Impact of hemispherotomy on quality of life and burden of caregivers in children and adolescents: a retrospective observational study.

PURPOSE: To evaluate QOL and caregiver burden of children and teenagers submitted to hemispherotomy for pharmacoresistant epilepsy, by comparing pre and post-surgical intervention data. MATERIALS AND METHODS: Retrospective analysis of pediatric patients submitted to surgical hemispherotomy before intervention (preOP) and their follow-up at 6 months (6 M PO) and 2 years (2Y PO) after surgery. QOL was evaluated through the Quality of Life in Childhood Epilepsy (QVCE-50) questionnaire and caregiver burden, through the Zarit Burden Interview (ZBI) tool. RESULTS: Twenty-two patients were included in the study. Sixteen patients (72%) were classified as Engel I at 2Y PO follow-up. QVCE-50 scale showed improvement of total QOL at 2Y PO. In relation to QVCE-50-specific domains, there was an improvement in the physical domain and in the cognitive-education a decrease in psychological and a stabilization in social/familiar domain scores. The majority of caregivers classified their burden as mild to moderate, with no PO improvement. CONCLUSIONS: Hemispherotomy represents an effective seizure control treatment, as well as it contributes to improvement of QOL, particularly in the physical domain and in spite of children's physical and cognitive limitations. However, no improvement in caregiver burden was observed, probably due to the chronic condition of these patients, which might be worsened by social issues.

Caregiver burden, hopelessness, and anxiety: Association between sociodemographic and clinical profiles of patients with stroke.

OBJECTIVES: This study aimed to evaluate the association between the sociodemographic characteristics of caregivers and patients with stroke, clinical data on stroke, and disability with caregiver burden, hopelessness, and anxiety. MATERIALS AND METHODS: This cross-sectional study included patients with stroke of either sex, aged >18 years. Data were collected between January 2020 and July 2021. Patient demographic included age, sex, stroke type, severity, etiology, topography, treatment, and stroke recurrence. Stroke disability was assessed using the modified Rankin Scale and Barthel Index at 90 days post-discharge. Additionally, caregiver burden, hopelessness, and anxiety were evaluated during patient consultations using the Zarit Burden Interview (ZBI), Beck Hopelessness Scale (BHS), and Beck Anxiety Inventory (BAI). RESULTS: We included 104 patients with stroke and their caregivers. Overall caregiver burden was moderate (ZBI: 24 [25]), with mild hopelessness (BHS: 4 [4]) and minimal to mild anxiety (BAI: 8 [13]). The linear regression model presented in Table 3 showed that female caregivers scored up to 11 points higher on the Zarit Burden Interview (p = 0.011). Additionally, increased patient age was associated with a higher caregiver burden (p = 0.002) on the Zarit Burden Interview. Posterior circulation stroke and total anterior circulation stroke were also associated with higher Zarit Burden Interview scores compared to lacunar stroke (p = 0.017). Age was not associated with caregiver burden in the entire sample. However, an association between age and caregiver burden was found only in the female group. Furthermore, women aged 65 years and older experienced a more severe burden than women aged 18 to 64 years (p<0.001). Stroke disability was not associated with caregiver burden. CONCLUSIONS: Older female caregivers were significantly affected when caring for stroke patients. Total anterior circulation stroke and Posterior circulation stroke increased Zarit Burden Interview scores. However, no association was observed between stroke disability and the caregiver burden.

Influence of Behavioral and Psychological Symptoms on Caregiver Burden for Different Types of Dementia: Clinical Experience in Lima, Peru.

INTRODUCTION: People caring for patients with dementia are prone to suffering from burden. Behavioral and psychological symptoms of dementia (BPSD) may have an impact on caregiver burden. In Latin American countries, there is a lack of research on caregiver burden. We aimed to determine which BPSD have the greatest impact on caregiver burden among Peruvian patients with dementia and to compare the effects of BPSD on caregiver burden across different types of dementia. METHODS: A cross-sectional study was conducted on 231 patients living with Alzheimer's dementia (AD), behavioral variant frontotemporal dementia (bvFTD), dementia with Lewy bodies (DLB), and vascular dementia (VD) and their caregivers who attended a Peruvian memory clinic. BPSD were assessed with the Neuropsychiatric Inventory (NPI). Caregiver burden was assessed with the Zarit Burden Inventory. We used analysis of variance to compare the AD, bvFTD, DLB, and VD groups. Correlations between Zarit Burden Inventory and NPI subscale scores were assessed with Spearman's correlation. RESULTS: DLB caregivers had significantly higher levels of burden than the other patient groups (p < 0.05) and higher total NPI scores than caregivers for other patient groups (p < 0.05). bvFTD caregivers had significantly higher total NPI scores than AD and VD caregivers (p < 0.05). Hallucinations, aberrant motor behavior, and apathy were the symptoms most significantly correlated with caregiver burden in those caring for DLB, bvFTD, and AD patients, respectively. CONCLUSION: Neuropsychiatric symptoms are higher in DLB caregivers. Hallucinations, aberrant motor behavior, and apathy are the main symptoms correlated with burden.

Quality of life of families and siblings of children with cerebral palsy treated at a reference neurorehabilitation center in Brazil.

OBJECTIVES: To investigate the associations between caregivers' burden, family quality of life (QoL), and siblings' QoL in Brazilian families of children with cerebral palsy, and to analyze siblings' QoL using as a parameter the QoL of typically developed Brazilian children. METHODS: It was a cross-sectional study. The 212 families, 212 caregivers and 131 siblings completed the Family Quality of Life Scale, Burden Interview, and KIDSCREEN-27 Child and Adolescent Version and Parents Version questionnaires at a neurorehabilitation center in southeast Brazil. Univariable and multivariable models were used. RESULTS: Family QoL significantly worsened as caregivers' burden increased (95 % CI -0.66 to -0.38). Caregivers' burden was significantly lower with increasing family QoL scores (95 % CI -0.52 to -0.30). Self-reported siblings' QoL was significantly worse than that of their typically developed peers (95 % CI -7.6 to -3.6). Self-reported siblings' QoL was significantly lower as siblings' age (95 % CI -2.52 to -0.59) and caregivers' burden (95 % CI -0.35 to -0.05) increased. Parent-reported siblings' QoL was significantly lower with increasing caregivers' burden (95 % CI -0.45 to -0.16) and higher as family QoL increased (95 % CI 0.09 to 0.37). CONCLUSIONS: The cross-sectional nature of these data precludes any statement of causality. Family QoL worsened with higher caregivers' burden levels. Lower caregivers' burden scores were associated with a higher family QoL. Siblings' QoL was impaired as compared to typically developed peers, worse among older siblings, and as caregivers' burden increased and better with higher family QoL levels. Future multicenter studies may validate the generalizability of the present findings.

¿Cuál es la evidencia actual sobre cuidadores familiares de niños con cáncer?: Una revisión umbrella / What is the current evidence on family caregivers of children with cancer? An umbrella review / Qual é a evidência atual sobre cuidadores familiares de crianças com câncer?: Uma revisão geral

Introducción: El cáncer infantil causa un gran impacto no sólo para los niños sino para sus cuidadores familiares. Objetivo: Determinar el estado actual de la evidencia acerca de los cuidadores familiares de niños con cáncer, a partir de revisiones de literatura publicadas entre el 2010 y 2020. Materiales y métodos: Se realizó una revisión tipo "Umbrella", incluyendo revisiones de literatura, sistemáticas y metaanálisis sobre el cuidador familiar del niño con cáncer como tema principal. Se buscó en las bases de datos Academic Search complete, Scopus, Science Direct, Complementary index, Google Scholar y Scielo. Se incluyeron 21 artículos en la revisión. Resultados: Se determinaron 6 temas de investigación prevalentes: 1) Síntomas psicosociales: Impacto del cáncer en el cuidador familiar, 2) Necesidades del cuidador familiar en la transición del rol de cuidador, 3) Comunicación parental en el contexto de cáncer infantil, 4) Afrontamiento del cuidador ante la enfermedad del niño, 5) Sobrecarga del cuidador familiar, 6) Duelo del cuidador familiar al final de la vida del niño con cáncer. Conclusiones: Se describe las necesidades, el impacto de tipo psicosocial y emocional derivados de la enfermedad, el duelo y la comunicación. Se requiere mayor investigación sobre las estrategias de afrontamiento para estos cuidadores.

Introduction: Childhood cancer has a large impact not only on children but also on their family caregivers. Objective: To determine the current state of the evidence on family caregivers of children with cancer through literature reviews conducted between 2010 and 2020. Materials and methods: An umbrella-type review was carried out, including literature and systematic reviews as well as meta-analysis, which had as a main topic family caregivers of children with cancer. The Academic Search complete, Scopus, Science Direct, Complementary index, Google Scholar and Scielo databases were searched, finding 21 relevant articles. Results: 6 prevalent research topics were determined: 1) Psychosocial symptoms: impact of cancer on the family caregiver; 2) Needs of the caregiver in the transition of the role of caregiver; 3) Parental communication in the context of childhood cancer; 4) Coping with the child's disease; 5) Overload of the family caregiver; 6) Grief of the family caregiver at the moment of the child's death. Conclusions: The evidence mostly describes the needs of caregivers, the psychosocial- and emotional-type impacts derived from the disease, grief, and communication. More research is required on the coping strategies of these caregivers.

Introdução: O câncer infantil causa grande impacto não só para as crianças, mas também para seus cuidadores familiares. Objetivo: Determinar o estado atual das evidências sobre cuidadores familiares de crianças com câncer a partir de revisões de literatura realizadas entre 2010 e 2020. Materiais e métodos: Foi realizada uma revisão "Umbrela", incluindo revisões de literatura, revisões sistemáticas e meta-análise sobre o cuidador familiar de crianças com câncer como tema principal. Foram pesquisadas as bases de dados Academic Search complete, Scopus, Science Direct, Complementary index, Google Scholar e Scielo. Vinte e um artigos foram incluídos na revisão. Resultados: Foram determinados seis temas de investigação prevalentes: 1) Sintomas psicossociais: impacto do câncer no cuidador familiar, 2) Necessidades do cuidador familiar na transição do papel de cuidador, 3) Comunicação parental no contexto do câncer infantil, 4) Enfretamento do cuidador perante o adoecimento da criança, 5) Sobrecarga do cuidador familiar, 6) Luto do cuidador familiar no final da vida da criança com câncer. Conclusões: A evidência descreve principalmente as suas necessidades, o impacto psicossocial e emocional derivado da doença, luto e comunicação. Mais pesquisas são necessárias sobre estratégias de enfrentamento para esses cuidadores.

Experiencia de los cuidadores informales en Colombia: Revisión sistemática y metasíntesis / The informal caregiver experience in Colombia: A systematic review and meta-synthesis / Experiência de cuidadores informais na Colômbia: revisão sistemática e metassíntese

Introducción: Los cuidadores tienen una forma particular de vivir la experiencia de cuidar, adaptándose al sistema de salud que no los reconoce como sujetos de cuidado, y que descarga en ellos labores para las cuales no están preparados ni acompañados en su trayectoria. Objetivo: Integrar los hallazgos de estudios primarios en una metasíntesis cualitativa para describir la experiencia de los cuidadores informales en Colombia. Materiales y métodos: Revisión sistemática de literatura cualitativa o metasíntesis cualitativa. Búsqueda sistemática en metabuscadores incluyendo los descriptores: cuidadores, experiencia, investigación cualitativa, Colombia. La selección de los estudios se realizó con base en la metodología PRISMA y la herramienta COREQ, disponible en la red EQUATOR. Resultados: Se incluyeron 20 estudios primarios cualitativos, se codificaron en 250 códigos nominales, clasificados en 6 categorías centrales: relación entre la diada con su contexto, tocar fondo para fortalecerse espiritualmente, entrega, sobreprotección y limitación propia, momentos claves para adaptarse a cuidar, relación consigo mismo, sistema de salud, políticas y apoyo institucional. Conclusión: Los cuidadores comparten la experiencia de enfermedad junto con su ser querido. Se necesita transformar el sistema de salud para satisfacer las necesidades de las diadas en lugar de las necesidades del enfermo o discapacitado.

Introduction: Caregivers have a particular way of experiencing their caring roles. They have to adapt to a health system that does not recognize them as subjects of care and, at the same time, makes them responsible for tasks for which they are not prepared, without any support. Objective: To incorporate primary studies findings into a qualitative meta-synthesis to describe informal caregivers experience in Colombia. Materials and methods: Systematic review of qualitative literature. A systematic search was carried out using meta-search engines with the following descriptors: caregivers; experience; qualitative research; and Colombia. The study selection followed the PRISMA methodology and the COREQ tool, which is available on the EQUATOR network. Results: 20 qualitative studies were included, which were encoded with 250 nominal codes and classified in 6 central categories: relationship between the dyad and its context; hitting rock bottom to strengthen spiritually; commitment; overprotection and self-limitation; key moments to adapt to the caregiving task; relationship with self; health system; policies and institutional support. Conclusion: Caregivers share the illness experience with their loved ones. The health system needs to change in order to meet the needs of the dyads rather than the needs of the sick of disabled.

Introdução: Os cuidadores possuem uma forma particular de viver a experiência de cuidar, adaptando-se ao sistema de saúde que não os reconhece como sujeitos do cuidado, e que descarrega sobre eles tarefas para as quais não estão preparados ou acompanhados em sua jornada. Objetivo: Integrar os resultados dos estudos primários em uma metassíntese qualitativa para descrever a experiência dos cuidadores informais na Colômbia. Materiais e métodos: Revisão sistemática de literatura qualitativa ou metassíntese qualitativa. Pesquisa sistemática em motores de metabusca incluindo os descritores: cuidadores, experiência, pesquisa qualitativa, Colômbia. A seleção dos estudos foi realizada com base na metodologia PRISMA e na ferramenta COREQ, disponível na rede EQUATOR. Resultados: Foram incluídos 20 estudos primários qualitativos, codificados em 250 códigos nominais, classificados em 6 categorias centrais: relação da díade com seu contexto, atingir o fundo do poço para se fortalecer espiritualmente, entrega, superproteção e autolimitação, momentos-chave para adaptação ao cuidado, relacionamento consigo mesmo, sistema de saúde, políticas e apoio institucional. Conclusão: Os cuidadores compartilham a experiência do adoecimento junto ao seu ente querido. O sistema de saúde precisa de ser transformado para satisfazer as necessidades das díades e não as necessidades dos doentes ou deficientes.

Mental health impact of the COVID-19 pandemic on patients with neurodegenerative diseases and perceived family caregiver burden in Lima, Peru.

BACKGROUND: Neurodegenerative diseases lead to difficulties with functional activities. In Peru, most caregivers are family members. Little is known about the COVID-19 pandemic's effect on caregivers in Peru. METHODS: This was a cross-sectional, prospective study of family caregivers of dependent patients with dementia or Parkinson's Disease in Lima, Peru. A caregiver burden and mental health questionnaire was administered to the caregiver. RESULTS: We enrolled 48 caregivers (65% females, mean ± SD age 49.0 ± 12.3 years); 70% of patients had dementia. Nearly 40% of caregivers reported having full-time jobs, and 82% felt overwhelmed with almost 75% dedicating more time to caregiving during the pandemic. Caregivers perceived patients felt lonelier (52%), had an increase in hallucinations (50%), or forgetfulness (71%) compared to pre-pandemic. CONCLUSIONS: Our study highlights that perceived caregiver burden and patient behavioral symptoms may have been exacerbated during the pandemic. In countries such as Peru, more caregiving resources and interventions are needed.

Caregiver burden, family adaptation, partnership, growth, affection, and resolve, anxiety levels, and perceived social support in relatives of patients with open heart surgery.

OBJECTIVE: The aim of this study was to examine the relationship between caregiver burden, family adaptation, partnership, growth, affection, and resolve score, anxiety levels, and the perceived social support of the relatives of patients who had open heart surgery. METHODS: Volunteers among the relatives of patients who had open heart surgery in our cardiovascular surgery clinic and were followed up in the first 3 months were included in the study. The cardiovascular surgeons recorded the sociodemographic data of the relatives of the patients and directed them to a psychiatry clinic for further evaluation. The caregiver burden scale, family adaptation, partnership, growth, affection, and resolve scale, anxiety level scale, and perceived social support scale were applied to the relatives of the patients who participated in the study. RESULTS: Within the scope of the study, a total of 51 individuals, 29.4% (n=15) men and 70.6% (n=36) women, were included in the evaluation. The participants' ages ranged from 32 to 68 years, with an average age of 48 years. There was a statistically significant relationship between the caregiving burden scale score and the scale scores other than age (p<0.05). There was a statistically significant difference in terms of caregiving burden scale score, working status, physical and psychological problems, changes in home life, and changes in family relationships (p<0.05). CONCLUSION: The fact that the need for security and intimacy is related to anxiety and depression can be interpreted as the caregiving problems of the relatives of the patients who think that their patients are safe and feel closer to the intensive care personnel will decrease. Their depression and anxiety levels will also decrease.

Psychological Concerns Associated with Empathy in Paid and Unpaid Caregivers of Older People: A Systematic Review.

OBJECTIVES: Identify associations between psychological concerns and empathy (affective and cognitive domains) in paid and unpaid caregivers of older people. METHODS: A systematic review of the literature was conducted. Searches were performed in the Pubmed, Web of Science, PsycINFO, Scopus and Embase databases using the search terms "Empathy," "Caregiver," "Depression," "Burnout," Anxiety", Caregiver Burden" and "Psychological Stresses" and the Boolean operators "AND" and "OR." No restrictions were imposed regarding language or year of publication. This review was registered in PROSPERO (CRD42021267276). RESULTS: Twelve articles met the inclusion criteria and were included in the present review. Most studies involved the participation of unpaid caregivers. Higher levels of empathy were associated with greater psychological concerns. Regarding affective empathy, direct associations were found with depressive symptoms, anxiety and stress. In contrast, high levels of cognitive empathy were associated with fewer depressive symptoms as well as less stress and burnout syndrome. CONCLUSIONS: An association was found between greater affective empathy and psychological impairment in caregivers of older people. Higher levels of cognitive empathy can help minimize psychological concerns. CLINICAL IMPLICATIONS: Working on empathic ability among caregivers of older people in different environments can contribute positively to the emotional impact of caregiving. Moreover, empathetic cognitive training among caregivers can serve as a strategy to minimize the negative consequences of the impact of caregiving.

Physical activity and its relationship to burden and health concerns in family caregivers of people with dementia.

BACKGROUND: Caring for people with dementia (PwD) usually triggers stress and leads to mental and somatic health complaints (SHCs). Physical activity (PA) can provide burden relief in PwD caregivers, but it is not clear whether PA habits would contribute to reducing SHCs. This study aims to analyze the effect of PA on the relationship between burden and SHCs in a sample of family caregivers of PwD. METHODS: One hundred and fifty-seven caregivers of PwD reported their PA habits, and completed the Giessen's Subjective Health Complaints Questionnaire (GBB-8) and the Zarit Burden Interview (ZBI). The relationship between PA habits, burden of care (ZBI), and SHCs (B-GBB-8 scale) was examined. Subsequently, the moderating effect of PA habits on the relationship between burden and SHCs was tested. RESULTS: PA habit was inversely associated with ZBI (rbp = -0.242) and GBB-8 scores (rbp (Gastrointestinal) = -0.174; rbp (Musculoskeletal) = -0.195; rbp (Exhaustion) = -0.247; rbp (Cardiovascular) = -0.250; and rbp (Overall) = -0.257, respectively), whereas moderate positive correlations were found between ZBI and GBB-8 scores (r (Gastrointestinal) = 0.483; r (Musculoskeletal) = 0.536; r (Exhaustion) = 0.542; r (Cardiovascular) = 0.438; and r (Overall) = 0.598, respectively). The interaction effect of PA habit and burden was significant for the overall SHCs (b = -0.11; P < 0.05) and cardiovascular complaints (b = -0.06; P < 0.05). However, the association between burden and SHCs was significant (P < 0.001) only for sedentary caregivers. CONCLUSION: These findings indicate that maintaining an active lifestyle through regular PA could potentially help alleviate the adverse effects of caregiver burden on somatic health among caregivers of PwD. Encouraging and endorsing PA interventions for informal caregivers might yield substantial advantages for their health and general well-being.

Salud mental en cuidadores de pacientes pediátricos con enfermedades crónicas en República Dominicana / Caregivers' mental health of pediatric patients with chronic health diseases in the Dominican Republic

Introducción: La enfermedad crónica infantil se refiere a condiciones en pacientes pediátricos que generalmente son de duración prolongada, no se resuelven por sí solas, y están asociadas con deficiencia o discapacidad. Esta condición usualmente afecta las actividades normales del niño y requiere hospitalizaciones frecuentes, atención médica domiciliaria y/o atención médica extensa, lo que suele afectar además de quien lo padece a sus cuidadores, quienes con frecuencia presentan características asociadas a estrés y agotamiento llegando a provocar enfermedades físicas y mentales como parte del "síndrome de sobrecarga del cuidador". Metodología: Se realizó una encuesta a cuidadores de pacientes pediátricos del Hospital Pediátrico Doctor Hugo Mendoza, el instrumento de recolección incluye 9 ítems que evalúa la presencia y gravedad de síntomas depresivos en las últimas 2 semanas previas a la entrevista, y los datos fueron analizados en el Programa estadístico SPSS. El estudio contó con la aprobación del comité de ética institucional del Hospital y los participantes otorgaron su consentimiento voluntario explícito antes de la recopilación de datos. Resultados: Al aplicar la clasificación de la escala del BAI, se evidencia que, del total de cuidadores encuestados, el 76.7% parecía sufrir de ansiedad muy baja, un 20.9% de ansiedad moderada y 2.3% de ansiedad severa. Se aplicó la la escala PHQ9, una escala que mide la presencia de síntomas depresivos y mostró que el 41.9 % presenta un nivel leve, 39.5% un nivel mínimo, 16.3% un nivel moderado y por último solo 2.3% un nivel moderado-grave de síntomas depresivos. Discusión: En nuestro estudio hubo igual distribución de hombres y de mujeres. Conclusión: El diagnóstico infantil no juega un papel determinante en la aparición de la ansiedad y la depresión.

Introduction: Chronic childhood disease refers to conditions in pediatric patients that are generally of prolonged duration, do not resolve on their own, and are associated with deficiency or disability. This condition normally affects the normal activities of the child and requires frequent hospitalizations, home health care and/or extensive medical care, which will affect, in addition to those who will usually suffer from it, their caregivers, who often have characteristics associated with stress and exhaustion, reaching causing physical and mental illness as part of "caregiver overload syndrome". Methodology: A survey was conducted on caregivers of pediatric patients at the Doctor Hugo Mendoza Pediatric Hospital, the collection instrument includes 9 items that assess the presence and severity of depressive symptoms in the last 2 weeks prior to the interview, and the data were analyzed in the statistical program SPSS. The study was approved by the institutional ethics committee of the Hospital and the participants gave their explicit voluntary consent before data collection. Results: When applying the classification of the BAI scale, it is evident that, of the total number of caregivers surveyed, 76.7% seemed to suffer from very low anxiety, 20.9% from moderate anxiety and 2.3% from severe anxiety. The PHQ9 scale was applied, a scale that measures the presence of depressive symptoms and showed that 41.9% present a mild level, 39.5% a minimum level, 16.3% a moderate level and finally only 2.3% a moderate-severe level of depressive symptoms. Discussion: In our study there was equal distribution of men and women. Conclusion: Childhood diagnosis does not play a determining role in the appearance of anxiety and depression.

Efficacy of a Hospital Discharge Transition Plan in the care competence of patients with chronic conditions and their family caregivers: a clinical trial / Eficacia del Plan Transicional de Alta Hospitalaria en la competencia para el cuidado del paciente con condición crónica y su cuidador familiar: ensayo clínico / Eficácia do Plano Transicional de Alta Hospitalar na competência para o cuidado de pacientes com condições crônicas e seu cuidador familiar: ensaio clínico

Objective: to assess the efficacy of a Hospital Discharge Transition Plan in the care competence and in adherence to the therapy of dyads comprised by patients with non-communicable chronic diseases and their caregivers. Method: a controlled and randomized clinical trial; the sample was comprised by 80 dyads of patients with chronic conditions and their caregivers, randomly allocated as follows: 40 to the control group and another 40 to the intervention group. The instruments to characterize the patient-caregiver dyad, the patients' and caregivers' care competence and the patients' adherence to the treatment scale were applied. The " CUIDEMOS educational intervention" was applied to the intervention group; in turn, the control group was provided usual care with the aid of a booklet, with phone follow-up via at month 1. Results: 52.5% of the patients and 81.3% of the caregivers were women. The patients' and caregivers' mean ages were 69.5±12.6 and 47.5±13.1 years old, respectively. The Hospital Discharge Transition Plan increased the scores in the "knowledge", "uniqueness", "instrumental", "enjoying", "anticipation" and "social relations" dimensions, as well as the global care competence of the patients and family caregivers; in addition to the following factors: medications, diet, stimulants control, weight control, stress management, and global adherence to the therapy by the patient. There were no statistically significant differences between the control and intervention groups. Conclusion: the Hospital Discharge Transition Plan increased the patients' and family caregivers' care competence after the intervention, as well as the patients' adherence to the treatment. However, there were no differences between the control and intervention groups, possibly due to the similarity of the activities.

Objetivo: evaluar la eficacia del Plan Transicional de Alta Hospitalaria en la competencia para el cuidado y adherencia terapéutica de la díada paciente-cuidador con enfermedad crónica no transmisible. Método: ensayo clínico aleatorizado controlado; la muestra estuvo conformada por 80 diadas paciente-cuidador con condición crónica asignadas aleatoriamente, 40 diadas al grupo control y 40 al grupo intervención. Se aplicaron los instrumentos de caracterización de la díada paciente-cuidador, competencia para el cuidado del paciente y cuidador y la escala de adherencia al tratamiento del paciente. Se realizó la "Intervención Educativa Cuidemos" al grupo intervención y al grupo control se le brindaron los cuidados habituales con ayuda de un folleto; con seguimiento telefónico al mes. Resultados: el 52,5% de los pacientes son mujeres al igual que el 81,3% de los cuidadores. El promedio de edad en pacientes y cuidadores es de 69,5±12,6 y 47,5±13,1 años. El Plan Transicional de Alta Hospitalaria aumentó los puntajes de las dimensiones, conocimiento, unicidad, instrumental, disfrutar, anticipación y relación y la competencia global del cuidado del paciente y cuidador familiar. También, los factores medicamentos, dieta, control de estimulantes, control del peso, manejo del estrés y la adherencia terapéutica global del paciente. No hubo diferencias estadísticamente significativas entre el grupo control e intervención. Conclusión: el Plan Transicional de Alta Hospitalaria aumenta la competencia para el cuidado del paciente y cuidador familiar post intervención, y también la adherencia del paciente. Sin embargo, no hubo diferencias entre el grupo intervención y control, posiblemente debido a la semejanza de las actividades.

Objetivo: avaliar a efetividade do Plano Transicional de Alta Hospitalar na competência para o cuidado e adesão terapêutica da díade paciente-cuidador com doença crônica não transmissível. Método: ensaio clínico randomizado controlado; a amostra foi composta por 80 díades paciente-cuidador com condição crônica distribuídas aleatoriamente, sendo 40 díades para o grupo controle e 40 para o grupo intervenção. Foram aplicados os instrumentos de caracterização da díade paciente-cuidador, competência do cuidar de pacientes e cuidadores e escala de adesão ao tratamento do paciente. No grupo intervenção foi realizada a " Intervención Educativa Cuidemos " e no grupo controle foram prestados os cuidados habituais, com auxílio de folheto; com acompanhamento telefônico após um mês. Resultados: 52,5% dos pacientes são mulheres, assim como 81,3% dos cuidadores. A idade média dos pacientes e cuidadores é de 69,5±12,6 e 47,5±13,1 anos. O Plano Transicional de Alta Hospitalar aumentou os escores das dimensões conhecimento, singularidade, instrumentalidade, desfrutar, antecipação e relação e competência global do cuidado ao paciente e cuidador familiar. Também os fatores medicamentos, dieta, controle de estimulantes, controle de peso, gerenciamento de estresse e adesão terapêutica geral do paciente. Não houve diferenças estatisticamente significativas entre os grupos controle e intervenção. Conclusão: o Plano Transicional de Alta Hospitalar aumenta a competência para o cuidado do paciente e do cuidador familiar pós-intervenção, e também a adesão do paciente. Porém, não houve diferenças entre os grupos intervenção e controle, possivelmente pela semelhança das atividades.

Efficacy of a program in increasing coping strategies in firefighters: randomized clinical trial / Eficacia de un programa en el aumento de las estrategias de coping en bomberos: ensayo clínico aleatorizado / Eficácia de um programa no aumento das estratégias de coping em bombeiros: ensaio clínico randomizado

Objective: to evaluate the effectiveness of a program in increasing coping strategies focused on military firefighters' problems and emotions. Method: randomized, parallel, single-masked clinical trial. The sample consisted of 51 participants in the intervention group and 49 in the control group. The intervention group received the intervention program including coping strategies based on the Nursing Interventions Classification, lasting six consecutive weeks, one day a week. The control group followed the Service Unit routine. Descriptive statistics, Student's T test with Welch's correction and the Mann-Whitney test were used for the analyses. The magnitude of the intervention effect was calculated using Cohen's d index. A p-value of ≤0.05% was considered. Results: in the analysis of the mean difference between the scores in the groups, the means of the intervention group increased significantly for the coping strategies: social support (p = 0.009), acceptance of responsibility (p = 0.03), problem solving (p = 0.05) and positive reappraisal (p = 0.05). The impact of the intervention was moderate in magnitude for social support (d = 0.54). Conclusion: the intervention program enabled the increase of coping strategies focused on military firefighters' problems and emotions. ReBEC: RBR-8dmbzc.

Objetivo: evaluar la eficacia de un programa en el aumento de las estrategias de coping enfocadas en el problema y en la emoción en bomberos militares. Método: ensayo clínico aleatorizado, paralelo, con enmascaramiento simple. La muestra se constituyó de 51 participantes en el grupo intervención y 49 en el control. El grupo intervención recibió el programa interventivo incluyendo las estrategias de coping basadas en la Clasificación de las Intervenciones de Enfermería, con una duración de seis semanas consecutivas, un día por semana. El grupo control siguió la rutina de la Unidad de Servicio. Para los análisis se utilizó estadística descriptiva, test T de Student con corrección de Welch y el test de Mann-Whitney. La magnitud del efecto de la intervención se calculó con el índice d de Cohen. Se consideró valor p≤0,05%. Resultados: en el análisis del promedio de la diferencia entre los puntajes en los grupos, los promedios del grupo intervención aumentaron significativamente para las estrategias de coping : soporte social ( p = 0,009), aceptación de la responsabilidad ( p = 0,03), resolución de problemas ( p = 0,05) y reevaluación positiva ( p = 0,05). El impacto de la intervención presentó magnitud moderada para el soporte social ( d = 0,54). Conclusión: el programa interventivo posibilitó el aumento de estrategias de coping enfocadas en el problema y en la emoción en bomberos militares. ReBEC: RBR-8dmbzc.

Objetivo: avaliar a eficácia de um programa no aumento das estratégias de coping focadas no problema e na emoção em bombeiros militares. Método: ensaio clínico randomizado, paralelo, com mascaramento simples. A amostra constituiu-se de 51 participantes no grupo intervenção e 49 no controle. O grupo intervenção recebeu o programa interventivo incluindo as estratégias de coping pautadas na Classificação das Intervenções de Enfermagem, com duração de seis semanas consecutivas, um dia por semana. O grupo controle seguiu a rotina da Unidade de Serviço. Para as análises utilizou-se estatística descritiva, teste T de Student com correção de Welch e o teste de Mann-Whitney. A magnitude do efeito da intervenção foi calculada com o índice d de Cohen. Considerou-se valor p ≤0,05%. Resultados: na análise da média da diferença entre os escores nos grupos, as médias do grupo intervenção aumentaram significativamente para as estratégias de coping : suporte social ( p = 0,009), aceitação da responsabilidade ( p = 0,03), resolução de problemas ( p = 0,05) e reavaliação positiva ( p = 0,05). O impacto da intervenção apresentou magnitude moderada para o suporte social (d = 0,54). Conclusão: o programa interventivo possibilitou o aumento de estratégias de coping focadas no problema e na emoção em bombeiros militares. ReBEC: RBR-8dmbzc.

Demandas e recursos para predição da síndrome de burnout em psicólogos clínicos / Demands and resources for burnout syndrome on clinical psychologists / Demandas y recursos para la predicción del síndrome de burnout en psicólogos clínicos

O modelo de demandas e recursos foi utilizado para identificar o poder preditivo do estilo pessoal do terapeuta e do trabalho emocional (demandas), e da inteligência emocional e autoeficácia profissional (recursos) sobre as dimensões da síndrome de Burnout (SB), em uma amostra de 240 psicólogos clínicos brasileiros. Os dados foram coletados por meio de plataforma online, tendo como instrumentos de pesquisa um Questionário de dados sociodemográficos e laborais, o Cuestionario para la Evaluación del Síndrome de Quemarse por el Trabajo, o Cuestionario del Estilo Personal del Terapeut, o Questionário de Avaliação Relacionado a Demandas Emocionais e Dissonância da Regra da Emoção, Medida de Inteligência Emocional, e Escala de Autoeficácia Geral Percebida. Os resultados obtidos revelaram um modelo preditor das dimensões da SB, constituído pelas variáveis dissonância emocional, automotivação, demandas emocionais, instrução, envolvimento e autoeficácia. Ressalta-se a relevância de estratégias voltadas para a prevenção da SB nessa categoria profissional, bem como a necessidade de ações que visem a promoção e o desenvolvimento da inteligência emocional e da autoeficácia como fortalecimento dos recursos emocionais para atuação na prática clínica.(AU)

The Model of Demands - Resources was used to identify the predictive power of therapist's personal style, emotional work (Demands), Emotional intelligence, and professional self-efficacy (Resources) over the Burnout syndrome dimensions in a sample of 240 Brazilian clinical psychologists. The data was collected by an on-line platform using a Labor and social demographic data questionnaire, a work Burnout Syndrome Evaluation questionnaire (CESQT - Cuestionario para la Evaluación del Síndrome de Quemarse por el Trabajo), the short version of the Therapist Personal Style Questionnaire (EPT-C Cuestionario del Estilo Personal del Terapeuta), an Evaluation questionnaire related to emotional demands and emotion rule dissonance, and the Emotional Intelligence Measure (EIM) and Perceived General Self-Efficacy Scale (GPSS) as research instruments. Results showed a predictor model of Burnout syndrome constituted by the variables Emotional dissonance, Self-motivation, Emotional demands, Instruction, Involvement, and Self-efficacy. We emphasize the relevance of strategies to prevent Burnout Syndrome in this professional category and the need for actions to promote and develop emotional intelligence and self-efficacy as a strengthening factor of the emotional resources to work as a clinical psychologist.(AU)

Se utilizó el modelo demandas y recursos para identificar el poder predictivo del estilo personal del terapeuta y del trabajo emocional (demandas), y de la inteligencia emocional y autoeficacia profesional (recursos) sobre las dimensiones del síndrome de Burnout (SB), en una muestra de 240 psicólogos clínicos brasileños. Los datos se recolectaron de una plataforma en línea, utilizando como instrumentos de investigación un cuestionario de datos sociodemográficos y laborales, el Cuestionario para la Evaluación del Síndrome de Quemarse por el Trabajo, el Cuestionario del Estilo Personal del Terapeuta, el Cuestionario de Evaluación Relacionado con Demandas Emocionales y Disonancia de la Regla de la Emoción, la Medida de Inteligencia Emocional y Escala de Autoeficacia General Percibida. Los resultados obtenidos revelaron un modelo predictor de las dimensiones de SB, constituido por las variables disonancia emocional, automotivación, exigencias emocionales, instrucción, implicación y autoeficacia. Se destaca la relevancia de las estrategias dirigidas a la prevención del SB en esta categoría profesional, así como la necesidad de acciones dirigidas a promover y desarrollar la inteligencia emocional y la autoeficacia como fortalecimiento de los recursos emocionales para trabajar en la práctica clínica.(AU)

Estresse ocupacional entre psicólogos atuantes na atenção primária à saúde no contexto pandêmico / Occupational stress in psychologists working in primary health care in the context of the pandemic / Estrés laboral entre los psicólogos que trabajan en atención primaria de salud en el contexto de la pandemia

Este estudo analisa o estresse ocupacional entre psicólogos que atuavam na Atenção Primária à Saúde durante a pandemia ocasionada pela covid-19, assim como as características sociodemográficas e laborais dos participantes e sua relação com o estresse ocupacional. Participaram da pesquisa 70 psicólogos atuantes em 51 unidades básicas de saúde das regiões Oeste e Extremo Oeste catarinense. Para coleta de dados, um questionário sociodemográfico e a versão reduzida da Job Stress Scale (JSS) foram aplicados. A análise dos dados foi realizada por meio da estatística descritiva e inferencial. Identificou-se que 35,7% dos psicólogos apresentaram alto desgaste no trabalho; 28,6% baixo desgaste; 27,1% se mostraram em trabalho passivo; e 8,6% em trabalho ativo. No modelo de regressão linear, os fatores associados à dimensão Demanda da JSS foram: possuir filho (a) (coeficiente -1,49; IC 95% -2,75 a -0,23) e afastamento do trabalho nos últimos 12 meses (coeficiente 1,88; IC 95% 0,60 a 3,15). Os psicólogos com hipertensão arterial sistêmica autorreferida apresentaram, em média, 3,96 pontos a menos no escore de Apoio social (IC 95% -7,06 a -0,85), quando comparados aos não hipertensos, e entre os psicólogos que trabalhavam no turno da manhã identificou-se aumento de 4,46 pontos, em média, no escore de Apoio social (IC 95% 0,90 a 8,02) em relação aos profissionais do turno manhã e tarde. Evidenciou-se que um número significativo de psicólogos apresentava-se em alto desgaste no trabalho, com potenciais implicações para sua saúde e atuação profissional.(AU)

This study analyzed occupational stress among psychologists who worked in Primary Health Care during the COVID-19 pandemic and participants' sociodemographic and work characteristics and their relationship with occupational stress. In total, 70 psychologists working in 51 basic health units in the West and Far West regions of Santa Catarina participated in this research. A sociodemographic questionnaire and the short version of the Job Stress Scale (JSS) were applied to collect data. Data were analyzed by descriptive and inferential statistics. In total, 35.7% of psychologists showed high stress at work; 28.6%, low burn out; 27.1%, passive work; and 8.6%, active work. The factors in the linear regression model that were associated with the JSS demand dimension referred to having children (coefficient −1.49; 95% CI −2.75 to −0.23) and absence from work in the last 12 months (coefficient 1.88; 95% CI 0.60 to 3.15). Psychologists with self-reported systemic arterial hypertension showed, on average, 3.96 points lower in the Social Support score (95% CI −7.06 to −0.85) than non-hypertensive ones and psychologists who worked in the morning shift, an average increase of 4.46 points in the Social Support score (95% CI 0.90 to 8.02) in relation to professionals working in the morning and afternoon shifts. A significant number of psychologists had high stress at work, with potential implications to their health and professional performance.(AU)

Este estudio evalúa el estrés laboral entre los psicólogos que trabajaron en la atención primaria de salud durante la pandemia provocada por la COVID-19, así como las características sociodemográficas y laborales de ellos y su relación con el estrés laboral. En la investigación participaron setenta psicólogos que trabajan en 51 unidades básicas de salud en las regiones oeste y lejano oeste de Santa Catarina (Brasil). Para la recolección de datos se aplicó un cuestionario sociodemográfico y la versión corta de la Job Stress Scale (JSS). El análisis de los datos se realizó mediante estadística descriptiva e inferencial. Se identificó que el 35,7% de los psicólogos presentaban alto estrés en el trabajo; el 28,6% tenían poco desgaste; el 27,1% se encontraban en trabajo pasivo; y el 8,6% en trabajo activo. En el modelo de regresión lineal, los factores asociados a la dimensión demanda de la JSS fueron: tener hijo (coeficiente -1,49; IC 95% -2,75 a -0,23) y baja laboral en los últimos 12 meses (coeficiente 1,88; IC 95% 0,60 a 3,15). Los psicólogos con hipertensión arterial sistémica autoinformada presentaron un promedio de 3,96 puntos más bajo en la puntuación de apoyo social (IC 95% -7,06 a -0,85) en comparación con los no hipertensos, y entre los psicólogos que trabajaban en el turno de la mañana, se identificó un aumento promedio de 4,46 puntos en la puntuación de apoyo social (IC 95% 0,90 a 8,02) con relación a los profesionales que laboran en el turno de mañana y tarde. Quedó evidente que un número significativo de psicólogos se encontraba en situación de alto estrés en el trabajo, con posibles implicaciones para su salud y desempeño profesional.(AU)

Aceites esenciales y calidad de vida: percepción del efecto de esta terapia alternativa en personas con síndrome de carga del cuidador / Essential oils and quality of life: perception of the effect in caregivers with burden syndrome

Introducción. Las personas con síndrome de carga del cuidador requieren una intervención sobre sus alteraciones físicas y emocionales; una alternativa terapéutica en neurorehabilitación son los aceites esenciales. Objetivo. Identificar el efecto de la terapia con aceites esenciales sobre la calidad de vida en un grupo de pacientes con síndrome de carga del cuidador a través de su percepción fenomenológica. Métodos. Estudio mixto con triangulación concurrente o DITRIAC. En lo cuantitativo, se realizó un estudio de diseño preexperimental con medición pre y post intervención con un solo grupo del grado de carga del cuidador por medio de la escala de Zarit y el cuestionario SF36 con el fin de conocer la percepción de la calidad de vida relacionada con la salud. En lo cualitativo, se llevó a cabo un estudio fenomenológico con recolección de información por medio de un diario de campo y una entrevista semiestructurada. Resultados. En la fase cuantitativa se evidenció disminución de los síntomas de carga y mejoría en los niveles de calidad de vida con el uso de los aceites esenciales, mientras que en la fase cualitativa las narrativas refirieron mejor desempeño en sus roles asociado a una representación diferente del estado sintomatológico. Conclusión. Los aceites esenciales se perciben como una terapia de efecto positivo que modifica los síntomas psicoso-máticos y emocionales de los sujetos con carga del cuidador, lo cual impacta positivamente su calidad de vida. Existe un valor no reconocido de las narrativas del paciente en el conocimiento de los efectos de los tratamientos que se realizan, en especial en los procesos de enfermedad que alteran la mente.

Introduction. People with caregiver burden syndrome require intervention on their physical and emotional disturbances; essential oils are a therapeutic alternative in neurorehabilitation. Objective. To identify the effect of essential oil therapy on quality of life in a group of patients with caregiver burden syndrome through their phenomenological perception. Methods. Mixed study with concurrent triangulation or DITRIAC. In quantitative terms, a pre-experimental design study of the degree of caregiver burden was conducted in a single group, with pre- and post-intervention measurement using the Zarit scale and the SF36 questionnaire, in order to know the perception of health-related quality of life. In qualitative terms, a phenomenological study was carried out with information collection through a field diary and a semi-structured interview. Results. In the quantitative phase, a decrease in burden symptoms and improvement in the levels of quality of life was evident with the use of essential oils, while in the qualitative phase the narratives referred a better performance in their roles associated with a different representation of the symptomatological state.Conclusion. Essential oils are perceived as a therapy with a positive effect that modifies the psychosomatic and emotional symptoms of subjects with caregiver burden, which positively impacts their quality of life. There is an unrecognized value of patient narratives in knowing the effects of the treatments that are performed, especially in mind-altering disease processes.Keywords. Caregiver burden, volatile oils, perception, quality of life.

Impacto dos Grupos de Apoio na sobrecarga de cuidadores familiares em Portugal / Impacto de los Grupos de Apoyo en la sobrecarga de cuidadores familiares en Portugal / Impact of Support Groups on the burden of family caregivers in Portugal

Objetivo: Analisar a relação entre a sobrecarga do cuidador familiar e o apoio social com a participação em grupos de apoio presenciais e virtuais. Métodos: Estudo pré-experimental. Critérios de inclusão: cuidadores informais, maiores de idade, residentes na região centro-sul de Portugal. Variável independente: participação num grupo de apoio presencial (GA), num fórum virtual (FV) ou nenhum grupo (GC). Variáveis dependentes: sobrecarga de cuidado (Índice de Esforço do Cuidador) e apoio social percebido (escala MOS). Análise descritiva, binária e multivariada com o programa estatístico SPSS 22. Resultados: Participaram 109 cuidadores, principalmente mulheres, cuidando dos seus filhos. 47,7% sofreram sobrecarga pelo cuidado, sendo mais alta no GC. O apoio social foi bom em 64,2% dos participantes, sendo maior no GA. Houve uma associação significativa com o género e a rede social (ser mulher está associado a uma maior sobrecarga, enquanto uma ampla rede social diminui a sobrecarga do cuidador). A participação num GA ou FV melhorou significativamente a rede e o apoio social. Conclusão: A participação em grupos de apoio, tanto presenciais quanto virtuais, tem uma relação positiva significativa com a redução da sobrecarga do cuidador e o aumento do apoio social percebido. Estes grupos de apoio são recursos essenciais para os cuidadores informais, ajudando a mitigar os efeitos negativos do cuidado e fortalecendo as suas redes sociais e o apoio. Portanto, promover a participação em tais grupos pode ser uma estratégia eficaz para melhorar o bem-estar dos cuidadores familiares

Objective: To analyze the relationship between the burden of the family carer and social support through participation in face-to-face and virtual support groups. Methods: Pre-experimental study. Inclusion criteria: informal caregivers, adults, living in the south-central region of Portugal. Independent variable: participation in a face-to-face support group (GA), virtual forum (FV) or no group (GC). Dependent variables: care overload (Caregiver's Effort Index) and perceived social support (MOS scale). Descriptive, binary and multivariate analysis with the statistical program SPSS 22. Results: 109 caregivers, mainly women, were involved in caring for their children. 47.7% were overburdened with care, the rate being higher in the CG. Social support was good in 64.2% of participants, and higher in the AG. There was a significant association with gender and the social network (being female is associated with greater burden, while a broad social network decreases caregiver burden). Participation in an AG or VF significantly improved social network and support. Conclusion: Participation in support groups, both face-to-face and virtual, has a significant positive relationship with the reduction of caregiver burden and the increase of perceived social support. These support groups are essential resources for informal caregivers, helping to mitigate the negative effects of care and strengthening their social networks and support. Therefore, promoting participation in such groups can be an effective strategy to improve the well-being of family caregivers

Objetivo: Analizar la relación entre la sobrecarga del cuidador familiar y el apoyo social con la participación en grupos de apoyo presenciales y virtuales. Métodos: Estudio pre-experimental. Criterios de inclusión: cuidadores informales, mayores de edad, residentes en la región centro-sur de Portugal. Variable independiente: participación en un grupo de apoyo presencial (GA), en un foro virtual (FV) o ningún grupo (GC). Variables dependientes: sobrecarga de cuidado (Índice de Esfuerzo del Cuidador) y apoyo social percibido (escala MOS). Análisis descriptivo, binario y multivariante con el programa estadístico SPSS 22. Resultados: Participaron 109 cuidadores, principalmente mujeres, cuidando a sus hijos. 47,7% sufrieron sobrecarga por el cuidado, siendo mayor en el GC. El apoyo social fue bueno en 64,2% de los participantes, siendo mayor en el GA. Hubo una asociación significativa con el género y la red social (ser mujer está asociado a una mayor sobrecarga, mientras que una amplia red social disminuye la sobrecarga del cuidador). La participación en un GA o FV mejoró significativamente la red y el apoyo social. Conclusión: La participación en grupos de apoyo, tanto presenciales como virtuales, tiene una relación positiva significativa con la reducción de la sobrecarga del cuidador y el aumento del apoyo social percibido. Estos grupos de apoyo son recursos esenciales para los cuidadores informales, ayudando a mitigar los efectos negativos del cuidado y fortaleciendo sus redes sociales y el apoyo. Por lo tanto, promover la participación en tales grupos puede ser una estrategia eficaz para mejorar el bienestar de los cuidadores familiares

A sobrecarga de cuidadores: como as características de idosos e seus cuidadores se articulam / The burden of caregivers: how the characteristics of the elderly and their caregivers articulate / La sobrecarga de los cuidadores: cómo se articulan las características de los ancianos y sus cuidadores

Objetivo: analisar a associação entre as características de idosos e cuidadores e seus impactos na sobrecarga dos cuidadores. Método: em 2021, foram avaliados 50 pares de cuidadores informais e idosos pelo perfil sociodemográfico, de saúde, Escala Hospitalar de Ansiedade e Depressão (HADS), Entrevista de Sobrecarga de Zarit-Brief (ZBI-12) e informações sobre grau de dependência dos idosos para atividades básicas e instrumentais (ABVD e AIVD). Modelos de regressão avaliaram os escores ZBI-12 e HADS em função das características dos cuidadores e idosos assistidos. O protocolo de pesquisa foi aprovado pelo Comitê de Ética em Pesquisa. Resultados: alta morbidade e dependência para ABVD foram significativamente associadas a maiores níveis de sobrecarga do cuidador. Essas características perderam significância quando ajustado o modelo por idade do cuidador, tempo que presta o cuidado e convivência com o idoso. Conclusão: esses resultados revelam a necessidade de intervenções para garantir suporte aos cuidadores quanto a diminuição da sobrecarga relacionada ao cuidado(AU)

Objective: to analyze the association between the characteristics of elderly people and caregivers and their impact on caregiver burden. Method: in 2021, 50 pairs of informal caregivers and their elderly were evaluated through the sociodemographic and health profile, Hospital Anxiety and Depression Scale (HADS), Zarit-Brief Burden Interview (ZBI-12), and information on the degree of dependence of the elderly for basic and instrumental activities (BADL and IADL). Regression models evaluated ZBI-12 and HADS scores as a function of characteristics of caregivers and assisted elderly. The research protocol was approved by the Research Ethics Committee. Results: high morbidity and BADL dependence were significantly associated with higher levels of caregiver burden. These characteristics lost significance when we adjusted the model for the caregiver's age, time that provides care, and living with the elderly. Conclusion: these results reveal the need for interventions to guarantee support for caregivers in terms of reducing the burden related to the care(AU)

Objetivo: analizar la asociación entre las características de ancianos y sus cuidadores y el correspondiente impacto en la sobrecarga de los cuidadores. Método: en 2021, se evaluaron 50 pares de cuidadores informales y sus ancianos a través del perfil sociodemográfico, de salud, Escala de Ansiedad y Depresión Hospitalaria (HADS), Escala de Zarit Reducida para la Sobrecarga (ZBI-12) e información sobre el grado de dependencia de los ancianos respecto a actividades básicas e instrumentales (ABVD y AIVD). Modelos de regresión evaluaron las puntuaciones de ZBI-12 y HADS en función de las características de los cuidadores y ancianos asistidos. El Comité de Ética en Investigación aprobó protocolo de investigación. Resultados: la alta morbilidad y la dependencia de BADL se asociaron significativamente con niveles más altos de sobrecarga del cuidador. Estas características perdieron su importancia cuando ajustamos el modelo por la edad del cuidador, tiempo que proporciona cuidados y convivencia con los ancianos. Conclusión: estos resultados revelan la necesidad de intervenciones para garantizar apoyo a los cuidadores para reducir la sobrecarga relacionada con el cuidado(AU)

Qualidade de vida: sobrecarga e depressão entre cuidadores de idosos em atendimento domiciliar / Quality of life: overload and depression between caregivers of elderly people in home care / Calidad de vida: sobrecarga y depresión en cuidadores de ancianos en atención domiciliaria

Objetivo: avaliar prevalência e impacto da sobrecarga e da depressão na qualidade de vida de 102 cuidadores de idosos cadastrados no Programa Melhor em Casa. Método: estudo analítico transversal aprovado pelo Comitê de Ética e Pesquisa. Realizado entre junho e novembro 2022, em Juiz de Fora (MG/Brasil), com amostra censitária e aplicação de formulário sociodemográfico, da Escala de Zarit, do Inventário de Depressão de Beck e do questionário de qualidade de vida da Organização Mundial de Saúde (WHOQOL-bref). Foram utilizados Teste t de Student, Mann-Whitney e regressão linear múltipla, com nível de significância de 5%. Resultados: observou-se sobrecarga em 69,6% dos cuidadores, além da presença de sintomas sugestivos de depressão em 41,1% da população em estudo. Conclusão: a sobrecarga esteve associada a piora da qualidade de vida nos domínios físico, psicológico e de relação social, enquanto a depressão esteve associada a piora da qualidade de vida nos domínios psicológico e de avaliação geral(AU)

Objective: to evaluate the prevalence and impact of overload and depression on the quality of life of 102 caregivers of elderly people registered in the Melhor em Casa Program. Method: cross-sectional analytical study approved by the Research Ethics Committee. Carried out between June and November 2022, in Juiz de Fora (MG/Brazil), with a census sample and application of a sociodemographic form, the Zarit Scale, the Beck Depression Inventory and the World Health Organization's quality of life questionnaire (WHOQOL-bref). Student's t-test, Mann-Whitney test and multiple linear regression were used, with a significance level of 5%. Results: overload was observed in 69.6% of caregivers, in addition to the presence of symptoms suggestive of depression in 41.1% of the study population. Conclusion: overload was associated with worsening quality of life in the physical, psychological and social relationship domains, while depression was associated with worsening quality of life in the psychological and general evaluation domains(AU)

Objetivo: evaluar la prevalencia y el impacto de la sobrecarga y la depresión en la calidad de vida de 102 cuidadores de ancianos registrados en el Programa Melhor em Casa (Mejor en casa). Método: estudio analítico transversal aprobado por el Comité de Ética en Investigación. Realizado entre junio y noviembre de 2022, en Juiz de Fora (MG/Brasil), con muestra censal y aplicación de un formulario sociodemográfico, la Escala de Zarit, el Inventario de Depresión de Beck y el cuestionario de calidad de vida de la Organización Mundial de la Salud (WHOQOL-bref). Se utilizó la prueba t de Student, la prueba de Mann-Whitney y la regresión lineal múltiple, con un nivel de significancia del 5%. Resultados: se observó que el 69,6% de los cuidadores sentían sobrecarga, además de algunos síntomas sugestivos de depresión en el 41,1% de la población de estudio. Conclusión: la sobrecarga se asoció con un empeoramiento de la calidad de vida en los dominios físico, psicológico y de relaciones sociales, mientras que la depresión se asoció con un empeoramiento de la calidad de vida en los dominios psicológico y de evaluación general(AU)