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1.
J Med Internet Res ; 23(12): e23210, 2021 12 22.
Artigo em Inglês | MEDLINE | ID: mdl-34941543

RESUMO

BACKGROUND: Medical blogs have become valuable information sources for patients and caregivers. Most research has focused on patients' creation of blogs as therapy. But we know less about how these blogs affect their readers and what format of information influences readers to take preventative health actions. OBJECTIVE: This study aimed to identify how reading patient medical blogs influences readers' perceived health risk and their intentions to engage in preventative health actions. Further, we aimed to examine the format of the medical blog and the reader's response. METHODS: We surveyed 99 university participants and a general-population, online panel of 167 participants. Both studies randomly assigned participants to conditions and measured blog evaluation, intentions for preventative health action, and evaluation of health risk and beliefs, and allowed open-ended comments. The second study used a different sample and added a control condition. A third study used a convenience sample of blog readers to evaluate the link between reading medical blogs and taking preventative health action. RESULTS: Across 3 studies, participants indicated a desire to take future preventative health action after reading patient blogs. Studies 1 and 2 used experimental scenario-based designs, while Study 3 employed a qualitative design with real blog readers. The 2 experimental studies showed that the type of blog impacted intentions to engage in future preventative health actions (Study 1: F2,96=6.08, P=.003; Study 2: F3,166=2.59, P=.06), with a statistical blog being most effective in both studies and a personal narrative blog showing similar effectiveness in Study 2, contrary to some prior research. The readers' perceptions of their own health risk did not impact the relationship between the blog type and health intentions. In contrast, in one study, participants' judgments about the barriers they might face to accessing care improved the fit of the model (F2,95=13.57, P<.001). In Study 3's sample of medical blog readers, 53% (24/45) reported taking preventative health action after reading a health blog, including performing a self-check, asking a doctor about their health risk, or requesting a screening test. Additionally, these readers expressed that they read the blogs to follow the author (patient) and to learn general health information. All studies demonstrated the blogs were somewhat sad and emotional but also informative and well-written. They noted that the blogs made them appreciate life more and motivated them to consider taking some action regarding their health. CONCLUSIONS: Reading patient blogs influences intentions to take future health actions. However, blog formats show different efficacy, and the readers' disease risk perceptions do not. Physicians, medical practitioners, and health organizations may find it useful to curate or promote selected medical blogs to influence patient behavior.


Assuntos
Intenção , Médicos , Blogging , Humanos , Leitura , Redação
2.
Cien Saude Colet ; 26(suppl 3): 5293-5301, 2021.
Artigo em Português, Inglês | MEDLINE | ID: mdl-34787220

RESUMO

The study presented in this paper aimed at understanding how anorexic young women use virtual environments as spaces of sociability in order to construct a narrative about anorexia, anchor their experiences through emotional mutuality and validate discourses. To do so, an analysis of the content found in the commenting and posting sections of pro-anorexia blogs was carried out. Three thematic categories were identified: body, personal identity and sociability on the web. It was observed that blogs are virtual spaces of sociability and construction of identity groups. The representations and the experiences lived by the corporal materiality feed cyberspace and are the starting point for understanding a phenomenon particular to the contemporaneity, that is the virtual exchanges. In blogs, one can find body narratives that seek to give coherence to an individual and to his or her existence as well as narratives that aim at anchoring and legitimizing personal experiences and validating pro-anorexia attitudes. Social ties are strengthened within the group, which becomes an emotional community. The meanings of the spreading discourses allow us to infer that in these groups, the materiality of anorexic bodies emancipates itself from the social stigmas of a disease.


Assuntos
Éter , Éteres , Anorexia , Blogging , Emoções , Feminino , Humanos , Internet , Masculino
3.
J Gerontol Nurs ; 47(11): 11-14, 2021 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-34704870

RESUMO

The caregiving process may result in negative outcomes for caregivers. The coronavirus disease 2019 pandemic has contributed additional challenges for family caregivers of older adults with chronic illnesses. Little is known about the additional impact of the pandemic on caregivers. The purpose of the current study was to understand the effects of the pandemic on the caregiving experience. A qualitative descriptive content analysis was conducted on nine blogs of caregivers of older adults. Blogs were identified using purposive sampling. Bloggers were American, middle-aged, and caring for an older adult with dementia. Caregivers reported "a world upside down" and change that contributed to uncertainty; the need for support; and how isolation, depressive symptoms, and threat contributed to negative psychological well-being. Managing and struggling in response to caregiving challenges and wishing for resolution were also reported. Blogs of caregivers of older adults with chronic illness yielded important information that may be useful to clinicians. [Journal of Gerontological Nursing, 47(11), 11-14.].


Assuntos
COVID-19 , Cuidadores , Idoso , Blogging , Humanos , Pessoa de Meia-Idade , Pandemias , SARS-CoV-2 , Estados Unidos
4.
Am J Nurs ; 121(10): 58, 2021 10 01.
Artigo em Inglês | MEDLINE | ID: mdl-34554990

RESUMO

Updated several times a week with posts by a wide variety of authors, AJN's blog Off the Charts allows us to provide more timely-and often more personal-perspectives on professional, policy, and clinical issues. Best of the Blog is a regular column to draw the attention of AJN readers to posts we think deserve a wider audience. To read more, please visit: www.ajnoffthecharts.com.


Assuntos
Blogging , Unidades de Terapia Intensiva , Papel do Profissional de Enfermagem , Relações Enfermeiro-Paciente , Paralisia/psicologia , Adaptação Psicológica , Vértebras Cervicais/lesões , Humanos
5.
Nutrients ; 13(9)2021 Aug 28.
Artigo em Inglês | MEDLINE | ID: mdl-34578875

RESUMO

(1) Background. Early nutrition and lifestyle before and during pregnancy, breastfeeding, infancy, and early childhood can affect the risk of developing common non-communicable diseases during adulthood such as obesity and metabolic syndrome. To support positive long-term outcomes, it is essential to debunk fake news and provide evidence-based nutritional recommendations. "Nutripedia-Informati per Crescere" is a new tool delivering information and education on appropriate nutrition of mothers and babies during pregnancy and the first years of life. (2) Methods. Nutripedia provides the readers with evidence-based scientific contents in an easy-to-access fashion through a website, a social media page and a personalized advice app called "Nutripedia Chatbot". (3) Results. Forty articles were published on Nutripedia website with more than 220,000 total views. Social channel activation via bloggers reached over 9 million parents. 14,698 users downloaded Nutripedia chatbot, through which a total of 1930 questions were directed to experts while over 24,000 responses were provided by the app. (4) Conclusions. The use of different communication tools delivering evidence-based nutritional information such as Nutripedia is increasing and could offer supportive strategies to provide scientific information to large audiences and contribute fighting fake news. Future research could investigate the effectiveness of this important health campaign.


Assuntos
Comunicação , Meios de Comunicação , Educação em Saúde/métodos , Internet , Serviços de Saúde Materno-Infantil , Estado Nutricional , Adulto , Blogging , Aleitamento Materno , Pré-Escolar , Aconselhamento , Feminino , Humanos , Lactente , Recém-Nascido , Disseminação de Informação , Doenças não Transmissíveis/prevenção & controle , Gravidez , Mídias Sociais
6.
Malar J ; 20(1): 342, 2021 Aug 16.
Artigo em Inglês | MEDLINE | ID: mdl-34399776

RESUMO

BACKGROUND: Europe has about 10,000 imported cases of malaria each year, or around 80 cases per 100,000 trips to endemic areas. Non-use of chemoprophylaxis in travellers remains the main reason for this. The proliferation of online travel blogs as a source of advice (sometimes the only one used) for preparing a trip to an endemic area may play a role in the decision to use chemoprophylaxis. The aim of this study was to analyse the information offered on malaria in the main travel blogs in English and Spanish. METHODS: Five hundred travel blogs in English and 100 in Spanish, considered highly relevant were analysed. The relevance were according to different metrics: (1) Alexa Rank; (2) social networks (RRSS) measuring the total followers of Facebook, Twitter, Instagram and YouTube; (3) number of monthly visits using the SEMrush tool; (4) domain authority; and (5) number of backlinks or incoming links using the SEMrush tool. RESULTS: Of the included travel blogs, 57% of those in English and 64% of those in Spanish offered information on malaria, and 79 and 75%, respectively, featured a discussion on malaria written as a blog post or in forum comments. Information on chemoprophylaxis was available in 56.1% of English-language blogs and 10.7% of Spanish-speaking blogs, while its side effects were discussed in 38.6 and 68.8%, respectively (p < 0.001). Content analysis revealed that the information was usually insufficient, incomplete or, more seriously, inaccurate. In many cases, this could discourage users from taking appropriate preventive measures. CONCLUSIONS: Travel blogs in English and Spanish provide low-quality information on malaria. The so-called "travel influencers" must communicate reliable, verified and quality information on malaria on their channels in a way that could contribute to reducing the burden of the disease in travellers.


Assuntos
Antimaláricos/uso terapêutico , Blogging/estatística & dados numéricos , Quimioprevenção/estatística & dados numéricos , Idioma , Malária/prevenção & controle , Viagem
7.
Int J Prison Health ; ahead-of-print(ahead-of-print)2021 08 14.
Artigo em Inglês | MEDLINE | ID: mdl-34383394

RESUMO

PURPOSE: This study aims to explore the psychological effects of lockdown during the early stages of the COVID-19 pandemic on people living in an Italian prison. The suspension of family visits and most activities, along with the difficulties in applying social distancing to this vulnerable population was associated with increased psychological distress. Riots broke out over two days in more than 22 prisons across Italy at the beginning of March 2020, highlighting the negative psychological impact of the pandemic and the country's emergency policies. DESIGN/METHODOLOGY/APPROACH: The research involves 17 men (Italians and foreigners) detained in a Lombardy prison from 1 March to 4 May 2020, corresponding to the lockdown phase in Italy. The qualitative content analysis (CA) of 27 posts, written by participants during that period and published on the blog "L'Oblò", were analysed. The analysis allowed the identification of topics and subtopics that are related to two major categories of content: cognitions and emotional connotations about the COVID-19 lockdown in prison. FINDINGS: Analysis showed that blog post content was predominately negative in terms of emotional connotations. The most frequent coded negative emotional connotations were: missing, worry, psychological pain and fear, whilst the most frequent coded positive emotional connotations were: hope and gratitude for the support they received from prison workers. The rest of the blog content was coded as "cognitions". Cognitions were coded as descriptions of lockdown effect on detention; prison during the COVID-19 emergency; the pandemic situation in general; and comparison between inside and outside prison. ORIGINALITY/VALUE: The current study is original as it describes through blog CA the psychological condition of prisoners during the first COVID-19 pandemic lockdown in the most affected region in Italy.


Assuntos
Blogging , COVID-19/psicologia , Cognição , Controle de Doenças Transmissíveis/métodos , Emoções , Prisioneiros/psicologia , Angústia Psicológica , Adulto , Humanos , Itália/epidemiologia , Masculino , Pessoa de Meia-Idade , Prisões , Pesquisa Qualitativa , Tumultos
8.
Int J Qual Stud Health Well-being ; 16(1): 1971597, 2021 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-34455941

RESUMO

Purpose: War metaphors are omnipresent in public and medical discourse on cancer . If some studies suggest that cancer patients may view their experiences as afight, few studies focus on the metaphors that patients create from their subjective experiences. The aim was to better understand the experience of four women with incurabale metastatic breast cancer from the metaphors they used in personal cancer blogs.Methods: An interpretive phenomenological analysis (IPA) was used to analyze these women's experience and metaphors of cancer.Results: Two metaphors carried the meaning of metastatic breast cancer experience: the fight and the unveiling. The results show that the war metaphor had a unique meaning for the bloggers who lived with incurable breast cancer: they revealed the difficulty of fighting cancer and eventually collapsing in battle, although a renewed look at life had developed in parallel to their struggle. The bloggers thus tried to lift the veil on this complex experience.Conclusion: The results highlight the need for women with metastatic breast cancer to be able to tell and share their experience in a supportive context and to reinvest the war metaphor in order to express themselves in a more authentic way.


Assuntos
Neoplasias da Mama , Metáfora , Blogging , Feminino , Humanos
9.
J Laryngol Otol ; 135(7): 634-639, 2021 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-34254581

RESUMO

OBJECTIVES: Tonsillectomy has generated extensive comment on the internet, but this content has not been examined in a scientific manner. This study aimed to determine what the blogosphere has to say about adult tonsillectomy and to report whether this information can be used to improve post-surgical care. METHODS: The internet was searched to find personal blogs relating to tonsillectomy. A retrospective review of data collected on these blogs was carried out and the blogs were conceptually analysed by the authors. RESULTS: Fifty blogs were included. Seventy per cent of patients had read blogs prior to their procedure. The average pain score where available was 7.2. Complications occurred in 10 per cent of patients. Only 1 patient (2 per cent) regretted having a tonsillectomy. CONCLUSION: It is important for otolaryngologists to stay in tune with the blogosphere as this unregulated and easily accessible source of information is both friend and foe but will ultimately help in pre-operative counselling and post-operative management.


Assuntos
Analgésicos/uso terapêutico , Blogging , Dor Pós-Operatória/tratamento farmacológico , Satisfação do Paciente , Complicações Pós-Operatórias , Tonsilectomia , Tonsilite/cirurgia , Adulto , Feminino , Humanos , Internet , Masculino , Medição da Dor
10.
JMIR Public Health Surveill ; 7(6): e29238, 2021 06 29.
Artigo em Inglês | MEDLINE | ID: mdl-34255719

RESUMO

BACKGROUND: Gaining insights that cannot be obtained from health care databases from patients has become an important topic in pharmacovigilance. OBJECTIVE: Our objective was to demonstrate a use case, in which patient-generated data were incorporated in pharmacovigilance, to understand the epidemiology and burden of illness in Japanese patients with systemic lupus erythematosus. METHODS: We used data on systemic lupus erythematosus, an autoimmune disease that substantially impairs quality of life, from 2 independent data sets. To understand the disease's epidemiology, we analyzed a Japanese health insurance claims database. To understand the disease's burden, we analyzed text data collected from Japanese disease blogs (tobyoki) written by patients with systemic lupus erythematosus. Natural language processing was applied to these texts to identify frequent patient-level complaints, and term frequency-inverse document frequency was used to explore patient burden during treatment. We explored health-related quality of life based on patient descriptions. RESULTS: We analyzed data from 4694 and 635 patients with systemic lupus erythematosus in the health insurance claims database and tobyoki blogs, respectively. Based on health insurance claims data, the prevalence of systemic lupus erythematosus is 107.70 per 100,000 persons. Tobyoki text data analysis showed that pain-related words (eg, pain, severe pain, arthralgia) became more important after starting treatment. We also found an increase in patients' references to mobility and self-care over time, which indicated increased attention to physical disability due to disease progression. CONCLUSIONS: A classical medical database represents only a part of a patient's entire treatment experience, and analysis using solely such a database cannot represent patient-level symptoms or patient concerns about treatments. This study showed that analysis of tobyoki blogs can provide added information on patient-level details, advancing patient-centric pharmacovigilance.


Assuntos
Lúpus Eritematoso Sistêmico , Farmacovigilância , Blogging , Humanos , Seguro Saúde , Lúpus Eritematoso Sistêmico/tratamento farmacológico , Lúpus Eritematoso Sistêmico/epidemiologia , Processamento de Linguagem Natural , Qualidade de Vida
11.
PLoS One ; 16(7): e0254087, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-34270574

RESUMO

In recent years, political activists have taken to social media platforms to rapidly reach broad audiences. Despite the prevalence of micro-blogging in these sociopolitical movements, the degree to which virtual mobilization reflects or drives real-world movements is unclear. Here, we explore the dynamics of real-world events and Twitter social cohesion in Syria during the Arab Spring. Using the nonlinear methods cross-recurrence quantification analysis and windowed cross-recurrence quantification analysis, we investigate if frequency of events of different intensities are coupled with social cohesion found in Syrian tweets. Results indicate that online social cohesion is coupled with the counts of all, positive, and negative events each day but shows a decreased connection to negative events when outwardly directed events (i.e., source events) were considered. We conclude with a discussion of implications and applications of nonlinear methods in political science research.


Assuntos
Comportamento Cooperativo , Mídias Sociais , Blogging , Síria
12.
Suicide Life Threat Behav ; 51(5): 1005-1014, 2021 10.
Artigo em Inglês | MEDLINE | ID: mdl-34184305

RESUMO

INTRODUCTION: While suicide attempts and deaths increase, research and assessment methods have stagnated in terms of increasing predictive power. Lexical analysis has been a useful method in descriptive suicide research, but may have utility for assessment and prediction. OBJECTIVE: The present study used lexical analysis to examine language differences across a spectrum of psychological distress, with death by suicide as the most extreme indicator. METHODS: Suicide writings were collected for 38 persons who died by suicide in two southern U.S. cities. Blog writings were collected from the "Depression" and "Suicide" categories of an online mental health discussion community and from food blogging communities (n = 38 each). Linguistic Inquiry and Word Count was used to calculate proportions of words that fell into lexical categories indicative of distress. RESULTS: One-way ANOVA revealed significant differences in first-person singular pronouns and words related to positive emotions, negative emotions, religion, and death. Suicide notes were found to use less frequent lexical markers of distress than depression and suicide ideation blogs, and more frequent positive emotion language than all comparison groups. CONCLUSION: The present findings suggest that deciding to take one's life may be associated with a decrease in distress, and possibly an increase in positive emotion, when compared to those experiencing depression and suicidal thoughts.


Assuntos
Blogging , Ideação Suicida , Culinária , Depressão , Emoções , Humanos , Idioma
15.
Mar Pollut Bull ; 169: 112525, 2021 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-34049070

RESUMO

Awareness raising and public engagement are key steps towards the reduction of demand, use and pollution related to plastic in everyday life. However, people not already active in this respect, nor seeking information about, may remain excluded from the main information flow. We therefore involved a professional blogger-posting on family lifestyle and travel with children- in the preparation of six thematic posts, each one dealing with a specific plastic-related topic. Given the size and the target of the initiative, results were considered in a small data approach: social-media parameters such as reaches and engagements overall aligned with blog followers' expected response in terms of engagement rates. However, high fluctuations were recorded, depending on the post topic. Such potential to reach blog readers and to highlight gaps at fine scale is encouraging the collaborations of professional bloggers with thematic campaigns, developed together with specialists of the topics considered.


Assuntos
Plásticos , Mídias Sociais , Blogging , Criança , Humanos , Estilo de Vida
16.
Med Educ Online ; 26(1): 1920089, 2021 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-33899698

RESUMO

Introduction: In Italy, medical simulation is undergoing a phase of intense diffusion, establishing a more decisive and uniform role in medical education. Educators receive many opportunities to train in simulation education, but these provide little room for personal growth and collaboration. This could have a negative impact on education quality and the standardization of processes. Thus, we found a gap in new information technology use, specifically in the informal diffusion of medical simulation content knowledge. Using a blog platform, we identified a space in which people can disseminate information, share their experiences, criticisms, and perspectives.Approach: From March 2016 to November 2019, we implemented a novel pilot project, creating the first Italian blog on simulations, dedicated to simulation educators. It contained the following main sections: communication, debriefing, simulation experiences, instructions for use, journal club, and psychology.Findings: Multidisciplinary personnel contributed to the blog's content. With over 70 posts, the blog accumulated 25,615 pageviews and 9,056 sessions, without promotional, monetary support or diffusion efforts. The average visitor session was 2.17 minutes long and the average pages viewed in a session was 2.83. Additionally, 30.5% of the users were returning visitors and 58.67% found the website through Google.Insights: Despite the blog's niche subject, the results were encouraging. The materials were not only meant for personal viewing, but also as a source for announcing public events (meetings and workshops). The project provided educators with an easy tool for continuous education. We believe that it enabled and organized the informal sharing of educational simulation content. As such, it also offered significant insights into formal program consolidation and the standardization of simulation instruction, while we wait for further local scientific literature production. For future developments, we believe that collaborations with other stakeholders, scientific societies, and ethical sponsorship could foster this project's continuation.


Assuntos
Blogging , Disseminação de Informação/métodos , Treinamento por Simulação/organização & administração , Humanos , Itália , Projetos Piloto
17.
Am J Nurs ; 121(5): 63, 2021 05 01.
Artigo em Inglês | MEDLINE | ID: mdl-33872266

RESUMO

Updated several times a week with posts by a wide variety of authors, AJN's blog Off the Charts allows us to provide more timely-and often more personal-perspectives on professional, policy, and clinical issues. Best of the Blog is a regular column to draw the attention of AJN readers to posts we think deserve a wider audience. To read more, please visit: www.ajnoffthecharts.com.


Assuntos
Blogging , Papel do Profissional de Enfermagem , Recursos Humanos de Enfermagem no Hospital/psicologia , Autoeficácia , Humanos , Satisfação no Emprego
19.
Nurse Educ ; 46(2): 81, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-33755383
20.
Am J Nurs ; 121(4): 56, 2021 04 01.
Artigo em Inglês | MEDLINE | ID: mdl-33755631

RESUMO

Updated several times a week with posts by a wide variety of authors, AJN's blog Off the Charts allows us to provide more timely-and often more personal-perspectives on professional, policy, and clinical issues. Best of the Blog is a regular column to draw the attention of AJN readers to posts we think deserve a wider audience. To read more, please visit: www.ajnoffthecharts.com.


Assuntos
Atitude do Pessoal de Saúde , Blogging , Reanimação Cardiopulmonar/psicologia , Enfermagem Neonatal , Enfermeiras Neonatologistas/psicologia , Cuidados de Enfermagem/psicologia , Adulto , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , New York
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