work? 2. How are the existing guidelines used in resolving tensions arising in field work in India? To understand these ethical tensions, the World Health Organization's Ethical Considerations for Health Policy and Systems Research were applied to research conducted in the health system settings. These tensions faced by researchers are explained through four emerging themes: the researcher's position in the health system; voluntariness of participation: participation; and social justice.

IGG in the trenches: Results of an in-depth interview study on the practice, politics, and future of investigative genetic genealogy.

Investigative genetic genealogy (IGG) is a new technique for identifying criminal suspects and unidentified deceased and living persons that has sparked controversy. In a criminal case, the technique involves uploading genetic information left by a putative perpetrator at the crime scene to one or more direct-to-consumer genetic genealogy databases with the intention of identifying the perpetrator's genetic relatives and, eventually, locating the perpetrator on the family tree. In 2018, IGG helped to identify the Golden State Killer, and it has since been used in hundreds of investigations in the United States. Here, we report findings from in-depth interviews with 24 U.S.-based individuals involved in IGG that are relevant to the technique's current practice and predicted future. Key findings include: an emphasis on restricting IGG as a conceptual and technical matter to lead generation; the rapid growth of a private and largely self-regulating industry to support IGG; general recognition of three categories of cases associated with distinct practical, ethical, and policy questions, as well as varying degrees of controversy; and the significant influence of perceived public opinion on IGG practice. The experiences and perspectives of individuals in the IGG trenches related to these and other issues are potentially useful inputs to ongoing efforts to regulate the technique.

Achieving and Maintaining Equitable Health Outcomes for all, Including for Future Generations.

Sustainable health equity means achieving and maintaining equitable health outcomes for all people, including for future generations. It encompasses realizing the right to health, setting the conditions for leading a healthy life, and fulfilling the full range of human rights. Achieving sustainable health equity requires that public services be designed and provided, and public policies be developed through empowering, inclusive, participatory, accountable, and democratic processes and mechanisms.

Maternal health and human rights impacts of Russian drug policy.

This article describes how Russian drug policy defies international ethical standards in patient care and violates the human rights of pregnant people who use drugs. While the CEDAW Committee previously found Russia to be in violation of the Convention on the Elimination of All Forms of Discrimination against Women (CEDAW) by failing to ensure that pregnant people have access to gender-sensitive drug dependence treatment, to date the Committee has refused to address the role of drug criminalization in enabling this human rights violation. This article outlines the gendered impacts of Russia's punitive approach to drug use, including its detrimental effects on maternal health, and concludes by urging the CEDAW Committee to follow the approach of the UN Committee on Economic, Social and Cultural Rights, the UN Chief Executives, the World Health Organization, and UNAIDS, as well as senior UN lawyers and international legal experts to assess drug criminalization critically through the prism of the CEDAW convention.

A Teoria dos Fundamentos Morais e as eleições presidenciais brasileiras em 2018 e 2022 / The Moral Foundations Theory and the Brazilian Presidential Elections in 2018 and 2022

A Teoria dos Fundamentos Morais postula que liberais e conservadores são orientados por fun-damentos morais distintos, o que pode ser usado como estratégia de persuasão política, bem como influenciar no comportamento de voto. No presente trabalho, realizamos quatro estudos. Os participantes responderam a um instrumento online composto pelo Questionário de Funda-mentos Morais, uma medida de intenção de votos e informaram dados demográficos. Nos estu-dos foram identificados que a tendência individualizante influenciou a intenção de votos a can-didatos de esquerda, enquanto a tendência coesiva influenciou a intenção para candidatos de direita nas eleições presidenciais de 2018 e 2022. Conclui-se que a TFM é um modelo robusto para compreensão de aspectos do comportamento político brasileiro. (AU)

The Moral Foundations Theory postulates that liberals and conservatives are guided by distinct moral foundations, which can be used as a strategy for political persuasion, as well as influ-encing voting behavior. In the present paper, we carried out four studies. Participants re-sponded to an online instrument composed of the Moral Foundations Questionnaire, their in-tention to vote, to assign the position to candidates for the presidency, and their demographic data. The studies identified that the individualizing foundations influenced the intention to vote for left-wing candidates, while the binding foundations influenced the intention to vote for right-wing candidates in Brazil's 2018 and 2022 presidential elections. Therefore, the MFT is a robust model for understanding aspects of Brazilian political behavior. (AU)

Balancing perceptions of targeting: An investigation of political microtargeting transparency through a calculus approach.

Over the last few years, political advertisers have moved with their audiences: to social media platforms. Advertisers on these platforms aim to persuade voters by sending messages tailored to them based on their own data: political microtargeting (PMT). A considerable problem with PMT is that users are often unaware that they are being targeted, while current transparency advances do not seem to suffice in informing users. However, increasing transparency may have consequences on users' privacy perceptions. Thus, the current work investigates whether disclosures, as a measure to increase transparency, increase users' recognition of a microtargeted ad, and subsequently what this means for their perceived benefits, privacy concerns, and their likelihood of engaging in privacy protection behavior, based on the privacy calculus. In a preregistered online one-factorial between-subjects experiment (N = 450) we exposed participants to either an Instagram post containing a currently used disclosure or a more salient disclosure. Our results show that exposure to this disclosure increases recognition of the ad being microtargeted, and that this relates to perceived benefits but not privacy concerns. However, the results show that users' privacy concerns are related to their increased privacy protection behavior. Finally, we found that over four-fifths of our participants who were exposed to the more salient disclosure recalled it correctly.

Economic Inequality, Social Determinants of Health, and the Right to Social Security.

This paper discusses economic inequality as a key social determinant of health. It highlights the potentially transformative role of social protection systems in addressing economic inequality and health inequalities. How to finance social protection and how to distribute benefits among people are key questions in the pursuit of a transformative social protection system that can adequately tackle economic inequalities. This paper argues that a human rights approach can provide a normative orientation in the political process that decides the distribution of burdens and benefits in relation to social protection, calling for an assessment of its impact on socioeconomic inequalities and on disadvantaged groups of people. While the right to social security is at the center of a human rights approach to social protection, the rights to health, education, housing, and work also provide important normative elements for social protection. A human rights-based social protection system requires comprehensive protection for major social risks and challenges throughout the life cycle; universal access to quality services such as health, education, child care, and services for older people or people with disabilities; and a progressive financing mechanism. In this regard, the International Labour Organization's Social Protection Floors Recommendation No. 202 provides strong guidance on the implementation of the right to social security for all.

The Legal Determinants of Scarcity: Expanding Human Rights Advocacy for Affordability of Health Technologies.

Recognizing law as a determinant of scarcity in health care is vital. This paper underscores the need for a comprehensive approach to manage scarcity beyond intellectual property, using targeted regulations to promote affordability and counter market distortions. I argue that relying on law solely to ensure democratic deliberations for resource allocation overlooks market failures and economic inequalities that contribute to scarcity. I examine different "legal determinants of scarcity" that can be used, on the basis of the right to health, to improve or positively influence the availability and affordability of health technologies through complementary policies such as direct price control, competitive procurement, competition laws, and public-private partnerships. I conclude by asserting that health care affordability must be a central positive human rights obligation in economic and health policies and that states must strive to diversify their approaches to eliminate persistent economic barriers.

Using Ethics Committees to Justify Force-Feeding Political Prisoners in Israel.

Thousands of Palestinian prisoners are held in Israeli prisons without trial. For some of them, engaging in hunger strikes is the last resort in opposing unlawful detention and inhumane prison conditions. While mainstream bioethics deliberation, reasonable arguments, and international legal and medical professional declarations prohibit force-feeding, local ethical deliberations, professional medical guidelines, and legislation allow the use of medical judgment and clinical ethics committees to force-feed these prisoners. Until now, Israeli physicians have refused to do so, but this may change in the future. The international medical and bioethics communities need to stand behind these medical professionals, as well as prisoners. Clinical ethics committees in Israel must choose whether they serve the interests of these prisoner-patients and perhaps their political or human rights agenda, or whether they are subservient to an unjust, oppressive regime.

Compendio temático virtual de publicaciones ORAS-CONHU (2006-2023) / Virtual thematic compendium of ORAS-CONHU Publications (2006-2023)

La elaboración del presente compendio tiene por objetivo contribuir con la visualización y uso de información científica y técnica en salud andina mediante la gestión de un instrumento de recopilación, organizado temática y cronológicamente; a fin de facilitar la consulta especializada de interés conjunto de los países andinos. Recopila 100 títulos identificados, entre el 2006 y el 2023, con valiosa información normativa y técnica, según planes, políticas, manuales, situación de salud, normatividad, informes, guías, investigaciones, Webinar, Pódcast, otros; que promueven la visibilidad y accesibilidad a la información técnica producida a través del ORAS-CONHU. Asimismo, las publicaciones contenidas en el compendio han sido ingresadas en el Portal Regional BVS de Bireme/OPS/OMS -espacio de integración de fuentes de información que promueve la democratización y ampliación del acceso a la información científica y técnica en salud en AL&C- según Sistema Fi-Admin, por lo cual, el compendio refiere los títulos con enlace al registro BVS Regional.

A Portrait of the Rights of Children with Disabilities in Nigeria: A Policy Review.

Worldwide, 200 million children experience disability, with the vast majority living in low- and middle-income countries. The United Nations Convention on the Rights of the Child (CRC) places great importance on the rights of all children for the opportunities for survival, growth, health, and development. A subsequent document, the UN Convention on the Rights of Persons with Disabilities (CRPD), identifies children with disabilities as rights bearers who should be considered in all policies and programming worldwide. Nigeria, in 1991 and 2010, ratified the CRC and the CRPD, respectively. Nonetheless, knowledge of the extent to which their disability and child-directed policies considers these two key conventions, in ensuring that children and children with disabilities have access to care within their right remains limited. This study examined the extent to which Nigeria's current disability and childhood policies have integrated the two child and disability related conventions from the UN. Using a structured search of databases and Nigerian federal and state government websites, we conducted a policy review to identify their disability and child-related disability policies. We also included the CRC and CRPD reports submitted by the Nigerian government to the United Nations Office of the High Commissioner for Human Rights (OHCHR) (2008 and 2010 cyclical year). A thematic analysis, based on the CRC and CRPD report, identified the following six themes: participation, support systems, awareness raising, factors associated with adherence to the CRC, laws and rights, and services. The review showed that the available Nigerian disability policies were federal, with some state policies which aligned with the CRC and CRPD. Also identified was the lack of disability policies specific to children and their families. We concluded that, to ensure proper inclusion of the rights of all children, including those with disabilities, in Nigeria there is a need for a more optimal uptake of recommendations of the CRC and CRPD as laid out by the UN.