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1.
Crit Care Nurs Q ; 45(1): 88-97, 2022.
Artigo em Inglês | MEDLINE | ID: mdl-34818302

RESUMO

As the progress of critical care medicine has improved the survival rate of critically ill patients, comorbidities and long-term health care have attracted people's attention. The terms "post-intensive care syndrome" (PICS) and "PICS-family" (PICS-F) have been used in non-neurocritical care populations, which are characterized by the cognitive, psychiatric, and physical sequelae associated with intensive care hospitalization of survivors and their families. An intensive care unit (ICU) diary authored by the patient's family members may alleviate the psychological distress of the patient and his or her family. This quality improvement project focused on the development and implementation of the pediatric intensive care unit (PICU) diary in the pediatric critical care setting. The project aims to evaluate the feasibility and the potential efficacy of the PICU diary, measured through parental acceptance and satisfaction. Seventeen families of critically ill children admitted to the PICU received the PICU diary during the implementation period. Twenty-four parents completed the weekly follow-up, and 15 subsequently completed the diary entry evaluation. The use of the diary in the PICU setting is feasible and considered beneficial by families of critically ill children.


Assuntos
Estado Terminal , Unidades de Terapia Intensiva Pediátrica , Criança , Cuidados Críticos , Família , Estudos de Viabilidade , Feminino , Humanos , Masculino
2.
Esc. Anna Nery Rev. Enferm ; 26(spe): e20210208, 2022. ilus
Artigo em Português | LILACS, BDENF - Enfermagem | ID: biblio-1292780

RESUMO

Objetivo: compreender a ausência de rituais fúnebres na pandemia de COVID-19 no processo de viver o luto das famílias brasileiras que perderam entes queridos por COVID-19. Método: pesquisa qualitativa documental realizada em três jornais disponibilizados online. Foram analisadas 67 reportagens, divididas em duas categorias; a primeira trata dos sofrimentos psicológicos derivados do isolamento social, como ansiedade, depressão, solidão e medo; e a segunda trata das diferentes manifestações do luto e o efeito psicológico das perdas em meio à pandemia. Resultado: a ritualização da morte é indissociável do processo de elaboração das perdas. A ausência de rituais fúnebres, aliada ao distanciamento social, repercute de forma desafiadora para a sociedade e para os profissionais da saúde mental. Estratégias não presenciais de demonstração de afeto e elaboração da perda podem amenizar o isolamento imposto pela pandemia. Conclusões e implicações para a prática: o processo de viver humano é repleto de ritos de passagem e a ritualística na morte-morrer se mostra necessária para a vivência da despedida, da certeza do distanciamento ocorrido entre entes e família. Implica em modos resolutivos de registro emocional, mental e mesmo físico da expressão pública de sofrimento do enlutado e do não esquecimento do Ser à morte. Impacta na prática assistencial para o acolhimento, orientação e elaboração das perdas para a manutenção de vida saudável das pessoas enlutadas, o que propõe argumentos teórico-reflexivos no cuidado em saúde mental e na guarida de pessoas enlutadas decorrentes da pandemia


Objective: to understand the absence of funeral rituals in the process of living the grief process of Brazilian families who lost loved ones by COVID-19. Method: this is a qualitative documental research carried out in three newspapers available online. Sixty-seven reports were analyzed, divided into two categories; the first deals with psychological suffering derived from social isolation, such as anxiety, depression, loneliness and fear; and the second deals with the different manifestations of grief and the psychological effect of losses amidst the pandemic. Result: the ritualization of death is inseparable from the process of elaboration of the losses. The absence of funeral rituals combined with social dictatorship can have a challenging impact on society and mental healthcare professionals. Non-presential strategies for showing affection and elaborating the loss can ease the isolation imposed by the pandemic. Conclusions and implications for practice: the human living process is full of rites of passage and death-dying rituals prove to be necessary for the experience of farewell, of the certainty of the distance between loved ones and family. It implies resolving modes of emotional, mental and even physical recording of the public expression of the griever's suffering and not forgetting the Being's to death. It impacts care practice for reception, guidance and elaboration of losses for the maintenance of a healthy life for grievers, which proposes theoretical-reflective arguments in mental healthcare and in the shelter of grievers resulting from the pandemic


Objetivo: comprender la ausencia de rituales funerarios en el proceso de dolor de las familias brasileñas que perdieron a sus seres queridos por COVID-19. Método: una investigación documental cualitativa realizada en tres periódicos disponibles en línea. Se analizaron 67 informes, divididos en dos categorías; el primero trata sobre el sufrimiento psicológico derivado del aislamiento social, como la ansiedad, la depresión, la soledad y el miedo; y el segundo trata de las diferentes manifestaciones del dolor y el efecto psicológico de las pérdidas en medio de la pandemia. Resultado: la ritualización de la muerte es inseparable del proceso de elaboración de las pérdidas. La ausencia de rituales funerarios combinada con la dictadura social puede tener un impacto desafiante en la sociedad y los profesionales de la salud mental. Las estrategias no presenciales para mostrar afecto y explicar la pérdida pueden aliviar el aislamiento impuesto por la pandemia. Conclusiones e implicaciones para la práctica: el proceso del vivir humano está lleno de ritos de paso y los rituales de la muerte-morir resultan necesarios para la experiencia de la despedida, de la certeza de la distancia entre los seres queridos y la familia. Implica resolver modos de registro emocional, mental e incluso físico de la expresión pública del sufrimiento del doliente y del no olvido del Ser hasta la muerte. Incide en la práctica asistencial para la recepción, orientación y elaboración de las pérdidas para el mantenimiento de una vida sana de las personas en dolor, el cual propone argumentos teórico-reflexivos en la atención de la salud mental y en el refugio de personas en dolor producto de la pandemia


Assuntos
Humanos , Luto , Família/psicologia , Morte , Pandemias , Rituais Fúnebres/psicologia , COVID-19 , Pesquisa Qualitativa , Distanciamento Físico
3.
Vínculo ; 18(2): 1-12, jul.-dez. 2021. ilus
Artigo em Português | LILACS, Index Psicologia - Periódicos | ID: biblio-1341801

RESUMO

trata-se de uma pesquisa bibliográfica exploratória que teve o objetivo de verificar quais foram os assuntos que estão relacionados com o dinheiro nos últimos 30 anos (1987 a 2017), pelas bases de dados Psychoinfo, Webscience, Lilacs e Scielo. Para a coleta de dados nas bases de dados foram utilizadas as palavras chaves: Family, Money e financial education. Na análise, foi realizada uma leitura exploratória, na qual entrou-se em contato com a totalidade do artigo, lendo passagens esparsas do resumo e do texto. Após, foi realizada a leitura seletiva para aprofundar mais nas partes que interessavam, e pôr fim a leitura analítica, que consistiu em ordenar e sumarizar as informações contidas no artigo. Foram coletados um total de 706 artigos nas quatro bases de dados citadas. Nos resultados foram identificadas 86 publicações de artigos nas 4 bases de dados na última década, em contrapartida entre os anos de 1987 a 1997 foram identificados um total de 76 artigos e entre 1998 a 2007, 180 artigos. Conclui-se que, a temática sobre dinheiro tem sido importante nas investigações cientificas principalmente na última década.


This is an exploratory bibliographic research that aimed to verify which subjects were related to money in the last 30 years (1987 to 2017), using the Psychoinfo, Webscience, Lilacs and Scielo databases. For the collection of data in the databases the keywords were used: Family, Money and financial education. In the analysis, an exploratory reading was carried out, in which the entire article was contacted, reading sparse passages from the abstract and the text. Afterwards, the selective reading was carried out to go deeper into the parts that were of interest, and put an end to the analytical reading, which consisted of ordering and summarizing the information contained in the article. A total of 706 articles were collected in the four databases cited. In the results, 86 publications of articles were identified in the 4 databases in the last decade, in contrast between the years 1987 to 1997, a total of 76 articles were identified and between 1998 and 2007, 180 articles. It is concluded that, the theme about money has been important in scientific investigations mainly in the last decade.


Se trata de una investigación bibliográfica exploratoria que tuvo como objetivo verificar qué temas estaban relacionados con el dinero en los últimos 30 años (1987 a 2017), utilizando las bases de datos Psychoinfo, Webscience, Lilacs y Scielo. Para la recogida de datos en las bases de datos se utilizaron las palabras clave: Familia, Dinero y educación financiera. En el análisis se realizó una lectura exploratoria, en la que se contactó con todo el artículo, leyendo escasos pasajes del resumen y del texto. Posteriormente, se realizó la lectura selectiva para profundizar en las partes que eran de interés, y poner fin a la lectura analítica, que consistió en ordenar y resumir la información contenida en el artículo. Se recogieron un total de 706 artículos en las cuatro bases de datos citadas. En los resultados se identificaron 86 publicaciones de artículos en las 4 bases de datos en la última década, en contraste entre los años 1987 a 1997 se identificaron un total de 76 artículos y entre 1998 y 2007, 180 artículos. Se concluye que el tema del dinero ha sido importante en las investigaciones científicas principalmente en la última década.


Assuntos
Psicologia/economia , Família , Economia , Economia Comportamental , Administração Financeira
4.
Rev. enferm. UERJ ; 29: e51932, jan.-dez. 2021.
Artigo em Inglês, Português | LILACS | ID: biblio-1224598

RESUMO

Objetivo: analisar a produção do conhecimento sobre a experiência da família acerca dos cuidados paliativos da criança com câncer hospitalizada na unidade de terapia intensiva e discutir o papel da enfermagem no atendimento à família da criança com câncer frente aos cuidados paliativos. Método: revisão integrativa realizada na PUBMED, LILACS, SCOPUS, SCIELO e CINAHL entre janeiro e março de 2020. Resultados: a amostra foi composta por 13 artigos, originando duas categorias: O impacto do cuidado paliativo da criança com câncer na dinâmica familiar e o cuidado multiprofissional, em especial dos enfermeiros, à família da criança com câncer. Conclusão: os estudos revelaram o panorama nacional e internacional dos cuidados paliativos à criança com câncer e a desestruturação da dinâmica familiar nos aspectos físicos, sociais, psicológicos, e financeiros, caracterizando o período como estressante e doloroso. Os enfermeiros estabelecem condutas terapêuticas objetivando promover qualidade de vida para crianças em cuidados paliativos e seus familiares.


Objective: to examine production of knowledge on families' experience of palliative care for children with cancer hospitalized in an intensive care center and discuss the role of nursing in assisting the family of the child in palliative cancer care. Method: this integrative review was conducted on PubMed, LILACS, Scopus, SciELO and CINAHL between January and March 2020. Results: from the sample of 13 articles, two categories originated: The impact of palliative cancer care for children on family dynamics and multiprofessional care, especially by nurses, for the family of the child with cancer. Conclusion: the studies revealed the national and international panorama of palliative care for children with cancer and the breakdown of physical, social, psychological, and financial family dynamics, characterizing the period as stressful and painful. Nurses establish therapeutic approaches aimed at promoting quality of life for children in palliative care and their families.


Objetivo: analizar la producción de conocimiento sobre la experiencia familiar en los cuidados paliativos de niños con cáncer, hospitalizados en la unidad de cuidados intensivos, y discutir el papel de la enfermería en la asistencia a la familia del niño con cáncer frente a los cuidados paliativos. Método: Revisión integradora realizada en PUBMED, LILACS, SCOPUS, SCIELO y CINAHL entre enero y marzo de 2020. Resultados: La muestra estuvo conformada por 13 artículos, originando dos categorías: El impacto de los cuidados paliativos para niños con cáncer en la dinámica familiar y los cuidados multiprofesionales, especialmente de las enfermeras, a la familia del niño con cáncer. Conclusión: Los estudios revelaron el panorama nacional e internacional de los cuidados paliativos para niños con cáncer y la ruptura de la dinámica familiar en aspectos físicos, sociales, psicológicos y económicos, caracterizándolo como un período estresante y doloroso. Las enfermeras establecen enfoques terapéuticos dirigidos a promover la calidad de vida de los niños en cuidados paliativos y sus familias.


Assuntos
Humanos , Masculino , Feminino , Criança , Cuidados Paliativos , Família/psicologia , Criança Hospitalizada , Conhecimentos, Atitudes e Prática em Saúde , Unidades de Terapia Intensiva , Neoplasias/terapia , Papel do Profissional de Enfermagem , Neoplasias/enfermagem , Relações Enfermeiro-Paciente
5.
Am J Occup Ther ; 75(5)2021 Sep 01.
Artigo em Inglês | MEDLINE | ID: mdl-34780630

RESUMO

IMPORTANCE: Children with autism spectrum disorder (ASD) may experience sleep difficulties that worsen into adulthood and negatively influence both child and family, yet the experience is not well understood. Understanding the family's experience can inform occupational therapy providers, future research, and practice guidelines. OBJECTIVE: To examine experiences surrounding sleep for families raising a young adult with ASD (YA-ASD). DESIGN: Qualitative study in the phenomenological tradition of Moustakas (1994). Experienced researchers analyzed transcripts from in-depth, in-person interviews to triangulate data, distill themes, and construct the essence of family experience. Trustworthiness was established through member checking, audit trails, and epoché diaries that were maintained throughout data analyses. SETTING: Community setting (large city in the northeastern United States). PARTICIPANTS: People who self-identified as living in a family arrangement that included a YA-ASD age 15-21 yr, able to verbally participate in English. Families with children diagnosed with developmental disabilities other than ASD were excluded. RESULTS: Six eligible families identified through volunteer sampling participated. The participants' sociodemographic diversity was limited across household income, education level, and ethnicity. All YA-ASD in this study were limited verbally and unable to contribute. Analyses of interview transcripts revealed five themes that form the essence of the families' experience surrounding sleep. CONCLUSIONS AND RELEVANCE: Sleep issues for YA-ASD continue into adulthood and affect the entire family because of continuous co-occupation; occupational therapy support is therefore important for families of YA-ASD. The lack of effective evidence-based interventions supporting the YA-ASD population also reveals an area for growth. What This Article Adds: The results indicate the importance of addressing sleep for YA-ASD and their families in occupational therapy practice because of its considerable impact on family life.


Assuntos
Transtorno do Espectro Autista , Transtornos do Sono-Vigília , Adolescente , Adulto , Criança , Família , Humanos , Pesquisa Qualitativa , Sono , Adulto Jovem
6.
Am J Occup Ther ; 75(5)2021 Sep 01.
Artigo em Inglês | MEDLINE | ID: mdl-34780633

RESUMO

Unpaid caregivers are often expected to help family members or friends overcome activity limitations and participation restrictions to successfully age in place. Caregivers assume multiple responsibilities, such as managing their own physical and psychosocial needs and navigating a complex health care system, and many feel ill equipped to fulfill the necessary health care responsibilities for their care recipients. Underprepared caregivers may cause poor outcomes for care recipients. Federal and state policy proposals call attention to the need to better support caregivers, especially as their numbers increase. Occupational therapy practitioners are well positioned to effectively engage caregivers as they navigate the health care system. The occupational therapy process looks broadly at the functional abilities, environmental contexts, and occupational demands that play a pivotal role in successful aging in place for clients and better outcomes for their caregivers. Now is the time to define occupational therapy's distinct value to this area.


Assuntos
Vida Independente , Terapia Ocupacional , Atividades Cotidianas , Idoso , Cuidadores , Família , Humanos , Estados Unidos
7.
Rev Bras Enferm ; 75Suppl 2(Suppl 2): e20200699, 2021.
Artigo em Inglês, Português | MEDLINE | ID: mdl-34787274

RESUMO

OBJECTIVES: to describe home care practices performed by family members for maintaining the life of children with gastrostomy. METHODS: qualitative research using the Sensitive Creative method, with the Criatividade e Sensibilidade Corpo Saber [Corpo Saber Creativity and Sensitivity] dynamics. The participation included ten family caregivers of children with gastrostomy. The outpatient clinic of a federal hospital in Rio de Janeiro was the setting. Lexical analysis was used through the IRaMuTeQ® software. RESULTS: Theme 1, entitled "The care for maintaining life performed by family members of children with gastrostomy at home", was analyzed, comprising three classes: "The gastrostomy tube home care routine"; "The care with the gastrostomy/stoma"; and "Food and medication home care routine of children with gastrostomy". FINAL CONSIDERATIONS: family caregivers used strategies to maintain the device and acquired new knowledge in this field, and in nursing competence, regarding stoma care, food administration, medication, and syringes.


Assuntos
Gastrostomia , Serviços de Assistência Domiciliar , Brasil , Cuidadores , Criança , Família , Humanos
8.
Rev Bras Enferm ; 75Suppl 2(Suppl 2): e20201371, 2021.
Artigo em Inglês, Português | MEDLINE | ID: mdl-34787277

RESUMO

OBJECTIVES: to evaluate the effect of educational video on newborn care to increase the knowledge of pregnant, postpartum, and family members. METHODS: a quasi-experimental study, with pre-intervention and post-intervention evaluation with a single group. Fifty-eight pregnant, postpartum, and family members treated in basic health units and a hospital in Ceará, Brazil, participated. The study used the McNemar and binomial tests for the analysis. RESULTS: after the intervention, there was an increase in the frequency of hits, from 70.82% to 92.97%. Most of the questions presented a significant increase of hits (p < 0.05) with an emphasis on sleeping position, drying of clothes, free demand for breastfeeding, and things to avoid (such as accessories in the sleeping place and talc in diaper change). CONCLUSIONS: the educational video was effective to participants in acquiring knowledge on the care of newborns and can assist in health education activities carried out by nurses.


Assuntos
Cuidados de Enfermagem , Período Pós-Parto , Aleitamento Materno , Família , Feminino , Educação em Saúde , Conhecimentos, Atitudes e Prática em Saúde , Humanos , Recém-Nascido , Gravidez
9.
BMC Infect Dis ; 21(1): 1167, 2021 Nov 18.
Artigo em Inglês | MEDLINE | ID: mdl-34794380

RESUMO

BACKGROUND: Certain types of enteroviruses, including coxsackieviruses, cause encephalitis, and other neurological complications. However, these pathogens rarely cause fatal infections, especially in immunocompetent infants. In this study, we present a rare case of acute encephalopathy caused by coxsackievirus A2 (CV-A2), which progressed rapidly in a previously healthy female child. CASE PRESENTATION: In June 2013, a 26-month-old female child from Kanagawa, Japan, was found unresponsive during sleep. She was healthy until that morning. Her temperature was 37 °C at 08:00. She was feeling fine and went to the nursery that same morning. However, her condition worsened around noon. Therefore, she went home and slept at around 13:00. Surprisingly, after 2 h, her parents checked on her and found that she was lying on her back and was not breathing. Hence, she was immediately taken to a hospital by ambulance, but she was declared dead on arrival at the hospital. Subsequently, pathological autopsy and pathogenetic analysis, including multiple pathogen detection real-time PCR, were conducted to investigate the cause of death. The examination results revealed that she had an infectious respiratory disease and acute encephalopathy due to a CV-A2 infection. CONCLUSIONS: Based on our findings, we concluded that a previously healthy girl who had no immediate history of underlying medical condition were susceptible to death by acute encephalopathy due to CV-A2 infections. We proposed this conclusion because the patient's condition progressed rapidly in less than 2 h and eventually led to her death. This is the first report on an acute encephalitis-dependent death in a child due to CV-A2 infection.


Assuntos
Encefalopatias , Infecções por Coxsackievirus , Encefalite , Autopsia , Criança , Pré-Escolar , Infecções por Coxsackievirus/complicações , Infecções por Coxsackievirus/diagnóstico , Família , Feminino , Humanos
10.
J Aging Stud ; 59: 100979, 2021 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-34794723

RESUMO

The increase in the number of older adults in Nigeria is a significant demographic trend, requiring adequate and sustainable attention. Usually, these older adults depend on family members for support due to increasing frailty and/or disengagement from the civil service or other income-earning pursuits. Studies that depict differences in gender vis a vis access to social support from family networks are limited. This study will attempt to contribute to filling this gap. Four focus group discussions and 16 in-depth interviews were conducted on a sample of (N = 56) older adults aged 70 years and above and their 23 to 46 year old family carers. The generated data were analysed in themes. Findings revealed no differences in access to health support by gender; however, females received more financial, emotional as well as material support, and were more involved in social activities than their male counterparts. This study will facilitate a better understanding of gender differences in social support for older adults in Nigeria. This could, in turn, inform inclusive social policies guided by social workers which have greater focus on the needs of older adults.


Assuntos
Apoio Social , Serviço Social , Idoso , Família , Feminino , Humanos , Masculino , Nigéria , Fatores Sexuais
11.
Home Healthc Now ; 39(6): 336-343, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-34738969

RESUMO

Adult home mechanical ventilation (HMV) represents a small but growing vulnerable population in the community. Caring for these patients exposes families to many positive and negative experiences. This study aimed to synthesize the existing qualitative research that examined family members' experiences of caring for adult patients using HMV. Medline, PubMed, CINAHL, Scopus, and Web of Science were searched for qualitative studies conducted with family caregivers of adult patients receiving HMV. Thematic synthesis was conducted to interpret the findings. The GRADE-CERQual approach was used to assess the level of confidence. After completion of the screening process, 11 studies were included. The main theme from the meta-synthesis was the Experience of changing as a person. Families' experiences were divided into three stages over time: (1) Mixed feelings, (2) Challenging, and (3) Continuity. Family experiences illustrate that teamwork with an interprofessional approach based on patient and family needs is required to deliver care, improve clinical outcomes, reduce adverse experiences, and increase family satisfaction.


Assuntos
Família , Respiração Artificial , Adulto , Cuidadores , Humanos , Pesquisa Qualitativa
12.
Nurs Clin North Am ; 56(4): 583-597, 2021 12.
Artigo em Inglês | MEDLINE | ID: mdl-34749897

RESUMO

Pediatric obesity is a heterogeneous, chronic, relapsing disease associated with metabolic and psychosocial complications. Weight-based victimization, including unrelenting microaggressions, negatively impacts child mental and physical health. Evidence-based guidelines offer individualized, stepwise approaches to obesity treatment. Pediatric nurses positively impact children with obesity by providing affirmation, clinical management, and psychosocial support. Pediatric nurses are respected and positioned to present evidence-based obesity education, correct common obesity myths, sensitively address obesity-related bias and discrimination, and model person-first language and actions. This article shares how nurses in multiple practice areas can make a meaningful impact on the lives of children and adolescents with obesity.


Assuntos
Bullying/psicologia , Papel do Profissional de Enfermagem , Obesidade Pediátrica/epidemiologia , Obesidade Pediátrica/psicologia , Estigma Social , Adolescente , Criança , Vítimas de Crime/psicologia , Família/psicologia , Humanos , Obesidade Pediátrica/tratamento farmacológico , Estados Unidos/epidemiologia
13.
Rev Gaucha Enferm ; 42: e20200305, 2021.
Artigo em Inglês, Português | MEDLINE | ID: mdl-34755802

RESUMO

OBJECTIVE: To know the dehospitalization of technology-dependent children from a multiprofessional perspective. METHOD: A qualitative, exploratory and descriptive study, carried out in 2018 at a Teaching Hospital in the city of Porto Alegre. The participants were 15 members of the multidisciplinary health team. In data production, we used the Dynamics of Creativity and Sensitivity, "Creative Storm", which is part of the Sensitive Creative Method. Data interpretation occurred based on Thematic Content Analysis. The study was approved by the Ethics Committee. RESULTS: Dehospitalization is influenced by the absence of planning according to the reality of the child and the family. In addition, there is predominance of health services with a physician-centered model, unscheduled discharge, overload of professionals, and communication problems between the staff, the health network and the family. FINAL CONSIDERATIONS: Despite knowing the importance of dehospitalization, it still occurs in a fragmented manner, with hasty hospital discharge, preventing safe dehospitalization and with greater planning.


Assuntos
Família , Equipe de Assistência ao Paciente , Criança , Humanos , Alta do Paciente , Pesquisa Qualitativa , Tecnologia
15.
Rev Lat Am Enfermagem ; 29: e3483, 2021.
Artigo em Inglês, Espanhol, Português | MEDLINE | ID: mdl-34730762

RESUMO

OBJECTIVE: to assess the effect of a care intervention focused on meeting the needs of family members of surgical patients during the surgery waiting time, when compared to conventional care. METHOD: a study with a quasi-experimental design that was developed from December 2019 to February 2020 and included 313 family members (Intervention Group=149 and Control Group=164) from a private hospital. The intervention consisted in four moments: "knowing the surgical environment and process", "information when the surgery starts", "information when the surgery ends", and "family-patient reunion". The "satisfaction" variable was assessed through the "Patient Satisfaction with Nursing Care Quality Questionnaire" instrument. The data were analyzed using descriptive and analytical statistics. The study observed the ethical principles in research. RESULTS: the family members in the Intervention Group presented greater satisfaction with Nursing care, 90.07(9.8), when compared to the Comparison Group, 78.72(16.38), with an 11.35-point increase(p=0.000). CONCLUSION: the results showed that the families that received the intervention on the patient's status during the surgery waiting time were more satisfied with Nursing care in comparison to the conventional intervention.


Assuntos
Família , Listas de Espera , Humanos , Satisfação do Paciente , Satisfação Pessoal , Inquéritos e Questionários
16.
Proc Natl Acad Sci U S A ; 118(46)2021 11 16.
Artigo em Inglês | MEDLINE | ID: mdl-34750264

RESUMO

COVID-19 has had worse health, education, and labor market effects on groups with low socioeconomic status (SES) than on those with high SES. Little is known, however, about whether COVID-19 has also had differential effects on noncognitive skills that are important for life outcomes. Using panel data from before and during the pandemic, we show that COVID-19 affects one key noncognitive skill, that is, prosociality. While prosociality is already lower for low-SES students prior to the pandemic, we show that COVID-19 infections within families amplify the prosociality gap between French high school students of high and low SES by almost tripling its size in comparison to pre-COVID-19 levels.


Assuntos
COVID-19/economia , COVID-19/transmissão , Família , SARS-CoV-2 , Comportamento Social , Classe Social , Adolescente , Humanos
17.
Rev Esc Enferm USP ; 55: e20210153, 2021.
Artigo em Inglês, Português | MEDLINE | ID: mdl-34730609

RESUMO

OBJECTIVE: To map how the communication of the HIV infection diagnosis occurs in pediatrics. METHODS: Scoping review of the 64 original articles. We selected research papers in Portuguese, English, or Spanish, with the participants: child, adolescent, relative/family, and/or health professional from 2011-2020. We accessed the following sources: PubMed, CINAHL, Scopus, WoS, ASSIA, PsycINFO, ERIC, Sociological Abstracts, Edubase, LILACS, BDENF, and IndexPsi. RESULTS: Regarding the population, it was evident to us that the relative must be the sender of the diagnosis with the professionals' support; regarding the reasons for the communication, the child maturity, expressed by questions, the necessity of therapy adherence, abilities to communicate and the right of knowing the diagnosis must be considered. The communication channel is centered on materials that promote comprehension, quantity, and quality of information. That indicated an interactive process. Regarding the effects, they are beneficial when the communication occurs at a proper time. CONCLUSION: Communication must occur through a process that includes professional support to the relatives/family, development of abilities to evaluate the appropriate moment, and the monitoring effect.


Assuntos
Infecções por HIV , Adolescente , Criança , Comunicação , Família , Infecções por HIV/diagnóstico , Pessoal de Saúde , Humanos
19.
Acad Pediatr ; 21(8S): S102-S107, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-34740416

RESUMO

Racism and poverty are intertwined throughout American society as a result of historic and current systemic oppression based on class and race. As the processes of pediatric preventive care, or well-child care, have evolved to better acknowledge and address health disparities due to racism and poverty, the structures of care have remained mostly stagnant. To cultivate long-term health and wellness of Black and Brown children, we must adopt an explicitly antiracist structure for well-child care. The pediatric medical home model is touted as the gold standard for addressing a host of health, developmental, and social needs for children and their families. However, the medical home model has not resulted in more equitable care for Black and Brown families living in poverty; there are ample data to demonstrate that these families often do not receive care that aligns with the principles of the medical home. This inequity may be most salient in the context of well-child care, as our preventive care services in pediatrics have the potential to impact population health. To appropriately address the vast array of preventive care needs of families living at the intersection of racism and poverty, a structural redesign of preventive care in the pediatric medical home is needed. In this paper, we propose a re-imagined framework for the structure of well-child care, with a focus on care for children in families living at the intersection of racism and poverty. This framework includes a team-based approach to care in which families build trusting primary care relationships with providers, as well as nonclinical members of a care team who have shared lived experiences with the community being served, and relies on primary care connections with community organizations that support the preventive health, social health, and emotional health needs of families of young children. Without a structural redesign of preventive care in the pediatric medical home, stand-alone revisions or expansions to processes of care cannot appropriately address the effects of racism and poverty on child preventive health outcomes.


Assuntos
Serviços de Saúde da Criança , Racismo , Criança , Cuidado da Criança , Pré-Escolar , Família , Humanos , Pobreza , Estados Unidos
20.
Acad Pediatr ; 21(8S): S108-S116, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-34740417

RESUMO

Black, Native, and Latinx populations represent the racial and ethnic groups most impacted by poverty. This unequal distribution of poverty must be understood as a consequence of policy decisions-some that have sanctioned violence and others that have created norms-that continue to shape who has access to power, resources, rights, and protections. In this review, we draw on scholarship from multiple disciplines, including pediatrics, public health, environmental health, epidemiology, social and biomedical science, law, policy, and urban planning to explore the central question-What is the relationship between structural racism, poverty, and pediatric health? We discuss historic and present-day events that are critical to the understanding of poverty in the context of American racism and pediatric health. We challenge conventional paradigms that treat racialized poverty as an inherent part of American society. We put forth a conceptual framework to illustrate how white supremacy and American capitalism drive structural racism and shape the racial distribution of resources and power where children and adolescents live, learn, and play, ultimately contributing to pediatric health inequities. Finally, we offer antipoverty strategies grounded in antiracist practices that contend with the compounding, generational impact of racism and poverty on heath to improve child, adolescent, and family health.


Assuntos
Racismo , Adolescente , Saúde do Adolescente , Criança , Grupos Étnicos , Família , Humanos , Pobreza , Estados Unidos
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