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A Mixed-method Approach to Develop an Ambulatory Module of the SMA Independence Scale.
Staunton, Hannah; Cleanthous, Sophie; Teodoro, Vanda; Barrett, Louise; Braid, Jessica; Ewens, Bethany; Cano, Stefan; Baranello, Giovanni; Kirschner, Janbernd; Belter, Lisa; Mayhew, Anna.
Affiliation
  • Staunton H; Roche Products Ltd, Hexagon Place, 6 Falcon Way, Shire Park, Welwyn Garden City, AL7 1TW, UK.
  • Cleanthous S; Modus Outcomes, 4th Floor St. James House, St. James Square, Cheltenham, GL50 3PR, UK.
  • Teodoro V; F. Hoffmann-La Roche Ltd, Grenzacherstrasse 124, 4070 Basel, Switzerland.
  • Barrett L; Modus Outcomes, 4th Floor St. James House, St. James Square, Cheltenham, GL50 3PR, UK.
  • Braid J; Roche Products Ltd, Hexagon Place, 6 Falcon Way, Shire Park, Welwyn Garden City, AL7 1TW, UK.
  • Ewens B; Modus Outcomes, 4th Floor St. James House, St. James Square, Cheltenham, GL50 3PR, UK.
  • Cano S; Modus Outcomes, 4th Floor St. James House, St. James Square, Cheltenham, GL50 3PR, UK.
  • Baranello G; The Dubowitz Neuromuscular Centre, NIHR Great Ormond Street Hospital Biomedical Research Centre, Great Ormond Street Institute of Child Health University College London, & Great Ormond Street Hospital Trust, London, WC1N 3JH, UK.
  • Kirschner J; Department of Neuropediatrics and Muscle Disorders, University of Freiburg, Faculty of Medicine, 79106, Freiburg, Germany.
  • Belter L; Cure SMA, Elk Grove Village, IL, 60007, USA.
  • Mayhew A; John Walton Muscular Dystrophy Research Centre, Newcastle University, Newcastle Upon Tyne, NE1 3BZ, UK.
J Neuromuscul Dis ; 10(6): 1093-1109, 2023.
Article in En | MEDLINE | ID: mdl-37742658
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Muscular Atrophy, Spinal Type of study: Qualitative_research Aspects: Patient_preference Limits: Child / Humans Language: En Journal: J Neuromuscul Dis Year: 2023 Document type: Article Affiliation country: Country of publication:
Fulltext
Add to My VHL
Print
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Muscular Atrophy, Spinal Type of study: Qualitative_research Aspects: Patient_preference Limits: Child / Humans Language: En Journal: J Neuromuscul Dis Year: 2023 Document type: Article Affiliation country: Country of publication: