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J Pediatr Psychol ; 44(2): 238-252, 2019 03 01.
Artículo en Inglés | MEDLINE | ID: mdl-30215749


Objective: Approximately 50% of people with cerebral palsy have a cognitive impairment. However, many tools used to assess cognition in infants require almost normal fine motor ability, and thus may not accurately reflect cognitive abilities of infants with cerebral palsy or other motor impairments. This systematic review aimed to evaluate the psychometric properties of cognitive assessment tools for infants aged 0-24 months with motor impairments and to make recommendations about the most appropriate cognitive assessment tools for the purpose of discrimination, prediction, and evaluation. Method: A systematic review was conducted. CINAHL, Embase, ERIC, Medline, PsycINFO, and SCOPUS databases were searched to identify studies reporting on 1 or more psychometric properties of a standardized cognitive assessment tool or questionnaire in a sample/subsample of infants with motor impairment. Of the 4,480 articles reviewed, 9 assessment tools were identified in 20 publications, which met our inclusion criteria. Articles were appraised using the COnsensus-based Standards for the selection of health Measurement INstruments to assess study rigor. The GRADE framework was applied to develop recommendations for clinical practice. Results: The Mayes Motor-Free Compilation, Fagan Test of Infant Intelligence, and Bayley-III Low Motor/Vision have predictive and/or discriminative utility in this population. The Mullen Scales of Early Learning was the only tool with psychometric research available examining responsivity to change. Conclusions: Assessment tools with low-motor/motor-free accommodations have greater accuracy in estimating cognitive abilities of infants with motor impairment than conventional norm-referenced tests. There, however, remains a significant paucity of research in this area.

Parálisis Cerebral/complicaciones , Trastornos del Conocimiento/complicaciones , Trastornos del Conocimiento/diagnóstico , Trastornos Motores/complicaciones , Parálisis Cerebral/fisiopatología , Preescolar , Trastornos del Conocimiento/fisiopatología , Femenino , Humanos , Lactante , Recién Nacido , Trastornos Motores/fisiopatología , Psicometría , Encuestas y Cuestionarios
J Pediatr Surg ; 51(10): 1627-34, 2016 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-27519557


BACKGROUND/PURPOSE: Congenital diaphragmatic hernia (CDH) survivors may have persistent neurocognitive delays. We assessed neurodevelopmental outcomes in CDH survivors from infancy to late teenage years. METHODS: A cross-sectional study was conducted on 37 CDH survivors to examine neurocognitive functioning. Overall cognitive score was tested with the early learning composite (ELC) of Mullen Scales of Early Learning (n=19), and Full Scale IQ (FSIQ) of Wechsler Intelligence Scale for Children-Fourth Edition (n=18). RESULTS: ELC was 85.7±16.4, lower than the expected norm of 100, P=0.004, and 6 survivors had moderate, and 3 severe delay, which is not greater than expected in the general population (P=0.148). FSIQ was 99.6±19.1, consistent with the expected norm of 100, P=0.922, and 3 survivors had moderate and 2 severe delay, which is greater than expected (P=0.048). Although ELC was lower than FSIQ (P=0.024), within each testing group overall cognitive ability was not associated with participant age (ELC, P=0.732; FSIQ, P=0.909). Longer hospital stay was the only factor found to be consistently associated with a worse cognitive score across all participants in our cohort. CONCLUSIONS: A high percentage of survivors with CDH have moderate to severe cognitive impairment suggesting that these subjects warrant early testing with implementation of therapeutic and educational interventions.

Trastornos del Conocimiento/etiología , Discapacidades del Desarrollo/etiología , Hernias Diafragmáticas Congénitas/complicaciones , Discapacidad Intelectual/etiología , Adolescente , Niño , Preescolar , Trastornos del Conocimiento/diagnóstico , Estudios Transversales , Discapacidades del Desarrollo/diagnóstico , Femenino , Humanos , Lactante , Discapacidad Intelectual/diagnóstico , Pruebas de Inteligencia , Masculino , Pruebas Neuropsicológicas , Estudios Prospectivos , Sobrevivientes