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Developing relevant community mental health programmes in North India: five questions we ask when co-producing knowledge with experts by experience.
Pillai, Pooja; Rawat, Meenal; Jain, Sumeet; Martin, Rachelle Anne; Shelly, Kakul; Mathias, Kaaren.
Affiliation
  • Pillai P; Community Health and Development Program, Herbertpur Christian Hospital, Herbertpur, India.
  • Rawat M; Community Health and Development Program, Herbertpur Christian Hospital, Herbertpur, India meenalrawat13@gmail.com.
  • Jain S; School of Social and Political Science, The University of Edinburgh, Edinburgh, UK.
  • Martin RA; School of Social and Political Science, The University of Edinburgh, Edinburgh, UK.
  • Shelly K; Department of Medicine, University of Otago, Wellington, New Zealand.
  • Mathias K; Community Health and Development Program, Herbertpur Christian Hospital, Herbertpur, India.
BMJ Glob Health ; 8(8)2023 08.
Article in En | MEDLINE | ID: mdl-37652565
Knowledge co-production can improve the quality and accessibility of health, and also benefit service users, allowing them to be recognised as skilled and capable. Yet despite these clear benefits, there are inherent challenges in the power relations of co-production, particularly when experts by experience (EBE) are structurally disadvantaged in communication skills or literacy. The processes of how knowledge is co-produced and negotiated are seldom described. This paper aims to describe processes of co-production building on the experiences of EBE (people with lived experience of psychosocial or physical disability), practitioners and researchers working together with a non-profit community mental health programme in North India. We describe processes of group formation, relationship building, reflexive discussion and negotiation over a 7-year period with six diverse EBE groups. Through a process of discussion and review, we propose these five questions which may optimise co-production processes in communities: (1) Who is included in co-production? (2) How can we optimise participation by people with diverse sociodemographic identities? (3) How do we build relationships of trust within EBE groups? (4) How can we combine psychosocial support and knowledge co-production agendas in groups? and (5) How is the expertise of experts by experience acknowledged?
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Mental Health / Trust Limits: Humans Country/Region as subject: Asia Language: En Journal: BMJ Glob Health Year: 2023 Document type: Article Affiliation country: Country of publication:

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Mental Health / Trust Limits: Humans Country/Region as subject: Asia Language: En Journal: BMJ Glob Health Year: 2023 Document type: Article Affiliation country: Country of publication: