Improving the Medical Assistance in Dying (MAID) process: A qualitative study of family caregiver perspectives.
Palliat Support Care
; 17(5): 590-595, 2019 10.
Article
in En
| MEDLINE
| ID: mdl-30887936
ABSTRACT
OBJECTIVE:
The road to legalization of Medical Assistance in Dying (MAID) across Canada has largely focused on legislative details such as eligibility and establishment of regulatory clinical practice standards. Details on how to implement high-quality, person-centered MAID programs at the institutional level are lacking. This study seeks to understand what improvement opportunities exist in the delivery of the MAID process from the family caregiver perspective.METHOD:
This multi-methods study design used structured surveys, focus groups, and unstructured e-mail/phone conversations to gather experiential feedback from family caregivers of patients who underwent MAID between July 2016 and June 2017 at a large academic hospital in Toronto, Canada. Data were combined and a qualitative, descriptive approach used to derive themes within family perspectives.RESULT:
Improvement themes identified through the narrative data (48% response rate) were grouped in two categories operational and experiential aspects of MAID. Operational themes included process clarity, scheduling challenges and the 10-day period of reflection. Experiential themes included clinician objection/judgment, patient and family privacy, and bereavement resources. SIGNIFICANCE OFRESULTS:
To our knowledge, this is the first time that family caregivers' perspectives on the quality of the MAID process have been explored. Although practice standards have been made available to ensure all legislated components of the MAID process are completed, detailed guidance for how to best implement patient and family centered MAID programs at the institutional level remain limited. This study provides guidance for ways in which we can enhance the quality of MAID from the perspective of family caregivers.Key words
Full text:
1
Collection:
01-internacional
Database:
MEDLINE
Main subject:
Caregivers
/
Suicide, Assisted
/
Medical Assistance
Type of study:
Guideline
/
Prognostic_studies
/
Qualitative_research
Limits:
Adult
/
Female
/
Humans
/
Male
Country/Region as subject:
America do norte
Language:
En
Journal:
Palliat Support Care
Journal subject:
TERAPEUTICA
Year:
2019
Document type:
Article
Affiliation country: