Expectations of IBS patients concerning disease and healthcare providers: Results of a prospective survey among members of a French patients' association.
Clin Res Hepatol Gastroenterol
; 44(6): 961-967, 2020 11.
Article
in En
| MEDLINE
| ID: mdl-32205115
ABSTRACT
BACKGROUND AND AIMS:
IBS patients have an impaired quality of life (QoL) and feel dissatisfaction with medical care. We aim to describe the expectations of members of the French Association of IBS patients (APSSII) concerning health care providers (HCPs) and a patients' organization. PATIENTS ANDMETHODS:
From January to June 2013, APSSII members were asked to answer questionnaires on their expectations and experiences concerning IBS and HCP.RESULTS:
222/330 (67%) responded (women 68.5%, 46.5±17.7 years, disease duration 8.8±0.7 years, IBS-D 33.6%, IBS-C 26.7%, IBS-M 38.2%. IBS-SSS>300 in 53% and HAD score>19 in 45%). QoL impairment was correlated with disease severity and HAD score (r=-0.707 and r=-0.484, P<0.001 respectively), but not with IBS subtype. Expectations for IBS were "improved health", "better information on causes and treatments" (94%) and "better disease recognition" (86%). A significant gap was observed between expectations and experiences with HCPs. Better information, less isolation, recognition of the disease and a decrease in medical expenses were the main expectations for joining a patients' organization.CONCLUSIONS:
French IBS patients have a severe disease with a significant psychological impact and impaired QoL in half of the patients, certain unsatisfied expectations concerning HCP and high expectations in joining a patients' organization.Key words
Full text:
1
Collection:
01-internacional
Database:
MEDLINE
Main subject:
Irritable Bowel Syndrome
Type of study:
Qualitative_research
/
Risk_factors_studies
Aspects:
Patient_preference
Limits:
Female
/
Humans
/
Male
/
Middle aged
Country/Region as subject:
Europa
Language:
En
Journal:
Clin Res Hepatol Gastroenterol
Year:
2020
Document type:
Article