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Qualitative exploration of the visual function impairments and impacts on vision-dependent activities of daily living in Retinitis Pigmentosa and Leber Congenital Amaurosis: content validation of the ViSIO-PRO and ViSIO-ObsRO measures.
Kay, Christine; Audo, Isabelle; Naujoks, Christel; Spera, Claudio; Fischer, M Dominik; Green, Jane; Durham, Todd; Williamson, Nicola; Bradley, Helena; Barclay, Melissa; Sims, Joel; Banhazi, Judit; Patalano, Francesco.
Affiliation
  • Kay C; Vitreoretinal Associates, Gainesville, FL, USA.
  • Audo I; INSERM, CNRS, Institut de la Vision, CHNO des Quinze-Vingts, National Rare Disease Center REFERET and INSERM-DGOS CIC 1423, Sorbonne Université, 75012, Paris, France.
  • Naujoks C; Novartis Pharma AG, Basel, Switzerland.
  • Spera C; Novartis Pharma AG, Basel, Switzerland.
  • Fischer MD; Department of Clinical Neurosciences, University of Oxford, Oxford, UK.
  • Green J; Oxford Eye Hospital, Oxford University Hospitals NHS Foundation Trust, Oxford, UK.
  • Durham T; Centre for Ophthalmology, University Hospital Tuebingen, Tuebingen, Germany.
  • Williamson N; Discipline of Genetics, Faculty of Medicine, Memorial University of Newfoundland, Craig L Dobbin Genetics Research Centre, St. John's, Canada.
  • Bradley H; Foundation Fighting Blindness, Columbia, MD, USA.
  • Barclay M; Adelphi Values Ltd, Cheshire, UK. nicola.williamson@adelphivalues.com.
  • Sims J; Adelphi Values Ltd, Cheshire, UK. Helena.bradley@adelphivalues.com.
  • Banhazi J; Adelphi Values Ltd, Cheshire, UK.
  • Patalano F; Adelphi Values Ltd, Cheshire, UK.
J Patient Rep Outcomes ; 7(1): 74, 2023 07 19.
Article in En | MEDLINE | ID: mdl-37466759
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Retinitis Pigmentosa / Leber Congenital Amaurosis Type of study: Diagnostic_studies / Prognostic_studies / Qualitative_research Aspects: Patient_preference Limits: Adolescent / Adult / Child / Humans Language: En Journal: J Patient Rep Outcomes Year: 2023 Document type: Article Affiliation country:
Fulltext
Add to My VHL
Print
XML
PubMed Links
Search on Google

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Retinitis Pigmentosa / Leber Congenital Amaurosis Type of study: Diagnostic_studies / Prognostic_studies / Qualitative_research Aspects: Patient_preference Limits: Adolescent / Adult / Child / Humans Language: En Journal: J Patient Rep Outcomes Year: 2023 Document type: Article Affiliation country: