Engaging Consumers with Musculoskeletal Conditions in Health Research: A User-Centred Perspective.
Stud Health Technol Inform
; 239: 104-111, 2017.
Article
in En
| MEDLINE
| ID: mdl-28756444
ABSTRACT
Consumers are frequently involved in different kinds of health research, such as clinical trials, focus groups, and surveys. As pointed out by different studies, recruiting and involving consumers to participate in academic research can be challenging. While different research and guidelines are provided to instruct researchers to recruit participants ethically, they seldom consider the needs and expectations of consumers. In this research, we interviewed 23 consumers with musculoskeletal conditions in Australia, to understand their needs and motivations for participating in research from a user-centred perspective. Based on these data, we systematically summarise consumers' feedback into four main themes (1) Research as Learning Opportunity; (2) The Important Role of Communities and Health Professionals; (3) Research Transparency and Updates; and (4) Special Needs for People with MSK Conditions. As a result, a few recommendations are proposed and researchers should further consider these when designing consumer-based studies. Ultimately, with a better understanding of consumers, we hope that our research can enhance consumer engagement and improve their participation in health research.
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Collection:
01-internacional
Database:
MEDLINE
Main subject:
Patient Participation
/
Musculoskeletal Diseases
/
Motivation
Type of study:
Guideline
/
Qualitative_research
Aspects:
Ethics
/
Patient_preference
Limits:
Humans
Country/Region as subject:
Oceania
Language:
En
Journal:
Stud Health Technol Inform
Journal subject:
INFORMATICA MEDICA
/
PESQUISA EM SERVICOS DE SAUDE
Year:
2017
Document type:
Article
Affiliation country: