RESUMO
An increasing number of collaborative end-of-life narratives have been published after the death of the protagonist. Focusing on two examples of women's end-of-life memoirs in contemporary German popular culture, this essay examines how relationality, gender, and affectivity shape the philosophies, practices, and politics of palliative care and the associated concepts of the "good death." Ultimately, I argue that the memoirs foreground a still-marginal narrative and practice of dying at home within an intimate public sphere of palliation that transgresses traditional approaches to care for the dying in contemporary health care. They also contribute to gendered and sentimental notions of family care and of the self-determined and autonomous body and death.
Assuntos
Atitude Frente a Morte , Medicina na Literatura , Cuidados Paliativos , Assistência Terminal , Humanos , Feminino , Alemanha , NarraçãoRESUMO
In the novels An Ideal Presence (2020) by Eduardo Berti and La maternité [Maternity] (2012) by Mathieu Simonet, relatives of the dying and palliative care professionals are given a voice. Their experiences highlight "holes" in the cloak of care, which can never protect the terminally ill completely. However, they also raise the question of a pallium for the carers themselves. This need of protection, expressed in both novels by a concern to find the right dosage between caring presence for the terminally ill and self-caring distance from their suffering, risks clashing with the low-tech, high-touch approach associated with the hospice movement. By exposing the limits of palliative care, these (auto-)fictional accounts may prevent inflated expectations in this important medical field.
Assuntos
Medicina na Literatura , Cuidados Paliativos , Humanos , FemininoRESUMO
Research on palliative care emphasizes the crucial role of narratives in the encounter with suffering and dying patients because we need to learn from the dying in order to improve care for them. Autobiographical narratives by terminally ill writers contribute to a more encompassing understanding of what it means to be dying as they often thematize dying and death, besides theorizing all kinds of implications of terminal illness. Among such autothanatographers are well-known writers such as Gillian Rose, Jenny Diski, and Tom Lubbock. The process of writing about the last stage of their lives is palliative narrative praxis because the narrative act alleviates suffering. Exploring dying and death in philosophical, literary, and often highly poetic terms needs to be read and interpreted within a more complex web of meaning-making.
Assuntos
Medicina na Literatura , Narração , Cuidados Paliativos , Humanos , Redação , Atitude Frente a Morte , Assistência TerminalRESUMO
In this article, I present some of the literary and cultural influences behind hospice pioneer Cicely Saunders's idea of "total pain," a term she used from the 1960s onwards to promote the holistic approach which has since become palliative care. Existing studies imply "total pain" emerged from Saunders's own mixed career experiences and her attention to patient narratives. However, I explore how the term originates not only in Saunders's direct encounters with her patients but also in her readings of literary, philosophical, and theological texts from a range of European post-war contexts, from Viktor Frankl and Simone de Beauvoir to Martin Buber and Ladislaus Boros. Examining "total pain" in light of Saunders's reading reveals the particular intellectual milieu-often ignored-from which palliative care emerged.
Assuntos
Medicina na Literatura , Humanos , História do Século XX , Cuidados Paliativos , Dor/história , Literatura ModernaRESUMO
This article explores the representation of terminal brain cancer in Marion Coutts's memoir The Iceberg (2014), on her husband's illness and death, and Marco Peano's autofiction L'invenzione della madre (The invention of the mother; 2015), about a son who cares for his mother during her final days. While addressing the medicalization of dying and the efficacy of palliative care, both texts engage pervasively with visual culture. This emphasis on the visual arts and cinema provides a thought-provoking commentary on the protagonists' experience of witnessing the gradual erosion of verbal expression in their dying loved ones. This essay will thus explore both the use of visual culture as palliative praxis and the authors' implicit considerations on the role of narrativity in dying.
Assuntos
Medicina na Literatura , Cuidados Paliativos , Humanos , Neoplasias Encefálicas , Feminino , Masculino , Atitude Frente a MorteRESUMO
Contemporary literature about assisted dying in Germany, Switzerland, and France repeatedly explores the impact of illness on romantic relationships. Faced with the imminent or experienced death of their loved one, the healthy partner is affected by existential suffering and refuses to outlive the other. This dynamic leads to (joint) suicide, echoing the literary tradition of the Liebestod, where lovers prefer death over separation. This paper examines three contemporary texts on this theme. It illustrates that while the Liebestod is depicted as a romantic death, it inherently rejects a medicalized end of life. Despite overlaps between palliative care and the notion of a "good death," palliative care is absent, as the focus is on avoiding the existential suffering from losing a beloved partner, making suicide the only viable option.
Assuntos
Amor , Suicídio Assistido , Humanos , Suíça , Medicina na Literatura , França , Atitude Frente a Morte , Alemanha , Estresse Psicológico , Existencialismo , Literatura Moderna , Feminino , MasculinoRESUMO
Philippe Forest's first autofictional novel, L'Enfant éternel (The eternal child), centers on the terminal illness and eventual death of the author's daughter, Pauline. While scholarly attention has been directed toward the role of the text in caring for the child, this essay addresses the absence of care for Pauline's parents and their marginalization throughout her end-of-life hospitalization. Focusing on questions of genre, agency, and legacy, I argue that the text allows for a rewriting of the previous, negative experience of care in a way that incorporates the father into care provision. This corrective rewriting understands literature as palliative in its own right, capable of retaining identity, restoring relationships, and facilitating holistic care that "adds life" to all concerned.
Assuntos
Medicina na Literatura , Cuidados Paliativos , Humanos , Literatura Moderna , FemininoRESUMO
The Dragon Gate Stone Inscription prescriptions are the earliest surviving stone inscriptions of medical formulas in China, covering various departments such as internal medicine, surgery, gynecology, pediatrics and ophthalmology. By reviewing 28 moxibustion prescriptions recorded in the Dragon Gate Stone Inscriptions, the following application characteristics are summarized: moxibustion mainly treats acute diseases such as mania, deficiency-cold syndrome, and jaundice; in terms of point selection, specific points such as the thirteen ghost points, eight influential points, and front-mu points are used, emphasizing the extraordinary meridians such as governor vessel and conception vessel, as well as specific single acupoints with unique therapeutic effects; in clinical application, it follows the principle of treating according to syndrome differentiation, uses multiple acupoints simultaneously, employs food-medicine homology, and adjusts the moxibustion dosage according to individual conditions. The Dragon Gate Stone Inscription prescriptions reflect that the application of moxibustion therapy during the Northern Wei to Tang Dynasty period had already reached a relatively mature level, indicating a high level of proficiency in moxibustion techniques during that time.
Assuntos
Pontos de Acupuntura , Moxibustão , Moxibustão/história , Moxibustão/métodos , Humanos , História Antiga , China , Medicina na LiteraturaRESUMO
Based on Huangdi Neijing (Yellow Emperor's Internal Classic), combined with the Huangdi Mingtang Jing JiJiao (Compilation and Correction of Yellow Emperor's Mingtang Classic) and unearthed Tianhui Yijian (Tianhui Medical Bamboo Slips), it is recognized that the therapeutic indications of Fenglong (ST 40) were recorded repeatedly in many medical works of the Qin and Han dynasties; and the treatments mostly focus on "upward reversion of qi ". In Huangdi Mingtang Jing (Yellow Emperor's Mingtang Classic), a part of symptoms were re-described textually, which affects the understanding on the indications of Fenglong (ST 40) in the medical works of the later generations. On the basis of the construction of phlegm theory in the Sui and Tang dynasties, the scholars of Song, Jin and Yuan dynasties had placed the emphasis on the relationship between phlegm and qi movement. In acupuncture works by Dou Hanqing, Fenglong (ST 40) was selected in treatment of phlegm dampness and phlegm-induced asthma, which is also based on the pathogenesis, "upward reversion of qi ", rather than "phlegm" itself. This view can be understood by the proof of "reducing Zusanli (ST 36) for eliminating wind". The relationship between Fenglong (ST 40) and phlegm was emphasized in Yulong Ge (Jade Dragon Verse) and Zhenfang Liuji (Six Sets of Acupuncture Methods), after which, the understanding, " Fenglong (ST 40), the key point for phlegm disorders", had been formed gradually since the Ming dynasty. The formation and evolution of the therapeutic indications of Fenglong (ST 40) are influenced comprehensively by the errors in textual duplication, cultural background, changes in the term expressions of disorders, and the clinical experience of medical practitioners.
Assuntos
Terapia por Acupuntura , Medicina na Literatura , Moxibustão , Humanos , História Antiga , Terapia por Acupuntura/história , Moxibustão/história , Medicina na Literatura/história , China , Pontos de Acupuntura , Medicina Tradicional Chinesa/história , População do Leste AsiáticoRESUMO
The theory of Huatuo Jiaji (EX-B 2) is the representative of the knowledge construction of ancient anatomy, reflecting the academic thought of Huatuo's school. Through deeply analyzing the classic theory of acupuncture and its cultural and historical materials, it is believed that the five-body constituents are the structural basis of Huatuo Jiaji (EX-B 2), qi and blood are the material one, while biaoben (the sites where meridian qi gathers and diffuses) and qijie (the common pathways through which meridian qi gathers) indicate its functions. Huatuo Jiaji (EX-B 2) reveals the rules of the transverse distribution of meridian points and the relevant indications, providing the theoretic foundation for acupuncture treatment. It highlights the importance of the anatomical knowledge in acupuncture effect and proposes a new idea for establishing an effective classification system of meridian points.
Assuntos
Pontos de Acupuntura , Terapia por Acupuntura , Medicina na Literatura , Meridianos , Humanos , História Antiga , Terapia por Acupuntura/história , China , Acupuntura/história , Acupuntura/educaçãoRESUMO
OBJECTIVE: To explore how Michel de Montaigne's battle with urolithiasis influenced his writings and philosophical outlook during the Renaissance period. MATERIALS AND METHODS: The study examines historical texts, Montaigne's personal essays, and contemporary medical literature from the Renaissance era. A comprehensive review of Montaigne's extensive travels across Europe, interactions with prominent physicians, and the various treatments he sought for urolithiasis is conducted. The analysis focuses on how these experiences shaped his literary work and philosophical reflections. RESULTS: Montaigne's struggle with urolithiasis began at the age of 45, profoundly impacting his life and writings. His journey through France, Germany, Switzerland, Austria, and Italy in search of relief, along with consultations with renowned physicians such as Félix Platter and Girolamo Borro, significantly influenced his philosophical inquiries into human suffering and mortality. Montaigne's detailed accounts of his condition, describing 19 episodes of renal colic, offered early patient-centered perspectives in medical literature, highlighting the importance of understanding the psychological and emotional dimensions of illness. His therapeutic use of thermal baths and other non-invasive treatments reflected the medical practices of the time. CONCLUSION: Montaigne's experience with urolithiasis not only shaped his philosophical essays but also underscored the importance of empathetic and holistic patient care. His writings emphasize the need for integrating patient narratives into medical practice, a concept that remains crucial in contemporary health care. Montaigne's legacy continues to inspire a compassionate approach to urological care, emphasizing the interconnected nature of physical and emotional well-being, and advocating for a more patient-centered perspective in medical treatments.
Assuntos
Urolitíase , Urologia , Urolitíase/história , Urolitíase/terapia , Urologia/história , Humanos , Redação/história , Medicina na Literatura/história , História do Século XVI , Pessoas FamosasRESUMO
Gothic literature-a genre brimming with madness, supernaturalism, and psychological terror-offers innumerable case studies potentially representing how psychiatric patients perceive their treatment from healthcare professionals. Charlotte Perkins Gilman's famous 1892 short story "The Yellow Wallpaper" offers a poignant example of this through its fictional narrator, a diarist many interpret to be suffering from postpartum depression. The fiction here does not stray far from reality: Gilman orchestrated her diarist's experience to mirror her own, as both real author and fictional character suffocated from a melancholy only made worse by their physicians' insistence on following the "Rest Cure." While this instruction to cease all work and activity was a prevalent depression treatment at the time, Gilman, through "The Yellow Wallpaper," reveals how the intervention ultimately harmed more than helped because it overlooked her-and, by extension, her fictional diarist's- unique needs and identities. Today, while the ineffective Rest Cure no longer exists, applying observations from "The Yellow Wallpaper" to clinical research calls attention to underrepresentation in treatment development, a costly problem that could be mitigated by mindful incorporation of intersectionality theory into study designs.
Assuntos
Pesquisa Biomédica , Humanos , Medicina na LiteraturaRESUMO
Hattie in Saul Bellow's "Leaving the Yellow House" and Sammler in Bellow's Mr. Sammler's Planet are both elderly characters. This article intends to compare the two characters from a gender perspective, to illustrate how these characters appear to experience and respond to old age and how other characters in these two fictions respond to the old age of their respective elderly characters. The comparison of these two characters in the fiction of Saul Bellow gives rise to the observation that old age is not merely a phase of negative changes but also of positive ones; ageism claims victims among both men and women whose suffering is aggravated by other kinds of injustice, such as racism and sexism.
Assuntos
Etarismo , Humanos , Feminino , Masculino , Idoso , Envelhecimento , Literatura Moderna , Medicina na LiteraturaRESUMO
This essay examines the portrayal of modern Black motherhood in Nella Larsen's Harlem Renaissance novel, Quicksand (1928). Writing in a cultural landscape dominated by discourses of racial uplift, scientific motherhood and eugenics, I argue that Larsen critiques and ultimately refuses the limited literary, medical and political terms available for representing Black motherhood in the early twentieth century. My readings centre Larsen's understudied career as a nurse; prior to becoming a writer, Larsen worked as Head Nurse at the Tuskegee Institute in Alabama and as a public health nurse for the Department of Health in the Bronx. I consider how this professional experience informed her fictional depiction of modern Black motherhood, drawing on archival materials to demonstrate how her novel complicates contemporaneous medical and cultural attitudes towards Black motherhood and resists the eugenic demands delineating what constitutes 'good' and 'bad' motherhood. Engaging contemporary Black feminist theories of refusal and Black motherhood, I show how Quicksand is not only a critique of racist stigmatising discourses and practices but also of how racism limits the ways in which Black mothers' complexity has historically been represented.